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December 2013

Volume 1 l Issue 4 l Page 24

in-side Cataract, Rights of PwD 03 / All about Cataract 04 / Eye Donation : FAQ 05 / List of selected Eye Bank in India 06 / Conversation with Prasanna K. Pincha, CCD 07 / Rights of persons with disabilities 09 / The Office of the Commissioner for PwDs 10 / Barrier Free Built Environment 10 / Our Rights / Nikita Patil llll

11 / 14 / 15 / 15 / 16 / 17 / 18 /

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December 2013 Volume 1 l Issue 4

– a monthly news paper


to inform, educate and advocate issues about eye. Why I Care INFO l Approximately 285 million people worldwide live with low vision and blindness l Of these, 39 million people are blind and 246 million have moderate or severe visual impairment l 90% of blind people live in low-income countries l Yet 80% of visual impairment is avoidable - i.e. readily treatable and/or preventable l Restorations of sight, and blindness prevention strategies are among the most cost-effective interventions in health care l The number of people blind from infectious causes has greatly reduced in the past 20 years l An estimated 19 million children are visually impaired l About 65 % of all people who are visually impaired are aged 50 and older, while this age group comprises only 20% of the world's population l Increasing elderly populations in many countries mean that more people will be at risk of age-related visual impairment.

We at Antardrishti believe that the awareness level of the society about eye care, eye donation and blindness must be raised. After a thorough analysis of our experiences of last 7 years, we felt the need of a platform to Bring awareness about eye care and health Create communities for people with vision deformity and visually impaired, l Inform and bring awareness to parents and peer group of affected people l Opinion building on issues related to eye health l Generate content focused on empowerment of visually impaired *100% profit will go to Antardrishti* l l

Antardrishti, a social development organisation is committed to the cause of blind people in our society. Towards this we had made a humble beginning in 2006. It is registered as a Public Charitable Trust under Indian Trust Act, 1882.

January 2014 Special

Eye Donation ³fZ{ýf³f



email: | Subscriptions: | Advertising: Owner, Printer and Publisher : Akhil Kumar Srivastava. Printed at Navlok Times Press, 14-A, Maghtai, Bichpuri Road, Agra, U. P., INDIA and Published at 113, Tagore Nagar, Dayal Bagh, Agra-05, U. P., INDIA. Editor - Akhil Kumar Srivastava Copyright: I Care Info All rights reserved. Reproduction in any manner, electronic or otherwise, in whole or in part, wtihout prior written permission is prohibited.





December 2013 Volume 1 l Issue 4


Cataract Among the main causes of blindness, cataract is 55 percent, myopia or hypermetropia 19 percent, glaucoma 4 percent, corneal blindness 7 percent and rest are 15 percent. Cataract is a very common disease all over the world and causes blurred or dimmed vision, and it is the main reason of blindness in our country. It may occurs at older age. Sometimes the lens becomes cloudy or opaque and light is unable to enter eyes and patients face blurred or dimmed vision. In some cases there could be double vision or no vision at all. In old age, eye injury, inflammation, diabetes and use of steroid for long period are the main causes of cataract. If the woman is affected at the time of pregnancy, the child may have cataract right from the birth.

Types of cataracts Age-related cataracts. As the name suggests, this type of cataract develops as a result of aging. Congenital cataracts. Babies are sometimes born with cataracts as a result of an infection, injury, or poor development before they were born, or they may develop during childhood. Secondary cataracts. These llll

develop as a result of other medical conditions, like diabetes, or exposure to toxic substances, certain drugs (such as corticosteroids or diuretics), ultraviolet light, or radiation. Traumatic cataracts. These form after injury to the eye. Cigarette smoke, air pollution, and heavy alcohol consumption can also increase risk of developing cataracts.

Bilateral cataracts in an infant due to congenital rubella syndrome

l In some rare cases patients can see a halo around bright objects, such as car headlights or street lights.

