Page 1

Local Local Branch Contact Details: President / Chair

Janet McMillan

01509 880 577

Vice Chair Branch Contact Secretary Treasurer Publicity Officer Trust Officer Mail Administrator Committee Member Committee Member Committee Member Association Visitor Association Visitor Association Visitor Association Visitor Association Visitor Association Visitor

Ruth Johnson Isobel Jenkins * Jenny Holmes-Shuttlewood * Angela Parkin Lee Parkin Paul Wilcock * John Denoon John Shuttlewood John Mattock Benny Rossi Ann Kirkpatrick Alison Smith Helen Bennett Angela Saunders Ann Brennan Mohamed Sayed

0116 247 8279 01455 283 005 0116 251 5496 0116 267 5030 07930 490 934 0116 267 7970 0116 267 4040 0116 251 5496 0116 247 8409

01455 209 405 01572 755 469 0116 259 3945

* Association Visitor

Other Useful Contact Details: Regional Care Development Advisor – Rachel Boothman 0845 375 1830 Email: rachel.boothman@mndassociation.org MND Association Helpline – charged at local rate Open 9.00am – 5.00pm & 7.00pm – 10.30pm

08457 626 262

We hope you find this newsletter useful, please read it and pass it on to friends and family to help spread any news. If you have any social or fundraising events coming up please let us know and we can help publicise it both here and through the web site. The more people who know the more people will come! Email: lee@mndaleicester.org.uk If you have any news, views, tips, help, stories or anything you think others might find enjoyable or useful please let us know. If you need any assistance with this there is help available, see numbers on reverse.

www.mndaleicester.org.uk

National Office: Motor Neurone Disease Association P.O. Box 246 Northampton NN1 2PR Newsletter Contact – Lee Parkin Email: lee@mndaleicester.org.uk

Leicestershire & Rutland Branch Newsletter September 2010

Contents:

07930 490 934

Registered charity 294354

www.mndaleicester.org.uk

Sponsored by Greenshires Group

www.greenshires.com

• • • • • • • •

Halloween Bash! Co-op fundraising DISCO Friends & Family Forum Masonic Benevolence Coffee Morning Financial Health Letter from the Chair Past Carer’s Meeting


MESSAGE FROM THE CHAIRMAN

Dear Friends, It was good to see so many of you at the Strawberry Tea back in July. How did we manage to hold it, as usual, on a truly wet afternoon after so many sunny days! One of these days we will actually arrange for the sun to shine so we can go outside and enjoy the gardens at LOROS. Nonetheless everyone seemed to welcome the opportunity to get together for a chat, and of course, the strawberries. We were also delighted to welcome so many of the LOROS staff who popped in to see us during the afternoon. The summer is always a popular time for fund raising and this year has been no exception. Chinese meals, coffee mornings and sponsored events have kept many of our friends and supporters busy. Last night I was delighted to attend the Barrow on Soar Methodist Ladies Circle to receive a cheque for over ÂŁ900, an amazing sum raised in memory of Rosemary Allen, a dearly loved and much missed member of their group. As I write I know that other very substantial donations are on their way as a result of recent fundraising events. We will include news of these in the next newsletter but, once again, many, many thanks to all our dedicated and committed supporters who, despite the gloomy financial climate, are helping to ensure the continuing work of the branch and the MND Association. Of course, not everything in the garden is rosy at the moment. Both locally and nationally there is concern about how the impact of public service cuts will be felt by those affected by MND. We will certainly do all we can in Leicestershire and Rutland to make our voice heard and to monitor the situation in the NHS and local authority services. The MND Association will be undertaking a Monitoring Survey which will involve interviews and questionnaires as part of their role in assessing the situation as it unfolds and work continues to lobby for improved services through a National Strategy for MND. I am looking forward to attending the National Conference this month along with several branch members and volunteer visitors. It is in Nottingham this year so I am delighted that our branch will be so well represented and it will be a good opportunity to meet members from our neighbouring Branches as well as further afield. I am sure I shall have plenty to report back! Very best wishes, Janet McMillan, Chairman, Leicestershire and Rutland Branch


