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2012 Annual Report NF Australia Limited Together...improving the lives of those affected by Neurofibromatosis Together...reaching for a cure

ABN 26 148 815 534


inside From the Chairman & CEO

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Radio Rentals & Rentlo Sponsorship

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The coming year

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Delivering crucial services to Neurofibromatosis patients - Children’s Hospital Westmead

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Racing for NF - Fundraising and awareness

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One family’s journey with Neurofibromatosis

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Black and White Gala Dinner 2012

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The Family Camp 2011

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Our financial supporters

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Our supporters and medical advisors

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Financial Report for the year ended 30 June 2012

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NF Australia and the Children’s Tumour Foundation of Australia provide care and support to those impacted by Neurofibromatosis, three genetic conditions known as NF (NF1, NF2 and Schwannomatosis). We raise funds for research and support programs, provide information to families and friends, educators and health professionals, and assist those impacted to find help and friendship within the NF community

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From the Chairman & CEO 2012-2013 ANNUAL REPORT

The last twelve months have been stimulating and enriching as we have embraced the change of structure and further defined our future direction. Although much has changed the key character and focus of the organisation remains unwavering due to the efforts and support of the directors, staff and supporters.

This year we have continued to build on our existing positive relationships – with medical researchers and clinicians, businesses and members of the NF community. In addition we have been very focused on building our resources and funding to ensure that the many concepts and programs on our agenda become a reality. Many of these are not new, but history has shown that good ideas, hopes and aspirations need sustainable funding and and a consistently strong focus to guarantee success. As a priority we are working toward providing better support and services for those impacted by NF, particularly for those newly diagnosed. It is also essential that we invest in sound research that can potentially assist those who have lived with the condition for a lifetime, and we must continue the search for a cure. Our relationship with Professor Kathryn North and her team at the NF Clinic at Children’s Hospital Westmead continues to grow in a very positive manner, and details of our affiliation are featured in this report. An important part of our work continues to be raising the profile of the organisation and the public visibility of NF. A key element has been the development of the Children’s Tumour Foundation of Australia branding. A simple but emotive logo and trading name helps us to engage more easily with the community in range of ways. People are willing to listen, and we work towards a time when “Neuro-what?” no longer defines neurofibromatosis. A major organisational focus now is on fundraising. To achieve the best return with limited resources we have chosen to develop a small number of key events so we can concentrate our attention on those that generate significant funds and raise awareness. We are also committed to grow our supporter base, regular donor network and non-event sources of income including appeals, bequests, Trusts and Foundations. This year we have implemented a new fundraising and relationship management program called ThankQ, which will provide us with major efficiencies and a powerful donor development tool when it is fully operational p2 Annual Report 2012

and the migration of data from a range of electronic and paper sources is completed. It has been a delight to see how members and supporters have embraced the opportunities to fundraise for the cause using new online portals, such as Everyday Hero and Go Fundraise, along with social media including LinkedIn and Facebook. There is no better example of fundraising this way than Donna Adams who was the first of our members to set up a page on GoFundraise to encourage her friends, family and workmates to donate as she ran a grueling full marathon in Canberra in April. To raise funds and awareness of NF Donna set herself a target of $2,500 and raised an amazing $8,500. You can read a little more in this report about Donna and other member’s efforts this year, as we continue to encourage member involvement in other fundraising and community activities at a local level. The big news is the announcement made by Gillian Watson, National Marketing Manager of Radio Rentals at our Gala Dinner that Radio Rentals, a part of the Thorn Group, has taken up a major national sponsorship of the Children’s Tumour Foundation of Australia (CTF). This partnership engages CTF with a company that has been operating for 75 years, has over 80 outlets all around Australia, and staff in cities and regional towns who will be helping us to raise funds and raise awareness of NF. Other parts of the Thorn Group will also be adopting CTF as their major charity including Thorn Equipment Finance and Thorn Financial Services. We take this opportunity to thank our long term corporate supporters who each year provide significant pro-bono services, including Freehills, Crowe Horwarth, Consultus and the Thorn Group. We were delighted to be able to host representatives of these companies at our Gala Dinner in June as a small way of saying thank you. We also widened our group of corporate supporters this year, with 21 companies taking out a sponsorship of the Black & White Gala Dinner, at various levels,

and inviting clients and colleagues as their guests. Special thanks go to Pacific Property Management, Thorn Group, Acer and Dixie Cummings who were Diamond and Platinum sponsors. Our wonderful MC Paul Martell and songstress Jane Scali who entertained us also donated their services for the event. Appreciation is also expressed to Alison Alford and her daughter Katie who flew up from Melbourne to make the major presentation of a cheque for $150,000 to Dr Simone ArdernHolmes of the Children’s Hospital Westmead on our behalf. NF Australia is Trustee for the Lisa Palmer Foundation, and during the year this substantial bequest continued to fund vital research at the Children’s Hospital Westmead. This year we received one bequest of $9,280 from the Estate of Peter Fitzgerald. While we are developing our fundraising and events, it remains a priority to deliver services to our members and those in the community impacted by NF. Our annual Family Camp was held in September 2011 at Stanwell Tops just south of Sydney and is a key event on our calendar. It provides a vital link for families to share their experiences whilst enabling them to, enjoy some fun activities In August we moved office from Lindfield to Drummoyne and our new premises provide significantly more space. We are grateful to our landlord, and neighbour, Mr Jim Jeffrey for providing a reduced rental and a range of furniture and fittings. In addition to the extra space these premises are also more centrally located and assist in lifting our profile and professional positioning which is important in dealing with corporate sponsors, government bodies and other organisations. In July 2011 Dorothy Zammit joined our staff and we welcomed Carrie Elton shortly afterwards in September. The recruitment was undertaken by Tony Parkin of Consultus on a pro-bono basis and was greatly appreciated. Both brought a range of skills and experience to NF Australia to spearhead the transition into a very professional organisation with a focus on developing a program of serious fundraising that will create a sustainable financial base. Unfortunately Dorothy left us in May 2012


John Hughes, Chairman

Carrie Elton, CEO

due to a change in her family circumstances, and we wish her well in her new life in NSW’s Hunter Valley.

the development of a plan to implement State Support Committees within the new NF Australia structure.

Following Dorothy’s resignation we undertook a further analysis of the Company’s needs Following Dorothy’s resignation we undertook a further analysis of the Company’s needs and have engaged the services of Mr Arun Arunasalam as contracted Finance Officer and have commenced dialogue with the Children’s Hospital Westmead to fund a qualified Support Officer position based within the hospital. This is our first tentative step in providing a strong national support system for those impacted by NF.

We are also pleased to report that Maria Foundas is rejoining the board. Maria has a wealth of business experience and extensive networks. Maria, a former committee member, was very involved in the fundraising events and efforts of the Association organisation in past years.

We are also delighted that we have been able to launch a new website which was provided at no cost by Smallworld Social, a Melbourne based social media consultancy – again a wonderful show of support. The site provides a simple cloud-based platform that will allow us to add further fundraising and communications applications as we develop them.

Governance We have continued to review our priorities and formulate clear objectives for NF Australia. Our new governance requirements as a company have included the expansion of the board to include specialist skills. We recently welcomed two new board members, Nirmal Hansra and Bill Ellerton. Nirmal who is an experienced non-executive director and former CFO of leading national and international organisations and has taken on the role of the Chair of the Finance, Audit and Risk Committee. He, and brings significant corporate experience and knowledge along with. ‘not for profit’ board skills. Bill’s passion to support the work of NF Australia follows his granddaughter’s diagnosis with NF1. He brings both business skills and considerable ‘not for profit’ board experience as a former Chairman of Heartkids Victoria, and director of Heartkids Australia. His interests include fundraising, social media and support networks. Bill is spearheading

Vale George Armstrong Without the foresight and passion of George Armstrong more than twenty-five years ago, NF Australia would not exist today. George set up the first NF support group in Australia, which went on to become the NFAA. George passed away in August this year, and our heartfelt sympathy goes to his family, along with our thanks for his vision, persistence and support over the years.

During the year Maree Slater resigned from the Board and we sincerely. We thank her for her energy and efforts during her term. Catherine Strassberg has been granted a leave of absence while overcoming health issues and we hope to see her back again soon. Finally, our thanks go to Winston Chiu who served as Chairman in an unsettledduring a time of tremendous change and challenge. Winston stood down as Chairman in November, but remains a committed director. The members of the Board of NF Australia and its staff demonstrate great commitment. We thank them for their dedication and contribution to the growth of our organisation.

