November – December 2012 Volume 19, Number 2
“It’s great to be alive – and to help others!”
The Mended Hearts, Inc. – Twin Tier Chapter 262 Johnson City, NY – Chartered November 1994 In This Issue Special Interest Articles
Therapeutic Lifestyle Diet Pg. 1
Therapeutic Lifestyle Diet
Add your point of interest
The Benefits of Diet and Exercise
here. Information Contact Pg. 2 Add your point of interest Calendar and Announcements here. Pg. 3
Add your point of interest
President’s Letter here. Pg. 4
Visiting Statistics Pg. 4 Meeting Summary Sep. 2012 – Healthcare Reform Pg. 5
Some of the biggest benefits to your heart health come from small changes in your eating style and activity level. Therapeutic Lifestyle Changes—such as eating less fat, getting regular exercise, and watching your weight—can halt or reverse damage to your heart and arteries even if you already have heart disease. You can start to reduce your heart disease risk right away by following this eating plan. TLC Diet Guidelines include: •
Less than 7% of total daily calories from saturated and trans fats. Saturated fats are found in some meats, dairy products, chocolate, baked goods, and deep-fried and processed foods. Trans fats are found in some fried and processed foods.
25-35% of total daily calories from fat. Choose monounsaturated and polyunsaturated fats found in fish and olive oil and other vegetable oils.
Less than 200 milligrams of cholesterol from food each day. Cholesterol is found in eggs, meat, dairy products, and other foods that come from animals. These foods may also be high in saturated fat.
Meeting Summary Oct. 2012 – Advice for Caregivers Pg. 6 OFFICERS President – Mary Lou Winheld
Second Story Headline
Vice President – Mike McNeal Treasurer – Jerry DeMorat Secretary – Dorothy DeMorat
Individual Highlights Newsletter Info. Monica Chiao – Editor Inside Story (607) 862-6087
Address Changes Inside Story Paul Houle (607) 754-1505
Thank you UHS for printing and mailing this newsletter.
The purpose of a newsletter people interested in determine how frequently • No more than 2400 milligrams of sodium (salt) a day. Look out for hidden is to provide specialized purchasing a product or in the newsletter sources of sodium in packaged and premade foods. If you youpublish have high blood requesting your services. and its length. information to a targeted pressure, your doctor may want you to limit your sodium even more. audience. Newsletters can You can compile a mailing The purpose of a newslette • a great Just enough calories to maintain a healthy weight. If you're overweight or be way to market to your provide specialized obese,ortryservice, to lose weight.listAfrom lossbusiness of just reply 5 to 10 percentisof current your product weight can lower your heart disease risk. Ask your doctor or dietitian to help cards, customer information to a targeted and also to create you and findbuild the proper calorie level forsheets, you. business information audience. Newsletters can credibility your cards collected at trade be a great way to market organization’s identity • High fiber, whole grains, fruits, and vegetables. Soluble fiber (found in peas, shows, or membership lists. your product or service, among peers, members, beans, berries, and many vegetables and grains) can help lower You might consider and also to create employees, or vendors. cholesterol. These foods also provide nutrients that may help protect purchasing a mailing list credibility and build your against heart disease. from a company. First, determine the organization’s identity audience of the newsletter. among peers, members, Next, establish how much http://healthandwellness.cardiosmart.org/Diet-And-Exercise/TherapeuticThis could be anyone who employees, or vendors. time and money you can Lifestyle-Diet.aspx might benefit from the spend on your newsletter. information it contains, for Health and Wellness Center These -Cardiosmart.org factors will help example, employees or
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Mended Hearts Chapter 262 & UHS Contacts All phone #s are in area code 607
We would like to visit with you and offer our support and encouragement. Feel free to contact any of the people listed under “Patient Visitor Staff” to get answers to your questions (medical questions need to be referred to your medical doctor), voice your concerns, or just chat. Give us a call!
