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2011

ANNUAL REPORT


Leadership Jeffrey Keith • President, CEO, and Co-Founder Bob Mazzone • Chief Operating Officer

Board of Directors Jeffrey Keith

George Richards

Jonathan Slavin

Evan Vosburgh, MD

John Ragland • Co-Founder

Daniel Rose, MD

Michael J. Smith

Matthew Vossler

Program Staff Tamara Deyle • Program Director, Center for Survivorship Julia Pemberton • Director, Communications & Public Affairs Sharyn Taymor • Director, Survivorship Network & Outreach

Honorary Board of Advisors Jonathan Bass • Managing Director, Mizuho Bank Mark Brostowski • Partner at Regiment Capital Winston Holt • Partner at Maverick Capital John G. Macfarlane III • Chairman, Zafferano Capital LP James E. Walker III • Managing Partner at Fir Tree Partners Michael Wamp • Managing Partner at Lake Water Capital David “Tiger” Williams • Founder and Managing member of Williams Trading

Medical Advisory Board Keith Bellizzi, PhD, MPH • University of Connecticut D. Barry Boyd, MD • Greenwich Hospital Mitch Golant, PhD • Cancer Support Community Melinda Irwin, PhD, MPH • Yale School of Medicine Nina Kadan-Lottick, MD • HEROS Clinic, Yale University Susan Mayne, PhD, FACE • Yale School of Public Health Mary McCabe, RN, MA • Memorial Sloan-Kettering Cancer Center Kenneth Miller, MD • Sinai Hospital Carrie Stricker, PhD, RN, AOCN • Abramson Cancer Center, UPENN Doug Ulman • Livestrong Foundation Evan Vosburgh, MD • Raymond and Beverly Sackler Foundation

250 Pequot Avenue • Southport, CT 06890 • 203-292-8722 • www.ctchallenge.org


OUR MISSION The CT Challenge empowers cancer survivors to live healthier, happier, longer lives by creating and funding programs, offering credible resources and building a community of support.

OUR IMPACT This year, with your support, we were able to help more cancer survivors than ever before. 21,500 cancer survivors were impacted directly by CT Challenge programs. 28,460 visitors to CTChallenge.org sought information and resources. 38,483 cancer survivors were helped by our hospital partners in the CT Challenge Survivorship Network.


CONTENTS

Kate, Breast Cancer Kate, breastand cancer Survivor, family survivor and family

3 Letter from the President

11 Funding our Programs

4 Programs

11 Bike Ride

4 Center for Survivorship

12 Stand Up Paddle

7 CTChallenge.org

13 Spinathon

8 Survivorship Network

13 Band Together

9 Survivorship Summit

14 Making A Difference: Survivor Stories

10 Grants

Cover photography by Carolyn Taylor

16 Financial Summary


LETTER FROM THE PRESIDENT Dear Friends, This past year was marked by tremendous growth as the CT Challenge (CTC) has become a much-needed resource for cancer survivors as they come to terms with and learn to manage their healthcare issues. The stories of thousands of cancer survivors that we come in touch with through our programs inspire us to continue to build and grow the CT Challenge. The CTC’s mission is to empower cancer survivors to live happier, healthier and longer lives and this is evident in every page of our annual report. We have sought to highlight the numerous ways in which your generous support has allowed the CTC to impact the field of survivorship and assist tens of thousands of cancer survivors. During the past year, the CTC was able to continue to fund and support our hospital network partners and cancer support organizations. We expanded our CTC sponsored programs including the new “Center For Survivorship” and our annual “Survivorship Summit”. The Center operated satellite programs at various locations including our highly successful inner city support group project. Our commitment to providing services to people with the disease remains strong and in 2011 we were able to expand our cancer survivor education programs and develop new resources for survivors, their loved ones and caregivers. Every day, we hear stories of amazing courage and determination demonstrated by the many cancer survivors our programs we fund. We want to highlight

Jeff Keith with his daughter Madison, at the 2011 CT Challenge Bike Ride

that our growing impact is possible only through the dedication of our volunteers, donors, and corporate and community partners. Thank you for your ongoing support of our mission. Best,

Jeffrey Keith President & CEO

The stories of thousands of cancer survivors that we come in touch with through our programs inspire us to continue to build and grow the CT Challenge.”

