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PACIFIC SOUTH COAST CHAPTER

MOVING TOWARD A WORLD FREE OF MS | 2009 • SUMMER • VOL 3

Activism. Your voice can change lives. At the Pacific South Coast Chapter we think that real people should have a real impact on reforming the system. All of our advocacy successes happen when people who care about MS speak out on issues that are important to them. We rely on MS Activists to provide input about problems affecting people with MS in their local communities and to raise awareness of the challenges of MS among public officials.

MOREINFO Challenge Walk MS is coming! Learn more about this inspiring event and how to get involved.

NEWSNOW

Stay up-to-date on MS research -- new and exciting things are happening every day! To read online, visit nationalMSsociety.org/ research. To receive monthly emails with the latest news in research, contact newsletter@mspacific.org with “Send me research updates” in the subject line.

Make a difference by joining Action Alert today! Action Alert is our grassroots network of people who want to do something about MS. When a priority public policy issue is at hand, we will contact you with background information on the issue, clear instructions, sample letters and legislative contact information. You will be asked to email, write, telephone or visit your member of Congress, State Legislators or other key decision makers to voice your views. Contact Amanda Lasik at 760-448-8404 or amanda.lasik@mspacific.org to get started as an MS Activist.

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INSIDE THIS ISSUE

Is Telecommuting Right For You? Page 3

The Benefits of Aquatic Exercise Page 5

Programs Happenings Page 7-10

Bike MS Bay to Bay Tour 2009 Page 15


PACIFIC SOUTH COAST CHAPTER

(800) 344-4867 Publication of the National Multiple Sclerosis Society Pacific South Coast Chapter Chapter Offices: 5950 La Place Court, Suite 200 Carlsbad, California 92008

National MS Society Scholarship Program The chapter is proud to announce this year’s Bob Webster and Helen Marocco Angel Scholarship winners. Special Thanks to Volunteers In Multiple Sclerosis (VIMS) for their generous support and underwriting of this special program.

Congratulations to our 2009 winners:

3000-C Airway Avenue, Suite 125 Costa Mesa, California 92626 Vice President, Programs & Services Karen Hooper Director, Marketing & Communications Beth Clark Help the Chapter save printing & postage costs!

To receive this publication via email, send an email to newsletter@mspacific.org with “Email me the MSConnection” in the subject line. You’ll save paper (and therefore trees) as well! The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. © 2009 National Multiple Sclerosis Society, Pacific South Coast Chapter

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JOIN THE MOVEMENT: nationalMSsociety.org

Michelle Arguena

Diana Magana

Christian Starks

Megan Mancuso

Applications for scholarships will be accepted again between October 15, 2009, and January 15, 2010, through nationalMSsociety.org or call us at 1-800-344-4867. For more information, visit nationalMSsociety.org/scholarship.


Finding legitimate internet jobs

MONEY MATTERS

Why telecommuting may work for you

An estimated 45 million Americans worked from home in 2006, up from 41 million in 2003*. For people with disabilities, telecommuting may offer a way to keep working despite mobility or fatigue issues. The kinds of work that can be done at home include auditing, data entry, design, editing and writing, litigation coding, medical and legal transcription and more. Is telecommuting right for you? “Most of our calls are from people with disabilities who want to work from home,” Kim Cordingly, PhD, told MSConnection. Dr. Cordingly is a self-employment consultant at the Job Accommodation Network, (JAN), a service of the U.S. Department of Labor that provides information on job accommodations, self-employment and small business opportunities. “Legitimate jobs exist, but it’s important to be a good consumer when looking for online work,” Dr. Cordingly advised. To help people avoid scams, the Federal Trade Commission’s “Work at Home Schemes” page (ftc.gov/ bcp/menus/consumer/invest/workhome.shtm) lists popular schemes, such as coupon scams and fraudulent medical billing opportunities, and how to avoid them.

Get ready Teleworktools.org provides a comprehensive toolkit for potential teleworkers, including a self-assessment questionnaire, information on benefits and financial help, and an exhaustive list of links to telecommuting resources on the Web.

“If for any reason you feel unsure about a company or what they’re offering, feel free to investigate,” Dr. Cordingly said. First, check with the Federal Trade Commission (ftc.gov) and the Better Business Bureau (bbb.org) to see if any complaints have been filed against the company. It is also okay to ask for references—contact *According to a 2007 meta-analysis of 46 studies of telecommuting published in the Journal of Applied information for other people doing similar work for the Psychology (Vol. 92, No. 6). company so you can ask them about their experience. Get set up Dr. Cordingly highlights two organizations that specialize in helping potential telecommuters find work. The National Telecommuting Institute describes itself as “a unique educational/job-matching organization.” NTI staff work together with employers, vocational rehabilitation agencies, and people with disabilities to help potential employees train for and work online. CORA Works trains and mentors people with disabilities and matches them with the needs of employers.