To whom it may concern, My name is Amy Marshall and about a year ago my uncle (Michael Suffolk) was diagnosed with MND. At the time I was living in Malaysia and felt compelled

to do something to show I was thinking of him and ultimately help as much as I possibly could miles away. Around that time I embarked on a challenge to climb one of the highest peaks in South East Asia - Mount Kinabalu, I'd had very little training but am a stubborn thing and made it up and down in the average tourist time of two days. Then my uncle was diagnosed and having already decided I could climb more, I vowed to take on another peak in Asia and raise some money for the MND Association. I wanted a further challenge and began my search to find the right peak for me. I have a few mountain-goat type friends who were all keen to join and so I planned to climb Mount Rinjani (3,726m-4 days) in Indonesia in my Easter holidays (did I mention I'm a primary school teacher). Unpredictability being the way of the world - two things happened; 1) my sister became pregnant - hooray! 2) I fell over and damaged my Brachial Plexus- boo! So I had to recover and could do no exercise until after Christmas plus my sister's baby was due in March. Whilst I was sitting around twiddling my thumbs getting better I rearranged the mountain trek for my May holidays, giving me plenty of time to recover and train. Again I called upon the mountain-goats to join me but alas their circumstances had also changed and only one was available to take up the challenge. Rochelle and I began in January, rain forest trekking for a couple of hours every Sunday morning. We soon built up our stamina and were able to do it in under an hour and half. As well as this, we stepped up doing another walk a weekend every time we were both available. So Easter came and went, my sister had a beautiful baby girl and I came home to visit my uncle and family and hand out sponsor forms. One month to go and we really stepped things up, with a Saturday rain forest trek, Sunday hike and mid-week power-walk. I asked the people I worked with to sponsor me while simultaneously family were collecting at home. The parents from my class had a collection and my uncles friends. I didn't really push the sponsoring too much - I'm not a pushy kind of person. I just put up the facts and asked people to make a donation.

Branch Xmas Cards They are on sale again! Lots of different designs now in and on sale ready for the early birds. Please contact Jenny Holmes-Shuttlewood on 0116 251 5496.

Xmas Social Evening This event has become a staple in our yearly calendar, last year’s night was a resounding success. This year it will be held on Thursday 25th November from 6-8pm at Palmer’s Garden Centre, St Johns, Enderby. There will be a buffet supper, small raffle, a performance from Loughborough Baptist Choir and a planting demonstration. Palmers will be open for Xmas shopping as will their excellent Grotto! Please call Lee Parkin for any further information 07930 490 934.

Friends & Family Forum Held at 7 Snow Hill, Leicester for all those currently caring for or involved with people living with Motor Neurone Disease. Come to meet like-minded folk for a chat and get together. Outreach nurses and committee members are on hand for a quiet chat too. These meeting have helped many people in lots of different ways over the years. Knowing only too well that each person with MND has completely different experiences and requirements, meeting people and talking about things can sometimes help find solutions and ease problems. One carer said of these meetings, “I find the welcome so warm and the level of support available is very well informed and so valuable. I would definitely recommend that anyone caring for a person with MND should come along.”

So the holiday came and we flew out to Lombok on the Saturday, the trek started 6am on the Sunday and ended on Wednesday around noon. We chilled out in a nice hotel on the beach for a day before heading back to KL. I have to say it was the most breathe taking trek I have ever done. The scenery was stunning and I needed all of my determination to get to the top and back. Having done so, I put together this video for all the people who donated:

For information please call Jenny Holmes-Shuttlewood on 0116 251 5496.

http://www.youtube.com/watch?v=ZqRThwBhvaA

Supper Success…

Altogether, we raised £915. My uncle asked me to email you as he is very proud and said his area nurse/advisor suggested I contact you. From Amy Marshall “Well done Amy, this is super. Your Uncle has every right to be proud!” Leics. MNDA

Starting 7.30pm on Wednesday September 22nd, October and November Please do let Jenny know if you need any assistance with transport.

Thanks to all who attending the recent event at The Shoulder of Mutton in Foxton. By all accounts a fab night was had with excellent Chinese food the order of the day and a sum just shy of £500 was raised to boot. Special thanks to the staff and owners of The Shoulder of Mutton, highly recommended!


Hello to some of our supporters, the ladies of Barrow on Soar….

