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The MS Society of Tasmania 2009/2010 Annual Report


Our Vision A Tasmanian MS Community that is engaged, informed, understood and supported.

Our Mission The Multiple Sclerosis Society of Tasmania is committed to enhancing the quality of life for people in Tasmania with MS and to reducing the impact upon their families and carers by: u

u

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Enhancing the identiďŹ cation and awareness of the needs of people affected by MS; The pursuit of best practice at clinical, whole of person and research levels; Supporting advances in the management and prevention of MS;

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Leadership and advocacy and

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Enhancing our organisation.

Our Values

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Respect;

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Integrity;

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Empathy;

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Working Together.

MS TASMANIA 2009/2010 ANNUAL REPORT


Contents 1.

Mission Statement

2

2.

Chairman’s Report

4

3.

CEO’s Report

6

4.

Meet our Board of Directors

8

5.

Client Services Report

10

i.

Overview

10

ii.

Case Management Standards

11

iii.

Self-management Training

11

iv.

MS Clinic

12

v.

Support Groups

13

vi.

Wellness Weekend

14

vii.

Getting in Touch Survey

15

viii.

Couples Booklet

16

ix.

MyState MySport

17

6.

MS Research at the Menzies Centre

18

7.

Client Profile – Angela Suhr

21

8.

Marketing and Development Report

22

i.

Overview

22

ii.

World MS Day and MS Awareness Week

22

iii.

MSFest

23

iv.

High Tea

24

v.

Website Upgrade

24

vi.

Readathon and Novel Challenge

25

9.

Recognition, Acknowledgements and Bequests

26

10.

Corporate Services Report

28

11.

Financial Reports

31

i.

Director’s Declaration

32

ii.

Director’s Report

33

iii.

Independent Auditor’s Report

36

iv.

Auditor’s Independence Declaration

37

v.

Statement of Comprehensive Income

39

vi.

Statement of Financial Position

40

vii.

Statement of Changes in Equity

41

viii.

Statement of Cash Flows

42

12.

MS Facts

43

MS TASMANIA 2009/2010 ANNUAL REPORT

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Chairman’s Report

I take pleasure in presenting this, the 51st Annual Report of The Multiple Sclerosis Society of Tasmania.

Reading through the 2009/10 financial year’s overview, you will see that we have made continued progress in achieving our primary purpose, during a period of economic uncertainty and at a time of significant reform by the state government of disability services in Tasmania. As our financial statements in this Report illustrate, The Society achieved a net surplus of $318,058 during the year, a pleasing result achieved through careful and appropriate cost containment during a time when income from our fundraising activities has remained static. While steady funding support from the Department of Health and Human Services continues under the National Disability Agreement, our relationships with several other key stakeholders were greatly strengthened. We have been successful in gaining a number of additional grants over the course of the year, enabling The Society to extend its provision of services to clients beyond our core focus areas Our net assets have increased by almost $410,000 to achieve total equity position of $3,456,317. In accordance with our commitment to prudently manage the diverse range of assets held by the Society, we investigated the opportunity offered by the National Affordable Housing initiative to develop 4

MS TASMANIA 2009/2010 ANNUAL REPORT

the land the Society owns in St Helens. Following discussions with the state government, we gained approval to proceed to develop a proposal for initial development. While detailed analysis clearly showed that long-term benefits could accrue to our clients and our own asset base, this was in an environment when design and construction costs were increasing sharply as a consequence of the federal government’s economic stimulus package. It became clear that there would be insufficient margin to justify progression at this time. Nevertheless, this was a significant and beneficial exercise for The Society, with many parties involved in the industry extending their support to us. Acknowledged later in this Report, these firms and individuals are to be both thanked and congratulated for their recognition of the needs of those living with multiple sclerosis across this state and we look forward to maintaining these valued new relationships. Internally, the 2009/10 financial year has been one of refocus and reinvigoration for The Society. During this period, the Board and staff team worked together in re-establishing the organisation’s vision, resolving to pursue and promote the development of a Tasmanian MS community that is engaged, informed, understood and supported. This aspirational goal is supported by The Society’s core


“This aspirational goal is supported by The Society’s core mission, which is to enhance the quality of life for people in Tasmania with MS, and reduce the impact upon their families and carers.”

mission, which is to enhance the quality of life for people in Tasmania with MS, and reduce the impact upon their families and carers. Taking these statements as our guide, all activities projected and endorsed as part of the annual business plan for the 2009/10 financial year were conceived to support the five strategic themes of The Society: 1. Enhancing the identification and awareness of the needs of people affected by MS; 2. Pursuit of best practice at clinical, whole of person and research levels; 3. Support and advances in management and prevention of MS;

In closing this Chairman’s Report, I would like to thank each of my fellow directors for their support and valued contributions throughout the year. While all those directors whose terms concluded at our AGM in October 2009 have been reappointed, I am delighted to note that we also took that opportunity to welcome two new directors to our Society, Sharlene Brown and Paul Gray, each of whom bring unique skills to the Board. We are wonderfully supported by the staff at The Society, led very capably by our CEO, Heather Francis, and her management team. I would like to thank all of those across our community who support the work of The Society and commend the contributions of so many who have helped us to achieve another successful year.

4. Leadership and advocacy; and 5. Enhancing our organisation. This report provides detail of activity across each of the organisation’s key operating units, Client Services, Corporate Services and also Marketing and Development, and clearly indicates that The Society has worked hard to ensure balanced and sustainable progress in achieving against each of these strategic themes and, ultimately, our mission and vision.

Geoff Chapman Chairman, MS Tasmania

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CEO’s Report

“A key part of our focus over this period has been to ensure that we remain fully informed of and responsive to the needs of those defined by our mission...” As highlighted by the Chairman, Dr Geoff Chapman, and as illustrated throughout this year’s Annual Report, the 2009/10 financial year has been one of continued solid progress for The Multiple Sclerosis Society of Tasmania, both financially and in terms of our support for people living with MS across this state. A key part of our focus over this period has been to ensure that we remain fully informed of and responsive to the needs of those defined by our mission, enabling us to work more effectively within the opportunities and constraints of our current and likely future operating environment. Continuing the project commenced by my predecessor, Harry Wilsdon, during the early parts of the year, the Board and management team worked with our partners at IMC-Link in undertaking a review of strategic directions for The Society. Gaining input from a range of leading local experts and influencers, including Dr Bruce Felmingham, A/Prof Bruce Taylor and Dr Natalie Jackson, the culminating report provides valuable insight into likely future prevalence of MS across our Tasmanian community, the nature of current support provided by the Society and other key stakeholders, together with the nature of benefits contributed by the present work of The Society. However, recognising that this valuable information did not sufficiently identify the likely future service and support needs of people with MS, we then combined 6

MS TASMANIA 2009/2010 ANNUAL REPORT

to work with the Neuromuscular Alliance of Tasmania (NMAT) as the lead organisation in seeking funded support from the state government to undertake the first detailed analysis of this community across Tasmania. Successfully gaining funding from the government’s Charitable Organisations Grant Fund, NMAT’s ‘Getting in Touch’ research project has been a significant exercise for all organisations involved. Aiming for a response rate to provide statistically sound evidence upon which to base our future service delivery models, the survey was conducted over the seven month period from December 2009 until June 2010. While the final report will be received in the new financial year, preliminary findings are already yielding strong value in highlighting areas of common need and associated gaps in service delivery, enabling us to define these by condition, by geography, by age and by current degree of quality of life impact. This information will help to ensure that the services provided now and into the future are shaped in response to evidence-based needs and priorities in a manner that best meets current and future forces in a constantly changing landscape of service delivery. In this regard, the insight gained has already proven to be of value in our advocacy work. During the past year, and in the context of the DHHS’ review of its relationships across a diverse portfolio of community sector organisations, we have continued


to ensure appropriate engagement in presenting the needs of those living with MS in Tasmania. Similarly, with the inclusion of disability services into the government’s regional ‘Gateway’ service coordination platform, The Society has employed an equally strategic approach to seizing opportunities to work collaboratively for enhanced care and support coordination under the reformed model. At a connected level, with both Federal and State elections held during the year, our Advocates program has also been highly active, with our representatives working hard to ensure local political members (and those aspiring to join them!) are well-informed of the issues and challenges of living with MS. Our Advocates are people with MS from across the state who selflessly, and often bravely, give of their time in presenting the reality of daily life by talking frankly about their own personal journeys, often to larger audiences, not only in the political sphere. The impact of their honesty in projecting ‘life as it is’ is extended by the work of our now growing pool of Ambassadors, people from the broader community who wish to add to the work of our Society by using their profile and influence in building awareness and understanding. The work of our Advocates and Ambassadors is indeed of enormous value in delivering against the strategic themes of our Society and will continue to be a core aspect of our activity in years to come. Another key area of growth for The MS Society over the past year has been our involvement with grantfunded projects beyond those detailed above. Over the course of 2009/10 were worked with a total of twelve funding sources to implement a range of new initiatives, many of which are profiled further in this report. In this manner, we have been able to extend the breadth of our service delivery, embracing new approaches to client support, particularly in recognising the importance of a philosophy of self-management and the value of focusing upon whole-of-person care. Although acknowledged individually further in our Report, I would also like to add a particular note of thanks for the confidence of these partners in allowing us to take steps into new directions, noting especially the strong, positive response that these new approaches have inspired from across our client group and also those who support them. In closing my report, I would like to touch briefly on the year ahead. Over the course of the 2009/10 year, we began working with the DHHS and an external accreditation organisation, Quality Management Services, to begin working through

