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Fall 2010 Edition

South Florida Chapter


Keynote Address: 11:15 - 11:45 am • Kottil W. Rammohan, MD MS Division Director and Clinical Director, University of Miami Multiple Sclerosis Center for Excellence, Professor of Clinical Neurology at University of Miami Miller School of Medicine

he National MS Society’s Annual Health Expo and Annual Meeting will be held on Sunday, Nov. 7, 2010 at the Signature Grand in Davie, Florida. The Expo will focus on MS research and community resources. Registration, Information and Exhibitors: 8:30 am Ask the Doctor Session: Featured panel of leading neurologists specializing in MS: 9:30 – 11:00 am •  Jonathan Harris, MD Neurologic Consultants PA • Janice Maldonado, MD Assistant Professor, Department of Neurology University of Miami, Miller School of Medicine • Kottil W. Rammohan, MD MS Division Director and Clinical Director, University of Miami

Multiple Sclerosis Center for Excellence, Professor of Clinical Neurology at University of Miami Miller School of Medicine • Islon Seliger, MD Director, South Broward MS Clinic • Craig Senzon, MD Assistant Professor, Harvard Medical School, Senzon Neurology • Brian Steingo, MD Director, Multiple Sclerosis Center

Annual Meeting, Election of 2011 Board of Trustees, Award Presentation and Lunch: 12:00 – 1:15 pm RSVP is required by Nov. 3, 2010. Call 1 800 FIGHT MS (800-344-4867), email or visit by Nov. 3, 2010. Funded in part by an educational grant from

Gilenya Is Approved –The Era Of Oral Drugs Begins


n September 22, the U.S. Food and Drug Administration approved fingolimod capsules for reducing the frequency of MS attacks and delaying the accumulation of physical disabilities in people with relapsing forms of MS. This is a milestone in MS therapy. The new medication, under the brand name Gilenya (pronounced Jil-EN-ee-ah), will be available as a “first line” treatment, meaning there are no recommendations for people to try other MS therapies before trying Gilenya. Novartis, the manufacturer, says the drug will be available for prescription in coming weeks. Gilenya is a new approach to controlling MS. It blocks receptors on some of the same T and B immune cells that have been implicated in causing MS damage. The drug causes some of these cells to remain in lymph nodes, inhibiting them from migrating into the brain or spinal cord.

An informed choice

While oral drugs have long been a goal for researchers, the choice will not be quite as simple as putting down a needle and popping a pill. Gilenya comes in capsules. It is

p 4-5 MS Walk 2010

p 6-7 MS Bike Ride 2010

taken by mouth once a day with or without food. There is no evidence that taking a higher dose will provide additional benefit. Gilenya is a powerful drug with potential side effects and risks as well as possibilities. The label carries warnings about these, including decreased heart rate after the first dose. The drug also increases risks of certain infections. In the clinical trials, two deaths from herpes infections occurred in people who took Gilenya at a higher dose than the level that has been approved. A number of pretreatment tests will be required and people will be monitored for potential lowered heart rate for six hours following their first dose. On the up side, clinical trial data suggest that Gilenya has a stronger impact on reducing relapse rates than a standard drug and also delays accumulation of physical disability. Us Consult with you physician to learn more about Gilenya. For more details, including Frequently Asked Questions and references to the clinical trials, please visit

p9 MS Gala & Fashion Show 2011

p 10 MS Kids Camp 2010

Help en! e Go Gr the MS

ve Recei on Online. 67 ecti Conn 00-344-48 4 -8 Call 1 4-731-422 or 95 ign up to s . today

p 11 MS Women’s Retreat 2010

Tel: 954-731-4224 Fax: 954-739-1398 Publication of the National Multiple Sclerosis Society South Florida Chapter 3201 West Commercial Blvd. Suite 127 Ft. Lauderdale, FL 33309 Chairman Ed Pozzuoli Vice Chairmen Joey Epstein Fred Zuckerman Secretary Diann Geronemus Treasurer Kevin Conn Chapter President Karen Dresbach Newsletter Editor Jolene Caprio


he U.S. Food and Drug Administration has accepted and given Priority Review to EMD Serono’s application seeking approval to market cladribine as an oral diseasemodifying therapy for relapsing forms of MS. A Priority Review means that the FDA will review the drug in less than the usual amount of time. This designation is given to drugs that offer major advances in treatment, or provide a treatment where no adequate therapy exists. The goal for completing a Priority Review is six months from when the application is submitted, meaning that the agency’s approval decision could happen in December 2010, but it might take longer. In a large-scale phase 3 clinical trial, cladribine tablets significantly reduced relapse rates and other disease activity in people with relapsing-remitting MS.

In November 2009, EMD Serono announced that it had received a “refuse to file” letter from the FDA for its original cladribine application submitted in late September, which usually means that the agency deems the application incomplete. On June 8, 2010, EMD Serono announced that it resubmitted its application to the FDA for approval of cladribine.

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

Thank You To Our Volunteers

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS.

If you or someone you know may be interested in volunteering, please contact Dianne Plumb at

© 2010 National Multiple Sclerosis Society, South Florida Chapter


FDA Gives Priority Review Status to Application for Oral Cladribine to Treat Relapsing Multiple Sclerosis



very month members of the Broward Support Group volunteer in the South Florida Chapter office to label approximately 6,000 support group flyers. Most members of the labeling group have been volunteering in this monthly project since 2008. “Volunteering gives me a chance to give back and do what I can to help others,” says Michael Myette, Support Group Leader. The Chapter would like to recognize and thank the labeling group, and all of the outstanding volunteers who have come together in 2010 to help change the lives of individuals living with MS in our community. Through your compassion and unselfish caring you have demonstrated the fortitude needed to meet our challenges and accomplish our goals. We cannot thank you enough for your strength, tireless energy and talent, and look forward to working with you again in 2011.

THE NATIONAL MS SOCIETY IS ON FACEBOOK Want more contact with other people living with MS or learn more about upcoming events? The National MS Society is on Facebook (where you’ll find discussion threads, links and more). Go to


he Run to Stop MS team participated in the Inaugural Disney Wine & Dine Half Marathon Night Race on October 2, 2010. 15 Participants ran 13.1 miles through various Disney Parks and raised over $25,000 for the National MS Society. The Run to Stop MS program has also teamed up to run in the ING Miami Marathon and Half Marathon on January 30, 2011. The team’s goal is to fundraise over $75,000 while running 13.1 or 26.2 miles.