UHS Volunteer Services Coordinator Tricia Alamo ………………….…....763-6149
Patient Visitor Staff Location Phone
Officers President: Mary Lou Winheld…..…785-1017 Vice-President & Program Coordinator: Mike McNeal…………………..…648-6490 Treasurer: Jerry DeMorat…..….…...785-3019 Secretary: Dorothy DeMorat….…....785-3019
Bainbridge Mary Lou Benedict…967-8320
Chenango Mike McNeal ………648-6490
Endicott Dorothy DeMorat…..759-3234
Appointed Positions Address List Maintenance & Mailing Labels: Paul Houle…………...……...…..754-1505 Certificates: Dan Terpak………………….…..797-7895 Ray Welch……………………....754-3366 Historian: Shirley Burright…………….…...754-6299 Newsletter Editor: Monica Chiao…………………...862-6087 Path Pak Coordinator/Materials Ordering: Shirley Burright………………....754-6299 Patient Visiting Chairman: Ray Welch………………………754-3366 Publicity: UHS Statistician: Shirley Burright…………….…..754-6299 Telephone Follow-up: Hal Fischbeck…………………...748-9348 Volunteer Trainer & Re-accreditation Leader: Ray Welch………………………754-3366
Endwell Hal Fischbeck……....748-9348 Aortic valve Ron Greenblott……..754-2267 By-pass Marge Guley..………785-9309 By-pass Ron Kavulich……….785-3133 By-pass Ray Welch…………..754-3366 By-pass Mark Winheld………785-1017 By-pass Johnson City Dan Terpak………….797-7895
Kirkwood Kathy Breward………217-8069
Vestal Rosemary Mott………797-1479
Regional Contact Persons Newark Valley Lois Overacker………642-3304
Editor’s Corner Fortunately for the Southern Tier, we dodged a bullet with hurricane Sandy. Those of us who are longtime residents of the area are very familiar with fickleness of Mother Nature. Let’s all hope that this winter is as mild as last. Now that the cold weather has started to set in, it’s the perfect time to settle down with a cup of your favorite hot beverage and peruse the latest issue of Heart Matters, either the printed version or online at http://issu.com/mendedhearts262/docs/heartmattersnovdec2012. The next few weeks will be hectic as we get ready for the holidays, but it’s never too early to start thinking about the next issue. There’s a new “Recommended Reading” feature on page 4; send me your suggestions for books you think our members would enjoy, as well as any other comments. The deadline for items to be included in the January – February 2013 issue is December 28, 2012. -Monica Chiao, Ed.
Calendar and Announcements
The meetings listed below start at 6:30 p.m. on the 4th floor, Picciano Building, UHS Wilson Medical Center, 40 Arch St., Johnson City unless otherwise noted. Mended Hearts meetings are open to all who are interested, not just members. Tuesday November 13th – Mended Hearts visitor reaccreditation class make-up session will be held in the Wilson Hospital cafeteria conference room (Picciano Building – 1st floor behind cafeteria). Call Ray Welch ((607) 754-3366) for more information.
Monday January 21st – Join us for an informative presentation on sleep apnea. Speaker TBA.
Monday November 26th – Mary Farley of the UHS Cardiac Catheterization Laboratory will discuss procedures performed in and conduct a tour of the facility.
Mended Little Hearts of Binghamton – call Amy Root ((607) 725-8433) or e-mail firstname.lastname@example.org.
December 2012 – Christmas party for Mended Hearts members; date and time TBA.
The Stroke Support Group meets on the fourth Tuesday of each month from 1-3 in the Vestal Public Library. Call Sue Mays ((607) 754-3405) for more information.
Sidney Mended Hearts will not meet again until March 2013. Further information will be provided when available.
T-Time (Congestive Heart Failure Support Group) meets on the second Thursday of every odd month from 6 to 7 p.m. at Lourdes Hospital. The next meeting will be in January 2013. For more information, contact Colleen Cameron or Carol Zander at Lourdes Hospital ((607) 798-5493) or visit http://www.lourdes.com/events/support-groups/congestive-heartfailure.
About Mended Hearts Chapter 262 – Twin Tier Chapter 262 Mended Hearts is a national organization of over 250 chapters with more than 17,000 members. Our purpose is to offer help, support, and encouragement to heart disease patients and their families. Our local Mended Hearts chapter was formed in October 1994. We have nearly 120 members including a volunteer staff of about 15. These volunteers visit hospitalized patients and staff the waiting areas of the Coronary Care Unit. Our Mended Hearts volunteers who call on you have heart disease and are trained to help you who have a heart problem. We offer encouragement and support to patients experiencing various heart problems and procedures (open heart surgery, angioplasty, stents, etc.) and their families. We meet most months from September to May on the fourth Monday at Wilson Medical Center, Picciano Building (4th Floor, Rooms 5B & 5C). Our programs provide health information and social and entertainment time. Come join us!
