J U LY 2 0 0 6 SEPTEMBER 2009 Bailey-Boushay House is owned and operated by Virginia Mason Medical Center.
homefront Moving Forward with
With ongoing support, patients commit to rebuilding their lives
didn’t know so many [people] had AIDS until I walked in here,” says Angela, who has been an outpatient at Bailey-Boushay House since 2004. Six years ago she was homeless, severely depressed and not being treated for HIV. She felt abandoned by her friends and could imagine no way out of her isolation. She’s learned a lot about HIV since then, about herself and her connection to others here. Like Angela, most BBH patients struggle not only with AIDS but also with other destabilizing life conditions — including mental illness, chemical dependency or homelessness. What has surprised her the most? The life-changing difference it makes to be part of a community “where people share how they feel with the disease.” “I did not know you did not need to go through it by yourself,” she says. Medication management helps patients help themselves
Bailey-Boushay’s doors stay open 365 days a year to make sure patients get the kinds of support they need to successfully take life-saving medication. Taking pills as prescribed is hard for everyone, even doctors. AIDS medication is partide)
Above: Coming to BBH gives Michael, who is currently homeless, a sense of stability.
in this issue Support BBH! Find out how Bailey-Boushay House made it through the 2009–2011 state budget crisis through your help, and learn what else you can do to suppport BBH in the years to come.
I’ve been off [street] drugs for six months. I pick up my AIDS meds every two weeks, and I take them [every day]. My viral load now is undetectable.” Rodney
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cularly demanding. The drugs cause debilitating side effects such as nausea, diarrhea, fatigue and nerve pain. And for AIDS drugs to work, people need to take them on time, every day, at least 95 percent of the time. On average, BBH outpatients take 11 routine medications — for AIDS and other health issues — totaling 20 to 30 pills every day. “AIDS medication can save the lives of people who would have died in earlier days,” says Brian Knowles, Executive Director, Bailey-Boushay House. “But no one here can take all the pills they need every day without help.”
Preparing for more independence Rodney, who first came to Bailey-Boushay House 10 years ago, “took a break” from the outpatient program earlier this year. Without the support services Bailey-Boushay provides — medication management, support groups, counseling and a welcoming community — Rodney’s world shrank, his selfconfidence eroded and his health failed. “I lived like a hermit. My whole life was having nothing to do,” he says. “I couldn’t manage medication on my own. I took my pills only 20 percent of the time, at most.”
Homelessness remains a health-care issue Different outpatients need different levels of support. Now that she has an apartment of her own — where she can safely store her medication, time her meals to fit prescription directions and have ready access to drinking water and a toilet — Angela picks up her medication at BBH once a week. Michael comes in every day to get his. “I wasn’t homeless at first and thought Bailey-Boushay didn’t fit me,” Michael says. But 10 months ago he lost his housing and remembered BBH. He joined the outpatient program, where he can get a day’s supply of pills, get hygiene supplies, do laundry, take a shower and eat two meals a day. Those services are “a big help,” he says, “and make you feel more hopeful.” To his surprise, “socialization is a big benefit to coming to Bailey-Boushay. Before, I was at home, using [street] drugs, and out of touch.” Now, even though homeless, “I feel connected.” “It gives you stability to go in every day, see a nurse and not have to explain yourself to everyone there,” Michael says.
Above: Taking AIDS medication regularly has improved Rodney’s quality of life. Right: Despite serious health issues, David is eager to go back to school.
This place has been a godsend for me. I didn’t have a chance to survive without being here.” David
Rodney got so sick that he ended up in the BBH nursing home. Once again well enough to live independently, he recently returned to the outpatient program. “It was good I had Bailey-Boushay to come back to,” he says now. “I’ve been off [street] drugs for six months,” he says proudly. “I pick up my AIDS meds every two weeks, and I take them [every day]. My viral load” — a measure of how active the virus is — “now is undetectable.” His quality of life has improved along with his health: “I’m back doing things I like to do, like singing in the Men’s Chorus and keeping busy.” Rehabilitation fuels dreams for the future “This place has been a godsend for me,” says David, who has been in inpatient care for more than a year. “I didn’t have a chance to survive without being here.”
He’s living with AIDS, bladder cancer, kidney cancer and the partial paralysis of a leg and arm due to a severe, HIV-related brain disease. Progress has been slow in his long course of physical therapy. “I know there are lots of hurdles,” he says, before he can fulfi ll his dreams to play a guitar again, go back to school and move back into the community. “I’ve already signed up for school at Edmonds Community College to fi nish my AA degree. I can do it online. As long as I can sit at my computer, I can take classes.” “Everything I wanted to do to make my quality of life better, Bailey-Boushay House has done.” The course of AIDS is different for every patient. As medication helps people live longer with HIV/AIDS, the care they need grows more complicated. “Our job,” Knowles says, “is to be here for them whenever, however and for as long as they need us.”