Make it your personal achievement while running for those who live with multiple sclerosis. Registration is $50 with a fundraising minimum of $1,500. Members of the Run to Stop MS team receive personalized training, fundraising web page, Run to Stop MS runner’s singlet and exclusive discounts on fitness gear. Are you a first time runner or walker? Join our training program and we will


Run to Stop MS

help you reach your goal while helping us create a world free of MS. Register today for the ING Miami Marathon and Half Marathon by visiting or contact Mary Jordan at 954-731-4224; or Sara Bentley at 954-731-4224; org for more information.


f you want to challenge yourself toward creating a world free of MS, consider joining the 2011 Run to Stop MS 5K race near you. The 5K runs will be held in following cities:

Children ages 5-10 are also encouraged to register for the ¼ mile Kids Fun Run. Advanced registration is $10 per person; $15 day of race. Don’t let your child miss out on the fun with an 8:15 am race start.

February 26, 2011 Lee County Florida Gulf Coast University April 2, 2011 Coral Gables The Park at City Hall April 3, 2011 Weston Markham Park

Concluding all races will be an awards ceremony. Medals will be awarded to the top three male and female runners as well as winners in each of the 14 categories. All children will receive a participation award.

Advanced registration is $25 per person; $35 day of race. Registration will begin at 5:45 am with a 7:00 am start.

For more information, visit or contact Mary Jordan at 954731-4224 or

National MS Society Affiliated MS Centers Fort Lauderdale MS Center Director: Brian Steingo, MD Tuesdays - 9:00 am to 5:00 pm 572 East Mcnab Road, Pompano Beach, FL 33060 (954) 738-1700 Neuroscience Consultants Comprehensive Multiple Sclerosis Center Founding Medical Director, Emeritus: Howard Zwibel, MD Director Clinical Affairs: Carlos Ramirez-Calderon, MD Mondays - 8:30 am to 1:00 pm and Thursdays - 8:00 am to 3:30 pm 4601 Ponce de Leon Blvd. Ste. 100, Coral Gables, FL 33146 (786) 219-3145 South Broward MS Clinic Director: Islon Seliger, MD Thursdays - 9:00 am to 5:00 pm 12596 Pines Boulevard, Pembroke Pines, FL 33027 (954) 437-4000

The National MS Society is excited to announce the national launch of The Golden Circle – a special place for people with a special commitment to a world free of multiple sclerosis. On behalf of everyone affected by MS, the National MS Society has created a membership program acknowledging the important support of individuals who truly make their mark against MS by making an annual gift of $1,000 or more. Members of Golden Circle receive unique benefits, including:

• Access to chapter and national leadership. • Invitations to exclusive local and national special events. • Invitations to conference calls to hear the latest progress in MS research directly from world renowned scientists, and to pose questions directly to the scientists on the calls. • The opportunity to connect with other Golden Circle members – people who share a passion for a world free of MS.

For more information about the benefits of The Golden Circle or how you can join, contact Mark Kotler at 954-731-4224. TOLL FREE NUMBER 1 800 344 4867



housands of enthusiastic walkers rallied together at the 2010 MS Walk. Participants joined one of the nine fun, family-friendly events in Aventura, Boca Raton, Coral Gables, Fort Lauderdale, Lee County, Naples, Stuart, The Palm Beaches and Weston. It takes a community to raise critical funds to create a future free of MS and we thank each and every one of our participants, donors and volunteers! The MS Walk raised nearly $750,000. We appreciate your incredible fundraising efforts! It’s never too late to make a move that can make a difference. Each dollar and every step brings up closer to making our mark against MS. Sign up to participate in the 2011 MS Walk. To learn more, go to or contact Mary Jordan at 954-731-4224 or

2010 MS WALK COMMITTEES AVENTURA Estrella Behar – Chair Bernard Goldman Myrna Goldman Tatiana Krausz Jane Matthews Joe Maya Barbara Mena Yolanda Salgado Lila Silverman Linda Stale Michael Stale Hilda Weisz Luis Yepez BOCA RATON Andrew Tharp - Chair Stephen Bentz Abbi Bentz Billie Cohen Gerry Cohen 4

Mitchell Cohen Dan Dixon Barbara Glasser Jodi Rothman Sandy Segal Gary Stein Al Witko

Rick Deal Deb Giblin-Davis Donna Lunenburg Gia Melluzzo Lisa Sculnick-Colvin Debbie VonNote Lorraine Weaver

CORAL GABLES Jose Rivas Felix - Chair Patty Abboud Carole Fonseca Bettina Gensollen Ed Gross F. David Olazabal Michelle Prestia Jose Lopez

LEE COUNTY Tonya Emerson - Chair Sue Arend-Baxter Tami Dunn Colin Feng Shari Haling Fred Hixon Barbi Snyder Randy Snyder

FORT LAUDERDALE Rick Andreassen Jan Berns Mike Blatt

NAPLES Sue Haberkorn Pat Kellard Jenette Friend


WESTON Corey Englehard Steve Balanovich Meghan Brooks

MS WALK MISSION POSSIBLE Edward Abboud Marni Becker-Avin Erin Blankstein Barbara Glasser Tom Hannigan Frank Petrino Fred Rothman Hermine Taramona Orli Teitelbaum

MS Walk Special Recognition Awards

Top 3 Teams Overall Team Alie - Boca Raton Team B&P - Fort Lauderdale Isroff/Dan - Boca Raton Best Corporate Team Gazit Group - Aventura MDS for MS - Boca Raton Neuroscience Consultants Coral Gables Team B&P - Fort Lauderdale Mighty Marcs - Lee County McDonald & Osborne PA - Naples Greenberg Traurig The Palm Beaches EWM Realtors - Weston Best Friends & Family Team Team Uri - Aventura Team Alie - Boca Raton Jodi’s Team - Coral Gables