2011 Annual Report

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SURVIVORSHIP PROGRAMS

CENTER FOR SURVIVORSHIP

In 2010 the CT Challenge embarked upon an ambitious plan to create the CT Challenge Center for Survivorship. In 2011 we began construction. The Center for Survivorship will open in the fall of 2012. It will be the first of its kind in the country, a standalone survivorship program offering fitness, nutrition, psychosocial support and educational programming to cancer survivors and caregivers. The cornerstone of the Center for Survivorship is the 12-week wellness program that will form the basis of a study on healthy behaviors that is designed to advance what is known about the impact of these activities on the health and wellness of cancer survivors, in order to advance the field of survivorship care.

A PROGRAM OF THE CT CHALLENGE

PSYCHOSOCIAL SUPPORT FOR UNDERSERVED WOMEN Weekly Intensive Group In partnership with Norma Pfriem Urban Outreach initiatives, the CT Challenge began a series of support groups in Bridgeport, CT at the United Congregational Church. Two separate support groups were established, comprised of women living with cancer, to provide them with a community of support where they can share their experiences, strengths, fears and hopes. The groups meet once a week for 12-weeks. Meals and childcare are provided.

The Center for Survivorship will provide exactly the support that I and other cancer survivors need to challenge cancer for the rest of our lives.� – Kari, cancer survivor

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Connecticut Challenge


Carolyn Taylor

SURVIVORSHIP PROGRAMS: CENTER FOR SURVIVORSHIP

The Martinez Family

I think the CT Challenge has opened a universe of hope to survivors when we were unclear what our path may be. It can be very dark at times, and the CT Challenge has offered me sunshine for the rest of my life!� – Anne, cancer survivor Monthly Graduate Group Upon completion of the intial 12-week program, the women can transition into a graduate program designed to ease them from the intensive weekly program to meeting once a month. This gives them the opportunity to continue to provide support for one another as they manage their ongoing survivorship issues.

EXERCISE A growing body of research suggests that cancer survivors benefit from certain types of exercise. Benefits include reduction in risk of recurrence, second cancers, fatigue and anxiety. This year we began a regular schedule of free yoga, pilates and mindful meditation classes for cancer survivors and caregivers. With the Center under construction, classes were held at Southport Galleries, across from our new location, and will move to the Center in the Fall of 2012. The 12-Week wellness program will begin in 2012, encompassing exercise, nutrition and psychosocial care.

2011 Annual Report

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SURVIVORSHIP PROGRAMS: CENTER FOR SURVIVORSHIP

(left) Cancer survivor Scott Capozza, a survivor of testicular cancer, shares his experience. Scott is a physical therapist at the CT Challenge Survivorship Clinic at Yale Cancer Center. (below) Cancer survivors from around the world, photographed by Carolyn Taylor.

SURVIVOR EDUCATION & RESOURCES The CT Challenge online video library provides a comprehensive educational resource on a wide range of key survivorship issues. This year, new additions to the library include the topics of: Nutrition Pilates Cancer rehab

Carolyn Taylor

Website & Video Library

end of the BA project Carolyn founded the non-profit organization Global Focus on Cancer to continue her work. Her photojournalism and storytelling captivated audiences in Fairfield and New Canaan and graced the Survivorship Summit in November. We look forward to many collaborations with Carolyn and GFC.

Physical therapy

Speaker Series The CT Challenge Speaker Series hosted three events with notable speakers this year, educating and inspiring cancer survivors and the community at large. Carolyn Taylor: Without Borders Carolyn Taylor is an accomplished photographer. At the height of her career in 2006, she was diagnosed with ovarian and endometrial cancers. Her ordeal inspired her to put her talents to work communicating the experiences of cancer survivors around the world with the idea that “We are all intrinsically linked through our cancer experience.” She won a grant from British Airways (BA) to photograph women around the world. At the

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Connecticut Challenge

Linda T. Gottlieb, MS, CPT, CET Linda Gottlieb is a certified cancer exercise trainer and a regular contributor to the CT Challenge Blog. As a research associate with Dr. Melinda Irwin at the Yale Cancer Center, she is working to determine the impact that exercise has on reducing the risk of cancer recurrence in cancer survivors. Linda spoke to audiences in Fairfield about her most recent book, No If’s, Ands, or Butts, bringing a positive message to survivors. “Don’t let the diagnosis define you,” she encouraged. Linda believes that exercise, as little as ten minutes a day, should be part of a cancer treatment plan. We agree!

