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FRONTLINE

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On the front line in the battle against breast cancer.

SUMMER 2012

Register Now for 2012 PBCC Conference

Awardees Selected, Scholarships and Sponsorships Now Available

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Alicia Richards abc27 News Anchor 2012 Pink Ribbon Awardee

Tammy Miller Author, Speaker, Breast Cancer Survivor 2012 Shining Light Awardee

he time is NOW to register for the PA Breast Cancer Coalition Conference! With awardees Congresswoman selected, workshops being finalized, and both Allyson Y. Schwartz registration scholarships and corporate sponsorships 13th Congressional District of PA now available, the 2012 conference on Tuesday, October 9 is taking shape as the fall’s ‘can’t miss’ event! 2012 Pink Ribbon Awardee First Lady of Pennsylvania Susan Corbett, Conference Chairperson, will address the hundreds of attendees gathered at the Pink Ribbon luncheon. Congresswoman Allyson Y. Schwartz and abc27 anchor Alicia Richards will each be honored for their breast cancer advocacy work with the 2012 Pink Ribbon Award also at the Pink Ribbon luncheon. Nancy E. Davidson, M.D., the Director of the University of Pittsburgh Medical Center Cancer Institute, will receive the 2012 Vivian & Meyer P. Potamkin Award for medical research during the conference opening reception where she will also present a Grand Rounds workshop on her groundbreaking breast cancer research. Breast cancer survivor, author, international speaker and friend of the PBCC Tammy Miller will be presented with the 2012 Shining Light Award at the evening reception honoring our Grassroots Partners. This reception will be held on the evening of Monday, Nancy E. Davidson, M.D. October 8. You can be a part of all the conference activities by University of Pittsburgh registering today. The registration fee provides you Medical Center access to all speakers, workshops, and the exhibitor hall 2012 Potamkin Award for as well as a seat at the Pink Ribbon luncheon and a Medical Research conference totebag full of items to take home and enjoy. And for a limited time, you can save $20 when registering online by entering EARLY as the promotional code before checking out. Also new this year is a fundraising opportunity for the conference. Individuals or teams can pledge to raise additional money beyond the registration fee to help the PBCC continue to support breast cancer survivors and their families while working to earn some additional PBCC merchandise. We look forward to seeing you at the conference on Tuesday, October 9! Don’t miss out on the early bird registration rates - register today!

Visit pbcc.me/Conf


PA BREAST CANCER COALITION

www.PABreastCancer.org

800-377-8828

FRONTLINE President’s Corner TM

A quarterly publication of the PA Breast Cancer Coalition

800-377-8828 www.PABreastCancer.org Statewide Headquarters 344 North Reading Road Ephrata, PA 17522 Pat Halpin-Murphy President & Founder

Leslie Anne Miller, Esq. Executive Vice President

Heather Hibshman Executive Director

HONORARY BOARD Bernard Fisher, M.D. Michele M. Ridge Senator Harris Wofford

BOARD OF DIRECTORS Madlyn Abramson Rosemary Boland Sandra Christianson Sandy Cray Deborah Freer John Glick, M.D. Gary Gurian G. June Hoch Andrea Mastro, Ph.D. Alice Sanders Jeanne Schmedlen Mary Simmonds, M.D., F.A.C.P. Pat Stewart Leslie Stiles Ted Williams Norman Wolmark, M.D.

PBCC STAFF Carol Burkholder Kim Bell Tricia Grove Dolores Magro Jennifer Pensinger Kevin Smith Kristen Snoke

FrontLine is published as a quarterly communique for the information of the supporters and friends of the PA Breast Cancer Coalition. All rights reserved. No portion of this publication may be reproduced or distributed without permission from the PA Breast Cancer Coalition. Amy Collins Law, Editor Amy@PABreastCancer.org

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PA Fair Care Offers Lifeline for Those With Pre-Existing Conditions Pat Halpin-Murphy

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ennsylvania residents with pre-existing medical conditions who have been uninsured for at least six months may eligible to enroll in PA Fair Care, a temporary transitional insurance plan put in place by the state to cover those with pre-existing conditions until the related provisions of the federal health insurance reform act can go into effect. Coverage under PA Fair Care is available for a monthly premium of $283.20, plus the cost of copays and coinsurance. There is a $1,000 deductible and an out of pocket limit of $5,000 in-network. The plan offers a wide range of health benefit coverage including primary, specialty, and hospital care, and necessary medical equipment and prescription drugs. In order to qualify for coverage, applicants must be a Pennsylvania resident and a citizen or national legally residing in the United States, have been uninsured for at least six months prior to application to the program, and have a pre-existing condition or been denied coverage based on health status. The latest figures as of March 2012 show that 5,111 individuals are enrolled in the program in Pennsylvania. For more information on PA Fair Care, including real life testimonials, fact sheets, and an online application, visit www.PAFairCare.com. To speak with someone about the program, call the toll-free helpline at 888-767-7015 Monday through Friday between 8:30 a.m. and 4:30 p.m.

