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Spring 2014

! P.4 P.8

P.12


Editor Letter EDITOR-IN-CHIEF Jonathan Rossell

SENIOR EDITOR Bernardo Pace

ASSOCIATE EDITOR Gina Abraham

EDITORIAL ADVISOR Dr. Joseph Coppolo Jr.

EXEC. ACCOUNTANT Laura Paternostro

DESIGNER Jonathan Rossell

OFFICE ASSISTANTS

Spring has finally sprung and many of us will participate in a tradition known as spring cleaning! Spring cleaning is very symbolic to the changes that occur in our lives around this time; the time goes forward, days seem longer, trees grow leaves, and most importantly, the temperature rises. These seasonal changes occur throughout a short period of time and most people are able to cope with these changes. Some individuals use routines and schedules to help cope with change. Developing routines gives the opportunity to prepare for change, make necessary adjustments, and alleviate the stress that comes with it. There are many ways to develop and properly use a routine, especially in the lives of individuals with developmental disabilities. There are many helpful ways to establish routines including picture activity schedules and other written schedules as well as the use of communication devices and communication applications on smartphones or tablets. Check out our articles for more information on routines and schedules, the benefits of routines, and insight from a participant of the On Your Mark Day Hab Program. Easter and Passover, other Spring traditions, can be a fun time for parents and children alike. At times it may be difficult for our individuals to participate in holiday events, but there are many creative ways to modify activities and events to make it fun for everyone! Check out the articles on pages 4 & 14 for more details on how to everyone in your Easter and Passover fun! For more information visit www.inclusiontimeoym.com or email us at inclusiontime@onyourmark.org!

: Like us @inclusiontime_oym

Jonathan Rossell Editor-in-Chief

Sarah Moretti William Chapnick

EDITORIAL CONSULTANTS John Bilotti James Allocco Joseph DeVivo Jennifer Brown Danielle Kasday Danielle Tedesco Michael Urkonis Randy Yhap

VOLUNTEER COORDINATOR Joelle Bilotti

*A special thanks to everyone Sunday, September 28, 2014 at the ICC Day Habilitation College of Staten Island Program; including maintenance staff, job trainers, group WalkNowForAutismSpeaks.org/StatenIsland/ supervisors, administrative staff, and, of course, program teamonyourmark participants. Without your cooperation and support, Inclu- Join our team and help us reach our goal. sion Time’s publication would Contact Jonathan Rossell not be possible. at 718-720-9411 Ext. 5100 Inclusion Time prints quarterly. Reproduction of Inclusion Time, in whole or part, is prohibited without written consent by On Your Mark, Inc. Inclusion Time and/or On Your Mark, Inc. are neither responsible for, nor endorse statements made by advertisers, writers, etc. Inclusion Time is not liable for any negative encounters or experiences that may occur.

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Routines Help Children With Special Needs. By: Peter Keren

W

should guide caregive all have routines in our daily lives. Many of us ers on ways “to help wake up in the morning, make coffee, take a facilitate their child’s shower, get dressed and eat breakfast before heading to development based work. A routine is a plan for the flow of your day more than a on each family and rigid schedule for every minute of the day. Developing, child’s individual maintaining and executing an effective routine helps adults needs,” said Soranhave a productive day. In the same vein, children thrive in no, who has worked an ordered and predictable home environment, where their at FCLC for seven care-givers approach daily routines, such as mealtimes, years. Soranno said sleep times, eating, playing and toileting, with predictability. that routines can help Routines are where young children do most (if not all!) of “influence a child’s their learning. emotional, cognitive, and social develop“Routines…are really important for all children,” said Magment” and she believes that routines can particularly aid gie Collins, who has worked at the Family Child Learning children in understanding and learning to use language, Center for nine years as an Early Intervention Specialist, through the adult’s use of providing simple, predictable “We want children to feel comfortable in their routines so phrases for each step of a routine as they are performed in they can learn and grow up to their fullest potential.” Collins the home (“Brush teeth,” “Diaper on”). Soranno added, “It noted that, due to their repetitive and consistent nature, doesn’t matter what the phrase is, as long as it’s the same routines are particularly helpful for children with special phrase every time.” For each routine, Collins said children needs. “Having consistent routines helps a child have more would begin to anticipate the “routine and the language asopportunities to learn,” said Collins. “Sometimes, children sociated with it and they are more likely to imitate and use with special needs can benefit from the additional practice. those words first.” When Collins executes routines with her The best thing about opportunities during daily routines is 2-year-old-daughter Molly (who has unilateral hearing loss), that they are naturally occurring times that happen daily in she is “very, very aware…about language in the routine.” the natural rhythms of a child’s own home life.” Learning to Not just because of the language associated with the rouuse and understand language, gaining a sense of security tines but other functions of language, such as listening and and stability, building self confidence, anticipating daily following directions, said Collins. events and transitions, and even decreasing challenging behaviors are some of the benefits of effective routines, Additionally, routines allow children to not only hear the according to Collins and Amy Soranno, who is also an Early same words repeatedly, but it can help ease their anxiety Intervention Specialist at Family Child Learning Center. The when they are able to predict the next activity in their day, pair works with families who have children ages birth to 3 said Collins. “It helps calm and regulate children when they with developmental delays and diagnosed disabilities. know what the future holds,” added Soranno. In this way, routines can be reassuring as they The mission of Early Intervenhelp children anticipate what is tion is to “assist family memcoming next. bers and caregivers to enhance children’s learning and developAlong with feelings of security durment through everyday learning ing routines comes a corresponding opportunities” (OSEP Communiincrease in pride and accomplishty of Practice, 2008). In other ment that develops through repeatwords, Early Intervention should edly engaging and successfully perfocus on routines! The profesforming in parts of their daily rousionals working with the child tine. For example, if a child strug-

