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A Report on the National Multiple Sclerosis Society’s Progress in Fiscal Year 2008

What’s Inside? We are a driving force of MS research, relentlessly pursuing prevention, treatment and cure . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 We address THE CHALLENGES OF EACH PERSON WHOSE LIFE IS AFFECTED BY MS . . . . . . . . . . . . . . . 4 we mobilize the talents and resources of the millions of people who want to do something about ms . . . . . . . . . . . . . . . . . . . . . . . . 7 we are activists . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 we will raise $1.25 billion by the end of 2010 to be used to fight against multiple Sclerosis . . . . . . . . . . . . . . . . . 13 Financials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 National Board of Directors . . . . . . . . . . . . . . . . . . . . . 17 the Society’s local offices . . . . . . . . . . . . . . . . . . . . . . . . 19

a message from the chairman

Dear Friends, Multiple sclerosis is a lot like the national economy. That’s not to say that the economy is a debilitating illness, though it may sometimes seem like one. But we have our downs that we endure and our ups that we cherish. When we chart the average, however, we possess a surplus of that least tangible but most precious asset, hopefulness. The recession became a strong force in all our lives in 2008 and is even more so as I write. But the MS movement is stronger than any recession. Whether I examine the National MS Society from the standpoint of a person with MS, the family member of a person with MS, a donor, or a longtime volunteer — for I am all four — I come to the same conclusion: My ups would be lower and my downs would be deep indeed were it not for the generosity of the Society’s benefactors and the talents of the professionals they fund.


Weyman Johnson, Jr. Chairman of the National Board of Directors

To the MS Community, One of the people we interviewed in the production of this report was the neurologist Lily K. Jung, MD, who treats people with MS in her Seattle clinic and speaks up for them in state and federal legislative contests. Dr. Jung told us she was drawn to people with MS early in her career because of their spirit, their determination, their zest for life. We asked Dr. Jung why she thinks this is, and she gave us what we admit is the answer we had hoped to hear: That it must have something to do with the sense of ceaseless forward motion that the National MS Society achieves in the research we fund, the programs and services we deliver and the information we provide. Getting involved with the National MS Society — whether through a self-help group, legislative action alerts, Walk MS or Bike MS — is never a pity party. It’s a progress party. The theme of this report is “Move Others.” What I love about this disarmingly concise sentence is the cycle of inspiration it implies: In order to move others, I need to be moved to do so. And who has moved me if not, well, others? We at the National MS Society are not content simply to serve the MS community; we want to be part of the fabric of life for everyone living with MS and every member of their family and care team. When we speak of our desire to move others to action, we are, like Lily Jung, thanking the MS community for the privilege of moving among you.

With appreciation,

Joyce E. Nelson President and Chief Executive Officer

a message from the president and ceo

a message from the treasurer

To the Supporters of the National MS Society, If the history of the National MS Society were a novel, we would be in the unique position of knowing both how the story began — with Sylvia Lawry’s fateful classified ad on behalf of her brother Bernard — and how it ends: a world without MS. It is the middle that we must create. Though the recession may be giving us all a case of writer’s cramp (check-writer’s cramp, that is), the story of the National MS Society is much happier than it could be. While other charitable organizations have had to resort to loans merely to make payroll, I am proud to be able to report that we at the Society are benefiting from decades of conservative financial management and the rock-solid commitment of our benefactors. The Society’s losses in 2008 were all unrealized, while our gains — the ways we serve the MS community — were realized in a thousand ways. If this were a solicitation to buy shares, I would be forbidden from telling you that past performance predicts future results. But this is the National MS Society, so I feel confident in stating that however the markets perform, the Society’s performance in terms of meeting the needs of the MS community is on a permanent uptick.


Richard Mengel Treasurer of the National Board of Directors

about multiple sclerosis Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and 2.1 million worldwide.