Our financial performance We have had some challenges in 2011-12 as we entered the first year of our expanded organisation; the employment of two full time staff members and a key activity, the Sydney Fish Market auction, being postponed until the new financial year. Both the board and management have responded to the challenge, and the financial success of our major fundraising event which raised more than $135,000 demonstrates the possibilities going forward for NF Australia. This year we were able to provide $161,281 in grants for research and support services.

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A snapshot of the organisation’s financial performance in 2011-2012 Here is a snaphot of the performance of NF Australia and its controlled entity. The full financial statements for the company can be found later in this report. Income 300,000

FY 10

250,000

FY 11

200,000

FY 12

100,000 50,000 -

For Radio Rentals and Rentlo the partnership is part of Thorn’s corporate social responsibility to establish a meaningful partnership with a professional and dnamic chairity and will include supporting store programs and in-store events, local promotions and media opportunities, and merchandising sales both in the major city centres and country regions.

Opex, Grants and Support Services

200,000

FY 10 FY 11 FY 12

150,000

We are excited that Radio Rentals and Rentlo, part of the Thorn Group, have announced a major sponsorship of the Children’s Tumour Foundation of Australia (NF Australia). Gillian Watson, National Marketing Manager for the group (pictured above) announced the sponsorship at the Black & White Gale Dinner in June. The sponsorship will be inclusive of national, state and local initiatives and programs to benefit those impacted by NF no matter where in Australia they live.

150,000

250,000

Radio Rentals announces major sponsorship of the Children’s Tumour Foundation of Australia

Stores will be encouraged to pursue further engagement by identifying projects within their local community for funding, encouraging schools or service groups to participate, or speak to key community members. This partnership provides a great opportunity to raise awareness of NF and funds to make a difference.

100,000 50,000

TM TM

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The coming year What’s next as we look into our exciting future.

In 2012 NF Australia, incorporating The Children’s Tumour Foundation of Australia, took a major step forward in its development – moving from concept to action and laying the foundations to become a truly national organisation. In 2013 we will continue to work toward our aims to: - achieve financial sustainability; - support those impacted by NF; - demonstrate our relevance to our stakeholders, including members, donors and the community; - fund research to find a cure; - building long-term strategic partnerships; and - enhancing our reputation and position across Australia

Innovative events As part of our platform for achieving financial sustainability we are developing a program of four key annual events designed to raise funds and awareness amongst different areas of the community. Our successful Black and White Gala Dinner will be held during NF Awareness month in May 2013. The annual Sydney Fish Market fundraiser is to be further enhanced and expanded to become a Seafood Festival which will encourage a much wider participation through traders, retailers and their customers. Two new events are also in the planning stage. Firstly a Celebrity Christmas Tree promotion and auction, hopefully in conjunction with a major retailer or shopping centre group, is also being developed as the centrepiece of festive season activities. Then as a second new initiative, negotiations are underway to adapt of one of the successful international NF events from our overseas colleagues to Australia. We are delighted with the support and encouragement we have received from The Children’s Tumor Foundation in the USA, NF Inc, also based in the USA and the UK. Neurofibromatosis Association This international cooperation also goes to underscore our mission of: Together …. Improving the lives of those with NF Together…. Reaching for a cure In addition we are refining the successful Treadmill Challenge fundraiser undertaken by Radio Rentals in 2010 with the aim of it becoming a corporate team building activity.

A visible presence

as well as expand our merchandise ranges for fundraising. In addition we have developed a well branded ‘shopping centre’ display, with a counter and banners, which will be used in public promotions and activities. Further to this we are seeking to develop a relationship with marketing and advertising professionals to assist us in developing media campaigns and strategies. Of special importance is our partnership with Radio Rentals which provides a tremendous opportunity and means for promoting Neurofibromatosis and The Children’s Tumour Foundation of Australia across the nation. Work has already commenced with PR Edge, Radio Rentals’ public relations agency, to ensure we achieve optimum outcomes for both our organisations.

Supporting our community A key focus of our organisation is to support those impacted by NF and our highest priority for the coming years is the placement of qualified Support Officers in Children’s Hospitals across Australia. This program is already underway with the recruitment of our first Support Officer based at The Children’s Hospital Westmead. Funding is the key to extending this initiative to other states and hence our need to create a strong and sustainable financial base. A Youth Empowerment Grant of $10,000 from the QBE Foundation will fund a pilot youth training program that is planned to take place at the Sydney Fish Markets. The two-week program for young people over the age of 15 with NF and their peers who suffer from disadvantage and disabilities aims to provide participants with the experience and confidence to go to work. Partners in the program include TAFE, Sydney Fish Market, retailers at the Markets, hotels and restaurants and warehousing and distribution companies. In order to develop a truly national organisation it is essential that we have strong relationships with members and other key stakeholders in all states. Further to this we are developing a plan to establish State Advisory Committees in each state and territory to facilitate support, assist in fundraising and provide input and advice to the Board. This is seen as an extremely important initiative for our development and we look forward to working with other NF groups to achieve a positive outcome on behalf of all those people impacted by NF. The popular Annual Family Camp remains a key event on our calendar and will continue to provide a vital link for families to share their experiences.

We will continue to build our online and social networking presence in 2013, particularly through our new website, Annual Report 2012 p5


Children’s Hospital Westmead Delivering crucial services to neurofibromatosis patients NF Australia continues to build a stronger relationship with Professor Kathryn North and her team at the NF Clinic which she set up more than twenty years ago.

“Through a combination of research and awareness raising, and greater funding through bequests and donations, it is hoped that a cure for NF will one day be attainable.” John Hughes, Chairman NF Australia

For many families dealing with neurofibromatosis (NF), the work of Professor Kathryn North and her team at the Children’s Hospital Westmead is irreplaceable. The Neurofibromatosis Clinic, first established by Professor North in 1991, is the only specialised clinic of its kind in Australia, and it provides a unique set of services for NF sufferers. “The work Kathryn North and her team do is invaluable,” said Alison Alford, whose daughter Katie has NF. “Kathryn is the leading doctor in this field and if her team packed up and moved I’d hate to think what would happen to NF in Australia.” There is good reason Professor North’s team gets such heartfelt responses. Professor North is the Douglas Burrows Professor of Paediatrics and Child Health at the University of Sydney as well as Head of the Institute for Neuroscience and Muscle Research at the Westmead Children’s Hospital. The Neurofibromatosis Clinic she set up over twenty years ago now caters for over 1200 families with NF1 and 40 families with NF2, two of the most common forms of NF. While providing much needed support to NF patients, the work done at the Clinic also makes a significant contribution to the knowledge and treatment of NF. Research at the Clinic has defined the cognitive phenotype associated with NF1, leading to a better understanding of the learning difficulties and cognitive deficits associated with NF. Other research projects have identified early detection and new techniques for assessment of optic gliomas, a common and debilitating symptom of NF where tumours grow on the optic nerve of the eye. Clinic research has also identified the basis for bone defects in NF1 sufferers, including developing therapies to improve bone healing. In addition, the Clinic has developed a program of specialised meetings that cater for the needs of NF sufferers and their families. Weekly NF clinics allow patients to meet with specialists such as geneticists and neurologists, as well as an established group of affiliated subspecialists who patients can be referred to for additional assessment. The weekly NF Education Clinic focuses on working with children and their parents around the management of learning difficulties. The Clinic also holds an annual information day for patients and their families, the most recent saw over 200 people attending.

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While these have been exciting developments there is still much to be done. Detecting and managing optic gliomas is a challenging aspect of the disease. The Clinic is currently looking to purchase a new mobile device for detecting optic gliomas in young children and predicting which will progress and need treatment. The machine is likely to have a profound impact on reducing blindness in NF sufferers, and will be used as part of an international research project. It is being purchased through a $150,000 grant from NF Australia including funds raised by Chris and Alison Alford. Generous bequests and fellowships also contribute to the ongoing work of the Clinic. NF Australia, as Trustee for The Lisa Palmer Bequest, has committed nearly $500,000 to fund a range of ongoing research activities that use MRI and PET to identify and survey tumour transformations and implement treatment programs. Funds administered through the Sherman Fellowship are used to examine problems associated with learning difficulties in NF patients, this includes a clinical trial examining the benefits of stimulant medication as a treatment for attention and working memory impairments in children with NF1. These funds, and sourcing new funding opportunities are incredibly important to the ongoing research and treatment of the condition. Over the years NF Australia has developed a close relationship with the Neurofibromatosis Clinic, proactively pursuing funding sources to secure equipment and other related research costs that can ensure the work of the Clinic continues into the future. NF Australia also provides critical information and support to patients and their families as they come to terms with the disease and its impacts. NF Australia’s chairman, John Hughes said “Through a combination of research and awareness raising, and greater funding through bequests and donations like those of the Alford’s (see article on p.8), it is hoped that a cure for NF will one day be attainable.” In the meantime, providing high quality, supportive services will continue to be a priority for both the Neurofibromatosis Clinic and NF Australia.


