WHAT IF YOU FOUND A TERMINAL DISEASE
D OUT YOU HAD E
AND IT WAS RARE
THERE WAS NO HELP
WHAT WOULD YOU DO NEXT ?
IT IS ESTIMATED THA MILLION PEOPLE IN T WESTERN WORLD AR FROM ADDISON’S DIS
AT 35 TO 60 THE RE SUFFERING SEASE
WITH NO ADVOCATE
That’s me, the tan one. This was taken May 2011, at my sister’s high school graduation.
June rolled around and I began my job as a manager and lifeguard at
I had become concerningly dark.
a nearby pool. A tan was inevitable, but I had surpassed that and had become concerningly dark.
A month passed by and I began having an incredible thirst. I drank
I couldn’t walk up stairs without being winded
8-9 Gatorade bottles worth of water a day. After a few weeks, I
and occasionally blacking out...
began getting weak and spent alot of time in bed. I couldn’t walk up stairs without being winded and occasionally blacking out for a few seconds. The doctor said that it may just be a bug, so blood tests were taken and the wait began.
The first diagnosis was Water Intoxication or hyponatremia. The overwatering of my body was washing away all of my sodium. I was limited to a small amount of water a day and forced to drink electrolytes then retested soon after.
Amidst all of this I made two visits to the ER for dehydration, tachycardia, and 8 pounds lost over night. This is where I did
After 15 doctor’s appointments, I was
another round of basic tests to rule out a myriad of possibilities. After
handed over to an endocrinologist.
15 doctor’s appointments, I was handed over to an endocrinologist.
After retelling the reason for my rediculously dark skin the doctor looked at me and said to show him an area of skin where the “sun didn’t shine,” it was equally dark. “You have what Kennedy had”
“You have what Kennedy had”
he said. This scared me because I had no clue what that meant I mean what didn’t Kennedy have.
I had Addison’s Disease.
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BY DEFINITION. Addisonâ€™s Disease is a rare autoimmune disease in which the adrenal glands do not work properly or stop working altogether. The adrenal glands produce many hormones, including cortisol, which helps the body maintain heart function, blood pressure control, and blood glucose control.
1 The pituitary gland sends alerts to
the adrenal glands to make cortisol.
Cortisol controls stress on the body
2 As the cortisol rises and heals the body, the alerts from the pituitary gland lower.
3 People with Addisonâ€™s disease get
these alerts but the adrenal glands do not respond.
adrenal glands kidneys
SYMPTOMS. Addisonâ€™s disease symptoms usually develop slowly, often over several months & may include:
Muscle weakness and fatigue Weight loss and decreased appetite Darkening of your skin
Acute adrenal failure / Addisonian Crisis. Sometimes the signs and symptoms may appear suddenly, these symptoms include:
Low blood pressure, even fainting Salt craving Low blood sugar Nausea, vomiting Muscle or joint pains Irritability Depression
Pain in your lower back, abdomen or legs Severe vomiting and diarrhea Dehydration Low blood pressure Loss of consciousness High potassium
Even after diagnosed, an Addisonian Crisis is a threat. Something as simple as consistently taken medicine can overt these complications. But an Addisonian must be prepared in the event that something unexpected happens such as a car accident/ sport injury .
Every day necessities include an emergency shot with insulin such as hydrocone sodium as well as a medical id bracelet that indicates the disease and emergency needs.
ADDI is helping me put things in perspective and gives me a new sence of hope .
Addi is helping me be healthy and become an active participant in my life.
Addi has given me new treatment options and is helping me tell my friends and family more about my disease.
It makes me feel good that I can be an advocate for this disease and help support others by participating with Addi.
Visually Static NIDDK Addisonâ€™s UK
THIS IS ADDI. ADDI is the leading Addisonâ€™s Disease organization that advocates and offers Addisonians not only the latest information/technology but intimate support both on the web and in person across the country.
THE BRAND CODE
benefit to the customer
Addi is a leader that gives up to date information and connects the diagnosed. `
our mission in society This is a nonprofit organization purely for advocacy.
what we want to be
We want to advocate for rare diseases like Addison’s Disease. By doing this we hope to raise awareness that leads to speedy prognosis.
why you should trust us
Our goal is not only provide information about Addison’s Disease but create a community for the diagnosed and their friends and family.
how we’re different
Our competetors offer information but that is it, Addi is a multi-faceted organization that takes care of a person both on the web and in person.
We are serious about curing Addison’s Disease but at the same time we want to celebrate life now and make the most of right now.
functional simple smart hopeful support inspire health drive
uncomplicated nostalgia relaxed conversation easy connection celebration confidant
BRAND PERSONALITY. Reagan Outgoing, Confidant, Loyal 23 years of age Dallas University of Dallas works as a barista and hiking guide hobbies : photography, hiking, rowing movies : limitless, hopefloats dream : traveling the world
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WHAT IS ADDISONâ€™S DISEASE The pituitary gland sends alerts to the adrenal glands to make cortisol.
As the contisol rises and heals the body, the alerts from the pituitary gland lower.
People with Addisonâ€™s disease get these alerts but the adrenal glands do not respond.
Visit addi.o you can hel
org to find out how lp or get connected.
IT IS ESTIMATED THAT 35 TO 60 MILLION PEOPLE IN
THE WESTERN WORLD ARE SUFFERING FROM
WITH NO ADVOCATE.
25,000 people with be
Addisonian Crisis whe not tested promptly.
ADDI not only wants
tion for Adrenal Insuf
advocate for the cause
people find a diagnosi
e diagnosed during an
en results can be fatal if
s to fight to find a solu-
fficiency but to also
e if hopes of helping
ADDI is the leading Addisonâ€™s Disease organization that advocates and offers Addisonians not only the latest information/technology but intimate support both on the web and in person across the country.