Courtesy of iUniverse.com

We have also begun to share personal stories of survivorship as a resource and inspiration for others.


SURVIVORSHIP PROGRAMS

CTCHALLENGE.ORG The CT Challenge provides a comprehensive online resource for survivors and their families at CTChallenge.org, where they can learn about the issues cancer survivors face and find resources that can help.

SITE STATISTICS

17,433 (+53%) Unique Visits

28,460 (+39%) Visits

72,448 (+23%) Page Views

Having built some websites, I’m very impressed with yours, it’s lively, engaging and manages to offer lots of good info and opportunities just on the landing page. I was inspired!” – Karen Syrjala, PhD / Professor and Director, Biobehavioral Sciences Co-Director, Survivorship Program / Fred Hutchinson Cancer Research Center

2011 Annual Report

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SURVIVORSHIP PROGRAMS

SURVIVORSHIP NETWORK

In 2009 the Survivorship Network was formed with a mission to improve the lives of the estimated 171,850 cancer survivors in Connecticut, by making quality survivorship care accessible to all. Just three years later, The CT Challenge Survivorship Network has grown from a handful of programs into a robust network of survivorship programs at over 50% of the leading hospitals and cancer centers in the state.

Members of the Network served the needs of 38,483 cancer survivors in 2011. Network Members Connecticut Challenge Survivorship Clinic at Yale Cancer Center Danbury Hospital’s Praxair Cancer Center HEROS Clinic at Yale University Stamford Hospital’s Bennett Cancer Center REACH For the STARS Clinic at CT Children’s Medical Center Hartford Hospital’s Helen & Harry Gray Cancer Center Bridgeport Hospital’s Norma F. Pfreim Cancer Institute MidState Medical Center: New Beginnings at the Palladino Family Cancer Care Center Middlesex Hospital Cancer Center New Milford Hospital Regional Cancer Center’s PEACE Survivorship Program Whittingham Cancer Center at Norwalk Hospital Eastern Connecticut Cancer Institute at Eastern CT Health Network Harold Leever Regional Cancer Center – Stepping Forward Charlotte Hungerford Hospital and the Center for Cancer Care Day Kimball Healthcare SWIM Integrative Survivorship Center at St. Vincent’s Medical Center

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Connecticut Challenge

Jenn Lewis, above, a survivor of appendicial cancer, got involved with the CTC after taking part in a wellness seminar at Stamford Hospital, sponsored by the CTC. “The camaraderie of being with other cancer survivors is very comforting because makes you realize you are not alone. I realize the CT Challenge had such a huge impact on my recovery.” See more of Jenn’s survivor story on our website.


SURVIVORSHIP PROGRAMS

SURVIVORSHIP SUMMIT

The second Annual CT Challenge Survivorship Summit took place on November 15th at the New Haven Lawn Club. The Summit is an accredited conference for medical professionals, bringing together leaders in survivorship to build better programs for cancer survivors. This year, over 150 members of the survivorship community were in attendance, including nurses, doctors, social workers, nutritionists, physical therapists,

personal trainers and cancer survivors. Representatives from over 90% of the state’s hospitals were in attendance, as were all members of the Survivorship Network. Speakers this year included experts in survivorship from Yale Cancer Center, Memorial Sloan-Kettering Cancer Center, Abramson Cancer Center at the University of Pennsylvania, and Sinai Hospital in Baltimore, MD.

