LIAFLine Spring/Summer 2007
NY Liberty Game to Benefit LIAF Sunday Aug. 19
NEWSLETTER OF THE LONG ISLAND ALZHEIMER’S FOUNDATION
INSIDE THIS ISSUE... • Westminster Dog does Pet Therapy • Flurizan Phase Two Findings • LIAF on Cablevision • Managing Challenging Behaviors • Coping & Caring Conferences • 14th Annual Golf Classic • LIAF in Neurology Now • Sibling Poetry • Outstanding Service Awards • Strategic Plan for LIAF • New Products • Valentine's Dance • Community Workshops • Regatta to Remember
Westminster Winner a Champion for LIAF Cause By Leslie Gonzalez he Long Island Alzheimer’s Foundation has a friend in Teresa (Terry) Patton of Fairfax Station, VA, a 31-year veteran in dog training and competition whose English Springer Spaniel, Champion Felicity’s Diamond Jim, made headlines worldwide for his recent win as Best in Show at the Westminster Kennel Club 131st Annual Dog Show at Madison Square Garden. But Ch. Felicity’s Diamond Jim, a.k.a. “James,” is more than a show dog. When he and his owner Terry are home, it’s back to what they really do – weekly pet therapy work, which James adores. The two visit Alzheimer’s clients at The Virginian in Fairfax, VA. They also visit Mt. Vernon Rehabilitation Center in Alexandria, VA; Annaberg Manor in Manassas, a center for head injuries, Alzheimer’s disease (AD) and more advanced nursing care; and Birmingham Green, a facility with AD patients, wards of the state and the mentally challenged, also in Manassas. “It energizes us as a team. I love it,” said Terry. “To see James connect with the patients is so rewarding and he has a blast.” Terry’s lifetime work with
dogs began with a white Miniature Poodle and a $50 bet from family members that she could never do anything with it. She took the dog to training classes, and earned two obedience titles. Terry was introduced to the English Springer Spaniel breed through her trainer, and went on to own, breed and train Springers to compete in obedience and conformation competitions. Terry Patton and champion English Springer Terry founded Spaniel James do pet therapy. The Felicity Dog Training School in titles her dogs have earned in 1987. She and her husband the past 25 plus years. built a 2,400 square foot The Felicity kennel name training center behind her 5Terry chose means happiness, acre home in Fairfax Station, beauty and grace. VA. There, she trains her own “I think those qualities are dogs and works with others in what we aspire to exemplify in classes of six to eight. Dogs the dogs and ourselves too,” are carefully screened. She Terry explained. Her pet also works with difficult dogs therapy work began with Dan, or very young puppies, one on James’ uncle, now 13 years old, one. Her passion for dog and Buster, who lived 12 years. training has culminated in Terry founded Paws for Love nearly 30 breed champions and Pet Therapy and Visitation 30 obedience, rally and agility Continued on page 6
Executive Director’s View Hello Friends! The pansies are planted in the clay pots, welcoming our LIAF community to our doors. They, like we, had to tough out the last winter storm of the year -- which occurred just after they were planted in 60-degree weather! Our busy season is upon us, having just held a most successful Coping & Caring Conference with wonderful speakers -- Drs. Relkin, Wolf-Klein, Koppel and Passes, a heartfelt adult children support group panel, and Alzheimer’s disease behavioral specialist Teepa Snow on the agenda. Thank you for sharing your wisdom! And thank you sponsors, exhibitors and attendees for joining us. We now are ready to honor some 41 terrific caregivers and volunteers at our Outstanding Service Awards Luncheon in April, and are deep into planning our June Golf Outing honoring Tom, Kevin and Bob Murphy. Congratulations! Next year, LIAF will celebrate “20 Years of Serving, Educating and Caring.” Stay tuned for all the action! And we thank Ch. Felicity’s Diamond Jim a.k.a. James and his owner Terry Patton for sharing their story with us. James truly is a magnificent dog – beautiful to watch in the show ring, as those of us who saw him winning Best in Show at the Westminster Kennel Club know. But more important to our LIAF community is how James and his thoughtful, caring owner Terry make weekly trips to hospitals and senior facilities to do pet therapy with dementia and head trauma clients. We applaud and thank them for the special work they do to bring happiness, memories and smiles whenever they visit.
Founder’s Corner Dear Friends, Greetings and welcome to spring! I am delighted to see this newsletter is covering a wonderful program used throughout the world as a support for AD clients – Pet Therapy. Personally, just remembering the pets who have pasted through my life brings a smile to my face, i.e. Cleo, Noel, Pluto, Minnie, Ice, etc….. These faithful friends brought much joy to my life and comfort beyond belief. Today, we know our animal friends can support a healthier mental and physical lifestyle for all ages. Special thanks to LIAF’s pet therapy animals and the wonderful people who care for them. I would like to offer a warm welcome to LIAF’s newest staff member, Jeffrey Steele, as Senior Vice President for Philanthropy he will energize the momentum we need to support and expand our programs and services. Once again, my gratitude to the staff and volunteers at LIAF, you make a difference every day. Each day I try to share the wonderful work of LIAF with someone in need; I hope you will too. My best,
Please designate LIAF as your United Way charity.