We are a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. We help each person address the challenges of living with MS through our 50-state network of chapters. We help people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward. In 2008 alone, the Society devoted over $136 million to programs that enhanced more than one million lives. The Society also invested nearly $50 million to support 440 research projects around the world. MS stops people from moving. The National MS Society exists to make sure it doesn’t. Join the movement at

about the national multiple sclerosis society

we are a driving force of MS Research, relentlessly pursuing prevention, treatment & cure The MS movement has been about moving others from the start. Sylvia Lawry’s very first act in creating the organization that would become the National MS Society was to reach out to the world via a classified ad in The New York Times. To this day, collaboration is at the heart of everything we do. This is especially true in research, where the Society has responded to scientists’ ever-deeper understanding of MS by creating ever-wider networks of cooperation. Gone are the days when a single researcher could apply for a grant, do an experiment, publish a paper and move on. A Society-supported project nowadays can involve dozens of research teams across the globe. The most dramatic example is the Nervous System Repair & Protection Initiative, a fiveyear grant funded by the Society’s Promise: 2010 campaign. The project is so big that it has not one but four principal investigators, as well as collaborators based at universities spread across 11 time zones in North America and Europe. Another example from FY08: The Society provided logistical and financial support for the World Congress on Treatment and Research in Multiple Sclerosis, which was held in Montreal in September 2008. Nearly 5,200 clinicians and researchers attended, and nearly 1,000 studies were presented on subjects as diverse as what’s the optimal amount of exercise for a person with MS and whether a compound derived from red wine can be beneficial. If it’s important to unite researchers from different countries and different labs, the same can be said of bridging the chasm that sometimes exists between the public and private sectors. Here, too, the Society is playing a vital matchmaking role. The Society’s Fast ForwardSM subsidiary, which uses a venture-capital approach to speed the development of MS treatments, received 16 proposals, conducted complete assessments on four and reached agreement on its first investment, to start in FY09.

National MS Society ­— Progress Report 2008



Alabama Researcher Focuses on Movement Pharmaceutical trials get a lot of attention because of the high hopes and high costs involved, but a whole other branch of research looks for ways to live better with MS regardless of what medications are available. University of Alabama at Birmingham (UAB) neurologist Victor Mark, MD, for example, is studying whether a type of physical therapy that has benefited people with stroke, traumatic brain injury and cerebral palsy could help those with MS too. It’s called Constraint-Induced Movement therapy or CI therapy, and was developed 20 years ago at UAB by neuroscientist Edward Taub, PhD. It seeks to reverse “learned nonuse,” the tendency people have to reduce the use of a mildly or moderately impaired limb after it’s been weakened by illness or injury, when a relatively spared part of the body can take over its function. Dr. Mark previously conducted a small CI therapy study with Society funding that was considerably successful, and he hopes the next one — which is scheduled to run from October 2009 to September 2013 — will lead to a new standard of care that insurers will cover. He plans to recruit 66 people with progressive MS, give half of them CI therapy and the other half better-known complementary therapies, including aquatic therapy and relaxation techniques, and compare improvements in limb use and motor ability. “Physical therapy research has not grown as much as either basic neuroscience research or pharmacological research, yet I think it has the opportunity to show significant improvement in the lifestyle, quality of life and activities of daily living in people with MS, possibly above and beyond what current approved medications can do,” he said. He is focusing on progressive MS because quality of life issues are especially important to this group. Dr. Mark first approached the Society on the advice of UAB colleagues Khurram Bashir, MD, MPH, and Gary Cutter, PhD, who specialize in MS. They said the Society’s support can help a researcher turn a hunch into a discovery. “I’ve always been struck by how much MS superficially resembles stroke and other nonprogressive neurological illnesses, in that you can have sustained weakness and other similar types of neurological deficit,” Dr. Mark said. However, “nobody knew until we did the work that the Society funded whether a progressive neurological disorder could also respond to this therapy.”

“ I’ve always bee n how much MS struck by superficially resembles stro ke nonprogressive and other illnesses...” 2



More Progress in Research g



Our Promise: 2010 Nervous System Repair & Protection Initiative investigators completed a first step by successfully using human nervous system progenitor cells to myelinate brain and spinal cord nerve tissue in mice that are genetically incapable of making their own myelin. Large-scale genetic screens have identified new genes that predispose humans to MS. Thirteen new genes were identified in the initial screening, and a new genetics project was launched to catalog and validate all of the relevant genes exerting significant effects on MS susceptibility. The Society funded 94 new research projects, including research grants, Collaborative MS Research Centers and high-risk pilot research projects, and funded training for 34 new MS physicians and scientists. A task force of volunteer experts met and developed strategies to attract new investigators and clinicians to the field of MS.

g The Society drafted federal legislation to create a National MS Registry. g The Society funded eight clinical trials of new therapies, including estriol, the nerve-protecting agent riluzole, and a trial of cognitive rehabilitation strategies.

