46 • MAY 2019
JULIE’S JOY • ELVA K. ÖSTERREICH
Memory of friend inspires action
hen Jan Hart and her husband lived in Ohio several years ago, she met one of the most amazing friends of her life, Julie Kroske. The two have been friends going on 6 years now, Hart said. “In the summer of 2016 she let us know she was undergoing the process of being diagnosed with ALS (Amyotrophic lateral sclerosis),” Hart said. Hart talked to CEO Tony Dohrmann at Electronic Caregiver where she works and he decided to provide Julie with the caregiver system they created providing Julie and her family with a strong sense of security and backup in emergencies. Grateful for the help, Julie offered to be the national ALS spokesperson for Electronic Caregiver. “So, she is an advocate for ALS awareness,” Hart said. “She wrote the Caring Bridge Journal and last year she flew in (to Las Cruces) in the spring and we followed her around Mesilla, White Sands, Alamogordo and Ruidoso taking images of her and creating an ALS campaign called Julie’s Joy.” According to Hart, during Julie’s tour of New Mexico Julie said, “I am determined to maintain my joy throughout
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Julie Kroske visits New Mexico in 2018 as ALS spokesperson on behalf of Electronic Caregiver.
this process.” “She has always been one to bring joy,” Hart said of her friend. “She has this determination to be joyful no matter what life brings.” This year Hart and her company were contacted by the ALS New Mexico because it is bringing the ALS walk to Las Cruces. “ALS is terminal, there is currently no cure,” Hart said. “The ALS Association is the only nonprofit in the country that is working to raise research money looking for answers.” On average there are 110 New Mexico families receiving assistance from the ALS NM. New Mexico’s chapter hosts a durable medical equipment loan closet loaning expensive and much-needed equipment
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Jan Hart and Julie Kroske. (Courtesy Photos)
to patients. It also fully funds all-in-one clinics throughout the state
where patients can be seen in one day, at one location, by a multitude of providers includ-
ing therapists, nutritionists, pharmacists, etc. A portion of the money raised in New Mexico goes directly to ongoing research. The average cost of ALS to each family is $250,000 per patient per year. Electronic Caregiver is challenging fellow southern New Mexico businesses to join the walk and raise money for ALS solutions on May 4 at Sisbarro Park on the New Mexico State University campus, 1815 Wells St. Everyone can donate (every single dollar counts), Hart said. And nearly everyone can walk, ride or even wheelchair this self-paced 3-mile walk. While it’s never quite known when it will hit or who will be affected. But most people in some ways are at risk for ALS as almost 5,000 people are diagnosed in the U.S. every year. Also known as Lou Gehrig’s disease, ALS is a progressive neurodegenerative disease that once diagnosed has an average survival time of three to five years. Although, there is currently no cure, the fight the help those diagnosed is ever present. Donations can be made in support to a team, which will support those with ALS in New Mexico and their families. The self-paced walk starts at 10 a.m., with check in at 8 a.m. For more information on the walk or to make a donation visit: http://web.alsa.org/site/ TR?pg=entry&fr_id=13520 or contact Katie Crouch at katie. firstname.lastname@example.org
SUN, EARTH, UNIVERSE
Exhibition Explores Solar System
Museum of Nature & Science hosting hands-on exhibits
oin us at the Museum of Nature & Science for Sun, Earth, Universe, an exhibition that explores the big questions NASA is trying to answer
about our Earth, sun, and other planets. Packed with engaging, hands-on interactive exhibits and dazzling imagery, this 600-square-foot exhibition connect visitors with current NASA science research and launch them on a journey to explore the universe. Sun, Earth, Universe includes fun and compelling exhibits for visitors of all ages. Follow the design-build-test cycle of engineering and build a model spacecraft for your own mission to space. Spin a tumbler of 10,000 beads, representing all of the stars we can see from Earth, to search for the unique one that represents our Sun. Reveal hidden images using the same tools NASA scientists employ to explore the otherwise invisible forces and energy of the universe. Take a break and play the “Your Mission to Space” board game or help younger visitors pilot rovers across the Mars landscape play table. These ex-
periences are designed to introduce visitors to ongoing NASA research in the fields of heliophysics, Earth science, planetary science, and astrophysics, and encourage them to imagine what the future of Earth and space science might hold. The Sun, Earth, Universe exhibition is on display at the Museum of Nature & Science as part of a nationwide effort designed to engage audiences in the awe-inspiring fields of Earth and space science. The Sun, Earth, Universe exhibition was developed in collaboration NASA. Sun, Earth, Universe exhibitions are developed and distributed nationwide by the National Informal STEM Education Network (NISE Network). The Museum of Nature & Science is open from 10 a.m. to 4 p.m. Tuesday through Friday and from 9 a.m. to 4:30 p.m. Saturday and can be found at 411 N. Main St. in Las Cruces. For information call 575-522-3120.