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VO LU M E 1:

Patient Highlight, Harold Sneed

 I SS U

“We had so many people who wanted to know about what was going on,” said Harold. “It was so nice to be able to update everyone at once.” “I felt knocked back on my heels,” Harold recalled. “I knew something was wrong.” He was right. After a visit to his doctor and a bone marrow biopsy, Harold Sneed was diagnosed with leukemia. He and his wife of 27 years, Debbie, were shocked. Four years earlier at the age of 59, Harold was diagnosed with myelodysplastic syndrome (MDS) and said he always knew leukemia was a real possibility, but he was still stunned and shaken at his new diagnosis. He immediately

Harold and Debbie recalled the overwhelming support they received from family, friends and their community. “We’ve had people reaching out to us every day through MyLifeLine.org,” he said. “It just amazed me. Even though they don’t always comment, you know they’re following. In addition, when you talk to them, they know your whole story and you don’t have to spend time updating them on everything.”

Since the Sneeds live in Kentucky and travelled to Tennessee for treatment, Harold recalled often feeling isolated after being away from home for long periods of time. “MyLifeLine.org was incredible. I was able to hear from people I haven’t heard from in a long time, whole churches were praying for us, people that lived far away; it really boosted my spirits. I was amazed at what I was able to do with all the support I had.”

1

During his treatment, a social worker at his cancer center recommended MyLifeLine.org to Harold and Debbie to keep their friends and family upto-date on his treatment, inevitable setbacks and continued progress.

E

underwent intense, high doses of chemotherapy, followed by a bone marrow stem cell transplant.

Winter 2014 News Contents

After a year of enduring lengthy treatment, unpleasant side effects and exhaustive procedures, Harold’s leukemia went into remission. He continues to fight MDS, but is optimistic and recently celebrated a healthy 30-day check-up at his cancer center in Nashville. Harold said he’s learning to adjust to his new normal, works to keep a positive attitude and thanks “my wonderful wife for being with me all the way.”

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

Subaru Shared the Love

New Staff Member

Colorado Gives Day

New Upgrade Coming to MyLifeLine

Annual Kentucky Derby Event

Patient Highlight

A Message from the CEO, Melissa Bowen: MyLifeLine.org Cancer Foundation believes a strong support community is critical for people affected by cancer. On March 30, 2014 we celebrated our seventh anniversary of providing free, personal websites to cancer patients and caregivers so they can easily connect and communicate with their friends and family. No one should ever feel alone during their cancer journey, and our vision is that everyone facing a

Mark your Calendars! Annual Jockeys, Juleps & Jazz Kentucky Derby Event Mark your calendars and dress to impress for MyLifeLine.org’s signature fundraiser, Jockeys, Juleps & Jazz on May 3, 2014 at the historical Brown Palace in downtown Denver. Jockeys, Juleps & Jazz will feature live streaming of the 140th running of the Kentucky Derby, delicious mint juleps, as well as exciting

New Board of Directors Member

live and silent auctions. Last year, tickets sold out several weeks before the event, so register now by visiting www.mylifelinederby.org. To learn more about sponsorship opportunities, please contact Enmar Hilu, development director, at enmar@mylifeline.org.

PAGE 4

cancer diagnosis knows about MyLifeLine.org so they can build a strong support community. We’ve had a successful start to the year and are looking forward to many new projects and achievements ahead!

MELISSA BOWEN CEO, MYLIFELINE.ORG


New Upgrade Coming to MyLifeLine.org In the next few months, members and their guests will notice a slight change in the look of their websites when we complete our latest upgrade. We continually strive to improve the site in order to make MyLifeLine.org the primary communication tool for people affected by cancer. We hope that new features, such as extra control over volunteer registrations, a news feed that highlights new volunteer requests and members’ posts, as well as a “support” button similar to Facebook’s “like” button, will make it easier than ever for cancer patients and their loved ones to communicate with others and focus on support and healing. If you are interested in giving feedback or testing the site, feel free to join our Purple Ribbon Panel on Facebook, where we ask our users and supporters for input on everything from what order tabs should be in, to what features need improvement.