Applicants must: o Be a PA resident and U.S. citizen or national o Be uninsured for at least six months prior to application to the program o Have a pre-existing condition or been denied coverage based on health status o Pay $283.20 per month for coverage once enrolled

PBCC News v Governor Tom Corbett reappointed Pat HalpinMurphy to serve on the Pennsylvania Cancer Control, Prevention and Research Advisory Board. The board of eleven members meets on a quarterly basis to advise the PA Secretary of Health on issues related to cancer control and prevention. v PBCC Board member Andrea Mastro, Ph.D. has been selected by the Department of Defense to receive the Breast Cancer Research Program’s Idea Award and a $500,000 federal grant. Dr. Mastro is a Professor of Microbiology and Cell Biology at Penn State University. She joined the PBCC board in 2005. v Pennsylvania’s First Lady Susan Corbett graciously invited the PBCC to hold a luncheon at the Governor’s First Lady Susan Corbett pictured with Residence for our grassroots supporters and show off the Pat Halpin-Murphy and the PBCC van. new pink PBCC van! Thanks to the First Lady for her hospitality. FRONTLINE - SUMMER 2012


www.PABreastCancer.org

PA BREAST CANCER COALITION

800-377-8828

Survivor

Spotlight

Renae Wible, Washington County

Receiving Treatment and Peace of Mind Through the Free Treatment Program Diagnosis and Treatment Two weeks before Christmas 2010 my husband Bob and I came home from shopping. I was changing clothes and when I removed my bra I felt a mass that was not there the day before. I didn’t have time for this to be what we thought it might be. I was 34 years old, the mother of two small children, and we had 35 people coming to our house for Christmas Eve dinner. So I tried wishing it away, praying it away, and cursing it away. But when it was still there after Christmas I went to my local hospital for a mammogram. The mammogram revealed two masses and then I had a needle biopsy which discovered four more masses. In early January I started a round of six chemotherapy treatments to shrink the tumors prior to my mastectomy. My husband met me at the third of those six chemo appointments, as we had planned. What I didn’t expect was that at a meeting that morning he had lost his job due to a major downsizing. His job, at a company where he had worked for 16 years, would be gone in a matter of days, and 30 days later I would lose my health insurance.

Filling in the Cracks For the next three days I called anyone who I thought could help. I searched the internet using the phrases “cancer help” or “insurance help” and any number that popped up, I called. No one had any suggestions for what to do about my situation. No one. Finally, thankfully, a nurse at my oncologist’s office gave me the toll-free number for the Breast and Cervical Cancer Prevention and Treatment Program for free breast cancer treatment. Once I called that number, I had all the answers I needed. Within weeks I knew I was approved and taken care of. To say that the free treatment program is a God-send isn’t even close to what it felt like. I cried and cried with relief when I learned I was going to get treatment and

that we wouldn’t have outing Renae enjoying a family to worry about paying r. vie Xa , son r with he for it. We are the typical family that falls through the cracks. AdultBASIC had been cancelled and we made too much money for some other programs. Luckily my two children, Xavier who is “To say that the 8 years old and Cassie who is 4, could get on to the CHIPs program. Bob has found a new job but free treatment the company does not offer health insurance for program is a the first year of work. He has already been without coverage for a full year. Fortunately, I continue to God-send isn’t receive full free treatment, and I will be covered for even close to all my medical needs for the next five years while I am on tamoxifen.

Helping Others I was happy to find the online course about the free treatment program on the PBCC website. I took the course even though I was already enrolled in the program. I wanted to know as much about it as possible so that I could share the information with anyone else I meet who might need it. I don’t want any other woman to go through those three days I went through, searching and wondering if I was just going to be allowed to die because I didn’t have coverage. I’m very proud of the certificate I received for successfully completing the PA Breast Cancer Coalition’s online course on the free treatment program. I keep it on the entertainment center in my son’s room where my computer is. I’ve just started a support group calling SOS, Sharing Our Strengths. If I can help anyone else, I will. At first when you’re diagnosed you feel so alone but you’re not. I am looking forward to meeting other survivors when I volunteer this summer at Take a Swing Against Breast Cancer home run derby at Consol Energy Park where the Washington Wild Things play.