LIAFLine The Long Island Alzheimer’s Foundation, Inc. Leslie Gonzalez, Editor 5 Channel Drive, Port Washington, NY 11050 (516) 767-6856 Fax: (516) 767-6864 e-mail: email@example.com Internet: www.liaf.org
LIAFLine is the newsletter of the Long Island Alzheimer’s Foundation, Inc. (LIAF). It is supported entirely by contributions and is intended for caregivers, service providers and anyone interested in Alzheimer’s Disease or the Foundation. Articles, news items, correspondence, or other materials of interest are welcomed for publication consideration.
® 2007 The Long Island Alzheimer's Foundation, Inc Material in LIAFLine may be reproduced, with proper reference to source.
Until next time – best regards, Any statements of fact and opinion are the responsibility of the authors herein and do not imply an opinion or endorsement on the part of The Long Island Alzheimer's Foundation, Inc.
Advances in Medication yriad Genetics recently announced that Florizan, the first in a new class of Alzheimer’s drugs, may be capable of slowing the decline or even stopping Alzheimer’s disease in its tracks. Scientists who made the announcement at the American Geriatric Psychiatry conference in Salt Lake City claim the drug blocks the accumulation of beta amyloid, the substance thought to
cause the disease. The findings were the result of a Phase 2 study of Alzheimer’s clients over the course of two years. Myriad Genetic described this as “an exciting and novel finding that, if replicated in the ongoing Phase 3 trails will be extraordinarily important.” Critics are enthusiastic, but describe the claims as farreaching. Two grand-scale Phase 3 studies are planned. ❍
LIAF on Cablevision
Seated are Barbara Vogel, Max Rudansky, MD, and Dr. Harvey Passes.
The Long Island Alzheimer’s Foundation was recently profiled on the Dr. Harvey Passes’ Show, a medical program aired nine times a week on several of Cablevision’s public access television channels. Hosted by Dr. Harvey Passes, the 30-minute program featured an in-depth discussion with Max Rudansky, MD, of LIAF’s Medical Advisory Board, and Barbara Vogel, Director of Social Work Staff at LIAF. The program defined Alzheimer’s disease from the medical and caregiving perspective, and described the many resources available through LIAF. ❍
Managing Challenging Behaviors The Long Island Alzheimer’s Foundation held two interactive workshops on Managing Challenging Behaviors in Dementia, featuring Teepa Snow, MS, OTR/L, FAOTA, dementia care and dementia education specialist. The program was designed for caregivers from private homes, hospitals, institutional settings, community settings, and residential programs. One workshop was held March 19 at New York University Medical Center, in conjunction with The Alzheimer’s Disease Center and the Aging and Dementia Research Center of The Silberstein Institute, NYU School of Medicine. The other was held March 20 at Kew Gardens Community Center, a subsidiary of Forest Hills Community House. In this workshop, emphasis was placed on skill building to enable caregivers to work more effectively when helping people complete tasks and socialize to the best of their abilities. Participants were able to return to their facilities, communities, or homes and implement what they had learned to improve interactions with those they care for with dementia. For anyone who missed this series, LIAF will hold another series with Teepa between August 27-31.❍
New Initiatives at Coping and Caring he Long Island Alzheimer’s Foundation held its 19th Long Island “Coping & Caring” Conference at Crest Hollow County Club on Wednesday, March 21, 2007. The comprehensive, educational conference provided valuable information for families and professional caregivers dealing with Alzheimer’s disease and related dementias. About two hundred attendees, including 32 exhibiting organizations, registered for this event, held at the Crest Hollow Country Club in Woodbury, NY, a new location, from 9 AM to 4 PM. Norman Relkin, MD, Associate Professor of Clinical Neurology and Neuroscience at New York Presbyterian Hospital/Weill Cornell Medical Center and Director of the Weill Cornell Memory Disorders Program, delivered the Keynote address. Dr. Relkin’s discussion, titled “Recent Advancements in AD: A Look at the Future,” explained how we are now entering a new era in the history of Alzheimer’s disease; that it can be much more effectively predicted, diagnosed, treated and even prevented in the years to come. Dr. Relkin is currently leading the North American Clinical Trial of Human Antibodies (IVIg) for Immunotherapy of Alzheimer’s disease. Introduced this year was a Q&A panel series with presentations by Gisele Wolf-Klein, MD, of North ShoreLong Island Jewish Health System and Jeremy Koppel, MD, of The Zucker-Hillside Hospital, North Shore-Long Island Jewish Health System. This panel was moderated by Dr. Harvey Passes, host of Cablevision’s medically-inspired Dr. Harvey Passes’ Show, which recently profiled LIAF in two episodes. Dr. Wolf-Klein discussed special challenges in the management of Alzheimer’s disease, and Dr. Koppel discussed treatment of agitation in dementia. A buffet luncheon and exhibits were highlighted by a delicious dessert presentation by the talent chefs of Atria Senior Living. The afternoon featured Barbara Vogel, Director of Social Work Staff at LIAF, who directed a panel of six members from her Adult Children Caregivers’ group as they shared personal experiences with the audience. The day ended with Teepa Snow, MS, OTR/L, FAOTA, a specialist in the field of dementia care and training, who discussed challenges in helping with personal care. LIAF would like to thank all who sponsored this year’s event, including The Bristal Communities, presenting sponsor and master of ceremonies; All Metro Health Care, Atria Senior Living Group, and Cold Spring Hills Center for Nursing and Rehabilitation. LIAF would also like to thank Forest Pharmaceuticals, Harbor House Assisted Living, Pfizer, Somerset Gardens Senior Living and Sunrise Senior Living for their sponsorship. ❍
Dr. Norman Relkin delivered the Keynote address.