Financial Health The following is a list of funds collected since the last publication: Donation In memoriam – George Cook Probus – Burbage Inner Wheel - Lutterworth Rutland Water Bike Ride Memory – Adrian Day Donation – Sylvia & Peter Ann Sarson In memoriam – Trevor Stratford Leicester Darts Organisation In Memoriam – Denis Brooks In Memoriam – Dorothy Bird

£20.00 £35.00 £215.00 £156.00 £730.00 £535.00 £20.00 £50.00 £495.00 £150.00 £325.00 £535.00

Coffee, Cake & Cards LOROS and MND Association These two organisations have worked together incredibly closely over the past years. We have hosted events and used facilities at the Groby Road Hospice. We have held joint fundraisers, hosted our multidisclipinary clinic and more importantly people living with MND have personally benefited from the care and support offered by LOROS. As a branch we wanted to show our support Pictured Loros, Branch & Mason representatives with the new wing being built at LOROS which will provide patients with more single rooms and the ability to provide more personal care. As we are a charity and after consultation we were told that we couldn’t use branch funds. So when approached by Mark Masons, local Freemason lodge, to see if there were any projects that could use a substantial funding we were only too happy to start the ball rolling for LOROS. The funds were granted and we were extremely pleased to be able to tell LOROS that there was a cheque for £25,000 on the way. The new wing is now open and providing higher levels of care and long may the relationship we have forged continue.

COFFEE MORNING AND SALE OF MND XMAS CARDS SUNDAY 31ST OCTOBER 10 - 2PM at PLEASANT COTTAGE BRUNTINGTHORPE ALL WELCOME!

Boogie on Down! Midlands cooperative society have adopted us for their corporate charity for 2010 and as part of their fundraising activities have planned a special disco. The venue is Cosby Working Mens Club, date October 2nd 2010 7.30pm – midnight! Tickets are £2.50 proceeds to MND Association and also we are holding a raffle to boost funds. The disco is unique to the midlands because it is original vinyl played on twin record decks and a retro lighting system and we have had a lot of interest. If any one from your organisation wants to attend please feel free to call Angela on 0116 286 4447 or for more information click through to www.club54-vinyldisco.co.uk


Hello to some of our supporters, the ladies of Barrow on Soar….

Financial Health The following is a list of funds collected since the last publication: Donation In memoriam – George Cook Probus – Burbage Inner Wheel - Lutterworth Rutland Water Bike Ride Memory – Adrian Day Donation – Sylvia & Peter Ann Sarson In memoriam – Trevor Stratford Leicester Darts Organisation In Memoriam – Denis Brooks In Memoriam – Dorothy Bird

£20.00 £35.00 £215.00 £156.00 £730.00 £535.00 £20.00 £50.00 £495.00 £150.00 £325.00 £535.00

Coffee, Cake & Cards LOROS and MND Association These two organisations have worked together incredibly closely over the past years. We have hosted events and used facilities at the Groby Road Hospice. We have held joint fundraisers, hosted our multidisclipinary clinic and more importantly people living with MND have personally benefited from the care and support offered by LOROS. As a branch we wanted to show our support Pictured Loros, Branch & Mason representatives with the new wing being built at LOROS which will provide patients with more single rooms and the ability to provide more personal care. As we are a charity and after consultation we were told that we couldn’t use branch funds. So when approached by Mark Masons, local Freemason lodge, to see if there were any projects that could use a substantial funding we were only too happy to start the ball rolling for LOROS. The funds were granted and we were extremely pleased to be able to tell LOROS that there was a cheque for £25,000 on the way. The new wing is now open and providing higher levels of care and long may the relationship we have forged continue.

COFFEE MORNING AND SALE OF MND XMAS CARDS SUNDAY 31ST OCTOBER 10 - 2PM at PLEASANT COTTAGE BRUNTINGTHORPE ALL WELCOME!

