Programs April • May • June
MS in the Workplace Page 4 Finding Emotional Support Page 22 Community Groups Page 25 Counseling
National Multiple Sclerosis Society Southern California Chapter
National Multiple Sclerosis Society Southern California Chapter 310.479.4456 1.800.344.4867 nationalMSsociety.org/cal
If You or Someone You Know Has MS... Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society (NMSS) at 800.344.4867 or www.nationalMSsociety.org to learn about ways to help manage MS and about current research that may one day reveal a cure. Information provided by the NMSS is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician. The NMSS does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned. © 2010 NMSS, Southern California Chapter, Issue 1 - Published Triannually
A Helping Hand When It’s Needed Most We offer financial assistance through the Direct Assistance Program to individuals with MS and their families to help access needed services that are not available using other resources (private insurance, Medicare, MediCal). The program is based on financial need and offers funding for the following services: Rhoda Goetz Personal Care Fund: • Beauty/Wellness: A fund to assist individuals who are faced with financial, logistical or physical barriers to maintaining healthy personal hygiene and care. Gain access to services such as hair, skin and nail care. • In-Home Assistance Support: 8 consecutive days, 4 hours/day after a hospital stay or exacerbation. Must use licensed home care agency. • Chore Service Program: Assistance for house cleaning service. Limit: up to $300 per fiscal year. Durable Medical Equipment: Share of cost for durable medical equipment (wheelchairs, hand rails, etc.) if not covered by insurance. Limit: up to $400 per year. Sherak Emergency Fund: Funding for unexpected onetime situations (food, rent, utilities). Official documentation demonstrating proof of emergency is required with application. Limit: up to $300 per year. Physical/Occupational/Speech Therapy: In-home evaluation and five to six follow-up visits for a person who cannot leave home and whose insurance will not cover this service. Grisanti Respite Fund: Provided through a licensed home care agency for the family member who is a full-time care partner and needs time off. Share-of-cost basis. Up to 6 days/year, up to 12 hours/day. Supporting the Family: A fund to take care of special out-of-theordinary family needs (i.e. school pictures, sports uniforms, etc.). Limit: up to $300 per year. Checks are made out and sent directly to the vendor. For more info about financial assistance, call 800.344.4867 or 310.479.4456 or visit nationalMSsociety.org/cal to download an application.
Table of Contents
Table of Contents
What’s inside? Find programs near you... Access these programs from the comfort of home MS in the Workplace Taking Care of Your Money Hiring Help at Home Book Club Dodgers Tickets Peer Support Professional Counseling
4 4 5 8 8 24 25
Worth the Drive MS Mountain Getaway Weekend Getaway for Teens July 4th at the Hollywood Bowl Bilingual Family Day
7 9 10 11
Inland Empire/Coachella Valley Serving Riverside, San Bernardino and Inyo Counties Active Choices The ABC’s of the ADA MS Specialty Care IEAMS Community support groups
14 15 15 15 23
Los Angeles County FallProof Fall Prevention Active Choices Ask the Pharmacist Advocacy and MS Canine Companions Community support groups
6 6 12 16 16 17 22
Channel Islands Serving Ventura, Santa Barbara and San Luis Obispo Counties FallProof Active Choices Emotional Wellness Resiliency Stress is What You Make of It MS Community Circle Community support groups Art of Safe Transfer
6 13 18 18 19 19 23 26
San Joaquin Valley Serving Bakersfield, Fresno, Kings, Madera and Tulare Counties Fall Prevention Active Choices Eating Well, Eating Easy CogniFitness Beat the Central Valley Heat New MS Care Center Community support groups
6 14 20 20 21 21 24
SIGN ME UP!
You can register for all of the programs listed inside by: Mail or fax Phone Online Programs Connection 3
Learn from Home: Teleconference
MS in the Workplace Get strategies and resources to assist you in entering, re-entering, or staying in the work force, even as you cope with the unpredictability of MS. You will learn about… • Federal laws that provide employment protection to Americans with MS • How to request & implement reasonable accommodations in the workplace • Disclosure in the workplace
Featured presenter: Phillip Rumrill, PhD, CRC, is a Professor of Rehabilitation Counseling and Director of the Center for Disability Studies at Kent State University in Ohio. He also operates the MS Employment Assistance Service in conjunction with several chapters of the National MS Society. Cost: FREE Wednesday, May 19 • 6:00 – 7:30 pm At-home, toll-free teleconference
• Planning for retirement
Taking Care of Your Money Is this the year you finally get control of your money... and would you like a financial coach? Are you serious about reducing your debt? Is it time for you to EARN interest rather than to PAY interest?
Bell, co-founder of the Financial Education Partners (FEP) program which is supported by the Foundation for Financial Service Professionals (FSP). Bell has been partnering with the National MS Society for many years. He is also CEO of Bell Financial in Calabasas, CA.
Would you like some foolproof steps for building The FEP program matches FSP members who an emergency fund that will let you sleep better are willing to share their expertise in financial planning and insurance issues on a pro bono at night? basis with those who are in need. Do you really understand how to maximize your Cost: FREE employee benefits? If you answered “YES” to any of these questions, join this valuable teleconference, featuring Dick
Thursday, April 22 • 6:00 – 7:00 pm At-home, toll-free teleconference
Sign me up! One week prior to the program you will receive the toll-free dial-in number.
Mail or fax form on page 27.