Teepa Snow discussed personal care in dementia.
Caregiver Al Kaplan provided an art display.
About 175 people attended LIAF’s 19th Annual “Coping & Caring” Conference at Crest Hollow Country Club.
Fourteenth Annual Golf Classic Monday, June 18, 2007 Sands Point Golf Club
HONOREES: TOM, KEVIN, AND BOB MURPHY “Fore” Some $3,200 • One Foursome; Including Golf, Brunch & Cocktail Reception/Dinner • Acknowledgement in Golf Journal • One Tee Sign
Individual Golfer $800 • One Golf Entry; Including Golf, Brunch & Cocktail Reception/Dinner
Dinner Reception Only $250 GOLF TIPS JOURNAL ADVERTISMENT OPTIONS Full Gold Page - $1000 Full Silver Page – $750 Full Page - $500 (7-1/2w x 10h) Half Page - $300 (7-1/2w x 4-7/8h ) Quarter - $175 4-7/8w x 3-5/8h) Tee Sign $500 Golden 150 Yard Marker $500 All proceeds benefit LIAF’s Programs and Services. For more information, to register for the outing or to support it, call: (516) 767-6856 or send an e-mail to firstname.lastname@example.org or visit our website at www.liaf.org
Pet Therapy Pet Therapy...Continued from page 1
Group. Since the work can be so intense and emotional, visits by two dog/handler teams are limited to 30 minutes each with rest periods in between. Terry explains, “The higher the emotional pitch in the room, I find the more quickly the dogs tire.” James, one of the offspring of Ch. Telltale Davey Jones and Ch. Rendition Autumfire Poppy, was born June 8, 2000. Over the years, he has been a huge comfort and companion for Terry’s father, whose advanced dementia includes a loss of fine motor skills and the inability to walk. Therapy dogs require a proper temperament and intense training with a good foundation in obedience. There are many different kinds of therapy, such as nursing home, graduated care,
James lies quietly at the side of a 103-year old client during a pet therapy visit The Virginian in Fairfax, VA.
Terry Patton sits with James after his Best in Show win at the 2007 Westminster Dog Show.
independent or assisted living, patients that are totally bedridden and not cognizant. James is certified by the Delta Society Pet Partners Program. He was graded on his behavior as he encountered trainers simulating the behaviors of the mentally challenged; those with awkwardness, odd gestures, heavily altered gaits, walkers, wheelchairs, loss of fine motor skills, rushing up and heavy, restraining hugs. James passed with such high scores that it qualified him as a Complex Dog able to handle any situation, be it hospital, nursing home, or dementia unit.
James’ champion genetics and excellent training paid off: James finished 2006 as the Number Two Dog All Breed, the Number One Sporting Dog, and the Number One Springer. He then won at Madison Square Garden; won Best in Show at the prestigious Eukaneuba/ American Kennel Club (AKC) Championship in Long Beach, CA; and won many Springer Spaniel specialties, including the National Championship last October. James lives away from his owner an in the company of his handler Kellie Fitzgerald while being shown. “Just to be in the company of the “crème de la crème” of dogs, and to come out on top – it’s just surreal,” Terry says. “He’s so charismatic, so high on life, always interacts wonderfully with people and other dogs. He’s got it all. When he started, I had no idea that he was going to be ‘a total package,’ on all levels. For him, it is more than being a show dog – it’s his work with Alzheimer’s and
Handler Kellie Fitzgerald with James and judges at the Westminster Kennel Club 131st Annual Dog Show in February, 2007. James won Best in Show. head trauma patients. James is a once in a lifetime dog.” Terry’s pivotal moment in pet therapy came with her knee replacement surgery, with James’ half sister Elizabeth by her side through her own excruciating pain. Terry realized when people are sick or in pain, it’s difficult for others to be around them, as it may be upsetting. “Dogs tend to be completely and unconditionally supportive and loving and they just instantly connect and it’s wonderful,” she said. “If they can do that for me, then I can only imagine what they do for other people, and I’ve seen what James has done with my dad - that’s truly made me a believer.” At Birmingham Green, where patients typically do not have family, there are three wings of bedridden patients, and a third level advanced unit on complete lockdown. Visitors are monitored carefully and limited to about 5-10 minutes to prevent over-
stimulation. Each visit begins with Terry asking James if he’s ready before approaching a patient. Once while visiting The Virginian in Fairfax, VA,when Terry gave the command “paws up,” so James could be close to a patient, he hesitated and looked back at Terry. When James hesitates like this, Terry’s awareness becomes heightened. In one such case, Terry took the gentleman’s hand. “He was very, very weak and when I did that, his sleeve slipped up,” Terry explained. “The poor fellow was all bandaged up beneath his sleeve.” The ward nurse explained that since the man’s blood pressure was very low, they were unable to establish IV lines there, and had placed soft gauze so he wouldn’t get bumped or bruised any more and cause additional bleeding under the skin. “James picked right up on it.” Instead, Terry took the man’s hand and placed it on James. “And the