The Society supported investigations on the potential roles played by sunlight, vitamin D and Epstein-Barr virus in the cause of MS. g

The Society held a collaborative meeting of investigators who run MS tissue and DNA banks to identify ways to recruit specimen donors and market these vital tools to the research community. g

National MS Society ­— Progress Report 2008



we Address the challenges of each person whose life is affected by ms The cure to MS remains tantalizingly in the future, but the needs of people affected by MS exist firmly in the present. That’s why the Society provides — and moves others to provide — programs and services for people living with MS now. What better way to approach a disease that interrupts the flow of information than by producing information about it? The Society’s robust communications strategy reaches all elements of the MS community: people with MS, physicians, researchers, family members, community members, policymakers and benefactors. The Society’s quarterly magazine, Momentum, and the new National e-News reach more than a million people with each issue. Our presence is growing exponentially on all the big social networking sites. Yet the good old telephone remains one of our most important tools. The Denver-based Information Resource Center is the first point of contact with the Society for most Americans. It is a hub for highly trained human services professionals who guide callers on questions ranging from choosing a neurologist to negotiating with an insurer to accessing emergency cash in a crisis. Health professionals, too, rely on the Society to stay up to date on patient care options. Clinicians and representatives of other agencies have access to our position papers, treatment consensus statements, tool kits and direct consultations via a dedicated hotline. Anybody who has witnessed the sea of humanity at a Walk MS, Bike MS or Challenge Walk event, felt the exhilaration of the National Conference, or experienced the camaraderie of a self-help group, will know that the MS community is as tight-knit as it is diverse. The way we see it, moving others isn’t just a duty, it’s a delight.




A Spanish-Speaker Named English Sets Her Sights on Service Danielle English became a musician in childhood, and stuck with her music education even after her MS diagnosis briefly sidelined her from the high school marching band. But one day, while studying music at Kansas State University, Danielle took a good hard look at her clarinet and came to a reckoning. “Do I want to practice four hours a day — or do I want to get out the word about MS?” The National MS Society had helped Danielle get past the fright of her diagnosis by sating her appetite for research news and giving her a college scholarship. She set a new career goal: to serve the MS community. She switched her major to communications, enrolled in a certification program for nonprofit leaders, and studied in Mexico to improve her Spanish. “My mother’s side of my family came from Mexico. I guess it was just in my blood,” she said. Danielle first volunteered for the Mid America Chapter shortly after her diagnosis. “I didn’t just learn more about MS,” she said. “I volunteered on Bike MS and helped make the mailers and flyers. I helped in event preplanning. There were other people with MS working there. Talking to someone else with MS helped me.” In 2008 Danielle, now a master’s candidate at the University of Denver, began volunteering for the Society’s national marketing department in Denver. “It’s no accident that I’m here,” she said. “It was where I was meant to be.”

e of id s ’s r e h t o m y “M e from m a c y il m a f y m as w it s s e u g I . o ic Mex od.” just in my blo

National MS Society ­— Progress Report 2008



More Progress in Programs & Services The federal Department of Health and Human Services renewed its $2.5 million, five-year grant for Relationship Matters for the third year. More than 800 people participated in one or more portions of this program in 2008. g

g The Society’s scholarship program made more than $1 million in awards: 422 students received one-year scholarships and 58 received four-year funding. g

The Society developed new online classes on medical decision-making, financial planning, employment strategies and intimacy. Other online outreach included establishing a presence on MySpace and YouTube; two live Real Talk. Real Answers. webinars that drew more than 600 participants each; and MS Learn Online offering more video and more-frequent updates to appeal to a broader audience.

g The John Dystel Nursing Fellowship expanded to nurses working in long-term care and at the Veterans Administration. Fellows attended two-day training programs at The Boston Home on caring for people with advanced MS. g The Society participated in a conference involving people with primary-progressive MS, their care partners and MS health care specialists to identify and plan for the special needs of these groups.

The Society was the first point of contact for an estimated 76% of Americans diagnosed with MS in 2008. Nearly 8,000 of them participated in Knowledge is Power, an information program specially designed for people newly diagnosed with MS. g

The Society produced and distributed a three-volume manual to improve the success of private disability insurance claims. The editions were targeted to people with MS, health-care professionals and disability insurance professionals, respectively.


g Chapters disbursed more than $7 million in direct financial assistance to people with MS in need.