Visit nationalMSsociety.org/CALcalendar 4 National MS Society, Southern California Chapter
Learn from Home: Teleconference
Hiring Help at Home If you are considering in-home care for yourself or your loved one, you won’t want to miss this informative teleconference. Learn to assess your needs, choose the right type of provider to meet those needs, and how to conduct a search. What will I learn? • Resources for hiring in-home care •T he difference between certified nursing assistance vs. nonmedical assistance, and their relative costs •B est practices in recruiting and working with the right care service for you Featured presenter: Susanne Rossi has a Master’s degree in Counseling and has been working with the Mountain Caregiver Resource Center for over 20 years. She is currently Director of Caregiver Services at the Center where she oversees and conducts support groups for people affected by stroke, Parkinson’s and MS. Susanne has taught many workshops that have benefited both caregivers and their loved ones. Cost: FREE Tuesday, June 15, 2010 5:00 – 6:30 pm At-home, toll-free teleconference Sign me up! One week prior to the program you will receive the toll-free dial-in number. Mail or fax the form on page 27. Call 800.344.4867. Visit nationalMSsociety.org/CALcalendar Programs Connection 5
Do you have poor balance? Have you lost your balance or fallen in the last year? Falls are a leading cause of injury in those with MS and can result in broken bones and further disability. Don’t let the misfortune of a bad fall compromise your health or independence. Learn how to improve balance and mobility and reduce your risk of falling.
FallProof ™ Fall Prevention
Comprehensive balance & mobility training
What will I learn? • Strategies to improve your ability to recover from loss of balance • The various body systems that contribute to balance and mobility • Postural alignment and center of gravity control training • Exercises to improve balance, strength, and flexibility • Tips to increase safety and confidence with walking Pomona Casa Colina, 255 E. Bonita Ave. 7 Wednesdays, April 14 – May 26 5:30 – 7:00 pm Simi Valley Simi Valley Senior Center, 3900 Avenida Simi For individuals who use a cane or a walker: 8 Wednesdays, May 5 – June 23 12:45 – 1:45pm For individuals who walk unassisted: 8 Wednesdays, May 5 – June 23 2:00 – 3:00 pm Call Francine Sullivan at 805.682.8783 for cost and to register for Simi Valley classes.
Designed for those who use a walker or a wheelchair and are able to transfer independently with or without a care partner. (Care partners are also welcome and encouraged to attend.) You will learn: • Exercises to improve balance, strength and flexibility • Where and why falls happen and safety tips for preventing falls • Transfer techniques and equipment to reduce your fall risk • Techniques to reduce injury from falls • Strategies to get up after a fall Fresno California Neuroscience Institute 2335 E. Kashian Lane, Suite 301 8 Thursdays, April 15 – June 3 1:30 – 3:00 pm West Los Angeles The Marilyn Hilton MS Achievement Center at UCLA 8 Mondays, May 3 - June 28 10:30 am – 12:00 pm Cost: $25.00 per person (unless noted) Sign me up! Call 800.344.4867. Visit nationalMSsociety.org/CALcalendar
6 National MS Society, Southern California Chapter
MS Mountain Getaway 4-Day Vacation Retreat Relax in the shade, soak up the sun and enjoy the clean mountain air. The MS Mountain Getaway offers 4 days of fun and relaxation in the San Bernardino Mountains, where you will meet new friends and share good times. Participants repeatedly say that the Getaway offers people with MS an opportunity to take a vacation from the daily challenges of living with the disease. Enjoy activities including arts & crafts, adaptive exercise, a day of pampering with massages, and educational seminars. Do as much or as little as you like. See old friends, meet new ones and have the time of your life.
Registration & Questions: Space is limited. Pre-registration required by May 1st. Register by March 31st for early bird discount. Please call Todd Eckel at 909.949.1363 to receive a complete registration packet. Thursday, May 20 â€“ Sunday, May 23, 2010 Camp Paivika, Crestline Sign me up! Call 800.344.4867.
The campgrounds and all accommodations are completely accessible and planned with you in mind. Each of the four dormitory-style, heated cabins sleep twelve people, with a common bathroom and a sitting room with a fireplace. The grounds also include a beautiful lodge, large amphitheater, swimming pool, volleyball court and hiking trails. Many campers have commented that Paivika offers the most spectacular views anywhere. Cost: Camper $175; Caregiver/spouse $150 This price includes all lodging, meals and activities. Our priority is to provide recreational opportunities to all members of the MS community. If you are unable to fully afford this program, please ask about share of cost support or a payment plan.
Programs Connection 7
Virtual Book Club If you love to read and enjoy discussing books with other book lovers, join the MS Book Club!
Participate from the comfort of your own home. Book club meetings take place every other month via conference call. Group members are asked to read the selection before the meetings. Please call Tiffany Jordan at 800.344.4867 to sign up and receive the dial-in number. You may also call Tiffany to request the club’s selection from the Chapter’s lending library. Paperback copies or the book on CD are both available. We’ll even provide a return postage-paid envelope. The next books we’ll read and meeting dates are: Wednesday, May 19 at noon The Reader by Bernhard Schlink Wednesday, July 19 at noon Sarah’s Key by Tatiana de Rosnay
Our generous trustees Dave Perren and Scott Perren have once again donated pairs of seats for the 2010 Dodgers season. Reserve free, accessible tickets for your favorite game. Please contact Tiffany Jordan at 310.479.4456 x130, 800.344.4867 or firstname.lastname@example.org to request your seats. Tickets are available on a first call, first serve basis. 8 National MS Society, Southern California Chapter
The Great Escape:
Weekend Getaway for Teens with MS
The Great Escape is the only camp of its kind in the West, serving teens and adolescents, ages 10 – 18, with MS. Don’t miss this exciting, funfilled weekend. Daredevils can take advantage of the high ropes course and Euro Bungee. Jump into a soccer, basketball, volleyball, or football game. Enjoy arts and crafts, karaoke, a campfire and so much more. There’s something for everyone. And the best of all, you can meet other teens who understand life with MS.
MS community. If you are unable to fully afford this program, please ask about share of cost support or a payment plan.