smile on this man’s face, oh my goodness!” Diagonally across the hall was a 103-year old woman was placed on very low, heavily padded bed because she was such a fall risk. “James -- no cue from me since he was unleashed, wanted to see this lady and he walked very carefully around her, curled up next to her and put his head on the pillow between her knees. We found out that she had dogs all her life.” Terry explained the importance of touch and the differences in patient interactions: In AD clients, there is a stronger need for touching the dog, hugging, tight hugging, than there is anything else. With children, there is more petting; and people in rehabilitation just want the animal to be near. Terry says there are many more people that need to be visited. “They need to know we do care about them. They’re not just shut away and forgotten about, warehoused. AD clients are periodically lost. I think that the dogs help them connect. It’s as though the dogs find them. The bond between dog and human species transcends time and place, and I tell you, it recharges my batteries every time.”
Patricia Gallatin, LIAF Executive Director, was introduced to Terry Patton and James through their common love for breeding and showing dogs. Pattie breeds and shows champion Scottish Terriers. We thank James’ owners Teresa and Allen Patton; Ruth Dehmel and Diana Hadsall, and handler Kellie Fitzgerald for sharing James’ wonderful story. To learn more about Felicity and James visit www.felicityenglishspringers.com
LIAF Featured in Neurology Now Magazine The Long Island Alzheimer’s Foundation is featured in the April 2007 issue of Neurology Now, the patient education magazine of the American Academy of Neurology. Writer Gina Shaw visited LIAF’s Memory Lane Club, where Sandy Whiteside, LCSW, and her therapy dog Lola, a five-year old golden retriever, interacted with mid to moderate stage Alzheimer’s clients. The Memory Lane Club, a state-ofthe-art social-model adult day services program, is geared toward individuals with mid to moderate stage Alzheimer's disease and related dementias, and provides cognitive stimulation through recreational activities. Sandy Whiteside specializes in therapy dogs and training for courteous canine behavior. She is also a dog bite prevention educator. Animals do not just provide love and affection for people who need it. They are also used as a therapeutic tool. Pet Therapy began in the state of California more than 20 years ago, and medical literature documents its objective health benefits. There is evidence that pet therapy among the institutionalized elderly may reduce depression and blood pressure, reduce irritability, reduce agitation and increase social interaction. In Alzheimer’s disease, there is evidence that the presence of a companion animal may increase social behaviors such as smiles, laughs, looks, leans, touches, verbalizations, name-calling, or others. One study by French gerontologist Dr. Elisabeth Kruczek, published in the May 1993 issue of The Lancet, suggested that contact between Alzheimer’s clients and pets can spontaneously induce extended periods of calm, at times even permitting a reduction in sedation. Dr. Kruczek described a particularly agitated patient who would otherwise
spend the whole day pacing, would stop to nurture a cat for a whole hour. A different study with non-communicative clients reported that the animals assist in recall of memories, and help sequence temporal patients with head injuries or chronic degenerative diseases of the brain. Results showed increased progress in memory of an Alzheimer’s patient within just a one month time. Yet another study found improved nutritional intake, improved weight gain, and reduced need for nutritional supplementation, after a fish aquarium was added to an institutional care facility for people with Alzheimer's disease. Such findings have Memory Lane Club clients are visited by social peaked the interest worker and pet therapist Sandy Whiteside, right, among long term care and her therapy dog Lola. organizations. LIAF Memory Lane combines art, music, baking, trivia, Club members, with its five resident and other recreational activities with parakeets and tropical aquarium, aren’t supportive group discussion. Members the only recipients of animal attention. in the moderate stage of the illness Visits from the Science Museum of are aware of having a memory Long Island with its “Animal problem, but are able to participate in Adaptation” discussions offer stimuli an hour of activity and discussion for LIAF’s early to mid-stage without behavioral difficulties. Alzheimer’s clients: Both groups have participated in Al’z Club, an early-stage weekly this “show and tell” of small mammals support group, provides emotional such as rabbits, guinea pigs, support, camaraderie, intellectual chinchillas and ferrets to small reptiles stimulation and socialization, with such as turtles, iguanas and snakes, frequent speakers and a myriad of making for exciting interaction, fun topics. ❍ factoids and lively discussion. The Happy Days Club is a weekly activity and discussion group which
These poems were written by siblings, one attends a support group and one does not. LIAF advocates for awareness and education about Alzheimer’s disease, and couldn't have said it any better than Frankie did to his extended family. For more information about the LIAF Adult Children’s Group with Barbara Vogel and Support Groups both on and off-site, call 516-767-6856.