On the courses, more and more of our members are donning bright singlets advertising Neurofibromatosis as the purpose behind their pain Though her run in the Canberra Marathon was over in just a few hours, the more than $8,000 raised for the Children’s Tumour Foundation of Australia by NF Australia member Donna Adams will have an effect that lasts much longer. Adams, whose young son Ben was diagnosed with NF1 in 2010, was inspired to undertake the grueling marathon to raise funds to make a difference and raise awareness of the condition. Setting herself a goal of $2,500 she far ex¬eeded her expectations.

Carolyn Hill surpassed her goal of raising $500 when she participated in the Pub to Pub run on Sydney’s northern beaches, with more than $2,000 donated to support her effort. In Kiama NSW, Julia Szulerowski, has been busy organising Run Kiama for NF, with a fundraising page for the event on Go Fundraise, Julia is also using online registration site Register Now to make it easier for participants to register for the event. But marathons and fun runs are not the only way to raise money for NF Australia and the Children’s Tumour Foundation of Australia using these sites. There are also cycle or swim events. For those who don’t enjoy physical activity, why not consider getting sponsored for something else? Set up your own page on Go Fundraise like Megan Roberts who is raising funds for NF by not drinking alcohol all year.

Racing for NF The signs of NF are becoming more familiar in marathons, fun runs and on the race tracks these days. On the internet, social networking sites have facilitated fundraising, as some of our dedicated members have discovered.

After setting up a fundraising page on Go Fundraise, she emailed family, friends and colleagues and linked to her Facebook page asking that they sponsor her in the event. Her request “You can help me make a difference with a donation, big or small, everything counts!” was spot on. At last count $8,260 had been raised! NF Australia/ The Children’s Tumour Foundation of Australia is a registered charity with the two key online fundraising sites – Go Fundraise and Everyday Hero - that are affiliated with most major running events in Australia. Using sites like these is one of the most popular ways in which people around the world are raising money for their chosen cause. There are many charity runs set up all year round that you can take part in. In fact, even running is not obligatory, in many walking is also an option for those who don’t enjoy running! New NF Australia Director Bill Ellerton from Gisborne South in Victoria, and his wife Sheila took part in Run Melbourne in July. To encourage donations and sponsorship Bill has been spreading the word through his considerable LinkedIn network raising awareness as well as funds.

Images Facing page: Professor Kathryn North This page: Donna, Ben and Dean Adams

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A Journey with Neurofibromatosis One family’s story Chris and Alison Alford were first exposed to NF when their daughter Katie was diagnosed with the condition nearly three years ago. Alison, like many others had never heard of it, and getting good quality, practical and supportive information was difficult.

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“You can’t describe what NF Australia does. They’re invaluable.” Alison Alford

Ask Alison Alford about being a family that lives with neurofibromatosis (NF) and she gives a poignant analogy. You’re either dodging bullets, getting the all clear from eye tests or lump checks, or you’re trying to out run NF by doing intervention activities that will hopefully minimise the conditions’ effects. Chris and Alison Alford were first exposed to NF when their daughter Katie was diagnosed with the condition nearly three years ago. NF is a genetic disorder where tumours grow on a person’s nerve tissues. These tumours can occur just under the skin but can also grow on nerves in the brain, eye or spinal cord causing considerable long-term impacts. The most common form is called NF1, and while one in 3,000 children suffer from NF1, the condition is still largely unknown and under resourced. When Katie was diagnosed with the condition, Alison, like many others had never heard of it, and getting good quality, practical and supportive information was difficult. “Imagine how hard it is to sit in a doctors chair with your just turned three year old by your side and being told that your child has a genetic disorder that you’ve never heard of, that there is nothing you can do about it and there is little, if any, suitable treatment for its endless list of symptoms. And then be told to come back next year. I can’t explain the numbness or feeling of loneliness I felt when I walked out of that doctors room.” As Alison relates her experience of first being told Katie had NF you get a sense of the physical and emotional challenges dealing with this condition can present, but there is a steely determination in the way Alford’s have confronted the condition. “The first six months were a real grieving process of trying to come to terms with it. I remember sitting in the kitchen one day and thinking I can’t feel like this anymore, I have to do something. I thought I can’t find a cure, I’m not a scientist, but I knew there were two things I could do, one was to raise awareness and the other was to raise money,” said Alison.

Alison’s husband Chris is Victoria’s leading harness racing driver. Using his high profile, the Alford’s decided to go public with Katie’s disorder, hoping to raise much needed funds but also increase public awareness around the issue. “We decided that as May was NF awareness month, Chris would race during that month in the NF colours. We set out to raise $10,000. I remember saying to Chris if we raise $10,000 that would be amazing. Two days into it we had raised $20,000 and by the end of the month we’d raised over $60,000.” Alison says the support they received was overwhelming. Harness Racing Victoria’s (HRV) race callers talked about NF during Chris’s races and the HRV board sent out flyers asking for donations. People were asked to donate money for each winner Chris rode that month (a whopping 31!), and there was a dinner with a raffle and prizes. “The support was just amazing, people we hadn’t talked to for years would come up and give us $500, an old pensioner gave Chris the last $20 in his wallet, that spirit was just overwhelming.” The money the Alford’s raised, along with a matched donation from NF Australia, will purchase a Mobile Spectral Domain Ocular Coherence Tomography System, or in layman’s terms a machine that will be able to diagnose optic gliomas in children. Alison and Katie recently traveled to Sydney and presented a cheque for the machine at the NF Australia annual fundraising event, the Black and White Gala Dinner. Alison jokes she was “Katie’s handbag for the night”, the five year old taking her role in the event in her stride. The machine will be the only one of its kind in Australia and will be part of the Neurofibromatosis Clinic at Westmead Children’s Hospital. While Katie doesn’t currently suffer from optic tumours its presence looms large for NF sufferers. “Optic tumours are our biggest fear at the moment, you’re most at risk up until the age of seven and touch wood Katie doesn’t have any yet. I was thinking the other day that I could almost

handle anything but having your child loose their sight … we’re just so wrapped that we could help get this machine, and I really think it will save kids from losing their sight.” To get to this point has been quite a journey for the Alfords. Alison remembers in the early days turning to Google to try and get information about the condition. She was overwhelmed by the amount of worst-case scenario experiences of living with NF. “I really needed a voice of reason at that point, someone to say hang on a minute, you’re reading some of the worst possible outcomes, these aren’t run of the mill cases”. Thankfully, Google also led Alison to NF Australia who focus on supporting those with NF and their families, including promoting and raising funds for further research into the disease. “You can’t describe what NF Australia does. They’re invaluable. There aren’t a whole lot of doctors with basic NF knowledge, let alone the high level of knowledge that the doctors at Westmead have,” said Alison. “The scary thing with NF is that you don’t know what the future holds. We don’t know what Katie’s long-term problems are going to be. NF is a wait and see condition and I’m not very good at wait and see,” said Alison. Despite all this Alison can still see the humour in many of their experiences. “When a mother at Katie’s kinder said to me, ‘Gee the NF has really turned Katie’s feet outwards’, I had to look at her and say, ‘Well it would help if she had her shoes on the right feet’. And with a laugh Alison has provided a gentle reminder about living with NF, it’s not always about the condition, sometimes kids just put their shoes on the wrong feet.

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THE BLACK & WHITE GALA DINNER A CELEBRATION

A five year old with NF nearly stole the show at the inaugural Black and White Gala Dinner at Doltone House, Darling Island Wharf on June 22. Pint sized Katie Alford was a fine ambassador for the Children’s Tumour Foundation of Australia travelling from Melbourne with her mother to present a cheque for $150,000 to the Children’s Hospital at Westmead on the night.

With auction items ranging from a furniture package to fully furnish a home, to travel, art and great experiences, there was something for everybody and every budget. MC Paul Martell promoted the auctions throughout the evening and bidding was brisk in both the silent and live auctions. The Helping Hand Group was a marvellous support, ensuring that the auctions ran seamlessly. John Gale from Dixie Cummings was a great assistant auctioneer with his impromptu appearance, ensuring that the furniture package donated by his company achieved $10,000!

More than three hundred supporters packed in to the elegant Darling Island Wharf venue to experience a night of fine food and wine mixed with fun and entertainment. On arrival, guests were greeted with champagne and canapés, courtesy of Doltone House, followed by an exceptional three-course dinner.