Accommodations: The dormitory-style cabins sleep twelve people are with a common bathroom, and are completely accessible.
Sign me up! Space is limited. Completed applications are due April 21, 2010.
Cost: $60 per person. Includes all lodging, meals and activities. Our priority is to provide recreational opportunities to all members of the
Offered by the National MS Society, Southern California Chapter in partnership with Pali Mountain. June 11 - 13, 2010 Pali Mountain, Running Springs
P lease contact Tiffany Jordan at 310.479.4456 x130 or 800.344.4867. Visit nationalMSsociety.org/CALteencamp
Programs Connection 9
July Fourth Fireworks Spectacular
The inspiring, stirring patriotic music; a special guest like country superstar singer/guitarist Vince Gill with his many hits; and the Bowl’s famous pyrotechnic display – all this and more make the Hollywood Bowl the very best place for you and your family to spend the July 4th holiday. Parking: Parking is not included. People with a disabled license plate or placard may call Dept. 12 at 323.850.2125 for parking reservations or for park & ride tickets ($2.50 each way when purchased in advance; $8 day-of). Park & ride locations are available throughout Greater LA and all buses are wheelchair accessible. Accessibility: Due to the size and elevation of this site, we recommend use of motorized wheelchairs/scooters. Dining: Pack a picnic to enjoy at one of the Bowl’s many picnic areas or order dinner to your seat by calling 323.850.1885 or visiting http://www.patinagroup.com/. Attire: Dress in layers as the day starts off warm but cools into the night. Show holiday spirit by wearing red, white and blue. Cost: Discounted tickets are available on a first-come, first-serve basis for $12, $28 or $49 each. Price based on the section you choose.
10 National MS Society, Southern California Chapter
Sign me up! Advance phone reservations required. Call Tiffany Jordan at 310.479.4456 or 800.344.4867 to reserve tickets by June 20th. Tickets will be held (not mailed) at Will Call, Handicap Window #13 P lease contact Tiffany Jordan at 310.479.4456 x130 or 800.344.4867. Visit nationalMSsociety.org/CALcalendar
Bilingual Family Day Every member in the family lives with MS when a loved one is diagnosed. It can be really hard for family members to understand MS and its symptoms.
• How to reduce your stress levels and improve communication with loved ones • How to deal with the uncertainty that living with MS can bring
Meet others who understand what it’s like to live with MS, while you learn to strengthen family relationships from a family therapist knowledgeable about MS in either English or Spanish. Children, ages 5 - 13, who have a parent with MS, will discuss MS, their feelings, and participate in fun activities and exercises.
Cost: $20.00 per person, includes a light dinner, a evening of education, and a ticket to the Chivas USA game
Then, enjoy a Chivas USA vs. Columbus soccer Game. Your kids will have the experience of a lifetime as they take part in a private meet and greet with one of the players.
Sign me up! Space is limited. Register by July 16, 2010.
What will I learn? • How to deal with the ups and downs of living with a chronic illness
Carson Saturday, July 31, 2010 4:30 – 6:30 pm
Mail or fax form on page 27. Call 800.344.4867 Visit nationalMSsociety.org/CALcalendar
Programs Connection 11
Active Choices Exercise is key to your overall health and wellness. So get moving—and have fun while doing it. Take advantage of a Chapter-sponsored or community-sponsored physical activity class. The following pages highlight just a few of the many resources for physical activity classes available in your community. When noted, contact the facility or instructor directly to register. Or call 800.344.4867 for additional classes near you.
Eric Small Adaptive Iyengar Yoga
Improve your balance, endurance, posture, flexibility, mobility and quality of life. Please bring a mat or beach towel. Cost for 10 weeks: $30.00*
Gentle, non-strenuous movements help improve flexibility & stability and manage stress & pain. Please bring a thick mat and beach towel to class. Cost for 10 weeks: $30.00*
Pilates Improve balance, flexibility and strength. Movements in Pilates reformer classes are done on specialized pieces of equipment and require strong seated balance and transfer skills. Cost for 10 weeks: $45.00*
Training & Conditioning Improve functional levels of fitness. A trainer will create a customized fitness program for each participant in a semi-private group setting. Cost for 10 weeks: $30.00* unless noted
Sign me up for Chapter-sponsored classes! Mail/fax form on page 27.
Los Angeles County Glendale – Yoga Yoga at the Village, 1306 Sonora Ave. Thursdays, April 1 - June 3 7:30 - 8:30 pm
Redondo Beach – Pilates Mat & Reformer Beach Cities Pilates Center 514 N. Prospect, 1st Floor Saturdays, April 3 - June 5, 11:00 am - noon 5 weeks of mat work & 5 weeks of Reformer
Long Beach-Pilates Mat & Reformer John Garey Pilates Studio, 6539 E. Pacific Coast Hwy. Wednesdays, March 31 - June 2 Participants must be ambulatory.