development of an innovative, collaborative approach which might enable us and other similarly focused chronic condition organisations to pursue quality improvement, ultimately towards accreditation against the Standards of the Quality Improvement Council. As we closed this financial year, we successfully achieved funding through a further program, the ‘Strengthening Community Organisation Fund’, to lead the establishment of what is known as a Community of Practice (CoP), a group of like-minded people who join together to more effectively create and share knowledge, in this instance, focused upon quality improvement. This is an exciting project for us and one that has already been acknowledged in a national publication for its ground-breaking nature. Working together, both internally across our team and externally amongst our CoP partners, we look forward to challenges and achievements throughout the coming year that enable us to further enhance the delivery of services and support for those living with MS, effectively delivering against the vision, mission and strategic themes of The MS Society. In undertaking the considerable preparatory work that will ultimately find us stepping forward to pursue accreditation, I have a high level of confidence that is gained through working with a team of highly dedicated and skilled individuals. It is this team, comprising our Board of voluntary Directors, our three unit managers, our team from across the state, our Advocates and our Ambassadors, that I would like to commend for their individual and collective pursuit of The Society’s recently confirmed values - working together, showing respect and displaying both integrity and empathy as we work towards our mission of enhancing the quality of life for people in Tasmania with MS and to reducing the impact upon their families and carers. I encourage you to take the time to read through the various elements of this report, both the statements confirming our Society’s financial health, but also the features that describe our activities over the past year. I believe that we are well-poised to continue toward future challenges and to supporting those living with multiple sclerosis across this state for many more successful years to come.

Heather Francis CEO, MS Tasmania MS TASMANIA 2009/2010 ANNUAL REPORT

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Meet our Board of Directors Dr Geoff Chapman Dr Chapman joined the Board in December 1998. He has been chairman of the Board since 2006. He also sits on the boards of MS Australia and General Practice Training Tasmania. Whilst maintaining a busy clinical workload in a group practice at Sandy Bay, he is also the Medical Director of General Practice South.

Sharlene Brown Sharlene joined the Board in 2009, and is a previous Ambassador and Board Member of the WA Society. Sharlene is an experienced litigator, presently working as in house legal counsel specialising in telecommunications and energy. She brings corporate governance experience and legal knowledge to the Board as well as a passion to help others. Sharlene has worked overseas and is admitted to practise at the Bar in three Australian jurisdictions. She is a member of the Australian Corporate Lawyers Association, and more importantly is the dedicated Mum to a delightful little boy, and successfully manages RRMS.

Paul Gray

Paul joined the Board in 2009. A police officer for over 34 years, serving 13 years at the rank of Inspector, Paul spent the last 10 years, prior to his 2009 retirement, managing the Tasmania Police Legislative Reform Program and Crime and Traffic Policy. Having worked in a wide variety of areas within Tasmania Police, his service has been recognised by being awarded the Commissioner’s Medal and two clasps, the National Medal and clasp, and the Australian Police Medal. Paul is an Apex Life Member, and past District Governor, and is a Rotary Foundation Paul Harris Fellow.

David Hopkins David joined the Board in 2005. A trained lithographic artist and illustrator, in 1972 he established his own freelance consultancy in marketing, print and packaging with a client base that included many civic, mining and industrial corporations state wide. He is an author, illustrator of many books and a range of greeting cards, stationery and giftware and for several years the Publisher-Editor of two national magazines. He is also a past District Governor of Lions Clubs International and is still active in service work projects. With over 54 solo art exhibitions to his credit he enjoys water colour painting and his works are represented throughout Australia and overseas.

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MS TASMANIA 2009/2010 ANNUAL REPORT


Maggy Hunter

Maggy joined the Board in 2003. An HR professional, Maggy has experience working with a wide variety of workplace cultures. She brings to the Board valuable experience in the areas of recruitment, people management and development, OH&S and injury management. Maggy is also an accredited MBTI practitioner with a keen interest in organisational and personal development. In 2007 she completed a Bachelor degree at the University of Tasmania with majors in Sociology and Philosophy. In 2010 Maggy graduated with First Class Honours in Philosophy in the area of Ethics and Care. Her daughter Kate was diagnosed with MS in her mid-20s. Since then Kate has travelled and worked overseas for a number of years and is now contentedly married with a wonderful husband and two beautiful young sons, George and Harry, both adored by their grandmother.

Margaret Hunyady-Sutherland Margaret has 32 years experience in the Advertising Industry with three years in Sports Administration. She owns her own business, speakup, providing coaching in public speaking and other related subjects. Margaret is also International President of POWERtalk International and a Fellow of International Training in Communication (ITC). She is a member of the Australian Institute of Company Directors, the Rotary Club of Sullivans Cove and Women Chiefs of Enterprises.

David Nowell David joined the Board in December 2007, bringing extensive financial and administrative skills. He has held senior financial positions in both the public and private sectors. He is currently the Director of Corporate Services at the Port Arthur Historic Site Management Authority. He also holds Directorships in other not for profit organizations. David is a Fellow of the Australian Institute of Company Directors (FAICD) and a Fellow of the Society of CPAs (FCPA). He has a commerce degree and Masters Degrees in business administration (MBA) from Colorado State University and in commercial law (MComLaw) from Deakin University.

Paul Stevens Paul has had thirty years of experience in school education, the last fifteen of those in senior administration. In 2003 he transferred to the aged care sector and is currently in senior administration at Freemasons Homes of Southern Tasmania. Paul is also a qualified aged care assessor and regularly visits aged care homes to assess compliance with the Commonwealth’s standards. Paul has been involved in many community organisations and he continues this through his participation with The MS Society of Tasmania. He is passionate about finding ways to assist those in the community who have special needs including youth, the aged and those who live with medical conditions of various kinds. Paul now lives at Coningham, having resided in the Huon and Channel region for the great majority of his life. His leisure interests centre on family, fishing, football and farming!

MS TASMANIA 2009/2010 ANNUAL REPORT

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Client Services Report The Client Services team of the MS Society of Tasmania is pleased to present its report on activities for the year 2009-2010.

Overview The client services team is a highly skilled and committed team that continually strives for quality client outcomes. As a multi-disciplinary team with expertise in counselling, case management and MS nursing, including specialisation in immunotherapies and clinical research, our clients receive excellence in support across all these areas, including timely receipt of information and opportunities to attend support groups, forums and workshops. The client services team prides itself on listening to our clients and their feedback and ideas are welcomed for continuous quality improvement in our service delivery. Our support to clients is delivered within principles of ‘self-management’ and this offers opportunities for clients to have greater input into the management of their condition, while also receiving a service that is holistic in nature, rather than focusing entirely on short term support. Further in this report you will read of our Couples Weekend and Wellness Weekends that are positive examples of how the client services team seeks to offer support, embracing the whole of person, in addition, supporting family and carers as well. We are also proud to have a strong partnership with the Department of Health & Human Services, who fully support and participate in our work embracing self-management, most particularly, with the “Stanford Model” of self-management. We appreciate this relationship and find it highly valuable in furthering our capacity to imbed principles of self-management into our client service delivery. As a statewide service, the client services team covers a large geographical area, with skilled staff in nursing, case management and counselling in our Launceston

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MS TASMANIA 2009/2010 ANNUAL REPORT

office providing services and support to the North, North West and North East of our State. Southern team members also cover a large geographical area with much time spent supporting clients across all regions of our State, whether by phone, email, visits to the office, home visits or face to face interactions within support groups and other after hours groups. As a whole, the Northern and Southern client services teams work closely together and are not only accessible to our clients, but also provide timely support to their families, carers and significant others. Our Society views professional development and training as a crucial element in having skilled staff and to that end, all team members have opportunities to attend and participate in conferences, specific training in immunotherapies, adoption of case management standards and counselling related activities. The experiences and learning gained from such opportunities are, in turn, beneficial and valuable to our clients. The past year has seen our specialist nursing team attend specific training days in use of injectable devices for all immunotherapies, networking opportunities with peers, and increasing the knowledge of the latest research in Multiple Sclerosis. Our Society


Client Services Report

“Chronic condition self-management is widely recognised as a key strategy for improving the management of chronic conditions and enhancing the capacity to live fuller and healthier lives�

appreciates the financial assistance of the four current major pharmaceutical companies in supporting these specific training and development opportunities. Our counsellors and other team members have also had opportunities to attend sector-specific training and conferences, and were able to present at National conferences, in particular, showcasing elements of the successful Couples weekend. Our case managers also attend the annual Case Management of Australia conference each year and, in addition, we recognise that the benefits of regular updates are vital for the provision of case management services, particularly as we work within the parameters of case management standards of Australia.