State Budget Includes Funding for BBH
ecause of your belief in Bailey-Boushay House, we will maintain the funding necessary to help the people who need BBH most. Thanks to the efforts of Virginia Mason, our supporters, friends and community members, Bailey-Boushay House funding has been included in the 2009–11 state budget signed in May. “Since we first let people know last winter, so many people worked very hard to make sure our funding was preserved in the state budget,” says Brian Knowles, Executive Director, BaileyBoushay House. “From individuals rallying together to phone their representatives because of a message on Facebook, to people calling us to share their stories, we truly appreciate everyone who played a part helping us survive this difficult time. We’d also like to extend a heartfelt thanks to the legislative partners who played a crucial role in ensuring we’re around for our patients in the future. Without this legislative leadership, we might not be.” State Sen. Ed Murray (D-43) and Rep. Jamie Pedersen (D-43) worked tirelessly to ensure BBH funding remained in the fi nal budget signed by the governor. They were fervent supporters of Bailey-Boushay’s mission as we worked toward the desired outcome, and provided close counsel to Bailey-Boushay and Virginia Mason leaders as we took on this very difficult task during the most challenging budget cycle in state history. In recognition for this work, in July Sen. Murray received the Bailey-Boushay House Citizenship Award. And BBH hosted a
your support, BBH will continue to provide care for people who might otherwise have fallen through the cracks. At the same time, Bailey-Boushay House will face some challenges, as the inpatient program will not receive as much fi nancial support as previous years. “We need the continued help of our friends to help us meet any further shortfalls,” says Knowles. Cuts to other important state-sponsored programs were deep, and our communities will profoundly feel the sting of reduced access to health care. While Bailey-Boushay House is thankful to have achieved our goals this time around, our celebration is tempered by this reality. Thank you again for your support and belief in our mission. Together, we will sustain our mission of abiding hope.
“ From individuals rallying together to phone their representatives because of a message on Facebook, to people calling us to share their stories, we truly appreciate everyone who played a part helping us survive this difficult time.” Brian Knowles, Executive Director, Bailey-Boushay House
thank-you party for Rep. Pedersen shortly after the budget was signed. Bailey-Boushay House truly could not have accomplished this feat if it had not been for their dedication. Continued funding of Bailey-Boushay outpatient programs is great news for patients, staff and the community. Because of
On June 5, Bailey-Boushay House threw a thank-you party for Rep. Jamie Pedersen for all the work he did to secure funding this year. Pictured, left to right: Jeffrey Ward, BBH Board President; Stephen Sprenger, BBH Past Board President; Brian Knowles, Executive Director, Bailey-Boushay House; Gretchen Rosoff, BBH Board Member; Eric Pedersen, BBH Board Member; and Rep. Jamie Pedersen with his son.
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PAID PERMIT NO. 4636 SEATTLE, WA Operated by Virginia Mason Medical Center
2720 East Madison Street Seattle, WA 98112 ADDRESS SERVICE REQUESTED
Moving Forward with Hope
applause For performing in our Living Room concert series: belly dancing and world music from Laurie DeLuca and Lesley Rialto; country blues guitar from Thomas Corlett. Recent gifts from: Estate of Alexandrina Brannan Marsh USA, Inc. Mercer NBBJ Sasco Skanska USA Building, Inc. Teutsch Partners, LLC
save the date Sunday, Jan. 17, 2010 Dine to make a difference at the 18th annual Chefsâ€™ Dinner and Wine Auction to benefit Bailey-Boushay House. Details at ChefsDinner.org
grateful to people who make us happy; they are the charming gardeners who make souls blossom.
Let us be
M A RCE L PROUST
Editor .............................................................. Jenny Rose Ryan Contributors ................................Ellie David, Jenny Rose Ryan Graphic Design.....................................................Dean Driskell Photography................................................ Paul Joseph Brown Homefrontt is published by the Virginia Mason Foundation. For placement of stories or information of community interest, please contact: Bailey-Boushay House, 2720 East Madison Street, Seattle, WA 98112, (206) 322-5300, www.bailey-boushay.org.
Bailey-Boushay House does not discriminate against qualified persons in admissions, services or employment on the basis of age, disability, national origin, sex, sexual orientation or any other basis prohibited by local, state, or federal law. These laws include, but are not necessarily limited to, Section 504 of the Rehabilitation Act of 1973, the Civil Rights Act, the Americans With Disabilities Act, the Washington State Laws Against Discrimination, and the City of Seattleâ€™s Anti-Discrimination Ordinances.
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Published on Nov 11, 2009