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

Welcome New MyLifeLine.org Board of Directors Member, Cindy Chavez MyLifeLine.org is proud to welcome Cindy Chavez to the board of directors. Cindy comes to us with an extensive background in healthcare technology and was most recently the COO of Practice iQ. Previously, Cindy was vice president of operations for McKesson Specialty Health Technology Division and oversaw the development and implementation of iKnowMed, an

oncology specific EHR software application. On a more personal note, Cindy became familiar with MyLifeLine.org as a registered primary caregiver to a cancer survivor. As a caregiver, Cindy became acquainted with MyLifeLine. org, the team and its service. Because of her experience, she expressed a desire to become more engaged with our organization. Cindy will focus her

Subaru Shared the Love with MyLifeLine.org! Subaru of America runs an annual “Share the Love” fundraising event to benefit five charities across the country. For every new Subaru sold, Subaru donates $250 to one of the five charities chosen by the new car owner. In 2013, Subaru gave each dealership the option to add a sixth, local charity of their choice to the list. Shortline Subaru, the second most successful dealership in sales in the nation and very active in the Colorado community for over a quarter-century, has been a strong supporter of MyLifeLine.org for many years. We were honored and excited when MyLifeLine.org was chosen as Shortline Subaru’s sixth local charity.

efforts on fundraising and play a central role on the development committee. We are honored that Cindy has joined the MyLifeLine.org family.

Don and Laurie Hicks, owners of Shortline Subaru, matched each $250 donation to MyLifeLine.org with a personal $50 contribution. This successful campaign wrapped up in January and raised more than $25,000 for people affected by cancer who rely on MyLifeLine. org for social and emotional support. We would like to CINDY CHAVEZ

Giving Tuesday, Colorado Gives Day and End-of-Year Giving Success

New Staff Member–Maria Smith, Director of Marketing & Outreach MyLifeLine.org also welcomes our newest staff member, Maria Smith, as the director of marketing & outreach! This is a new position, and we are thrilled that Maria has joined our team. Maria comes to MyLifeLine.org after three years with the Cancer Support Community (CSC), a valued partner of MyLifeLine.org, where she was the manager of

communications and events. In this role, she managed all external communication, the organization’s radio show, social media and online presence. She also oversaw and managed CSC’s events and worked closely with the development department. As MyLifeLine.org’s director of marketing & outreach, Maria oversees the organization’s media

thank Shortline Subaru and Don and Laurie Hicks for their active involvement with our organization and the local community.

Like many nonprofits, MyLifeLine.org relies on charitable contributions from generous donors across the country in order to provide free support services to people affected by cancer. At the end of 2013, more than 155 donors participated in our year-end campaigns to ensure that anyone affected by cancer can build strong support communities, with free, personal and private websites.

outreach, external communication, social media, online presence and overall marketing initiatives, as well as nonprofit partnerships.

Follow us!

MARIA SMITH

PAGE 2

facebook twitter

Giving Tuesday, a relatively new national campaign, is held the first Tuesday after Thanksgiving. A spinoff of Black Friday and Cyber Monday, Giving Tuesday asks consumers to take a day to give back. We witnessed a major increase in donations during this campaign and look forward to continued success with GivingTuesday.org in 2014.

Our most successful campaign, Colorado Gives Day, saw a 20 percent increase in dollars raised, with participation from across the country. Colorado Gives Day waives all credit card processing fees so that 100 percent of the donation goes to the participating nonprofit. Thank you to all of our donors who supported us in 2013, and we encourage you to learn more about how you can continue to support those affected by cancer by visiting www.MyLifeLine.org.

We expanded our reach to a larger community of people affected by cancer in 2013 and entered 2014 with more than 2,000 Facebook and Twitter followers. Join our growing community to get cancer-related articles, member stories and news about MyLifeLine.org.

