Challenge Walk MS Door County Setting Inspires
Wisconsin Board of Trustees Alyson Zierdt, Chair Attorney, Retired Martin McLaughlin, Past Chair Reinhart Boerner Van Deuren, S.C. Michael Lutze, Vice Chair Ernst & Young Kenneth Minor, Vice Chair Sonic Foundry, Inc. Robert Sowinski, Secretary Diversified Insurance Services, Inc. David Rodgers, Treasurer Briggs & Stratton Corporation Colleen Kalt, President & CEO National MS Society Wisconsin Chapter Carrie Raymond Bedore Carrie Raymond Bedore, LLC Robert Buhler Open Pantry Food Marts of Wisconsin, Inc Albert C. Elser II Community Advocate Robert Engel Retired, M&I Bank
Tom Golden M3 Insurance Solutions for Business Karen Minor Community Advocate Bruce Olson The Marcus Corporation Shelley Peterman Schwarz Meeting Life’s Challenges David Raysich Plunkett Raysich Architects Patricia Raysich Community Advocate James Rose Baker Tilly Virchow Krause LLP Jeffrey Steren Steren Management/McDonald’s Robyn Turtenwald Community Advocate Molly Walsh Office of Governor Jim Doyle
If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National MS Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National MS Society recommends that all questions and information be discussed with a personal physician. The National MS Society is committed to seeing a world free of MS.
©2010 National Multiple Sclerosis Society - Wisconsin Chapter
JOIN THE MOVEMENT: wisMS.org
The Woman at the End of the Driveway Amazing awaits. I’m sure of it; because I see “amazing” happen every day. • At this year’s MS Luncheons we celebrated the completion of the Chapter’s first Research Challenge Match, which exceeded its $450,000 goal. Amazing! • The 2010 slate Colleen Kalt, left, with scholarship of MS College recipient Kendra Wauters. Scholarship recipients includes 22 students, one of whom has started his own nonprofit to benefit MS. Amazing! We recently asked Bike MS participants why they ride and made an amazing connection. Tricia Perkins, a four-year veteran of the MG&E Team, told us why she rides: “During a long stretch of riding alone and wondering why I ride, I looked up and saw a sign along the roadside that read ‘Thanks for riding. I have MS.’ I looked down the long driveway and a woman was waving to me. This is why I ride.” Now for the amazing part: we received an e-mail that read: “In the Spring issue of MS Connection, there was a letter from Tricia of the MG&E Team, about seeing a sign at the end of a long driveway that read: I have MS – Thanks for Riding! Tricia’s quote and the other heartfelt messages from the riders made me write to you. On behalf of myself and everyone touched by MS, I want to express my sincere thanks and gratitude for all you do every year. I might never meet you or ride with you, but my heart is there for you every mile. Ride on!” The message was signed simply, “The Woman at the End of the Driveway.” Amazing. Sincerely,
Colleen G. Kalt President & CEO Cover: Sisters Anne Rogalski, left, and Nicole Youngstrom, center, participated in Challenge Walk MS 2009 with Fran McLaughlin.
MS CONNECTION: Summer 2010
Third Annual Walk Returns September 24
Experience Challenge Walk MS in Beautiful Door County Consider the location: Door County. It’s widely recognized as one of the most beautiful places on the planet. Consider the cause: Multiple sclerosis. Wisconsin has one of the highest incidence rates of MS in the U.S. with more than 10,000 diagnosed. Now, consider signing up to participate in the Third Annual Challenge Walk MS. The 2010 event takes place September 24-26. Challenge Walk MS is a fully supported, three-day, 50-mile walk through some of Door County’s most pristine scenery. And “fully supported” means just that: while you enjoy walking with family and friends, other details of this memory-making weekend are handled for you. For instance:
you back to the resort. If desired, you can also book a massage for a small fee. Most veterans will tell you: Challenge Walk MS is life-changing. In their Challenge Walk MS blog, Mike and Jenny Eagan recently posted, “There is clearly a social aspect to the Challenge Walk which frankly caught us completely by surprise during our first year. The walkers and volunteers seem to morph into a community over two-and-a-half days, dedicated to a common goal and connected by a common struggle.” Whatever your motivation for participating in Challenge Walk MS, there are four ways to engage: Walk. You’ll join a group of 100 or more walkers and make your way on foot through the back roads of Door County, just as the fall leaves are beginning to turn.
Overnight Accommodations. Super Crew. While you’ll still Challenge Walk MS fundraise (securing $1,500 participants enjoy in donations plus the $125 complimentary overnight registration fee), instead accommodations on of walking 50 miles, you’ll Friday and Saturday at provide important assistance in Daughter Jill, dad Marty and mom Nancy Hassenfelt Rowley’s Bay Resort. other areas – perhaps helping are Challenge Walk MS veterans. Their team is named with registration or greeting Situated on 100 secluded for Marty and his cane, which he calls Clyde. walkers at rest stops. acres with 700 feet of Lake Michigan shoreline, Rowley’s Bay Resort is the Crew Volunteer. No registration fee or minimum largest waterfront resort in Door County. (It’s also home pledge is required for those who wish to provide to an awesome Swedish bakery.) valuable volunteer services. Meals. Beginning with a Thursday evening reception Pledge. Even if you can’t participate in Challenge and ending with a Sunday afternoon luncheon – all of Walk MS, you can still pledge your support and help your Challenge Walk MS meals are included. That’s the Chapter reach its $225,000 goal. three breakfasts, three lunches and two celebration dinners (plus a dynamic guest speaker on Friday). Register today at wisMS.org or call 800-242-3358. If you have questions about Challenge Walk MS, Route Assistance. You won’t walk far – three miles to contact Dawn Thaves at 262-369-4403 or e-mail be exact – before you’ll find an abundantly-stocked rest dawn.thaves@wisMS.org. stop. A professional medical team patrols the route at all times, and if ever you want to call it a day – you’ll be welcomed aboard a support vehicle to transport TOLL FREE NUMBER 1 800 242 3358
First to Ask Question: What is Underneath Myelin?
Chiu’s Early MS Research Considered Classic Landmark Study By Amanda Gasper
Shing-yan (Bill) Chiu’s work is a good example of basic scientific research providing a client benefit. In Chiu’s case, the basic research he conducted 30 years ago ultimately played a role in the development of Ampyra™ – the new drug approved by the FDA in January for its ability to improve walking in people with any type of multiple sclerosis. Indeed, Ampyra™ is the first therapy to treat a symptom of MS. Chiu is a professor with the department of physiology at the University of Wisconsin School of Medicine and Public Health. A resident of Wisconsin since 1985, Chiu received his Ph.D. at the University of Washington where he studied myelinated axons (also called nerve fibers). He got his start in MS research when he conducted his post-doctoral work at Yale University; where his mentor, J. Murdoch Ritchie, was funded by the National MS Society to study myelinated axons in MS. The National MS Society continues to support Chiu.
