Yorkshire & Humberside Younger Persons Support Group
Yorkshire & Humberside Younger Persons Support Group gets own funds Finally we have been able Chairman’s Message to open a bank account for Hello and welcome to our group. The bank account is with Royal Bank of Scotland (RBS). and as our treasurer Ian Barraclough is based in Halifax we decided to place the account locally. Ever mindful of security, there are a number of signatories to withdraw funds. Cheques will need two signatures before funds can be released from the bank. So far we have deposited just over £1100. This was made up of a large amount that Debbie Petch raised from a sponsored walk and gift donations. We thank everyone who has contributed so far. Decisions on how to use the money will be part of the next steering group meeting in October. If you have any suggestions on how we use the money please contact us.
the second edition of our newsletter. In the short time that we have been together I have been encouraged by the warmth and support from a group of people who all share similar issues of people under retirement age with Parkinson’s. Recent events have been sociable and entertaining and I am delighted to say that thanks to wonderful donations from the staff and children at Wrenthorpe Primary School in Wakefield, the proceeds of sponsored walk conducted by Debbie Petch and the money collected from our recent event at Rievaulx, we have a wonderful starting fund to allow us to subsidise events in our region. There is much interest already shown in our next event at Normamby Hall Scunthorpe and I hope to see as many of you as can make it, for what will be an interesting and enjoyable day.
In This Issue
John Hinson celebrates the success of the Yorkshire & Humberside YPSG.
We start our fundraising
Good news, we obtain funds to develop the Younger Persons Support Group (YPSG)
We have a first hand account of our first fundraising walk around Rievaulx abbey in September 2011 by newsletter editor Jo Martin.
Our treasurer Ian Barraclough gives us an insight to how he manages Parkinson’s.
Up and Coming Events A stress free day is waiting for you at Normanby Hall on 3rd December 2011. A sneak preview into a fabulous comedy night at Elland Cricket Club on March 24th 2012.
Sponsored walk kick starts our fundraising By Jo Martin
trees. It was pure magic, like discovering your own secret valley. Those Cistercian Monks certainly knew how to choose a spot.
Saturday 10th September 2011 saw a sponsored walk of two miles take place at Rievaulx Abbey. Proceeds to go to the newly formed Parkinson’s Younger Persons Support Group (YPSG).
The day got better and better from than on. Even the sun managed to smile eventually. Twenty people turned up for the walk including several teenagers – a big thank you for their support. Enthusiastic support also came from a number of hairy, four legged creatures who thoroughly enjoyed themselves, especially when they managed to tangle their leads around peoples legs.
At one point there was a hill to climb. Some struggled a bit to get up, but we weren’t in any hurry and everyone made it eventually. As Ian our treasurer said, it was made easier by having the support and the distraction of the group. The surrounding countryside was beautiful and always in the background there were glimpses of the Abbey hidden amongst the trees, standing proudly where it has stood for nearly 900 years. I’m really glad I went on the sponsored walk at Rievaulx and I hope everyone else who
Saturday morning dawned bleak and blustery. The last thing I felt like doing was driving 60 miles to Rievaulx Abbey to take part in a sponsored walk for Parkinson’s YPSG. “It’s probably going to rain all day” I muttered. My mood did not improve as we approached the North York moors. The clouds settled low and ominous over the hills. “Huh!” I grumbled we “won’t be able to see a thing with this low cloud”. At this point two things happened. My partner told me to stop complaining which made me feel guilty as he was doing all the driving. Secondly we reached the top of a long and twisty climb and there before us was the Ryedale Valley, lush and green, with the Abbey ruins standing mysteriously amongst the
It was a calm day with plenty of time to chat and swap stories.
went felt the same – I think they did.
I enjoyed meeting Dave and his family from Barnsley, Nicky and the girls from Easingwold (lucky them, Rievaulx is on their doorstep) and Sheila and John from Heptonstall. Apologies to those I’ve missed.
A big thank you to Sally and Tracey for organising it and the really good news is we raised money for our group. Well done everyone who took part.