Case Management Services Case Management Standards Case management standards consist of four standards of practice: case identification and assessment, planning, monitoring and evaluation and outcomes. Over the last financial year, the team has been provided with an introduction to the standards and the process of implementing them by collecting evidence to demonstrate that

staff members are meeting each standard of practice. Each standard contains a number of criteria against which the team member is required to provide examples that demonstrates competent case management practice. As a result of working through the first standards, the team has updated the MS Society suite of client registration forms to ensure that we are meeting national guidelines of practice as well as quality improvement processes that are underway concurrently through the Society as a whole. As the team work through the standards, our processes are being reviewed and updated as required which has been a very useful and rewarding experience, and serves to further confirm the validity of working through the standards.

Self-Management Training Adoption of a self-management approach is widely recognised as a key strategy for improving the management of conditions and enhancing the capacity to live fuller and healthier lives, enabling people living with conditions such as MS to play an active role in their health care, sometimes for the first time. For health professionals, working within a self-management philosophy often means shifting

MS TASMANIA 2009/2010 ANNUAL REPORT

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Client Servi ces R eport

“It was decided the Flinders Model of Chronic Condition Self-Management would play a key role in bringing about and sustaining this change�

roles from clinical expert to one of coach. The MS Tasmania Client Services team recognises that encouraging and supporting people with MS to be informed and independent in their knowledge of the disease and the options available to them leads to better outcomes for those living with MS. In the past year, in line with National and State Government trends, the Client Services team identified the need for a more formalised approach in order to embed the principles of self-management within its practice. It was decided the Flinders Model of Chronic Condition Self-Management would play a key role in bringing about and sustaining this change, as the Flinders process would provide a consistent and holistic approach for staff in supporting clients to have the confidence and skills to take a central role in managing their health. It was also evident that the Flinders Model worked very well in conjunction with the Stanford Model, and so in September 2009 all members of the Client Services team undertook Flinders training. The Flinders self-management approach provides a set of generic and measurable tools and processes, enabling the team and clients to work together to undertake a structured process that allows for assessment of self-management behaviours,

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MS TASMANIA 2009/2010 ANNUAL REPORT

collaborative identification of problems and joint goal setting, leading to the development of individualised care plans for clients. Our commitment to embracing this approach has been a fulfilling process and the team looks forward to continuing to establish a self-management model of support that includes an extended range of self-management tools within the next year.

Clinical Services MS Clinic The Client Services nursing team has had a very busy year with the activity at the MS Clinic each Monday. Since the passing of Dr Stan Sjieka in September 2009, there has been no permanent Neurologist in the North of the State and therefore an increasing number of clients from the North and North West regions have limited access to neurology services. A number of neurologists from Melbourne have made sporadic visits to Launceston offering some cover, however, for the majority of Tasmanians living with MS residing in the North and North West regions of our State must make the trip to our Hobart based MS Clinic. This has resulted in a steady increase of clients attending review at


“...all support groups are very well attended and from feedback received, these groups are vital for information sharing and support, and are valued by our clients.�

The MS Society nursing staff also liaises with staff at infusion centers at the Royal Hobart Hospital, the Launceston General Hospital, the Mersey Community Hospital and the North West Regional Hospital so that clients receive the smoothest possible transitions and support in their treatment options. the MS Clinic each week, with a weekly average of approximately nine clients travelling from these regions. Overall, MS Clinic numbers average at 25 clients per week. The MS Society nursing staff are responsible for triaging referrals to ensure that clients are reviewed in a timely fashion. The clinic also provides clients with the opportunity to not only speak with their neurologist, but also a chance to make contact with The MS Society nursing staff to discuss any issues they may have. It further provides opportunities for any other assessments required with allied health personnel such as the continence service, physiotherapists and occupational therapists who can be accessed through the Community Rehabilitation Unit where the MS Clinic is housed. For individuals attending the MS Clinic for the first time, either as a newly diagnosed person or with a new referral, this provides an ideal opportunity to meet the MS Society nursing staff and receive information about MS and also the services of The MS Society, including our counselling and case management services. Treatment options can be discussed, and demonstrations of relevant injection devices can also be given.

The MS Society are very proud of the services that are offered to Tasmanians with MS and the MS Clinic is one avenue where MS Society nurses can be the first point of contact for our clients to access support and learn of what The MS Society has to offer.

Support Groups We understand that the support groups provided by our Society are of immense value to our clients and their families and carers. These groups provide opportunities for our Client Services team to present information, spend time with clients and learn of current unmet needs and issues, as well as providing opportunities for clients to gain support from the Client Services team and others with a diagnosis of MS. As it can often be difficult for everyone to attend daytime support groups, the team has listened to our clients and responded to feedback, now providing after hours groups on weeknights around the State, as well as one held on a weekend in the North West of our State. There has been some review of the smaller support groups and these will be further reviewed as the year goes on, however overall, all support groups are very well attended and from feedback received, these groups are vital for information sharing and support and are valued by our clients.

MS TASMANIA 2009/2010 ANNUAL REPORT

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“Within the Baha’i Centre in Hobart, tenets of health and wellbeing, as well as encouraging a whole of body approach to managing multiple sclerosis were explored during the weekend.”

As well as the direct support that the team provides, they also develop and implement many projects and meet with a plethora of external stakeholders such as Government representatives, allied health professionals, medical specialists and researchers. We deliver education and information sessions to external stakeholders and provide input into external submissions, such as comment into the “Review of the Tasmanian Disability Services Act 1992” and, in conjunction with the Neuro Muscular Alliance of Tasmania (NMAT), provided input into the “Productivity Commission’s Review of Life Long Care for people with Disability” for the Federal Government. The client services team also provides information into our Society’s responses to the “Quality Futures Framework” reporting against the standards as required by the Department of Health & Human Services. This has been positive as while responding to the first round of standards, the team identified areas where we could improve on both our service delivery and documentation. The team is always seeking quality improvement processes and best practice in service delivery, and to this end, will often review our model of service and support in line with our principles of self-management as well as within the boundaries of case management standards. Overall, it has been another very busy year in client service delivery. Through the skilled and dedicated Client Services team of the Society, our clients, their families and carers are able to receive timely and high quality support and services driven by the team’s desire to achieve positive outcomes and excellence in the services that they provide.

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Programs and Projects Wellness Weekends As part of the process described previously, in partnership with Biogen Idec, the ‘Self-Management for MS’ program was formally launched in late 2009, to take the lead in developing and reinforcing the skill sets of self-management amongst our clients, in a structured and evidence-based way that will empower them to become more effective and informed participants in their own health. A key part of this pilot project was the implementation of the first Wellness Weekend, held in December 2009 for southern Tasmanian clients living with MS. This concept arose from similar programs run by other MS Societies in Australia, although the format of a wellness day was modified to also meet local needs and also those of couples, becoming a two-day program and a wellness ‘weekend’. Held at the Baha’i Centre in Hobart, the program was designed to provide clients with information and the opportunity to try activities centred around the concepts of wellness and self-management. Keynote speakers were Dr Craig Hassed, a leading national speaker, who presented about the ‘essence’ of health, mindfulness and stress management, and


Client Services Report

“A great day. I enjoyed all activities – also the speakers and cooking demonstration. An extra special thank you to all” “I have learnt a great deal today and look forward to more sessions like this one” “Excellent knowledge and delivered gently and non-judgementally”

Getting in Touch Survey Robyn Moore, who spoke about positivity and the power of laughter. There was also a lively workshop on ‘Nourishment, Nutrition and the Nervous System’ presented by well known local cook Anja Boot with naturopath, Daniel Robson. The remainder of the weekend consisted of short sessions in massage, tai chi, Pilates, meditation, yoga, strength exercises and mind games to enhance cognitive function, as well as guest speakers Chris and Maryse Street who presented on healthy relationships and emotional wellbeing. Following the successful outcomes of the Wellness Weekend in southern Tasmania, and in recognition of our shared commitment towards enhancing the lives of people with MS across Tasmania, a similar event was held in Northern Tasmania in March 2010, at the Tamar Valley Resort. The Northern program’s fully subscribed format was changed and held over a single day after feedback from participants in Hobart suggested that presenting the program over one day might be more suitable for people with MS. Due to such positive comments from clients about the program on both occasions, and the enthusiastic audience participation in all sessions, it is expected that the Wellness Day will become an annual support and education event in each region.

The MS Society of Tasmania has been privileged to be involved with the Getting in Touch survey, funded by the Department of Health and Human Services Charitable Organisations Grant Program. Getting in Touch was conducted by the Neuro Muscular Alliance of Tasmania (NMAT) with the help of IMCLink, an independent organisation for collation and detailed analysis. This was the first comprehensive survey of its kind conducted in Tasmania, seeking information from Tasmanians living with Multiple Sclerosis, Spina Bifida, Muscular Dystrophy, Huntington’s Disease, Motor Neurone Disease and Parkinson’s Disease. The aim of the survey was to find how many people live in Tasmania with the above conditions, and what their current and future needs are, in order to influence future planning and provide evidence when working with Government to fill gaps in services. A final report will be received in late 2010, providing NMAT organizations with a high quality, evidencebased and relevant report upon which to refer to when working towards provision of enhanced services. The insight gained through this significant exercise assists all members of NMAT to understand and plan for client service delivery that responds to needs, resulting in a positive impact on Tasmanian client services for years to come.