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President’s Letter Since this newsletter is for November/December, it covers many seasons. As I'm writing now, it's another warm Indian summer day. What a splendid thing it is to have this extra time to gather fruit, garden, and be outside – especially as I look back on all the suffering caused by last year's flooding. I hope you’re all enjoying the wonderful weather while you can. Then we'll get ready for the warmth and joy of holiday times and family gatherings. It's a great time of year! Happy Holidays and Happy New Year to all! Our November meeting is for Mended Hearts members, especially those who visit patients; we will learn how the cath. lab operates and take a short tour. Our December Christmas party will be at Wilson, date and time to be announced. The rest of our meetings will continue on the fourth Monday of each month except for January, when we'll meet on the third Monday. We welcome Paul Houle to our Mended Hearts board. He is replacing Lorraine Gregg as address list maintenance and mailing labels chairman. It is so good to have you! Notify Paul of any address changes. Special, special thanks to Lorraine, who tried to resign from this job a year ago. Knowing we had no way to send mailings, she kept returning to her job to provide us with labels. Lorraine, thanks for keeping Mended Hearts afloat! Every two years we vote for new Mended Hearts Chapter 262 officers. We will be doing that this spring, electing a president, vice president, secretary, and treasurer. There are also board positions we need filled; our greatest needs at the moment are statistician and historian. A nominating committee is now forming – present members are Ray Welch, Dot DeMorat, and Mike McNeal. We need everyone to think about getting involved and volunteering to help run our group, so please call a committee member and offer your help (contact information is on page 2). Thank you! -Mary Winheld, Pres.
Recommended Reading Mended Hearts member Lili Chiao recommends The Blood Sugar Solution by Mark Hyman, MD (2012, Little, Brown and Company). This book describes the current epidemic of “diabesity” (obesity plus type 2 diabetes) and presents a 6-week nutrition and exercise-based action plan to combat it and other related conditions including heart disease and hypertension. Recipes are included. Check it out – it really works! In Memoriam We were saddened to learn of the passing of longtime Mended Hearts Chapter 262 member Phyllis Knapp on September 19, 2012. Our sincere condolences go out to her family. A memorial service for Phyllis will be held at 11:00 a.m. on Saturday, November 24, 2012 at Reorganized Church of Christ, 325 Burbank Ave., Johnson City.
Chapter 262 Visiting Statistics 2012 Aug. Sep. YTD Patients…………….…….…15….…..…13………183 Pre-Op………...……………..3…….….…5………..37 Post-Op………...…………..12…...….…13………136 Family…………………….…13………....11………120 Cath/Angio……………...…...9…….……19……...176 Cath/Angio Family……….….2……..…….4……….52 Follow-up Calls…………….13……….…16……...137
Meeting Summary Sep. 2012 – Healthcare Reform At our monthly meeting on September 17, 2012, Robin Kinslow-Evans, UHS VP of Strategic Planning, and Jeff Davis, independent healthcare consultant, gave a presentation on the Affordable Care Act (“ACA”) and its expected impact on the delivery of healthcare both nationally and locally. Mr. Davis focused on the content of the legislation and the timeline for its implementation. He noted that the law was passed in 2010 and will be phased in through 2019 unless repealed by a new administration. Among the provisions already enacted are coverage of pre-existing conditions, coverage of children up to age 26 under their parents’ health insurance, reducing the gap in Medicare Part D prescription drug coverage (“donut hole”), and coverage of pre-
Robin Kinslow-Evans describes how UHS plans to comply with healthcare reform.
ventive care for seniors on Medicare. On the horizon for 2014 is the establishment of insurance exchanges where individuals and small businesses can compare and purchase health insurance coverage. Insurance companies will be required to accept all applicants, and states will be required to expand Medicaid programs (not a factor in New York as Medicaid coverage is robust). The aim of ACA is to control healthcare costs by managing care in a more systematic way, with an emphasis on providing quality comprehensive care. One way to control costs is by shifting long term care out of institutions and into less expensive community and home-based care. More equitable distribution of care is also anticipated by increasing enrollment in managed care plans (in New York state, the elderly, blind, and disabled receive a disproportionately high share of Medicaid benefits).
In Mr. Davis’s opinion, regardless of the outcome of the election, few changes are expected in the provisions of ACA already implemented. He noted that the ACA is only in the beginning legislation stage, with few details provided and funding yet to be secured. Some recommended websites that provide further explanation of the law are: • • •
Kaiser Family Foundation www.kff.org HealthCare.gov Heath Affairs magazine http://www.healthaffairs.org/
Jeff Davis explains the provisions of the Affordable Care Act.