FRONTLINE - SUMMER 2012

what it felt like. I cried and cried with relief when I learned I was going to get treatment and that we wouldn’t have to worry about paying for it.” - Renae Wible

For more information on Renae’s support group, visit the website sossharingourstrength.t15.org

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PA BREAST CANCER COALITION

www.PABreastCancer.org

800-377-8828

Breast & Cervical Cancer Researchers: Apply for a 2013 PBCC Refunds for Breast Cancer Research Grant

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re you a breast or cervical cancer researcher in PA looking for additional research funding? The PBCC will award three $50,000 grants to top researchers in PA through our 2013 Breast and Cervical Cancer Research Initiative and we want YOU to apply! To learn more or download the Request for Application (RFA) visit http://pbcc.me/RFA. Letters of Intent are due June 29 and applications are due July 31, 2012. “I’m thrilled to announce this wonderful opportunity for Pennsylvania’s breast and cervical cancer researchers,” said Pat Halpin-Murphy. “I believe that the cure for breast and cervical cancer lies in the hands of one of these talented people. It’s only through research that we will find a cure for breast cancer so that our daughters won’t have to.” The PBCC's Refunds for Breast Cancer Research program allows Pennsylvanians to donate their state tax refund to breast and cervical cancer research. This program continues to be a favorite among state taxpayers and it is through the support of individuals from across PA that nearly $3 million has been raised. The average donation is $8 and one hundred percent of the money is distributed as grants to outstanding Pennsylvania-based researchers.

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FRONTLINE - SUMMER 2012


www.PABreastCancer.org

PA BREAST CANCER COALITION

800-377-8828

M E D I C A L A RT I C L E

Understanding and Unlocking the Mysteries of Metastasis by ANDY J. MINN, M.D., PH.D. Assistant Professor, Department of Radiation Oncology, and Assistant Investigator, Abramson Family Cancer Research Institute, The University of Pennsylvania

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he majority of patients diagnosed with breast cancer have early stage disease that is confined to the breast. However, breast cancer does not always stay confined to the breast or even the neighboring lymph nodes, which are often the first place outside the breast that disease is detected. Sometimes, cancer cells spread to other organs in the body, most commonly the bones, lung, or brain. This sojourn that leads to growth in distant organs is called metastasis. Fortunately, most patients will not experience metastasis. However, when it occurs, it is often painful, debilitating, and responsible for the vast majority of breast cancer-related deaths. This enormous influence on morbidity and mortality is what makes metastasis such an important area of research. At present, the best way to cure breast cancer is to treat the disease early before metastasis has occurred. However, some women will develop clinically detectable metastasis (stage four disease) months or years after their initial treatment. Unfortunately, these patients are difficult to cure because metastases develop resistance to therapy. One strategy to treat metastasis is to identify and then cripple critical genes that metastasis relies upon to sustain their existence within distant organs. These genes that give cancer cells the ability to find its way into distant organs and adapt to the foreign surroundings are called metastasis genes. Most metastatic cancers possess a collection of multiple metastasis genes. Until recently, identifying metastasis genes was extremely difficult because each cancer cell has tens of thousands of genes and reading all of these genes was not possible. Fortunately, recent technological advances

have given researchers the ability to read the massive amounts of genetic information from patient tumors. In this way, researchers can determine which genes are mutated, missing, overly abundant, or inappropriately silenced in a particular cancer. Thus, reading the genetic code of a cancer and cataloging which genes appear abnormal are no longer impenetrable but are currently underway and proceeding at a rapid pace. After reading and cataloging the many genes that are awry in cancer, discovering metastasis genes first involves determining which of the many abnormal genes may control metastasis and then proving this using experimental models. However, simply identifying metastasis genes might not be enough. Because there are multiple genes that can be part of a metastasis toolbox, successfully treating patients will likely require many genes to be crippled. Rather than targeting each gene individually, one strategy is to identify critical connections that act as on/off switches or important relays for many metastasis genes. Then, large swaths of metastasis genes can be crippled with far fewer hits. With the goal of finding critical connections and switches for metastasis, the genetic information obtained from cancer cells become pieces to a mammoth jigsaw puzzle that needs to be connected. Although daunting, as anybody who has patiently stared and worked at a large jigsaw puzzle knows, once the configuration of some pieces are discovered, other pieces will fall into place. Now that researchers can for the first time see what all the pieces are, we envision that larger parts of the puzzle will be similarly revealed. FRONTLINE - SUMMER 2012

Andy J. Minn, MD, Ph.D.