Studio City – Feldenkrais Studio City Library, 12511 Moorpark St. Wednesdays, March 31 - June 2 11:00 am - noon
Marina Del Rey – Yoga Angel City Body Kinetics, 4143 Glencoe Ave. Thursdays, April 1 - June 3 6:30 - 8:00 pm
Walnut – Yoga Walnut Senior Center, 21215 La Puente Rd. Wednesdays, March 31 - June 2 noon - 1:00 pm
12 National MS Society, Southern California Chapter
Channel Islands Santa Barbara – Yoga Vista Del Monte, Patio Room, 3775 Modoc Rd. Mondays, March 29 - May 31 11:00 am – 12:00 pm -orWednesdays, March 31 - June 2 11:00 am – 12:00 pm Santa Barbara – Training & Conditioning Cottage Rehab Hospital, 2415 De La Vina St. Tuesdays, March 30 - June 1 12:00 – 1:00 pm -orThursdays, April 1 - June 3 12:00 – 1:00 pm Simi Valley – Yoga Yoga Nook, 2472 Sterns Street Special Yoga Mat Series Tuesdays, March 30 - June 1 11:30 am – 12:00 pm - or Postures for Torso Strength & Balance Fridays, April 2 - June 4 12:00 – 1:00 pm
San Luis Obispo – Yoga San Luis Obispo Veterans Memorial Building, 804 Grand Ave. Meets Mondays & Wednesdays, starting January 11. Beginners: 5:15 - 6:15 pm; All levels: 6:30 - 7:45 pm. Contact instructor Shoosh Crotzer, who has extensive experience with MS at 805.772.3560. San Luis Obispo - Aquatics The San Luis Obispo Parks and Rec Dept. offers a water exercise class which can accommodate special needs. (Note: pool temp is 88 degrees.) Call the SLO Swim Center at 805.781.7288. The Swim Center is located at Sinsheimer Park, 902 Southwood. Call San Luis Sports Therapy at 805.788.0805 if you wish to use the pool with instruction/supervision from a physical therapist.
Westlake Village – Yoga TrueYoga 3625 E. Thousand Oaks Blvd., #322 Wednesdays,March 3 - June 2 2:00 - 3:00 pm Channel Islands Community Classes Ventura – Aquatics Ventura Aquatics Center, 901 S. Kimball Rd. Call 805.654.7511 or visit cityofventura.net/ aquatics for more info about water exercise classes suitable for people with MS. Grover Beach – Yoga Adaptive Yoga at Tullius Chiropractic & Pilates Center, 902 W. Grand Avenue. Meets each Tuesday at 11 am. Call the Center at 805.481.1566 for more information.
Programs Connection 13
Inland Empire/Coachella Valley Palm Desert Tuesdays, March 30 - June 1 10:30 - 11:30 am Haberkorn Health Center, 41555 Cook St. #160 Inland Empire/Coachella Community Classes Claremont – Yoga for people with MS Mondays, 6:00 – 7:00 pm Pomona Valley Health Center, 1601 Monte Vista Cost: $65 for 10 classes For more information call 951.235.1117. Palm Springs - Adaptive Yoga Thursdays, 12:15 – 1:15 pm 1180 N. Indian Canyon Dr. 3rd floor of El Mirador Cost: $5.00 per class For info and to register call 760.416.4864. Riverside – Yoga FUN Yoga studio, 75 W Blaine St. ~ or ~ Inland Yoga, Tibbetts studio 3742 Tibbetts St., Suite 202 Classes taught by Christie Hall, who has trained with Eric Small and has extensive experience with MS. For more info, please e-mail email@example.com or call 909.534.6952. Temecula - Aquatics SW Family YMCA, 29119 Margarita Rd. Water Therapy Class in a cool pool with a lift offered twice a week. Cost: free for members; $5 non members. Call 951.677.YMCA (9622) for more info.
San Joaquin Valley Bakersfield – Yoga Arthritis Adaptive Aquatics Center 1800 Westwind Dr., Building 500 Thursdays, April 1 - June 3, 10:30 - 11:30 am 14 National MS Society, Southern California Chapter
Bakersfield – Training & Conditioning Total Woman Fitness, 9901 Hageman Tuesdays, March 9 - June 1 Sessions between 10:30 am - 12:30 pm Cost: $45.00 San Joaquin Community Classes Clovis - Variety Clovis Adult School offers adaptive fitness classes: dance, Pilates, t’ai chi, yoga and much more. Call 661.327.2842 for more information. Bakersfield - Yoga Catholic Healthcare West offers free adaptive yoga classes at Mercy Hospital, Mercy Southwest Hospital, and Memorial Hospital. Contact Sally Baker at firstname.lastname@example.org or 661.332.5371 for day, time, and location. Fresno - Training/Stretch San Joaquin Valley Rehabilitation Hospital has an adaptive gym with two locations, and offers circuit training classes and “Stretch It Out” classes. Cost; $100 Initiation fee and $35 monthly dues. Contact 559.431.2635 ext. 119 for more information. Hanford - Personal Training In Shape Health Club, 325 N 11th Ave. Personal trainers for adaptive one-on-one training. Call 559.585.6555 for info. Visalia 1616 W. Mineral King Ave Yoga for MS classes offered Tuesdays, 11:00 am - 12:15 pm. Cost: $50 for 6 classes (good for 3 months). Visit www.valleyyoga.net or call 559.561.1010 for info.
In the Inland Empire
The ABC’s of the ADA The Americans with Disabilities Act was signed into law in 1990. It is undeniably the most comprehensive formulation of the rights of the people with disabilities in the history of the United States or of any other nation, and it began with local groups to advocate for the rights of people with disabilities. Join us as we explore the ADA, how it affects your life, and how you can use it to advocate for yourself. What will I learn? • Ins and outs of the ADA • Employment Issues and the ADA • Accessibility and the ADA • How to advocate on behalf of yourself
County Economic Development Agency, and in that capacity developed model policies and procedures for grievances and non-discrimination that are used as models nationwide. Cost: FREE program, includes light refreshments Victorville Saturday, April 24, 2010 10:00 am – 12:00 pm High Desert Church, 14545 Hook Blvd. Sign me up!
Featured presenter: Gilbert Lopez, J.D. has over 20 years of experience as an Equal Opportunity Officer for the Riverside
Mail or fax form on page 27. Call 800.344.4867 Visit nationalMSsociety.org/CALcalendar
MS Specialty Care
MS practice at Eisenhower Medical Center Wall Street West Complex, 74785 Highway 111, Suite 100, Indian Wells
Do you have a special talent, an excellent connection, available resources, or creative ideas which can help us raise MS awareness in the Inland Empire? If so, Inland Empire Against MS (IEAMS) can use your help! Help us generate ideas for raising MS awareness in our communities. For more information, call Todd Eckel at
The new MS practice at Eisenhower Medical Center is accepting new patients. Elizabeth H. Morrison, M.D., M.S.Ed said the practice will provide state-of-the-art MS treatment, symptom management, wellness care, cognitive testing and more. For more info, please call Suellen Evavold at 760.776.5740.
