A year in the life
Learning Disability Wales annual review April 2016 to March 2017
‘The Silent Toy Soldier’ - Hijinx Odyssey Photo by Paul Stewart-Davies
A message from trustees
Our mission and goals
Engage to Change
Working Together With Parents
LDAG / Easy Read Health Wales
Easy Read Wales
Our trustees, members and staff
How we spent our money
Keep in touch
“We were delighted to receive 5 year funding from Big Lottery Fund and Welsh Government for Engage to Change, our partnership employment project” A message from trustees
This year was a successful, exciting and busy year for Learning Disability Wales. As always, our staff have been working very hard and with great professionalism and skill and the trustees are extremely grateful to them. As ever, our commitment is to work in partnership with: ▪▪ people with a learning disability and their families ▪▪ our funders, such as Welsh Government and Big Lottery ▪▪ All Wales People First, All Wales Forum of Parents & Carers and Mencap Cymru ▪▪ other disability networks in Wales, England, Scotland and Europe ▪▪ local authorities, health boards, colleges and service providers, and ▪▪ anyone who shares our values.
We were delighted to receive 5 year funding from Big Lottery Fund and Welsh Government for Engage to Change, our partnership employment project that started in June 2016. There has already been an unprecedented demand for the service. We were also successful in obtaining funding for Love Life, a European project working with six partners across Europe to develop a training programme on relationships and sexuality. The training programme will be led by trainers with a learning disability. The Working Together with Parents Network partnership project has been extended and will continue to improve support for parents with a learning disability in Wales, Scotland and England. (Continued on page 4)
“Our commitment is as strong as ever to support people with a learning disability and their families to lead fulfilling lives” The year ahead is one of change. Jim Crowe resigned as the Director of Learning Disability Wales after 30 years. The trustees thank him for his contribution. We are actively planning for his successor. Change can be unsettling but it is also an opportunity to review and refresh our priorities and purpose. Our commitment is as strong as ever to support people with a learning disability and their families to lead fulfilling lives, and to create a Wales that values and includes every child, young person and adult with a learning disability. Our main objectives continue to be:
▪▪ contributing to the success of the Social Services and Well-being (Wales) Act and The Well-being of Future Generations (Wales) Act ▪▪ steering and helping to deliver the Engage to Change employment project ▪▪ developing our Easy Read Wales service ▪▪ ensuring the success of our other projects. One of our major partners described us as ‘the combined voice of learning disability in Wales’. This is how we will go forward.
▪▪ making sure we deliver on our Valued Lives project for Welsh Government
Trustees of Learning Disability Wales. See page 22 for a full list of our trustees
Our mission is to: Create a Wales that values and includes every child, young person and adult with a learning disability.
Our goals are to: ▪▪ Strengthen the voice, rights and status of children, young people and adults with a learning disability. ▪▪ Enhance parents and family carers’ ability to make a positive contribution. ▪▪ Promote person centred services. This year, as well as continuing to work on our existing projects, we were excited to start four new projects: Valued Lives, Engage to Change, Working Together With Parents, and Love Life. Sammy Jo and Thomas, Workfit, Down’s Syndrome Association
April 2016 - 2019
We were excited to start our Welsh Government funded project. Our work is entwined with the vision of the Social Services and Well-being (Wales) Act to promote the well-being, rights, protection and interests of people with a learning disability from birth to old age. We hope to make a positive difference through our four work areas:
▪▪ Representing and challenging
▪▪ Training and events
â&#x20AC;&#x153;Communication leads to community, that is, to understanding, intimacy and mutual valuingâ&#x20AC;? - Rollo May Valued Lives: Informing We provide an accessible, informative, and up-to-date information service on a wide range of subjects and issues.
channels are varied, including print, website, Facebook, Twitter and email bulletins.
People accessed the latest news, debate, consultations, good practice, events, research and much more.
We also provide a service to organisations to use our networks to spread the word about their work.
We make sure our audience can access information that best suits them so our
Our year in numbers 3 Llais magazines, 21 articles 3 e-Llais Update news digests / 1 In the Spotlight e-bulletin, highlighting our recent work 1,677 Facebook likes - an increase of over 500 4,120 Twitter followers - an increase of over 700 27,000 users, 95,000 page views + 48 news stories on ldw.org.uk
â&#x20AC;&#x153;A skilled and knowledgeable workforce is vital in understanding and supporting people with a learning disabilityâ&#x20AC;? Valued Lives: Training and events
Ask your question Once again we teamed up with Dimensions Cymru to run a successful Ask your Question event in Barry. This inclusive event took place just before the general election and gave people with a learning disability and autism the opportunity to ask an expert panel questions about issues that are important to them.
