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Programs

Winter 2010

CONNECTION

Men’s Getaway Just the guys.

MS research symposiums Everything you need to know about the latest MS research and clinical trials.

Plus MS Awareness Week MS Camp How to Live a Healthy Lifestyle with MS and much, much more

JOIN THE MOVEMENT


MOVING IS WHO WE ARE “Staying on top of the latest in research is an important way to join the MS movement.” Multiple sclerosis research is moving forward, with more than 400 research Linda Munson, Vice projects being conducted all around the President of Programs world as we speak. In 2007, we surveyed a large sample of people touched by MS in our chapter area and nearly 90 percent of respondents said information about current MS research was a top priority. Staying on top of the latest in research is an important way to join the MS movement, and we’re thrilled to know you are passionate about this critical topic. That’s why the Minnesota Chapter is providing you more opportunities to learn about the very latest in MS research and clinical trials this year. We’re offering four research symposiums in different regions of the chapter area, including St. Paul (see Page 9), Alexandria (see Page 11), Duluth and Worthington. At these research symposiums, you’ll get the chance to have your questions answered by local experts about the latest cutting-edge MS research and therapies. A local expert will also present a session outlining the process of clinical trials, how people with MS can participate in trials and what participants can expect from the experience. Plus, you’ll be Stay tuned able to visit exhibitor tables to learn more about drug Check MSsociety.org in a few therapy options available months to get details on the to people with MS. Duluth and Worthington We hope to see you at a symposiums, which will be symposium near you this year! held later this year. Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Kari Harju at the Minnesota Chapter.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.


Table of Contents Programs by topic

Winter MS research symposium

Healthy living

Technology

Exercise How to Live a Healthy Lifestyle with MS

24 21

Join the movement MS Awareness Week Your voice counts

23

Young adults Connect Locally

5 6

Managing MS symptoms Connect Locally 16-17 Exercise 24 Face Time with Your Local Neurologist 18-20 How to Live a Healthy Lifestyle with MS 21 Living well with MS 8 MS in Balance 22

Men Men’s Getaway

What’s online?

Alexandria Spring MS research symposium

11

Duluth Connect Locally Face Time with Your Local Neurologist

17 18

Keister Connect Locally

15

Maple Lake 13

MS Camp

7

Park Rapids

Connect Locally 15-17 Face Time with Your Local Neurologist 18-20 How to Live a Healthy Lifestyle with MS 21 Living well with MS 8 MS in Balance 22

Connect Locally

Personal connections 26 15 7

Research Connect Locally Spring MS research symposium

15

Programs by location

Newly diagnosed

Clubs and groups Connect Locally MS Camp

9

Twin Cities — Metro programs Connect Locally 15-16 Face Time with Your Local Neurologist 18-20 How to Live a Healthy Lifestyle with MS 21 Living well with MS 8 Men’s Getaway 13 Winter MS research symposium 9

Willmar MS in Balance

16 11

17

22

Wyoming Connect Locally

16

JOIN THE MOVEMENT


Just the guys “Talking about MS with a bunch of guys who experience the disease on a daily basis takes on a different meaning.” – Mick Auger, Men’s Getaway participant

Mick Auger

Mick Auger attended his first Men’s Getaway about 10 years ago. He remembers thinking the getaway, which was held in northern Minnesota that year, was a great chance to take a break from his day-today routine and spend some time with “the guys.”

He was right. At the getaway, Mick developed new friendships and experienced a strong sense of camaraderie with the other men in attendance. The weekend had a certain amount of structure, but Mick’s favorite parts were the informal gatherings and conversations with other attendees. He also enjoyed learning more about the disease in a less formal atmosphere as opposed to a classroom or doctor’s office.

The relationships he has formed with other Men’s Getaway participants have kept Mick coming back year after year, especially since many of the attendees live in different cities and the getaway offers them a time and place to all come together. But Mick and other participants who live close to one another have started getting together informally throughout the year as well. “Where else could you go to find all this information, ‘three hots and a cot’ (three meals and a bed) and plenty of fun and social opportunities at the same time?” Mick asked. “I think we all have had opportunities to hear the clinical story about MS from our professional, medical friends, but talking about MS with a bunch of guys who experience the disease on a daily basis takes on a different meaning.”

Learn more Learn more about this year’s Men’s Getaway on Page 13.

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National Multiple Sclerosis Society, Minnesota Chapter


MS Awareness Week Join the movement.