The Society launched an initiative to expand accessible, affordable housing for people with MS, and convened meetings of adult day providers and the Alliance to Promote Excellence in MS Care in Nursing Home Settings to address long-term care needs of people with MS. g

The Professional Resource Center fielded more than 6,000 inquiries from health-care professionals and released 19 new or revised clinical bulletins, books and expert opinion papers to help health-care professionals provide optimum care for people with MS. g




we mobilize the talents & resources of the millions of people who want to do something about MS If the National MS Society is able to move others, it’s because others move us. Volunteers don’t just make the Society better; they make the Society. Fittingly, it’s at our most visible events that volunteers are most visible. See those people handing out water at Walk MS? Clanging cowbells at Bike MS? Cheering crazily at a Challenge Walk finish line? Volunteers, one and all. Then there are professionals who blend their livelihood with their impulse to give: people like University of Wisconsin researcher Ian D. Duncan, BVMS, PhD, FRCPath, FRSE. His lab received Society grants, but he also contributed to the Society by working with race organizers to turn the American Birkebeiner ® cross-country ski contest into a fundraising opportunity. Here are some of the vital functions that the Society is able to fulfill thanks to volunteers: g The

National Board of Directors governs the Society without compensation, and each chapter is governed by its own volunteer board. g MS

researchers and clinicians review thousands of grant applications to be sure donors’ money goes toward the most promising science. Financial planners organized by the Foundation for Financial Service Professionals advise people with MS pro bono on money matters. g

Working pro bono several years in a row, the marketing firm Wieden+Kennedy has helped the Society achieve a greater national presence. g

At the National MS Society, volunteers and professional staff move each other to excel.

National MS Society ­— Progress Report 2008



Young Researcher/ Fundraiser Draws Energy from Dad’s Example Jenny Kanter, PhD, knew she was going to be a scientist of some sort ever since her father, the late energy scientist Lee Radosevich, took her to his lab and let her draw on his whiteboard. “I was drawn to biology mostly because of my dad’s MS — the possibility of working on his disease and having my daily work be something that I was very passionate about,” she said. She chose to specialize in microbiology and immunology, earning her doctorate at Stanford under the MS researchers Lawrence Steinman, MD, and William Robinson, MD, PhD. Chipping away at the scientific mysteries of MS isn’t enough for Kanter, who in 2008 was working at Harvard on a research fellowship underwritten by Society Chairman Weyman Johnson’s law firm. She also supports the MS community by participating in Challenge Walks with her mother Cathy and sister Kellie, a physical therapist in training to serve people with MS and other disabilities. At Challenge Walks, Kanter finds her lifelong relationship with MS taking on another dimension: she meets other members of the MS community and speaks with them from the dual vantage points of scientist and daughter. “It’s nice to meet other people who are in the same situation as you,” she said.

et other “It’s nice to me the in e r a o h w le p peo s you.” a n io t a u it s e m sa




More Progress in Volunteer Engagement Research peer reviewers donated an estimated 4,086 hours. g

g The

Charting Our Future Task Force identified areas where eliminating redundancy could free resources for mission-focused activities. The Delegate Assembly passed the task force’s recommendations, which are expected to spark major organizational changes in 2009.

g Newly

established Hispanic and African-American volunteer advisory councils assisted the Society in increasing its openness to racial and cultural diversity. g The

Society established a chapter certification standard to ensure that all chapters include volunteer engagement strategies in their operational plans. g New

procedures for volunteers are helping the Society manage risk more effectively. g The

Society partnered with MS World, a volunteer organization that provides online chat groups. g The

Central New England, Eastern North Carolina, Lone Star, Mid Atlantic and Southern California chapters piloted replicable volunteer engagement projects.