30 years later, Ampyra™ has been developed based on that research. Chiu added, “We were among the first to ask the critical MS question: if the myelin comes off the axon, what is underneath?” Chiu shared that he and Ritchie utilized a sophisticated technique to “unroll” the myelin off the axon. “It is like grabbing one corner of a carpet and quickly yanking it aside to see what lies underneath,” said Chiu. “We took Currently Bill Chiu is studying mitochondria, or what he a peek at what’s describes as “mobile batteries.” underneath and Chiu’s Classic Landmark Study found a goldmine.” In 1980, two papers (one from England by Tom Chiu added, “A whole new era of basic research was born Sears and his colleagues, and the other from the United because of this peek. When we unrolled the myelin, we States by Chiu and Ritchie), appeared that directly exposed potassium channels.” influenced the development of Ampyra™. Chiu describes According to Chiu, ion channels (including potassium channels) are important because they Dendrite allow the body’s electric current to move along axons Axon terminal and signal the nervous system. However, when myelin is “unwrapped,” as is the case in MS, the Node of exposed potassium channels stop the nerve impulses Ranvier Soma so they are not propagated along the axons. “Now people can study these channels with unprecedented precision and they can use a marker Axon to label them and see that they are underneath the myelin,” Chiu said. “You can identify the genetic Schwann cell aspect of these channels and you can design drugs to Myelin sheath block them in MS patients.” Nucleus He explained, “The idea is that plugging these Chiu and his research partner “unrolled” myelin off the axon potassium channels would be like plugging leaking and exposed potassium channels. holes in a garden hose, so that nerve signals, like water, can travel long distances without leaking.” his work with Ritchie as a “classic landmark study,” And that is just what researchers have done. because it launched a new era of basic research on how Chiu said: “For the past 30 years since that ion channels are distributed on myelinated axons. Now, original discovery, the Society has continued to support
JOIN THE MOVEMENT: wisMS.org
Wisconsin Resident Benefits From Drug Based on Chiu’s MS Research By Amanda Gasper
research on potassium channels in myelinated axons, both in my laboratory and others, with one important clinical goal: can we improve nerve transmission in MS patients with drugs that plug up these potassium channels? A major advance came in January of 2010, when the FDA finally approved the drug Ampyra™ that does just that: plugging up potassium channels so MS patients with all kinds of symptoms can benefit.” Ampyra™, available this past March, is a symptomatic medicine to improve walking. “It’s not a cure, but it gives you transient relief. It represents a big step forward for all kinds of MS patients, with all kinds of disabilities,” Chiu said. “This is a shining example of basic research supported by the Society that bears fruit 30 years later.” New Focus on Mitochondria Chiu hopes the research he is currently conducting will also one day benefit MS patients. The National MS Society is supporting Chiu’s work with a $568,425 grant. He said, “I’ve moved on to something that I hope is equally interesting: mitochondria.” He described mitochondria as “mobile batteries.” They travel along axons to supply energy to the nodes of Ranvier, or tiny gaps between the myelin. At nodes of Ranvier, the axonal membrane is un-insulated and therefore capable of generating electrical activity for nerve signals. “The node is important because it generates electricity,” he said. “You need to supply energy to the node to make it happy. And mitochondria are thought to pass through the node and unload energy to the node and move on. If there is a failure to supply energy, nerves cannot generate signals.” According to Chiu, in the past five years or so, MS researchers have found that abnormalities in the mitochondria correlate with axons dying. Chiu said, “If we can find a drug or some manipulations, to make mitochondria become normal again in MS, the questions is: Will that prevent axons from dying?” To study this correlation, Chiu watches the movement of mitochondria along axons with real-time imaging, like a movie. - Continued
Difficulty with walking is a challenge for many individuals diagnosed with multiple sclerosis. Weakness, spasticity, loss of balance, numbness and fatigue can all hinder everyday life. But Ampyra, a new prescription medication available since March 2010, may help improve walking for those living with MS. Ampyra is an FDA approved drug to improve walking for people with all types of MS. Ampyra works by improving nerve transmission along Francie White, left, says her nerve axons (also husband Brian has gained called fibers). mobility with Ampyra. It does this by plugging up potassium channels, which are exposed when the myelin is damaged. Wisconsin researcher and National Multiple Sclerosis Society grant recipient Shing-yan “Bill” Chiu and his mentor, J. Murdoch Ritchie, discovered the potassium channels 30 years ago while conducting MS research at Yale University. Brian White thought he might benefit from taking Ampyra. White, a 45-year-old from the Antigo area, was diagnosed with relapsing-remitting MS in 1999. Since then, his strength, balance and walking longevity have declined. “I couldn’t walk more than 100 feet without getting really tired,” he said. “And I wasn’t that quick.” His troubles walking were impacted by his inability to see cracks and unevenness in pavement. Because of his MS, White developed chronic optic neuritis and is legally blind. So White, who learned about Ampyra through an e-mail from the National MS Society and discussed it with his doctor (Dr. Loren Rolak, a member of the Wisconsin Chapter’s Clinical Advisory Committee), started taking the medication at the end of May. “I wanted to gain a bit more mobility and make it a little easier to go up and down stairs. I wanted to feel a - Continued
TOLL FREE NUMBER 1 800 242 3358
A single axon is very small. “You can’t even see it with the naked eye,” Chiu explained. “We inject a tiny droplet of marker, called “mito-tracker,” into the nerve. Then we use a sophisticated movie camera to look at how the mitochondria move through the nodes.” He likened it to a helicopter keeping track of cars on the freeway. At night, the only way to see each car is by the headlights. The “mito-tracker” markers are like headlights sticking to the mitochondria. In the movies Chiu makes, he can see how the mitochondria move through the node because of the “mito-tracker” markers.