It’s time to Move it! MS Awareness Week is March 8 to 14 and we need you to hit the streets, raise your voices and educate your communities! Last year’s theme, Move it, was so successful the National MS Society has decided to stick with it again in 2010. Each year people with MS, volunteers, event participants and friends of the MS Society come up with great ideas for making a splash statewide. Here’s a list of some easy ways you can Move it during MS Awareness Week. n

Check out our online toolkit full of fun downloads, stories, ideas for activities in your community, posters and more.

n

Wear your orange wristband.

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Write a letter to the editor about MS and why people should join the movement.

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Register a team for your local Walk MS event.

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Call, visit or write your legislator to discuss an MS-related issue that affects you.

n

Bring an orange treat to work or school.

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Wear your volunteer or event T-shirt and use it to start a conversation.

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Organize an information table in your community.

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Hold a fundraiser for the MS Society.

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Forward MS research updates to five people you know.

ADDITIONAL RESOURCES

Visit www.MSsociety.org for an online toolkit full of resources and ideas.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Your voice counts You’re an unlikely activist, too!

“My hope is these actions will make a difference in the lives of people with MS and future generations and high prescription co-pays will be a thing of the past.” – Elizabeth Carlson

Sylvia Lawry was an unlikely activist. In 1945 when her brother showed worsening MS symptoms, she placed a classified ad in the New York Times asking for help from anyone who had experience with the disease. After an outpouring of responses, she realized the need for more organization. One year later, the National MS Society was born.

It’s easy to be an activist! Visit www.MSsociety.org and click “Take Action” to do the following: n

Build your story

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Sign up for Action Alert e-mails

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Complete the activist interest form

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Learn to write a letter to your legislator

n

Read about other MS activists

n

Check out activist volunteer opportunities

n

Win awesome activist prizes

make a difference in the lives of people with MS and future generations and high prescription co-pays will be a thing of the past,” she said. Learn about Elizabeth and others who are passionate about making change. Visit MSsociety.org for stories, photos, downloads and other tools you can use to make changes in your community.

She was just one woman with a drive to help her We need your help brother get the resources he needed. She never set out to be an activist, but she certainly became one. We need at least one person from each of the 67 Senate districts to contact their legislators. Write Elizabeth Carlson is an unlikely activist. When a letter, make a call or better yet, meet with your the cost of her MS prescriptions increased legislator. Scott and Jenna are happy to help you dramatically, she saw it as a “call to duty” and arrange your appointment and will even attend the began working with state and federal legislators meeting with you. For more information, contact to make a change. “My hope is these actions will Jenna at 612-335-7981 or Scott at 651-283-2172.

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National Multiple Sclerosis Society, Minnesota Chapter


MS Camp On the move.

May 16–20 n August 22–26 Last year, at Camp Courage in Maple Lake, Minn., the National MS Society, Minnesota Chapter’s longest-running program, MS Camp, celebrated its 30th anniversary. Chapter staff — along with participants and volunteers of this important program — cherish the memories, experiences and good times that have been shared at MS Camp for so many years. Right now campers, volunteers and chapter staff are responding to feedback by brainstorming ways to reshape MS Camp to make it an even better experience. MS Camp will even have a new name and a different feel, offering more of a resort vacation experience with new activities and programs to choose from each day.

Tell us what you think The chapter wants to hear from you. Please share your ideas for this important program as well as your thoughts for reshaping it. To share your ideas, contact Jeannie Zank at 612-335-7939 or 800-582-5296 or jzank@MSsociety.org.

Details n

MS Camp is a five day leisure program for people with MS held at Camp Courage, a fully accessible facility featuring an indoor pool with free swim opportunities, farm, lake, health center and more.

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Trained volunteers are available to assist with personal needs and activities.

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Home health aids can provide personal care in the morning and evening.

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Nurses are available to provide medical care, in addition to an on-call doctor.

How to apply If you attended MS Camp 2009, you’ll receive a 2010 application. If you did not participate last year, contact Jeannie for an application at 612-335-7939, or 800-582-5296 or jzank@MSsociety.org.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Living well with MS

Details about this program are provided for your information. This program is not produced by the National MS Society.

Your quality of life counts.

Feb. 11 n Minneapolis

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Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

Details Registration: 6-6:30 p.m. MS ActiveSource is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. Š 2009 Biogen Idec. All rights reserved

Program: 6:30-8:30 p.m. Sheraton Bloomington Hotel 7800 Normandale Blvd. Minneapolis, MN 55439

Featured speaker Join us! To register for this free program, call 866-955-9999. Or register online at MSActiveSource.com.