National MS Society ­— Progress Report 2008



we are activists When an unpredictable illness strikes, activism is a way of regaining control — not just for each individual affected by MS, but for the world at large. Each of the Society’s chapters has a Government Relations Committee consisting of volunteers, largely people with MS, who shape local priorities by meeting with legislators and local officials, including building inspectors and parking enforcement officers. To influence federal policies, the Society maintains a Washington, D.C., office with three registered lobbyists, aided by a volunteer Federal Action Council. In 2008 the National Board of Directors unanimously approved one of the most important documents in the Society’s history: a statement of Health Care Reform Principles that clearly articulated the changes the MS community wants to see from government and insurers. Shawn O’Neail, vice president of Federal Government Relations at the Society, figures his life would be easier if he worked for, say, Big Tobacco and could dispense checks at election time. “All of our work is done through our stories and our grassroots influence. It makes the work harder, but it’s more genuine,” he said. “Our influence is based solely on the information our volunteers are able to provide.”

“A ll of our wor k is through our st done or grassroots infl ies and uence.”




Moved by People with MS, Doctor Decides to Move Others Too Lily K. Jung, MD, chose to work for people with MS for an admittedly unscientific reason: “MS patients are usually hugely enthusiastic, they want to fight, they’re motivated, and it’s really motivating for me…. I go to work and see some of my patients who can barely drag themselves out of bed, and they’re talking about what they can do to make their lives better.” The Seattle neurologist extended her commitment from the clinic to the U.S. Capitol by joining the Greater Washington Chapter’s Government Affairs Committee and then the Society’s Federal Activism Council. In 2008 she was part of the task force that drafted a set of health care reform principles and presented them to the Society’s National Board of Directors. She predicted resistance from board members whose business interests or party loyalties may have put them at odds with the platform. Instead, the board approved the document unanimously. “People set aside their individual differences and said, ‘Our main goal is to create a world where MS can be treated and contained and managed,’” Dr. Jung said. “It said to me: Here’s an organization that’s willing to step out in front of others and say what we believe in.” She was so excited by the experience that she convinced her colleagues at the American Academy of Neurology that they too should get more involved in the political process. “It was a taboo subject but the Academy created a health care reform task force, of which I’m a member. We’re trying to figure out what we need to do as a group similar to what the National MS Society has done,” she said. “It’s a really exciting time and I’m lucky to be caught up in the middle of it.”

iting c x e y ll a e r a ’s t I “ ck y time and I’m lu p in to be caught u it.” the middle of

National MS Society ­— Progress Report 2008



More Progress in Government Relations & Activism g The

Society is using the National Health Care Reform Principles proactively with other organizations and advocacy efforts at the federal and state levels. g The

Congressionally Directed Medical Research Programs, administered by the Department of Defense, established a $5 million funding stream for MS research. g Action

Alert membership rose 135%.

g The

Congressional MS Caucus included 101 representatives and 20 senators at the end of FY08. g The

Society is an active member of or partner in 16 national health care coalitions. g The

Society earned more than one national media mention per week, on average.

g New

Society Public Service Announcements received more than $12 million worth of free placements, a 25% increase over the previous year. g All

chapters now have advocacy plans that include community resource development and strategic outreach activities.




we will raise $1.25 billion by the end of 2010 to be used in the fight against multiple Sclerosis With two years to run, the Society’s far-reaching Promise: 2010 campaign can already claim to have had a profound influence on the quantity and quality of MS research and care, uniting the MS community behind some very big but achievable targets: The Nervous System Repair & Protection Initiative led researchers worldwide to forge collaborations to slow, stop, or even reverse the immune attacks that ravage the central nervous system in MS. The initiative was tasked with creating the conditions that would lead to clinical trials by 2010, but in FY08 some of its teams actually passed that milestone, announcing small clinical trials of new medications. Expanding a model pioneered at Stony Brook University Hospital in New York State, the Pediatric Centers of Excellence Initiative funded six centers so that families of children with MS nationwide would have access to top-flight evaluation and care. Pediatric MS poses unique challenges, such as explaining the disease to peers and teachers, so each center offers a multidisciplinary slate of services, in addition to clinical care. The centers are collecting valuable data about the origins and early course of MS that could contribute to finding cures for people of all ages. The Sonya Slifka Longitudinal MS Study is shattering myths and replacing them with facts about the social and financial consequences of MS. Thousands of participants receive regular calls asking about topics as diverse as the cost of their medications and the health of their marriages. The Slifka study has even become a fundraising tool: When the Society applies for funds from foundations or public agencies, facts and trends culled from the study combine powerfully with anecdotal testimony, making it hard for potential funders to say no. The MS Lesion Project is focused on what can be learned about MS from the corrupted spots in the central nervous system known as lesions. Researchers in Minnesota and Austria have become the caretakers of a precious collection of brain biopsies from living people at all stages of MS, making it possible to see MS — quite literally — as it has never been seen before. Such progress doesn’t come cheap, which is why donors of all stripes — from children running Walk MS lemonade stands to grandparents remembering the Society in their wills — are helping Promise: 2010 reach its goals.