Programs Connection 15
In the Antelope/Santa Clarita Valley
Advocacy Pharmacist and MS Ask the
Do you have questions about MS medications? Heidi Wolfe , an A-Med Health Care representative, will talk about their specialty pharmacy’s online prescription drug program. Heidi will answer all of your questions about prescriptions you are currently taking, as well as medications you may be considering. What will I learn? • About the A-Med Online Prescription Drug Program • What drugs are used to treat and manage symptoms of MS • Important side effects of these drugs Cost: FREE program, includes light refreshments Presented in collaboration with A-Med Health Care
Advocacy is a “Call to Action.” What laws or proposed legislation affect you? Now is the time to act. Do you know who your state and federal legislators are? They are waiting to hear from you. You have a voice in the decision-making process when it comes to adopting bills. Let’s hear from you. We are looking for people who are willing to stand up for their rights. Come join us and see how it’s done. We need you. What will I learn? • What the National MS Society is doing for you in advocacy • What you can do to influence decision-making • About your state and federal legislators • About important bills being debated right now that affect you, including the Health Care Reform Bill Featured presenter: Cheryl Roberto-Lvovsky, the Chapter’s Manager of Government Relations & Individual Advocacy Cost: FREE program, includes light refreshments Palmdale Thursday, April 15, 2010 6:30 – 8:00 pm Larry Chimbole Cultural Center, 38350 Sierra Hwy., Primrose Room
Santa Clarita Thursday, June 10, 2010 6:30 – 8:00 pm Blessed Kateri Catholic Church 22508 Copper Hill Dr.
Sign me up!
Mail or fax form on page 27.
Visit nationalMSsociety.org/CALcalendar 16 National MS Society, Southern California Chapter
In the Antelope/Santa Clarita Valley
Canine Companions Learn how man’s best friend can aid people with disabilities. Jeremy Talamantes from K-9 Assistive Services, Inc. will bring several trained dogs to demonstrate how service dogs can be trained to help people with MS. He will explain about the partnership that is built between owner and a trained dog; how this is achieved and creating a lasting bond that will change lives. What will I learn? • The benefits of a service dog • What is involved in the training and partnership between dog and owner • Costs associated with service dog ownership Featured presenter: Jeremy Talamantes is the founder and trainer at K-9 Assistance Services,
Inc. located in Baldwin Park. This is a non-profit organization dedicated to bettering the lives of people with disabilities. Cost: FREE program, includes light refreshments Palmdale Thursday, May 20, 2010 6:30 – 8:00 pm Larry Chimbole Cultural Center, 38350 Sierra Hwy., Primrose Room Sign me up! Mail or fax form on page 27. Call 800.344.4867 Visit nationalMSsociety.org/CALcalendar
Programs Connection 17
In Channel Islands
Emotional Wellness MS can have significant emotional effects, in addition to physical symptoms. Some of these are reactions to the stresses and challenges created by this chronic, unpredictable illness, while others may be symptoms of MS itself. Learn about emotional wellness and how to maintain balance from mental health professional, Janet Lengsfelder. Featured presenter: Janet Lengsfelder has 15 years of experience in working with
individuals with MS and their families, plus an additional 15 years training as a registered nurse. She has facilitated every aspect of emotional health for the Society, including peer support, telecounseling, and Living Well with MS. Cost: FREE Santa Barbara Wednesday, April 21, 2010 11:30 am – 1:30 pm National MS Society office, 14 West Valerio St.
Resiliency: the Art of Bouncing Back • How to use those traits to manage the Have you ever known a person who takes all obstacles that come your way of life’s challenges, no matter how difficult, • How strengthening your resilience can and adapted to each one with grace and inner help you to achieve and maintain a peace? What makes that person different? Have healthier, happier you! you wondered if you could learn to adapt to your challenges more easily? You can! Cost: FREE Get the tools to ‘work out’ your resilience Santa Maria until it is strong enough to handle the biggest Saturday, April 3 obstacles life throws your way. Join us for an 10:00 am – 12:00 pm interactive workshop of learning and selfMinami Community Center, 600 W. Enos Dr. exploration that will help you to bounce back Arroyo Grande the next time life tries to knock you down! Tuesday, June 8 What will I learn? 6:00 pm – 7:30 pm • What makes a person resilient United Methodist Church, 275 N. Halcyon • What traits of resiliency you have that are strong Sign me up!
Mail or fax form on page 27.
Visit nationalMSsociety.org/CALcalendar 18 National MS Society, Southern California Chapter
In Channel Islands
Stress is What You Make of It Devin has designed and managed therapeutic and educational programs for people with disabilities for over 12 years. He has taught stress reduction classes and workshops at rehabilitation centers in California and Washington state. Cost: FREE
Stress can have a huge impact on one’s physical and psychological health. To avoid its ill effects, it is important not only to learn effective stress reduction techniques, but to also develop a keen awareness of how and when tension arises in mind and body so that the stress response can be averted or minimized. Bring your friends and family. This interactive program provides valuable tools that everyone can use. Featured presenter: Devin Wallace is the Programs Manager for the San Luis Obispo and northern Santa Barbara County areas.