She Is Not My Mother The woman I look at is not my mother This woman has white hair My mother had brown This woman has dirty cracked nails Hers were always manicured This woman is dressed sloppy My mother was always neat The socks are unmatched Hers were always matched Her clothes are stained My mother’s were not This woman will eat anything My mother did not This woman doesn’t wear a bra My mother always did This woman’s front tooth is chipped My mothers was not A horrible disease A horrible disease Has robbed her of her “golden” years Has robbed them I pray God will take her To her sisters, brothers and parents Where she will once again Look happy and neat And be my mother
She Is Still My Mother Although her hair is bright white now, it is still the same hair that I used to brush when she used to lay down on the couch after a hard day’s work of cleaning, ironing and cooking. Although her nails are now dirty and cracked, they are still the same nails that I remember seeing as she pointed to the words in my catechism book as I was learning to read, on the kitchen table while she are her lunch at the same time. Although she is now dressed sloppy, with stained clothing and unmatched socks, they are just temporary. When I dream of her, she is always dressed very neat and clean with her hair done and makeup on. Although she now eats anything you put in front of her, I try to look at it as a reward to her since most her life she practically ate nothing trying to stay so slim. Although she doesn’t wear a bra anymore, so what?! Some women burnt them years ago! Although her front tooth is chipped and she doesn’t seem to care, at least she still keeps them in for now. When I sit with her, sometimes I just stare at her and try to see INSIDE what’s going on. It’s in those quiet moments, when it’s just the two of us, that I feel I am with my mother. I’m not listening to the gibberish that now comes out of her mouth caused by her diseased brain. I am not looking how she rocks back and forth and shakes her legs. I am not looking at her clothes or her hair. I look into her eyes. I look into her soul. And sometimes, when I look long enough and she looks at me and says “What the Hell are you looking at?!” or calls me by name, I know she’s still in there somewhere. It IS a horrible disease. It has robbed her AND her husband of their “golden years.” She is not “happy, just confused…” as many of the television movies portray Alzheimer patients to appear. She is confused. She is frustrated. She is lost. I too, pray that God will take her before it gets worse. She will be with her parents and her siblings and friends that passed on before her. But for now, she is here with us. She still exists as a human being. She IS still my mother. She is still grandma and grandpa’s youngest daughter. She is still someone’s sister. She is still someone’s wife. She is still someone’s Aunt. She is still someone’s grandma. She is still someone’s neighbor. She is still someone’s friend. She may be different, and I miss her old self so much that my heart aches and I can’t stop crying, but she is STILL my mother.
Happenings “A person’s heart is not measured in size, but by the depth of the commitment to make a difference in the lives – DeAnn Hollis of others.”
Hearts of Gold The Long Island Alzheimer’s Foundation held its 13th Annual Outstanding Service Awards Luncheon April 17, 2007 at The Garden City Hotel. Themed “A Heart of Gold,” the Luncheon is a salute to those who go above and beyond the call of duty, friendship and responsibility to the Alzheimer’s disease community. Approximately 300 guests attended this year’s event, sponsored by The Bristal Communities. Kathleen Rice, Nassau County District Attorney, was keynote speaker. Honored with the LIAF Achievement Award were Anne Confort, Bonnie Doran, and Linda Laser, MSW. Thirty-seven honorees and the “Our Space” Alzheimer’s Day Program at Herricks Community Center were presented with the LIAF Outstanding Service Award. ❍
LIAF Looks to its Future LIAF thanks the American Management Association (AMA), which once again generously provided the Long Island Alzheimer’s Foundation with meeting space and a facilitator to work on Phase II of LIAF’s five-year strategic plan. The AMA has also offered periodic training for LIAF staff. Discussed on January 9 were goals and pro-
Three new sing along DVDs are available through LIAF.
jections that will take the LIAF through its 20th year and beyond; among them planning for LIAF’s 20th Anniversary in 2008; fundraising for LIAF’s programs; technology enhancements for LIAF’s website, computer network and databases; and outreach for more community partnerships. 516-767-6856. ❍
New Videos Available The Long Island Alzheimer’s Foundation has added 3 new DVDs to its comprehensive library of products. “Front Row Seat: Sing Along with Barbara” is a three part series ideal for use in skilled nursing, assisted living and residential care facilities; adult day care programs, senior residences, hospice centers, and for home use by caregivers. Volume one has favorite songs from the early 1900s; volume two has joyous holiday songs, and volume three consists of additional favorites from the early 1900s. Barbara Jacobs, a musician since age three, has devoted the past ten years of her professional life to bringing music and joy into the lives of seniors. She has taught several weekly sing along music classes at skilled nursing and assisted living facilities. She attended the "Fame" High School of Music and Art in New York City as a voice and piano major. She has a B.S. in Education from Syracuse University and an M.S. in Counseling from Lehman College. This video series began in 1998 with the videotaping of volume one at Drake Terrace, a senior residence in California. By popular demand, Barbara Jacobs later recorded volumes two and three. For more information of this and other LIAF products, please call 516-767-6856. ❍
Valentines A Volunteer Hit IAF’s 3rd Annual Valentine’s Dance was held on February 8, attended by clients, family caregivers, and staff. Special thanks to freshman students from Paul D. Schreiber High School for their outstanding community service. The teens showed guests their most gracious hospitality by greeting arriving guests, assisting with coats, food service, dancing with clients, and assisting with clean-up. Their trip was coordinated through guidance counselor Jessica Ludwig, in response to a recent visit from Alana Rosenstein, Director of Early Stage Programs at LIAF, who met with the students to discuss Alzheimer's disease.
