The Lyme Underworld
The Truth about Lyme
The Tragedy of Lyme
Underworld: 1. The world of criminals or of organized crime. 2. The mythical abode of the dead, imagined as being under the earth. If you know enough about Lyme disease to know the extent of deceit and corruption that has plagued this disease for decades, then you will appreciate the aptness of the name ‐‐ The Lyme Underworld. We are not just another Lyme disease nonprofit. We are taking an unpolluted, untarnished, outside‐the‐box approach to tackling the multitudes of Lyme crimes that should have been rectified long ago. The Lyme Underworld is a collective of people who believe that traditional routes have been ineffective in the battle to reform all aspects of this disease – essentially the myriad conflicts of interest – including physician and patient awareness, diagnosis, treatment, physician education, research grant funding, pharmaceutical profiteering, lack of insurance coverage, and special interests. This is an injustice, a crime. We believe that a no‐nonsense, non‐bureaucratic, nonpartisan approach is absolutely essential to lead us to the answers needed to help those suffering with Lyme disease, those misdiagnosed, and those yet to be infected. Our aim is to ensure that one day Lyme disease sufferers will wake up pain‐free, worry free, and without the financial stranglehold that the mounting complications of Lyme disease place on each of us and our families.
The Greatest Imitator: Since most healthcare professionals are uneducated and/or misled about Lyme disease (especially chronic Lyme), and the most readily known Lyme tests are routinely inaccurate, chances are that you will not get a proper diagnosis until it is too late for the CDC/Infectious Diseases Society of America (IDSA)‐ approved diagnostic tests and treatment protocols to be of help. Instead, you will most likely be told that you have one or more of the many chronic conditions that Lyme is regularly misdiagnosed as, including (but not limited to): Fibromyalgia, Chronic fatigue syndrome Multiple sclerosis Lupus Multiple psychiatric conditions, including panic attacks, depression, bi‐polar disorder, ADHD, dementia Amyotrophic lateral sclerosis (ALS/Lou Gehrig's disease) Parkinson’s disease Epilepsy, seizures Autism Rheumatoid arthritis (RA) Alzheimer’s disease Epstein‐Barr and other viruses Various chronic skin conditions
ontrary to what most US healthcare professionals continue to be taught, Lyme disease is relatively easy to catch and can be extremely difficult to cure, requiring months, years, and in some cases even lifelong continuous treatment. It is the fastest growing infectious disease in the US, more so than AIDS, Swine flu, and West Nile combined. It is estimated that Lyme disease costs at least $1 billion annually in the US. The Centers for Disease Control (CDC) states that 80 percent of those infected exhibit the much talked about bull's eye rash (erythema migrans). In reality, only a very small percentage of those infected ever develop this rash. Studies show that the quality of life of those suffering from chronic Lyme is worse than those who have suffered a recent heart attack or have type II diabetes (NIH). There are over 100 strains of the bacterium that causes Lyme (borrelia) in the US, 300 strains worldwide, and five subspecies of it. The various types of bacteria that cause Lyme are in our blood banks across the US and the CDC is aware of this. Deaths occur as a result of Lyme being misdiagnosed as one of 350 other conditions and subsequently mistreated, under‐treated, or simply not treated. In addition, suicides, sadly, are very much a reality of Lyme disease. Lyme destroys lives. Lyme kills. People continue to die. Enough IS enough.
The Lyme Underworld
Educate yourself about the early, obvious warning signs of Lyme disease, but most importantly the invisible symptoms. Call your local hospital and ask what their diagnostic and treatment protocols are for early and chronic Lyme disease. Offer to hold a Lyme disease educational seminar for the staff.
Call your local State and National representatives and ask them to support legislation that will rescind the IDSA guidelines and demand research be funded in the right direction so that progress can finally be made. Call your medical insurance agent and ask him/her what they know about Lyme. Then spend some time encouraging them to include the care of chronic Lyme as a legitimate claim.
Talk about Lyme with your friends and family. This disease is not mythological, and the people that suffer from it must refuse to accept remaining silent, invisible, and disbelieved.
If this disinformation campaign is allowed to continue and this disease continues to be ignored, it can and will reach every one of us. But reform, a cure, and justice will not happen by itself. The future of this disease and ultimately the quality of our lives remains unwritten. This disease does not own you; you own it. YOU are the catalyst to affect change and make right the many wrongs.
Copyright©Lyme Underworld, 5/2011
Our Mission: To rectify the multitude of injustices that continue to be inflicted upon Lyme disease sufferers, and expose
the truths, through a unified voice,
while encouraging meaningful research and unwavering support.
Join us in helping to right the wrongs! Contact: email@example.com Copyright©Lyme Underworld, 5‐2011