Paso Robles Tuesday, April 27, 2010 10:00 am – 12:00 pm Paso Robles Senior Center, 270 Scott St. Santa Barbara Wednesday, May 19, 2010 11:30 am – 1:30 pm National MS Society office, 14 West Valerio St. Sign me up! Mail or fax form on page 27. Call 800.344.4867 Visit nationalMSsociety.org/CALcalendar
MS Community Circle These groups for people with MS, and their family and friends include workshops, discussions and presentations on psychosocial topics related to personal growth, and adaptive exercise. Meets Fridays at 10:00 am at First Presbyterian Church in San Luis Obispo. Call Devin at 805.772.2046 . Meets 3rd Wednesday of the month at the National MS Society office in Santa Barbara. Call Francine at 805.682.8783. Programs Connection 19
In the San Joaquin Valley
Eating Well CogniFitness Keeping the Mind Moving Eating Easy with MS
Food does not have to be the enemy! Join us for a fun talk on balancing health and diet. Registered dietitian Denise Nowack will share tips on the best “power” foods, keeping a well-stocked pantry, and plenty of low-fat, delicious ideas to keep you full and satisfied. She’ll also give you hints for keeping on track with your nutrition goals (that might just give you a head-start for summer fashions). What will I learn? • The recommended diet for people with MS and other chronic health conditions • Determine what gets in the way of eating well • Identify strategies to easily integrate healthful eating into your lifestyle Cost: FREE, includes light refreshments Bakersfield Tuesday, April 13 • 10:30 am – noon Total Woman Fitness Center, 9901 Hageman
Do you find it difficult to focus on a task without getting distracted? Do you have difficulty finding words or finishing your sentences? Do you often have a hard time keeping track of activities & appointments? If you answered yes to any of these questions, then this program is for you... Learn to: • Facilitate focus and concentration • Improve memory using new strategies • Improve organization, problem solving & critical thinking skills Cost: $25.00 per person Fresno 8 Tuesdays, April 20 – June 8 10:00 am – 12:00 pm San Joaquin Valley Rehab, 7173 N. Sharon
Sign me up!
Mail or fax form on page 27.
Visit nationalMSsociety.org/CALcalendar 20 National MS Society, Southern California Chapter
In the San Joaquin Valley
Beat the Central Valley Heat Here, in the Central Valley, we deal with extremely hot summer days. Overheating can aggravate a multitude of symptoms. Increased fatigue, weakness, and visual disturbances are just a few of the problems that may occur when the body’s interior temperature rises. Learn new ways to manage the heat and helpful ways to stay cool during the summer months ahead. What will I learn? • How heat affects the symptoms of MS • How to stay active, yet cool, during the hot summer months • About cooling products • Tips from others with MS in your community about ways to stay cool Cost: FREE program, includes light refreshments
Fresno Saturday, May 15, 2010 10:00 am – noon San Joaquin Valley Rehab, 7173 N. Sharon Ave. Sign me up! Mail or fax form on page 27. Call 800.344.4867 Visit nationalMSsociety.org/CALcalendar
New MS Care Center MS program at the Central California Neuroscience Institute 2335 E. Kashian Lane, Suite 301, Fresno People with MS in the San Joaquin Valley can visit the California Neuroscience Institute in Fresno for access to MS neurology care, as well as other allied health services, including physical therapy, occupational therapy, speech, respiratory, and nutrition. For more information, please call 800.344.4867. Programs Connection 21
Do you ever wish you could talk with others who understand what it’s like to live with MS and the challenges the disease brings?
Community Self-Help Groups
Please contact the group’s facilitator(s) to learn more about a specific self-help group listed below, or contact area Chapter or 800.344.4867.
Los Angeles County Beach Cities 2nd Sunday, 10:00 am, Beach Cities Health District Call Dena at 310.376.8426 Burbank 4th Wednesday, 3:00 pm Call Nan at 818.762.5432 Central LA 4th Saturday, noon, Bilbrew Library Call Alva at 323.233.5413 GLAMS (Gay and Lesbian Support Group) 2nd Saturday, 1:00 pm, Location varies Contact Ronni at 626.392.4321 or email@example.com Glendora 2nd & 4th Saturdays, 10:00 am Contact Laura at 626.335.0613 or firstname.lastname@example.org Lakewood/Long Beach 2nd Sunday, 1:00 pm, Lakewood Youth Center Call Fran at 562.925.4405 Lancaster/Palmdale 3nd Thursday, 6:30 pm, Chimbole Cultural Center Call Colleen at 661.225.9826
22 National MS Society, Southern California Chapter
Los Angeles 3rd Thursday, 6:00 pm, Fairfax Branch Library Call Michael at 213.804.1249 LA – Spanish Speaking Group 2nd Saturday, 10:00 am Salvation Army/Red Shield Community Center Contact Maria at 818.781.0181 or email@example.com North Hollywood - Drumming Group Learn a unique way to express yourself. No musical experience needed. Second Saturday, 3:00pm Remo Drum Center Please call Beth at 818.219.1715 Northridge last Thursday, 10:15 am, Mid Valley Regional Library Call Carolyn at 818.348.6628 or Linda at 818.989.6044 before attending. Pasadena 2nd Monday, 10:00 am, California Assistance League Call Aynn at 626.303.4343 Santa Clarita 2nd Thursday, 6:30 pm, Blessed Katari Catholic Church Call Linda at 661.297.3040 Sherman Oaks (Social Group) 3nd Saturday, 11:30 am - 2 pm, Sherman Oaks Library Call Linda at 818.222.7678