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gles with teeth brushing one day, but is able to have repeated opportunities and practice this same activity day after day, over time the child will begin to gain more independence and pride from being more and more successful. Soranno noted that she and Collins spend a great deal of time with caregivers discussing with them what their daily routines already look like. Soranno explained that once she and Collins “better understand what a family’s routine consists of, they can help the family modify the routine within the context of the family’s current needs and priorities.” If a family is struggling with bedtime, the FCLC Early Intervention Specialist would have conversations with the family Six Benefits of Using Routines about what bedtime looks like currently and how the family might try to change the routine so it goes more smoothly Taken from Dr. Laura Mark-ham’s website: and can be more effective for the family, al-lowing the child http://www.ahaparenting.com/ to learn new skills. 1. Routines eliminate power struggles because you aren't Collins emphasized that a challenge for all parents of chilbossing them around. This activity (brushing teeth, napping, dren with special needs is to engage in daily routines that turning off the TV to come to dinner) is just what we do at provide consistency and security, yet also remain flexible this time of day. The parent stops being the bad guy, and and responsive to the individual nagging is greatly reduced. needs of their family life and 2. Routines help kids cooperate by reducing stress and anxchild. With her own family, Soranno said she lives “by iety for everyone. We all know what comes next, we get fair the clock” while engag- warning for transitions, and no one feels pushed around. ing in her daily routines. Collins explained she finds herself a little less by the clock but “has a predictable and set daily schedule.” Both emphasized that there is not a set template for carrying out routines. Parents should do what works for them and their children based on their family’s goals and needs. Collins added that it is key for early intervention professionals to work with parents in a collaborative manner to fine-tune their already existing routines rather than changing the style and personality of each individual family. Together, professionals and parents can adapt the family’s already existing routines to both match the child’s developmental level and provide the child with a predictable framework that will allow him or her to achieve his fullest potential. Families can provide increased opportunities to their children for learning that is reflective of their already existing daily lives.

3. Routines help kids learn to take charge of their own activities. Over time, kids learn to brush their teeth, pack their backpacks, etc., without constant reminders. Kids love being in charge of themselves. This feeling increases their sense of mastery and competence. Kids who feel more independent and in charge of themselves have less need to rebel and be oppositional. 4. Kids learn the concept of "looking forward" to things they enjoy, which is an important part of making a happy accommodation with the demands of a schedule. He may want to go to the playground now, but he can learn that we al ways go to the playground in the afternoon, and he can look forward to it then. 5. Regular routines help kids get on a schedule, so that they fall asleep more easily at night. 6. Schedules help parents maintain consistency in expectations. If every-thing is a fight, parents end up settling: more TV, skip brushing teeth for tonight, etc. With a routine, parents are more likely to stick to healthy expectations for everyone in the family, because that's just the way we do things in our household. The result: a family with healthy habits, where everything runs more smoothly!

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Written By: Kevin Wismer

Through Their Eyes Kevin Wismer, a participant at the On Your Mark Day Habilitation Program on Staten Island, shares his take on routines and how they allow him to overcome daily life obstacles and changes.

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We understand how busy life can get, so we’ve done the research for you! Below is a list of services provided by various volunteer agencies who serve local individuals with developmental disabilities.

COMMUNITY HABILITATION:

EARLY INTERVENTION:

 Modest Community Services Association

 A Very Special Place

 Challenge Early Intervention Center

 On Your Mark, Inc.

 Center for Family Support

 Community Resources

 Person Centered Care Services

 Community Resources

 Eden II

 The Grace Foundation

 Crossroads Unlimited, Inc.

 Elizabeth W. Pouch Center

 United Cerebral Palsy/New York

 Lifestyles for the Disabled

 Gingerbread Learning Center

RECREATION:

 Modest Community Services Association

 Heartshare

 A Very Special Place

 On Your Mark, Inc.

 Jewish Community Center of S.I.

 Community Resources

 United Cerebral Palsy/New York

 The GRACE Foundation

 Heartshare

DAY SERVICES(4-21 YEAR OLD):

FAMILY SUPPORT:

 Modest Community Services Association

 Eden II

 Center for Family Support

 On Your Mark, Inc.