MS TASMANIA 2009/2010 ANNUAL REPORT

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Client Servi ces R eport

“The couple’s weekends and other meetings with partners have been nothing short of fantastic. Without this opportunity, when faced with sinking or swimming, I would have taken the “sink” option.”

Couples Program – Live fully, laugh often, love always and other MS organisations through our website. It Following the successful Couples Program of 2008/9, in October 2009, The Couples’ Booklet, has sparked national and international interest and, ‘Live fully, Laugh often, Love always’ was launched most importantly, it is hoped that the booklet will be at the National MS Nurses be a rich and far reaching learning Australasia (MSNA) conference tool containing information written held in Hobart. The book is an by couples for couples. Living with MS information resource for couples The couples from our original Live fully, laugh often, love always living with MS, aimed to support A resource for couples living with MS and extend awareness of the pilot program continue to meet successful Couples’ Project, regularly, providing support for jointly funded by The Ian Potter each other and mentorship for Foundation and The MS Society other couples, while partners of Tasmania. now also meet bimonthly, sharing support and strategies. The Information for the booklet was project’s weekends away, held gathered during the project’s in Southern Tasmania during weekends away, group sessions 2008/9, will now be repeated for and in face to face meetings Northern clients during October with couples involved in the 2010 and March 2011. We’d program. Love Fully, Laugh like to sincerly thank Vodafone Often, Love Always was shared Foundation Australia for funding further with colleagues from the northern couples’ weekends, across the MS Australia network through a futher ensuring the benefits of the program continue to national conference and is now readily available to enhance the lives of people living with MS accross couples, carer organisations, relationship centres the state. T H E M U L T I P L E S C L E R O S I S S O C I E T Y O F TA S M A N I A

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Matthew proves that whatever disease or disability anybody suffers, you don’t have to stop doing what you love or what you aspire to achieve.

MyState MySport With thanks to funding from The MyState Financial Foundation and the development of the MyState MySport project, The MS Society of Tasmania was able to award financial assistance to families living with multiple sclerosis (MS). There were three rounds of applications assessed by an independent selection panel, with the first round of applications opening in September 2009 and the final round closing during March 2010. The project provided opportunities for 21 children who have parents living with MS, or like Matthew Bester, living with MS himself, to participate in a range of activities of their choice such as sporting, cultural or artistic pursuits. Some of the activities chosen by the children included Scouts, Girl Guides, swimming and diving lessons, lawn bowls and little athletics, as well as a skydive for Matthew Bester. When 19 year old Matthew Bester was diagnosed with MS at the age of 17, he thought his dream to skydive would no longer be possible because of his physical and financial situation. However on 10th February 2010 Matthew sky dived from 10,000 feet, landing in the Hobart regatta grounds amongst his family and a small crowd of very proud MS Society staff.

MyState Financial Foundation Chairman Tim Gourlay said, “MyState Financial Foundation was extremely pleased to provide $5000 to The MS Society of Tasmania to enable young people to participate in physical activities. What Matthew is doing is both inspirational and uplifting – skydiving. Matthew proves that whatever disease or disability anybody suffers, you don’t have to stop doing what you love or what you aspire to achieve.” The project enabled many children to participate in activities that would have ordinarily been unlikely due to the financial and physical symptoms often caused by MS. We thank the MyState Financial Foundation for the opportunity to enhance the lives of so many young Tasmanians affected by multiple sclerosis.

MS TASMANIA 2009/2010 ANNUAL REPORT

17


MS Research at the Menzies Centre

It has been another very busy and rewarding year for the MS research group at the Menzies Research Institute. Our research has focused on the genetic and environmental factors that lead to the development and progression of MS.

Genetics Last year we were part of a large Australian & New Zealand consortium that discovered two new areas within the human genome that increase the risk of developing MS. One area was in a gene that also predisposes people to developing rheumatoid arthritis, but interestingly the change in the gene acts in the opposite direction in MS, in that it tends to slightly increase the risk of having MS but decreases the risk of developing rheumatoid arthritis. The second area that we discovered was on chromosome 12 in an area that contains a lot of genes, including a gene that is involved in the conversion of vitamin D from its inactive to active form. We have spent the last year in collaboration with colleagues around the country trying to better understand the role of these two regions in the development of MS. We have also contributed to two very large international studies of MS. One funded by the Welcome Trust in the UK, that has analysed the genetic profile of some 20 000 people with MS from around the world, including people from Tasmania. This study is in the final stages of analysis and has found at least an additional 20 new genetic regions associated with MS. The second project is known as IMMUNOCHIP and looks at the genes found to be important in a large number of other disorders, such

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MS TASMANIA 2009/2010 ANNUAL REPORT

as Crohns disease or Diabetes, as well as MS, to try and find out whether there is overlap between these conditions. It is important to note that these genes only slightly increase a person’s risk of developing MS by usually 20 – 40% above the background risk of 1 per 1000 (i.e. 1.2 – 1.4 per 1000 lifetime risk). Therefore, analysing or knowing your own or family’s status of these genes is not helpful, in that they are individually very common in the population; often over 50% of people carry the particular variant, and MS people carry it 5 – 10% more. We and others are currently trying to better understand how we can use this data to improve our understanding of what causes MS. At the Menzies we are particularly interested in how the genes that encode the enzymes are associated with vitamin D’s metabolism and how actions are associated with the development and progression of MS. We have access to a large dataset of genetic information on over 2500 people with MS in Australia and New Zealand and are currently analysing this data, in the hope that we may better understand the genetic role of vitamin D pathways in MS.


MS RESEARCH AT THE M ENZIES CENTRE

“Of note, in Hobart the prevalence of MS is 126 per 100,000 people. The group that has the highest prevalence are women between 40 and 70 years of age.”

Vitamin D and MS Many people with MS in the Hobart region have participated in the MS longitudinal study. During the last year we have published data from this study that shows that as a person’s vitamin D level increases, their risk of relapse decreases. This is true up to a serum level of 100 nmoles per litre or so. We have no data above this level. This analysis was done by Steve Simpson one of our PhD students and was published in the Journal Annals of neurology. Interestingly, another group in the USA published at around the same time, in the same journal and found almost exactly the same effect. It is very important to note that this data is circumstantial evidence only that vitamin D is useful in treating relapsing MS. We have no data that shows that vitamin D in high dosages is safe or effective in the treatment of MS, and more studies are necessary.

MS in Tasmania We have just completed an analysis of MS prevalence in the greater Hobart region which builds on work done in 1961, 1981 and 2001 and has now been accepted for publication in the journal JNNP.

Once again PhD student Steve Simpson led this research. We have therefore been able to do a 50 year study of MS in Hobart and the findings were very interesting. The prevalence (number of people with MS per 100 000 population) has increased significantly since 1961, however the increase has levelled off since 1981 and there has been no significant increase since 2001. It is also interesting to note that the number of women with MS is steadily increasing whilst the number of men with MS is stable or falling slightly. We have known that more women get MS than men for 70 years, but the gap around the world is increasing and this is also the case in Hobart. We also found that the patterns of who is getting MS in Hobart has changed over the last 50 years. The influx of migrants into Tasmania from countries with a high risk of MS in the 1950 – 1970s (mainly the UK and Ireland) significantly altered the trends and patterns. With the ending of the assisted migration policy, the predominant group that is driving the changes seen are Australian born women. Of note, in Hobart the prevalence of MS is 126 per 100 000 people. The group that has the highest prevalence are women between 40 and 70 years of age.

Ongoing Projects The AUSLONG study is continuing. This is the extension of the AUSIMMUNE study where we are following up all people who had their first recorded attack of brain or spinal cord inflammation between 2004 and 2006. We are now doing a five year follow up of all cases and will hopefully have further

MS TASMANIA 2009/2010 ANNUAL REPORT

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MS RES EA RCH AT THE MENZIE S CENTRE

“We at the Menzies would like to thank all our participants once again and emphasise that we cannot do anything without you.� information by early 2012, as the last cases will be seen in December 2011. The AUSIMMUNE study has found that the level of sun exposure three years prior to the first inflammation event is lower in cases as opposed to controls, and at the time of the event vitamin D levels were also lower. We also found that attacks of inflammation were far more common in Tasmania than in Brisbane. The genetic studies are all continuing and we are still actively seeking participants to donate blood for these studies.

Future Plans We have submitted two large studies to the National Health & Medical Research Council to undertake two studies of vitamin D supplementation in people with MS. The first, if successful, will look at the role of vitamin D in people with relapsing remitting MS in Tasmanians only. If successful we will recruit 240 people to participate from all parts of Tasmania. The second study is an Australia and New Zealand wide study of people with a first attack of brain or spine inflammation that are at high risk of progressing to MS. We will again, if successful, examine the use of vitamin D in this situation to prevent or delay conversion to MS.