Volunteers Wanted The Long Island Alzheimer’s Foundation, an organization dedicated to helping others, thrives because of its volunteers. They bring and add an enthusiasm and spirit to our ability to provide aid and assistance. These are truly priceless gifts. LIAF is constantly seeking individuals who wish to make a worthwhile and meaningful contribution to their community. By offering your time, experience and, most of all, yourself –
YOU can make a real Difference! For more information, please call 516-767-6856. LIAF clients, families, staff and students shared a Valentine’s dance.
Guitarist Gerry McKeveny played everything from romantic ballads to rock music.
Schreiber High School students served a buffet lunch.
LIAFline thanks its advertisers for their support IT’S TOO SAD TO FORGET Alzheimer’s Disease
Symptoms include: • forgetfulness, confusion, • disorientation, • problems with language, • personality changes
HOLD ON TO YOUR MEMORIES
If you are currently taking Razadyne Aricept or Exelon and are not seeing any improvements
NBR is currently conducting a clinical trial with a new medication for Alzheimer’s disease. To qualify please contact:
Neurobehavioral Research Inc. 516 295-7230 Ask for Yvette Vega or Millie Feliz
Eligible participants will receive study medication, study related care, and diagnostic exams at no cost. Participants need to be over the age of 50, and can not be using anti-Parkinson’s medication.
Advertise In LiafLine The Long Island Alzheimer's Foundation is seeking advertisers for its LIAFline newsletter, which is distributed to 21,000 families, 10,500 organizations and over 300 medical centers three times a year. In addition, LIAFline is a resource at over 200 public libraries in Nassau, Suffolk, Brooklyn and Queens; and made available at all LIAF events, workshops and conferences. Ad space includes a free web link at www.liaf.org. For more information, call Leslie Gonzalez at 516-767-6856.
Young Sailors Gear up for a Day on the Bay The Long Island Alzheimer’s Foundation will hold its Fourth Annual “A Regatta To Remember” on Saturday, June 30, at the Manhasset Bay Yacht Club in Port Washington. Young sailors from local yacht clubs will race and raise funds to support LIAF families living with the day-to day challenges of Alzheimer’s disease. There will be T-Shirts, goody bags and a raffle for participants, with the chance to win an I-Pod and many other fabulous prizes. For the first time this year LIAF will be awarding prizes to the top fundraisers. The grand prize, a Nintendo Wii gaming system, will be presented to the participant who brings in the most money in pledges starting at over $1,000. Spring 2007
Donations Memorials In Loving Memory Of: Irving Abramowitz Digna M. Alarcon Josephine Alfieri James Amico Mabel Margie Anderson Mary Ann Annunziata Catherine Aroff Harold Baldauf Edward Baldwin Blanche Barbanel Anthony Battaglia Barney Beck Albert Behar Joseph Beilin Giuseppantonio Bello Roslyn Berger Robert Blum Robert Boehm Anna Bondi Ruth Bordt Henry F. Brandenstein Robert H. Brauer Sidney Braun Dorothy Breier Dorothy Brewi Herbert Bronsten Robert Bross Pearl Burgos Isaac & Esther Camhi Mike & Agnes Campbell Grace Caracciolo Ernest Cardone Alba L. Carramusa Rita Cattell Lucy Chapero Basdeo Chatarpal Erwin Chizever Dominic Ciesco Sheila Clarke Charles Clifford Raymond & Evelyn Coelbert Harris Cohen Morris Cohen Angela Maria Colanardi Ellen Cole Kevin Conboy John Condia Beatrice L. Cooperman John W. Corrothers Dominick Cresco Nana Helen Cronin Anita Cutter Nicholas Daflos Elsie D'Alessandro Winifred Davis Joseph Deblinger Marialys Dekom Mary Delsio Inamae DeLuca Nicholas DeMicco