Notable Quote “The really frightening thing about middle age is the knowledge that you’ll grow out of it.” -Doris Day
Ms. Kinslow-Evans elaborated on the shift toward quality care and patient outcomes and away from the current fee-for-service system, where providers can bill for unnecessary services in order to generate more income. She noted that the U.S., despite having the highest healthcare costs in the world, does not have the healthiest population. New York state is attempting to improve patient outcomes by introducing the Medicaid Health Home (“MHH”). Those patients who use Medicaid the most (i.e., the chronically or mentally ill, the elderly, and the disabled) typically do not seek treatment until a crisis develops and they end up in the emergency room, the most expensive form of care. The MHH is a system to help these at-risk patients navigate the healthcare system by setting them up with a primary care provider and providing transportation to ensure they get to their appointments. In this way, the patients can get regular care, stay healthier, and reduce their use of high cost emergency care. Providers are compensated from a statewide pool of funds based on measures such as minimizing the number of admissions and inappropriate procedures performed on patients. This decreases the incentive for providers to prescribe unnecessary care. The MHH also encourages better communication within the hospital and between different hospitals. Ms. Kinslow-Evans acknowledged that there will still be inappropriate usage of healthcare resources, but the MHH is definitely a step in the right direction. -Monica Chiao
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Meeting Summary Oct. 2012 – Advice for Caregivers Dorothy Gardner, Stay Healthy Senior Coordinator for UHS, was the speaker at our meeting on October 22, 2012. She discussed how important it is for caregivers to take care of themselves so they can maintain their own health and well-being. Ms. Gardner , described the similarities between caregiving and the disease process. Both follow a We ask for health that we may similar cycle of physical symptoms leading to stress and anxiety, then to negative encourage others, emotions and fatigue, which aggravate physical symptoms, thus repeating the cycle. We ask for Wisdom Lord that Caregivers often experience many difficult emotions including helplessness, Dorothy Gardner tells caregivers frustration, and anger at both the patient and oneself. These are all normal human how to take care of themselves. reactions Author to the stressful situation of caring for an ailing loved one. The key is for caregivers to recognize symptoms of stress in themselves and take steps to deal with it. – Ms. Gardner advised caregivers to develop a “toolbox” of coping mechanisms to handle HerbertThis toolbox can include: stress.
A Mended Hearts prayer We ask your Blessings, Lord, We ask for strength that we may pass it on to others, We ask for faith that we may give hope to others, We ask for health that we may encourage others, We ask for Wisdom Lord that we may use all of your gifts well. Author - Herbert Maedl
• • • • • • • •
Engaging in physical activity Enlisting the help of others to care for the patient Doing breathing exercises Working with healthcare professionals/counselors Developing problem solving techniques (see below) Imagining a pleasant place Eating right and getting enough rest Communicating needs and feelings
Ms. Gardner outlined the steps for solving a problem: • Identify the problem • List ideas of how to solve the problem • Select one idea and try it • Assess the results • If the problem is not solved, try another idea • Use other resources • Accept that the problem is not solvable now. In conclusion, Ms. Gardner indicated that, just as negative thoughts and emotions can generate negative chemicals that lead to more negativity, positive thoughts can generate positive chemicals that lead to more positive thoughts. She encouraged caregivers to focus on the positive so that they will be better prepared to perform their vital function. -Monica Chiao virtually endless. You can include stories that focus on put in your newsletter can Mended Hearts Chapter 262Web has just received a generous donation of current technologies or $200.00 from also be used for your Barbara Fox and family.Word Here’s chapter was newly in your field. formed, Boyd site. Microsoft offers the a story: when ourinnovations Fox was in simple the CCU. and your his family were visited by Mended Hearts members and way toHe convert served coffee and tea. The family was very grateful You for this and support. Upon mayvisiting also want to note newsletter to a Web his death inpublication. 1997, theSo, family donated money for Mended Hearts to buy the coffee cart business or economic when ou’re that we nowfinished use onwriting Decker 3. trends, or make predictions your th customers or your it to a Recently, newsletter, Barbara convert Fox, Boyd’s widow, had herfor80 birthday. At her birthday clients. and post it. $200.00 by selling raffle tickets for baskets they made. celebration,Web the site family raised Much of the content you Heartfelt Thanks
They were planning on buying Barbara a gift with this money, but Barbara felt that the If the newsletter is The could subjectgive matter that best gift they her was to donate the money to Mended Hearts to use for distributed internally, you appears in newsletters is coffee supplies or anything else we might need. Many thanks, Barbara Fox, for your special gift. -Mary Winheld
The Mended Hearts, Inc.