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MS TASMANIA ANNUAL REPORT 2010

Conclusions We have had a very successful year once again and I have outlined a few of the many ongoing projects that we are undertaking. We believe that we are making a significant contribution to the field of MS research and this is borne out by the significant interest that our work has generated internationally. We have received numerous invitations to speak internationally and locally about the research, and one of the strongest comments we get is that we must have a wonderful group of participants. This is absolutely true and is the reason why we have been able to make such a contribution. Basically we cannot do this type of work without the continued, wonderful support we receive from people with MS and their families. We at the Menzies would like to thank all our participants once again and emphasise that we cannot do anything without you. Thank you once again. Bruce Taylor Principal Research Fellow MS Research Group Menzies Research Institute


Client Profile: Angela Suhr “I have numbness, pins and needles and pain. I lose my balance easily and have episodes of serious fatigue. It took two years before I could talk about it without crying, but now I am learning to live with multiple sclerosis and so is my family.”

It took my family and I a couple of years to adapt to the changes, but communication has now improved and I can now talk about it without crying. I went back to work recently as a volunteer to try it out but the four hours was difficult for me. It was the social aspect I craved more than anything. I will keep going but I now know my limits.

It was 2007, I was 40 and I was very passionate about my family – my husband Cameron and two children Kiara and Corey. I was also passionate about my job in the Aged Care industry. Life was good. We were saving to buy our first house. In early October, I fell at work hitting my head. Then, three days after we moved into our new house I woke with numbness from the waist down. I thought I’d had a stroke. The next eight weeks threw our lives into chaos. There were hospital visits, MRI scans, many blood tests and a spinal tap. The Doctor diagnosed multiple sclerosis. I didn’t know what it was all about and was planning to get back to work when it suddenly seemed to go away. But it didn’t go away and I soon had to resign from work and the job I loved so much. I changed. I became really depressed and not at all happy with myself. I was really frustrated and missing my communication with work mates, friends and family who didn’t seem to be there any more. Our family finances took a big dive too and we struggled to cope with the way things were changing. My son took it hard and took a long time to adjust to changes in his Mum and the household. It put a lot of strain on our marriage and my husband had a rethink about his own employment. After I finished work we said goodbye to the idea of buying our house.

I am now learning to live with multiple sclerosis and so is my family. I have numbness, pins and needles and pain. I lose my balance easily and have episodes of serious fatigue, but I believe that everything happens for a reason and whatever happens in your life makes you a stronger person. The MS Society of Tasmania has been just fantastic throughout my journey. By attending support groups run by The MS Society I have made new friends who I meet on a regular basis. We’re able to lean on each other for support and as we often go through similar situations, we can share experiences and lend advice. I am now having treatment for my MS, however I know my wait for a cure has not yet ended. My husband and I were involved in the Couples Program run by Lynsey and Sharon, and it was a saviour for me and our marriage. I also attended the Wellness Weekend in Hobart last year, and gained a lot from the different selfmanagement techniques and concepts of wellness that were presented over the two days. I have also been asked to be an Advocate for The MS Society of Tasmania, a role I was honoured and pleased to accept. I didn’t choose to have MS, but I can choose to make the most of my future. Now that I know my limits, I’m looking at new ways to find a work-life balance that provides the social interaction I miss as well as allowing time and energy to spend quality time with my family.

MS TASMANIA ANNUAL REPORT 2010

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Marketing and Development Report World MS Day at the Royal Tasmanian Botanical Gardens. Left to right: Mrs Underwood, His Excellency The Honourable Peter Underwood AC Governor of Tasmania, Stuart Harris (Manager Marketing and Development) and Heather Francis (Chief Executive Officer).�

Overview In a competitive market it is increasingly important to raise the profile of the Society and the work carried out by the Client Services team in support of those living with MS across this state. The MS Society of Tasmania is privileged to be supported by incredibly loyal and generous donors and participants in our fundraising programs, which enables us to deliver this awareness whilst continually fundraising to enhance our service delivery and the quality of life for those we support. The marketing and development team was able to undertake and complete the planning and strategic stages of future fundraising programs including regular giving, as well as establishing new events whilst building on favourites such as the Moorilla MS Melbourne Cup. Donor data has been carefully analysed and segmented as well as undertaking a significant data acquisition. The benefits from this investment were confirmed with the record results achieved through our pre-tax direct mail which commenced in May 2010. Another key achievement of the marketing and development team has been the development and launch of the new website with a focus on assisting clients to easily find relevant and up to date information. Along with efforts to ensure consistent branding through publications and stationery, The MS Society has a clearly defined look that complements our MS logo which data verifies is recognized by over 30% of the Tasmanian community. The MS Readathon is conducted with the support of most Tasmanian schools. In 2010 over 100 schools from around the state supported the MS Readathon,

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MS TASMANIA 2009/2010 ANNUAL REPORT

with a total of 1,473 entrants participating in this year’s event. There is an article detailing some of the key highlights further in this report. With new benchmarks and programs being set for the 2010-2011 financial year, the marketing and development team will be introducing a range of new initiatives and closely monitoring the financial performance of current programs resulting in new and innovative ways to raise funds to support the provision of services to people living with MS, while continuing to build awareness and understanding across the broader community.

World MS Day and MS Awareness Week The second World MS Day was recognised globally on 26 May 2010 and in Tasmania helped to raise awareness among business professionals of the global MS movement, more specifically the effect MS has on employment capacity, as the global theme for 2010. To achieve this, a World MS Day corporate breakfast was held at the Royal Tasmanian Botanical Gardens, with a focus on highlighting the importance of awareness about MS and the effects this heightened


MARKETING AND DEVELOPMENT REPORT MS Society Ambassador, Larissa Bartlett with her husband, Premier David Bartlett and their two children, Hudson and Matilda”

The awareness campaign was highly successful, drawing in large amounts of media attention and gaining financial support from many generous donors. It is anticipated that this campaign will grow in future years, and will become a prominent national feature upon our calendar each year.

MSfest MSfest was once again a resounding success in 2010. Almost 13,000 Tasmanians from every corner of the state packed Inveresk in Launceston to enjoy the state’s largest, one-day music festival. Delivered in partnership with OP Consulting, MSfest 2010 raised much-needed funds to assist us in continuing our important work, while also providing funds for local research.

awareness can have on the lives of those living with MS in our state. Attending the breakfast were our Patron, His Excellency, The Honourable Peter Underwood AC, Governor of Tasmania and his wife Mrs Underwood, as well as leading business and medical research professionals from around the state, Tasmanian MS clients and MS Society staff.

The prominent position of The MS Society’s site at the 2010 event resulted in an extension of our message to the majority of the crowd. MS branded drink bottles quickly sold out, and resulted in a moving sea of red at all event areas. In order to measure the awareness about MS at the event, Op Consulting conducted a spot survey of patrons asking if they knew what MS stood for, and if they were aware of the symptoms or challenges faced by those living with the condition. Results showed that while the majority of people knew that MS stood for multiple sclerosis, we have much to do amongst this demographic to increase awareness of the disease, the common symptoms and associated facts.

The information shared was well received by those in attendance and we understand that much of this information has continued to be shared more broadly. We would like to thank The Royal Tasmanian For MSfest 2011, The MS Society will seek to raise further awareness about MS, not only on the day, but Botanical Gardens and Manpower Employment for their significant support and sponsorship of this event. also in the lead up to the event through linking key messages to promotional advertising of the festival Following the breakfast, His Excellency planted a and through a new MSfest fundraising initiative. Betty Cuthbert Rose in the Botanical Gardens to mark the significance of the day in a lasting and more public manner. The rose was then released in most Tasmanian nurseries during MS Awareness Week, with $1.00 from the sale of each rose, donated to MS Australia. MS Awareness Week was celebrated by our Society from 31 May – 6 June 2010 by continuing to host events in Hobart, Launceston and Devonport to ‘Kiss Goodbye to MS’, a new national campaign for 2010.

MS TASMANIA 2009/2010 ANNUAL REPORT

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MAR KE TING AND DEVELOPM ENT REPORT

Sunday 4 October 2009 @ 3pm Harbour View Room Hotel Grand Chancellor, Davey Street, Hobart Cost $35 per person

Over 100 guests attended to enjoy a relaxing afternoon with Get a group of friends togther and come along to enjoy a relaxing Sunday afternoon ofmore high tea friends while learning and scrumptious indulgence! about MS and the work of our ALL PROCEEDS FROM THIS EVENT WILL SUPPORT For bookings Di or Jane to on 6220 1111 RSVP by Tuesday 29th September, 2009 TASMANIANS LIVING WITH MS Society, and phone helping raise funds for our Society.

High Tea over the Harbour

Website Upgrade

Delicate cucumber sandwiches, scrumptious petit-fours, elegant surroundings and bubbling champagne were the order of the day at High Tea over the Harbour held at the Grand Chancellor Hotel, Hobart in October 2009. Over 100 guests attended to enjoy a relaxing afternoon with friends while learning more about MS and the work of our Society and helping to raise funds for our continued activities. One of our clients, Lynda Hanlon, also told her story, sharing with guests what it is like to live with MS as she explained a very personal journey.