Katie’s Angels - Fort Lauderdale Mom’s Army - Lee County Carol’s Sole-Mates 2010 - Naples Jen’s Energetic Neurons - Stuart Babs Bunch - The Palm Beaches Kathy’s Sole Mates - Weston Most Improved Team Gazit Group - Aventura Lotta Nerve/Mia’s Angels - Boca Raton MS J Squad IV - Coral Gables Team B&P - Fort Lauderdale We Walk for Josh - Lee County McDonald & Osborne PA - Naples Grosso Devine - The Palm Beaches Best Rookie Team Purrinos Soldiers - Aventura Team Laura Tendler - Boca Raton Team ZORG - Coral Gables Katie’s Angels - Fort Lauderdale Miles of Support - Lee County Edison State College - Naples The Journey - The Palm Beaches Angel Kisses - Weston

Best School Team Team FIU Biscayne Bay Campus - Aventura Team Red Dragon - Boca Raton CGMS WALKS FOR MS Coral Gables Weinbaum Yeshiva High School Fort Lauderdale Florida Gulf Coast University Cares Team - Lee County Edison State College - Naples Dodie’s Graham Crackers - Stuart Suncoast High School Computer Club - The Palm Beaches


Top 3 Individual Walkers Overall Fred Rothman - Boca Raton Marni Becker-Avin - Fort Lauderdale Tom Hannigan - Boca Raton

Top 3 5K Weston Team Team Kotler Steve’s Team Team Solution Top 3 5K Weston Individual Amy Kenny Lisa Ruskin Steven Balanovich


Thank you for your generosity throughout the year. Acorda Therapeutics Baptist Health South Florida Beth Moshe Congregation Comcast Coral Gables Hopsital Crystal Geyser Del Monte Einstein Bagels EMD Serono, Inc. Fazio Golf Course Designers Florida Linen Services FMS Bonds, Inc. FREEDOMED Gazit Group Greenberg Traurig, P.A. Humana International Consulting Group, Inc. La Carreta Restaurant Lee Memorial Health System M&I Wealth Management Morgan Stanley Naples Daily News NCCI Holdings, Inc. Neuroscience Consultants Nexstore Market Place Park Avenue BBQ & Grille Perry Ellis America

ProQuest Information and Learning Publix Seaboard Marine Sodexho, Inc. Starbucks Stuart News Terra Group TEVA Neuroscience, Inc. The Original Pancake House Vitas Innovative Hospice Care Wells Fargo/Wachovia Zimmerman Advertising Thank you to the following schools for their helping hands at the 2010 MS Walks: Aventura - Michael Krop Senior High Boca Raton - West Boca High School Coral Gables - Coral Gables High School Fort Lauderdale/Weston - Stranahan High School Naples - Baron Collier High School

2011 MS Walk Dates

February 26, 2011 Lee County – Florida Gulf Coast University Naples – Lowdermilk Park

March 6, 2011 Fort Lauderdale – Hugh Taylor Birch State Park March 13, 2011 Boca Raton – South County Regional Park March 20, 2011 Aventura – Founders Park The Palm Beaches – CityPlace April 2, 2011 Coral Gables – The Park at City Hall April 3, 2011 Weston – Markham Park TOLL FREE NUMBER 1 800 344 4867


Top 25 Teams

presented by


he 2010 Zimmerman MS Bike Ride Presented by Mack Cycle and Fitness was truly a memorable experience. In yet another challenging year, our riders, volunteers, fundraisers and sponsors showed their overwhelming dedication towards finding a cure for MS by raising nearly $1.9 million. The ride started from the Maroone Start/Finish Village at Homestead-Miami Speedway with a lap around the track, NASCAR style. Cyclists relaxed and celebrated at the new 42Below Village at John Pennekamp Park with food, live music and cocktails provided by 42Below Vodka. A very special thank you to all participants who joined together in raising awareness and funds to create a world free of MS.

REGISTER TODAY! The 25th Anniversary Zimmerman MS Bike Ride Presented by Mack Cycle and Fitness will take place May 14 – 15, 2011. The two-day cycling event kicks off from Homestead-Miami Speedway. Riders will begin their ride with a lap around the Speedway then make their way towards the island beat of Key Largo. The Village at John Pennekamp State Park is the overnight stop and offers food, drinks, massages, entertainment and much more. Cyclists will cross the finish line and celebrate at the Homestead-Miami Speedway.

2010 Bike Committee Jason Swift Committee Chair Ron Abrams Rest Stop Coordinator Mike Blatt Start/Finish Coordinator Bob Bodner JP Facilitator Delio Botero UPS Coordinator Lt. Corey Bryan Monroe County Police Coordinator

Michael Connor Truck Logistics Coordinator Ernesto Diaz Motorcycle SAG Coordinator Etta Antonio-Dixon Nurse Coordinator Sgt. David Fariss Miami-Dade Police Coordinator Matt Ginn HAM Coordinator Gary Hicks SAG Coordinator

Merritt Burrus Route Logistics Assistant Larry House SAG Coordinator Rolando Calzadilla Assistant at Large Joe Camus SAG Assistant 6

Silvia Inman Bike Lock Up Coordinator


1 zMotion $256,895 2 Team STORM RIDERS $138,788 3 BACARDI $112,053 4 Mack Cycle and Fitness/ MiamiPace $66,138 5 Team Tradestation $36,775 6 G4S $35,504 7 Advanced Roofing Tar Peddlers/ Solar Sprockets $31,858 8 DHL PEDAL ON FOR A CURE $29,092 9 CSP Express $22,871 10 Cargill Cares Miami $22,184 11 Weston Flyers Cycling Club $20,696 12 Lynn University $20,339 13 Office Depot Foundation Cycling Team $19,783 14 American Express Centurions $18,992 15 Never Give Up $18,045 16 Enterprise Rent A Car $17,712 17 ADT - Always There! $15,491 18 Keirin Cycles $15,365 19 Leslie’s Angels $14,310 20 Subway / IPC Bike Team $12,269 21 Team HP $11,705 22 Beach Bikers $11,520 23 Team Sindacato $11,360 24 Microsoft $11,027 25 Team Eckerd $10,200

Christy King JP Coordinator Julia Mayan Start/Finish Coordinator Javier Salinas Truck Logistics Assistant Kevin Scanlon Net Control Alan Steel Bike Shop Coordinator Claretha Timmons Rest Stop Assistant Brandy Urbine JP Coordinator Dante Watson Truck Logistics Assistant Dale Word JP Coordinator Brenda Zelman JP Assistant