The procedure of formation of cataract cannot be stopped, but can be cured by operation in time. The treatment of cataract is possible only by operation.


The severity of cataract formation, assuming that no other eye disease is present, is judged primarily by visual acuity test. The appropriateness of surgery depends on a patient's particular functional and visual needs and other risk factors, all of which may vary widely.

People with cataracts may have the following symptoms: l Blurry, cloudy, or misty vision.

l Some describe it as similar to looking through frosted glass. l Vision may be affected by small spots or dots. l The patient sees small patches which blur parts of his/her field of vision. l Vision gets worse when lights are dim.

l Reading becomes very diffi-

l Eventually wearing glasses becomes less effective.


Signs and symptoms vary depending on the type of cataract, though there is considerable overlap. People with nuclear sclerotic or brunescent cataracts often notice a reduction of vision. Those with posterior supcapsular cataracts usually complain of glare as their major symptom.

l Some people with cataracts also comment that colors appear less clear and faded.

l Glasses need to be changed more frequently.

l Double vision in one eye (rare).

Signs and Symptoms

l Vision is sometimes worse when light is very bright (glare).

cult, and eventually impossible.

No medicine can cure cataract, nor can reduce the formation of cataract in eye. In cataract the normal vision can be brought back by removing the dimmed lens through surgery and placing intra ocular lens. Cataract surgery is very simple.

Cataract surgery Cataract removal can be performed at any stage and no longer requires ripening of the lens. Surgery is usually 'outpatient' and performed using local anesthesia. Approximately 90% of patients can achieve a corrected vision of 20/40 or better after surgery. Phacoemulsification is the most widely used cataract surgery today. This procedure uses ultrasonic energy (U/S) to emulsify the cataract lens. Extracapsular cataract extraction (ECCE), consists of removing the lens manually, but leaving the

majority of the capsule intact. The lens is expressed through a 10–12 mm incision which is closed with sutures at the end of surgery. Intracapsular cataract extraction (ICCE) is rarely performed. The lens and surrounding capsule are removed in one piece through a large incision while pressure is applied to the vitreous membrane. The surgery has a high rate of complications.

Post-operative care The post-operative recovery period (the period after cataract extraction is done) is usually short. The patient is usually ambulatory on the day of surgery but is advised to move cautiously and avoid straining or heavy lifting for about a month. The eye is usually patched on the day of surgery and at night using an eye shield is often suggested for several days after surgery. In all types of surgery, the cataractous lens is removed and replaced with an artificial lens, known as intraocular lens, which stays in the eye permanently. Intraocular lenses are usually monofocal, correcting for either distance or near vision, however, multifocal lenses may be implanted to improve near and distance vision simultaneously, but these lenses may increase the chance of unsatisfactory vision.

Government hospitals and various non-government organizations provide the cataract surgery facility free of cost. llll


December 2013

info Eye Donation 1. What is Eye Donation? Eye donation is an act of donating one’s eyes after his/her death. Only corneal blinds can be benefitted through this process not other Blinds. It is an act of charity, purely for the benefit of the society and is totally voluntary. It is done after death. The eye donation of the deceased can be authorized by the next of kith & kin even if the deceased did not pledge to donate his / her eyes before death.

2. What is the use of eyes received? The eyes, which are received through such magnanimous gestures, are of great benefit to the society. The front, clear and transparent tissue of the eye called as cornea can be used to restore vision to corneal blind person. The other portions of the eye are also used for research and training purposes to develop cures for some of the common eye diseases.

3. What is Corneal Blindness? The Cornea is the clear tissue covering the front of the eye. It is a focusing element of the eye.It The Vision is dramatically reduced or lost if the cornea becomes cloudy. This loss of the vision is referred as corneal blindness.

4. What causes corneal blindness? The cornea can get damaged through accidents. Children, while playing with sharp objects (e.g. bows and arrows, pen, pencil, etc.) can accidentally damage their cornea. Corneal blindness can also happen to elders. Some of the industrial causes are chemical bums, flying debris or road accidents. The cornea can get damaged due to infections and malnutrition as well.