After receiving grant funding from the Tasmanian Community Fund, foundational work began in October 2009 to revamp our existing website, to improve the layout and content of the site and to make it far more user-friendly for all, most especially our clients.

The event was so popular, that another High Tea over the Harbour was held in March 2010, with a further one to be held in September 2010.

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Red Diamond Event

MS Society of Tasmania invites you to a Red Diamond Event

MS TASMANIA 2009/2010 ANNUAL REPORT

The website was launched in April this year, after taking the advice of key partners to ensure that the new site better met the requirements of our clients and the broader community, now and in the future. The site provides users with credible and current information from our own Society and major partners, through a simple and logical format. With community fundraising activities and events becoming increasingly popular, the new website allows us to share information on how the broader community can support us. Our recent news section also enables us to publish current news stories as they arise, ensuring that our website remains up to date and relevant to all who refer to it.


In 2009, 1778 generous and community spirited participants read over 24,000 books and returned $140,422 in sponsorship money for people living with MS.

MS Readathon and The Novel Challenge In 2009, the 30th anniversary of the MS Readathon was celebrated across the nation. Almost 1800 generous and community spirited participants read over 24,000 books and returned significant sponsorship money for people living with MS. There were some impressive individual and school results in our state particularly: • Sarah Dixon was again the state’s highest fundraiser, raising an amazing $4160; • The Friends School took out the two top honours of being the highest fundraising school ($4662.45) as well as having the highest number of students completing the program (41); • Christopher Oakley received a special achievement award for his outstanding seven year contribution to the MS Readathon; and • 21 team members from Grade 5/6 Niebuur at Launceston Christian School raised $579 to take out the outstanding team effort award. The start of 2010 saw the purchase of an MS Readathon mascot suit, ‘Bosko’. Amongst other commitments, Bosko visited schools, Eastlands Shopping Centre, Hobart Library and the Kiss

Goodbye to MS event on Parliament lawns to meet kids and encourage them to participate in the MS Readathon Great Wildlife Adventure, a new theme for 2010 supported by Bindi and Robert Irwin. Our MS Readathon community representatives visited 57 schools throughout April and May and in extending reading time to any 30 days in June, July and August, 1483 Tasmanian students registered for this year. Bosko also helped to launch the MS Readathon Great Wildlife Adventure at a special book reading event at Book City at Eastlands Shopping Centre on June 1st. Heather Francis, CEO of MS Society of Tasmania, Lynda Hanlon, MS Ambassador and local authors, Steve and Marion Isham all read a story to kick start reading and to help raise awareness of MS. The Novel Challenge was launched in April to attract a new adult demographic to the reading event, and 26 Tasmanians registered to help those living with MS. After a great start, this program is poised to grow and provides a positive way to further engage our broader communities in supporting those living with MS and raising awareness of this mystery disease.

MS TASMANIA 2009/2010 ANNUAL REPORT

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Acknowledgements Patron

Recognition of Service

The Hon Peter Underwood AO Governor of Tasmania

Mr Graeme Badcock, 2000 Mrs Doris Leonard, 2000 Mrs Elizabeth Robb OAM, 2000

Honorary Neurologists Dr Bruce Taylor FRACP Dr Stan Siejka FRACP (dec.) VALE: The Board, CEO, staff and clients of The Multiple Sclerosis Society of Tasmania acknowledge the tragic and sudden passing of Dr Stan Siejka who provided dedicated neurological care and support to many Tasmanians living with MS. We extend heartfelt condolences to his family.

Mrs Marion Roberts, 2000 Mrs Fay Turner, 2000 Mr John Tyquin (dec.), 2000 Miss Nikki Mathers, 2001 Mrs Sue Armes, 2001 Mrs Olive Parker, 2001 Mrs Maureen Poke, 2001 Miss Jean Russell (dec.), 2001 Mr Joeseph Ratcliffe, 2004 Dr Bruce Taylor, 2004

Life Members

Mr Jack Wivell, 2005 Mr Alan Davis (dec.), 2006

The Hon Brian Miller AM JP (1969)

Ms Marlene Pegus, 2007

Mr Noel Kirby (1983)

Ms Helen Connor-Kendray, 2008

Miss Freda Mary McClea (1992)

Interhash 2000, 2000

Mr Robert Fay (1992)

Teddy Bear Club, 2000

Miss Jean Russell (1992)

The Advocate, 2000 The Examiner , 2000

Bequests The MS Society of Tasmania truly appreciates the generosity of people who nominate our organisation as a beneficiary to their Estate. By leaving a bequest, you are helping us to continue to provide much needed support for Tasmanians living with MS every day, while our search for a cure continues. We are deeply grateful for the forethought of those people who have chosen to leave a gift to The MS Society of Tasmania in their Will. The research activities and support services provided by The MS Society of Tasmania have been greatly assisted and strengthened through this wonderful bequest funding.

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MS TASMANIA 2009/2010 ANNUAL REPORT

The Mercury, 2000 Southern Cross Television, 2000 WIN Television, 2000 Bayer Schering Healthcare Ltd, 2001 Merck-Serono, 2001 Dr Stan Siejka, 2009 Mrs Jane Hope, 2009


Thanks 7HOFM 9/11 Bottle Shops ABC Radio ABC Shop Aristos Health & Beauty Aspect Tamar Valley Resort Bayer Schering Healthcare Baha’i Centre Ball & Chain Grill Bellerive Yacht Club Billie-Jo Fashions Biogen Idec Body Stop in the Bay BPSM Architects Bunnings Warehouse Charitable Organisations Grants Program Circular Head Rural Health Services Community Rehabilitation Unit Co-Op Toyota Cradle Coast Health Centre Cutie Cupcakes Cygnet Community Health Centre Davis Langdon Australia Department of Health & Human Services Community Support Levy Edge Radio Endota Spa Exit Left Glenorchy Civic Centre Graeme Bowman Enterprises Guinness Appreciation Society Hawthorn Football Club Helping Hand Auctions Hove & Halys – Chartered Accountants Huon Community Health Centre Ian Potter Foundation IMC Link IRIS Computing LA FM Launceston Cycling Classic Inc. Lions Club of Kingborough Magnolia Cafe Manpower Recruitment Marcus Ralph Archicad Contractor Menzies Research Institute

Merck – Serono Moorilla Mr Ron Gifford – Project Manager Mrs Larissa Bartlett Multiple Steps Forward Myer Community Fund MyState Financial Foundation Neuro Muscular Alliance of Tasmania New Norfolk Community Centre Oatlands Community Radio Page Seager Lawyers Pennicott Wilderness Journeys Peppermint Bay Cruises Personal Best Fitness Pitt & Sherry Holdings Pty Ltd PML RACT Travel Red Decker Bus Company Rotary Club of Central Launceston Royal Tasmanian Botanical Gardens Salamanca Pharmacy Sandy Bay Massage Centre Sanofi-Aventis Sargison’s Jewellers SeaFM Devonport Shanley & Shanley Design Slevin Construction Smolt State Library of Tasmania Stefano Lubiano Wines Stoneman’s Garden Centre Store & Co St Patrick’s College Tadpac Print Tahune Airwalk Tas Air Tasmanian Community Fund Tasmanian Symphony Orchestra Tasmanian Theatre Unit Trust Terry White Chemist The Advocate Newspaper The Branch Christian Church The Examiner Newspaper The Mercury Newspaper Treloar Roses Ultra 106.5FM

MS TASMANIA 2009/2010 ANNUAL REPORT

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Corporate Services Report

At an operational level the 2009-2010 financial year has been one where the Corporate Services Unit has continued to extend a strong focus on The Society’s capacity to demonstrate compliance under the Quality and Safety Standards for Agency funded Community Sector organisations. In addition, The Society has pursued development of appropriate policy, procedures and systems that will support a forward direction along a continuous quality improvement pathway towards accreditation under external Quality Improvement Council standards. The new industrial relations legislation, introduced under the Fair Work Act 2009, provided a further challenge in managing compliance under this altered IR landscape, with the final stages of the new legislation coming into effect on 1 January 2010 in the form of the new modern awards and associated transitional arrangements in relation to changed wage rates, allowance and shift penalties. It is widely acknowledged that the cost of compliance is becoming an increasing issue for community funded organisations, both in ensuring that the necessary ‘physical’ systems are in place to support ethical and professional accountability to our key stakeholders, whilst also in investing the required workforce hours and development necessary to ensure that our staff have the appropriate skills and competencies to meet (and exceed) the required level of compliance across all three business units. We are fortunate that The Society is in a sound financial position to enable this amount of ‘in-kind’ investment in our further development to occur for the ultimate benefit of our clients.

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MS TASMANIA 2009/2010 ANNUAL REPORT

People and Culture The Society worked a total of 42,535 hours for the year, with a total salary, wages and superannuation expense of $1,201,224 representing a significant investment in our people and our clients. Staff numbers as at 30th June, 2010 was a full time equivalent [FTE] of 21 with a head count of 28. This compares favourably with 2009 numbers of 22 FTE and a head count of 30.