National MS Society ­— Progress Report 2008



A New York Pair Multiplies the Fundraising Power of Bike MS Two New York cyclists are magnifying the power of Bike MS by eight. In 2007, Catherine (Cat) Tsigakos and Mike Zimits rode eight 150-mile Bike MS events in eight states over eight months. They raised nearly $80,000. They didn’t stop there. In 2008 they formed the MS Great-8 Foundation, raised more than $150,000, and devised a unique formula that allows riders who join them to specify that the funds they raise go to help people with MS in their own neighborhoods. The foundation provides National MS Society chapters with monetary grants, donated wheelchairs, and a ramp-building program to help people with MS keep moving. A dozen years ago, Mike was 100 pounds overweight with an ulcer, high blood pressure and a new diagnosis of MS. He was 35 and saw only regrets ahead: “Why did I put off so many things? Why did I waste my life?” As he learned more about MS — and the people who live with it — he came to a very different conclusion. Life itself can be an endurance sport, he decided. He started riding. “My first MS century took me 11 hours to complete. By mile 88, I was crying. Not because of MS, but despite it,” he said. Cat’s MS connection is her brother Peter, who has been living with MS for more than 20 years. Mike and Peter were longtime business colleagues and friends, and it was a fundraising request by Mike that brought Cat into the cycling world. “I was teary-eyed at his story and wanted to take my fundraising efforts to a new level,” said Cat. “My brother Peter just happens to call me at the very moment we’re crossing the finish line at every ride, no matter what time zone we’re in. While he uses a wheelchair and I use a bike, together we ride to fight MS,” Cat said.

off so “W hy did I put hy W many things? fe?” li did I waste my 14



More Progress in Fundraising A new online direct marketing campaign helped online donations rise by 34% in number (to more than 800,000) and 41% in value. g

g Event registration increased by 7.48% and online event revenue grew by 36%. g

The number of national teams increased by 10% to 111%.

Bicycling Magazine ran the first significant national advertising campaign for Bike MS. This was possible because Bike MS now has a national brand platform and Web site. g

g Corporate sponsorship and grants increased by 20% to $4.8 million. Nineteen corporations are now members of the Corporate Stars program, three more than the previous year.

The Society became the beneficiary of 167 estates ranging from $200 to $670,759. g

We received 776 nonevent gifts (that is, not associated with Bike MS or Walk MS) of $10,000 or more. g

National MS Society ­— Progress Report 2008



Financials — FPO




National Board of Directors Officers

Charles W. Connors, Sr.

Richard Knutson

Chairman of the Board

CEO, Magneco/Metrel, Inc.

Chief Operating Officer, Larkin Hoffman Daly & Lindgren Ltd

Weyman T. Johnson, Jr.

Addison, Illinois

Partner, Paul, Hastings, Janofsky & Walker LLP

Peter A. Galligan

Bloomington, Minnesota Thomas R. Kuhn

Atlanta, Georgia

Executive Vice President, Royal Bank of Scotland

President & CEO

Boston, Massachusetts

Washington, D.C.

Joyce M. Nelson

William C. Gillispie, Jr.

Fred D. Lublin, MD

Denver, Colorado

Corporate Vice President, Save-A-Lot Earth City, Missouri

Director, Corinne Goldsmith Dickinson Center for Multiple Sclerosis, Saunders Family

Cassandra E. Henderson, MD

Professor of Neurology, Mount Sinai School of Medicine

Secretary Craig T. Lynch Partner, Parke Poe Adams & Bernstein LLP Charlotte, North Carolina Treasurer

President, Edison Electric Institute

Chief of Maternal Fetal Medicine, Montefiore Medical Center

Linda J. McAleer

Bronx, New York

President, The Melior Group, Inc.

Richard J. Mengel

Megan E. Hills, Esq.