Boogie on Down! Midlands cooperative society have adopted us for their corporate charity for 2010 and as part of their fundraising activities have planned a special disco. The venue is Cosby Working Mens Club, date October 2nd 2010 7.30pm – midnight! Tickets are £2.50 proceeds to MND Association and also we are holding a raffle to boost funds. The disco is unique to the midlands because it is original vinyl played on twin record decks and a retro lighting system and we have had a lot of interest. If any one from your organisation wants to attend please feel free to call Angela on 0116 286 4447 or for more information click through to www.club54-vinyldisco.co.uk


To whom it may concern, My name is Amy Marshall and about a year ago my uncle (Michael Suffolk) was diagnosed with MND. At the time I was living in Malaysia and felt compelled

to do something to show I was thinking of him and ultimately help as much as I possibly could miles away. Around that time I embarked on a challenge to climb one of the highest peaks in South East Asia - Mount Kinabalu, I'd had very little training but am a stubborn thing and made it up and down in the average tourist time of two days. Then my uncle was diagnosed and having already decided I could climb more, I vowed to take on another peak in Asia and raise some money for the MND Association. I wanted a further challenge and began my search to find the right peak for me. I have a few mountain-goat type friends who were all keen to join and so I planned to climb Mount Rinjani (3,726m-4 days) in Indonesia in my Easter holidays (did I mention I'm a primary school teacher). Unpredictability being the way of the world - two things happened; 1) my sister became pregnant - hooray! 2) I fell over and damaged my Brachial Plexus- boo! So I had to recover and could do no exercise until after Christmas plus my sister's baby was due in March. Whilst I was sitting around twiddling my thumbs getting better I rearranged the mountain trek for my May holidays, giving me plenty of time to recover and train. Again I called upon the mountain-goats to join me but alas their circumstances had also changed and only one was available to take up the challenge. Rochelle and I began in January, rain forest trekking for a couple of hours every Sunday morning. We soon built up our stamina and were able to do it in under an hour and half. As well as this, we stepped up doing another walk a weekend every time we were both available. So Easter came and went, my sister had a beautiful baby girl and I came home to visit my uncle and family and hand out sponsor forms. One month to go and we really stepped things up, with a Saturday rain forest trek, Sunday hike and mid-week power-walk. I asked the people I worked with to sponsor me while simultaneously family were collecting at home. The parents from my class had a collection and my uncles friends. I didn't really push the sponsoring too much - I'm not a pushy kind of person. I just put up the facts and asked people to make a donation.

Branch Xmas Cards They are on sale again! Lots of different designs now in and on sale ready for the early birds. Please contact Jenny Holmes-Shuttlewood on 0116 251 5496.

Xmas Social Evening This event has become a staple in our yearly calendar, last year’s night was a resounding success. This year it will be held on Thursday 25th November from 6-8pm at Palmer’s Garden Centre, St Johns, Enderby. There will be a buffet supper, small raffle, a performance from Loughborough Baptist Choir and a planting demonstration. Palmers will be open for Xmas shopping as will their excellent Grotto! Please call Lee Parkin for any further information 07930 490 934.

Friends & Family Forum Held at 7 Snow Hill, Leicester for all those currently caring for or involved with people living with Motor Neurone Disease. Come to meet like-minded folk for a chat and get together. Outreach nurses and committee members are on hand for a quiet chat too. These meeting have helped many people in lots of different ways over the years. Knowing only too well that each person with MND has completely different experiences and requirements, meeting people and talking about things can sometimes help find solutions and ease problems. One carer said of these meetings, “I find the welcome so warm and the level of support available is very well informed and so valuable. I would definitely recommend that anyone caring for a person with MND should come along.”

So the holiday came and we flew out to Lombok on the Saturday, the trek started 6am on the Sunday and ended on Wednesday around noon. We chilled out in a nice hotel on the beach for a day before heading back to KL. I have to say it was the most breathe taking trek I have ever done. The scenery was stunning and I needed all of my determination to get to the top and back. Having done so, I put together this video for all the people who donated:

For information please call Jenny Holmes-Shuttlewood on 0116 251 5496.

http://www.youtube.com/watch?v=ZqRThwBhvaA

Supper Success…

Altogether, we raised £915. My uncle asked me to email you as he is very proud and said his area nurse/advisor suggested I contact you. From Amy Marshall “Well done Amy, this is super. Your Uncle has every right to be proud!” Leics. MNDA

Starting 7.30pm on Wednesday September 22nd, October and November Please do let Jenny know if you need any assistance with transport.

Thanks to all who attending the recent event at The Shoulder of Mutton in Foxton. By all accounts a fab night was had with excellent Chinese food the order of the day and a sum just shy of £500 was raised to boot. Special thanks to the staff and owners of The Shoulder of Mutton, highly recommended!