5. Is there a cure for corneal blindness? Yes. Removing the damaged llll

cornea and replacing it with a healthy cornea by surgery can cure corneal blindness. Till date the treatment of the corneally blind people is corneal grafting. Artificial corneas have not yet been developed and hence the only source for cornea is from our fellow human beings.The first corneal transplant took place in 1905.

6. What is the source for the cornea? Fortunately, cornea can be removed from a deceased person within six hours of death and can be used for surgery. Artificial cornea has not yet been developed nor is there any other objective. The eyes, which would ultimately be consigned to flames, or buried along with the body, can restore sight to two or moer needy people.

7. What is the magnitude of corneal blindness? In India,There are 4.9 million people suffering from corneal blindness. Out of 4.9 million people at least 3 million can benefit from Corneal Transplantation.Majority of the 4.9 million are young adults ( below 45 years)who have to spend long blind years even though they have a cure. Cumulative loss of Gross National Product consequen to this is estimated to be 11.1 billion dollars, while the problem is formidable. The need to take up the challenge of cutailing it is compelling. The present collection from all over the COUNTRY is 41883 !! (Year-2011 (source EBAI.)India has largest burden of Global Blindness.

8. How can one donate eyes? Eyes are removed only after death. A person wishing to donate eyes should make close family members aware of their intentions. After the death of the person, it is the family who can inform the nearest eye bank to fulfill the wishes of the deceased or

authorize the removal of the eyes if somebody from an eye bank approaches the family.

9. What is an Eye Bank? An Eye Bank is a charitable organization and is not for profit .They are purely functioning for the benefit of the society. The eye banks facilitate removal of eyes, processing of eyes and evaluation of the eyes and distribute them to the needy. The first Eye Bank was set up in United states in 1945 at Newark City. Around 500 + – Eye banks in India.

10. How do I ensure that the eyes so donated would not be misused? Eye Banks are covered under “Transplantation of Human Organs Act” since 1994. It is a criminal offence to buy or sell organs. The Government issues a certificate of registration to eye banks and has a provision to inspect them regularly. In case a complaint is filed against any eye bank, the Government can take legal action.

11. How do I contact an eye bank? A special Toll free number 1919 (BSNL) Nationwide has been allotted for eye banks. Most of the eye banks all over the country have this number, once information for eye donation is communicated to eye banks; the eye bank sends its team to collect the eyes. By calling this number, details about eye donation can also be obtained also,all local news paper carry the eye banks number in their Emergency Number list.You can even get it from 197(BSNL/TATA Directory numbers.)At last,If required,you can contact any hospital and ask them for thelocal eye bank number.

12. What is the procedure for eye donation? The local telephone directory usually lists the phone number of eye banks under essential services. The eye llll

Volume 1 l Issue 4


F.A.Q. bank personnel would give directions and precautions to be taken. The process of removing eyes does not take more than 15 to 20 minutes. The eye bank team can come either to the house where death has taken place or to the hospital where death has taken place to remove the eyes there. It would not delay the funeral arrangements.

13. What precautions are to be taken? Switch off fans and switch on Air conditioner (if available). Raise the head of the deceased slightly by placing a pillow underneath. Place wet clean cloth over the closed eye lids. Please ensure that the eyelids are properly closed. Keep a copy of the death certificate ready (if available). Contact the nearest eye bank as quickly as possible.Give the correct address with specific landmarks or famous name of our area and mobile and residence number to enable the team of eye bank for locating the house easily.Give alternate cell number of any available relatives also.The eye bank team, which would have a trained technician and/or a registered medical practitioner, would remove the eyes after taking consent on a printed form in the presence of two witnesses and also take A small quantity of blood sample will be drawn to rule out communicable diseases.