Partner, Mengel, Metzger, Barr & Co., LLP

Partner, Williams & Connolly LLP Vanessa G. Hodges


Associate Professor, UNCChapel Hill School of Social Work

Seattle, Washington Michael A. Bogdonoff, Esq. Partner, Dechert LLP Philadelphia, Pennsylvania Ronald D. Boire

Philadelphia, Pennsylvania Aaron E. Miller, MD

Washington, D.C.

Rochester, New York

Barbara Bernbaum

New York, New York

Medical Director, Corinne Goldsmith Dickinson Center for Multiple Sclerosis,

Chapel Hill, North Carolina

Professor of Neurology, Mount Sinai School of Medicine

Carol M. Houghtby

New York, New York

Owner, BrightStar Healthcare

Frederick E. Munschauer III, MD

Maplewood, Minnesota

Professor and Chairman, SUNY at Buffalo, Department of Neurology

Mary Hughes, MD

Buffalo, New York

President, Toys “R” Us, North America

Associate Professor, Department of Neurology, Medical College of Georgia

Wayne, New Jersey

Augusta, Georgia

Jim E. Cantalupo

Linda Jenckes

First VP Wealth Mgmt. Advisor & Resident Director, Merrill Lynch

President, Jenckes & Associates

President and COO, MIRATECH Corporation

Washington, D.C.

Tulsa, Oklahoma

Charlotte, North Carolina

Ann Nickman Jacobson Pepper Pike, Ohio Kevin R. O’Sullivan

National MS Society ­— Progress Report 2008



Directors (continued)

National Advisory Council

George J. Gillespie, III

Bruce N. Pfau

Michael Dobbs

New York, New York

Vice Chair ,Human Resources, KPMG LLP

Roger, Arkansas

Clifford H. Goldsmith

Thomas M. Galizia

Principal, The Prendal Company

Deloitte Consulting, LLP

New York, New York

San Francisco, California

June Golin

Montvale, New Jersey Kimberly Phillips Santa Barbara, California

Steven Lipstein

Chicago, Illinois

Brad W. Robbins

President & CEO, BJC HealthCare

President & CEO, Baker Robbins & Co.

Charles W. Goodyear, III

St. Louis, Missouri

Darien, Connecticut

Susan Meltzer

Raymond P. Kane

Los Angeles, California

Port Washington, New York

Peter R. Porrino

Albert J. Kaneb

Global & Americas Director, Insurance Industry Services Ernst & Young LLP

Chairman/CEO, Barnstable Broadcasting, Inc.

Houston, Texas Eli Rubenstein Partner, Goulston & Storrs Boston, Massachusetts John A. Simonetti Ombudsman, Office of the Ombuds Eaton Corporation Cleveland, Ohio Richard B. Slifka CEO, Global Petroleum Corp. Waltham, Massachusetts Robert L. Sowinski President, Diversified Insurance Services, Inc.

Susan Locke Wilkey Hartland, Wisconsin Madeleine Sherak Calabasas, California Milton Stewart Portland, Oregon

Newton, Massachusetts Louis E. Levy West Orange, New Jersey Henry McFarland, MD Chief, Neuroimmunology Branch, NINDS, National Institutes of Health Bethesda, Maryland Richard L. Snyder

Waukesha, Wisconsin Lee Stillwell

Martha E. Candiello

Founder & President, The Stillwell Group

Cherry Hill, New Jersey

Managing Partner, Tykeson Associates/Enterprises

Renee Crown

Eugene, Oregon

Peter G. Tarricone Executive Vice President, Wells Fargo Insurance Group

Wilmette, Illinois Oscar Dystel Oscar Dystel and Partners

Milford, Pennsyvania Donald E. Tykeson

Dennis H. Vaughn Los Angeles, California

Three Bridges, New Jersey

White Plains, New York

President Emeritus

James M. Tidwell

Irving R. Fischer

Mike Dugan

President, Aquarius Management Corp.

Dillon, Colorado

President & CEO, Wedge Corporation Houston, Texas


New York, New York

Honorary Life Directors

Potomac, Maryland


Partner, Cravath, Swaine & Moore


New York, New York

General, USAF, Ret.