We took a peak at what’s underneath myelin, and found a goldmine. - Bill Chiu Through his movies, Chiu can study the movement of the mitochondria; whether they are stopping, getting into traffic jams or turning the wrong way. He said, “We hope that this method will reveal interesting things about mitochondria and how they behave in multiple sclerosis. We are in a documentary phase. The first thing to do is capture these movies and then go home and study them.” And hopefully this basic research will lead to clinical benefits, he said. “It has no implications to MS, yet. But there are interesting things down the road, which I think will have implications,” Chiu said, emphasizing the importance of basic research. “My previous research was done to ask a very basic question and it sustained thinking in the field for about 30 years – ultimately leading to translating basic research into clinical benefits. It shows the necessity and importance of basic research.” Concluded Chiu, “It has to be done.” Illustration reprinted by permission from Macmillan Publishers Ltd: Ion channels: A paddle in oil Anthony G. Lee Nature 444, 697-697 (29 November 2006) doi:10.1038/ nature05408 News and Views, copyright 2006
JOIN THE MOVEMENT: wisMS.org
little stronger doing that so it wasn’t quite so terrifying.” Within a week and a half, White started to notice a change in his walking, he said. “I feel it’s easier to go up stairs and a little easier to go down stairs,” White said. “I’m more inclined to go walking. I still generally take the cane, more for balance and to push me along.” His wife, Francie, has also noticed the change, especially while they are shopping. “I have all the benches mapped out at Wal-Mart,” he said. “Now, I don’t have to use them as often. It helps me move around. I have a little strength, so the cracks in the pavement I can’t see aren’t as bad.” Acorda Therapeutics, the maker of Ampyra, sponsored two phase III clinical trials. They found that people taking Ampyra had a more consistent improvement in walking speed compared to people who took a placebo. In the first phase III clinical trial, 35 percent of the people treated with Ampyra improved in walking speed, while eight percent of the placebo group improved. Patients who had the treatment also experienced increased leg strength, including some people who did not increase walking speed. White, who had balance issues before taking Ampyra, noticed some extreme balance issues after starting it, but said they got better over time. He also experienced headaches and some insomnia. In clinical trials, patients experienced back pain, headaches, dizziness, insomnia, fatigue, nausea, balance issues and urinary tract infection. A serious effect, seizures, was seen in some patients in the clinical trial. It took about a month after White received his prescription to get Ampyra. According to White, the insurance company needed preauthorization. With his wife’s insurance and subsidization from Acorda Therapeutics, the drug costs him $40 a month. Acorda Therapeutics has a team that provides support for access to the drug by working with insurance carriers. They also have patient assistance programs that limit copayments and offer financial assistance. For more information on Ampyra, call Acorda’s Ampyra phone line, 1-888-881-1918 or visit the website ampyra.com/home/.
Run Across U.S. Going Strong
Brookfield Runner Detouring to Wisconsin for Celebration More than half way into her run across the United States to raise money and awareness for multiple sclerosis, Brookfield’s Ashley Kumlien will take a brief detour home – by RV – to attend a special Milwaukee Brewers’ salute celebrating her accomplishments. Kumlien’s mother, Jill Kumlien, was MS Run the US Tailgate Party diagnosed with MS 27 Date: Tuesday, August 10 years ago. Inspired by her mother’s zest for life Time: 4:30 p.m. to 7 p.m. Tailgate Tickets: $20 in the face of adversity, Kumlien decided to run (game ticket is a separate purchase) For more information, visit msruntheus.com. 3,230 miles across the U.S. to raise money and awareness for MS. She started her trek in San Francisco, CA on March 22, 2010 and expects to finish in September when she reaches her final destination: New York City. While her official route does not bring her to Wisconsin, Kumlien expects to run through the Chicago area in Ashley Kumlien gave her mom and inspiration, Jill, a hug before setting off early August. on her 3,230-mile run across the U.S. The August 10 Milwaukee festivities honoring Kumlien will start with a traditional Miller Park tailgate beginning at 4:30 p.m. Tickets for the tailgate, which is open to the public, are just $20 and proceeds benefit Kumlien’s MS Run the US nonprofit organization. Kumlien and her mom are scheduled to throw out the first pitch at the 7:10 p.m. Milwaukee Brewers game against the Arizona Diamondbacks. Kumlien’s family will attend the game, along with talk show host, Montel Williams, whose MS foundation is a sponsor Salt Lake City, May 12 of MS Run the US. Crossing into Iowa, July 7 While making her Milwaukee, August 10 way through California, Nevada, Utah, Colorado, Nebraska and Iowa; Kumlien has attracted media coverage, donations and individuals who want to run a leg of her journey with her. You can keep up with Kumlien and Journey’s end: Ashley make donations New York City, started her run September 27-30 via her website in San Francisco Denver, msruntheus.com, on March 22 June 5 Chicago, August 5-12 and her Facebook and Twitter pages. TOLL FREE NUMBER 1 800 242 3358
NEW! Packet Pick-Up at WCTC on Friday, August 6
1,600 Hit the Road for 27th Annual Bike MS Nearly 450 “rookies” or first-year riders, will participate in the 27th Annual Bike MS: Toyota Best Dam Bike Ride. All together, nearly 1,600 cyclists are expected to join the ride August 7 and 8. Grand Tier Teams. The following teams have committed to securing $50,000 or more each in pledges: Charlie’s MS Angels, Chuck’s Athletic Supporters, Sonic Streamers, Team Wendy and Waukesha Y-Ders. Top Tier Teams. These teams will secure $20,000 to $49,999 each in pledges: Biogen Idec, Chain Smokers, ERacers, FMA Psycolists, HillYeah!, Kari’s Cadets, KNUTZ KREW, MG&E Power Peddlers, Park and Riders, Patti’s Pedalers, Peppy Pedalers, Positive Pedalers, Rolling Rocks, Team Bibs, Team CCC (NEW!), Team Legstrong, SPROCKET ROCKETS and UW Health Red’s Riders.
Packet Pick Up. You can pick up your registration packet in advance of the ride at the Wisconsin Chapter office and – new this year – at Waukesha County Technical College (WCTC). The WCTC location will be open 2 p.m. to 6 p.m. on Friday, August 6. WCTC Construction. Due to construction at WCTC, riders are encouraged to carpool, if driving. While the Bike MS location on campus will be different from prior years, there will be plenty of volunteers and signage to help you get where you need to go. Registration. If you haven’t yet signed up to participate in Bike MS: Toyota Best Dam Bike Ride – scoot on over to bikeMSwisconsin.org and complete your registration online or call 800-242-3358. Registrations are accepted on the day of the ride.
It’s a euphoric feeling to head downhill toward the Bike MS: Toyota Best Dam Bike Ride finish line in Madison.
