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Joe Powell joegpowell@live.co.uk


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Misunderstood Childhood/ O.C.D Excessive and complex reassurance needs Labeled a naughty/ Silly Child P.T.S.D – Non Verbal (11 Years) Anxiety and Depression Diagnosed Asperger Syndrome 1996 Fight for a care service joegpowell@live.co.uk


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Service little experience of Autism especially Asperger Syndrome Mental Health vs Learning Disabilities Challenging Service Users – Incidents Challenging Service Users – Draining Resources Incident – Reassurance (Breakdown) Kill the Monster (another breakdown) A new service (Social Services Not Happy) More and More Medication joegpowell@live.co.uk


Medication Fluoxetine (Prozac) • Venlafaxine • Trazodone Hydrochloride • Zopiclone • Thiorizadine • Chlorpromazine • Risperidone • Haloperidol • Diazepam •


When people are described as complex it can mean “I haven't got a f.....g clue” John Clements


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Our most ‘able’ Service User 2 Gears Gossip/ He’s not pulling his weight Ridiculous Levels Medication - Reduced Massive progress (including being very sociable) Pet ‘Autistic’ – Conference Speaking Moving House (Funding/ Ridiculous reasons) Day Centre (Bullying) Plateau (Couldn’t move on – Stagnating) Day Centres – Nobody ever leaves joegpowell@live.co.uk


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A Dead Pig In a Plastic Sack Advocacy Action Wales Social Worker Life Through Friends What I didn’t want/ What I did want Sectioned In Three Months Change of Mind/ Advocate Sneering at My Contract joegpowell@live.co.uk


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Managers out of touch Assumption staff are in the right Culture – Bullying witnessed but not understood Staff swore me to secrecy – fear for their jobs Could only give a part of the story – in case allies compromised Lay Accreditation services – work same way as care service Everything put down to your condition – my conundrum joegpowell@live.co.uk


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Learned about the ‘true’ nature of life not the way Serviceland told me it would be – Trueman Show. Dad (last two years – most dramatic) Wouldn’t get a diagnosis now (I disagree) BA Honours Degree (English & Creative Writing) Public Speaking/ Various Organisations National Director (All Wales People First) Complete Autonomy (I pay my own way in the world) Joe’s Conclusion (Change In Culture) joegpowell@live.co.uk



Joe Powell, Director of AWPF on his transition