We had a special group of young volunteers from the University of Technology Sydney Event Management course who did a wonderful job of meeting and greeting guests, selling raffle tickets and assisting with the auctions. Their participation and support was greatly appreciated and they were great ambassadors for UTS.

From the pre-dinner music by Flyte to the featured performances by Jane Scali and Paul Martell, the evening’s entertainment was as brilliant as promised. After the fundraising wrapped up guests were able to take to the dance floor to the beat of Flyte.

Thanks to the support of our Sponsors, Auction and Prize Donors and dinner guests the Black & White Gala Dinner raised more than $135,000.

The Black and White Gala Dinner is the major fundraising event of The Children’s Tumour Foundation of Australia, and funds raised on the night were vitally important in enabling NFA to recruit our first Support Officer to be based at The Children’s Hospital Westmead. The live and silent auctions always provide lots of action, but on this special occasion one hundred and twenty penguins provided the night’s most anticipated reward. The cute penguins were the raffle tickets in our special $100 a ticket Penguin Raffle. With a set of beautiful South Sea Island pearls valued at $27,000 kindly donated by John and Robyn Hughes, as the prize the tickets were quickly sold out. We are grateful for the generous support of so many people who donated prizes and those who participated so generously on the night.

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“The generosity of our donors and sponsors was remarkable, I cannot thank them enough. The funds raised will go a long way to assisting us in providing Support Officers at the children’s hospitals for families impacted by NF. It is an amazing outcome,” said Carrie Elton, CEO of the NFA and the Foundation. We’d like to say thank you for your support. For those who were not able to join us this year, watch out for the date for next year’s event in May 2013.


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6 1. Gillian Watson presents Sheila Ellerton with her South Sea Island Pearls2. Guest arriving3. Alison, and Katie Alford with MC Paul Martell 4. Jane Scali and Paul Martell performing 5. UTS volunteers selling Penguin Raffle tickets 6. Dinner guests take to the dance floor Event images by Al Dodge

The Children’s Tumour Foundation of Australia thanks the following Sponsors and Supporters

The Children’s Tumour Foundation of Australia thanks the following Prize Sponsors and Supporters

Diamond Sponsors TM

Platinum Prize Sponsor

Platinum Sponsor

Axis Events Daniel Noble Dixie Cummings Foundas Family Go Get Gregory Guy Sebastian Helping Hand Group Jeremy Hodder - Cooley Auctions

Gold Sponsors

Silver Sponsors

John & Robyn Hughes Manta Restaurant McGrath Real Estate - Coogee Peter Overton Pinpoint Rolls Royce Sandy Brown - Microhire Sydney Seaplanes Virgin Australia

A special thank you to... Bronze Sponsors

Di amond Donors John & Robyn Hughes

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Event Sponsors

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Invitations printed by

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Sydney Fish Market

Jane Scali & Paul Martell

and Our Musical Entertainment Flyte

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The Family Camp A highlight of the year The 2011 Family Camp was held at the Tops Conference Centre at Stanwell Tops near Wollongong from 16th to 18th September.

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Highly anticipated by families the 2011 Family Camp was a great success. The Tops Conference Centre got the thumbs up. The self-contained rooms with ensuites, privacy for our group, enjoyable activities and lots of good food and great company were the key factors that participants commented on. On arrival on Friday evening attendees were welcomed at a barbeque organised by Geoff Bottom. Geoff brought a fabulous spread all the way from Blayney which really set the mood for the rest of the weekend. Hilda Crawford was the guest speaker on Saturday. Hilda, a qualified genetic counsellor, has come to Australia from the UK. She outlined her experience over more than 10 years with the NF Association in Ireland. Hilda volunteered her time and knowledge and made herself available for the whole of Saturday, for which we extend our sincerest thanks. Activities included the “giant swing” (for those who were brave enough), karting, archery and some orienteering, all of which were very popular. A Trivia Night on Saturday was a big success and brought young and old together for a great night of frivolity! Mandy Brown and Margaret Dingle set up a craft room in the laundry which was a great idea and provided constant entertainment to all different age groups. Mandy has been donating craft items to the camp for several years but this is the first year she attended herself. She did a wonderful job supervising and helping the children with their creations. Of course without the wonderful atmosphere created by our participating members, the camp just wouldn’t be the same and wouldn’t prove so popular. Thanks to all of our campers for their willingness to make friends and share their experiences. It is the positive energy which makes the camp such a worthwhile event. Activities like this do not happen without our volunteers. A special thanks to Margaret Dingle who tirelessly volunteered so much time and effort in organising a most successful camp. Thanks also to Geoff Bottom, Dorothy Zammit, Mandy Brown and the wonderful staff at the conference centre.

1

Our guest speaker Hilda Crawford’s journey to the unknown is making a positive impact on NF services in Australia It is a long way from Belfast to Sydney and when genetic counsellor Hilda Crawford and her family made the move it was a move into the unknown. She says it seems like a very long time ago now, but in the year 2000 Hilda was appointed as the first Neurofibromatosis Specialist Advisor in Northern Ireland, a post funded by the UK Neurofibromatosis Association and based in the Northern Ireland Genetics Centre in Belfast. The post was part of the NF Association network of Specialist Advisors based throughout the UK. The role was primarily to support families, provide up to date information, visit schools and coordinate care for people affected with NF1 and NF2. Working with the medical staff in the Genetics Department in Belfast, Hilda and her colleagues were able to start a specialist NF clinic which has been running successfully since 2000. The clinic sees patients of all ages with NF1 and NF2 from across Northern Ireland. Hilda said “As I prepared to move to Australia, I gave up my post in Belfast and wondered what I would do when I came to live here.” At around the same time, research funding became available from the Northern Ireland Genetics Centre and The University of Ulster. This purpose of this funding was to carry out a study to investigate the health and well-being of adults with NF1. This is an area where more research is greatly needed to increase our knowledge and understanding of NF1 in adulthood. We do not know enough about the health needs of adults with NF1 or the health care adults with NF1 receive after they are discharged from children’s services. Hilda added “We hope to use our findings from the study to identify ways in which health care can be improved for adults with NF1.”

2

Hilda says she is now fortunate to be able to carry out this research study here in Australia, and especially pleased to be working under the direction of Professor Kathryn North at the Children’s Hospital at Westmead. A number of years ago she heard Professor North give a talk about Learning Problems in NF1 at a conference in Manchester in the UK. Hilda and her colleagues were delighted to have this opportunity, as she is recognized as a world expert in Neurofibromatosis, and she started what is now one of the biggest Neurofibromatosis clinics in the world at The Children’s Hospital at Westmead. Little did she know as she sat in the lecture hall, that she would one day have the opportunity to carry out research in Professor North’s department, The Institute of Neuroscience and Muscle research at The Children’s Hospital at Westmead. As Hilda says this study represents an exciting opportunity to work collaboratively between centres, to share experiences and challenges, and ultimately to work towards improving health care and services for adults with NF1.

For more information about the NF1 in adults study visit nfaa.org.au

1. Campers getting ready to go Karting2. The ever popular Craft Room 3. Hilda Crawford

3

Annual Report 2012 p13


OUR FINANCIAL SUPPORTERS OVER $20,,000 John & Robyn Hughes $5,001 - $10,000 Acer Estate of the late Peter Fitzgerald QBE Foundation $2,501 - $5,000 Albury High School Year 12 $1,001 - $2,500 Charles Cupit Nirmal Hansra Maree Slater Ward Family Foundation $501 - $1,000 Anthony Ball David Bell Rhonda George Le Montage Lord Mayor’s Charitable Foundation Nick & Lisa Matsis $251- $500 Fay and Henry Adams Dean Adams Greg Boydell Carroll Directories Mary Collier Gippsland Grammar Margaret Hart Michael Osborne Brian Shaw Tas Foundation Tyco Electronics Toula Xenos

$101- $250 Donna Adams Brad Adams Alison Alford Ron & Rhonda Bolden Kylie Brown R J Chaplin Victor Clarke Robert Cloughton Dr G Davidson Susan De Sousa Hao Doan Brad Dowling Carrie Elton Graham Harris Peter Harris Robert Hitchcock Huff and Puff Group Simon Hughes Robyn McKeown Ian Taskis Debbie Wilcox

$1-100 John Adams Sally Adams Helen Anderson Philippa Ardile Andrew Baker Effie Balomatis Charity Baltazar Bar Luca Christopher Barrington p14 Annual Report 2012