JOIN THE MOVEMENT: wisMS.org
Aaron Field Receives National MS Society Grant
Cutting Edge MRI Technology to be Utilized in New Research By Amanda Gasper
Dr. Aaron Field is an associate professor in the magnetic resonance venography, or MRV, a type of Department of Radiology at the Wisconsin School of MRI that images veins specifically. “With MRV, it’s easy Medicine and Public Health. His research has to do a blind study,” he said. The involved MS since 2002, when he met Dr. person who takes the image will not Ian Duncan, another Wisconsin researcher interpret the results, he said. supported by the National MS Society. His “At UW-Madison, we are well previous research, part of Dr. Duncan’s work equipped with cutting edge MRI on Promise: 2010, focused on quantitative technology,” Dr. Field said. “Our magnetic resonance imaging (MRI) for central techniques are really defined. It’s 3D nervous system disease and repair. imaging, but it also includes a 4th And now he is the seventh Wisconsin dimension: time. This includes veins researcher to currently have a grant from that can’t be seen in ultrasound.” the National MS Society. Dr. Aaron Field Dr. Field’s study also includes received a $593,261 grant to research Chronic Dr. Field received a ultrasounds to see if the results $593,261 Society grant. Cerebrospinal Venous Insufficiency (CCSVI) from Dr. Zamboni’s study can be and its possible connection to MS. repeated. “We’re giving ourselves the “I was intrigued by Dr. Zamboni’s results,” Dr. Field best chance to duplicate Dr. Zamboni’s results,” Dr. said. “My first thought was that this would be wonderful Field explained. for people with MS.” Dr. Paulo Zamboni, from the The study will include 112 MS patients, 56 people University of Ferrara in Italy, reported that CCSVI, an with other neurological diseases and 56 people without abnormality in blood drainage from the brain and spinal these diseases, over a two year period. Dr. Field has cord, may contribute to nervous system damage in MS. included people with other neurological diseases to He reported that there were changes in blood flow, in determine if CCSVI is related to MS specifically or other diseases, such as autoimmune diseases, in general, he said. both direction and velocity. The results of Dr. Zamboni’s “First, we see if there is a higher incidence of CCSVI pilot study were published in April 2009. in MS patients,” Dr. Field explained. “Then, to go We’re giving ourselves the best chance further, suppose there is an association. Is CCSVI the cause or effect? If it’s the cause, we should see to duplicate Dr. Zamboni’s results. CCSVI about the same in both newly diagnosed - Dr. Aaron Field patients and in chronic patients. If we want to treat this, we need to know that CCSVI is the cause of MS.” Dr. Zamboni used venography and ultrasound in his Working with Dr. Field on the CCSVI project is original study. Both techniques have limits, according Dr. John Fleming, also a Society-funded researcher and to Dr. Field. Venography is an invasive procedure in a member of the Wisconsin Chapter’s Clinical Advisory which dye is injected into the veins for an x-ray. And Committee. ultrasounds can produce biased information, he said. “It’s difficult to obtain objective data, because it is not blinded,” Dr. Field explained. In a blind study, Interested in Participating in Field’s information is concealed from the people involved, such CCSVI MS Research Project? as the technician doing the imaging and the researcher Individuals interested in participating in Dr. Aaron who interprets the results, in order to avoid bias. During Field’s CCSVI research project should contact Amanda an ultrasound, the person who performs the ultrasound Kolterman, RN, MS (Study Coordinator) at is also the person interpreting data, so it is not blinded. 608-263-0305 or e-mail AKolterman@uwhealth.org. To avoid possible bias, Dr. Field decided to use TOLL FREE NUMBER 1 800 242 3358
All Aboard for Family Fun
MS Day at the Zoo Features New Children’s Book Drive The 15th Annual MS Day at the Zoo NT MOVEME E H T IN JO will feature a new component: a book drive organized by the Waukesha Moms MS Circle of Hope group. Families attending the Saturday, September 18, event at the Milwaukee County Zoo are encouraged to bring new or gently-used children’s books, activity books or coloring books to donate. All donated books, in turn, will be distributed to children of neurology patients at Waukesha Memorial Hospital. The “Moms” have been supplying Waukesha Memorial Hospital with “comfort gifts” – stuffed animals, coloring books, hand-knitted prayer shawls and books – for nearly a year. MS Day at the Zoo book donations are expected to provide a quick and easy way to replenish much-needed supplies. What’s more, each family or group making a donation will receive a free raffle ticket good for a prize ®
drawing to be conducted during MS Day at the Zoo. Among the prizes is an autographed Milwaukee Wave soccer ball. Of course MS Day at the Zoo already is one of the most popular Wisconsin Chapter programs of the year – and for good reason. Adults pay just $11 for Milwaukee County Zoo admission and lunch; while children (ages 2 to 12-years-old) receive zoo admission, lunch and a T-shirt for only $7. While families can spend the entire day at the zoo, activities programmed by the Wisconsin Chapter run from 9 a.m. to 1 p.m. and are located at the Zoo Pavilion. Advance reservations are required and can be made at wisMS.org or by calling 800-242-3358. See you at the zoo!
Help Send Families to the Zoo Especially in the current economic climate, MS Day at the Zoo may be financially out of reach for some Wisconsin families. Your donation can change that. Consider making a contribution of $36 to send a family of four to MS Day at the Zoo. Call 800-242-3358 for details.
Chapter’s Annual Meeting Set for November 18
The Wisconsin Chapter’s Annual Meeting is scheduled for Thursday, November 18, 2010 from 6 p.m. to 7:30 p.m. at Briggs & Stratton, 12301 West Wirth Street in Wauwatosa. The Annual Meeting is held for the purpose of electing a Board of Trustees, reviewing the treasurer’s report and considering other appropriate business and reports that may be presented. Individuals may submit names to the Chapter’s Governance Committee for consideration for Board of Trustees membership by contacting Melissa Palfery before August 31, 2010 at 262-369-4419 or melissa.palfery@wisMS.org.
Ken and Sharon Bare attended last year’s Annual Meeting.
The event is open to the public and reservations are required. For more details or to RSVP by November 11, please call 800-242-3358.
10 JOIN THE MOVEMENT: wisMS.org
Three Diagnosed with MS Receive Awards
Program Keeps College Dreams Alive for 22 Students The 2010 crop of MS College Scholarship recipients leadership, participation in school and community is unique. For the first time in the program’s sevenactivities, work experience and financial need. Members year history, the group of the Wisconsin Chapter’s includes three individuals Scholarship Committee (see diagnosed with multiple information box), select the sclerosis. Indeed, while winners, who are announced most people with MS in May. The final evaluation are diagnosed between includes a review of each the ages of 20 and 50, applicant’s personal statement the National Multiple describing the impact MS Sclerosis Society reports has had on their life. More that children now details about the MS College represent the fastestScholarship program can be growing MS population. found at wisMS.org. Despite a variety of challenges others might More Scholarship Funding find insurmountable, all Needed members of the resilient Most MS College Scholarships Class of 2010 project are one-year awards valued at Clockwise from right: scholarship recipient Evan Ferg admirable optimism. $1,000 to $3,000 each. The celebrates with his brother, Brendan, mom Cindy and Many of the scholars, Father Charles Brooks, for whom Evan’s award is named. Wisconsin Chapter funds the in fact, noted on their scholarships through donations applications that there are upsides to living with MS. from individuals and foundations. Including the 2010 “I consider it a blessing in disguise,” wrote one recipients, more than $225,000 has been awarded to 153 scholarship recipient. Following her father’s diagnosis students. And while MS should not stand in the way of she assumed caretaker duties, added housework to her a college education, in 2009 and 2010 the Wisconsin daily schedule and began a newspaper route at age 12 Chapter did have approved scholars it could not fund. to help pay bills and purchase food for the family. Her In an effort to ensure that all qualified scholars receive response to these hardships: “MS has made me a strong, funding – and with the support of an anonymous donor more responsible woman. I have also learned not to take – the Wisconsin Chapter will soon announce a matching things for granted and to work hard in everything I do, campaign to support the MS College Scholarship especially academically.” program. Additionally, interested donors are encouraged to consider funding an endowed scholarship (named for Selection Process the donor), with a minimum gift of $25,000. To qualify for a scholarship, high school seniors or For more information about the MS College graduates of any age must have MS or have a parent or Scholarship program, please contact Kim Kinner at guardian with the disease. Additionally, the applicants 262-369-4421 or e-mail kim.kinner@wisMS.org. must be attending an accredited postsecondary school for Wisconsin Chapter Scholarship Committee the first time. Applications are submitted in the fall and first Members of the Wisconsin Chapter’s Scholarship Committee select award winners from a pool of pre-qualified applicants. reviewed by ACT, a national nonprofit organization. Current committee members are: Dr. Patrick Mulrooney, There is no fee to apply. ACT selects finalists based on Wendy Rusch, Laura Sowinski, Molly Walsh and Susan Wilkey. a variety of criteria including academic performance, TOLL FREE NUMBER 1 800 242 3358
Mykalene Bordeau Bell Family MS Scholarship Sheboygan, WI UW - La Crosse
“Even though I don’t know what the future holds for me, I know that I will somehow be involved in helping others.”