(top, left) CTC President & Co-Founder Jeff Keith makes opening remarks; (top, right) Sharyn Taymor, Dr. Eileen Gillan of the REACH for the STARS Survivorship Program, Jeff Keith and Tamara Deyle of the CT Challenge; (left) Mary McCabe, RN, MA, Director, Survivorship Program at Memorial Sloan-Kettering Cancer Center

2011 Annual Report

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SURVIVORSHIP PROGRAMS

GRANTS

2011 was a groundbreaking year for the CT Challenge in many ways. What began with a single grant to create the first clinic in Connecticut for adult survivors of cancer in 2006, The CT Challenge Survivorship Clinic at Yale Cancer Center, has developed into a grant program that now provides support to unique survivorship programs throughout Connecticut, benefiting thousands of cancer survivors. This years grant recipients are a diverse group, including many of Connecticut’s leading healthcare institutions, an organization providing college scholarships to cancer survivors, and one that provides emergency financial assistance to the families of childhood cancer patients. Each grant awarded will result in a measurable impact on the lives of cancer survivors in our state.

This year, programs directly funded by the Connecticut Challenge impacted the lives of 15,853 cancer survivors.

Mike Smith, Burkitt’s Lymphoma Survivor, Young Survivor Athletes Fund Recipient

Grant Recipients Bennett Cancer Center at Stamford Hospital Carolyn Taylor’s Global Focus on Cancer Center for Survivorship and Integrative Medicine Program at Middlesex Hospital Cancer Center Charlotte Hungerford Hospital and the Center for Cancer Care Connecticut Children’s Medical Center Eastern Connecticut Cancer Institute at ECHN Harold Leever Regional Cancer Center Norma F. Pfriem Cancer Institute at Bridgeport Hospital Palladino Family Cancer Center at MidState Medical Center Rose Bove Larose Hematology Oncology Center at Day Kimball Medical Center The Susan Fund SWIM Integrative Survivorship Center at St. Vincent’s Medical Center The Tommy Fund W  hittingham Cancer Center at Norwalk Hospital Young Survivor Athletes Fund

A CT Challenge grant to the Susan Fund will send 32 cancer survivors to college.

(top) Maura Harrigan gives a seminar on nutrition to students at St. Vincent’s College School of Nursing. A grant is funding a curriculum in survivorship there. (bottom) 2012 scholarship recipients.

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Connecticut Challenge


FUNDING OUR PROGRAMS

7 th ANNUAL CT CHALLENGE BIKE RIDE

July 30, 2011 After 6 years at the Greenfield Hill Congregational Church, this year’s bike ride moved to a new home at the Fairfield County Hunt Club in Westport, CT, a move necessitated by years of growth. We are fortunate to have found this wonderful venue and to be so graciously welcomed by the membership, several of whom formed the Hunt Club Chain Gang team and swapped horse saddles for bike saddles for the day! The bike ride is the engine that fuels our mission and thanks to the overwhelming support of riders, volunteers and donors, it was a record setting year. Cancer survivors throughout New England will benefit from programs funded by the bike ride.

A record $1.5 million raised!

BIKE RIDE FACTS

1,171

116

Riders

Cancer Survivors

113

11,500

Teams

Donors

266

$1,300

Volunteers

Avg. Raised/Rider

Co-Founder Jeff Keith

2011 Annual Report

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FUNDING OUR PROGRAMS

2nd ANNUAL CT CHALLENGE STAND UP PADDLE

$24,740 raised! September 10, 2011 In just its second year, the CT Challenge Stand Up Paddle event has established itself as a fun and successful fundraiser. On a beautiful September morning, 44 stand up paddlers departed from Jacky Durrell Pavilion on Fairfield Beach and navigated a 6.5 mile loop, taking just under 2.5 hours to complete the course.

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Connecticut Challenge


FUNDING OUR PROGRAMS

1st ANNUAL SPIN CT CHALLENGE

December 4, 2011 127 Spinners took part in the 1st Annual Spin CT Challenge event, hosted by EDGE Fitness of Fairfield, and raised $29,000 to benefit the CT Challenge Center for Survivorship.

$29,000 raised!

2nd ANNUAL BAND TOGETHER CONCERT

$13,500 raised!

Ron Kovis

May 12, 2011 Band Together’s second benefit concert for the CT Challenge brought down the house at the Fairfield Theatre Company. We were honored to once again be the beneficiaries of this extraordinarily talented and philanthropic group! Joining Rob Fried, Jerry Vigorito and Band Together were featured performers Christine Ohlman “The Beehive Queen” and Joe Bouchard, founder of the legendary Blue Oyster Cult.