Zimmerman MS Bike Ride Presented by Mack Cycle and Fitness May 14-15, 2011

Mission Possible & Club151 Pat Patregnani Mike Schweiger Keith Rosen Robert Kornahrens Craig Zoufaly Bill Sanderson Michael Hogsten Russell Irvine Scott Northcutt Jeffrey Nunberg Roy Gerber Chris Walters Seth Wise Claudette Halluk Jon Kushner Kevin Lynch Oscar Abraldes Glenn Basile Charles Martin Orlando Sosa Donald Lindsay Bruce Retzsch Salomon Sredni Nancy Wainwright Laura Schuyleman Fred Zuckerman Carmen Marston Helen-Eleni Sonenreich Al Lehman Cheryl Lopez Beth Waldorf Stewart Gurr Edward Daniel Joe Santos Rodger Irvine Robert Fink Howard Markowitz Allen Giese David Buck Paul Alfieri John Wrench Dan Gitlitz Austin McQuillen Kenneth Vega Juan Saldarriaga Ronan Miguel Morales Antonio Jacomino Alan Haimowitz Rita Guzman Rex Hamilton

$40,217 $22,001 $20,611 $11,450 $11,350 $11,050 $10,625 $8,522 $7,800 $7,385 $7,100 $7,000 $6,898 $6,525 $6,506 $6,236 $6,000 $5,321 $5,240 $5,205 $5,176 $5,150 $5,113 $5,100 $5,011 $4,486 $4,327 $4,309 $4,150 $4,130 $3,995 $3,700 $3,675 $3,550 $3,537 $3,475 $3,437 $3,397 $3,390 $3,365 $3,315 $3,299 $3,275 $3,250 $3,249 $3,200 $3,160 $3,100 $3,085 $3,055 $3,051

Special Awards

52 Gerry Cullen $3,050 53 Kevin Eggart $3,045 54 Marion Wicker $3,010 55 Richard Berrie $3,007 56 Sharon Schwartz $3,000 57 Norma Thomson $3,000 58 Oscar Sosa $2,995 59 Vance Lemmon $2,992 60 Jill Talbot $2,970 61 Frank Tucci $2,880 62 Glynis Bryan $2,850 63 Jean-Charles Fourcade $2,832 64 Beth Levine $2,820 65 Gregory Kimmelman $2,800 66 Jo Jo Russo $2,785 67 Michele Scarpa $2,775 68 Byron Reid $2,765 69 Kurt Taylor $2,765 70 William Broome $2,745 71 Tony Ortiz $2,701 72 Wendy Stein $2,700 73 Steve Adolf $2,696 74 Alan Kurtz $2,693 75 William Bogard $2,682 76 Jorge Cameron $2,675 77 Keith Fowee $2,659 78 Gary Sullivan $2,655 79 Scott Davidson $2,625 80 Scott Osman $2,580 81 Sandra Lemmon $2,576 82 George Wicker $2,510 83 Marie-Lisette Flores $2,491 84 Robert Krauss $2,455 85 Jeffrey Raffa $2,440 86 Michael Stazzone $2,425 87 Jonathan Berman $2,422 88 Amy Benjamin $2,402 89 Rick Marshall $2,400 90 Jose Sepulveda $2,385 91 Andrew Taubman $2,375 92 Thomas Panos $2,335 93 Marjorie Ketola $2,311 94 Robert Schwartz $2,301 95 William O’Neill $2,300. 96 Shaena Rowland $2,300 97 Will Coakley $2,292 98 Kim Mieloch $2,255 99 Lanny Carrero $2,252 100 Lorrie Lewis $2,230 101 Arnon Joel $2,225 102 Jeff Wolach $2,210

103 Lisa Kay Mao $2,200 104 Howard Seiler $2,175 105 Edward Cloak $2,160 106 Lucy O’Connor $2,151 107 David Multack $2,150 108 Craig Robelen $2,150 109 Dawn Lenhard $2,140 110 Nicole Bonilla $2,120 111 Sean Beaulac $2,110 112 James Paddon $2,100 113 Michael Weinberg $2,100 114 Wali Waiters $2,085 115 Charlie Slover $2,075 116 Manny Platis $2,065 117 Malena Vareles $2,055 118 Susan Touset $2,050 119 Fred Glickman $2,036 120 Andrew D’Angelo $2,005 121 Scott Thaler $2,000 122 Jan Carlsson $2,000 123 Lorne Reiter $2,000 124 George Wilson $2,000 125 Michael Jacobson $1,975 126 Bianca Autuori $1,930 127 Melissa Kramer $1,925 128 David Elder $1,925 129 Umberto Veltri $1,910 130 Dane Bauers $1,910 131 Jeffrey Chang $1,900 132 Tiffany Homuth $1,900 133 Douglas Bondy $1,870 134 William Brasmar $1,862 135 Mitchell Mossman $1,860 136 Mike Origlia $1,843 137 Roland Poitevien $1,835 138 Colleen Boggs $1,826 139 Celeste Ramirez $1,825 140 James Taylor $1,825 141 Jeff Flint $1,822 142 Barry Blodinger $1,800 143 Corey Taub $1,771 144 Judy Alvarez $1,755 145 Debra Ogilvie $1,750 146 Eric Rosenblum $1,747 147 Martin Bandin $1,738 148 Steven Charlassier $1,735 149 Scott MacPhee $1,730 150 Ivette Fornell $1,725 151 Coke Coakley $1,687


1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51

Most Improved Team Highest Average Fundraising Team Best Friends & Family Team Best Rookie Team Best Club Team Best Express Services Team Partner in the Fight Against MS Partner in the Fight Against MS Partner in the Fight Against MS Voted Best Bike Shop Voted Best Team Name Voted Best Rest Stop Voted Best Jersey

Team Tradestation Enterprise Rent A Car Team STORM RIDERS Subway / IPC Bike Team zMotion DHL PEDAL ON FOR A CURE FedEx Bacardi USA Mack Cycle and Fitness Velo’s Cyclery Remyelinators American Airlines Team STORM RIDERS TOLL FREE NUMBER 1 800 344 4867




he South Florida Chapter offers free monthly educational teleconferences. These calls focus on different topics and feature expert keynote speakers. Learn more about managing MS from the convenience of your home. It’s Easy to Register! Online: go to the calendar section. Email: msprograms@fls. Provide name, address, phone number, and indicate which program(s) for which you are registering. Call: 1 800 FIGHT MS (344-4867). Provide name, address, phone number, and indicate which program(s) for which you are registering. November 9, 2010 at 7:30 pm Finding Balance for the Caregiver Jessica Thomas, MSW National Multiple Sclerosis Society, Central North Carolina Chapter

