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Our Vision A healthier future for children and young people across the world Our Mission To transform child health through knowledge, innovation and expertise

THE ROYAL COLLEGE OF PAEDIATRICS AND CHILD HEALTH IS COMMITTED TO THE SAFE, MEANINGFUL AND ETHICAL PARTICIPATION OF CHILDREN AND YOUNG PEOPLE.

OUR VISION Children and Young People: Influence the training, professional development and assessment of paediatricians. Challenge standards of health care delivered to children and young people. Advocate with paediatricians and other key stakeholders on health matters impacting children and young people in the UK and globally to improve child health quality, policy and provision. (Children and Young People’s Participation Strategy, RCPCH 2009 -2012)

“State Parties recognise the right of the child to the enjoyment of the highest attainable standard of health and to facilities for the treatment of illness and rehabilitation of health. State Parties shall strive to ensure that no child is deprived of his or her right of access to such health care services.” (Article 24, United Nations Convention on the Rights of the Child)


OUR COMMITMENT

Ensure children and young people actively influence the work of the Royal College of Paediatrics and Child Health.

• Ensure paediatricians and wider health professionals uphold the child’s right to the highest standard of healthcare, listen to children and young people, take on board their perspectives and are influenced by their experiences of the health system, policies and society.

• Ensure the Royal College of Paediatrics and Child Health facilitates and promotes the safe, ethical and meaningful participation of children and young people in health policy design, service delivery, quality of healthcare, advocacy and the training of paediatricians.

• We hosted a high-profile policy conference in Wales “To have the highest standards of care means to have an appropriate specialist see us as soon as possible - and also have the necessary time dedicated to us. It is not just about being treated, but also about being given the opportunity for us to be listened to as individuals and have our views heard.” Youth Advisory Panel, Royal

(2011), "My Right to the Highest Standard of Health" an inspiring event, unfolding knowledge, innovation and expertise bringing together Young People, Paediatricians, Children and Young Peoples advocates, all four of the Children's Commissioners for the UK and Ministerial representatives.

• We continue to provide expert advice on children and young people’s participation to various stakeholders including the Council of Europe Child Friendly Healthcare Working Group, the European Medicines Agency (PDCO), General Medical Council, Royal Colleges (UK), NICE, and the UK Government.

College of Paediatrics and Child Health (2011)

• The European Medicines Agency – the Paediatric Committee (PDCO) have incorporated children and young people’s participation within their five year strategy, as a result of our work with them.

SO FAR...

• The permanent establishment of the Children and Young People’s Participation & Advocacy Manager (September 2008)

• The Children and Young People's Participation Strategy 2009-2012 launched by Professor Terence Stephenson, President, RCPCH (2009-2012)

• Our Youth Advisory Panel Members have facilitated and presented at high profile policy events, engaged in child health consultations, supported the development of training & promotional materials, participated in the recruitment process of the RCPCH Chief Executive, informed research proposals and influenced child health policy design.

• We provided expert advice and facilitated the meaningful participation of children and young people in the Department of Health funded project on developing an Urgent & Emergency Care - Patient Reported Experience Measure (PREM) tool for children, young people and their parents/ carers. (RCPCH and the Picker Institute 2011)

The Royal College of Paediatrics and Child Health is the standard bearer of child health within the medical profession, committed to leading the way in paediatric research and training, recognised and respected authority on child health, and champion of the best health outcomes for children and young people. The Royal College of Paediatrics and Child Health has over 13,000 members in the UK and globally.

• Professor Terence Stephenson, President, RCPCH, (2009-2012) addresses the Ministerial delegation on fostering children's participation for child friendly healthcare. (9th Council of Europe Conference of Health Ministers, Lisbon - Portugal, September 2011)

• We celebrated the 20th Anniversary of the United Nations Convention on the Rights of the Child in 2009, co-facilitated by Young People and Paediatricians.

• RCPCH and the Young Peoples Health Special Interest Group (YPHSIG) jointly published: Not Just a Phase, a guide to the participation of children and young people in health services, 2010.

The Royal College of Paediatrics and Child Health received its Royal Charter in 1996 and is responsible for:

• Training and examining paediatricians in the UK • Setting standards of paediatric medical practice • Professional and postgraduate medical education www.rcpch.ac.uk/participation


WHAT NEXT 2012+ …

• RCPCH Youth Advisory Panel launches its 2012-2015 plans

• RCPCH and YPHSIG host an innovative session on 23rd May at our Annual Conference (22-24 May 2012): 'Participation & Accountability’ bringing together young people, paediatricians and other key stakeholders. www.rcpch.ac.uk/participation

• RCPCH publishes training resources informed by young patients, children and people.

• RCPCH & YPHSIG launch a collation of good practice examples documenting children and young people’s participation in healthcare.

• RCPCH and the European Association for Children with Disabilities (EACD) plan for the Children’s Forum to be held at the EACD 2013 Annual Conference and celebration of their 25th Anniversary.

• RCPCH, NHS Confederation and the Office of Public Management publish and promote policy briefings influenced by young people to improve the quality of child healthcare and uphold the child’s right to be heard.

• RCPCH establishes a network of ‘participation focal persons’ across its membership.

RCPCH continues to lead the development of educational and health promotional resources informed by young patients, children and young people including e-learning material: Adolescent Healthcare, Maintaining and Updating Competencies – Child Protection (2010); a set of jointly published guides with YPHSIG focussing on ‘Consent’, ‘Confidentiality’ and ‘Having Your Say’ (2011); Training Manual and DVD: Communicating Effectively with Young Patients (2012); "My Right to the Highest Standard of Health!” - UNCRC resource for Paediatricians (2012)

“We do a great injustice to children and young people when, as a society, we fail to listen to their views, take on board their perspectives and value their contribution in shaping child health services.” Professor Terence Stephenson, President, Royal College of Paediatrics

• RCPCH continues to provide expert advice to key

and Child Health (2009-2012).

stakeholders, including the UK Government Future Forum, to ensure the child’s right to be heard is upheld and ensure the safe, meaningful and ethical participation of children and young people.

Contact Details Bharti Mepani Children and Young People's Participation & Advocacy Manager bharti.mepani@rcpch.ac.uk www.rcpch.ac.uk/participation


RCPCH Participation - Euro postcard