Co-production events We teamed up with the new organisation Co-production Wales to deliver three regional events around Wales. During interactive days of discussion and practical exercises, 88 people explored what co-production is and how people can use it in their lives, communities or within a service they are connected to.
‘I belong’ two day annual conference Everyone should feel like they belong. With this in mind, we explored this at our two day conference. A sell out conference with 290 delegates, exhibitors and sponsors joining us over the two days. Through accessible and interactive presentations, workshops and drama we explored how children, young people and adults are included in their communities, what they can give to their communities and how they benefit from inclusion.
Our Rights Our Voice Our Rights Our Voice is developing new training resources and skills of people with a learning disability to raise awareness of people’s rights under United Nations Convention on the Rights of Disabled People. We are working in partnership with All Wales People First. We commissioned an organisation to develop a training course. We held two three-day Train the Trainer courses where we trained 40 people with a learning disability and their support so they will be ready to deliver training courses to their peers over the next two years.
What you told us.... “Friendly delivery, relaxed. Enjoyed the whole day.” - Mental Health Awareness and Support training “Excellent, very informative. Has made me think much more about the person centred approaches and the positive impact this can make on individuals.” - Person Centred Thinking training “Very contemporary and fun. LDW are moving with the times!” - ‘I belong’ annual conference “Very well organised and great to see inclusion of abilities involved in the conference.” - ‘I belong’ annual conference
Training courses We ran a programme of 40 courses for 455 delegates across Wales to help organisations and individuals broaden their experience and understanding of learning disabilities. Training was on a variety of subjects including easy read information, communication, dementia, personal relationships and sexuality, autism, positive ways of changing behaviour and many more. We also developed 20 tailor made courses for organisations and projects.
Inclusion and belonging in your community
Learning Disability Wales Annual Conference 2016
Tuesday and Wednesday 29 - 30 November 2016 Nantgarw, South Wales www.ldw.org.uk
“We work to ensure that the voice of people with a learning disability is heard and responded to” Valued Lives: Challenging and representing
Access to services We continued to engage with the impact of welfare reform and general eligibility for services for people with a learning disability. We: ▪▪ took over as secretariat for the Cross Party Group on Disability at the National Assembly. The first meeting discussed the issues and concerns around Personal Independence Payment (PIP). ▪▪ ensured issues and concerns about PIP were aired in several meetings of both the Department of Work and Pensions Welsh third sector group and Capita third sector group (PIP contractor). ▪▪ published regular news and information, including gathering stories from people with a learning disability. ▪▪ held two meetings of our Access to Services sub group where trustees and staff planned information and lobbying work around this agenda.
Supported Living We worked with Cymorth Cymru and Care and Social Services Inspectorate for Wales on looking at ways to improve the way supported living is commissioned. We participated in discussions around meeting costs of the sleep-in judgements and the introduction of the National Living Wage.
Additional Learning Needs reform We continued to work to ensure that the Additional Learning Needs Bill is fit to support children and young people through education into adult life. We did this through participating in the Third Sector Additional Needs Alliance and also met with the Deputy Minister to promote better childcare, apprenticeships, internships and work based learning for people with a learning disability.
Other activities We participated in Welsh Government groups on topics to represent the rights of people with a learning disability including: ▪▪ mental capacity ▪▪ Transforming Care for people with a learning disability ▪▪ creating guidance for the Registration and Inspection Act ▪▪ integration of health and social services ▪▪ complex care ▪▪ continuing health care ▪▪ inspection of services ▪▪ services for older people. Other groups we participated in included promoting personalised technology for people with a learning disability, end of life care, and family and carers’ rights.
â&#x20AC;&#x153;Our work promotes new or better service models for people with a learning disabilityâ&#x20AC;? Valued Lives: Innovating
Gig Buddies Development work took place for a project that will help people with a learning disability access concerts and events with a volunteer buddy. We researched experiences of people with a learning disability attending gigs and nightclubs in Wales, and the barriers that prevent them from going out in the evening. We identified funding sources, prepared budgets, networked with the arts sector in Wales, and obtained a licence from Stay Up Late to enable us to become a partner in delivering Gig Buddies in Wales.