December 14, 2010 at 7:30 pm Bowel & Bladder Issues Penny Burcham, FNP Shiloh Neurology Clinic, Corinth, Mississippi January 11, 2011 at 7:30 pm Exercise & MS: You CAN Do It! Melissa Mahon, DPT University of North Carolina, School of Physical Therapy

Tom Hebrank, CFP®, CLTC Advanced Planning Solutions, Inc., Marietta, Georgia

February 8, 2011 at 7:30 pm Multiple Sclerosis Management & Chiropractic Care Adam Chaifetz, DC University of Florida and Shands Neuroscience Institute, Chiropractic and Massage Therapist MS Comprehensive Center

June 14, 2011 at 7:30 pm MS, Sex & Intimacy Dona H. Caine-Francis, PMH-NP/CS, BC ACCESS; Lake Norman, North Carolina

March 8, 2011 at 7:30 pm Lighten Your Load with Laugher Susan Dorne, OT National Multiple Sclerosis Society, South Florida Chapter April 12, 2011 at 7:30 pm Financial Planning for a Life with Multiple Sclerosis

May 10, 2011 at 7:30 pm Nutrition Randy Pendergrass, Registered Dietician Saint Thomas Hospital, Nashville, Tennessee

July 12, 2011 at 7:30 pm Integrating MS into Your Life Heather C. Brewer, LCSW, ACSM National Multiple Sclerosis Society, Eastern North Carolina Chapter August 9, 2011 at 7:30 pm (Information TBA) September 13, 2011 at 7:30 pm Managing Memory Decline in MS Darla Freeman-LeVay, MA, CCC-SLP University of South Florida, Florida Center for Vocal Health

A D V O C A T E S P O T L I GHT David’s Story… “You Really Can Make a Difference”


was diagnosed with multiple sclerosis in 2007, having had undiagnosable symptoms for nearly 25 years hence. Since that time, I began to notice that many of my MS symptoms worsened proportionate to the rise in temperature. Living in South Florida, we are exposed to summertime-like weather 8 months out of the year. Many of us drive automobiles to and from work, to and from meetings and, largely, as an integral part of our day-to-day lives. It became readily apparent that if we can make our automobiles cooler environments to travel in, then the worsening of our MS symptoms may be successfully abated. I learned there is a phenomenon termed “Uhtoff’s” which addresses many of the symptoms that worsen with heat such as: • Decreased cognitive function • Numbness in the extremities • Fatigue • Blurred vision • Tremor • Weakness I also learned the Florida Legislature had made an exception to the vehicle sunscreen tinting restriction for persons suffering from lupus or those whose medical conditions might 8


be worsened by exposure to excessive light. Fla. Stat. section 316.29545 laid out this statutory exception. After consulting with experts in the field, I reasoned that a similar exception should be extended to those with MS or other autoimmune diseases who also could benefit by having additional automotive sunscreen tinting (of a darker tint than currently allowed under Florida law). This seemed logical and translated to a great benefit for all Floridians seeking to improve their automotive driving experience by having less exposure to both light and heat. Together with the leadership of National MS Society, South Florida Chapter we joined efforts with the Florida House of Representatives and pushed to have medical exemptions for all autoimmune diseases. HB 971 moved successfully through the 2010 session and was signed into law July 1st. I can’t believe it! Our efforts really did make a difference! Advocacy really does work and I encourage you to step out of your comfort zone and become a personal advocate. Sign up for the Action Alert Network today at http://capwiz. com/nmss/mlm/signup/

presented by

Conversation and Support for People Living with Multiple Sclerosis in Spanish The National MS Society offers a monthly telephone group in Spanish for participants with MS. The monthly calls are free.

Tuesdays for 2010 – 2011: Nov 9 Dec 14 Jan 11 Feb 8 March 15 April 12 May 10 June 14 Time: 2:00 p.m. – 3:30 p.m. (Eastern Standard Time) Break- July and August Subsequent dates to be announced


Café con Leche


he 30th annual CBM of America, Inc. MS Golf Tournament raised $80,000 in support of local programs and services provided by the National Multiple Sclerosis Society, South Florida Chapter. The tournament kicked off with a Pairing Party and silent auction at Smoke On The Water Cigar Bar in Weston. Teams were paired with an athletic celebrity to join them on the green. The well-attended event at Boca Lago County Club fielded 154 golfers.

Participants were treated with food and beverages throughout the course from Firehouse Subs, Hooters, Outback Steakhouse, Flora Fine Foods, Celsius, Boar’s Head, Starbucks, Sláinte Irish Pub, A Twisted Pretzel Company, Smoke On The Water as well as cocktails courtesy of Grey Goose Vodka. The outing wrapped up with a buffet lunch, awards ceremony and an exciting silent auction and raffle. The first place trophy of the MS Golf Tournament was presented to Larry House, Joe Camus, Steve Hyde and M. Moulis. Second place winners included Mike Stephens, Larry Dezenzo, Stuart Brown, Paul Sgro and Darryl Fullerton. Third place went to Marco Carrasco, Dr. Carlos Ramirez-Calderon, Mario Avello and Dr. David Audrisani. The National MS Society gratefully acknowledges title sponsor, CBM of America, Inc. and tournament committee chair, Stuart Kosh.

Grab your coffee cup, sit back, and listen to the experiences of other people with MS. Take this opportunity to talk about your concerns and meet others who understand your situation. Topics will focus on areas of interest to people living with MS. Additionally, experts from different areas of specialization in MS will join us to speak about important topics in MS care. For more information or to register call 1-800-344-4867, option 3. The group is open to new members at any time. This program is made possible by generous grant from the Medtronic Foundation.


he MS Gala & Fashion Show presented by DBS Financial Group will celebrate 28 years of excellence on Thursday, January 20, 2011 at the Broward County Convention Center. The MS Hope Award, the Society’s highest award, will be presented to Phillis Oeters, Corporate Vice President of Government & Community Relations for Baptist Health South Florida.

pleasure in the entertainment. Models strutting down the runway will dazzle jewelry provided by J.R. Dunn Jewelers, the official jewelry sponsor. Deborah DelPrete, the MS Gala & Fashion Show Chair for the third year, invites you to be a part of this “Day to Remember.”