“With the goal of finding critical connections and switches for metastasis, the genetic information obtained from cancer cells become pieces to a mammoth jigsaw puzzle that needs to be connected.� -- Dr. Andy J. Minn

Dr. Minn was one of three PA researchers selected to receive a $50,000 grant through the PBCC’s Refunds for Research program this year.

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PA BREAST CANCER COALITION

www.PABreastCancer.org

800-377-8828

Grassroots Partners

See more Grassroots Partners photos on our website!

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Sayre Theatre ‘Iron Ladies’ Night Out

t was a team effort from a group of incredible ladies to coordinate the Sayre Theatre ‘Iron Ladies’ Night Out and raise over $6,000 for the PBCC in the process! Margie Ross, Darcie Baird, Helen Harshbarger, and Heather Vail along with Melanie Sumner Cosmetics and the Spalding Memorial Library organized the event which included a showing of ‘The Iron Lady’, a brick laying dedication, desserts, live music, pink champagne, and a raffle and door prizes. Thanks to the organizers and the community for such a great event!

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any people came out to take part in the Ride for Life, a horse ride and barrel show held as a fundraiser for the PBCC! Special thanks to all participants and event coordinator Shelly Mix of MidAtlanticSpeedHorse.com for raising $2,000 for the cause!

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he Hanson Brothers made another trip back to Klick Lewis Arena for the Play it Again for Charity After-Winter Classic, bringing a memorable night of old school hockey fun to Central PA. Special thanks to a few of the PBCC’s MVPs - Rob Ziemba and Jon Jehrio - for yet another outstanding event. Since 2006, Play it Again for Charity has raised over $60,000. Thanks for hitting the ice for the PBCC once again!

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he young women of Linden Hall School for Girls in the community of Lititz put on their sneakers for a walk once again this year. Student organizer Olivia Davis and the students, faculty, staff, and community came together to raise $1,000 for the PBCC! Way to walk, ladies!

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adies Month at York Kia led to a $2,000 donation to the PBCC. For every car sold in March, York Kia donated $50 to the PBCC. They also decorated the showroom in pink and had an information table with PBCC material on it. Special thanks to General Manager Jeff Staub and owner Don Meluzio for such a great fundraiser!

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emple University’s InMotion Dance Ensemble danced for breast cancer awareness in their spring performance. They raised $166 for the PBCC. Special thanks to Katie Campbell for coordinating the event and all the dancers for using their talent to promote breast cancer awareness!

reast cancer survivor Jeani Rhine and her husband David decided that they wanted to raise money to fight breast cancer. So they created a special edition goose call to sell through their company, Final Glide, and decided to donate all the profits from the sale of the call to the PBCC. They’ve raised $825 to date! Thanks Jeani & David!

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im Roberts of Mt. Joy helped spread the word about the PBCC’s work beyond Pennsylvania’s borders by taking part in the One Lap of America race. To raise money for the PBCC, Jim accepted donations from individuals who wished to have their name or the name of a loved one on a pink ribbon sticker placed on his Corvette. So far, Jim has raised $2,000 and counting for the PBCC this year after logging over 5,000 miles. Thanks for taking the PBCC on the road with you, Jim!

Plant the seed in your community and watch it grow statewide - become a Grassroots Partner. To find out how, call Kristen at 800-377-8828 x107 or visit PABreastCancer.org 6

FRONTLINE - SUMMER 2012


www.PABreastCancer.org

PA BREAST CANCER COALITION

800-377-8828

67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania Visits Cumberland County; Heads North to Bradford County

Pat Halpin-Murphy thanks Cumberland County Exhibit Participant Susan Schwab, PBCC Board Member and Partner at Andrews & Patel Associates, Dr. Mary Simmonds, and Dr. Ronald Malcom, Radiation Oncologist at Carlisle Regional Medical Center for speaking at the opening reception at Central Penn College. n April, the PBCC’s traveling photo exhibit 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania visited Central Penn College in Cumberland County. It was fitting that an institution of higher education served as host of the exhibit, which serves to inform and educate the public about breast cancer and the courage, hope, and dignity of breast cancer survivors. The exciting kick-off to the spring season featured event speakers Krista Wolfe and Nicole Patterson, Allied Health Professors, Central Penn College; Pat Halpin-Murphy; Dr. Mary Simmonds, PBCC Board Member and Partner, Andrews & Patel Associates, PC; Dr. Ronald Malcom, Radiation Oncologist, Carlisle Regional Medical Center; and Susan Schwab, Survivor and Cumberland County Exhibit Participant. These inspiring speakers shared their stories and spoke on advances in breast cancer treatment and detection. A special thanks to Central Penn College for hosting this display and to our host committee and