MOREINFO CORA Works coraworks.com 800-571-2397 Job Accommodation Network jan.wvu.edu 800-526-7234; TTY: 877-781-9403 National Telecommuting Institute nticentral.org 800-619-0111

TOLL FREE NUMBER 1 800 344 4867

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Eight steps to less stress

LIVING WITH MS

LET GO -- And manage your life Nancy Law

vice president Client Programs National MS Society

Letting go of anger We have a tendency as human beings to hold on to things. We hold on to disagreements we have had with people; we relive injuries and insults. We can carry those bad feelings with us a long time, and this causes stress long after the stressful situation is over. Anger and MS can sometimes go hand in hand. Here are some of the signs that anger may be stressing you: • • • • •

INSIDELOOK You cannot turn on the computer, the television or open the newspaper these days without hearing about the economy and these “tough economic times” we are all facing. This is a tough time for everyone and living with the challenges of multiple sclerosis can only prove to be more challenging. Taming stress is more important than ever… 4

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Feeling irritable much of the time Finding little things bothersome Yelling or raising of your voice frequently Feeling sarcastic Saying things you later regret.

Anger is usually a secondary emotion. It comes in the wake of other more painful feelings – hurt, fear or powerlessness. Anger actually protects us from those painful feelings, but until they are addressed, we generally continue to be angry. Ask yourself: • • •

Is something scaring or hurting me? If so, who or what? Do I feel helpless or powerless?

Confronting and talking to people who have hurt you can sometimes resolve the issue. Sometimes, it’s just best to move on. Dealing with things that make you feel fearful or powerless generally requires action. For example, checking into insurance options or talking with your employer about workplace accommodations. These actions may sound worse than the fear, but taking action will help you feel more in control of your life.

JOIN THE MOVEMENT: nationalMSsociety.org

One of the most important things to do in managing stress is to take care of yourself. 1. Find the right medical team and work with them on managing symptoms. 2. Eat right. Good nutrition is a no-brainer. Stick to sensible portions and avoid fad diets. 3. Exercise. Even though you may not be able to do the things that you used to do, you can adapt your exercise regimen to fit with your MS. 4. Maintain healthy behaviors. Women should get regular pap smears and mammograms. Men should have their PSA tested regularly. Periodic physical exams are a must for everyone. 5. Avoid negative coping strategies. Try to quit smoking. Drink in moderation. Seek help with this if you need it. 6. Healthy relationships. Many people find support within their own families. Others find a support network in their religious group. The Society has affiliated self-help groups. Some people meet with others in Internet chat, bulletin board, and email listserv groups. Find a system that works for you. 7. Avoid “toxic” people who bring you down. You know who they are. 8. Take time to laugh. Laugher is actually known to be physically healthy. Find those comedy DVDs, videos, or get out to a movie. Read jokes on the Internet. Talk to friends. Share a laugh. Adapted from the MS Learn Online series “C.A.L.M. Down and Mangage Your Stress,” which is archived at nationalMSsociey.org/ MSLearnOnline.


LIVING WITH MS

AQUATIC EXERCISE

providing optimal excrcise conditions for people with ms to avoid having a fall. I enjoy swimming very much and only wish that many others with MS could get in the water and have such kind, helpful, and fun instructors as I have had. What a great way to exercise!” In addition to being essential to general health and well-being, exercise is helpful in managing many MS symptoms. The chapter’s Aquatic Exercise programs are designed to address symptoms of MS. Aquatics – exercise in water – provides optimal exercise conditions for people with MS: In 1997, Bonnie, a then-47-yearold single mother of one, was experiencing double vision, balance and bladder problems, fatigue and loss of sensation in her fingers. After testing, she was diagnosed with secondary progressive multiple sclerosis. At the time, she and her 16-year-old son, Aaron, were living in Washington state. Bonnie was a professional illustrator, college drawing and design instructor, and an Instructional Technologist. After ten years away, Bonnie took an early retirement to San Diego (her original home) in 2004. She decided to make exercise a part of her life. “Swimming had always been my choice if I had to exercise,” said Bonnie, so she found an aqua class offered by the chapter. Bonnie attended the class with another friend who also has MS and is in a wheelchair. Four years later, Bonnie, now 58, attends nearly every class, year-

INSIDELOOK “They keep me walking and agile enough to avoid having a fall. I enjoy swimming very much! [...] What a great way to exercise!” round. “I make sure to do the exercises, religiously,” says Bonnie. Her preferred stroke is the crawl. “The instructors have noticed my enthusiasm and have taught me different swimming strokes and various balance exercises.” Except for the double vision (which has subsided), Bonnie’s original symptoms have intensified; she also experiences symptoms such as tremors in her hands, difficulty walking and eating, and lack of concentration. Bonnie says of her classes, “[They] are a great social outlet for me. They keep me walking and help me to stay agile enough

• Water reduces the effects of gravity, and the buoyancy or weightlessness that occurs in water helps a person with weakened limbs attain a greater range of motion. • Water helps reduce body heat that can be generated by exercise. Overheating is often a cause of temporary worsening of MS symptoms. • Chest-high water can provide support, enabling many people with MS to stand and maintain balance for exercises with less effort than on land. • The resistance that water provides can be utilized for purposes of muscle strengthening. Aqua classes are offered at a nominal fee ($3-5 per class) or free. To learn about classes in your area, view the Program Happenings insert or contact the chapter at 1-800-344-4867.

TOLL FREE NUMBER 1 800 344 4867

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SUPPORTING THE MISSION

VOLUNTEERS MAKE IT HAPPEN!

DOMORE

“Volunteering can be an exciting, growing, enjoyable experience. It is truly gratifying to serve a cause, practice one’s ideals, work with people, solve problems, see benefits, and know one had a hand in them.” – Harriet Naylor Volunteers Needed! Please Join the Movement® and support our upcoming events: Challenge Walk MS participants spend three days walking 50 miles, September 11-13. Volunteer one, two or all three days during this inspirational event. To register as a volunteer, visit MSchallengevolunteer.kintera.org or contact Linda Ingram at volunteer@mspacific.org or 760-448-8416. The Bike MS Bay to Bay Tour, October 10-11, promises to be bigger than ever and we need over 1,000 volunteers to support the 2,500 cyclists as they ride down the coast from Irvine and Carlsbad to San Diego! There are MANY volunteer opportunities available, from site set-up to cheering! Visit biketofinishMS.com and click on volunteer information for more information or to register as a volunteer. Want to take your volunteerism to the next level? If you are ready to take on a leadership role at the Challenge Walk or the Bike Tour please contact Linda Ingram at 760-448-8416.

T@lk to us there are more ways than ever to tell us what’s on your mind Twitter users can follow the Bike MS Bay to Bay Tour at twitter.com/BikeMS. 6

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JOIN THE MOVEMENT: nationalMSsociety.org

All of us are doing our best to get through these difficult economic times. If you are a professional who has some time on your hands, consider volunteering! We want to mobilize volunteers who want to give back. We need a reception volunteer who is detail-oriented, has great customer service skills, can answer a multi-line phone system and complete general office tasks. We are also looking for computer-savvy volunteers to work with staff on data management. We need volunteers to help with the many tasks that allow us to offer our clients first-rate programs and services. We can work with your schedule! Our office is open Monday thru Friday and is located in Carlsbad. Email your resume and a cover letter to linda.ingram@mspacific.org or call 760-448-8416. Do you have a skill or talent but are not sure the chapter can use you? Call us!

Visit our YouTube channel at youtube.com/MSPacific and view chapter videos.

Be our fan on Facebook. Log on to your Facebook account and seach for Pacific South Coast Chapter.


PACIFIC SOUTH COAST CHAPTER

MOVING TOWARD A WORLD FREE OF MS | PROGRAM HAPPENINGS

MARK YOUR CALENDARS Couples Weekend Retreat September 11 -13, Carlsbad Join other couples impacted by MS for a fun-filled weekend where you and your partner or spouse can get away from the day-to-day responsibilities, relax at a beautiful resort and learn about ways to enhance your relationship. For more information, contact Janell Marshall at 760-448-8407 or janell.marshall@mspacific.org

COOL TIPS FOR HOT DAYS Avoid the hot seat Keep your car cooler with reflective shades for the windshield and fabric car seat covers. Available at auto supply stores. Water and… Keep a plastic water bottle half filled in the freezer. Let it freeze, and then top it off with water for a drink that stays cool all day. Herbals teas – fruity blends, peppermint and ginger -- are good chilled and have little or no calories if you make your own.

Avoid sugary drinks. They leave you thirstier -- and heavier too, because of all the calories. Drink fruit juice the light way by extending with ice, water, or a fruity herbal tea. Snackin’ cool Smoothies and slushies pack a cool nutritional punch. In a blender, combine banana, melon, strawberries or peaches with low-fat milk or fruit juice. Then pile in the ice. Add a few drops of vanilla for an exotic touch.

TRYTHIS

Tax deduction With a doctor’s prescription, you can claim a new air-conditioner as a tax-deductible medical expense.

For more information on heat sensitivity, go to nationalMSsociety.org/ sourcebook. Click on heat/temperature.

Dress light and loose Loose cotton blends and microfiber fabrics allow perspiration to evaporate. Try a wide-brim hat. Canvas or mesh sneakers are cooler than leather.

Cool clothing Commercial cooling garments, such as vests, bra inserts and headbands can help you stay cool for hours. Search ABLEDATA (www.abledata. com or call 800-227-0216) or call us at 1-800-344-4867 for referrals. Spray instead Sweat evaporating on skin is how your body stays cool. Carry water in a spray bottle and wet your shirt and hat for the same effect. Stand in front of a fan for instant A/C. Pre-cool “Pre-cooling” may lessen the heating effects of strenuous activity. Submerge in a tub of cool water for optimal benefit. Use mint soap for a cool skin sensation.

TOLL FREE NUMBER 1 800 344 4867

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SELF-HELP GROUPS Orange County Anaheim 1st & 3rd Tuesday, 12:30 - 2:30pm Rosa Ferreras 714-758-0829 Anaheim: En Espa単ol Familiares y amigos bienvenidos El segundo y cuarto martes de cada mes Anaheim Adventist Church 900 S. Sunkist St, 6 - 7:30pm Rosa Ferreras 714-758-0829 Susana Perez 714-235-7570 Brea: Family & Friends Welcome 2nd Monday & 4th Friday, 10am - 12pm Kathy Kelby 714-525-0686 Rob Lammers 714-990-2933 Brea Last Friday of the month, 10am - 12pm Denise Kish 949-951-1402 or 909-519-4410 Jim Langdon 714-392-0002 Costa Mesa: Man to Man 2nd & 4th Wednesday, 1:30 - 3pm Frank Austin 714-925-4100 Mike Milne 949-215-8502

Huntington Beach: Working with MS 1st Tuesday, 6:30 - 8:30pm Karen Patterson 714-377-4006 Laurie Cable 714-969-8298

Mission Viejo: Early-Retired with MS 1st Wednesday, 11am - 1:30pm Bill Bisch 949-218-5020 Mary Wiersma 949-457-1580

Irvine: Mature Group 2nd & 4th Wednesday, 10am - 12pm Betty Brusco 949-481-0143 Jack Santos 949-786-9593

Mission Viejo: Minimal Symptoms / Newly Diagnosed 2nd Wednesday, 6 - 8pm Jerry Dowd 949-498-5955 Susan Watson 949-493-1299

Irvine: Girl Talk 3rd Monday, 11am - 1:30pm Tabitha Evans 714-669-5618 Laguna Hills 1st Tuesday, 10am - 12pm Francince Grasso 949-278-6935 Karen Harlas 949-498-9583 Lake Forest: MS with Christ 3rd Monday, 6:30 - 8:30pm Bill Bisch 949-218-5020 Cathy Varela 949-496-3810 Midway City 1st & 3rd Tuesdays, 9:30 - 11:30am Pat Howard 714-968-0277 Carolyn Cassell 714-963-8624

Huntington Beach: Minimal Symptoms / Newly Diagnosed 2nd Wednesday, 10am - 12pm Priscilla Wolz 714-846-6526

MOREInfo If you would like more information about support groups in your area, call 1-800-344-4867 press 1 or contact a leader listed above.

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JOIN THE MOVEMENT: nationalMSsociety.org

Newport Beach 3rd Sunday: 2 - 4pm Reverend Sellers 949-764-8358 Norma Mucia 714-641-9171 Newport Beach: Minimal Symptoms / Newly Diagnosed 2nd Tuesday, 11am - 1pm Debra Haynes 949-650-7659 Sherri Brash 714-846-2064 Orange Last Thursday, 10:30am - 12:30pm Greg Hertzler 714-993-5988


SELF-HELP GROUPS San Diego County Cardiff by the Sea: Women’s Group Library Community Room 2081 Newcastle Avenue 3rd Wednesday, 6 - 7:30pm Charlotte Hayes 858-558-1150 Carlsbad: Christian Group Kaiser Permanente, 2nd Floor Conference Room 6860 Avenida Encinas 4th Thursday, 10am - 12pm Dawn Vallely 760-390-1777 Barbara Murray 760-941-0837 Chula Vista: En Español Familiares y amigos bienvenidos St. Mark’s Lutheran Church 580 Hilltop Drive, El cuarto miércoles de cada mes, 10am - 12pm Fernando Palomino 619-691-7964 Maria Salazar 619-420-5942 Chula Vista St. Marks Lutheran Church 850 Hilltop Dr. 3rd Wednesday, 11am - 1pm Mae-Ghan Fletcher in Chapter Programs 714-689-9603 Escondido Joslyn Senior Center, Room 5 210 Park Avenue 3rd Wednesday, 1 - 3pm Beth Bradsher 760-747-9096 Oceanside Oceanside Library 3861 Mission Avenue 2nd Wednesday, 12 - 2pm Juanita Hamilton 760-754-1911

Poway Weingart Center 13094 Civic Centre Drive 1st Tuesday, 6:30pm Peggy Green 858-748-4009 Ramona 2nd Tuesday, 11am - 12pm Van Reeder 760-789-9129 San Diego (Clairemont/La Jolla) Denny’s Restaurant 4280 Clairemont Mesa Blvd. 1st Thursday, 9 - 11am Denise Kish 949-951-1402 or 909-519-4410 San Diego: Mens Group Kaiser Education Center San Diego 10990 San Diego Mission Road 1st Tuesday, 6:30pm Bill Homer 858-571-1867 San Diego (Mid-City) Kaiser Education Center San Diego 10990 San Diego Mission Road 4th Monday, 2 - 4pm Stephanie Russell 619-224-6156 San Marcos Lake San Marcos Resort Gallery Room 1025 La Bonita Dr. 2nd Monday, 12 - 2pm Sandi Kehoe 760-402-4456

Women with MS Dinner Group One weekday evening/month Location varies Rabiah Coon 858-699-1062 rabiahc@gmail.com

Spring Valley New Seasons Church 2300 Bancroft Drive 2nd Saturday, 12:30 - 2pm Kris Hodge 619-933-2601 Debbie Centeno 619-460-4123

TOLL FREE NUMBER 1 800 344 4867


Aquatics

YOGA

Chula Vista: Outdoor Loma Verde Pool: 1420 Loma Lane Tuesdays & Thursdays, 12 - 1pm El Cajon: Outdoor St. Madeline Sophie’s Center 2119 East Madison Avenue Mondays, Wednesday & Fridays 11:30am - 12:30pm

Costa Mesa Presbyterian Church of the Covenant 2850 Fairview Road Mondays & Fridays, 10:30 - 11:30am

Encinitas - Ai’Chi: Indoor Magdalena Ecke Family YMCA 200 Saxony Road Wednesdays, 12 - 1pm

San Diego: Indoor Wave House Athletic Club 3115 Ocean Front Walk Mondays, Wednesdays & Fridays, 11am - 12pm

Fullerton: Indoor North Orange County YMCA 2000 Youth Way Mondays, Wednesdays & Fridays 9 - 10am, $3 per session

Vista: Indoor Bally’s Fitness Center 1932 Hacienda Drive Tuesdays & Thursdays, 11:45am - 12:45pm

Irvine: Outdoor Waterworks Aquatics 25 Waterworks Way Saturdays, 9 - 10am San Diego: Outdoor Peninsula Family YMCA 4390 Valeta Street Monday-Friday, 11am - 12pm $5 per session San Clemente: Outdoor Ole Hanson Public Pool 105 West Avenida Pico Tuesdays & Thursdays, 10:30 - 11:15am $5 per session Amanda 760-448-8404

MOREInfo For wellness options in Imperial County, contact Amanda in Chapter Programs at (760) 448-8404 or amanda.lasik@mspacific.org 10

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BALANCE La Jolla Ability Rehabilitation Specialists 737 Pearl Street, Suite 108 1st, 2nd, 3rd Tuesdays, 6 - 6:45pm Mission Viejo Balance Rehabilitation 25971 Pala, Suite 110 Tuesdays or Thursdays, 1 - 2pm

Dana Point Dana Point Community Center 34052 Del Obispo Road Wednesdays, 8 - 9:15am Fullerton St. Stephen’s Lutheran Church 2311 E. Chapman Avenue Wednesdays, 10:30 - 11:30am Huntington Beach Yoga Works 301 Main Street Wednesdays, 1 - 2pm La Jolla Scripps Memorial Hospital 9888 Genesee Avenue Thursdays, 9 - 10am $10 monthly fee Cardia Rehab 858-626-6493 donovan.lauren@scrippshealth.org San Diego Sponsored by Cedar Pharmacy, Inc. Addie’s Personal Training Studio 4440 Ingraham St. Sundays, 10 - 11am

Strength Training Costa Mesa Healthy Balance 1599 Superior Avenue, Suite B Thursdays, 10:30 - 11:30am San Diego: MS F.I.T.T Sponsored by Bill Howe Plumbing Addie’s Personal Training Studio 4440 Ingraham St. Saturdays, 11:30am - 12pm $5 per session

JOIN THE MOVEMENT: nationalMSsociety.org

Music Costa Mesa Chapter Office 3000-C Airway, Suite 125 1st Monday, 10:30am - 12pm San Diego Serra Mesa-Kearny Mesa Brand Library 9005 Aero Drive June 16, 23, 30; July 7 11am - 12:30pm


Sylvia Lawry Society

Sylvia Lawry founded the National MS Society in 1946, hoping to cure her brother Bernard’s MS, and led it as chief executive until 1982. Bernard passed away in 1973 and Sylvia died in 2001. While the cure eluded her, Lawry’s legacy is a national movement that aggressively funds research, advocates for change and provides programs and services that help all Americans affected by MS move their lives forward.

The Lawry Circle is comprised of people who know that the quest for a world free of MS must continue. It honors donors who have informed the Society of their intention to help create a better future for the MS community through their will, trust or estate plan. The Lawry Circle recognizes and honors people who have demonstrated a deep commitment to improving the lives of those with MS by establishing a deferred gift for the National MS Society. Deferred gifts include: • bequest intentions in a will • charitable gift annuities • charitable trusts • designating the Society as beneficiary of a retirement account • designating the Society as beneficiary of a life insurance policy, or the donation of a policy. Because all deferred gifts represent an expression of lifetime commitment to the Society, there are no minimum gift levels and membership is for life. Contact Us If you name the National MS Society in your estate plan, please contact us so that we can recognize your dedication and inspire others to help. Should you choose to remain anonymous, your gift will be kept completely confidential. For more information, contact Karen Barton at 760-448-8412 or karen.barton@mspacific.org.

FUNDING THE MISSION

GOLFING FOR MS

On May 4, 2009, more than 100 golfers joined honorary chair Chargers Head Coach Norv Turner for the 15th Annual MS Golf Classic sponsored by Sycuan Casino. It was a wonderful day of golf at La Jolla Country Club where over $100,000 was raised toward a world free of MS. A huge thank you to all of our golfers and our sponsors: Sycuan Casino, Collins Plumbing, Continental Airlines, Lexus Kearney Mesa, Deloitte and Homestead Sheet Metal.

SAVE THE DATE! MS Dinner Auction November 21, 2009

Mark your calendars now for the 2009 MS Dinner Auction, featuring hundreds of silent and live auction items and a gourmet dinner. Come enjoy a festive evening at Loews Coronado Bay Resort with friends and start your holiday shopping early! Want to be a part of this year’s event? Join our MS Auction Committee and assist with item solicitation, table sales and sponsorship. Or donate items: hotels stays and restaurant and entertainment certificates are our best sellers. Make a contribution of your credit card “reward” points. Volunteer for the chapter by processing donations, making phone calls and doing internet research. For more information visit MSpacific.org or contact Angela Northrup at 760-448-8434 or angela.northrup@mspacific.org.

TOLL FREE NUMBER 1 800 344 4867

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FUNDING THE MISSION

Walk MS 2009 Our Top Fundraisers, teams and sponsors made walk ms a $1.7 MILLION success! Elite Feet: Our Top 50 fundraisers collectively raised OVER $420,000! 1. Dick & Lynn Gordon 2. Paul & Mary Smigliani 3. Sam & Betty Brusco 4. Cindy Roper 5. Nick & Ruth Tsoulos 6. Dawn Beattie 7. Ann Pockros 8. Jennifer Armstrong 9. Emily Johnson 10. Gregory Eansor 11. Rabiah Coon 12. Lizbeth Najm 13. Suzanne Shepela 14. Jim Hansen 15. Phil & Arlene Bresnick 16. Mary Ramsay 17. Tricia & Jake Chandler 18. Pamela Fair 19. Bob Wailes 19. Rick Hausman Jr. 20. David & Helen Pierce 21. Barbara Guertin 22. Ted Cercos 23. Kathy Dagestino 24. Nancy & Daniel Shimamoto-Collins 25. Barbara Maurais 26. Hilary Kaye 27. Chuck Egan 28. Scott Sheehy 29. Zora McDonald 30. Diane Ward 31. Kim Schmidt 32. Carol Loewenstein 33. Liz Lee 34. Mary Alice Dube 35. Bryan Misajon 36. Lynda Misajon 37. Sharon Coughlin 37. Beth Justus Sr. 38. Allan & Linda Shaw 39. Tara Rotondo 40. Patty Hyslop 41. Carole Serna 42. Alan Grossberg 43. Gerlinde Pecht 44. Bob Batchelder

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$42,110 $36,700 $31,540 $18,643 $15,643 $15,042 $13,235 $9,451 $9,410 $9,270 $9,070 $8,937 $8,440 $7,985 $7,929 $7,410 $7,107 $6,800 $6,765 $6,765 $6,710 $6,639 $6,475 $5,705 $5,624 $5,495 $5,479 $5,090 $5,006 $5,000 $4,995 $4,962 $4,901 $4,546 $4,483 $4,175 $4,030 $4,000 $4,000 $3,925 $3,766 $3,750 $3,730 $3,670 $3,650 $3,595

45. Jane Byerly 46. Joella McNally 47. Richard Israel 48. David & Linda Harding 49. Shauna Woodward 50. Patricia Oyeshiku

$3,420 $3,339 $3,230 $3,220 $3,173 $3,110

100 Club: The next 100 Top Fundraisers in our group did a tremendous job fundraising. All together, they brought in over $215,000! 51. Diana Hardy 52. Mary Veatch 53. Anne Odermatt 54. Linda Simms 55. Mary Hill 55. Rick Browning 56. Branka Billante 57. Tanner Simmons 58. Elizabeth Connor 59. Julie Ann Skalko 60. Jennifer Scott 61. Toshiye Estes 62. Kathy Donahue-Bornscheuer 63. Lauren Dougherty 64. Vonlyn Audette 65. Cameron Walton 66. Carol Rohan 67. Tiffany McVickar 68. Rick Zarski 69. Mary Beth Richardson 70. Tess Tomezak 71. Debbi Curran 72. Karen Sedgwick-Tyler 73. Alisa Dunn 74. Amir Mozayeny 75. Tom Schaeffer 76. Carrie Chun 77. Melissa Albers 78. Patty Woolsey 79. Elizabeth Barron 80. Douglas Hill 81. Gregory Beuerlein 82. Joy Dynes 83. Chelsea Brozovich 84. Don Poe 85. Tracey Cunningham 86. Mychele Durdella 86. Mel Placilla

JOIN THE MOVEMENT: nationalMSsociety.org

$3,050 $3,035 $3,000 $2,960 $2,925 $2,925 $2,910 $2,905 $2,865 $2,719 $2,703 $2,670 $2,607 $2,560 $2,545 $2,510 $2,505 $2,450 $2,400 $2,391 $2,380 $2,305 $2,300 $2,270 $2,215 $2,213 $2,195 $2,161 $2,140 $2,125 $2,120 $2,100 $2,060 $2,026 $2,020 $2,010 $2,000 $2,000

87. Debra Pagliassotti 88. Chris Bleshenski 89. Taniya Purcell 90. Julie Bravo 91. Ron Burton 92. Chuck Lungerhausen 93. Mike Kearon 94. Melanie Woodworth 95. Ruth Evans 96. Tracee Larocca 97. Valerie Jones 98. Sherri Benoun 99. Anna Lewis 100. Jennifer Walker 101. Tim Kyes 102. Karen Cooper 103. Natasha Tuthill 104. Kaaren Hall 105. Kevin Chapman 106. Susana Perez 107. Tanaaz Wheeler 108. Cynthia Bailey 109. Mary Tilton

$1,970 $1,965 $1,935 $1,930 $1,920 $1,905 $1,900 $1,870 $1,850 $1,825 $1,810 $1,800 $1,790 $1,775 $1,770 $1,760 $1,751 $1,750 $1,745 $1,741 $1,740 $1,700 $1,690


110. Terry Jackson 111. Lindsay Park 112. Bobbi Williams 113. Ginny Wisley 114. Pamela Misajon 114. Sandy Chodkowski 115. Valera Bruner 116. Paulette Glynn 117. Lori Smiley 117. Kristen Rau 118. Cyndy Marshall 119. Lory Merk 120. Dee Dean 121. Julie Murphy 122. Eric Pascasio 122. Karen McClellan 123. Chris Pesavento 124. Michelle Godard 125. Randie Rubaum 125. Tracy Burrows 126. Megan Coup 127. Kathleen Holland 128. John Gaudette 129. Mark Collinsworth 130. Ruth McCallan 131. Linda Ward 131. Timothy Walsh 132. Russell Manaois 133. Robert Murphy 134. Vicki Garcia-Golden 135. Karen Kingsbury 135. Frank Austin 136. Gwen Momita 137. Danny Hill 138. Julia Abramova 139. Joanna Dudley 139. Lelsie San Jose 140. Anthony Gaeta 140. Melissa Jones 141. Kaitlyn Thibodeau 141. Chris McWilliams 141. Patricia Landgraf 142. Ellen Beshears 143. Virginia Perrine 144. Erum Ahmed 145. Linda Humphers 145. Susan Mullin 145. Ellen Caprio 146. Donna Roberts 147. Erica Klein 148. Carla Padilla 149. Diane Martin 149. Mindy Bryant 149. Gary Maiten 149. Darby Michaels 149. Donna Beshgetoor 150. Emily Sandersfeld

$1,650 $1,635 $1,630 $1,605 $1,600 $1,600 $1,585 $1,565 $1,550 $1,550 $1,545 $1,530 $1,525 $1,511 $1,500 $1,500 $1,499 $1,480 $1,470 $1,470 $1,458 $1,445 $1,442 $1,440 $1,425 $1,415 $1,415 $1,405 $1,400 $1,386 $1,375 $1,375 $1,370 $1,355 $1,345 $1,340 $1,340 $1,325 $1,325 $1,310 $1,310 $1,310 $1,306 $1,305 $1,301 $1,300 $1,300 $1,300 $1,285 $1,280 $1,265 $1,250 $1,250 $1,250 $1,250 $1,250 $1,245

FUNDING THE MISSION

Top Teams: Team Captains and members kicked their fundraising into high gear. Over 75% of funds at Walk MS were raised by teams! MISSION POSSIBLE ($25,000+) Dick Gordon (Lynn Gordon) - $46,938 Team Smig (Paul & Mary Smigliani) - $37,500 Betty’s Builders (Sam & Betty Brusco) - $35,029 Lincoln Gustafson & Cercos (Vonlyn Audette) - $33,852 Team ProFlowers (Rabiah Coon) - $30,277 San Diego County Credit Union Community Crew (Shaun Copans) - $25,000 DIAMOND TEAMS ($10,000 - $24,999) American Flyers for MS (Cindy Roper) - $19,023 Aviara Angels (Dawn Beattie) - $17,377 Uncle Phils Feat (Phil & Arlene Bresnick) - $16,545 For Tia B (Kathy Stenger) - $16,244 Bob’s Buddies (Toshiye Estes) - $16,240 Water Walkers (Karen Cooper) - $16,017 Judy’s Tribe (Lynda Misajon) - $15,441 Team Evans (Ruth Evans) - $15,261 Team Jackie (Chelsea Brozovich) - $14,787 Team Hope (Tricia & Jake Chandler) - $14,466 Team Gordo (Gregory Eansor) - $13,965 WalMart (Lilia Lear) - $13,929 Team SDG&E (Pamela Fair) - $13,775 Team Ann (Ann Pockros) - $13,685 Emily’s Stars (Annina Lukiini-Johnson) - $13,241 Team Donna (Eric Pascasio) - $13,018 Sunrise Stars (Toni Baker) - $11,242 The Amblers (David & Helen Pierce) - $10,910 Big Jim’s Jammers (Jim Hansen) - $10,450 Leggin for Larry (Lizbeth Najm) - $10,197 The A Team (Jennifer Armstrong) - $10,001

TOLL FREE NUMBER 1 800 344 4867

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FUNDING the mission

GRIN & BARRETT

Challenge. Suzie says, “This group is truly amazing and inspiring. I will never forget this challenge.”

Three-day, 50-mile challenge walk MS Carlsbad to Irvine

In June 2007, San Marcos resident Suzie Barrett, 31, suddenly had double vision and numbness on the right side of her body. Suzie shrugged it off as a pinched nerve and visited her chiropractor – who told her to see her physician. The next day, her optometrist examined her eyes and gave her the same instruction – to see her physician. Days later after an MRI, Suzie was diagnosed with multiple sclerosis. “It was all such a blur. I thought I was dying,” Suzie recalls. That fall, Suzie’s nephew completed the three-day, 50-mile Challenge Walk MS in support of his aunt. “I will never forget the look on his face when he came across the finish line,” Suzie says. She listened as he

INSIDELOOK

“I decided to quit asking ‘Why me?’ and began saying ‘Why not me?’” 14

|

Last year, Suzie’s fundraising included the sale of T-shirts printed with the phrase “mean something.” “It can be interpreted in so many different ways for everybody,” says Suzie. “The message does not just refer to MS, but can be applicable to anything in life.”

recounted the stories of how MS touched fellow walkers and she knew this was something she wanted to do herself. So, in 2008, Suzie formed Challenge Walk team “Grin & Barrett.” “I decided to quit asking, ‘Why me?’ and begin saying, ‘Why not me?’” remembers Suzie. In September 2008, Suzie and her husband, Jason, embarked on the

Ongoing symptoms of migraines, numbness in her face, feet and abdomen, in addition to the feeling “like I am walking on bruised, achy feet” won’t stop Suzie, now 33, from taking the Challenge again this fall. “I know that having this disease has given me purpose. I am truly grateful for the experience of the Challenge Walk.”

You can do something about MS too. Learn more or register to join the Challenge Walk at myMSchallenge.com.

BAYER HEALTHCARE & CONTINENTAL AIRLINES. TWO COMMUNITY PARTNERS. Bayer HealthCare, a subsidiary of Bayer AG, is one of the world’s leading, innovative companies in the healthcare and medical products industry. Bayer HealthCare’s aim is to discover and manufacture products that will improve human and animal health worldwide. For more information, visit bayerhealthcare.com. Continental Airlines is committed to taking an active role in global citizenship by implementing programs and services that show pride in our communities, celebrate our diversity, protect our human rights and lead the air travel industry in providing a clean, safe and reliable product.

JOIN THE MOVEMENT: nationalMSsociety.org


FUNDING THE MISSION Cycling to create a worlD free of MS

Bay to Bay Tour 2009 sponsored by

Voted “best cycling event” of the past three years by the readers of Competitor magazine, the Bike MS Bay to Bay Tour sponsored by Land Rover Miramar is a memorable, fun-filled cycling adventure featuring fully-supported scenic routes along beautiful Orange and San Diego County coastline. The variety of routes available includes options for all levels of cyclist, ranging from 30 miles in one day for the beginner, to 100 miles over two days, to 150 miles over two days (including the Century Challenge) for the advanced cyclist. Enjoy delicious food and refreshments, live entertainment, prizes, lifestyle expo and overnight festival. Each year, the Tour raises over $2 million toward a world free of MS, Now in its 27th year, this is truly Southern California’s Premier Cycling Event. For more information or to register, visit biketofinishMS.com. SPECIAL THANKS TO OUR SPONSORS: Sponsored by

moreinfo Bike MS Bay to Bay Tour 2009 October 10 & 11 biketofinishMS.com 30, 100 or 150-mile route options

TICKET TO RIDE First-time Bike MS participants can register for FREE in this year’s Ticket to Ride promotion.*

Presenting

Diamond

Platinum

Never ridden in the Bike Tour before? Now is the perfect time to check out this amazing ride! Join Bike MS Bay to Bay Tour 2009 with the Ticket To Ride! Visit biketofinishMS.com and use the discount code “ticket2ride” to waive your registration fee. Experience the ride of a lifetime! Ticket is good for ONE free registration. Must use discount code (ticket2ride). Ticket recipient/holder must be a first-time cycling with Bike MS Bay to Bay Tour. Recipient/holder is reponsible for raising the $400 pledge minimum. For more details visit biketofinishms.com/ticket2ride.

TOLL FREE NUMBER 1 800 344 4867

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NON-PROFIT ORGANIZATION U.S. POSTAGE PAID San Diego, CA Permit # 451

Pacific South Coast Chapter 5950 La Place Court #200 Carlsbad, CA 92008

CLASSIFIEDS CALENDAR OF EVENTS

September 11-13

Challenge Walk MS myMSchallenge.com

11-13 Couples Retreat Weekend - TBD

OCTOBER 10 & 11

Bike MS Bay to Bay Tour biketofinishMS.com

NOVEMBER 21

MS Dinner Auction MSdinnerauction.com

2001 Dodge Grand Caravan. Approx. 68,000 miles. Extended warranty. Bruno curbsider with scooter. $11,500 OBO Hand controls available. Call Greg 714-993-5988


Summer 2009 - MSConnection  

Summer 2009, Volume 3, MSConnection. National MS Society Pacific South Coast Chapter www.MSpacific.org

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