Torrance 2nd Tuesday, 1:00 pm, North Torrance Library Call Pattie at 310.769.0694 West Covina 2nd & 4th Wednesdays, 11:00 am Senior Center North Building Call Tadd at 626.962.7909 West LA Last Monday, 6:30 pm, National MS Society Contact Nancy at 310.827.5714 or firstname.lastname@example.org West LA – Men’s Group 3rd Tuesday, 6:00 pm, National MS Society Call Larry at 310.423.3425 West Hills/Woodland Hills 1st Thursday, 7:00 pm, First United Methodist Church Call Mary Ann at 310.479.4456
Channel Islands Arroyo Grande 2nd Tuesday, 6:00 pm, United Methodist Church Call Ellen at 805.343.6094 Morro Bay last Saturday, 10:30 am St. Peters by the Sea church Call Devin at 805.772.2046 Ojai 2nd Thursday, 7:00 pm Oak View Community Center or 4th Tuesday, 12:45 pm, Eggs and Things Call Donna at 805.646.3750 Paso Robles 2nd Saturday, 11:45 am at Touch of Paso or 4th Tuesday, Park Grill Call Judy at 805.468.4555
Simi Valley 1st Monday, 10:00 am Sunrise Christian Fellowship Church Call Dennis Zurcher at 805.584.2526 Thousand Oaks 4th Tuesday, 11:00 am, Location varies Call Darcy at 805.368.7918 Ventura Last Friday, 11:30 am, Carrow’s Call Vincy at 805.340.9627
Inland Empire/Coachella Valley High Desert 4th Saturday, 10:00 am, High Desert Church Contact Dorothy at 760.241.6247 or email@example.com Lake Arrrowhead 1st Friday, 4:30 pm, Mountain Community Hospital Call Joyce at 909.337.7573 Montclair 1st Saturday, 10:00 am, Montclair Community Center Call Ginny at 909.981.7035 Murrieta/Temecula 4th Saturday, 10:00 am, Chancellor Place Call Bonnie at 951.674.5959 Palm Desert 2nd Thursday, 10:00 am, IHOP Call Richard at 760.899.4174 Riverside 1st Saturday, 10:00 am, Kaiser Call Gilbert at 951.544.1441 Temecula 1st Wednesday, 10:00, Trinity Luthern Church Call Denise at 951.698.9725
Programs Connection 23
Upland Last Wednesday, 10:00 am, Calvary Chapel Call Denise at 909.519.4410 Yucaipa 3rd Tuesday, 2:00 pm, Good Shepherd Church Call Clare at 909.795.5128 or Tom at 909.795.1717
San Joaquin Valley Bakersfield – African American Group Call Kim at 661.321.9512 Bakersfield 1st Thursday, 7:00 pm Health South Rehab Hospital Call Carol at 661.363.9747 Bakersfield 2nd Wednesday, noon or 4th Wednesday, 9:30 am Lorene’s Coffee Shop Call Mary at 661.397.0489
Bakersfield - Family Support Group
Lake Isabella Call Jennifer at 760.549.3838 Tehachapi 1st Wednesday, 6:00 pm, St. Jude’s Anglican Church Call Kimberly at 661.822.7178 or firstname.lastname@example.org Visalia 2nd Saturday, 10:00 am, Call Jim at 559.734.7576
If you have been recently diagnosed with MS, you probably have many questions and concerns. The LiNK program matches people who are newly diagnosed with a peer via one-on-one phone or email correspondence. Take the opportunity to ask questions of a person who personally understands life with MS.
4th Saturday, 10:30 am, Call Kim at 661.321.9512
Please call Mary Ann Holm at 800.344.4867 for more information or to sign up.
Fresno 1st Monday, 7:00 pm San Joaquin Valley Rehab Cafeteria Call Karen at 559.871.115
Talk to Someone with MS
3rd Thursday, 9:30 am Call Yolanda at 559.908.4644 or Doris at 559.299.2072 Hanford -- NEW day/location! 1st Thursday, 10:00 am, First Christian Church Call Barbara at 559.584.1903 or Debra at 559.585.8054
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Chat one on one with someone else who has MS! In our Peer Support program, you are matched with a trained volunteer who has MS and is dedicated to helping you navigate the challenges of the disease. This long running program has successfully paired hundreds of clients with a peer who can truly understand what it means to live with MS. Peer Support all takes place via phone, so there is no need to travel to get the support that you need and deserve. Please call Mary Ann Holm at 1.800.344.4867 for details or to sign up.
Get the Emotional Support You Need Sometimes life with MS can be difficult to cope with and there are times when it can be hard to maintain a positive attitude. Emotions can come in cycles over the course of the disease. Some of these are reactions to the stresses and challenges created by this chronic, unpredictable illness, while others seem to be symptoms of MS itself. In a recent survey of Californians living with MS, almost half of respondents indicated that they needed emotional support over the last year. Yet there were those who noted that they could not get the help they needed because they could not afford it or because they didn’t know where to look for help. The Chapter offers a wide array of individual and group counseling services. Licensed profesional therapists will help you find peace of mind as you cope with a diagnosis, changes in symptoms, stress and/or depression. What you’re feeling is common and you are not alone. We’re here to help you move forward. Please call 800.344.4867 to access any of the resources listed below.
We can connect you to licensed mental health professionals who know and understand MS, as well as help with financial assistance for accessing these resources. Our TELECOUNSELOR program offers 8-10 individualized sessions via telephone with a licensed therapist provided by the National MS Society. Improve your ability to cope with MS—with all of the comfort and ease of calling from your own home.