14. After the removal of eyes, would there be any complications or disfigurement? There are two methods adopted for removal of eyes. Some eye banks would remove the whole eyeball. In such a case there may be temporary bleeding. The team is well trained to take care of such eventualities. There would be no disfigurement. The eye bank team, after the removal of eyes would properly close the eyes so that there is no disfigurement. The second method is the removal of

only the clear transparent tissue. Here also a plastic shield is placed in place of the tissue and no difference can be noticed.

15. Is eye donation against religious principles or traditions? All religions endorse eye donation. There are numerous examples in our traditions and scriptures, which endorse eye and organ donation. A part of the body would be consumed by flames and reduced to ashes or which is buried and allowed to decay and disintegrate & cannot be put to a better use than restoring vision to the needy!!!

16. Who can donate eyes? Is there any age limit? Any person of any age can donate eyes. Even if the deceased has medical history of hypertension, diabetes, asthma, tuberculosis etc., and even spectacle wearers and people who have undergone cataract operation can donate eyes.

17. Who cannot donate theireyes? Patients suffering from Rabies, Tetanus, Aids, Jaundice, Cancer, Gangrene, Brain Tumor, Food Poisoning, Septicaemia& a person who has died due to drowning etc. cannot donate their eyes.

18. How can you help? Dial the the eye bank after the unfortunate death of your near and dear one soon after the death. Give consent to donate the eyes of you near and dear one. Motivate the family members of anyone who has died in your area and spread information about eye donation. Be a partner in this noble cause. llll


December 2013 Volume 1 l Issue 4


List of selected Eye Bank in India CHATTISGARH Dept. of Ophthalmology PT. J.N.M. Medical College Opp-Central Jail, Raipur Ph: (0771) 2523919, 2523919 EYE HOSPITAL & EYE BANK DISTRICT HOSPITAL NUTAN CHOWK SARKANDA BILASPUR, Chattisgarh Phone: (07752) 402070 MADHYA PRADESH Eye Bank Jan Jyoti Eye Hospital 1051, Golbazaar, Jabalpur-M.P. Phone: (0761) 2404608 RATAN JYOTI NETRALAYA OPHTHALMIC INSTIUTE & RESEARCH CENTRE 18, VIKAS NAGAR, NEAR SAIBABA MANDIR GWALIOR - M.P. Phone: 0751-2423350 UTTAR PRADESH Lucknow Eye Bank Precision Eye Care, B-719 Sector-C, Mahanagar Lucknow - 226 006 Ph: 0522 - 2381919, 2322669 ICARE Charitable Eye Hospital E-3A, Sector-26 Noida - 201 301 Ph: 0120- 4068800, 2535782, SRMS EYE BANK (SHRI RAM MURTHI SMARAK TRUST) N-3, RAMPUR GARDEN BAREILLY - U.P. Phone: (0581) 2582010, M-09458702291, 09897801256 DEPARTMENT OF OPHTHALMOLOGY KING GEORGE'S MEDICAL UNIVERSITY, CHOWK LUCKNOW - 226 003; U.P. Ph: 0522-2257840, 2257840 DEPARTMENT OF OPHTHALMOLOGY S.N. MEDICAL COLLEGE AGRA - 282 002; U.P. Phone: 1919 RAJ EYE BANK ASSOCIATION C-168/18, NEAR JHANKAR CINEMA, NASEERABAD GORAKHPUR - U.P. Phone: (0551) 2292340, 2290024 M - 09415210529