Ryan De Jardin Green Bay, WI UW - Marinette
“From her (my mom), I have learned the importance of setting a goal and committing myself to successfully reaching that goal and never accepting anything less.”
Brittany Dunnum Cashton, WI Winona State University
“I have always looked up to my father because he is strong-willed, determined and he is the best man I have ever known in my life.”
Evan Ferg Father Charles Brooks MS Scholarship Rosholt, WI UW - Stevens Point
“I plan to take part in fundraising and the MS Snowmobile Tour until we find a cure, no matter how long it takes.”
Class of 2010 MS College Scholarship Recipients Lauren Feuling Saint Francis, WI UW - Whitewater
“For our family, MS can stand for many things other than multiple sclerosis: many smiles, much success, and more sunny days.”
Megan Gress Antigo, WI Luther College
“I will be majoring in biology and chemistry as I work towards my goal of becoming a doctor or surgeon.”
Barbara Haggerty Janesville, WI UW - La Crosse
“I learned not to take things for granted. I work hard in everything I do, especially academically.”
Teresa Hurtienne Manitowoc, WI Lakeland College
“I’m not the type of person who gives up. If I set a goal for myself, I will achieve it. School has always been something I’ve valued.”
Katherine Kluever Bell Family MS Scholarship Neosho, WI Mount Mary College
“If it wasn’t for my mom’s MS, I might not be as helpful or generous, or even as responsible as I am now.”
Pierson Kohrell Brillion, WI Ripon College
“MS has influenced my life by helping me choose a career path to follow. I am planning to pursue a doctorate in physical therapy.”
Cody Kurscheidt Chilton, WI UW - Parkside
“Multiple sclerosis has scared my family, but more importantly it has encouraged me to excel in numerous activities.”
Katie Piekarski Diversified Insurance Services MS Scholarship Wisconsin Dells, WI UW - Madison
Brittanni Tillman John W. & Dorothy Jane Nelson Endowed MS Scholarship Milwaukee, WI Milwaukee Area Technical College
“Even though it has been hard growing up with my dad having MS, I think that it has made me a stronger, more responsible person.”
“My post-secondary goals are to complete my general education classes and transfer to a four-year university to get a degree in nursing.”
Matthew Machi T. Ferguson Locke Endowed MS Scholarship West Allis, WI UW - Madison
Erin Schilder Grafton, WI Cardinal Stritch University
“…the perseverance and heart that my mother exhibits in her fight against MS has inspired me to always keep reaching for my goals.”
“I want to be able to look back at my life with no regrets, and I can only do that if I am willing to accept the challenge…”
Zachariah Mielke Bell Family MS Scholarship Weyauwega, WI Fox Valley Technical College
“I started a nonprofit organization called Walk With Strength. This has become more than a project; it has become a way of life.”
Valerie Peters Oostberg, WI UW - Sheboygan
“She (my mom) wanted the best for me, and I am hoping to show her I can succeed.”
Samantha Walsh DeForest, WI University of MN Twin Cities
“Ever since I was little, I have liked helping others. This led to my desire to be a pharmacist.”
Nicholas Smith Fitchburg, WI UW - Madison
Kendra Wauters De Pere, WI St. Norbert College
“I am interested in pursuing both scientific and cultural studies. I started to read the Daodejing, which I bought for a school project. To my great surprise, it taught me a lot …”
“…I’ve learned that, yes the MS is a part of him (my dad), but it is not him.”
Garrett Thorn Rhinelander, WI St. Norbert College
“I have learned responsibility, increased my attentiveness of situational needs, and taken notice of how fortunate my family is in other areas.”
Halee Zichitella Belgium, WI UW - Stevens Point
“My mother has been such a positive role model. I want to prove to myself and to her that dreams do come true.”
Wisconsin Chapter Scholarship Alumni Chasing Dreams 2004 Cody Endres Timothy Fredrickson Samantha Hughes Kate Klitgaard Eric Mueller 2005 Kurt Albers Rachel Broughton Amanda Fletcher Jacqueline Flohr Alexander Freeman Angeline Gross Sara Halberg Lindsay Koeppel Rebekka Noble Stephanie Riese 2006 Joseph Aronson Lauren Ballweske Dan Beauchaine Beth Christensen Eric Gendusa Andrew Hartinger Molly Herrick Fransisco Hurtado Sara Johnson Alexandra Joyce
Carlye Kussard Michael Morin Evan Nondorf Amy Piekarski Megan Powers Britney Scherwinski Catilin Shannon Jessica Walter Marvin Waters Mark Yanke 2007 Jay Allen Elizabeth Anderson Erin Anderson Martin Andrew Joseph Beecher Laura Buhr Ashlee Cerda Christa Cleary Jill De Cleene Shane Gould Ian Gress John Gruel Ruby Gross Tamara Hager James Haggerty Natalie Hartjes Joshua Hoskins Jordyn Kreitzer
Maja Nuemann Sierra Noth Kate Perardi David Peters Ashley Raanes Samantha Rule Alison Schroeder Allissa Schwarz Ian Sundstrom Brittany Taerud Kayla Witczak Sonja Zoric 2008 Cassandra Anderson Vani Barry Meghan Birt Emily Combs Gina Curci Madeleine Davies Jenna De Cleene Marissa English Ashley Erb Melanie Gager Anna Gibson Myles Gikling Danielle Govek Toni Schmidt Meaghan Hackett Debra Haggerty
Justin Haman Laura Hermanns Adam Heun Zachary Hoof Alyson Inzeo Jordan Johnson Laura Johnson Bradley Konkel Nichole Laufenberg Kyle Liesener Ryan McDowell Nicholas Moehn Amalia Santos Elizabeth Schilder Toni Schmidt Marga Schoch Ashley Schubert Nichole Seibert Olivia Sheldon Renee Sibbers Andrew Tinlin Leah Walker Melanie Walter Jordan White Cortney Wright 2009 Claire Anhault Christina Behrens
Katerina Borkhus-Veto Elizabeth Budelman Amber Dunnum Ross Fassbinder Elizabeth Fijakiewicz Stephanie Frisch Dillon Grose Zygmunt Gross Kristin Hagen Rebecca Hall Kimberly Hanson Elizabeth Huston Leah Jagodzinski Jennifer Jendusa Dayleen Johnson Lindsay Johnson Mathew Jones Trevor Jones Tara Mayer Erica Mohorko Kyle Muladore Margaret Oliver Austin Schwefel Andrew Scrima Ryan Van Den Berg Kirsten Wellna Joshua Wurtz Brooke Zimmer
Where Are They Now? Angeline Gross 2005: Graduated from Franciscan University (OH). Currently teaching in Fond du Lac. Beth Christensen 2006: Graduated summa cum laude with a degree in Business from St. Cloud State University (MN). Employed by the U.S. Treasury Department. Elizabeth Anderson 2007: Senior at UW-Eau Claire majoring in Kinesiology. Will attend graduate school to study Chiropractics. Ashley Raanes 2007: Attending MATC Madison for Nursing. Currently working as a Home Health Aide in Montello. Melanie Gager 2008: Attending UW-Eau Claire and pursuing a degree in Actuarial Science. Debra Haggerty 2008: Attending UW-La Crosse and pursuing a degree in Psychology. Plans a career in
14 JOIN THE MOVEMENT: wisMS.org
Occupational Therapy or Vocational Rehabilitation. Kristin Hagen 2009: Attending UW-Eau Claire, studying Psychology and Kinesiology. Has participated in Bike MS for eight years with her father. Leah Jagodzinski 2009: Attending UW-La Crosse and studying English/Education. Currently working for the La Crosse County Health Department. Participates in Walk MS every year. Weâ€™d Like to Hear From You. If you received an MS College Scholarship award from the Wisconsin Chapter, weâ€™d like to hear from you. Please e-mail amanda.gasper@wisMS.org or call 800-242-3358 and provide an update on your activities.