MESSAGE FROM THE CHAIRMAN

Dear Friends, It was good to see so many of you at the Strawberry Tea back in July. How did we manage to hold it, as usual, on a truly wet afternoon after so many sunny days! One of these days we will actually arrange for the sun to shine so we can go outside and enjoy the gardens at LOROS. Nonetheless everyone seemed to welcome the opportunity to get together for a chat, and of course, the strawberries. We were also delighted to welcome so many of the LOROS staff who popped in to see us during the afternoon. The summer is always a popular time for fund raising and this year has been no exception. Chinese meals, coffee mornings and sponsored events have kept many of our friends and supporters busy. Last night I was delighted to attend the Barrow on Soar Methodist Ladies Circle to receive a cheque for over ÂŁ900, an amazing sum raised in memory of Rosemary Allen, a dearly loved and much missed member of their group. As I write I know that other very substantial donations are on their way as a result of recent fundraising events. We will include news of these in the next newsletter but, once again, many, many thanks to all our dedicated and committed supporters who, despite the gloomy financial climate, are helping to ensure the continuing work of the branch and the MND Association. Of course, not everything in the garden is rosy at the moment. Both locally and nationally there is concern about how the impact of public service cuts will be felt by those affected by MND. We will certainly do all we can in Leicestershire and Rutland to make our voice heard and to monitor the situation in the NHS and local authority services. The MND Association will be undertaking a Monitoring Survey which will involve interviews and questionnaires as part of their role in assessing the situation as it unfolds and work continues to lobby for improved services through a National Strategy for MND. I am looking forward to attending the National Conference this month along with several branch members and volunteer visitors. It is in Nottingham this year so I am delighted that our branch will be so well represented and it will be a good opportunity to meet members from our neighbouring Branches as well as further afield. I am sure I shall have plenty to report back! Very best wishes, Janet McMillan, Chairman, Leicestershire and Rutland Branch


Local Local Branch Contact Details: President / Chair

Janet McMillan

01509 880 577

Vice Chair Branch Contact Secretary Treasurer Publicity Officer Trust Officer Mail Administrator Committee Member Committee Member Committee Member Association Visitor Association Visitor Association Visitor Association Visitor Association Visitor Association Visitor

Ruth Johnson Isobel Jenkins * Jenny Holmes-Shuttlewood * Angela Parkin Lee Parkin Paul Wilcock * John Denoon John Shuttlewood John Mattock Benny Rossi Ann Kirkpatrick Alison Smith Helen Bennett Angela Saunders Ann Brennan Mohamed Sayed

0116 247 8279 01455 283 005 0116 251 5496 0116 267 5030 07930 490 934 0116 267 7970 0116 267 4040 0116 251 5496 0116 247 8409

01455 209 405 01572 755 469 0116 259 3945

* Association Visitor

Other Useful Contact Details: Regional Care Development Advisor – Rachel Boothman 0845 375 1830 Email: rachel.boothman@mndassociation.org MND Association Helpline – charged at local rate Open 9.00am – 5.00pm & 7.00pm – 10.30pm

08457 626 262

We hope you find this newsletter useful, please read it and pass it on to friends and family to help spread any news. If you have any social or fundraising events coming up please let us know and we can help publicise it both here and through the web site. The more people who know the more people will come! Email: lee@mndaleicester.org.uk If you have any news, views, tips, help, stories or anything you think others might find enjoyable or useful please let us know. If you need any assistance with this there is help available, see numbers on reverse.

www.mndaleicester.org.uk

National Office: Motor Neurone Disease Association P.O. Box 246 Northampton NN1 2PR Newsletter Contact – Lee Parkin Email: lee@mndaleicester.org.uk

Leicestershire & Rutland Branch Newsletter September 2010

Contents:

07930 490 934

Registered charity 294354

www.mndaleicester.org.uk

Sponsored by Greenshires Group

www.greenshires.com

• • • • • • • •

Halloween Bash! Co-op fundraising DISCO Friends & Family Forum Masonic Benevolence Coffee Morning Financial Health Letter from the Chair Past Carer’s Meeting


September 2010  

Newsletter: September 2010

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