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Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.

National Multiple Sclerosis Society, Minnesota Chapter


Winter MS research symposium Everything you need to know about the latest MS research and clinical trials.

Feb. 27 n St. Paul Learn everything you need to know about nationally-recognized multiple sclerosis research projects at one of the Minnesota Chapter’s four research symposiums in 2010. You’ll have your questions answered about the latest cutting-edge MS research and therapies by a local expert. Each symposium also includes a session presented by a local expert outlining the process of clinical trials, how people with MS can participate in trials and what participants can expect from the experience. Plus, you’ll be able to visit exhibitor tables to learn more about drug therapy options available to people with MS.

Featured speakers Dr. B. Mark Keegan is a neurologist and section head for multiple sclerosis at Mayo Clinic in Rochester, Minn. Keegan is certified by the American Board of Psychiatry and Neurology and is an assistant professor of neurology at the Mayo Graduate School of Medicine. Dr. Adam Carpenter is a neurologist and faculty member at the University of Minnesota MS Center in the Twin Cities. Carpenter spends his time trying to understand MS from both a clinical and research perspective and recently conducted research surrounding biomarkers and magnetic waves as they relate to the disease.

Dr. B. Mark Keegan

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Dr. Adam Carpenter

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Winter MS research symposium Space is limited. Registration form must be received by Feb. 22. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________

Saturday, Feb. 27

8:30-9:10 a.m. 9:10-9:15 a.m. 9:15-10:15 a.m. 10:15-10:30 a.m. 10:30-10:45 a.m. 10:45-11:45 a.m. 11:45 a.m.-noon

Check-in and continental breakfast Welcome MS research highlights Question and answer session Break and exhibits Understanding clinical trials Question and answer session

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Location

_____ # of people attending

There is no fee for this program.

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Register

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.

8:30 a.m. – noon

Holiday Inn St. Paul East 2201 Burns Ave. St. Paul, MN 55119 651-731-2220 www.holiday-inn.com/msp-94east

Program fee

Online or by phone Visit www.MSsociety.org or call 612-335-7968. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, visit www.MSsociety.org or contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Made possible with a restricted educational grant from MNM0CREW20100227STP

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Spring MS research symposium Everything you need to know about the latest MS research and clinical trials.

April 10 n Alexandria Learn everything you need to know about nationally-recognized multiple sclerosis research projects at one of the Minnesota Chapter’s four research symposiums in 2010. You’ll have your questions answered about the latest cutting-edge MS research and therapies by a local expert. Each symposium also includes a session presented by a local expert outlining the process of clinical trials, how people with MS can participate in trials and what participants can expect from the experience. Plus, you’ll be able to visit exhibitor tables to learn more about drug therapy options available to people with MS.

Featured speakers Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology. He serves on the Minnesota Chapter’s Clinical Advisory Committee and is certified with the American Board of Psychiatry and Neurology. Calkwood specializes in MS treatment and is fellowshiptrained in neuro-ophthalmology.

Dr. Jonathan Calkwood

Dr. Adam Carpenter

Dr. Adam Carpenter is a neurologist and faculty member at the University of Minnesota MS Center in the Twin Cities. Carpenter spends his time trying to understand MS from both a clinical and research perspective and recently conducted research surrounding biomarkers and magnetic waves as they relate to the disease. phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Spring MS research symposium Space is limited. Registration form must be received by April 5. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________

Saturday, April 10

8:30-9:10 a.m. 9:10-9:15 a.m. 9:15-10:15 a.m. 10:15-10:30 a.m. 10:30-10:45 a.m. 10:45-11:45 a.m. 11:45 a.m.-noon

Check-in and continental breakfast Welcome MS research highlights Question and answer session Break and exhibits Understanding clinical trials Question and answer session

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Location

_____ # of people attending

Program fee

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

There is no fee for this program.

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.

8:30 a.m. – noon

Holiday Inn Alexandria 5637 Highway 29 P.O. Box 1087 Alexandria, MN 56308 www.hialexandria.com 320-763-6577

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, visit www.MSsociety.org or contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Made possible with a restricted educational grant from MNM0CREW20100410ALE

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Men’s Getaway Just the guys.