Total Hours worked by Business Unit FY 2009/10 20000 15000 10000 5000 0

Client Services

Corporate Services

Marketing & Call Centre


CORPORATE SERVICES REPORT

“Our challenge is now to continue to make best use of this technology and this has implication for training and development”

Information Technology The Society commenced a planned upgrade of IT hardware and software during 2010 with the majority of this work being completed in February 2010. This was achieved at a budgeted capital expense of $30,000. Work undertaken included; increasing the Internet connectivity through Netspace to ADSL2+ for Hobart, Launceston, and remote data connections; purchasing a new primary server and Windows 2008 R2 server software to replace the former CITRIX systems; adoption of WYSE terminal technology to achieve common use of the same suite of software throughout The Society and reconfiguring remaining PC’s to Wyse terminals; upgrade of selected laptops and also a colour printer for our Launceston office. We also purchased eleven new screens, to ensure achievement of contemporary occupational health and safety standards and transferred our previous primary server to support our email system. An upgrade of existing Office 2003 to Office 2007 software was also undertaken. All data was migrated to the new server and backup systems were also replaced to address any concerns

in the event of server failure. We also improved remote access connectivity via remote desktop applications and instigated new remote web to give staff the ability to connect to files and folders off site. The Society also upgraded and changed our backup scheduling to achieve multiple daily backups of the main data server with our email server remaining on a once daily backup cycle. This was a major activity overseen by the Corporate Services unit during the year in conjunction with Iris Computing and sincere appreciation must go to Sue Anderson in her role as the Society’s Database Administrator, who took on a leadership role with IT during the year (and consequently a new title as our Information and Systems Officer) together with John Wiggins, the Senior IT Technician with Iris Computing, with whom The Society has had a long standing relationship with. Our challenge is now to continue to make best use of this technology and this has implication for training and development and also continual appropriately planned upgrades as remaining elements of obsolete equipment come to the end of a useful life.

MS TASMANIA 2009/2010 ANNUAL REPORT

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CO RPOR ATE SERVIC ES REPORT

3,000,000

Bequests

2,500,000

Rent/Interest/Other Pharmaceutical Sponsorship

2,000,000

Government Assistance

1,500,000

Fundraising

1,000,000 500,000 0

400,000 350,000 300,000 250,000 200,000 150,000 100,000 50,000 0 -50,000

2005

2006

2007

2008

2009

2010

Income Trends 2005 – 2010

Net Operating Surplus/Deficit Trends 2005 – 2010 2005

2006

2007

2008

2009

2010

Income Indicator Trends vs. Net Operating Surplus/Deficit As can be demonstrated in the charts above, government funding has remained proportionately stable across this time in line with other income streams fluctuating depending on economic conditions prevailing at the time, ie the effect of the GFC in 2008 and 2009. The RBA’s monetary policy over 2009-10 had significant impact on The Society in that we did not receive the same level of return on our cash investments as in previous financial years. This was a result of the cash rate being at its lowest point in nearly 40 years (3% in October 2009) for much of the first quarter of the financial year, with rates moving slowly upwards as the RBA embarked on a process to remove the emergency stimulus

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MS TASMANIA 2009/2010 ANNUAL REPORT

response to the GFC by lifting rates by a quarter of a percent in October, November and December 2009 and then in March, April and May 2010. For The Society this meant a decrease of $15,500 in investment earnings compared to 2009, despite an increase of $45,000 in cash and financial assets held. It will be a priority area for Corporate Services to work with the Board through the Finance and Audit committee and our financial partners in developing an appropriate investment policy and framework that will provide strategy and structure in balancing our return with the level of risk we are prepared to undertake, whilst also demonstrating appropriate governance.


Financial Report Multiple Sclerosis Society of Tasmania (A Company Limited by Guarantee) ACN 009 484 093

Please note: The notes form part of these financial statements. A full audited set of the Financial Statements of the Multiple Sclerosis Society of Tasmania for the year ended 30th June 2009 are available by request to: Chief Executive Officer 15 Princes Street Sandy Bay Tasmania 7005 Telephone: 03 6220 1111

Directors’ Declaration

32

Directors’ Report

33

Independent Auditor’s Report

36

Auditor’s Independence Declaration

37

Statement of Comprehensive Income 39 Statement of Financial Position

40

Statement of Changes in Equity

41

Statement of Cash Flows

42

MS TASMANIA 2009/2010 ANNUAL REPORT

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DIRECTORS’ D E CLARATI ON

Directors’ Declaration FOR THE YEAR ENDED 30 JUNE 2010 The Directors of the Society declare that: 1. The financial statements and notes, as set out on pages 8 to 30 are in accordance with the Corporations Act 2001: (a) comply with Australian Accounting Standards; and (b) give a true and fair view of the financial position as at 30 June 2010 and of the performance of the Society for the year ended on that date. 2. In the directors’ opinion there are reasonable grounds to believe that the Society will be able to pay its debts as and when they become due and payable. This declaration is made in accordance with a resolution of the Board of Directors. On behalf of the Directors

Geoff Chapman Chairman of Directors Dated this 30th day of September 2010

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MS TASMANIA 2009/2010 ANNUAL REPORT


DIRECTORS’ REPORT

Directors’ Report Your directors present this report on the Society for the year ended 30 June 2010. Directors The names of each person who has been a director during the year and to the date of this report are: Geoff Chapman

Margaret Hunyady-Sutherland

David Hopkins

David Nowell

Margaret Hunter

Paul Stevens

Sharlene Brown (joined October 2009)

Paul Gray (joined October 2009)

Directors have been in office since the start of the financial year to the date of this report unless otherwise stated.

Company Secretary The following person held the position of the Society’s secretary at the end of the financial year: Heather Francis

Meetings of Directors During the financial year, 8 meetings of directors were held. Attendances by each director were as follows: Board Meetings

Number Eligible

Number Attended

Geoff Chapman

8

8

David Hopkins

8

7

Margaret Hunter

8

6

Margaret Hunyady-Sutherland

8

5

David Nowell

8

8

Paul Stevens

8

6

Sharlene Brown

5

3

Paul Gray

5

5

Heather Francis

8

8

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DIRECTORS’ REPO RT

Principal Activities The principal activities of the Society during the financial year were to ensure the preservation, maintenance and improvement of the independence and self-determination of people with multiple sclerosis and people with physical disabilities by providing appropriate support services for them, their families and care givers. No significant changes in the nature of the Society’s activities occurred during the financial year.

Financial Results The Society’s Net Surplus (Deficit) from ordinary activities for the year ended 30 June 2010 was $318,058. (2009 $379,618).

Review of Operations The Society’s total income for the year was $2,151,356 (2009 $2,346,517).

Significant Changes in State of Affairs No significant changes in the Society’s state of affairs occurred during the financial year.

After Balance Date Events No matters or circumstances have arisen since the end of the financial year which significantly affected or may significantly affect the operations of the Society, the results of those operations, or the state of affairs of the Society in future financial years.

Future Developments The Society expects to maintain the present status and level of operations and hence there are no likely developments in the Society’s operations.

Environmental Issues The Society’s operations are not regulated by any significant environmental regulation under a law of the Commonwealth or of a State or Territory.

Proceedings on Behalf of The Society No person has applied for leave of Court to bring proceedings on behalf of the Society or intervene in any proceedings to which the Society is a party for the purpose of taking responsibility on behalf of the Society for all or any part of those proceedings. The Society was not a party to any proceedings during the year.

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MS TASMANIA 2009/2010 ANNUAL REPORT


Indemnifying Officers or Auditor During the financial year, the Society paid insurance premiums to insure the Directors and Officers past and present to the extent available by law. The terms of the insurance contract preclude disclosure of further details. No indemnities have been given or insurance premiums paid during or since the end of the financial year, for any person who is or has been an auditor of the Society.

Dividends The Society’s memorandum specifically prohibits the payments of a dividend or a bonus by way of profit to members of the Society. Therefore the directors do not recommend payment of a dividend for the year.

Auditor’s Independence Declaration The auditor’s independence declaration for the year ended 30 June 2010 has been received and can be found on page 7 of the directors’ report. Signed in accordance with a resolution of the Board of Directors.

Geoff Chapman Chairman of Directors Dated this 30th day of September 2010

MS TASMANIA 2009/2010 ANNUAL REPORT

35


indep end ent aud itor’ s REPORT

Independent Auditor’s Report to the Members of Multiple Sclerosis Society of Tasmania We have audited the accompanying financial report of The Multiple Sclerosis Society of Tasmania, which comprises the balance sheet as at 30 June 2010 and the income statement, statement of recognised income and expenditure and cash flow statement for the year ended on that date, a summary of significant accounting policies and other explanatory notes and the directors’ declaration.

The Responsibility of the Directors for the Financial Report The directors of the company are responsible for the preparation and fair presentation of the financial report in accordance with Australian Accounting Standards (including the Australian Accounting Interpretations) and the Corporations Act 2001. This responsibility includes designing, implementing, and maintaining internal control relevant to the preparation and fair presentation of the financial report that is free from material misstatement, whether due to fraud or error; selecting and applying appropriate accounting policies; and making accounting estimates that are reasonable in the circumstances.