National Office Phone: 888-HEART99 (432-7899) www.mendedhearts.org
Member Information (please print or type) Name (Mr./Mrs./Ms.)_______________________________________ Address___________________________________________________ City_______________________________________________________ State/Zip__________________________________________________ Email address______________________________________________ Preferred Contact: ( ) Phone ( ) Email ( ) Mail
Chapter ______ OR Member-At-Large Phone (____) _______________________ Alt Phone (____) ____________________ Retired: ( ) Yes ( ) No Occupation________________________
Family member (must reside at same address; please name): (Mr./Mrs./Ms.)_________________________________________________________________ Family member Email address__________________________________________________ May Mended Hearts staff or volunteers contact you regarding local chapter opportunities? ( ) Yes ( ) No Medical Info/Demographics (Optional for Mended Hearts reporting purposes in aggregate only) Name of Heart Patient _____________________________________ Date of Surgery/Procedure _________________________________ Type of Surgery/Procedure _________________________________ ( ( ( ( (
) Angioplasty ) Atrial Septal Defect ) Aneurysm ) CABG (Bypass) ) Stent
( ( ( ( (
) Heart Attack ) Pacemaker ) Transplant ) Afib arrhythmia ) Other arrhythmia
( ( ( ( (
) Cath )Valve-Surgery ) Valve Transcath ) ICD (Defibrillator) ) Other __________
Name of Caregiver __________________ Phone (____) ________________________ Alt Phone (____) _____________________ ( ) Check here if also Heart Patient ( ) Type of procedure ____________
Many chapter newsletters include surgery/procedure anniversaries of members. Please indicate here if you are agreeable to having your name published in this way.
( ) Yes
( ) No
Add my email to monthly national email updates? ( ) Yes ( ) No ____________________________ Patient signature
Add my email to monthly national email updates? ( ) Yes ( ) No ____________________________ Family member signature
Optional Info: Date of Birth ___________________________ Race: ( ) Caucasioan; ( )Black; ( ) Asian; ( ) Am. Indian; ( ) Other Gender: ( ) Male; ( ) Female
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National Membership Dues: Includes subscripton to Heartbeat magazine and one insignia pin for an individual or two pins for a family membership
(must reside in same household). Select type of membership and include chapter dues (unless you wish to become a member-at-large). National dues are tax deductible less $10.00; Chapter and Lifetime dues are 100% tax deductible. You must be a member of the National Organization to be a Chapter Member.
Application Dues Individual Family National Life (Individual) National Life (Family) Dues Summary:
$22 (National $17 + Chapter $5) $31 (National $24 + Chapter $7) $155 (National $150 + Chapter $5) $217 (National $210 + Chapter $7) National dues $ ________ Chapter dues $ ________ TOTAL $ ________
( ( ( (
) ) ) ) I am joining as a non-heart patient: ( ) Physician ( ) RN ( ) Health Admin ( ) Other Interested Party ( ) Other_________ A tax-deductible contribution $_______ to ( ) National OR ( ) Chapter
New chapter members: Please send payment with enrollment form and check made out to Mended Hearts, Inc., Chapter 262, to: Or, if joining as a member-at-large, send to: The Mended Hearts, Inc. Jerry DeMorat National Office 12 Canterbury Dr. 8150 N. Central Expressway, M2248 Endicott, NY 13760 Dallas, TX 75206
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Donations If you are interested in making a donation, please contact our Treasurer (contact info. on page 2).
“It’s great to be alive – and to help others!”
We’re on the Web! Read this newsletter online at: http://issuu.com/mendedhear ts262/docs/heartmattersnovdec2012
Purpose of the Mended Hearts, Inc. The purpose of this organization is to offer help, support, and encouragement to heart disease patients and their families, and to achieve this objective in the following manner: A. To visit, with physician’s approval, and to offer encouragement to heart disease patients and their families. B. To distribute information of specific educational value to members of the Mended Hearts, Inc., and to heart disease patients and their families. C. To establish and maintain a program of assistance to physicians, nurses, medical professionals, and health care organizations in their work with heart disease patients and their families. D. To cooperate with other organizations in education and research activities pertaining to heart disease. E. To establish and to assist established heart disease rehabilitation programs for members and their families. F. To plan and conduct suitable programs of special educational interest for members and for heart disease patients and their families.