Rod Bassi Glenda Beale Renae Beer Hans Berger Susan Boucher Peter Braithwaite Joshua Brassington Loretta Cairncross Guy Cannon Michelle Carlton Anne Carmody Jill Carroll Melissa Cassidy Chocolat Mark Cleary Neville Clement Phil Cliffe Tanya Clift Deborah Cogin Sylvia Collier Stephen Cookson Trevor Coombes Debbie Cooper Alicia Cracknell Casey Crowle Gaye Daniels Heidi Davidson Sarah Davis Peter & Lorraine Desmond Irene Dickie Pat Dimarti Judith Dingle Phil Dunne Matthew & Megan Ellerton Bill Ellerton Mark Elrick Tracey Finlay David Fintan Karen, Wayne & Jayden Finucane Ingrid Fry Sylvia Gallagher Rob Garland Peter Garlick Johnny Gebrael Tess Glasson Kelly Gleeson Stephen Glowery Sonia Grant Michael Graves Cherrie Gray Jenyl Hall Ian Harper Sally Higham Carolyn Hill Sandra Hodgen Gauld Lindy & Craig Holland Melisha Hughes Paul Hutchings Julie Hutton Mario Iezzi Aurelie Jacquet Louise Johnson C Jones DianaJones Kent Jones Sender Kavka Rachel Kelly Anthony Kendrick Patrick Kenny Lewis King Caroline L Gareth le Clezio

Barbara Leabon Lintel Forge Pty Ltd ATF Hardy Family Trust Barbara Locke Wendy Lowell E Lowndes Niamh Lysaght Geoff Mansfield Edel McCoy Rajesh Mehta Damien Michot Leanne & Hannah Moffatt Elsie Morgan Peta Morris Kara Muecke Catherine Nolan Lorna Parlato Keith Parris Pathy Pathmanaban Lindsay Patterson Brian Pereira Francis Pienaar Michael Plon Rosemary Pynor Trang Quach Melissa Retallick Brian & Barbara Ridgewell Megan Roberts Karen Ross Leah Russell Drew & Samantha Sandford David & Chrissy Sceats Sanjay Sharma Tim Sillcock Karen Smith Deborah & Jessica Smith Beverley Smith Cherie Smith Gavan Smythe Jenny Spain David Speranza Paul Stanley Brenda Steinback Catherine & Fred Strassberg Judith Taylor Dr Paul Thomas Sienna Thompson Luke Thrum Nhu Truong Josephine Valenti Kathryn Wakelin Anthony Walsh Jack & M Waterfield Weston Family Margaret Wetton Anthony Whalen Adrienne White Robyn Williams Kathy Williamson Kevin & Margaret Wilson Danni Wilson Amanda Wilson David Wilson Sue Wingate Valerie Witchell Meghan Woodham Margaret & Ian Wright Steven Wright Dorothy Zammit


THANKS TO OUR CORPORATE SPONSORS & SUPPORTERS

OUR MEDICAL ADVISORS Professor Kathryn North The Children’s Hospital at Westmead Dr Meredith Wilson The Children’s Hospital at Westmead

A very special thank you to our NF Support Groups across Australia and the members who volunteer to be the point of contact in their area.

Dr Alison Colley Liverpool Hospital Dr David Mowat Sydney Children’s Hospital Dr Yemima (Mimi) Berman Royal North Shore Hospital, Sydney

TM

TM

HELP US TO MAKE A DIFFERENCE Our work is made possible by the contributions of many individuals, organisations, corporation and philanthropic organisations. Your support will help ensure that the Children’s Tumour Foundation of Australia reaches its full potential. Children and families impacted by Neurofibromatosis are the beneficiaries or our work, and your donation will help us to continue the search for a cure, and to provide better support and services for those impacted by NF, particularly for those newly diagnosed. Donations to NF Australia are tax deductible BEQUESTS You can make a difference to the lives of thousands of others by leaving a bequest—a donation in your Will A bequest will help us to provide the best possible support to those with NF and fund life saving research and the search for a cure.

Gallagher’s Insurance Brokers Harness Racing Victoria Trofe Australia SUPPORTED BY NSW HEALTH

Your bequest, whether large or modest, is a lasting and meaningful gift to future generations If you are considering making a bequest to NF Australia / The Children’s Tumour Foundation of Australia contact Carrie Elton on 02 9719 3356 or email info@ nfaa.org.au and register your details and we will send an information pack

Annual Report 2012 p15


NF AUSTRALIA ABN 26 148 815 534 AND CONTROLLED ENTITY

FINANCIAL REPORT FOR THE YEAR ENDED 30 JUNE 2012 DIRECTOR’S REPORT Your directors present their report on the company and its controlled entity for the financial year ended 30 June 2012.

Directors The names of each person who has been a director during the year and to the date of this report are: Date Appointed

Date of cessation

A

B

J Hughes (Chair)

4 Dec. 2011

-

6

7

G Bottom

4 Dec 2011

-

6

7

W Chiu

17 Jan 2011

-

6

7

B Dowling

17 Jan 2011

-

7

7

R Pirreca

17 Jan 2011

-

7

7

C Strassberg (leave of absence granted)

17 Jan 2011

-

-

7

B Ellerton

5 May 2012

-

2

2

N Hansra

5 May 2012

-

2

2

L Bull

4 Dec 2010

26 Nov 2011

-

2

M Jesberg

4 Dec 2010

26 Nov 2011

-

2

T Kassab

4 Dec 2010

26 Nov 2011

-

2

M Slater

4 Dec 2010

21 Mar 2012

4

5

A – Number of board meetings attended

B – Number of board meetings held during the time the director held office during the year

Principal Activities The principal activities of the company during the financial year were to: • • •

provide support to members of the company; engage in fundraising activities, and act as trustee for the Lisa Palmer Foundation.

The company’s short-term objectives are to provide information & support to members and their families and to increase public awareness of Neurofibromatosis (“NF”). The company’s long-term objectives are to find a cure for NF through funding research. To achieve these objectives the company has adopted the following strategies: • Undertake regular fundraising and public awareness activities; • Provision of support services to individuals and families affected by NF; • Funding of NF research, and • Provide advocacy and information service to improve outcomes for NF sufferers. During the year the consolidated group raised income from fundraising activities of $ 231,440 (2011: $210,820) and made grants for research and support services of $161,281 (2011: $180,036).

INFORMATION ON DIRECTORS John Hughes

Chairman

Qualifications

B Comm, FAICD

Experience

Currently CEO and Managing Director of Thorn Group Ltd. Previous Managing Director of Ruralco Holdings Ltd. Over 30 years executive experience in a number of leading Australian and International companies including Thorn EMI, Dominos Pizza, Sharp Corporation, Competitive Foods and Grace Bros.  Appointed Chair on 26 November 2011  Member of Finance, Audit & Risk Committee  Member of Fund Raising Committee  Member of the Lisa Palmer Foundation Committee  Member of the Lisa Palmer Foundation Committee

The accompanying notes form part of these financial statements p16 Annual Report 2012


Nirmal Hansra

Director

Qualifications

M Comm, FAICD, FCA, FCPA

Experience

Non-Executive Director of Eureka Group Holdings Ltd. and Council of the Aging NSW and Advisory Board Member of BTO Group Ltd. Over 35 years executive experience as Finance Director/Chief Financial Officer of leading Australian and International companies including Industrea Ltd., Australian Pharmaceutical Industries Ltd., Ruralco Holdings Ltd., Rentworks Ltd., NetComm Australia Pty. Ltd., Fujitsu Australia Ltd. and Texas Instruments Australia Ltd.  Appointed Chairman of Finance, Audit & Risk Committee on 5 May 2012  Member of the Lisa Palmer Foundation Committee

Geoff Bottom

Director

Qualifications Experience

Over 30 years retail experience and currently Store Manager of Bernardi’s Supa IGA in Blayney NSW. Geoff is actively involved with the Rotary Club of Australia and has received the Paul Harrison Award and the Blue Sapphire Award for fundraisings.  Member of Membership, Services & Growth Committee

Winston (Hua Chu) Chiu

Director

Qualifications

Mechanical Engineering Trade Certificate

Experience

Currently National Seafood Operations Manager PFD Foods. Combined 20 years in management, supply and operational experience in major International Engineering & Sealing Company, Seafood Retail, wholesale and distribution at the Sydney Fish Market  Member Fund Raising Committee  Member of the Lisa Palmer Foundation

Bradley Dowling

Director

Qualifications Experience

Senior Community Educator for the Cerebral Palsy Alliance, formerly the Spastic Centre for over 15 years. Strong involvement in promoting public awareness of NF through television, radio, online and printed media. Actively involved in other community based activities including coaching basketball for the Hornsby Ku-ring Gai Basketball Association.  Member of Membership, Services & Growth Committee

Bill Ellerton

Director

Qualifications

MBA, MAICD

Experience

Managing Director and owner of Mainstay Business Services & Aitken Homes. Extensive experience as a General Manager and Director working for high tech companies: Siemens, Rockwell Automation, Compaq, Digital, TEC and Telecom Australia.