To learn more about sponsorship opportunities or to purchase tickOver 1,200 guests will enjoy ets, please visit www. the electrifying fashion or contact show by designer Rene Ruiz, bid on Monica Whiting at 954-731-4224 or the fantastic auction items and take TOLL FREE NUMBER 1 800 344 4867




he National Multiple Sclerosis Society provides a scholarship program to help qualified students who have been diagnosed with MS or who have a parent with MS pursue a college education. The 2010 recipients shared their personal stories describing the impact MS has had on their life. The South Florida Chapter awarded scholarships to the following seniors: Alexander Alvarez, Beatriz Benitez, Michael Cadigan, Barbara Garofalo, Brittany Towell and Thomas Wall. A graduate from American Senior High School, Alexander Alvarez, has been the primary caregiver for his mother since her diagnosis in 2004. He assumed the responsibility of driving her to and from doctor’s appointments. As a result, Alexander was motivated to learn how to handle his after school activities and academic career. He will be attending Broward College in the fall where he will study to become a police officer or teacher. A recent Miami Coral Park Senior High School graduate, Beatriz Benitez, has learned to value, respect and cherish life more. Beatriz’s mother was diagnosed with MS when Beatriz was 7 years old. During her first year of high school, she became her mother’s primary caregiver. She struggled with maintaining her grades, juggling a job as well as caring for her brother who has down syndrome. Through these challenges, Beatriz matured as well as improved


her grades. She is enrolled with MiamiDade College Honor Program where she will major in chemistry to pursue a path to become a neurosurgeon. Michael Cadigan wrote an admiring essay about his mother’s diagnosis with multiple sclerosis in 1981. Michael attended Archbishop Edward McCarty’s High School. He respects the strength his mother displays despite living with MS. His mother taught him that everyone has the capacity to succeed in life with the right attitude. Michael is attending the University of Florida where he will focus his studies on pre-med. Barbara Garofalo, a recent graduate from College Academy at BCC, received a scholarship with her essay on her experience with MS. Barbara quickly learned that her mother would need her more than ever when she was diagnosed with MS in April 2003. The demand for Barbara’s assistance limited her opportunities to get involved in extracurricular activities. However, she managed to pursue her interest in music by taking guitar lessons and acting lessons. Barbara’s passion for her studies opened the door of opportunity at the University of Miami where she will major in entrepreneurship and minor in film and motion picture. Brittany Towell graduated from Lely High School. When her mother was diagnosed in 2001, Brittany educated herself on MS by attending doc-

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Martin County High School graduate Thomas Wall shared his familiarity with multiple sclerosis in his essay. Thomas’ mother was diagnosed when she was 20 years old. Growing up in a single family household, Thomas learned to take the role as head of the house and took care of his mother. He is proud to say that everything he accomplishes is “to make my mom proud!” Thomas will be a first generation college student while attending Embry Riddle Aeronautical University. He plans to major in space physics. The National MS Society congratulates the class of 2010 and all of the scholarship recipients wishing them continued success in their academic achievements. Eligibility for 2011 Scholarship applications for 2011 awards will be available October 1, 2010. Applications may be submitted from October 1, 2010 through January 14, 2011 and scholarship winners receive notice in Spring 2011. For detailed guidelines and application information contact Jennifer Jones at 1-800-344-4867 (in South Florida), or 954-731-4224.

form long lasting friendships, and foster independence in a supportive atmosphere away from their everyday responsibilities.

Kids’ Camp n a daily basis, children have to cope with the reality of their active, involved parent or grandparent no longer taking such an active role in their lives. Roles reverse, with children assuming care giving responsibilities and withdrawing from their normal daily routine of studying, playing, socializing, and coping.

tor appointments and reading books focused on MS. In Brittany’s essay, she describes the experience of living with a parent with MS much like a roller coaster. Even though Brittany and her mother have always been close, she values her mother even more and is motivated to strive for success. Brittany will be attending Lord Fairfax Community College where she will pursue her dream to become a forensic scientist by majoring in police science and forensics.

At the National MS Society’s Kids’ Camp, kids ages 7-12 have the opportunity to share and explore ways to cope with daily pressures of living with a parent or grandparent with MS. They will emerge as leaders,

Weekend activities include: • swimming • sports • arts & crafts • hayride • campfires • nature trails and much more! Please stay tuned for more information regarding Kids’ Camp in Summer 2011!

The Women’s Retreat takes place annually each summer. Stay tuned for the 2011 date! 2010 Women’s Retreat Sponsors Funded in part by a grant from Genzyme

Exhibitors: Biogen Idec Catholic Health Services Medtronic Neuromodulation Teva Neuroscience


Activities included: Physical Health, Laughter, Aquatics, Nutrition & Exercise Vibrational Tuning, Fatigue Management, Tai Chi, Ayurveda Yoga, Pampering & Activities, Emotional Health & Education, Massages, Karaoke, Scrap booking, “Girls Night In” Movie Night, Table Top Gardening

Supporters: Kay and James Rosenberg


he Women’s Retreat is about education, creating long lasting friendships, health and healing. Pampering and nightly entertainment provide an opportunity for socialization and personal attention.

You asked for it and its coming!

This year’s “Feel the Spirit” took place on July 16-18, 2010 at the Hilton Miami Airport. The theme for the retreat focused on alternative and complementary therapies for managing life with MS, including Table Top Gardening sponsored by Home Depot.

Stay tuned for more details on the 2011 Men’s Retreat!

Financial Assistance Fund


any people with multiple sclerosis live on limited resources and an exacerbation or progression of the disease can make it difficult to maintain employment or make ends meet. A temporary misfortune may be averted through financial assistance with outstanding rent, utility bill, groceries, drug co-pay, durable medical equipment, or the cost of an examination by a neurologist.

Please help someone in need overcome a crisis this Holiday Season. A gift of $500 or more will enable an individual with MS and their family move their lives forward. Make a special year end gift to the National MS Society today.