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

PAGE 3


New Upgrade Coming to MyLifeLine.org In the next few months, members and their guests will notice a slight change in the look of their websites when we complete our latest upgrade. We continually strive to improve the site in order to make MyLifeLine.org the primary communication tool for people affected by cancer. We hope that new features, such as extra control over volunteer registrations, a news feed that highlights new volunteer requests and members’ posts, as well as a “support” button similar to Facebook’s “like” button, will make it easier than ever for cancer patients and their loved ones to communicate with others and focus on support and healing. If you are interested in giving feedback or testing the site, feel free to join our Purple Ribbon Panel on Facebook, where we ask our users and supporters for input on everything from what order tabs should be in, to what features need improvement.

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

Welcome New MyLifeLine.org Board of Directors Member, Cindy Chavez MyLifeLine.org is proud to welcome Cindy Chavez to the board of directors. Cindy comes to us with an extensive background in healthcare technology and was most recently the COO of Practice iQ. Previously, Cindy was vice president of operations for McKesson Specialty Health Technology Division and oversaw the development and implementation of iKnowMed, an

oncology specific EHR software application. On a more personal note, Cindy became familiar with MyLifeLine.org as a registered primary caregiver to a cancer survivor. As a caregiver, Cindy became acquainted with MyLifeLine. org, the team and its service. Because of her experience, she expressed a desire to become more engaged with our organization. Cindy will focus her

Subaru Shared the Love with MyLifeLine.org! Subaru of America runs an annual “Share the Love” fundraising event to benefit five charities across the country. For every new Subaru sold, Subaru donates $250 to one of the five charities chosen by the new car owner. In 2013, Subaru gave each dealership the option to add a sixth, local charity of their choice to the list. Shortline Subaru, the second most successful dealership in sales in the nation and very active in the Colorado community for over a quarter-century, has been a strong supporter of MyLifeLine.org for many years. We were honored and excited when MyLifeLine.org was chosen as Shortline Subaru’s sixth local charity.

efforts on fundraising and play a central role on the development committee. We are honored that Cindy has joined the MyLifeLine.org family.

Don and Laurie Hicks, owners of Shortline Subaru, matched each $250 donation to MyLifeLine.org with a personal $50 contribution. This successful campaign wrapped up in January and raised more than $25,000 for people affected by cancer who rely on MyLifeLine. org for social and emotional support. We would like to CINDY CHAVEZ

Giving Tuesday, Colorado Gives Day and End-of-Year Giving Success

New Staff Member–Maria Smith, Director of Marketing & Outreach MyLifeLine.org also welcomes our newest staff member, Maria Smith, as the director of marketing & outreach! This is a new position, and we are thrilled that Maria has joined our team. Maria comes to MyLifeLine.org after three years with the Cancer Support Community (CSC), a valued partner of MyLifeLine.org, where she was the manager of

communications and events. In this role, she managed all external communication, the organization’s radio show, social media and online presence. She also oversaw and managed CSC’s events and worked closely with the development department. As MyLifeLine.org’s director of marketing & outreach, Maria oversees the organization’s media

thank Shortline Subaru and Don and Laurie Hicks for their active involvement with our organization and the local community.

Like many nonprofits, MyLifeLine.org relies on charitable contributions from generous donors across the country in order to provide free support services to people affected by cancer. At the end of 2013, more than 155 donors participated in our year-end campaigns to ensure that anyone affected by cancer can build strong support communities, with free, personal and private websites.

outreach, external communication, social media, online presence and overall marketing initiatives, as well as nonprofit partnerships.

Follow us!

MARIA SMITH

PAGE 2

facebook twitter

Giving Tuesday, a relatively new national campaign, is held the first Tuesday after Thanksgiving. A spinoff of Black Friday and Cyber Monday, Giving Tuesday asks consumers to take a day to give back. We witnessed a major increase in donations during this campaign and look forward to continued success with GivingTuesday.org in 2014.