Rosa Pirreca

Director and Secretary

Qualifications Experience

Personal Assistant to NSW State Manager, QBE Australia. Over 16 years in a large organisation performing a variety of roles.  Member of Fund Raising Committee  Member of Finance, Audit & Risk Committee

Catherine Strassberg

Director

Qualifications

CPA

Experience

NFAA Committee Treasurer for over 6 years. Presently Chair of Education Committee at Taronga Zoo; Previously member of the Board of Directors of the Taronga Conservation Society of Australia since 2001 and served on the Audit and Risk, Animal Health and Welfare and Finance Committees

Members Guarantee The company is incorporated under the Corporations Act 2001 and is a company limited by guarantee. If the company is wound up, the constitution states that each member is required to contribute a maximum of $100 each towards meeting any outstanding obligations of the entity. At 30 June 2012, the total amount that members of the company are liable to contribute if the company is wound up is $1,100. Auditor’s Independence Declaration The lead auditor’s independence declaration for the year ended 30 June 2012 has been received and can be found on the following page. Signed in accordance with a resolution of the Board of Directors.

The accompanying notes form part of these financial statements Annual Report 2012 p17


p18 Annual Report 2012

The accompanying notes form part of these financial statements


CONSOLIDATED STATEMENT OF COMPREHENSIVE INCOME FOR THE YEAR ENDED 30 JUNE 2012 Consolidated Group NOTE

2012 $

2011 $

143,890

177,820

Revenue Fundraising Donations

87,550

33,000

Gross proceeds from fundraising activities

2

231,440

210,820

Grants received – NSW Health Department

2

17,700

19,500

Membership subscriptions

2

5,812

5,170

Interest received - other

2

41,250

47,556

Other income

2

Total revenue & other income

3,761

4,095

299,963

287,141

Operating Expenses Employment expenses

2

155,767

68,554

Fundraising expenses

2

44,773

18,519

Occupancy expenses

2

17,738

1,143

Other administration costs

2

21,666

24,275

Bank fees

2

1,842

1,296

Depreciation

2

583

408

242,369

114,195

57,594

172,946

150,000

162,857

Total operating expenses

Operating surplus before grants made Grants Made Research

2

Support Services

2

Total grants made Net Surplus/ (deficit) for the year

Other comprehensive loss for the year Total comprehensive loss for the year

11,281

17,179

161,281

180,036

(103,687)

(7,090)

-

-

(103,687)

(7,090)

CONSOLIDATED STATEMENT OF FINANCIAL POSITION AS AT 30 JUNE 2012 Consolidated Group NOTE

2012 $

2011 $

5 (a)

790,160

899,218

6

27,472

14,143

Inventories

7

8,565

-

Other assets

8

6,386

1,109

832,583

914,470

754

1,337

754

1,337

833,337

915,807

Current Assets Cash & cash equivalents Trade and other receivables

Total current assets Non Current Assets Plant and equipment

9

Total non current assets Total assets

Current Liabilities Trade and other payables

10

24,597

1,055

Provisions

11

6,460

8,785

Total current liabilities

31,057

9,840

Total liabilities

31,057

9,840

802,280

905,967

Net Assets Total Funds Retained earnings

802,280

905,967

Total funds

802,280

905,967

The accompanying notes form part of these financial statements

Annual Report 2012 p19


CONSOLIDATED STATEMENT OF CHANGES IN EQUITY FOR THE YEAR ENDED 30 JUNE 2012 Consolidated Group NOTE

2012 $

2011 $

Balance at 1 July 2010

913,057

913,057

Net surplus/(deficit)

(7,090)

(7,090)

Other comprehensive income Balance at 30 June 2011

Net surplus/(deficit) Other comprehensive income Balance at 30 June 2012

-

-

905,967

905,967

(103,687)

(103,687)

-

-

802,280

802,280

CONSOLIDATED STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 30 JUNE 2012 Consolidated Group NOTE

2012 $

2011 $

Cash Flows From Operating Activities Receipts from supporters and funding sources: Fundraising income

123,324

178,666

Donations

87,550

33,000

Grants

17,700

19,500

5,812

5,170

Membership fees Other income Interest income

Operating and fundraising expenses

3,713

4,095

55,065

38,615

293,164

279,046

(240,940)

(108,708)

(161,282)

(180,036)

(109,058)

(9,698)

Payment for plant and equipment

-

(740)

Net cash used in investing activities

-

(740)

Grants made for research and support services Net cash provided/ (used) by operating activities

5 (b)

Cash Flows from Investing Activities

Net increase/ (decrease) in cash and cash equivalents Cash and cash equivalents at the beginning of the year Cash and cash equivalents at the end of the year

5 (a)

(109,058)

(10,438)

899,218

909,656

790,160

899,218

The accompanying notes form part of these financial statements p20 Annual Report 2012


NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2012 These consolidated financial statements are for NF Australia and controlled entity (“Consolidated Group” or “Group”). NF Australia is a company limited by guarantee, incorporated and domiciled in Australia.

merchandise, are recognised and carried at original invoice amount less an allowance for any uncollectible amounts. Normal terms of settlement are 30 days. The carrying amount of the receivable is deemed to reflect fair value.

The separate financial statements of NF Australia have not been presented within this financial report as permitted by amendments made to the Corporations Act 2001 effective as at 28 June 2010.

An allowance for doubtful debts is made when there is objective evidence that the group will not be able to collect the debts. Bad debts are written off when identified.

NOTE 1 SUMMARY OF SIGNIFICANT ACCOUNTING POLICIES NF Australia and controlled entity have elected to early adopt the pronouncements AASB 1053: Application of Tiers of Australian Accounting Standards and AASB 2010–2: Amendments to Australian Accounting Standards arising from Reduced Disclosure Requirements to the annual reporting period beginning 1 July 2011. The financial statements are general purpose financial statements that have been prepared in accordance with Australian Accounting Standards – Reduced Disclosure Requirements of the Australian Accounting Standards Board and the Corporations Act 2001. Australian Accounting Standards set out accounting policies that the AASB has concluded would result in financial statements containing relevant and reliable information about transactions, events and conditions. Material accounting policies adopted in the preparation of these financial statements are presented below and have been consistently applied unless otherwise stated. The financial statements have been prepared on an accruals basis and are based on historical costs, modified, where applicable, by the measurement at fair value of selected non-current assets, financial assets and financial liabilities. The financial statements were authorised for issue on 24 August 2012 by the directors of the company.

Accounting Policies (a) Principles of Consolidation

(f) Inventories Inventories comprise goods for resale as part of the group’s charitable activities and are measured at the lower of cost and current replacement cost.

(g)

Plant & Equipment

Each class of property plant and equipment is carried at cost or fair value less, where applicable, any accumulated depreciation and any impairment losses.

Plant and equipment Plant and equipment are measured on the cost basis less depreciation and any impairment losses. The carrying amount of plant and equipment is reviewed annually by directors to ensure it is not in excess of the recoverable amount from these assets. The recoverable amount is assessed on the basis of replacement cost and subsequent disposal. Plant and equipment that have been contributed at no cost, or for nominal cost, are valued and recognised at the fair value of the asset at the date it is acquired.

Depreciation The depreciable amount of all fixed assets including buildings and capitalised lease assets, but excluding freehold land, is depreciated on a straight-line basis over the asset’s useful life to the entity commencing from the time the asset is held ready for use. Leasehold improvements are depreciated over the shorter of either the unexpired period of the lease or the estimated useful lives of the improvements.

The consolidated financial statements incorporate the assets, liabilities and results of entities controlled by the company at reporting date. A controlled entity is any entity over which the company has the power to govern the financial and operating policies so as to obtain benefits from its activities.

The depreciation rates used for each class of depreciable assets are: Plant and equipment 33.33% The assets’ residual values and useful lives are reviewed, and adjusted if appropriate, at the end of each reporting period.

A list of controlled entities is contained in Note 14 to the financial statements.

An asset’s carrying amount is written down immediately to its recoverable amount if the asset’s carrying amount is greater than its estimated recoverable amount.