2011 Annual Report

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MAKING A DIFFERENCE

SURVIVOR STORIES Anne Spelman Non-Hodgkin’s Lymphoma Survivor

CT Challenge has opened a universe of hope to survivors when we were unclear what our path may be. It can be very dark at times, and the CT Challenge has offered me sunshine for the rest of my life! No one chooses cancer, cancer chooses you. I was diagnosed with Non-Hodgkin’s Lymphoma 14 years ago. I was given a 50% chance to defeat this wicked disease. I put together the best defense team to win my personal challenge. My son Daniel gave me courage, and hope; Peter my fiancé showered me with love, strength and unending support day and night, and my parents came with me to every treatment offering nourishment, confidence, and optimism. Not once did my team give up on me; through every biopsy, all the chemo treatments and weeks of radiation. Peter, now my husband has endured multiple adversities and survived cancer. He had basal cell carcinoma of the nose. Peter’s strength is like no other person I have met. He managed to defeat cancer with his treatments and lives in a home as a paraplegic because of a catastrophic accident. He is a survivor to the tenth degree! Every day since what seemed like a death sentence my family has filled my cup with endless energy, love and hope. No matter what the adversity we all shared in the same goal of revitalization and sustainability! In 2010 I had the good fortune to be introduced to United Congregational Church in Bridgeport, CT. Rev. Sara opens every service saying- “No matter where you are in life’s journey you are welcome here.” That mantra spoke to my mission and belief in the strength of community and support of those who have faced fear and will understand the challenges we are faced in our lives everyday. The United Congregational Church piloted the Con-

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Connecticut Challenge

necticut Challenge’s first Women’s Cancer Support Group. It was offered to our church community and surrounding urban area in the city of Bridgeport. This grew into a group of 7 core members and 3 facilitators. Our group was made up of a family, friends, and new friends. Through the course of 12 weeks our weekly group went through an evolution; we gave birth to a cancer support group of courageous, fearless, hopeful, powerful women. We support each other tooth and nail; we call each other between groups, we go to events together, we even extended our group beyond the 12 weeks in order to continue support for each other. Each of us has walked the path of treatment with our families and friends. It really hit home for me to know how fortunate I am to be a survivor and continue to survive every day. It will never take away the deep seeded fear of the disease recurring and rearing its ugly head down the road. If and when that time should ever come I have a defense team like no other. The CT Challenge is open to everyone, friends and families, in addition to those who have walked the path as a patient and as a caregiver. When you cross that finish line on July 28th or when you complete your treatment and every day following – the CT Challenge support group is ALWAYS there to help. I want to personally thank the CT Challenge for your unending support and never giving up on any of us. Today the Women’s Cancer Support group continues to meet every week. Our family has grown to 16 women. We are all here for each other every week. We are undefeated in our strength to support and stand by each other no matter what the challenge.


MAKING A DIFFERENCE

SURVIVOR STORIES Lauren Pade Cancer Survivor, Scholorship Recipient Lauren is one of 32 cancer survivors attending college thanks to a CT Challenge grant to the Susan Fund.

You never know how strong you are until being strong is the only choice you have. At the young age of 21 years old, I heard the words from my doctor that everyone prays to avoid – a cancer diagnosis. In that exact moment, time froze as I was overwhelmed with hopelessness and suddenly became so unsure of my future. The next few weeks were a distant blur as plans were rapidly being made for prompt surgery and treatment. With the advancements in medicine, I finally began to wrap my head around the idea that I had the chance for a cure, but more importantly, a sense of hope and the opportunity to look at life in a new way. My family and friends have shown me their unconditional love and devoted support as I went through my ups and downs, and ultimately my celebration of life. Having them by my side every step of the way gave me the courage and determination to persevere and look forward.

nurse. It has also provided me with a group of caring people who are by my side, instilling hope and strength to help me achieve my future goals. I participated in the Connecticut Challenge in the summer of 2011 and was inspired to witness the large gathering of survivors and caregivers united. It was extremely comforting to celebrate survivorship with those around me and know that I am not alone. My experience with cancer, while being a very difficult one, has redirected my life in a positive way. I have an immense appreciation for life, a desire to empower others, the courage to never give up, and the strength to keep me going… “You never know how strong you are until being strong is the only choice you have.”