SUBHARTI MEDICAL COLLEGE DEPARTMENT OF OPHTHALMOLOGY NH-52, DELHI HARIDWAR BY PASS ROAD, MEERUT - U.P. Phone: (0121) 2439027, INDIRA GANDHI EYE HOSPITAL AND RESEARCH CENTRE 1, B.N. ROAD, QAISERBAGH LUCKNOW - 226 001; U.P. Phone: (0522) 2627631, G.S.V.M. MEDICAL COLLEGE DEPARTMENT OF OPHTHALMOLOGY KANPUR - U.P. M - 09415050918, VARANASI EYE BANK SOCIETY SAH MODERN CLINIC K-16/102, BULANALA, VARANASI -221 001, U.P. Phone1919. M-9935038475 EYE BANK GANDHI EYE HOSPITAL RAM GHAT ROAD ALIGARH-202 001; U.P. Phone: 2505968, 2503962 ODISSA Drushti Daan Eye Bank L.V. Prasad Eye Institute, Patia Bhubaneswar -751 002 Phone: 3987999, M - 9437009411 WEST BENGAL Vanmukta Eye Bank Susrut Eye Foundation Research Centre HB 36/A/1, Sector-3, Salt Lake Kolkata -700 091 Ph: 033-23580201, 23582334 SILIGURI LIONS EYE BANK HILL CART ROAD, NEAR MAHANANDA BRIDGE SILIGURI -734 403, W.B. Phone: (0353) 2511004 ROTARY NARAYANA NETHRALAYA CN-5, SECTOR-V, SALT LAKE KOLKATA-700 091, W.B. Phone: (033) 23673312, 23673313 M-9007006247 DEPARTMENT OF OPHTHALMOLOGY N.R.S. MEDICAL COLLEGE & HOSPITAL, KOLKATA -14, W.B. - Phone: 22444705, 09903039651



Deoria Eye Hospital and Research Centre 187, Raghav Nagar Deoria - U.P. Phone: (05568) 222029, M - 09415312323



CHANDIGARH DEPARTMENT OF OPHTHALMOLOGY GOVT. MEDICAL COLLEGE & HOSPITAL, SECTOR-32-B, LEVEL-4, B-BLOCK CHANDIGARH - 160 030 M - 09814821212 NEW DELHI National Eye Bank Dr. R.P. Centre for Ophthalmic Sciences, AIIMS, Ansari Nagar NEW DELHI -110 029 Phone 011-26588500, Eye Bank Manager Venu Eye Institute & Research Centre, 1/31, Institutional Area Phase-II, Sheikh Sarai NEW DELHI-110 017 Phone. 011-29250757,

RAMAYAMMA INTERNATIONAL EYE BANK, C/O. L.V. PRASAD EYE INSTITUTE, ROAD NO-2, L.V. PRASAD MARG, BANJARA HILLS HYDERABAD -500 034 M- 9849545822, 1919 Vasan Eye Bank H.No. 08-01-05/07, Janak Plaza, Opp. Clock Tower, Beside Wesley Church Secunderabad - 500 003 Phone: 040- 27801919, M- 8886331161, 7799281919

Guru Gobind Singh International Eye Bank 31, Defence Enclave, Vikas Marg, New Delhi - 92 Ph: 22543788, 22545353, 9810155682 , 9350455353

T.L. KAPADIA EYE BANK HUMAYUN NAGAR HYDERABAD -500 028. PHONE NO. 040-23317274 M - 7893506886,


KARNATAKA Lions International Eye Bank Bengalore West Lions Super Specialty Eye Hospital # 5, Lions Eye Hospital Road Bangalore -560 002 Phe: 080-22235005, 22237628 Kishan Chand Chellaram Eye Bank & Cornea Grafting Centre, Minto Opthalmic Institute Bangalore - 560 002 Phone: 26707176 / 26701398

Centre for Sight A Unit of New Delhi Centre for Sight (P) Ltd. B-5/24, Safdarjung Enclave NEW DELHI-110 029 Phone: 45738888, 41644000

Sankara Eye Hospital & Eye Bank HAL Airport, Varthur Main Road, Kundalahalli Gate Bangalore -560 037 Ph: 28542727, 28542729