(b) Revenue Revenue is recognised when the group is legally entitled to the income and the amount can be quantified with reasonable accuracy. All revenue is stated net of the amount of goods and services tax (GST). Fundraising including donations and bequests are recognised as revenue when received. Grant revenue is recognised in the statement of comprehensive income when the entity obtains control of the grant and it is probable that the economic benefits gained from the grant will flow to the entity and the amount of the grant can be measured reliably. Membership fee income is recognised on an accrual basis in the financial period. Revenue from sale of goods comprises revenue earned (net of returns, discounts and allowances) from the sale of goods purchased for resale and gifts donated for resale. Sales revenue is recognised when the control of goods passes to the customer. Revenue from the rendering of a service is recognised upon the delivery of the service. Interest revenue is recognised as it accrues using the effective interest rate method, which for floating rate financial assets is the rate inherent in the instrument.

(c) Expenditure All expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Employment costs include salaries and wages and associated oncosts for permanent and part time employees as well as staff education and training. Fundraising costs are those incurred in seeking voluntary contributions by donation and do not include costs of disseminating information relating to the activities carried on by the group. Other administration costs are those incurred in connection with administration of the group and compliance with constitutional and statutory requirements.

(d)

Cash and Cash Equivalents

Cash and cash equivalents include cash on hand, deposits held at-call with banks, other short-term highly liquid investments with original maturities of three months or less and bank overdrafts.

(e)

Trade and Other Receivables

Gains and losses on disposals are determined by comparing proceeds with the carrying amount. These gains or losses are recognised immediately in the statement of comprehensive income. When revalued assets are sold, amounts included in the revaluation surplus relating to that asset are transferred to retained earnings.

(h)

Impairment of Assets

At the end of each reporting period, the entity reviews the carrying values of its tangible and intangible assets to determine whether there is any indication that those assets have been impaired. If such an indication exists, the recoverable amount of the asset, being the higher of the asset’s fair value less costs to sell and depreciated replacement cost, is compared to the asset’s carrying value. Any excess of the asset’s carrying value over its recoverable amount is recognised immediately in the statement of comprehensive income. Where an impairment loss on a revalued asset is identified, this is debited against the revaluation surplus in respect of the same class of asset to the extent that the impairment loss does not exceed the amount in the revaluation surplus for that same class of asset.

(i)

Trade and Other Payables

Trade and other payables represent the liability outstanding at the end of the reporting period for goods and services received by the group during the reporting period which remain unpaid. The balance is recognised as a current liability with the amount being normally paid within 30 days of recognition of the liability.

(j)

Deferred Income

The liability of deferred income is the unutilised amounts of grants or donations received on the condition that specified services are delivered or conditions are fulfilled. The services are usually provided or the conditions fulfilled within 12 months of receipt of the grant or donation.

(k)

Employee Benefits

Provision is made for the group’s liability for employee benefits arising from services rendered by employees to the end of the reporting period. Employee benefits that are expected to be settled within one year have been measured at the amounts expected to be paid when the liability is settled. Employee benefits payable later than one year have been measured at the present value of the estimated future cash outflows to be made for those benefits. In determining the liability, consideration is given to employee wage increases and the probability that the employee may not satisfy vesting requirements. Those cash outflows are dis-

Trade receivables, which comprise amounts due from sponsorship and sales of Annual Report 2012 p21


NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2012 CONTINUED counted using market yields on national government bonds with terms to maturity that match the expected timing of cash flows.

statements based on historical knowledge and best available information. Estimates assume a reasonable expectation of future events.

Contributions are made by the entity to an employee superannuation fund and are charged as expenses when incurred.

Key estimate Impairment

(l) Provisions

The group assesses impairment at the end of each reporting period by evaluating conditions and events specific to the group that may be indicative of impairment triggers.

Provisions are recognised when the entity has a legal or constructive obligation, as a result of past events, for which it is probable that an outflow of economic benefits will result and that outflow can be reliably measured. Provisions recognised represent the best estimate of the amounts required to settle the obligation at the end of the reporting period.

NOTE 2 STATEMENT SHOWING HOW FUNDS RAISED WERE APPLIED TO CHARITABLE PURPOSES

(m) Taxation Income Tax The company is a charitable institution for the purposes of Australian taxation legislation and is therefore exempt from income tax. This exemption has been confirmed by the Australian Taxation Office. The company holds deductible gift recipient status.

Goods and Services Tax (GST)

Consolidated Group

Gross income from fundraising

Direct fundraising expenses

(n)

Less:

Financial Instruments

Classification and subsequent measurement

2011 $

231,440

210,820

Less:

Revenues, expenses and assets are recognised net of the amount of GST except where the amount of GST incurred is not recoverable from the Australian Taxation Office, in which case it is recognised as part of the cost of acquisition of an asset or as part of an item of expense. Receivables and payables are recognised inclusive of GST. The net amount of GST recoverable from or payable to the Australian Taxation Office is included as part of receivables or payables. Cash flows are included in the statement of cash flows on a gross basis. The GST component of cash flows arising from investing and financing activities which is recoverable from or payable to the Australian Taxation Office is classified as operating cash flows. Initial recognition and measurement Financial assets and financial liabilities are recognised when the entity becomes a party to the contractual provisions to the instrument. For financial assets, this is equivalent to the date that the group commits itself to either purchase or sell the asset (ie trade date accounting is adopted). Financial instruments are initially measured at fair value plus transaction costs except where the instrument is classified “at fair value through profit or loss�, in which case transaction costs are expensed to profit or loss immediately.

2012 $

44,773

18,519

197,596

95,676

(10,929)

96,625

Income from other sources

68,523

76,321

Operating surplus

57,594

172,946

150,000

162,857

11,281

17,179

161,281

180,036

(103,687)

(7,090)

Operating expenses Surplus/(deficit) from fundraising Add:

Funds applied to: Research grants made Support services provided Total funds applied Net operating surplus/(deficit)

Financial instruments are subsequently measured at fair value, amortised cost using the effective interest rate method, or cost. Fair value represents the amount for which an asset could be exchanged or a liability settled, between knowledgeable, willing parties. Where available, quoted prices in an active market are used to determine fair value. In other circumstances, valuation techniques are adopted.

NOTE 3 INFORMATION AND DECLARATIONS TO BE FURNISHED UNDER THE CHARITABLE FUNDRAISING ACT 1991

(i) Receivables

Fundraising events held during the year include a gala dinner and auction, fun runs and harness racing and community events.

Receivables are non-derivative financial assets with fixed or determinable payments that are not quoted in an active market and are subsequently measured at amortised cost. Receivables are included in current assets, except for those which are not expected to mature within 12 months after the end of the reporting period. All other receivables are classified as non-current assets.

(ii)

Financial liabilities

Non-derivative financial liabilities (excluding financial guarantees) are subsequently measured at amortised cost.

De-recognition Financial assets are derecognised where the contractual rights to receipt of cash flows expire or the asset is transferred to another party whereby the entity no longer has any significant continuing involvement in the risks and benefits associated with the asset. Financial liabilities are derecognised where the related obligations are discharged, cancelled or expired. The difference between the carrying value of the financial liability, which is extinguished or transferred to another party, and the fair value of consideration paid, including the transfer of non-cash assets or liabilities assumed, is recognised in profit or loss.

(o) Leases Lease payments for operating leases, where substantially all the risks and benefits remain with the lessor, are charged as expenses on a straight-line basis over the lease term.

(p)

Comparative Figures

Where required by Accounting Standards, comparative figures have been adjusted to conform with changes in presentation for the current financial year. When an entity applies an accounting policy retrospectively, makes a retrospective restatement or reclassifies items in its financial statements, a statement of financial position as at the beginning of the earliest comparative period must be disclosed.

(q)

Critical Accounting Estimates and Judgments

The directors evaluate estimates and judgments incorporated into the financial p22 Annual Report 2012

Fundraising Events

Direct costs Direct costs in relation to these fundraising activities undertaken during the year are disclosed as fundraising expenses. The company supports its members through providing information both over the phone and in newsletters. It also provides grants to institutions undertaking research on NF related diseases.

NOTE 4 PERFORMANCE RATIOS Consolidated Group Comparisons

2012 $

2012 %

2011 %

Total cost of fundraising / gross income from fundraising

44,773/231,440

19%

9%

Net surplus from fundraising / gross income from fundraising

186,667/231,440

81%

91%

Total cost of services net of fundraising activities / total operating expenditure

197,596/242,369

82%

84%

Total costs of services net of fundraising expenses / total income received

197,596/299,963

66%

33%


NOTE 5 NOTES TO THE STATEMENT OF CASH FLOWS

NOTE 9 PLANT AND EQUIPMENT Consolidated Group

Consolidated Group 2012 $ (a)

2011 $

Reconciliation of Cash

Office furniture, computer and other equipment at cost

For the purposes of the statement of cash flows, cash at the end of the reporting period as shown in the statement of cash flows is reconciled to the related items in the financial statements as follows:

(b)

2012 $

8 (a)

Less: Accumulated depreciation

Cash at Bank

99,821

158,686

Term deposits

690,239

740,432

Cash on hand

100

100

790,160

899,218

Reconciliation of net cash flow from operating activities to operating surplus Operating surplus/ (deficit)

Note

2011 $

7,481

9,528

(6,727)

(8,191)

754

1,337

Movements in Carrying Amounts 2012 Balance at the beginning of the year

1,337

Depreciation expense

(583)

Carrying amount at the end of the year

754

(a) Office furniture that was fully written down in the prior year was written off and scrapped this year.