Mary DePasquale Jeanette Dillon Margherita DiPrima Eleanor Diskin Marion E. Dismas Richard A. Donovan Theresa Durante Joe Edwards Dorothy Eign Bunny Ellis Derrick Emilio Vincent Emilio Mrs. Caroline Englman Sandy Enzer Dorn Eschwei Carl Fagioli July Fahrer's Mother John Feeney Shirley & Jack Feldman Josephine Ferrara Marie G. First Charles Fischer Marton Fluhr John R. Follini Melvin Forman Blanche Fox Renee Frankel Rose Friscia Julio Gambuto Raymond Garcia George Gardellis Estelle Gass Elizabeth D. Geib Michael S. Gelber Rocco Nicholas Gentilella Luise Gilchrist Sherwin Glabman's Brother Corinne Glover Elizabeth C. Glover Bruce Goldberg Sylvia Goldfinger Florence Goldman Mollie Goldstein-Valdes Sara Gonzalez Nelson J. Greenberg Mildred Guarneri Dianne & Wayne Guay Mr. Morris Haar Mr. Hall Jerry Hauck's Mother Ms. Nettie Herman Dot Herrmann Pat Hindle Bernard Hochberg Marjorie Hodges Nancy Hormiotis Anita Hymson Mary Iacono Michael Ignatowitz Mary Ingrisano Julia Janson Helen Johnson Richard Johnston Marjorie Jones Hodges Jack Judge
Alice Kaiser Walter Kamins Elsie Kanner Neil Kavakos Naomi Kavee Harold J. Keating James T. Kenny Berta Kessler Anna Margie Keteltas Edward J. Kiefel Dorothy Kiernan Ruth Kleinman Josephine Kochersberger Catherine Kofler Morton Kolker Louise Laboranti Leonard B. Lamb Al Lazarow Laura Leist Maurice Lelah Helen F. Liesegang Harriet Linderman Joseph Loreto Irma Lubin Marion Luckman Charles Lynch Nicholas Magalios Sigridur Malanga James P. Maloney Adam Mandelblatt Joseph Mann Lenore Marcus Edward McWalters Ann Mead Richard A. Meinert John & Loretta Messner Helen F. Minder Isabelle Mohlenbrok Vinny & Maria Montalbano Burton Morgan Marie Moscatelli Joseph P. Murphy Herman Needleman Jean M. Negri Pat Nigro Ben Novino Sadie Ognibene Ruth O'Hara-Bordt Natalie Ologewski Irene Olsen Natalie Olszewski
Alice M. O'Toole Eileen O'Toole Thelma Packer Anthony Palmese Gerasimos (Jerry) Panos Ben Paykin Alice Peltz Cecelia Petters Socrates Pournos Frank Presti Marc Radmin Rose Rainford Frances Rallo Peter J. Ranaldo Antonia Randazzo Mrs. Helen Raskin Mary Lou Rath Marie Rescigno Muriel & Sidney Resnick Nicxholas Riback Nicholas Ricco Aura Richman Gemma Roggenburg's Mother Molly Rose Jack & Eleanor Rosenbaum Debora Rosenberg Barbara Rosencrans Julius Rothstein Norman Rovensky Winifred H. Ruggiero Winifred T. Rullo Marie Russo Grace Saladino Al Sansolo Pearl Sarfaty Mark Schachter Barbara Scherzer Henry Schettini Vera Schmidt Arnold Schwartz Henry J. Seligman Rosalie L. Sharp Barbara & Stewart Shaw's Mother Harold Shea William Sheehan Evelyn Siebel Hilda Siegel Abraham Siev Phyllis Sinatra
Helen Singer Sally Slovin Norman Slovney James S. Smith William Smith William & Francis Spangle Agnes Spirio Kenneth Stonheimer Pearl Strecker Margaret Sudano Rocco Supino Marion Sussman's Mother Anna Sweeney Paul Taylor Rose Tedesco Rose Tepperman Vincent Tintella Parents of Suzanne Torjussen Hannah Tutnowsky Laurence VanWallendael Catherine Vole Florence Volpe Natalie Vonderhorst Wallace Wall John T. Wallace George Walsh Joseph Warren Samuel Weinstein Fred Weismantel Larry Weiss Sonny Weissberger Nellie J. Wenker Leo P. Wetter Lillian Whelan Wendolin Wilhelm Clara Winston Rocco Zagari Connie Zagaria Leo Samuel Zakarin Bernice Zipper Eleanor Zuber Judith Zuckerman
Honorariums In Honor Of:
Beatrice DeGuili Vincent DeSanti Diane J. Fleischer Elizabeth E. Glover Lori Goodcuff Leonard Green Priscilla Halliday's Sister Anne & Walter Hanks Essie Hirsch Jean Johnson Marlene Joseph Audrey Kamen-Teisch Madeline Keys Mavis Lawrence Marie Lombardi Kalliope Mamais Louise Marino Carmen Moffett Frances Motisi Marianne Palermo Gevevieve M. Patterson, S.U. Lucy P. Presti Alana Rosenstein Suzanne Rothfeld Paula Rothstein Faye Scazzoro Levy-Lakeside School Joel Siev's Birthday Muriel Streim Barbara Vogel Janet Walsh Gladys Wiehe Pat Wong Claire, Ron & Family, Happy Chanukah Eileen & Jordy, Happy Chanukah Joel & Toba, Happy Chanukah Joyce & Mike & Family, Happy Chanukah Suffolk County Dept. of Social Services, Riverhead Suffolk County Dept. of Social Services, Smithtown
Alice Antreassian Dr. Raymond Basri Olga Buitrago Jack & Leslie Burke
To make a donation in memory or in honor of someone, or to celebrate a special occasion, please send your contribution to: LIAF â€˘ 5 Channel Drive, Port Washington, NY 11050 or visit www.liaf.org and click the "How Can I Help?" link. A personalized tribute card will be sent to the individual being honored or to the family of the person being memorialized. See coupon on opposite page.