PUNJAB PUNARJYOT EYE BANK OF PUNJAB, 65-A, BRS NAGAR FIROZPUR ROAD LUDHIANA - Punjab , Ph: 0161-2464999, M- 098143 31433 EYE BANK DR. OM PRAKASH SATYAM NETRALAYA 117-A, THE MALL AMRITSAR-143 001, Punjab Ph: (0183) 2221128, 2221132 RAJASTHAN EYE BANK SOCIETY OF RAJASTHAN 429, NEAR GEETA BHAWAN ADARSH NAGAR JAIPUR - 302004 , Rajasthan Phone: 2604117, 2365847 M-9829059005, ANDHRA PRADESH Manager – Eye Bank Chiranjeevi Eye Blood Bank Jublee Hills Check-Post Hyderabad – 500 033 Phone 23554849, 23555005, M- 9440055777

Sankar Foundation Eye Hospital D.No.19-50, Sri Sai Madhava Nagar, Naiduthota, Vepagunta VISAKHAPATNAM-530047 (0891) 2891144, 2793219

DR. B.R. AMBEDKAR MEDICAL COLLEGE & HOSPITAL KADUGONDANAHALLI BANGALORE -560 045 Phe: 080-25476498, 25463442 KERALA Kannur Medical College Anjarakandy KANNUR - 670612 Ph: (0497) 2855000, 2855001 PONDICHERRY Jothi Eye Care Foundation # 152 & 154, Calve Subraya Chetty Street Pondicherry -605 001 Ph: (0413) 2224534, 2337659, MTNL Toll Free 1919 TAMILNADU C.U. Shah Eye Bank Sankara Nethralaya 18, College Road, Chennai - 600 006 Ph: 044-28261268 / 1919

Aravind Eye Bank Avinashi Road, Peelamedu Coimbatore - 641 014 Ph: 2578901 / 2578902 Sankara Eye Bank Sri Kanchi Kama Koti Medical Trust 77, West Ponnurangam Road R.S. Puram, Coimbatore - 2 Ph: 24221081/ 2430534 Eye Research Centre Dr. Agarwals’ Eye Hospital 19, Cathedral Road Chennai - 600 086 Phone: 044-28116233 K.G. EYE HOSPITAL K. GOVINDASWAMY NAIDU MEDICAL TRUST ARTS COLLEGE ROAD COIMBATORE -641 018T.N Phone: (0422) 212121, 211212 SANKARA EYE HOSPITAL SRI SANKAR NAGAR, PAMMAL, CHENNAI - 75; Phone: 2484799, 2485299 VASAN EYE BANK VASAN EYE CARE HOSPITAL 120-A, BAZAR ROAD, SAIDAPET CHENNAI - 600 015; TN Phone: 24327736, 43400000, DR. LANKESH EYE BANK DR. LANKESH EYE HOSPITAL NO.2, 41-STREET, 6TH AVENUE, ASHOK NAGAR CHENNAI-600 083; TN Ph: 42318204, 43054261 VASAN EYE BANK VASAN EYE CARE HOSPITAL NO-81/83, T.V. SWAMI ROAD, NEAR KAMAKSHIAMMAN TEMPLE, R.S. PURAM COIMBATORE-641 002; TN Ph: 0422-4089000, 4200008;

Elmex Eye Bank Medical Care Centre Trust Children Hospital Karelibaug, Jalaram Marg Vadodara -390 018 Ph: (0265) 2463906, 2464130 Dr. Indumati T. Patel Eye Bank Haribakti Complex, Vinoba Bhave Road Salatwada, Vadodara-390 001 Ph: (0265) 2410932, 2426311 MAHARASHTRA ARPAN EYE BANK FLAT NO-4054, 1ST FLOOR, PLOT NO-48 MAYURESH CO-OP. HSG. SOCIETY, GHATKOPER (EAST), MUMBAI - 400075 , Ph: 24164342. 24162929, 1919 Sahiya Matrushree Gomtiben Ratanshi Cheda Eye Bank Dr. Shah’s Unique Smile Vision Care Centre 1, Priyadarshini Apartments Thane -West-400 602, M.S. Ph: 25449051, M-09892657656 GOKHALE EYE BANK & RESEARCH CENTRE GOKHALE EYE HOSPITAL, ANANT-3, DADAR MUMBAI -400 028, M.S. Phone: 24221820, 24227425, VASAI BLIND RELIEF ASSOCIATION'S EYE HOSPITAL & LIONS JUHU EYE BANK AZAD ROAD, PARNAKA VASAI-401 201; M.S. Phone: (0250) 2308287, 2308389 JANAKALYAN EYE BANK NETRA SEVA KENDRA 318, NARAYAN PETH, OPP-DAILY PRABHAT PUNE -411 030; M.S. Phone: 020-24464287, 60201034 DR. BAPAYE HOSPITAL EYE BANK BEHIND N.C.C. BANK OLD AGRA ROAD NASIK - 422 001; M.S. Phone: 23576505