Financial Assistance in Broward County is funded in part by

My Contribution to Making a Difference! Make your 2010 Year-End gift today and help 6,000 South Floridians living with multiple sclerosis. Yes! I want to help people living with MS with my YearEnd Gift! o $50 o $100 o $250 o $500 o $1,000 o Other: $ ___________________________________

I would like to direct my gift to: (optional): oC  risis Financial Assistance (assisting those with MS in crisis) oC  hapter Programs and Services (assisting those with MS and their families) o MS Research o Other _________________________________

Please make you check payable to the National MS Society and mail with this form to: National MS Society, 3201 W Commercial Boulevard, Suite 127, Fort Lauderdale, FL 33309 or call 1 800 FIGHT MS (in South Florida) or 954-731-4224 or log on to and click “Donate.”

Thank you for making a difference in someone’s life today. TOLL FREE NUMBER 1 800 344 4867


Support Groups Individuals with MS, family and friends are invited to attend these groups.

BROWARD COUNTY NMSS North Broward Afternoon Group 1st Tuesday of month, 2:00 pm North Broward Medical Center 201 E Sample Road Deerfield Beach, FL 33064 Jarod Jacobs 561-503-3134 Erica Coloe 561-414-7755 November 2nd, December 7th NMSS Coral Springs Afternoon Group For individuals with MS only 3rd Tuesday of month, 1:00 pm Lunch & Socializing, 1:30 pm meeting Coral Springs Medical Center Community Education Center 3100 Coral Hills Drive Coral Springs, FL 33065 Conference rooms A or B Cindee Horowitz 954-345-2332 Michael Myette 954-255-0679 Social luncheon held 1st Monday of month (Individuals with MS and Caregivers) Contact Michael Myette for details October 19th, November 16th, December 21st NMSS Sunrise Educational Meeting For Individuals with MS & Caregivers Every other month on the 3rd Tuesday of month, 6:00 pm RSVP to Yliana or Melissa at the South Broward MS Clinic 954-437-4000 Sunrise Medical Group 12596 Pines Blvd Pembroke Pines, FL 33027 November 16th NMSS Downtown Group For Individuals with MS Downtown Fort Lauderdale Coming Soon - Visit for more details

COLLIER COUNTY NMSS Naples Group 1st Monday of Month, 3:30 pm Briggs Wellness Center-Briggs Conference Room, 2nd floor 399 Ninth Street North Naples, FL 34102 Jennifer Jones, 239-793-7009 November 1st, December 6th

LEE COUNTY NMSS Cape Coral Day Group 1st Sunday of month, 3:00 pm Wellness Center Cape Coral-2nd Floor 609 SE 13th Court Cape Coral, FL 33990 Kevin Berry 239-542-2549 Linda Richardson 716-425-6161 November 7th, December 5th NMSS Ft. Myers Evening Group 3rd Thursday of month, 5:00 pm St. Hilary Episcopal Church 5011 McGregor Blvd Fort Myers, FL 33901 Dave Lane 239-652-3602 Karen Hart 239-433-4380 Social luncheon held 1st Thursday of month Contact Karen Hart for details October 21st, November 18th, December 16th

MIAMI-DADE COUNTY NMSS Miami-Dade Spiritual Support Group Persons of all faiths welcome 2nd Thursday of month, 6:00 pm Doctors Hospital, 5000 University Dr. Coral Gables, FL 33146 Go to the Chapel on the 2nd Floor near Elevator A Chaplain Roy Gaton 786-308-3800 November 11th, December 9th NMSS South Miami-Dade Evening Group 2nd Thursday of month, 7:00 pm Doctors’ Hospital - Cafeteria 5000 University Drive Coral Gables, FL 33146 Carmen Benitez 305-431-8697 Carmen Chediak 305-753-2432 November 11th, December 9th NMSS Miami Beach Group 1st Tuesday of month, 7:00 pm Mt. Sinai Medical Center Founders Conference Center 1st Floor, Warner Bldg 4300 Alton Road Miami Beach, FL 33140 Gladys Fernandez 305-534-8848 Ellie Klein Cardonne 305-322-2299 November 2nd, December 7th

NMSS University of Miami Educational Support Group *Tuesdays, visit for date and time each month* University of Miami Medical Wellness Center 1120 NW 14th St, 9th Floor Miami, FL 33136 Susan Fox Rosellini 305-243-1699

PALM BEACH COUNTY NMSS Boca Delray Day Group 3rd Thursday of month, 2:00 pm Patch Reef Park Community Center 2000 NW Yamato Road Boca Raton, FL 33431 Kay Rosenberg 561-364-2252 Jarod Jacobs 561-503-3134 October 21st, November 18th, December 16th NMSS West Boca Evening Group 1st Wednesday of month, 6:45 pm West Boca Medical Center 21664 State Road 7 Boca Raton, FL 33428 Doctors’ Dining Room Claudia Erdman 561-483-4257 November 3rd, December 1st NMSS North Palm Beach Group Now open to those with MS and friends 2nd Monday of month, 6:30 pm Borland Center 3885 PGA Blvd. Palm Beach Gardens, FL 33418 Nancy Decker 561-622-4606 November 8th, December 13th Palm West Multiple Sclerosis and Care Partners Support Group Howard Chiet 561-795-5233 Dinner outing on 3rd Thursday of Month at 6:30 pm Contact Howard Chiet for details October 21st, November 18th, December 16th NMSS Central Palm Beach Group 2nd Tuesday of month, 7:00 pm JFK Hospital 5301 S. Congress Avenue Lake Worth, FL 33462 3 Tower Conference Room Mara Stegmaier 561-632-2403 or 561-792-2400 Joy Mercado 561-234-0938 November 9th, December 14th

NMSS West Boca Day Group 2nd Wednesday of month, 2:00 pm West Boca Medical Center-Education Center 21664 State Rd. 7 Boca Raton, FL 33428 Jarod Jacobs 561-503-3134 November 10th, December 8th

MS TELEPHONE SUPPORT GROUPS NMSS Newly Diagnosed Telephone Support Group Last Wednesday of month (EVERY OTHER MONTH) 7:00 pm Susan Dorne, OT, (please write “Support Group” in subject line) Teleconference number 1-800-910-3597, Passcode 24906202 For more details, please contact Jennifer Jones at 1 800 FIGHT MS October 27th

“CAFÉ CON LECHE” Conversation and Support for people with Multiple Sclerosis National Multiple Sclerosis Society offers once a month a telephone support group in Spanish 2nd Tuesday of the Month, 2:00-3:00 pm For more information or to subscribe call 1-800-344-4867, option 3 November 9th, December 14th

Wellness Programs BROWARD


Tai Chi & Chair Fitness Coral Springs Medical Center 3000 Coral Hills Drive Coral Springs, FL 33065 Kathy Byrne (954) 344-3344 Tai Chi: Sat. 9:30 am

NCH WELLNESS PROGRAM Briggs Memorial Center The Briggs Wellness Center 399 Ninth Street North Naples, FL 34102 Aquatics: Tues. 2:30 pm Yoga & Balance: Mon. 2:15 pm

Exercise as Part of Everyday Life Tamarac Community Center 8601 W Commercial Boulevard Tamarac, FL 33321 Rose (954) 597-3643 Tai Chi: Mon. 1:00 pm Chair Yoga: Tues. 11:30 am Meditation: Mon. 12:30 pm Chair Fitness Coral Springs Medical Center 3000 Coral Hills Drive Coral Springs, FL 33065 Kathy Byrne: (954) 344-3344 Mon. & Wed.10:30 am Yoga Rosa 110 N. Federal Hwy. #304 Hallandale Beach, FL 33009 Rosa Santana (954) 456-6077 Special Needs: Tues. & Thur. 12:00 pm - 1:00 pm Basic Yoga: Mon. & Wed. 8:30 am, 12:00 pm, 5:30 pm MS Restorative Yoga Weston Yoga 2600 Glades Circle, Suite 400 Weston, FL 33327 Fabienne Grossman (954) 349-6868 Tues. & Thurs. 12:00 - 1:00 pm Wed. 8:00 - 9:00 pm RSVP Required 24 hours in advance of the class

LEE COUNTY Cape Coral Wellness Facility The Wellness Center of Cape Coral 609 SE 13th Court Cape Coral, FL 33990 (239) 549-3637 Aquasize: Tues. & Thurs. 11:00 am Gentle Yoga: Mon. 12:00 pm Fort Myers Wellness Facility Lee Center for Rehab and Wellness 2070 Carrell Road Fort Myers, FL 33901 (239) 549-3637 Gentle Yoga: Tues. & Thurs. 11:30 am - 12:30 pm

MIAMI-DADE Exercise for Everyone Goulds Park 11350 SW 216 Street Miami, FL (305) 234-4948 Aquatic Exercise: Tues. & Thurs. 11:00 am - 12:00 pm Tai Chi with Tony 4601 Ponce de Leon Blvd. Ste. 100 Coral Gables, FL 33146 Thurs. 7:00 - 8:00 pm 9090 SW 87th Ct. Ste 201 Miami, FL 33176 Tues. from 7:00 - 8:00 pm

PALM BEACH Tai Chi in Palm Beach Mae Volen Senior Center 1515 W Palmetto Park Rd. Boca Raton, FL 33486 John Bellatoni (561) 395-8920 Fri. 12:00 pm - 1:00 pm Yoga & Feldenkrais Mae Volen Senior Center 1515 W Palmetto Park Rd. Boca Raton, FL 33486 Kary Cavanaugh (561) 504-8424 Fri. 1:00 - 2:00 pm Yoga for MS Delray Center for Wellness 120 SE 4th Ave Delray Beach, FL 33483 Chaya ~ Sharon Heller (561) 330-2929 Chair Yoga: Fri. 11:00 am Gentle Yoga: Mon. 10:00 - 11:00 am, Tues. 6:00 - 7:00 pm, Thur. 11:00 am - 12:00 pm Aquatics in Broward and Dade Coming Soon. Please See Website for Additional Information.



he National MS Society has an exciting menu of MS Learn Online webcasts currently available on its website www. Each webcast features experts presenting on topics relevant to those affected by multiple sclerosis. MS Learn Online webcasts are typically 10 minutes in length, and have been a successful way to learn about multiple sclerosis from the convenience of your computer. Program topics cover: the basics facts of MS, symptom management, progressive MS, research, healthy living and family life, life planning and independence. In addition to the existing menu of programs, a new webcast debuts the first and third Thursday of each month throughout the year.


Holiday Cards

hare the spirit of giving during this Holiday Season. Join the movement towards creating a world free of multiple sclerosis by purchasing National MS Society holiday greeting cards. Now you and your employer can share your commitment to finding a cure through special cards featuring artwork by artists with MS. Order your cards online at 20% of your purchase benefits the South Florida Chapter.


he Knowledge Is Power program is a free, at-home educational series for people newly diagnosed with MS and their families. Knowledge Is Power provides information about dealing with one of the greatest challenges presented by MS – the unpredictability and uncertainty of the future. The program provides up-to-date facts about many aspects of MS. You can have Knowledge is Power delivered to your email address or your postal address. To register, call 1-800-344-4867. Knowledge Is Power is available in Spanish upon request.

National Multiple Sclerosis Society South Florida Chapter 3201 West Commercial Blvd. Suite 127 Ft. Lauderdale, FL 33309

Upcoming Events: November 7, 2010 MS Health Expo & Annual Meeting Signature Grand, Davie, FL November 17, 2010 Shop to Stop MS - Saks Fifth Avenue Dadeland 6:00 – 9:00 pm January 20, 2011 MS Gala & Fashion Show January 30, 2011 Run to Stop MS - ING Miami Marathon and Half Marathon February 26, 2011 MS Walk/5K Run Lee County - Florida Gulf Coast University MS Walk Naples Lowdermilk Park March 6, 2011 MS Walk Fort Lauderdale - Hugh Taylor Birch State Park March 13, 2011 MS Walk Boca Raton South County Regional Park

March 14-20, 2011 MS Awareness Week March 20, 2011 MS Walk Aventura Founders Park MS Walk The Palm Beaches - CityPlace April 2, 2011 MS Walk/5K Run Coral Gables - The Park at City Hall April 3, 2011 MS Walk/5K Run Weston - Markham Park April 30, 2011 Zimmerman MS Bike Ride Presented by Mack Cycle and Fitness Expo TBD May 14-15, 2011 Zimmerman MS Bike Ride Presented by Mack Cycle and Fitness Homestead-Miami Speedway to John Pennekamp State Park

2010 Fall MS Connection  

News and updates for Fall 2010

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