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Manchester Learning Disability Partnership Board

Getting it right The Charter for Clinical Commissioning Groups

Minutes of the May Meeting Beyond the Winterbourne Report Issue 54 • Free • Every two months May and June 2013

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Dates of 2013 Meetings

Tuesday 9 July Tuesday 10 September Tuesday 12 November We meet at Manchester People First’s offices: 3 Broughton Street Cheetham Hill Manchester M8 8RF

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Phone or Fax: (0161) 839-3700 Email: mcrpeoplefirst@googlemail.com Web: www.manpf.org

The Partnership Board’s web site is at: www.partnershipboard.org

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What we did at the May Manchester Learning Disability Partnership Board meeting Beyond Winterbourne Gary Parvin told us about an event that had been held in March. It was to see how things could be made better for people with challenging behaviour and to make sure the abuse the Winterbourne Report told us about can not happen in Manchester. Things need to change as there are still some people in hospitals who need to return to the community. Garry wants to work with Manchester Learning Disability Partnership and the Social Care department to come up with a plan to support people with challenging behaviour to stay with their family. Anna gave feedback about the event from the Shadow Partnership Board. People enjoyed Duncan Mitchell’s presentation, but were shocked things like this were still happening. Kenny Jones’s presentation was about Positive Behavioural Support and how services need to do something when people do not know how to communicate or respond. The Think Quality group said they thought “communication behaviour” was a better term than “treatment”. Anna said a good way to describe a plan would be, “Finding ways to communicate with me in my own home, instead of sending people away to hospitals or large institutions”.

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The government is working on national standards for what people can expect from services, including restraint policies. Eric Emmerson said that people are not challenging, it is services that are challenged. There will always be a small group going into hospitals, but do they need to go there? The strategy services have the job of making services meet these standards and Manchester Learning Disability Partnership Board needs to check these things are being done. Bernie said she was glad people have finally got the message that parents need supporting. Councillor Evans said improving quality of life is what social care departments, clinical commissioning groups and hospitals should do. And for the first time all of them have the same message. Paul Brannick asked why people could not be helped to die? Councillor Evans said work is being done so people do not always have to be given medical support in hospital. Duncan Mitchell said in cases of abuse it had been found that: • There were poor recruitment practices • Workers were not paid properly • Workers were not supported properly Duncan asked if the Board could give recognition and reward to frontline staff who are giving quality services.

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Garry said it would be possible to only commission services that pay a living wage. Think Quality works with people who use services to raise the standards of what they expect and show them how to complain.


People First’s Service Auditors inspect services. What they find needs to be thought about when services are commissioned. MLDP do have someone with a learning disability on their interview panels, but this is harder now because of the council’s set recruitment policy. Good recruitment and choosing who works for services is one of the things looked at in the Joint Self Assessment Framework. Anna said Think Quality would be happy to go out to any provider and give training in how to have a person with a l earning disability on their recruitment panel. Phil Gould said it was hard for providers to meet needs and wishes when funding is being cut. The new funding assessment tool does not take prompting into account, so for example people with autism will not get enough funding to get the services they need. Garry said some things can be done, such as the NHS having better links with the voluntary sector. Bernie said Talbot House has a surgery with an epilepsy nurse, so parents do not have to queue at hospital. Getting it right Charter for Clinical Commissioning Groups Garry said this charter has been written because of a report by the Independent Health and Lives’ confidential inquiry into the premature death of people with a learning disability. Mencap have a charter for clinical commissioning groups to have health services that meet the needs of people with a learning disability. They should:

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Have a learning disability commissioning lead on our executive committee to monitor and coordinate service improvement. Have an on-going programme of learning disability awareness and mental capacity training for NHS staff. Meaningfully involve people with a learning disability, their families and carers in the planning and review of health services. Commission all NHS providers to implement reasonable adjustments and use contracting to check these are done. Encourage and support all GP surgeries to offer annual health checks to people with a learning disability. Make sure all hospital acute trusts are signed up to the ‘Getting it Right Charter’. (Central Manchester Foundation Trust is already signed up to this.) Take part in the National Joint Health and Social Care SelfAssessment Framework (Learning Disabilities) and work closely with social care colleagues to make sure it is followed. Work closely with local authorities to make sure public health, social services, housing services, education, employment and NHS commissioning are well-coordinated. Aim to jointly deliver services. Monitor how services meet the needs of people. Strategically plan and commission specialist learning disability services based on evidence and best practice.

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Commission local services.


Make sure the recommendations in the Department of Health’s final report of the Winterbourne review and the concordat that goes with it are followed. Make sure the recommendations set out in the Confidential Inquiry into early deaths of people with a learning disability are done locally. Gary has asked clinical commissioning groups to sign the charter. NHS services will have a way of making sure they know if a person with a learning disability is using services. Staff at general practices such as receptionists, nurses and doctors, need to have learning disability awareness training. Paul Brannick asked what had happened to the video about using hospitals, he and Sue Menzies were working on? Anna will find out.

Partnership Board Review Update Anna said the Board will invite people to it who can bring about change. She was pleased to welcome Christine Lamb from Central Manchester Foundation Trust and Gaynor Spencer from the Greater Manchester Police and Crime Commissioner. Anna has been looking at the Joint Self Assessment Framework, particularly the “I” Statements, which aim to record people’s experiences of using services. Anna has told the Learning Disability Health Forum about it. This group is chaired by the Head of Nursing and has representatives from all the hospitals. They said a representative from Safeguarding should come to their meetings.

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Mark Thompson has said he would invite Allan Calvert, the Head of Safeguarding at Manchester City Council to come to the Partnership Board.

Any Other Business Councillor Evans gave an update about the accessibility of the council’s swimming pools. He had spoken to colleagues at the council to make sure the right people are involved when the 2 new pools are planned and built.

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Together issue 54