Auditor’s Responsibility Our responsibility is to express an opinion on the financial report based on our audit. We conducted our audit in accordance with Australian Auditing Standards. These Auditing Standards require that we comply with relevant ethical requirements relating to audit engagements and plan and perform the audit to obtain reasonable assurance whether the financial report is free from material misstatement. An audit involves performing procedures to obtain audit evidence about the amounts and disclosures in the financial report. The procedures selected depend on the auditor’s judgement, including the assessment of the risks of material misstatement of the financial report, whether due to fraud or error. In making those risk assessments, the auditor considers internal control relevant to the Society’s preparation and fair presentation of the financial report in order to design audit procedures that are appropriate in the circumstances, but not for the purpose of expressing an opinion on the effectiveness of the Society’s internal control. An audit also includes evaluating the appropriateness of accounting policies used and the reasonableness of accounting estimates made by the directors, as well as evaluating the overall presentation of the financial report. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our audit opinion.

Independence In conducting our audit, we have complied with the independence requirements of the Corporations Act 2001. We confirm that the independence declaration required by the Corporations Act 2001, provided to the directors of Multiple Sclerosis Society of Tasmania on 14 September 2009 would be in the same terms if provided to the directors as at the date of this auditor’s report.

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MS TASMANIA 2009/2010 ANNUAL REPORT


Auditor’s Opinion In our opinion, the financial report presents fairly, in all material respects, the financial position of Multiple Sclerosis Society of Tasmania as of 30 June 2010, and its financial performance and cash flows for the year then ended in accordance with the Corporations Act 2001 and the Australian Accounting Standards (including Australian Accounting Interpretations). HOVÉ & HALYS

A. I. HOVE FCA Registered Company Auditor (No. 15382) Hove & Halys Chartered Accountants 29 Salamanca Place Hobart TAS 7000 Dated this 30th day of September 2010

MS TASMANIA 2009/2010 ANNUAL REPORT

37


inde pe ndent aud itor’s DECLARATI ON

Auditor’s Independence Declaration Under Section 307C of the Corporations Act 2001 to the Directors of Multiple Sclerosis Society of Tasmania I declare that, to the best of my knowledge and belief, during the year ended 30 June 2010 there have been i) no contraventions of the auditor independence requirements as set out in the Corporations Act 2001 in relation to the audit; and ii) no contraventions of any applicable code of professional conduct in relation to the audit. Hové & Halys

A. I. HOVE FCA Registered Company Auditor (No. 15382) Hove & Halys Chartered Accountants 29 Salamanca Place Hobart TAS 7000 Dated this 30th day of September 2010

38

MS TASMANIA 2009/2010 ANNUAL REPORT


Statement of Comprehensive Income FOR THE YEAR ENDED 30 JUNE 2010 Notes

2010 $

2009 $

3

2,151,356

2,346,517

Fundraising prizes

(109,081)

(78,534)

Employee expenses

(1,201,224)

(1,136,172)

Postage, printing & stationery

(102,090)

(76,204)

Telephone expenses

(40,092)

(46,517)

Depreciation and amortisation expenses

2

(60,983)

(64,158)

Other expenses from ordinary activities

(319,828)

(565,314)

Surplus (Deficit) from ordinary activities before Income tax expense

318,058

379,618

0

0

318,058

379,618

Revenues from ordinary activities

Income tax expense relating to ordinary activities

1(a)

Net Surplus (Deficit) from ordinary activities after Income tax expense

The accompanying notes form part of these financial statements.

MS TASMANIA 2009/2010 ANNUAL REPORT

39


Statement of Financial Position AS AT 30 JUNE 2010 Notes

2010 $

2009 $

ASSETS CURRENT ASSETS Cash and Cash Equivalents

5

54,280

98,024

Trade and Other Receivables

6

90,155

118,726

Financial Assets

8

944,348

855,570

Other Assets

9

46,098

93,367

TOTAL CURRENT ASSETS

1,134,881

1,165,687

NON CURRENT ASSETS Financial Assets

8

742,570

434,000

10

1,921,402

1,895,051

TOTAL NON CURRENT ASSETS

2,663,972

2,329,051

TOTAL ASSETS

3,798,853

3,494,738

Property, Plant and Equipment

LIABILITIES CURRENT LIABILITES Trade and Other Payables

11

35,626

61,352

Short-term Provisions

12

128,140

259,030

Other Liabilities

13

142,059

87,484

TOTAL CURRENT LIABILITIES

305,825

407,866

12

36,711

40,397

TOTAL NON CURRENT LIABILITIES

36,711

40,397

TOTAL LIABILITIES

342,536

448,263

NET ASSETS

3,456,317

3,046,475

NON CURRENT LIABILITIES Long-term Provisions

EQUITY

40

Accumulated Surplus

17

1,294,183

1,372,681

Reserves

16

2,162,134

1,673,794

TOTAL EQUITY

3,456,317

3,046,475

MS TASMANIA 2009/2010 ANNUAL REPORT


Statement of Changes in Equity FOR THE YEAR ENDED 30 JUNE 2010

Note

Balance at 30 June 2008

Retained Asset Earnings Revaluation Reserve $ $

Bequests & Major Donations Reserve $

Capital Reserve

General Reserve

Total

$

$

$

1,688,654

788,884

0

72,442

379,618

0

0

0

0

379,618

Revaluation increment

0

21,500

0

0

0

21,500

Total revenues, expenses 2 and valuation adjustments attributable to members recognised directly in equity

(104,624)

0

0

0

0

(104,624)

Transfers to reserves

(590,968)

0

590,968

0

0

0

Balance at 30 June 2009

1,372,681

810,384

590,968

72,442

200,000 3,046,474

Balance at 30 June 2009

1,372,681

810,384

590,968

72,442

200,000 3,046,474

318,058

0

0

0

0

318,058

Revaluation increment

0

91,784

0

0

0

91,784

Total revenues, expenses and valuation adjustments attributable to members recognised directly in equity 2

0

0

0

0

0

0

Transfers to reserves

(396,556)

0

396,556

0

0

0

Balance at 30 June 2010

1,294,183

902,168

987,524

72,442

Surplus attributable to the Society

Surplus attributable to the Society

200,000 2,749,980

200,000 3,456,317

MS TASMANIA 2009/2010 ANNUAL REPORT

41


Statement of Cash Flows FOR THE YEAR ENDED 30 JUNE 2010 Note

2010 $

2009 $

Fundraising

1,040,118

923,516

Government Assistance

486,142

533,079

Pharmaceutical Company Sponsorship

69,152

162,788

Interest

28,096

43,570

Rent Received

92,704

63,969

Other Inflows

27,898

223,509

Bequests

87,987

160,670

Book Sales

5,492

2,071

Payments to Suppliers and Employees (including service providers)

(1,757,232)

(1,995,238)

18(a)

80,357

117,934

Proceeds from sale of Property, Equipment & Motor Vehicles

0

66,910

Payments for Property, Plant and Equipment

(35,322)

(125,726)

Net Cash used in Investing Activities

(35,322)

(58,816)

Repayment of Borrowings

0

(25,608)

Deposits in Term Investments

(88,779)

10,253

Net Cash used in Financing Activities

(88,779)

(15,355)

NET INCREASE/ (DECREASE) IN CASH HELD

(43,744)

43,763

Cash at the beginning of the financial year

98,024

54,261

Cash at the end of the Financial Year

54,280

98,024

Cash Flows From Operating Activities

Net Cash provided by Operating Activities

Cash Flows from Investing Activities

Cash Flows from Financing Activities

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MS TASMANIA 2009/2010 ANNUAL REPORT

18(b)


MS Facts u

Multiple Sclerosis affects the central nervous system by interfering with the transmission of nerve impulses throughout the brain, spinal cord and optic nerves.

u

Tasmania has the highest incidence of MS in Australia.

u

The MS Society of Tasmania responds by providing nursing care, counselling support, information and resources to those affected by MS across the state. This support also extends to family, friends and carers of those affected.

u

MS is neither contagious nor directly inherited, although studies indicate that genetic factors may make certain individuals more susceptible to the disease.

u

Symptoms of MS may include extreme tiredness (fatigue), impaired vision, loss of balance and muscle co-ordination, slurred speech, tremors, stiffness, bladder and bowel problems, difficulty walking, short term memory-loss, mood swings, and, in severe cases, partial or complete paralysis.

u

An estimated 2.5 million people in the world are living with MS, including around 20,000 Australians.

u

MS affects three times as many women as men.

u

The average age of diagnosis of MS is 30 years of age.

u

Despite intense, world-wide research, the cause of MS is still unknown and there is no cure.

MS TASMANIA 2009/2010 ANNUAL REPORT

43


Head Office 15 Princes Street Sandy Bay TAS 7005 Tel: 03 6220 1111 Northern Regional Office 18/2 Innocent Street Kings Meadows TAS 7250 Tel: 03 6343 1240 Freecall South: 1800 676 721 North: 1800 654 872 www.msaustralia.org.au/tas

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MS TASMANIA 2009/2010 ANNUAL REPORT


Annual Report 2010