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Please make checks payable to: Long Island Alzheimer’s Foundation, Inc. 5 Channel Drive • Port Washington, NY 11050
Contributions to LIAF are tax-deductible to the full extent of the law. A copy of our most recent financial statement can be obtained from the NYS Office of the Attorney General, Charities Bureau, 120 Broadway, New York, NY 10271.
LIAF Product Order Form 5 Channel Drive, Port Washington, NY 11050
Newly Updated Edition Alzheimer's Directory of Services for Long Island A Comprehensive, one-of-a-kind guide to resources and services available in Nassau, Suffolk, Brooklyn and Queens to individuals and families dealing with Alzheimer's disease and related dementias.
About Alzheimer’s Disease
Caring For Someone With Alzheimer’s Disease
About Choosing A Nursing Home
About Entering A Nursing Home
About Paying for Nursing Home Care
Advance Medical Directives
About Do-Not-Resuscitate Orders
Alzheimer's Directory of Services for Long Island Directory Print
Front Row Seat: Sing Along with Barbara DVD Volume 1 Oldies
DVD Volume 2 Songs of the Holiday Season
DVD Volume 3 More Oldies
Item “Caring Poster by Miriam Cassel” LIAF Cookbook Living With Alzheimer’s Video Series The Light of the Heart Meditations for Self-Healing CD by Judy Talit Guidelines to the Caregivers Audiotape
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A Walk Down Memory Lane CD The 36-Hour Day When Meme Came to Live at My House Information Booklets - Total
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CALENDAR Upcoming Events... ■ May 8, 2007 Korean “Coping & Caring” Conference Korean Presbyterian Church of Queens ■ May, 2007 Mandarin “Coping & Caring” Conference Flushing, NY ■ June 18, 2007 14th Annual Golf Classic Sands Point Golf Club Port Washington, NY ■ June 30, 2007 Regatta to Remember Manhasset Bay Yacht Club Port Washington, NY ■ August 19, 2007 New York Liberty Game To benefit LIAF Madison Square Garden ■ September, 2007 Suffolk “Coping & Caring” Workshop Hauppauge Corporate Center Hauppauge, NY
LIAF Products and Services ■ A Telephone Hot-Line open Monday through Friday, 9 AM to 5 PM. ■ A Resource and Referral Center, the largest of its kind on Long Island, has the latest information about Alzheimer’s disease, including fact sheets, pamphlets, books, magazines, newsletters, article reprints, videos, audiotapes and lists of support groups, nursing homes, day care programs, and related community organizations. ■ Staff Social Workers assist families with much-needed information, counseling, support, referrals and linkages to community-based programs. ■ Early Stage Program that includes weekly support groups plus Al’z Club, a weekly intellectual stimulation and socialization program. ■ The Memory Lane Club, a social model adult day services program, meets five days a week and provides Alzheimer’s clients with stimulating recreational and social activities and much-needed respite for their caregivers. ■ LIAFLine, a Free Informative Newsletter, with a distribution of close to 30,000. Includes articles about research, caregiving, medical developments and other important topics. ■ Support groups for caregivers. ■ Alzheimer’s Companions, an In-Home Respite Program offering companionship and cognitive stimulation to Alzheimer’s patients while caregivers take time off. ■ Let's Do Lunch for Early Onset Clients, in partnership with Sid Jacobson Jewish Community Center
■ A Caregiver’s Friend, a telephone “buddy” program pairing trained volunteers with caregivers to offer reassurance, support and education. ■ Living With Alzheimer’s, an awardwinning trio of educational video programs, provides caregivers and health professionals with a thorough and supportive look at coping with Alzheimer’s disease. ■ Annual “Coping and Caring” Conferences and Free Workshops provide caregivers with timely information that can help the Alzheimer’s patient receive the proper medical treatment and help the caregiver cope with the stress of caregiving. ■ In-Service Training for medical, health, nursing home and home care professionals. ■ Alzheimer’s Disease Directory of Services for Brooklyn, Queens, Nassau and Suffolk, a comprehensive publication that assists caregivers with locating services, support groups, community services, nursing homes and other related organizations. ■ Guidelines to the Caregivers, an audiotape with many excellent caregiver tips. ■ The Happy Days Club a socially and physically engaging program aimed towards individuals in the moderate stages of Alzheimer’s disease. ■ A Speakers’ Bureau provides community groups with knowledgeable speakers. ■ Periodic International Research Symposia that assemble the world’s foremost Alzheimer’s researchers to collaborate on new treatments.
Newsletter - Healthcare