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Coming to Your Community 6/14-24 67 Women, 67 Counties: Facing Breast Cancer in PA Hazleton Health & Wellness Center, Luzerne County 6/30 Greene County Swing for a Cure Carmichaels Golf Club, Greene County July Take a Swing Against Breast Cancer® Stadiums Across Pennsylvania 8/1 Swing Fore A Cure Eagle Rock Resort, Hazleton, Luzerne County 8/4-8/5 Go PINK at Pocono Pocono Raceway, Long Pond, Monroe County 8/28 Carlisle Barracks Women’s Golf League Carlisle, Cumberland County 9/30 Field of Screams Night Mountville, Lancaster County 10/6 Shades Hair and Spa Pink Party Red Lion, York County 10/9 PA Breast Cancer Coalition Conference Harrisburg Hilton, Dauphin County

For more information, visit www.PABreastCancer.org/Events

Top: Bradford County Exhibit Participant Heather Vail joins reception speakers Joanne Grossi and Heather Hibshman for a photo. Right: This was the exhibit’s record-breaking fourth trip to Guthrie, thanks in part to Helen Harshbarger, who has been instrumental in bringing the photo exhibit to the region and was honored at the reception by State Representative Tina Pickett’s office for her commitment to women’s health in the local community. event volunteers for all their hard work to make it a spectacular opening reception! The beginning of spring saw the exhibit venture all the way up to the northernmost part of the state to Guthrie Clinic in Bradford County. The reception began with a song from Joy Cooke, a breast cancer survivor who set the inspirational tone for the evening. PBCC Executive Director Heather Hibshman welcomed the crowd, explaining the purpose behind the exhibit and its influence across the Commonwealth as a vehicle of survivorship and strength. Joanne Grossi, the Regional Director of the U.S. Department of Health & Human Services, discussed the importance of the work of the PBCC and ensuring that all women have access to services they need as they go through treatment. Dr. Cynthia Lynch, a Medical Oncologist at Guthrie, expressed her support for the exhibit and the courage of all breast cancer survivors. Two survivors, Carolyn Mosher and Darci Baird, took the stage to share their experiences and journeys of hope. The reception concluded in a unique fashion with the Caledonian Highlanders Bagpipers performing a few songs, including Amazing Grace. Special thanks to the Bradford County Committee, Guthrie Clinic and Memorial Hospital, where a few panels were displayed throughout the month of May.

Kim Ties the Knot! Wedding bells were ringing in Reading in May when PBCC staff member Kim wed her sweetheart, Scott Bell, in a lovely ceremony attended by the couple’s amily and friends. The beautiful bride and her groom had gorgeous spring weather for their special day. Congratulations and best wishes for a lifetime of happiness to Kim and Scott!

FRONTLINE - SUMMER 2012

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344 North Reading Road Ephrata, PA 17522 Address Service Requested

REGISTER NOW! PA Breast Cancer Coalition

Conference Tuesday, October 9

pbcc.me/Conf

Step Up to the Plate! ®

Take a Swing Against Breast Cancer Home Run Derby Kicks off July 10

Join the PBCC as We Go PINK at Pocono!

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he countdown to the first pitch of the PBCC’s 2012 Take a Swing Against Breast Cancer® home run derby is on - but there is still time to get in on the action! Join us as a batter, a volunteer, a sponsor, or a fan in the stands and you’ll get an experience you will never forget. Individual and team registrations are still being accepted for all eight locations. Utilize the new online participant center and set up a website to help you maximize your donation and your impact. We’ve set a goal of raising $100,000 this year - and YOU can help us get there! Register today at PAHomeRunDerby.org

Heather Hibshman pictured with driver Kyle Martel.

Your Photo Here

www.PAHomeRunDerby.org 800-377-8828

Join us August 4 & 5 as we put PINK to the pavement at Pocono Raceway with Bill Martel Racing in the driver’s seat!

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adies and gentlemen, start your engines for a few laps around The Pocono Raceway track to benefit the PBCC. The NASCAR Camping World Truck Series Pocono Mountain 125 and The Pennsylvania ARCA 125 - Presented by Menard’s will be held on August 4 & 5 and we will be there, thanks to Bill Martel Racing and some generous sponsors. Check the PBCC online event calendar for more details on what fun you can expect at The Pocono Raceway. Would you like to see your business’ logo speed around the track? Sponsorship opportunities are available. Contact Heather at Heather@PABreastCancer.org or 800-377-8828 x102.

www.GoPinkAtPocono.org


FrontLine - Summer 2012