Dr. Agarwal's Eye Hospital No.61, Plot No.1, D.D. Main Road, Arapalayam MADURAI- 620 016, TN Ph: (0452) 2301333, 230160; GUJARAT International Eye Bank 1, Atulya Bhavan, Sarkhej-Gandhinagar High-way, Thaltej Ahmedabaad -380 054 Ph: 079- 27413333, 27450633, M- 09825885233 Dr. Dhanijishah Anklesaria Eye Bank, M & J Institute of Ophthalmology Ahmedaabad-380 016 Ph: 079- 22681010, 22680314, Darshini Eye Bank Cornea Foundation 2nd Floor, Suyog Building Near Kamlakam Dhenu Hall Drive-in-Road, Memnagar Ahmedabaad-380 052 Ph: 079-27497815



December 2013


Volume 1 l Issue 4

Rights provide an opportunity to take step towards progress Change in the situation of disable persons (especially blinds) after the 66 years of Independence. Lots of changes is being observed during last 66 years. In comparison to time before 66 years ago, presently there are numerous opportunities of safety, right, training etc for blind people

Prasanna Kumar Pincha

Chief Commissioner for Persons with Disabilities, India

These laws have brought lots of changes in disable people life. Now there are imparting their duties in society equally and it is possible only because of these rights, as it provide an opportunity to take step towards progress. llll

At national level, four laws are existing for the help of disable persons. The law of year 1995 talk about the rights of disable persons, a national committee was formed. This law is for such disable or handicapped persons who are dependent on others. There is separate law for mentally retarded, however there is possibility of formation of new law. Mental Health Care bill is being presented in parliament, and it will be more progressive. Apart from this Indian Rehabilitation Council law is also there. There four laws are proving fruitful for the handicapped persons. Many schemes are also launched, a separate department is there in the government. India has also signed and promoted the act prepared by Soviet Union regarding the rights of handicapped people. According to this act, there should be change in all laws and policies related to this. Most probably this bill can be presented in parliament during winter session. However , many more things have to be done for betterment of these people, but it will be wrong saying that nothing has been done so far. These laws had been proved beneficial to which extent. Did the representation of handicapped is being seen in society. No doubt, these laws had proved fruitful. These people had got social safety and smooth environment.

According to this law, it is necessary to provide education to disable child till age of 18 in smooth and safe environment which will be free of cost and children are getting benefitted also Poverty Eradication - Under this scheme there is provision of 3% reservation and it had proved successful also. However, it can be said that these laws are not being implemented properly, most of the places appointment is not done in reserved seats. Backlog is still in existence. But it is true people has become aware and movement is observed. It is necessary to develop sensitivity in burocacy.

How these rights bring change in life? These laws have brought lots of changes in disable people life. Now there are imparting their duties in society equally and it is possible only because of these rights , as it provide an opportunity to take step towards progress. If any one feels that he is deprived of rights, he or she can appeal in front of Chief Handicapped Commissioner of Central Government. State related cases be present before the state government. Apart from this, they can appeal in lok adalats and people are going also.