(103,687)

(7,090)

583

408

Decrease/(increase) in receivables

(13,329)

(8,094)

Deease/(increase) in inventories

(8,565)

-

Decrease/(increase) in other assets

(5,277)

1,504

(Decrease)/increase in payables

23,542

(794)

Trade creditors

15,938

(Decrease)/increase in provisions

(2,325)

4,368

Other creditors

7,000

-

Deferred income

1,659

1,055

24,597

1,055

24,597

1,055

(1,659)

(1,055)

22,938

-

Depreciation

NOTE 10 TRADE & OTHER PAYABLES

(109,058)

(9,698)

NOTE 6 RECEIVABLES

Note

10(a)

Note Trade receivables

2012 $

2011 $

27,095

-

-

-

27,095

-

377

14,143

27,472

14,143

6 (a)

Other receivables 15

(a) Provision for impairment Past experience indicates that no impairment allowance is necessary in respect of trade debtors ‘not past due’ and ‘past due 0 – 30 days’. Impairment allowances recognised at the reporting dates have been determined after a review of amounts outstanding at those dates.

Trade and other payables Less: deferred income Financial liabilities as trade and other payables

15

2011 $ -

NOTE 11 PROVISIONS Consolidated Group 2012 $ Annual leave

2011 $

6,460

8,785

6,460

8,785

NOTE 12 CAPITAL AND LEASING COMMITMENTS Consolidated Group

NOTE 7 INVENTORIES

2012 $

Consolidated Group

Goods purchased for resale

2012 $

(a) Financial liabilities as trade and other liabilities:

Consolidated Group

Less: Provision for impairment

Consolidated Group

2012 $

2011 $

8,565

-

8,565

NOTE 8 OTHER ASSETS

2011 $

Capital Commitments At reporting date the group has not entered into contracts for capital expenditure which have not been provided for in the financial statements.

Operating Lease Commitments Consolidated Group 2012 $

2011 $

Prepaid expenses

1,188

909

Deposits

5,198

200

6,386

1,109

Non-cancellable operating leases contracted for but not capitalised in the financial statements Payable – minimum lease payments: -

not later than 12 months

20,020

17,518

-

later than 12 months but not later than five years

20,020

40,040

-

greater than five years

40,040

57,558

The property lease commitment is a non-cancellable operating lease contracted Annual Report 2012 p23


NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2012 CONTINUED for but not capitalised in the financial statements with a 3 year term. Increases in lease commitments may occur in line with the Consumer Price Index (CPI).

Commitments Commitments contracted for: Research grants

162,858

244,287

NOTE 17 RELATED PARTY TRANSACTIONS (a)

Directors’ Compensation

The directors act in an honorary capacity and receive no compensation for their services.

NOTE 18 EVENTS SUBSEQUENT TO REPORTING DATE

NOTE 13 PARENT INFORMATION

There are no material post balance date events or transactions which would affect the financial position and performance of the group.

The following information has been extracted from the books and records of the parent and has been prepared in accordance with the accounting standards.

NOTE 19 TRUST LIABILITIES AND RIGHT OF INDEMNITY

2012 $

2011 $

Current Assets

230,845

263,352

TOTAL ASSETS

231,599

264,689

Current Liabilities

31,057

9,840

TOTAL LIABILITIES

31,057

9,840

STATEMENT OF FINANCIAL POSITION ASSETS

LIABILITIES

The Company acts as trustee of the Lisa Palmer Foundation Trust. No liabilities have been incurred on behalf of that trust in the company’s capacity as corporate trustee. Liabilities incurred on behalf of the trust are not recognised in NF Australia as a parent entity, but have been included from a consolidated point of view, when it is not probable that the company will have to meet any of those trust liabilities from its own resources. When it is probable that the Company will have to meet some trust liabilities, the offsetting right of indemnity and deficiency in the indemnity are included in the parent entity numbers. The assets of the trust, which lie behind the right of indemnity, are not directly available to meet any liabilities of the company acting in its own right. The assets of the trust were sufficient to discharge all liabilities of the trust at 30 June 2012. The following information has been extracted from the books and records of the Lisa Palmer Foundation and has been prepared in accordance with the accounting standards. Consolidated Group

EQUITY Retained Earnings

200,542

254,849

TOTAL EQUITY

200,542

254,849

(54,307)

Total Comprehensive Income

601,738

638,157

-

12,961

601,738

651,118

STATEMENT OF FINANCIAL POSITION

(54,307)

115,904

Cash and cash equivalents

115,904

Interest receivable TOTAL ASSETS

NOTE 14

2011 $

ASSETS

STATEMENT OF COMPREHENSIVE INCOME Total Profit/(Loss)

2012 $

CONTROLLED ENTITIES CONSOLIDATED

NF Australia controls the Lisa Palmer Foundation by virtue of the control tests outlined in AASB 10 Consolidated Financial Statements.

LIABILITIES Current Liabilities

-

-

NOTE 15

TOTAL LIABILITIES

-

-

Retained Earnings

601,738

651,118

TOTAL EQUITY

601,738

651,118

35,387

40,180

(84,591)

(162,857)

-

(213)

FINANCIAL RISK MANAGEMENT

The group’s financial instruments consist mainly of deposits with banks, receivables and payables, and leases. The totals for each category of financial instruments, measured in accordance with AASB 139 as detailed in the accounting policies to these financial statements, are as follows:

EQUITY

Consolidated Group Note

2012 $

2011 $

Interest received

Financial assets Cash and cash equivalents Receivables

5 (a) 6

Total financial assets

790,160

899,218

27,472

14,143

817,632

913,361

Financial liabilities Financial liabilities at amortised cost: - trade and other payables Total financial liabilities

10

22,938

-

22,938

-

NOTE 16 KEY MANAGEMENT PERSONNEL COMPENSATION No personnel of the Group are key management personnel as all decisions are made by the board.

p24 Annual Report 2012

STATEMENT OF COMPREHENSIVE INCOME

Research grants made General expenses Bank charges

(176)

(105)

Total Profit/(Loss)

(49,380)

(122,995)

Total Comprehensive Loss

(49,380)

(122,995)

NOTE 20

COMPANY DETAILS

The principal place of business and registered office of the Company is: NF Australia Suite 2, Level 1 84 Victoria Road Drummoyne NSW 2047


DECLARATION BY DIRECTORS We directors of NF Australia declare that in our opinion: (a) (b) (c) (d)

The financial statements give a true and fair view of all income and expenditure of NF Australia with respect to fundraising appeals for the financial year ended 30 June 2012. The Statement of Financial Position gives a true and fair view of the state of affairs with respect to fundraising appeal activities as at 30 June 2012. The provisions of the Charitable Fundraising Act 1991 and the Regulations under that Act and the conditions attached to the authority to fundraise have been complied with during the year ended 30 June 2012. As is common for organisations of this type, it is not practicable to maintain an effective system of internal controls over donations, subscriptions and other fund raising activities until their initial entry in the accounting records.

This statement is made in accordance with a resolution of the Board of Directors and is signed on behalf of the directors by:

DIRECTORS DECLARATION The directors of the entity declare that: 1. a. b. 2. 3.

The financial statements and notes, as set out on pages xto x, are in accordance with the Corporations Act 2001 and: comply with Australian Accounting Standards; and give a true and fair view of the financial position as at 30 June 2012 and of the performance for the year ended on that date of the consolidated group. In the directors’ opinion there are reasonable grounds to believe that NF Australia will be able to pay its debts as and when they become due and payable. The accounts give a true and fair view of all income and expenditure with respect to fundraising appeals.

This declaration is made in accordance with a resolution of the Board of Directors.

Annual Report 2012 p25


p26 Annual Report 2012


Annual Report 2012 p27


Thank you for your support

p28 Annual Report 2012


NF Australia Suite 2 Level 1 84 Victoria Road Drummoyne NSW 2047 P: 02 9719 3356 F: 02 9719 3575 E: info@nfaa.org.au www.nfaa.org.au ABN 26 148 815 534


NFA 2012 Annual Report