March 19-21 n Minneapolis Men living with multiple sclerosis face unique challenges. Not only may the disease affect them differently than women, but living with a disability as a man can also challenge traditional male roles and support networks. This weekend getaway features tips on nutrition and fitness, ways to maintain safety in your everyday routine and free time for fun and informal one-on-one and group discussions. On Friday, Tom Ellis, executive director of the Center for Grief, Loss and Transition, will helps the guys kick off the getaway to ensure each attendee has the opportunity to get what they want out of the weekend. On Saturday, participants enjoy a travel program presented by Jim Bultman, assistant program director with Wilderness Inquiry — an organization dedicated to sharing the outdoors with others. Bultman is an avid world traveler and prior to joining Wilderness Inquiry, served in the Peace Corps helping to develop eco-tourism in Ghana, Africa.

Getaway includes: n

Two nights lodging

n

Meals and activities

n

Workshops on nutrition and fitness

n

Fall prevention and travel workshops

n

Discussion groups

n

Texas Hold’em tournament (and other entertainment options)

The getaway — held in the heart of downtown Minneapolis — also includes plenty of time for participants to kick back, relax and enjoy one another’s company.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Men’s Getaway Space is limited. Interest form must be received by March 5. Complete the interest form online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Friday, March 19–21

Minneapolis

Friday, March 19 Check in, meet other participants and enjoy dinner and an evening with Tom Ellis to kick off the weekend. Saturday, March 20 Morning stretch, breakfast, nutrition and fitness workshops, lunch, fall prevention, informal discussion groups, dinner, travel presentation, Texas Hold’em and other entertainment. Sunday, March 21 Morning stretch, breakfast, open discussion and lunch.

Location Radisson Plaza Hotel Minneapolis 35 S. Seventh St. Minneapolis, MN 55402 612-339-4900

Program fee $150 per person. Fee adjustments available upon request.

Register If you are interested in attending, complete the interest form. Do not mail a check with this interest form. After sending the form, you will receive a detailed packet of program information and a billing invoice. Online or by phone Visit www.MSsociety.org or call 612-335-7968. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Steve Korngable 612-335-7974 or skorngable@MSsociety.org.

INTEREST FORM

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Connect Locally Connect with people in your community.

Bowling and Billiards Keister n Jan. 16, 1 p.m. Key Lanes 504 W. State St., Kiester, MN 56051 www.cityofkiester.com/kee_lanes If you are age 21 to 39 and have multiple sclerosis, come alone or bring your spouse, partner or a friend to this fun and casual get-together! No formal program or agenda; just a bunch of people hanging out, bowling and playing pool. This is a great opportunity to meet and connect with other 20s and 30s who understand the challenges of balancing friendships, careers, college, personal time and an MS diagnosis.

Just a few miles north of the Iowa border, Kiester is located eight miles south of Interstate 90 on Highway 22. For more information or to R.S.V.P., contact Tracy Bohm at 507-380-9211 or tracy_bohm@yahoo.com, or Paula Schultz at 507-340-7457 or richpaula@devcomm.net.

Moms with young children Edina n Beginning Feb. 1, 6:30 p.m. First Monday of the month Patrick’s Bakery & Café, Southdale Square 2928 W. 66th St., Edina, MN 55423 www.patricksbakerycafe.com Take a break from potty training and tantrums and join us for an adults-only, informal get-together. Enjoy coffee, dessert or dinner and take a night off from cooking. Most importantly, meet other moms who understand what it’s like to have MS while raising young children.

R.S.V.P. to Jennifer Stewart at 952-412-1291 or mnjen0810@yahoo.com, or Andrea Viera at 952-474-3381 or andreaviera3@gmail.com.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Connect Locally CogniFitness group: Keeping the Mind Moving Minneapolis n Feb. 10, 17 and 24, 7 p.m. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415 Nearly 60 percent of people with MS experience difficulties with attention, memory and other cognitive processes. CogniFitness is a fun and educational kit designed to help keep the mind moving. Activities encourage practice of strategies that can be applied to everyday life.

To join the three-week CogniFitness group, contact Rick Leaf at 612-791-6473 or rleaf@msnet.org, or Louann Replogle at 612-874-9989 or lreplogle@juno.com.

Clinical Trials: Solving One Piece of the MS Puzzle Cambridge n Feb. 18, 7 p.m. Cambridge Medical Center 701 S. Dellwood, Cambridge, MN 55008 Clinical trials test whether a promising new drug or other medical therapy is safe and effective. Hear from researchers about how clinical trials provide hope for future MS treatments. Dr. Jane Achenbach — of the Cambridge Medical

Center — will field audience questions following the DVD presentation. Please R.S.V.P. to Bob Overturf at 763-792-4744 or boboverturf@comcast.net.

Face Time with an MS Society social worker Forest Lake area n March 11, 6:30 p.m. The Meadows, 25565 Fairview Ave., Wyoming, MN 55092 Minnesota Chapter social workers provide important assistance to people affected by MS by helping to address a wide variety of issues. Sarah Danen, LICSW, director of client services, will facilitate group discussion on employment, ADA, health

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insurance, Social Security Disability Income and Medicare. Bring your questions and concerns. For information or to R.S.V.P., contact Susan Popa at 651-464-1043 or Jeff Fisher at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org. National Multiple Sclerosis Society, Minnesota Chapter


Connect Locally Hold That Thought: Cognition and MS Park Rapids n March 17, 6:30 p.m. St. Joseph’s Area Health Services 600 Pleasant Ave., Park Rapids, MN 56470 People with MS often have problems remembering things, finding the right words, concentrating on a task or following a conversation. This DVD presentation provides information about cognitive symptoms associated with MS, how cognitive changes are evaluated as well as treatment and strategies for

managing cognitive changes. Time for discussion will follow the presentation. For information or to R.S.V.P., contact Denise Pederson at 763-350-6957 or denise.pederson@wildblue.net, or Susan Monsrud at 218-237-2067 or smonsrud@unitelc.com.

Harnessed Walking and Exercise with MS Duluth n April 6, 11:30 a.m. Bethany Baptist Church 6700 Grand Ave., Duluth, MN 55807 People with MS may experience walking and balance difficulties. Contributing factors may include muscle weakness and abnormal compensatory patterns of movement — or problems with coordination of the muscles. Harnessed walking is a functional treatment option that may help people with MS improve their balance, walking and endurance. The Duluth MS self-help group invites you to join

them for this informative program featuring Megan Frost, physical therapist and recipient of the Minnesota Chapter’s 2008 Health Care Professional of the Year Starfish Award. For information or to R.S.V.P., contact Bev Strongitharm at 218-624-1212 or Jeff Fisher at 800-582-5296.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse No program scheduled for January. Future topics, location, dates and times to be determined. Please call 763-302-8282, ext. 4823 for more information.

Dr. Gary Birnbaum

St. Mary’s Duluth Clinic MS Center Every other Wednesday at 6 p.m. Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981

Dr. Gary Beaver

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Topics:

No programs January through March

April 14 The story of MS

April 28 Discussion of treatment options

For more information, contact St. Mary’s Duluth Clinic MS Center at 218-786-8270.

National Multiple Sclerosis Society, Minnesota Chapter


Face Time with Your Local Neurologist

The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Dr. Jonathan Calkwood

Topics:

Jan. 13

Political issues impacting people with MS

Feb. 3

Pain management in MS

Feb. 10

Making your home accessible

Feb. 17

MS Camp (join us at 12:30 p.m. for lunch sponsored by Teva Neuroscience prior to the program)

Feb. 24

The emotional adjustments to living with MS

March 3 The role of the speech therapist in MS

March 10 Bowel issues related to MS 

March 17 The challenges of disability insurance

March 24 By invitation only — group medical appointment

March 31 Patients sharing helpful tips

April 7

Healthy eating and MS

April 14

Managing fatigue

For more information, contact the Schapiro Center for MS at 763-302-4199.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Face Time with Your Local Neurologist

University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N., Minneapolis, MN 55412, and Fairview Maple Grove Clinic, 14500 99th Ave. #500, Maple Grove, MN 55369

Dr. Gareth Parry

Topics:

Jan. 11

MS basics (Kingsley Commons)

Feb. 8

MS basics (Fairview Maple Grove) 

March 8 MS medications (Kingsley Commons)

April 12 MS and traveling (Fairview Maple Grove) 

For more information, contact the University of Minnesota MS Center at 612-626-2675.

Noran Neurological Clinic Every other month from 1 to 3 p.m. Locations vary. Topics:

Feb. 2

April 6

“Winter time blues” Awakening to spring: Understanding sleep problems in MS

Both programs are offered at the following locations: Minneapolis office 2828 Chicago Ave. S., Suite 330 Minneapolis, MN 55407 Fridley office 500 Osborne Road, Suite 364 Fridley, MN 55432 Call 612-879-1500 to register.

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National Multiple Sclerosis Society, Minnesota Chapter


Details about this program are provided for your information. This program is not produced by the National MS Society.

How to Live a Healthy Lifestyle with MS Living well.

March 4 n Golden Valley It takes effort to stay fit and live a healthy lifestyle. Are you interested in learning how you can live well with multiple sclerosis? Attend this interactive session to receive tips from Dr. Jonathan Calkwood to help improve your health on a day-to-day basis. Take action and register for this free seminar today.

Featured speaker Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology. He serves on the Clinical Advisory Committee at the National MS Society, Minnesota Chapter and specializes in the treatment of multiple sclerosis and is fellowship-trained in neuro-ophthalmology. Sponsored by

Details 6 p.m.

Registration

6:30 p.m. Dinner 7-8 p.m.

Program

The Metropolitan Ballroom & Clubroom 5418 Wayzata Blvd. Golden Valley, MN 55416 www.damicocatering.com/locations/ metropolitan.aspx Free parking in lot next to building. To register, call 877-329-8327. Registration deadline is Thursday, Feb. 25.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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MS in Balance

Details about this program are provided for your information. This program is not produced by the National MS Society.

Strategies for managing your MS.

March 27 n Willmar Join this interactive discussion about how people with MS can better manage their symptoms, maintain a healthy lifestyle, and stay on therapy. Take time to join us as an MS expert leads a group discussion regarding real life strategies on how to live well and manage your MS. Join the discussion and share your experiences. Take action and register for this free seminar today!

Featured speaker

Details 9 a.m.

Registration and continental breakfast

9:30 – Program 10:45 a.m. Lakeland Auditorium (lower level) Lakeland Health Center 502 Second St. SW Willmar, MN 56201 To register, call 877-329-8327.

Dr. Merlin V. Nelson is a neurologist at Affiliated Community Medical Centers-Willmar. He specializes in disorders of the brain, spinal cord, and nerves — providing comprehensive evaluation Dr. Merlin V. and treatment for a Nelson variety of neurological problems, including MS, epilepsy, and Parkinson’s disease. Sponsored by

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National Multiple Sclerosis Society, Minnesota Chapter


What’s online? Let the Internet help you become an MS research expert.

MS research is moving forward at record speed. In 2009, the National MS Society invested more than $33.5 million to MS research. With so much in the pipeline, it may seem hard to keep up, but online resources can keep you up to date. Visit nationalMSsociety.org/research to learn everything you need to know. Here are a few features to help keep you in the know: n

Click on “Research News” to monitor breaking news about new treatments on the horizon, results from important studies and more.

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Download webcasts and podcasts featuring world-renowned neurologists and other MS experts. Just visit the research home page and check out the latest multimedia available on the right-hand side.

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Click on “Clinical Trials” to learn the basics of how trials work and things to consider if you’re interested in participating.

n

Check out the progress we’ve made in MS research by clicking on “How far we’ve come,” where you’ll find a timeline of important milestones in MS dating back to 1421.

n

Click on “Intriguing leads on the horizon” to learn about interesting topics in MS, including the economic impact of MS, why women are more prone to the disease, the use of robotics to improve walking ability in people with MS and more.

Get online Visit www.nationalMSsociety.org/research to explore these and other cool features.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group

Courage St. Croix Courage St. Croix in Stillwater offers classes specifically designed for people with MS, including Yoga class at 10 a.m. on Wednesdays and 6:30 p.m. on Thursdays, and water exercise from 10 to 11 a.m. on Tuesdays and Thursdays. To register, contact Joanie Kiminski at 651-439-8283.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.

WATER EXERCISE Albert Lea

Andover

Coon Rapids

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon

Alexandria

Burnsville

Emma B. Howe Northtown YMCA Lisa Whitcomb, 763-717-1837 T/R, 11 a.m.-noon

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W, 4:30-5:30 p.m. T/R, 9-10 a.m.

Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

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Detroit Lakes Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.

National Multiple Sclerosis Society, Minnesota Chapter


Duluth

Perham

Eden Prairie

Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

Eden Prairie

St. Cloud Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.

Kingsley Commons Jeannie Zank, 612-335-7939 F, 10:30 a.m.

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.

Inver Grove Heights The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.

New Hope Northwest YMCA Marvin Peterson, 763-535-4800 T/R, 11 a.m.-noon

St. Paul Jewish Community Center Robin Feickert, 651-255-4762 T/R, 9:45-10:25 a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 M, 11:15 a.m.-noon

Minneapolis

Uptown YWCA Lisa First, 612-822-3504 F, Noon

New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S 9:30-10:30 a.m.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Featured group

Clubs and Groups

Duluth Book Club

Join an MS club or group to connect with other people “Launched three years ago, our book club meets at Barnes & Noble. Our membership includes a core of devoted readers. We read a variety of books, switching between fiction and non-fiction, and following our discussion we wander across the mall to enjoy lunch together.” ­— Betsy Polyner, book club leader

affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951, 800-582-5296 or jfisher@MSsociety.org

BOOK CLUBS

Maple Grove

Minneapolis

Apple Valley

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Mahtomedi

Rochester

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna, 651-762-4084

Fourth Tuesday of the month 7 p.m., Barnes & Noble Apache Mall Larry, 507-281-2447

First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

Duluth Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

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National Multiple Sclerosis Society, Minnesota Chapter


Roseville First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Kathy, 651-698-4732

Fitness clubs Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

For artists, crafters and writers with MS

For couples

MS Art Support Group

Second Saturday of the month Noon, Courage Center

Third Saturday of the month 11 a.m. Contact Donna for location at 651-762-4084 or birchwild@aol.com

For care partners Bemidji Care Partners

Stillwater Couples

For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability

Third Saturday of the month 10 a.m., chapter office

Third Saturday of the month 10 a.m., North Country Regional Hospital

First Tuesday of the month, 6 p.m., Goodwill/Easter Seals and third Thursday at 2:30 p.m., MCIL, St. Paul

Rochester

Men’s Care Partner Breakfast

Fourth Saturday of the month 10 a.m., Rochester Athletic Club

Third Saturday of the month 10 a.m., different restaurant each month Contact Dan for location at 651-779-9435 or dbr@danielrude.com

For men

Minneapolis

SELF-HELP GROUPS New group Men’s Group First and third Thursday of the month, 11 a.m. Courage St. Croix, Stillwater

Moms with young children

Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church

St. Louis Park Care Partners

First Monday of the month 6:30 p.m., Patrick’s Bakery & Café

Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall

New Richmond

Women Care Partners

Second Thursday of the month, 6 p.m., First Lutheran Church

Beginning Oct. 17 Third Saturday of the month Dorothy Ann Bakery & Café, Woodbury

Metro Area It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m., Different restaurant each month Contact Rick for location at 612-791-6473 or rleaf@msnet.org

For people of color Metro MS group for people of color Second Saturday of the month 10 a.m., Wayman AME Church in Minneapolis

For people mildly affected by MS Southwest Metro MS group for mildly affected Third Saturday of the month 10 a.m., United Methodist Church in Eden Prairie

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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For professionals

Austin

Canby

Let’s Lunch: professionals living with MS

First Monday of the month 6:30 p.m., Grace Lutheran Church

Second Thursday every other Month, April-Dec. 4 p.m., Sanford Canby Medical Center

Third Saturday of the month 11 a.m., Chatterbox Pub in St. Paul

For women Maplewood Peer Emotional Support Women’s Group Third Thursday of the month 6:30 p.m., Gustavus Adolphus Lutheran Church

General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month 1 p.m., Hope Drop-In Center

Albert Lea Second Monday of the month 1:30 p.m., Dec. – Feb., 7 p.m., Mar. – Nov. Grace Lutheran Church

Alexandria Second Monday of the month 5 p.m. (No evening meetings Dec. – Mar.) St. Mary’s Office Building Fourth Monday coffee social 10:30 a.m. Daily Grind House of Java

Arrowhead region Second Friday of the month 1 p.m., Four Corners Café No meetings in Nov. – Mar.

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Belview Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov.–Feb.

Chaska

Bemidji

Coon Rapids North Suburban

Third Saturday of the month 10 a.m., North Country Regional Hospital

Third Tuesday of the month 12:30 p.m., Chaska City Hall

Second Wednesday of the month 7 p.m., Coon Rapids City Center

Bloomington

Detroit Lakes

First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July

Second Monday of the month 6 p.m., Lincoln Park Assisted Living

Buffalo

First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Third Monday of the month Noon, United Methodist Church

Burnsville/Apple Valley First Tuesday of the month 6:30 p.m., Fairview Education Center in Burnsville (Group also meets for lunch social at Perkins in Apple Valley at noon every third Thursday of the month) R.S.V.P. to Mike at 952-898-2857

Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center

Duluth

Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church

Excelsior/Minnetonka Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group building in Excelsior

Fergus Falls Second Wednesday of the month 11:30 a.m., United Church of Christ

National Multiple Sclerosis Society, Minnesota Chapter


Forest Lake Area

Luverne

Pierz/Little Falls

Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living (Group also meets socially at 6:30 p.m. the fourth Thursday of the month) Contact Susan at 651-464-1043