Transforming Care We worked with Welsh Local Government Association, Welsh Government Learning Disability Advisory Group and National Commissioning Board (NCB) on the development of new integrated commissioning guidance for services for people with a learning disability.
“The project received mainstream media coverage, notably on the BBC One documentary ‘Richard & Jaco: Life With Autism’”
Engage to Change
June 2016 - 2021
We are delighted to be managing the innovative Engage to Change employment project that started in June 2016. Funded by the Big Lottery, in conjunction with Welsh Government, the five year project will support over 1,000 young people with a learning disability and/or autism to develop their employment skills through paid work placements lasting between six and 12 months. We will be making this possible by working with 800 employers across Wales.
We are leading a consortium of organisations, including supported employment agencies ELITE (in South Wales) and Agoriad (in North Wales), All Wales People First, and research and evaluation partner Cardiff University. We are also working in collaboration with the international supported internship programme Project SEARCH. The project has already proven extraordinarily popular, receiving 287 Expressions of Interest in the first year. Of these, 135 were converted to formal referrals. During this period we engaged with 166 employers. It is our responsibility to manage the overall delivery of the project, report to the Big Lottery Fund, and to lead the communications activity. We developed a new website for Engage to Change, set up social media channels, and produced several video stories that document the journeys of individuals on the project. Over the last year the project has received mainstream media coverage, notably on the BBC One documentary ‘Richard & Jaco: Life With Autism’. We also achieved great coverage for Engage to Change through BBC Radio Wales, BBC Radio Cymru, BBC News Online and Wales Online.
Involving people with a learning disability and/or autism and their families is at the heart of our mission for Engage to Change. We have held several consultations giving young people with a learning disability and/or autism the opportunity to provide feedback on subjects ranging from the research and evaluation process, to our use of social media and the design of our website. www.engagetochange.org.uk engagetochangewales
“Improving support for parents with a learning disability through joint working with parents and professionals”
Working Together with Parents
August 2016 - 2019
The Working Together with Parents Network is a three year project funded by the Esmee Fairbairn Foundation. Along with our project partners in England and Scotland, we aim to improve support for parents with a learning disability. We provided opportunities for parents and professionals to get together to discuss ways to improve support. We ran network meetings in North and South Wales as well as a strategy group to look at ways to influence policy and practice both locally and nationally. We met with Welsh Government representatives to discuss the need for research and guidance on supporting parents with a learning disability. Our Policy and Network Co-ordinator made sure we had representation on the Cabinet Secretary for Education’s Healthy Relationships Expert Panel.
“Love is you, You and me, Love is knowing, We can be” - John Lennon, ‘Love’
September 2016 - 2019
We are working with six partners in Europe to develop a training programme on relationships and sexuality led by trainers with a learning disability. The project is funded by Erasmus+ and aims to enable people with a learning disability to have conversations with parents/carers and staff about their rights and desires to personal and sexual relationships. The first meeting with the six partners was held in Cardiff to discuss implementing the project. The second meeting of the partners was held in Salzburg in February. Research on current provision and knowledge has been collated and will inform the training produced by the project.
Learning Disability Advisory Group
Until August 2016
Until August 2016 we hosted the LDAG Information Officer, Samantha Williams. The group continues to advise the Minister for Social Services and Public Health on learning disability issues. We attended meetings to discuss various issues including sleep-in payments, Access to Justice and the Intermediate Care Fund. We also took part in subgroups looking at joint commissioning, data collection and transforming care for people with people with challenging behaviour. We also represented the needs of people with a learning disability as part of the National Centre for Mental Health Stakeholder Liaison Group, and continued to support the work of two Communities of Practice looking at Challenging Behaviour, and Profound and Multiple Learning Disabilities.
Easy Read Health Wales
Until August 2016
We continued to source and upload easy read documents on health and well-being for people with a learning disability, and promote the importance of Easy Read Health Wales. We met with Welsh Government to advocate for the future of the website and provided advice on how it could be successfully transferred to another organisation. It was agreed that Easy Read Health Wales will transfer to the NHS Direct Wales website from summer 2017.