Act 2012 regarding Handicaps is under process and is different from Act of 1995. Now it has to be seen how much effective it would be? First of all, it is required to know why this act is being formed. As the India has signed the bill with Soviet Union and promoted also , it means law has to be amended. This changes would come in laws of main stream also, on points mentioned in the bill. For example in education field, the laws regarding



Conversation with Prasanna Kumar Pincha as the Chief Commissioner for Persons with Disabilities, India by Divya Sahu

right to education for handicap will be amended, so that education disability should be friendly. It is expected to done soon. If we talk in whole, there would change in social, economical and cultural rights of disable persons , and civil and political rights would be additional. Secondly, in present existing law, only seven awards for disabled are recognized, whereas in new law this figure would increase to 17-18 awards and large number of disabled would be benefitted

Any incident showing the benefit of these rights. There are several incidents regarding it, as many exams are being held throughout the country for job and education, in which there was no similarity in rights of disables as compare to normal candidates. If any blind candidate required writer during the exam it was not available. Most of the exams they were able to get writes and at some places no. As there are different rules in different places, when the complaints was being received , I thought of taking step in this direction. As the Chief Commissioner do not frame policies but before my working period a detail guidelines was prepared and forwarded to government and it was not being implemented. I received the complaint in my office and I issued a show cause notice to Department of Disability Affairs. Hearing was held and ordered to implement the above guidelines in desired period, so that blind candidates should not face during exams. Later on those guidelines was implemented by Monitory of social Justice and Empowerment and it was good. Now the employer are bound to follow it. But still many more changes are required. llll


December 2013 Volume 1 l Issue 4


Rights of persons with disabilities Legal Framework and Extensive Infrastructure At the central level, the Disability Division in the Ministry of Social Justice & Empowerment facilitates empowerment of the persons with disabilities. The Constitution in the schedule of subjects lays direct responsibility of the empowerment of the persons with disabilities on the State Governments. Hence, the State Governments and Union Territories in India have established Social Welfare Boards for the handicapped. Panchayati Raj Institutions at village level, intermediary level and district level have been entrusted with the welfare of persons with disabilities. The voluntary organisations also play a very important role in providing welfare and rehabilitation services to the disabled. The Government has framed many acts to ensure equal opportunities for persons with disabilities and their full participation in the nation-building process. A multi-sectoral collaborative approach, involving all the appropriate governments agencies i.e. Ministries of the Central Government, the State Governments/UTs, Central/State undertakings, local authorities and other appropriate authorities, is being followed in implementation of various provisions of the Act.


The Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation Act), 1995 (CMS contribution) is one of the key enactments, which provides for education, employment, creation of barrier free environment, social security etc. The Act extends to the whole of India except the State of Jammu and Kashmir. The Government of Jammu & Kashmir has enacted "The Persons with Disabilities (Equal Opportunities, Protection of Rights & Full Participation) Act, 1998". The Government is presently in the process of making comprehensive llll

Tax Act

Major Milestones India is a signatory to the Declaration on the Full Participation and Equality of People with Disabilities in the Asia Pacific Region . India is also a signatory to the Biwako Millennium Framework for action towards an inclusive, barrier free and rights based society . The adoption of the National Policy for Persons with Disabilities in 2006 and signing of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) by India in 2007 are some major milestones in ensuring a life of dignity and self sufficiency to persons with disabilities. India ratified the UN Convention on 1st October, 2008. Palsy, Mental Retardation and Multiple Disabilities.

amendments to the Persons with Disabilities Act 1995, to make it more inclusive on the line of international conventions.

Rehabilitation Council of India Act, 1992

Some highlights of the proposed amendments are: • • • •

• •

Inclusion of new disabilities such as autism and enlarging the scope of existing disabilities. Setting up of a national fund for persons with disabilities. Ensuring an inclusive environment in education, on roads and in built environment. Restructuring of the Central and State coordinating Committees as Advisory Boards with enhanced roles and responsibilities; creation of committees at district levels. