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All About Tourettes Volume 1, Issue 1

11/24/09

MICDS

Special points of interest:

http://www.medicallook.com/ Neurological_disorders/ Tourettes_syndrome.ht ml http:// en.wikipedia.org/wiki/ Tourette_syndrome Lifesatwitch.com

Inside this issue: Informing America About Tourettes

1

Living With Tourettes: Tics

1

Boy 10, Overcomes both Bullying and Tourettes

2

Family Life With Tourettes

2

Informing America About Tourettes Tourettes Syndrome is a neurological disorder which presents itself with tics beginning in childhood. Tourettes will always present itself before the age of 18. These tics can be either physical or vocal tics.

There is no effective medication to prevent the tics caused by Tourettes. The best medication is education and reassurance will help the tolerance of Tourettes. The exact cause of

believed that someone with Tourettes has a 50% chance of passing it on to his/her offspring. It is possible for someone to carry the genes for Tourettes without expressing any symptoms. Also, men are much more likely to express the symptoms of Tourettes than women.

Somewhere between 1 and Tourettes is unknown; 10 out of every 1000 however, it is believed to Americans are diagnosed be a genetic disorder. It is with Tourettes each year. Of those cases almost all are minor. Occasionally in extreme cases of Tourettes you will see the obscene exclamatory remarks commonly associated with Tourettes; however, these cases are rare and this is scene in only about 10% of cases. Most cases involve minor tics such as blinking, coughing, sniffing, throat clearing, and The Area of the brain which causes facial movements. The the symptoms expressed by Tourettes Syndrome. syndrome may even

Living With Tourettes: Tics

History of Tourettes 2

Viewing Tourettes with a positive Attitude

3

Inside Story

4

For those with Tourettes the worst part about it may be the tics or the unvoluntary movements or sounds occurring unpredictably. Tics are described as unvoluntary and not involuntary because you are able to control when the tics occur, but after awhile the tics must occur. This is similar to an itch. You feel

an itch and you must itch it. Someone with Tourettes may feel pressure in their eyes so they force themselves to twitch to ease the sensation. If you are able to hold off your tics for a long period of time then it is likely that you will suffer from an sharp increase in tics after they have been suppressed

for say an entire day at school or work. Children between the ages of 8 and 12 have the highest severity of tics. These are most commonly eye blinking, throat clearing, shrugging of the shoulders, and sniffling. Tics steadily decline throughout adolescence and can disappear completely by age 18.


Page 2

All About Tourettes

Boy 11, Overcomes Both Bullying and Tourettes David Little has experienced the tics that come with Tourettes Syndrome ever since he was in the first grade. That is when the bullying started; however, the bullying would only get worse.

David created a symbol for those with Tourettes Syndrome.

“His new classmates could not handle his constant need to blink his eyes, twitch his face, and shrug his shoulders.”

Those who know David would describe him as a nice, outgoing, and likable guy, but when David entered the 1st graded at his new school Rocky Road Elementary his new classmates could not handle his constant need to blink his eyes, twitch his face, and shrug his shoulders. His fellow students called him names, made fun of him of-

ten by imitating his tics, and he was even physically beaten up when he could not explain to them why he was “different.” The bullying went on into the fourth grade. Overtime David realized that the only way to stop the bullying was to educate his classmates about the syndrome which plagues some 200,000 people in the U.S alone. David with help from his school’s nurse together made a presentation educating the school not only about Tourettes but about the affects which bullying created as well. David received a standing ovation for

his presentation. The children in David’s class now empathizing with David have put the bullying to and end. Now they have even quit bullying other former targets knowing the impact their actions had on them. Seeing the impact David had on the children in his school David decided that he needed to inform the world about both bullying and Tourettes. He now has given presentation to more than 30 schools and organizations across the country with the goal of prevention through education.

Family Life With Tourettes Living in a family where Tourettes is present can be difficult for everyone, but generally is not seen as a disadvantage by most.

because both Mark and Patty Jacobsen have the syndrome, and were likely to pass it to their child since Tourettes is passed down through genes.

“Our family would not be the same without Tourettes. Tourettes has brought our family closer rather than apart.”

Now their son Harry, age 6 is having tics, the abnormal outbursts of physical or vocal expression that almost always comes with Tourettes. Harry hasn’t had trouble dealing with his tics. He is a bit young, but his parents having been through the same situation Harry is going through

The Jacobsen family is nothing new to Tourettes. In fact they knew before their child was born he was likely to be born with Tourettes. This was

have been positive about his situation. The family believes that Tourettes gives them all something to relate to now that they all have had to deal with Tourettes. When Harry as asked about his tics he responded by saying, “I don’t mind it because my Mommy and Daddy both went through the same thing, it’s actually kind of cool.”

History of Tourettes Syndrome The first case of Tourettes was in 1825 by the French doctor Jean Marc Gaspard Itard. He described the Tourettes which was affecting Marquise de Dampierre an important woman of the time. Jean-Martin Charcot: The French doc- Jean-Martin Charcot a French tor who defined the illness which was physician studied patients at Tourettes inn the mid 1800’s. the Salpêtrière Hospital. He developed the term Tourettes for the illness which we now know today. Throughout the 20th century there was little progress

made in explaining the tics. People throughout the 20th century believe that Tourettes was a mental disease, and that people with the disease were mentally challenged. In the 1960’s and 70’s the general view on Tourettes changed when the medicine Haldol was used to treat the tics of a patient with Tourettes. The public then began to realize that Tourettes could not be a mental disease if it had been

treated using medicine. Today scientists and doctors have been able to use neuroimaging to better understand the cause of Tourettes. Technology has made it possible for doctors to look for a treatment to affectively cure the tics associated with Tourettes. No such affective treatment has been found, but there is hope for one in the near future.


Page 3

Volume 1, Issue 1

Viewing Tourettes With A positive Attitude

Education and acceptance are two keys in helping someone deal with Tourettes. If the person with Tourettes feels comfortable and they are relaxed they are less likely to experience their tics.

tics will work to your benefit. You are able to see their tics, and they see your tics. This will make it easier for you to cope with your tics knowing you are not the only one who experiences the effect of Tourettes.

For people that have Tourettes it may help them to discuss their tics with other people which have Tourettes. By doing this you are able to meet new people who you are able to relate to and look at your similar situations positively. Also being with people whom you know have

By educating the public about Tourettes you may be able to prevent someone from misinterpreting Tourettes as a mental disease or from making fun of or bullying somebody with Tourettes. Through education the public is able to empathize with those who have Tourettes.

With knowledge the public will make it easier for people with Tourettes to prevent their tics. People with Tourettes will feel relaxed knowing the public is informed about their condition and that they are viewed as their equal.

Through empathy, education, and good humor Tourettes can be accepted by the world.


Bibliography

"Tourette’s syndrome - Medical Look." Medical Look - Your Medical World. N.p., n.d. Web. 23 Nov. 2009. <http://www.medical-look.com/Neurological_disorders/ Tourettes_syndrome.html>. Kutscher, Martin, Robert Wolff, and Tony Attwood. Kids in the syndrome mix of ADHD, LD, Asperger's, Tourette's, bipolar, and more! : the one stop guide for parents, teachers, and other professionals. London: Jessica Kingsley Publishing, 2005. Print "Tourette syndrome - Wikipedia, the free encyclopedia." Wikipedia, the free encyclopedia. N.p., n.d. Web. 23 Nov. 2009. <http://en.wikipedia.org/wiki/ Tourette_syndrome> Brody, Jane . "Bizarre Outbursts of Tourette's Disease Victims Linked to Chemical Disorder in Brain." New York Times 29 May 1975: 70. Print Mckinley, Duncan . "Life's A Twitch! Tourettes Syndrome & Tics Site by Dr. B. Duncan McKinlay, C.Psych.." Life's A Twitch! Tourettes Syndrome & Tics Site by Dr. B. Duncan McKinlay, C.Psych.. N.p., n.d. Web. 23 Nov. 2009. <http:// www.lifesatwitch.com/>

Resources School Resource

For my school resource I found a book in the Library called Kids in the Syndrome Mix of ADHD, LD, Asperger’s, Tourettes, Bipolar and More! This book was written by Marin L. Kutsher, Robert R. Wolff, and Tony Attwood. This book was an easy overview of the neurological syndromes that commonly affect children one of those Syndromes being Tourettes. The book provides educational information regarding Tourettes; it’s symptoms; and treatments. The book helps you understand how to interact with a person who has the syndrome. This book really helped me understand how you can positively impact the life of someone with Tourettes and I used that information in my newsletter. Local Resource For my local resource I called Tourettes Syndrome Associates located at 73 Fortune Lane in St. Louis Missouri. Their phone number is 314-984-9019. I spoke with Lynn Lats who is the co-chairman of the organization. The organization holds meetings at St. John’s Mercy Hospital with the goal of educating people about Tourettes and encouraging people with Tourettes to be positive about their situation. This organization helped provide me with information on how you can help people with Tourettes remain positive and the importance of educating people about Tourettes. National Resource For my national resource I decided to call the Tourettes Syndrome Association or TSA. The organization is based in Bayside, NY at 42-40 Bell Blvd. Suite 205. Their phone number is 718-224-2999. I spoke with Taylor Hiller a volunteer at the organization. The organization has the same goals as my local resource as my local resource is a branch off of my national resource. The only difference is the National Resource provides information for a broader spectrum of people being a national resource. They hold fundraisers and events with the money raised going towards their cause to make life better for those with Tourettes.


Charley Reed: Tourettes Project