Profile My name is Ian. I am the treasurer of the younger persons support group. This group has been set up to support younger people with PD, helping them come to terms with the effects it has on their life and their families. I found it very helpful to be able to discuss my problems and concerns with someone of a similar age who has had to face a similar situation. I shall always be grateful to one of our committee members who helped me through the first few months of my diagnosis with advice and moral support. It took two years to get a diagnosis of PD. During that time I was treated for tennis elbow and given various treatments including acupuncture. At one point I was admitted to A& E with a suspected stroke. I suffered a constant headache for three weeks. At last in April 2010 I was correctly diagnosed. But to this day I suffer from headaches and pain down one side. No amount of medication seems to relieve it I am now 54 years old and I “I’ve had fantastic have had to give up a successful business and my main leisure help from my GP and interest, walking in the Lake Parkinson’s Nurse” District. I loved to walk in these beautiful hills and thought nothing of walking eight miles or more. Now on a bad day I struggle to get to the local shop. But this does not stop me trying to do more. The exercise does me good and eases my muscles. I have been known to push myself too far and have had to phone my wife for a lift home. My wife and I owned our own business for 26 years. We worked six days a week, sometimes 14 hours a day. Eventually I decided I couldn’t continue and ten months ago we gave up our fish and chip shop. We have found it difficult to find an alternative business and given the present economic climate and my Parkinson’s I fear I would not make a suitable employee either.
I have problems sleeping and survive most days on less than five hours sleep a night and have done so for the last three years. I lie awake until 2.00am, sleep for a few hours then start fidgeting again by 6.00am. (My wife has a lot to put up with). Unfortunately I don’t seem able to catch up with sleep during the day. My memory is not as good as it was and there are reminder notes all over the house. Also I find multi-tasking impossible particularly if I am near to the time for my next tablets. I’ve lost a lot to Parkinson’s but I’m still alive and kicking and getting on with my life. I have the support of my wife and family and friends, including those I’ve made through YPSG. Socialising with friends does help keep me sane, I even manage a laugh sometimes. I’ve also had fantastic help from my GP and Parkinson’s Nurse. They are always there for me when I need them and I know that I couldn’t cope without my tablets. So I’ll try to stay optimistic – perhaps that miracle drug is just around the corner!
A Parkinson’s Walking Group Is there anyone out there who would be interested in such a group. I have always been a keen walker and believe there are great benefits to be had from walking. But I’m also a great believer in fun and enjoyment so the walks shouldn’t be too hard and pubs and teashops could be a regular feature. I am based in Wakefield and could organize walks in South and West Yorkshire. Of course strength and capability would be a big consideration. I envisage a range of walks between 2-5 miles. If you are interested please do get in touch my email is firstname.lastname@example.org
An important date for your diary – Saturday 3rd December Join us for A Stress Free Day in the lovely surroundings of Normanby Hall and Country Park, Nr. Scunthorpe This is a full day event starting at 10.00 With two speakers in the morning Managing stress Relate Counseling And two workshops in the afternoon Drumming with Anna Green Singing therapy with Sue Murray 4.00 close This event is being subsidised by the Younger Persons Support Network which means tickets cost just £10 per person. If you would like to book, download the booking form from our website or call Tracey Harrison on 0844 225 3634 or email email@example.com
Looking forward to next year we have a great night planned on Saturday 24th March at Elland Cricket Club. A COMEDY NIGHT A night of fun and hilarity as three top comedians come to entertain us. Starting at 7.30pm prompt they’re sure to blow away the winter blues. Tickets are £15 per person or £150 for a table for 10 and will include a pea & pie supper (vegetarian lasagna on request) More details will be available nearer the time. Don’t forget to check out our own website for latest information and event booking forms. See www.parkinsonsypn.org.uk The website is hosted free of charge and updated by Parkinson’s member Alan Goldsbro
We’re the Parkinson’s support and research charity. Help us find a cure and improve life for everyone affected by Parkinson’s. For more information contact Tracey Harrison Branch & Volunteer Support Officer, Yorkshire & Humber 0844 225 3634 firstname.lastname@example.org Free* confidential helpline 0808 800 0303. Monday to Friday 9am–8pm, Saturday 10am–2pm. Interpreting available. Textphone 0800 111 4204. *calls are free from UK landlines and most mobile networks. Visit us online at www.parkinsons.org.uk Drop us a line at email@example.com Yorkshire & Humberside Younger Persons Support Group www.parkinsonsypn.org.uk This newsletter is edited by Jo Martin and produced and published by Alan Goldsbro.
Parkinson’s UK is the operating name of the Parkinson’s Disease Society of the United Kingdom. A company limited by guarantee. Registered in England and Wales (00948776). Registered office: 215 Vauxhall Bridge Road, London, SW1V 1EJ. A charity registered in England and Wales (258197) and in Scotland (SC037554). © Parkinson’s UK 2011