Third Thursday of the month 7:30 p.m., Rock County Family Services

First Wednesday of the month 1 p.m., Bethel Lutheran Church

Mankato

Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Gaylord First Sunday of the month 7 p.m., Forever Young Senior Center

Grand Rapids Second Thursday of the month 12:30 p.m., Grand Rapids Public Library

Hibbing Last Thursday of the month 1 p.m., Open Door Church

Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Maple Grove Second Saturday of the month 10 a.m., St. Joseph the Worker Church

Minneapolis Last Saturday of the month 10 a.m., Kingsley Commons

New Prague

Princeton

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

Roseville Second Wednesday of the month 6:45 p.m., The old Fire Station

South Metro Recently to 5 Years Diagnosed

Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital

Last Wednesday of the month 6:30 p.m., Jo Jo’s Rise & Wine

New Ulm Third Tuesday of the month 7 p.m., Oak Hills Living Center

Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church in New Brighton

Oakdale

Staples

First Monday of the month 7:30 p.m., Good Shepherd Lutheran Church

First Saturday of the month 10:30 a.m., Oakdale Library

Second Thursday of the month 4 p.m., Lakewood Care Center

Park Rapids

St. Cloud

Lake Elmo Second Wednesday of the month Noon, Christ Lutheran Church

Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services

Second Wednesday of the month 7 p.m., St. Cloud Public Library

Litchfield

Perham

Third Wednesday of the month 6:45 p.m., Fairview MS Achievement Center

Hutchinson Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Inver Grove Heights/West St. Paul

Fourth Tuesday of the month 3 p.m., Meeker County Memorial Hospital

Last Tuesday of the month 1 p.m., Calvary Lutheran Church

St. Anthony/New Brighton

St. Paul

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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St. Paul Care to Share

Waseca

Woodbury A.M.

Second Wednesday of the month 7 p.m., Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location

Third Tuesday of the month 7 p.m., Waseca Medical Center

Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Wayzata-Suburban West Hennepin

Stillwater

First Thursday of the month 1 p.m., Original Pancake House, Wayzata

Third Wednesday of the month 6 p.m., Courage Center

Willmar

Superior Second Tuesday of the month 6 p.m., Superior Public Library

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

First Tuesday of the month 7 p.m., Bethesda Pleasant View Nursing Home

Thief River Falls

Windom/Cottonwood County

Third Saturday of the month 4 p.m., Riverside Terrace

Third Tuesday of the month 7 p.m., ALC Lutheran Church

Additional resources Clubs and groups For more information about book clubs and self-help groups, visit www.MSsociety.org. Click on Client Programs and then Clubs and Groups. If you would like more information or are interested in starting a book club or self-help group in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

Do you know a company that could support the MS Society? The Minnesota Chapter recently received a generous grant from the UCare Fund to support chapter programs promoting healthy living — like the exercise programs listed on pages 24 and 25. Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri Cannon at 612-335-7925 or tcannon@MSsociety.org.

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National Multiple Sclerosis Society, Minnesota Chapter


Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968 Camps MS Camp Jeannie, 612-335-7939 Youth Camp Steve, 612-335-7974 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968

Emergency assistance Heather, Jill or Sarah, 612-335-7900 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Family programs Steve, 612-335-7974

Clubs and groups Book clubs and self-help groups Jeff, 612-335-7951

Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965

Corporate sponsorship Teri, 612-335-7925

Housing Steve, 612-335-7974

Education programs Steve, 612-335-7974

Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967

Calling from Greater Minnesota? Call 800-582-5296

Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Megan (Programs), 612-335-7955 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971 Youth and teen programs Steve, 612-335-7974

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Join Walk MS, no matter where you are. More than 10,000 people will rally together May 2 for Walk MS: Christopher & Banks Walk 2010. Can’t make it? Good news. Walk MS is for anyone who is passionate about creating a world free of MS — no matter where you are.

REGISTER FOR WALK MS: ANYWHERE WALK. Get started today with our easy online fundraising tools. You’ll be eligible for all the same great prizes and can even start a team. Walk MS is the rallying point of the MS movement. Be there — whether in person or in spirit. Register now. www.walkMSmn.org 800-582-5296

Leave your legacy You have the power to leave a lasting legacy on the MS movement, without paying money now. Naming the National MS Society, Minnesota Chapter as a beneficiary on your life insurance or retirement plan is an easy way to make your mark against MS.

JOIN THE MOVEMENT For more information, contact Rachel at 612-335-7965 or rhughes@MSsociety.org or visit MSsociety.org.


Programs Connection winter 2010