Nationwide List of the Society’s Local Offices The National MS Society has national offices in New York City, Denver and Washington, D.C. The Society serves the MS community through a 50-state network of chapters and regional offices, all of which can be reached at 1 800 344 4867 (1 800 FIGHTMS). Alabama

District of Columbia


Alabama Chapter

National Capital Chapter

North Central States Chapter




Mid Florida Chapter

Mid America Chapter

North Florida Chapter

All America Chapter, South Central and Western Kansas Office

All America Chapter, Alaska Office Arizona Arizona Chapter Arkansas All America Chapter, Arkansas Office

South Florida Chapter Georgia Georgia Chapter Mid South Chapter

Mid South Chapter



All America Chapter, Hawaii Office

All America Chapter, Great Basin Sierra Office Northern California Chapter


Pacific South Coast Chapter

All America Chapter, Idaho Office

Southern California Chapter

Inland Northwest Chapter



Colorado Chapter

Gateway Area Chapter

Connecticut Connecticut Chapter Delaware Delaware Chapter

Greater Illinois Chapter Indiana Indiana State Chapter Kentucky-Southeast Indiana Chapter

Kentucky Indiana State Chapter Kentucky-Southeast Indiana Chapter Ohio Valley Chapter All America Chapter, West Virginia Office Louisiana Louisiana Chapter Maine Maine Chapter Maryland Maryland Chapter National Capital Chapter Massachusetts Central New England Chapter

National MS Society ­— Progress Report 2008




New York


Michigan Chapter

Long Island Chapter

Mid South Chapter

Minnesota Minnesota Chapter Mississippi All America Chapter, Mississippi Office

New York City Chapter Southern New York Chapter Upstate New York Chapter North Carolina Central North Carolina Chapter

Mid South Chapter

Eastern North Carolina Chapter


Mid Atlantic Chapter

Gateway Area Chapter Mid America Chapter Montana All America Chapter, Montana Office Nebraska Nebraska Chapter Nevada All America Chapter, Great Basin Sierra Office All America Chapter, Nevada Office Arizona Chapter New Hampshire Central New England Chapter New Jersey Greater Delaware Valley Chapter New Jersey Metro Chapter New Mexico All America Chapter, Rio Grande Office All America Chapter, Panhandle Office

Hampton Roads Chapter

North Dakota North Central States Chapter Ohio Ohio Buckeye Chapter Northwestern Ohio Chapter


All America Chapter, Panhandle Office All America Chapter, Rio Grande Office All America Chapter, West Texas Office Utah Utah State Chapter Vermont All America Chapter, Vermont Office Virginia

All America Chapter, West Virginia Office

Central Virginia Chapter

Oklahoma Oklahoma Chapter All America Chapter, Panhandle Office Oregon

Blue Ridge Chapter Hampton Roads Chapter National Capital Chapter Washington Greater Washington Chapter Inland Northwest Chapter

Oregon Chapter

West Virginia


All America Chapter, West Virginia Office

Central Pennsylvania Chapter Greater Delaware Valley Chapter


Western Pennsylvania Chapter

Wisconsin Chapter

Rhode Island

Minnesota Chapter

Rhode Island Chapter


South Carolina

All America Chapter, Wyoming Office

Mid Atlantic Chapter

North Central States Chapter


Lone Star Chapter

Ohio Valley Chapter

South Dakota



What can you do to move us closer to a world free of MS? What can you do to move us closer to a world free of MS? Register for Walk MS, Bike MS or Challenge Walk, and ask everyone you know for donations. g

g Join the MS Action Network to get e-mail updates on state and federal legislative priorities, plus contact information for the decision-makers representing your area.

Keep up with research news by reading Momentum each quarter and making part of your daily Web routine. (Chapter websites can be reached through the “Find A Chapter” link.) g


Call 1-800-344-4867 to ask about local volunteer opportunities.

g Remember the Society in your will or estate plan; call the National Gift Office at 1-800-923-7727 to learn how. g

“Friend” the Society on Facebook, MySpace or LinkedIn.


Wear orange for MS Awareness Week each March.


Live boldly!

National MS Society ­— Progress Report 2008



733 Third Avenue, 3rd Floor New York , NY 10017 tel +1 212 986 3240 fax +1 212 986 7981

900 S. Broadway, 2nd Floor Denver, CO 80203 tel +1 303 813 1052 fax +1 303 813 1513

1100 New York Ave NW, Ste. 660 Washington, DC 20005 tel +1 202 408 1500 fax +1 202 408 0696 National Gift Office: +1 800 923 7727

NMSS Progress Report  

NMSS Progress Report

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