“People with a learning disability have a right to information they can understand so can make informed choices and have a say”
Easy Read Wales
Self-funded easy read service
Our easy read service had its busiest year so far. We produced over 50 easy read documents for organisations throughout Wales, the UK and Europe, enabling people with a learning disability to access information they can understand. Organisations we have worked with included Cardiff Council, Disability Sport Wales, the Electoral Commission, Flintshire council, National Assembly for Wales, The Wallich, Welsh Government and Wrexham County Borough Council. We also held consultation sessions with Cardiff People First for Public Health Wales on the accessibility of their health screening information. Find out how we can make your work accessible at www.easyreadwales.org.uk.
Making Flintshire a fairer place to live and work
Working for equality in Wales www.gov.wales
Children and young people with additional learning needs
Being fair in our work What we did to support equality in Wales from April 2015 – March 2016
Our plan for April 2016 to March 2020
This is an easy read version of Welsh Government’s ‘Annual Report on Equality 2015 – 2016’ and ‘Welsh Ministers’ Interim Report on Equality 2016’. February 2017
Plaid Cymru Manifesto 2016
Updated Autism Action Plan for Wales
Transport for Wales
Code of Practice for Social Care Workers
Making train services better Please tell us what you think by 23 May 2017
Changing the name of the National Assembly for Wales Information so that you can tell us what you think
This is an Easy Read version of ‘Consultation on changing the name of the National Assembly for Wales’
Easy read version of Transport for Wales - Design of Wales This is an easy read version of the ‘Refreshed Autistic Spectrum Disorder Strategic Action Plan and Delivery Plan’
▪ what we believe in ▪ what we will do for Wales if you vote for us
and Borders rail service including Metro February 2017
Elected: November 2016
Full Member reps Community of Interest
Steve Cox (Treasurer)
Cardiff People First
1 vacant seat Parents & Carers
1 vacant seat Childrenâ&#x20AC;&#x2122;s Providers
Independent / Citizen Advocacy
Your Voice Advocacy
Family Support Providers
Phillip Harding (resigned March 2017)
Cardiff and Vale Parents Federation
Derek Adams (resigned March 2017)
Open Seats Interested individuals
Phil Madden (Chair), Steve Barnard, Mike Bosley, Caroline Byrt, Dilys Price
Assistant Finance Officer
Engage to Change (From 25/10/16)
Engage to Change (From 08/09/16)
Information Officer & Accessible Information Officer
Accessible Information Officer
Engage to Change
Information Services Manager
Our staff (April 2016 - March 2017)
Information Officer LDAG* / WTWP*
Jennie Brereton Sam Williams
Young Person & Carers Manager
Business Development & Finance Manager
Together With Parents * Working Network (WTWP) from 01/08/16
(includes Easy Read Health Wales website)
Events & Sponsorship Co-ordinator
Harriett Johnson Inacia Rodrigues
Training & Events Manager
Disability Advisory * Learning Group (LDAG) until 30/09/16
Cheryl White Sam Jenkins
HR & Governance Manager
How we spent our money Money we received this year Welsh Government Core Grant
UK Projects European Projects
£1,674,960 (75.2%) £110,940 (5.0%)
Training & Events
Consultancy, networks and hosted services
Membership and publications
Money we spent this year
End of year result: + £75,112 The surplus is money received in advance and will be spent in the next financial year.
Staff and travel costs
Grants to UK project partners Grants to European project partners Courses and conferences
Looking after our building
Running the office
Llais and Llais Update
£96,672 (4.5%) £50,767 (2.3%)
Keep in touch Learning Disability Wales 41 Lambourne Crescent Cardiff Business Park Llanishen Cardiff CF14 5GG Phone: 029 2068 1160
Fax: 029 2075 2149
Email: firstname.lastname@example.org Website: www.ldw.org.uk
Find all our annual reports on our website at www.ldw.org.uk Company limited by guarantee: 02326324 Registered Charity: 1062858 VAT Registered Number: 762 4559 11 Photos on pages 1, 2, 10, 12, 13, 14, 15, 20, 26-27 by Paul Stewart-Davies, courtesy of Hijinx Theatre www.hijinx.org.uk
Creating a Wales that values and includes every child, young person and adult with a learning disability
Hijinx Odyssey performance of â&#x20AC;&#x153;Out At Seaâ&#x20AC;? Photo by Paul Stewart-Davies
Creu Cymru sy’n gwerthfawrogi a chynnwys pob plentyn ac oedolyn gydag anabledd dysgu
Perfformiad Hijinx o “Out At Sea” Llun gan Paul Stewart-Davies