Country Signer Diagnosed in 1996
Band Against MS Foundation Has Raised $2 Million He’s more than a hot country singer with a Top Five single, four platinum and two gold records. Clay Walker is a fundraiser and advocate for individuals with multiple sclerosis. And that includes himself. Diagnosed with relapsing-remitting MS in 1996, at first the Texas native says he was devastated. But just two years later and Country singer Clay Walker created the BAMS determined to help find a cure, Walker launched his foundation in 1998. Band Against MS (BAMS) foundation and began aggressively fundraising to support research and provide hope for those living with MS. So far Walker’s foundation has raised more than $2 million. Walker participates in a number of Bike MS rides across the country. He has recorded a radio advertisement for the Wisconsin Chapter’s Bike MS, and recently donated an autographed BAMS guitar for a fundraising raffle. Details of the raffle are featured in the information box, and proceeds will be split between BAMS and the Wisconsin Chapter. “Being diagnosed is a big shock,” said Walker. “But I really believe in my heart, this is a big reason why I was put on this earth.” By telling his story and using his celebrity, Walker is generating awareness for MS and helping to find the cure.
In addition to performing, Clay Walker rides in several Bike MS events across the U.S.
Win an Autographed Clay Walker Guitar There’s no question this autographed Clay Walker guitar will look good and sound even better. That’s because the money generated by raffling it off will benefit the National MS Society-Wisconsin Chapter and Band Against MS (BAMS). Raffle tickets are $5 each or five for $20 and can be purchased at 1120 James Drive, Suite A, in Hartland and at a variety of Wisconsin Chapter events and programs. For more details call 800-242-3358 or visit wisMS.org. TOLL FREE NUMBER 1 800 242 3358
Paul Harvey Radio Report Changed Her Life
Champion Rider Shares Story of Determination and Discipline Laura Kimball had reached a low point in her life. At age 25 and diagnosed with multiple sclerosis; she had been told to quit her job, sell her horses and get ready for life in a wheelchair. Her doctor said there were no treatments, no diets, no vitamins that could help her. As she sat in her room a year and a half later, Kimball heard a Paul Harvey radio broadcast that changed her life. He reported that a new breakthrough in MS therapy was imminent. Laura called the National Multiple Sclerosis Society-Wisconsin Chapter to find out more and learned that there would soon be a clinical study for the Copolymer I program at the University of Wisconsin-Madison.
of the fact, she would later learn, that she had been taking a placebo. At that point, the study went into an open label phase and she began actual Copaxone
Whatever your life battle is, don’t stop believing in yourself. - Laura Kimball therapy in 1994. Kimball said her MS progression stopped and she began her recovery to an active and full physical life. “With the help of my drug therapy and the support of my family and friends, I have gained hope, determination and discipline – the hope that I can achieve my dreams, the determination to succeed and the discipline to work hard and never give up,” says Kimball. “Whatever your life battle is, don’t stop believing in yourself.”
Getting Back on the Horse Prior to her diagnosis, Kimball’s love of horses had grown into a passion for the rodeo sport of barrel racing. Barrel racing is a timed rodeo event in which a horse and rider enter the arena at top speed and attempt to complete a cloverleaf pattern around three barrels placed in a triangle in the center of the arena. Kimball began the sport years before her MS diagnosis. She was able to get back on her horse within two months of beginning the clinical drug study. Kimball and her horse, Nernie, went back into training and began racking up state championships and national honors in barrel racing competitions. She also served as Wisconsin State Director of the National A charter member of the National Barrel Horse Association (NBHA), Barrel Horse Association (NBHA) from Laura Kimball was the 2002 and 2006 State Champion. She won first place in the third division of the NBHA World Championships in 2008. 1994-1999. Kimball says she loves the sport of barrel During the two-year double blind study in which racing because “the competition is about you, your horse she participated, Kimball’s MS progressed – yet her and a timer. It’s not based on a judge’s opinion, but on coordination and strength started coming back in spite how you and your horse perform.” Kimball became
16 JOIN THE MOVEMENT: wisMS.org
Workplace Giving Tips and Reminders the first Wisconsin member to be inducted into the National Barrel Horse Hall of Fame. “He makes me fly,” she says about Nernie. “I feel like I’m flying when I’m on my horse!” No Different than Anyone Else “I lost hope once and I promised that I would never again let that happen to me or to anyone else,” said Kimball. She firmly believes that your success is based on what you want out of your life. You have to want to do something that is important to you. She continues to work full time at WOW Logistics Company in Menasha, trains with her horse each evening and practices a healthy lifestyle. Kimball and her husband, Kelvin, live in Black Creek, have been actively involved with Walk MS: Fox Cities over the years and also participate in the MS Snowmobile Tour.
Workplace giving programs provide an easy way to support the MS Movement. Simply sign up for your company’s workplace giving campaign and use an automatic payroll deduction to make regular gifts to the Wisconsin Chapter. All gifts made to the Wisconsin Chapter through workplace giving are tax deductible. Community Health Charities Wisconsin. The Wisconsin Chapter proudly partners with Community Health Charities Wisconsin, the largest workplace giving program devoted solely to health issues. Corporate Employee Gift Programs. Your company may have its own Corporate Employee Gift Program. Matching Gifts. Be sure to ask your employer if they have a matching gift fund and request that they match your gift to the Wisconsin Chapter. Combined Federal Campaign of Greater Wisconsin Public sector and government employees can support the Wisconsin Chapter through the Combined Federal Campaign of Greater Wisconsin by selecting the designated code number: 36427. Be sure to look for the National Multiple Sclerosis Society-Wisconsin Chapter on the designation lists for your state, city, county or school employee giving campaigns.
MS Volunteer Day Saturday, August 14 Laura Kimball and her husband, Kelvin, participate in Walk MS and the MS Snowmobile Tour.
Receive free Wisconsin State Fair admission, parking and shuttle service when you volunteer four hours. For details contact Kristin Raeber at 262-396-7165.
TOLL FREE NUMBER 1 800 242 3358
2010 Walk MS Sponsors One Step at a Time You are Changing Lives Contributing Sponsors
Motivational Sponsors Collegiate Association for MS Carpenters Union Carrier Insurance Clean Power Dean & St. Mary’s Dominion Kewaunee Power Station
Fox Valley Metal Tech Great Wolf Resorts Group Health Cooperative Hanger Prosthetics & Orthotics Marine Credit Union Mercy Health System
18 JOIN THE MOVEMENT: wisMS.org
In-Kind Sponsors Kwik Trip Rock-a-Fellas
Parker Community Credit Union Prevea Quincy Bioscience RW Baird St. Mary’s Janesville Trust Point, Inc.
Rockford Silk Screen
Is it Okay to Work Part Time?
Waiting for Your Disability Claim to be Approved By Attorney Thomas E. Bush
Many claimants ask about working part time while their Social Security disability or SSI cases are pending. For many people, working part time is a matter of necessity because some disability claims are pending for so long. Working part time won’t harm your disability claim as long as the work is not inconsistent with your claim and as long as your gross earnings do not exceed what the Social Security Administration (SSA) calls the “substantial gainful activity” amount, which in 2010 is $1,000 per month. For several reasons, though, we recommend keeping your gross income below $720 per month. If your part time job is inconsistent with what you have to prove in order to win your disability case, your case will be more difficult – maybe impossible if the part time job is really inconsistent. For example, if you are under age 50, to win your case you probably must prove that you cannot do any kind of an easy job on a full time basis. So if you are doing a very hard job part time, the judge will wonder how it is you can do a hard job part time but you cannot do an easy job full time. Usually, though, claimants for disability benefits who work part time do not work at jobs that are inconsistent with their claims for disability. Working part time at a job that is totally consistent with your disability claim may actually help your case by illustrating what you are capable of doing and showing your work limitations.
The “substantial gainful activity” amount – gross earnings of $1,000 per month in 2010 – is an absolute cut-off point. Although there is a deduction that can be taken against earnings that SSA gives the misleading name, “impairment related work expenses,” in most cases this deduction is not significant. And SSA has some complicated rules for averaging earnings. If after deducting “impairment related work expenses” and averaging earnings, you are earning even $1 more than the substantial gainful activity amount, your disability claim is in danger of being denied outright or turned into a claim in which you are eligible only for back benefits. Thus, if you are going to work, it is best to keep your income far below the substantial gainful activity amount. In fact, because there are advantages to keeping your income below what SSA calls the “trial work period services” amount, which in 2010 is $720 per month, this is what we recommend if your claim is for Social Security disability benefits. If your claim is for SSI, the trial work period rules do not apply. But because it helps to keep your income well below the “substantial gainful activity” amount while your case is pending, it wouldn’t be a bad idea to use the same rule of thumb. Tom Bush is the preeminent expert on SSDI in Southeastern Wisconsin. A Wisconsin Chapter volunteer for 20 years, in 2008 Tom was inducted into the National MS Society’s Volunteer Hall of Fame. Tom’s web site is www.tebush.com.
MS Research, Services, Programs Receive $46,200 The Wisconsin Chapter extends its sincere gratitude to the following organizations for grants awarded April 1, 2010 through June 30, 2010. For information contact Cindy Yomantas at 262-369-4431 or e-mail cindy.yomantas@wisMS.org. • $10,000 from the Mae E. Demmer Charitable Trust for research • $14,500 from Teva Neuroscience for professional programming • $10,000 from an anonymous donor for research • $7,500 from Teva Neuroscience for patient educational programming
• $2,000 from Bayer for educational programming • $1,000 from Biogen Idec for educational programming • $1,000 from the Fraternal Order of Eagles La Crosse for research • $200 from the Anne & Fred Luber Foundation for research TOLL FREE NUMBER 1 800 242 3358
Hayes and Schneider Speak in Milwaukee and Madison
MS Luncheons Celebrate Research, Scholars and More “Sunshine in a bottle.” That’s how Dr. Colleen Hayes described the bottle of vitamin D pills she held while addressing the audience attending the MS Luncheon in Madison on June 16. Just the day before, Dr. Hayes had similarly extolled the virtues of vitamin D at the MS Luncheon in Milwaukee. Dr. Hayes, a University of Wisconsin-Madison researcher funded by the National Multiple Sclerosis Society, and Lori Schneider – the first person with MS to reach the “Seven Summits” – were the featured speakers at the Wisconsin Chapter’s annual fundraising luncheons. Between the two gatherings, more than 500 attended the Milwaukee and Madison events. The luncheons also provided an opportunity to recognize several 2010 MS College Scholarship winners and to celebrate the success of Wisconsin’s Research Challenge Match.
Research Challenge Match Exceeds Goal In December of 2009, Dennis and Sandy Kuester quietly launched a Research Challenge Match to support MS research in Wisconsin. Dennis is a former member of the Wisconsin Chapter Board of Trustees, while Sandy currently serves on the Wisconsin Chapter’s Make a Mark
20 JOIN THE MOVEMENT: wisMS.org
6. Milwaukee MS Luncheon 1. Chapter Board Chair Alyson Zierdt and Senator Alberta Darling 2. Becky Lonergan, GiGi Christensen, Sandy Kuester, Joanne Sheridan, Carolyn Homan and Judy Starr 3. Jason and Amy Rowell 4. Katrina Cravy and Don Bell 5. Featured Speakers Lori Schneider and Colleen Hayes 6. Richard and Susan Wilkey, scholarship recipient Matthew Machi
for MS financial assistance committee. The couple became aware in late 2009 that for the first time in 10 years, the National MS Society had research projects in the pipeline that it could not completely fund. That included work being done by Wisconsin researchers such as Dr. Hayes, who was studying the impact of vitamin D on individuals diagnosed with MS. By pulling together 49 Wisconsin foundations and individual donors, the Kuesters were able to secure more than $450,000 to maintain funding for Wisconsinâ€™s MS research projects. In a mere five months, the Chapterâ€™s first challenge match was complete. The MS Luncheon has long been a setting to support MS research. The first luncheon in 2001 helped raise money to support gender-based studies (leading to the estriol clinical trials taking place today). The 2010 events included the announcement that a seventh National MS Society grant had been awarded to Dr. Aaron Field to study CCSVI. If you would like to make a donation to support the National MS Society-Wisconsin Chapter, please contact Denise Jendusa at 262-369-7166 or e-mail denise.jendusa@wisMS.org.