Our most successful campaign, Colorado Gives Day, saw a 20 percent increase in dollars raised, with participation from across the country. Colorado Gives Day waives all credit card processing fees so that 100 percent of the donation goes to the participating nonprofit. Thank you to all of our donors who supported us in 2013, and we encourage you to learn more about how you can continue to support those affected by cancer by visiting www.MyLifeLine.org.

We expanded our reach to a larger community of people affected by cancer in 2013 and entered 2014 with more than 2,000 Facebook and Twitter followers. Join our growing community to get cancer-related articles, member stories and news about MyLifeLine.org.

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

PAGE 3


VO LU M E 1:

Patient Highlight, Harold Sneed

 I SS U

“We had so many people who wanted to know about what was going on,” said Harold. “It was so nice to be able to update everyone at once.” “I felt knocked back on my heels,” Harold recalled. “I knew something was wrong.” He was right. After a visit to his doctor and a bone marrow biopsy, Harold Sneed was diagnosed with leukemia. He and his wife of 27 years, Debbie, were shocked. Four years earlier at the age of 59, Harold was diagnosed with myelodysplastic syndrome (MDS) and said he always knew leukemia was a real possibility, but he was still stunned and shaken at his new diagnosis. He immediately

Harold and Debbie recalled the overwhelming support they received from family, friends and their community. “We’ve had people reaching out to us every day through MyLifeLine.org,” he said. “It just amazed me. Even though they don’t always comment, you know they’re following. In addition, when you talk to them, they know your whole story and you don’t have to spend time updating them on everything.”

Since the Sneeds live in Kentucky and travelled to Tennessee for treatment, Harold recalled often feeling isolated after being away from home for long periods of time. “MyLifeLine.org was incredible. I was able to hear from people I haven’t heard from in a long time, whole churches were praying for us, people that lived far away; it really boosted my spirits. I was amazed at what I was able to do with all the support I had.”

1

During his treatment, a social worker at his cancer center recommended MyLifeLine.org to Harold and Debbie to keep their friends and family upto-date on his treatment, inevitable setbacks and continued progress.

E

underwent intense, high doses of chemotherapy, followed by a bone marrow stem cell transplant.

Winter 2014 News Contents

After a year of enduring lengthy treatment, unpleasant side effects and exhaustive procedures, Harold’s leukemia went into remission. He continues to fight MDS, but is optimistic and recently celebrated a healthy 30-day check-up at his cancer center in Nashville. Harold said he’s learning to adjust to his new normal, works to keep a positive attitude and thanks “my wonderful wife for being with me all the way.”

MYLIFELINE.ORG | VOLUME 1: ISSUE 1 | WINTER 2014 NEWS

Subaru Shared the Love

New Staff Member

Colorado Gives Day

New Upgrade Coming to MyLifeLine

Annual Kentucky Derby Event

Patient Highlight

A Message from the CEO, Melissa Bowen: MyLifeLine.org Cancer Foundation believes a strong support community is critical for people affected by cancer. On March 30, 2014 we celebrated our seventh anniversary of providing free, personal websites to cancer patients and caregivers so they can easily connect and communicate with their friends and family. No one should ever feel alone during their cancer journey, and our vision is that everyone facing a

Mark your Calendars! Annual Jockeys, Juleps & Jazz Kentucky Derby Event Mark your calendars and dress to impress for MyLifeLine.org’s signature fundraiser, Jockeys, Juleps & Jazz on May 3, 2014 at the historical Brown Palace in downtown Denver. Jockeys, Juleps & Jazz will feature live streaming of the 140th running of the Kentucky Derby, delicious mint juleps, as well as exciting

New Board of Directors Member

live and silent auctions. Last year, tickets sold out several weeks before the event, so register now by visiting www.mylifelinederby.org. To learn more about sponsorship opportunities, please contact Enmar Hilu, development director, at enmar@mylifeline.org.

PAGE 4

cancer diagnosis knows about MyLifeLine.org so they can build a strong support community. We’ve had a successful start to the year and are looking forward to many new projects and achievements ahead!

MELISSA BOWEN CEO, MYLIFELINE.ORG


MyLifeLine.org Cancer Foundation Winter Newsletter