Support groups led by a licensed professional offer a place for you to connect with peers in a safe, comfortable environment. Eight-week groups are address specific issues, depending on where you are with your diagnosis. A professional counselor facilitates an in-person evening group for people diagnosed in the last two years, who are looking for accurate MS information in addition to emotional support. Guest speakers include an MS neurologist and an employment specialist. A convenient phone group offers professional support for those who are facing significant challenges and disability. This is a great way to connect with others who may be feeling isolated and alone, and have difficulties leaving home. Programs Connection 25
For the Care Partner
The Art of
There is a science to lifting, and failure to learn the basics can lead to unnecessary and often severe injury. Care giving is challenging enough in itself without adding physical risks! In this workshop, you will receive one-to-one coaching from a licensed physical therapist on how to properly help your patient or loved one transfer, get up after a fall, or walk with assistance when necessary. These techniques take practice before they become second nature, and that’s what the workshop will provide. You’ll learn to cue yourself each time you assist so you won’t fall back into bad habits when the stress is on. Don’t miss this valuable training opportunity for professional caregivers and family caregivers. Even if you learned these basics before, a refresher course will ensure that you haven’t forgotten important information that can preserve your back and your peace of mind. Paso Robles Wednesday, June 9, 2010 10:00 am – 12:00 pm Paso Robles Senior Center, 270 Scott St. Cost: FREE Sign me up! Mail or fax form on page 27. Call 800.344.4867. Visit nationalMSsociety.org/CALcalendar 26 National MS Society, Southern California Chapter
Sign Me Up!
Mail or fax registration to your local National MS Society office. Or register online at
City: _ ___________________________________
Southern California Chapter
2440 S. Sepulveda Boulevard, Suite 115 Los Angeles, CA 90064 310.479.4436 fax
Channel Islands Office 14 West Valerio Street Santa Barbara, CA 93101 805.563.1489 fax
Inland Empire Office
869 E. Foothill Boulevard, Suite I Upland, CA 91786 909.949.0766 fax
Coachella Valley Office
73-710 Fred Waring Drive, Suite 103 Palm Desert, CA 92260 760.776.5742 fax
Antelope Valley & Santa Clarita Valley Office 1669 West Avenue J, Suite 309 Lancaster, CA 93534 661.948.6875 fax
Date of diagnosis:_ _____________ Age: _______
Phone:___________________________________ E-mail: ___________________________________ Mobility device used (if any): _________________ ________________________________________ I’d like to register for these program(s): Taking Care of Your $ (teleconference – 4/22) MS in the Workplace (teleconference – 5/19) Hiring Help at Home (teleconference – 6/15) FallProof/Fall Prevention _______ # attending Guest name(s): _________________________ Choose one: Pomona Fresno
Kern County Office
1800 30th Street, Suite 105 Bakersfield, CA 93301 661.321.9518 fax
San Joaquin Valley Office
7472 N. Fresno Street, Suite 210 Fresno, CA 93720 559.439.1745 fax
For more information, call 800. 344.4867 or visit nationalMSsociety.org/CALcalendar.
Bilingual family day ($20/person, pay below) _____ # attending Guest name(s) & age(s): __________________ _ ____________________________________ ABC’s of the ADA (Victorville – 4/24) _____ # attending Guest name(s): _______________________ Registration form comtinued on next page Programs Connection 27
Ask the Pharmacist (Santa Clarita – 6/10) _____ # attending
Eating Well (Bakersfield – 4/13) ____ # attending
Guest name(s): ______________________
A dvocacy & MS (Palmdale – 4/15) ____ # attending Guest name(s): ______________________
Guest name(s): _______________________ CogniFitness (Fresno – $25/person, pay below) Beat the Heat (Fresno – 5/15) ____ # attending
C anine Companion (Palmdale – 5/20) ____ # attending Guest name(s): ______________________
Guest name(s): _______________________ Safe Transfer (Paso Robles – 6/9) Caregiver name: ______________________
Emotional Wellness (Santa Barbara – 4/21)
____ # attending
Guest name(s): ______________________
Resiliency Sta Maria Arroyo Grande
Active Choices Pay below for Chapter-sponsored physical activity classes. Check pages 14 - 16 for cost.
____ # attending
Fitness series type:_ ___________________
Guest name(s): ______________________
Stress Paso Robles Sta Barbara ____ # attending Guest name(s): ______________________
City: ______________ Day: _____________
Fitness series type:_ ___________________
City: ______________ Day: _____________
Total Enclosed $________________ Check enclosed or Charge my: Visa MasterCard AmEx Discover Account # ____________________
Name on Card
In consideration of your acceptance of this application, I hereby, for myself, my heirs, executors and administrators, waive and release any and all rights and claims for damages I may have against the National MS Society, Southern California Chapter (NMSS) or any other people connected with this program, their agents, representatives and assign for any and all injuries suffered by, or illness to, myself resulting in participation in this program. I give the NMSS permission to use my name and my guests’ names, photograph or other media taken of us during the event for promotional materials, publications or on the NMSS Web site. Signature:_ _____________________________________________________Date:________________________
• S tress Paso Robles
• C ogniFitness Fresno
• E ating Well Bakersfield
21 • Emotional Wellness Santa Barbara
• F allProof Pomona
• Your Money teleconference
15 • Fall Prevention Fresno • Advocacy and MS Palmdale
• ABC’s of the ADA Victorvile
• Resiliency Santa Maria
30 National MS Society, Southern California Chapter
• F all Prevention West Los Angeles
19 • Virtual Book Club teleconference • Stress Santa Barbara
• FallProof Simi Valley
20 • Mountain Getaway Camp Paivika • Canine Companions Palmdale
• Beat the Heat Fresno
Programs Connection 31
• Help at Home teleconference
• Resiliency Arroyo Grande
• Safe Transfer Paso Robles
• Ask the Pharmacist Santa Clarit
June 2010 4
• Great Escape Pali Mountain
2440 S. Sepulveda Boulevard, Suite 115 Los Angeles, CA 90064
If not you, then who? Turn passion into action. Join Walk MS now. No one is more passionate about ending multiple sclerosis than those who live with the unpredictable effects of the disease each and every day. But passion alone won’t end MS — action will. That’s why, this year, we call on everyone — especially people affected by MS — to put their passion into action and join the movement.
Participate. Volunteer. Donate. If not you, then who? walkMSsocal.org 800.344.4867