1. Madison MS Luncheon 1. Steven Smith, scholarship recipient Nicholas Smith and Jennifer Smith 2. Chapter Board Vice Chair Kenneth Minor and MS Researcher Dr. Ian Duncan 3. Board member Molly Walsh, Audrey Walsh and David Walsh 4. Sara Koppes and Sara Holzum 5. MS Researcher Dr. Michael Carrithers 6. Kristen Braun, Matt Altenberger and David Braun
6. TOLL FREE NUMBER 1 800 242 3358
Wisconsin Chapter News and Notes
This is How We Move It
Marcus Theatres Supports ‘MS Run the US.’ Marcus Theatres is hosting special fundraising screenings of Warner Brothers’ classic Steve Prefontaine bio, Without Limits, at select theatre locations to support Ashley Kumlien and MS Run the US. A screening is scheduled for Wednesday, August 11 at the Majestic Cinemas in Brookfield. A question-andanswer session begins at 6:45 p.m. and the film starts at 7:10 p.m. Kumlien is running across the US to raise funds and awareness for MS. Without Limits tells the story of the friendship between Prefontaine, one of America’s greatest long distance runners, and his coach, Bill Bowerman, who co-founded Nike, Inc. For more details visit MSRuntheUS.com. Subscribe to the Challenge Walk MS Blog. Get the inside scoop on Challenge Walk MS when you subscribe to the blog. Regular contributors and Challenge Walk MS veterans, Mike and Jenny Egan of Port Mike and Jenny Egan write the Washington, Challenge Walk MS blog. touch on all facets of the three day, 50 mile event. Subscribe today by visiting challengewalkmsdoorcounty.blogspot.com/. MS Day at the Zoo is September 18. Mark your calendar for MS Day at the Milwaukee County Zoo. You’ll find details and registration information at the Wisconsin Chapter’s website, wisMS.org. Find us on Facebook. You can sign-up to become a fan of the National MS Society-Wisconsin Chapter
22 JOIN THE MOVEMENT: wisMS.org
on Facebook. It’s a great way to stay connected to the Wisconsin Chapter’s programs, services and events. Wisconsin Chapter Calendar of Clinic Visits. Representatives of the Wisconsin Chapter regularly visit several of the organization’s six official clinics. During these visits, Chapter staff is available to meet confidentially and answer questions plus share informative literature. The current schedule of clinic visits is as follows: • Aurora Baycare MS Clinic, Green Bay: 4th Friday of every month • Froedtert & The Medical College of Wisconsin Multiple Sclerosis Clinic: no visits currently scheduled • Marshfield Clinic MS Center, Marshfield: 3rd Tuesday of every month • Regional Multiple Sclerosis Center, St. Luke’s Medical Center, Milwaukee: 2nd Thursday and 4th Monday of each month. • ProHealth Care Neuroscience Center, Waukesha Memorial Hospital, Waukesha: 4th Tuesday of each month. • UW Hospital and Clinics Neurology/MS Clinic, Madison: 4th Wednesday of each month Call an MS Navigator Today. We’re here to help you navigate the challenges of MS with a personalized response to your unique needs during standard business hours: Monday-Friday. Please call 800-344-4867 for personalized service, up-to-date information and practical resources and referrals. Circle of Hope Support Groups. Wisconsin has more than 50 support groups and new groups sprout up regularly. For a complete listing including meeting dates, please visit www.wisms.org or call toll-free in Wisconsin 800-242-3358, Option 2. New Fundraising Tool for Your Facebook Page. If you’re participating in Bike MS or Challenge Walk MS, be sure to activate Boundless Fundraising and place your fundraising thermometer on your Facebook
page. If you have questions about the tool, please e-mail info@wisMS.org.
education. The remaining 15 cents covered all general administrative and fundraising expenses.
You can be the Catalyst for Change. Sign up today to receive Action Alert e-mails. These informative updates will keep you connected to the issues that matter most to individuals with MS. E-mail kim.kinner@wisMS.org for details or call 800-242-3358. Sign Up for the Pick ‘n Save We Care Program. A percentage of your grocery purchases will be donated to the Wisconsin Chapter by Roundy’s when you join the We Care program at any of the company’s participating Pick ‘n Save, Copps or Rainbow stores. The Wisconsin Chapter number is 532300. Where does the Money Go? In Fiscal Year 2009 (October 1 through September 30), 85 cents of every dollar donated to the Wisconsin Chapter supported the mission – research, client services, programs and
The staff of The Regional MS Center at Aurora St. Luke’s Medical Center commemorated MS Awareness Week with a group photo (and lots of orange). Next year MS Awareness Week is March 14-20.
Wisconsin Chapter Calendar of Events Bike MS: TOYOTA Best Dam Bike Ride August 7-8
MS Day: Milwaukee County Zoo September 18
Make a Mark for MS Committee Meeting August 23
Pain Management in MS Madison September 20
Generation Optimistic Appleton Meeting September 2
Generation Optimistic Milwaukee Meeting September 23
Cognition Seminar Green Bay September 10-11
Challenge Walk MS: Door County September 24-26
MS Mud Run September 11
Make a Mark for MS Committee Meeting September 27
Wisconsin Chapter Board of Trustees Meeting September 28
Wisconsin Chapter Annual Meeting and Mission Celebration November 18
Generation Optimistic Wausau Meeting October 7
MS Snowmobile Tour January 27-30
Make a Mark for MS Committee Meeting October 25 Gender Differences in MS Madison November 16
Birkie Skiers for Cures February 24-26 MS Awareness Week March 14-20 Please visit the wisMS.org Calendar of Events for the latest listing of Chapter activities and Community Events.
MS Connection is a publication of the National Multiple Sclerosis Society - Wisconsin Chapter. For information or to share story ideas, please call 262-369-4431. Editor: Cindy Yomantas, Art Director: Amy Malo
TOLL FREE NUMBER 1 800 242 3358
Non-Profit Organization U.S. Postage
Milwaukee, WI 53202 Permit No. 2868
1120 James Drive Suite A Hartland, WI 53029 Mailing Label Changes Please check the appropriate box below, correct the label and return to the Wisconsin Chapter. Name change or misspelled Address change Remove from mailing list Received more than one copy Please send me my MS Connection via e-mail. My e-mail address is: __________________________________________
wisMS.org • Toll Free 1 800 242 3358 • 262 369 4400
It’s Time to Get Dirty for a Good Cause Mud Run is a 10K race on a military-style obstacle course made of, you guessed it: mud! It’s the fastest-growing adventure race in the country, and it’s coming to Wisconsin. Participate as a team or an individual. Either way you’ll benefit a great cause as you slip, slide and slosh your way to victory!
Saturday, Sept. 11, 2010 Trollhaugen Ski and Snowboard Resort • Dresser, WI
Register today: 800-582-5296 or wisMS.org