 Jewish Community Center of S.I.

 On Your Mark

 The GRACE Foundation

DAY SERVICES (21+ YEARS OLD):

FAMILY EDUCATION & TRAINING:

 United Cerebral Palsy/New York

 A Very Special Place

 A Very Special Place

RESPITE:

 AHRC

 Center for Family Support

 A Very Special Place

 Center for Family Support

 Person Centered Care Services

 Center for Family Support

 City Access

 The GRACE Foundation

 City Access

 Community Resources

 United Cerebral Palsy/New York

 Heartshare

 Crossroads Unlimited, Inc.

MEDICAID SERVICE COORDINATION:

 Lifespire

 Eden II

 A Very Special Place

 Heartshare

 Center for Family Support

 Independent Living Association

 Community Resources

 Lifespire

 Community Unlimited

RESOURCES & INFORMATION:

 Lifestyles for the Disabled

 Eden II

 Parent-to-Parent

 Modest Community Services Association

 Heartshare

 Inclusion Time

 On Your Mark, Inc.

 Independent Living Association

 Person Centered Care Services

 Lifespire

 United Cerebral Palsy/New York

 Lifestyles for the Disabled

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 Lifestyles for the Disabled  Person Centered Care Services  The GRACE Foundation

Services may have seasonal enrollment and/or limited space. Contact information about these organizations is provided on following page.


Resources

Feel free to contact these agencies for more information.

A Very Special Place

Eden II

Modest Community Services Association

718-987-1234 49 Cedar Grove Ave Staten Island, NY 10306 info@avspny.org

718-816-1422 150 Granite Ave Staten Island, NY 10303 *No E-mail listed on website.

718-447-8200 88 New Dorp Plaza Suite 202 Staten Island, NY 10306 info@modestservices.org

AHRC

Elizabeth W. Pouch Center

On Your Mark, Inc.

212-780-2500 83 Maiden Ln New York, NY 10038 webmaster@ahrcnyc.org

718-448-9775 657 Castleton Ave Staten Island, NY 10301 info@simhs.org

718-720-9233 645 Forest Ave Staten Island, NY 10310 inclusiontime@onyourmark.org

Center for Family Support

Gingerbread Learning Center

Parent-to-Parent

718-667-4263 88 New Dorp Plaza Suite 101 Staten Island, NY 10306 mmazzocco@cfsny.org

718-356-0008 471 N. Gannon Ave Staten Island, NY 10314 gingerbreadlearn@aol.com

718-494-4872 1050 Forest Hill Rd Staten Island, NY 10314 siptp@aol.com

Challenge Early Intervention Center

Heartshare Human Services

Person Centered Care Services

718-851-3300 1911 Richmond Ave Staten Island, NY 10314 S.Ibel@challenge-el.com

718-442-4200 12 Metro Tech Center 29th Fl. Brooklyn, NY 11201 info@heartshare.org

718-370-1088 40-A Marble Loop Staten Island, NY 10309 info@pccsny.org

Child Study Center of NY

Independent Living Association

Richard H. Hungerford School

718-442-8588 33 White Place Staten Island, NY 10310 *No E-mail listed on website.

718-852-2000 110 York St. Brooklyn, NY 11201 info@ilaonline.org

718-273-8622 155 Tompkins Ave. Staten Island, NY 10308 *No E-mail listed on website.

City Access New York

Jewish Community Center of Staten Island

The GRACE Foundation

718-285-6548 1207 Castleton Ave Staten Island, NY 10310 *No E-mail listed on website.

718-475-5273 1466 Manor Rd Staten Island, NY 10314 slipton@sijcc.com

718-983-3800 264 Watchogue Rd. Staten Island, NY 10314 dawnbatgrace@aol.com

Community Resources

Lifespire

United Cerebral Palsy/NYC

718-447-5200 3450 Victory Blvd Staten Island, NY 10314 comres@si.rr.com

212-741-0100 1 Whitehall St 9th Fl New York, NY 10004 info@lifespire.org

718-442-6006 281 Port Richmond Ave Staten Island, NY 10302 projectconnect@ucpnyc.org

Crossroads Unlimited, Inc. 718-420-6330

Lifestyles for the Disabled

1207 Castleton Ave Staten Island, NY 10310 *No E-mail listed on website.

718-983-5351 930 Willowbrook Rd 12-G Staten Island, NY 10314 info@lfdsi.org

Information based on agency websites and subject to change without notice. Inclusion Time and/or On Your Mark is not affiliated with or does not endorse any other agencies practices or beliefs. Inclusion Time is not liable for negative encounters or experiences that may occur.

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Four Children: Many Abilities by Sara Rubinow Simon

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645 Forest Avenue Staten Island, NY 10310 Dr. Joseph Coppolo (718) 720-9233 Director of Clinical Services Fax (718) 720-9331 drcoppolo@onyourmark.org

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Inclusion Time Spring Issue 2014  
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