By overcoming my diagnosis, I found the inspiration to make powerful changes in my life. A year after I finished treatment, I graduated Magna Cum Laude with a Bachelor’s degree in Marketing. However, from my experience in the hospital, I found my passion in the medical field and will be entering my senior year of nursing school in the fall. Being in remission has significantly contributed to the huge amount of effort and dedication I have put into this program. I am thankful to have had influential people in my life throughout my journey to see me grow and support my battle to overcome cancer. The Susan Fund has allowed me the opportunity to pursue my dream of making a difference in peoples’ lives by becoming a

Marnie, Christine & Lauren, scholarship recipients, at the CT Challenge bike ride

2011 Annual Report

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CT CHALLENGE 2011

SELECTED FINANCIAL INFORMATION Total Expenses $1,492,440

88 cents of every dollar spent was allocated to program services and grants.

6%

PROGRAM EXPENSE DETAIL

EXPENSES

Fundraising $85,862

6%

General & Administrative $83,847

Total Program Services & Grants $1,322,731

68%

9%

Programs & Grants $898,535

Program & Policy $122,275

23%

Education & Program Development $301,921

Total Revenue $2,108,079

REVENUE

12%

Donor Restricted Contributions $254,000

2%

8%

In Kind Donations $164,390

Corporate Sponsorships $33,495

4%

Other Revenue $85,766

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88%

Program Services & Grants $1,322,731

Connecticut Challenge

74%

Riders & General Donations $1,570,428


The CT Challenge is committed to making a real difference in the lives of cancer survivors. As part of our commitment, we continue to monitor costs, dedicating as much money as we can to program services. By relying on a team of volunteers and keeping administrative and fundraising expenses low, the CT Challenge invested in grants and program services related to cancer survivorship through public health, education and research. Our marquee program is the Center for Survivorship, which will open its doors in 2012 and be the premiere program for the CT Challenge.

Statement of Financial Position 2010

2011

$ 900,836 17,068 10,861 1,000

$ 1,019,248 30,396 4,774 13,750

929,765

1,068,168

17,986 3,740 –

13,710 5,178 574,091

Total Assets

951,491

1,661,147

Liabilities and Net Assets Accounts Payable and Accrued Expenses Grants Payable Deferred Revenue Other Current Liabilities

16,428 112,500 4,312 1,324

60,316 168,265 – –

134,564

228,581

As of December 31, 2010 and 2011 Assets Cash and Investments Contributions Receivable Prepaid Expenses Security Deposit Total Current Assets Intangible Assets, Net Computer Equipment, Net Construction in Progress

Total Liabilities

Total Net Assets 816,927 1,432,566 Total Liabilities and Net Assets

For the fiscal year ending December 31, 2011 the CT Challenge recognized $2,108,079 in revenues to support cancer survivors, thanks to the dedication of riders, volunteers and staff who helped raise these funds through the marquee charity bike event, and numerous individual donors and special fundraising events. Because of the hard work of all our friends and family, 88 cents of every dollar spent was allocated to program services and grants.

951,491

1,661,147

2010

2011

$ 1,198,503 6,000 172,500 36,000

$ 1,570,428 33,495 254,000 164,390

1,413,003

2,022,313

53,315 2,913 (255)

83,792 1,988 (14)

55,973

85,766

1,468,976

2,108,079

Statement of Activities As of December 31, 2010 and 2011 Public Support and Revenue Contributions Riders and General Donations Corporate Sponsorships Donor Restricted Contributions In-Kind Donations Total Contributions Other Registration Fees Interest Income Loss on Investments Total Other Revenue Total Public Support and Revenue

Expenses Program Services 819,765 1,322,731 Fundraising 56,669 85,862 General & Administrative 75,626 83,847

Muskus & Wilemski, LLC performed the 2010 and 2011 audits for the Connecticut Challenge. Audited financial statements are available on request.

1,492,440

Total Expenses

952,060

Change in Unrestricted Net Assets Unrestricted Net Assets, Beginning of Year Unrestricted Net Assets, End of Year

516,916 615,639 300,011 816,927 816,927 1,432,566

2011 Annual Report

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Connecticut Challenge • 250 Pequot Avenue • Southport, CT 06890 • 203-292-8722

WWW.CTCHALLENGE.ORG

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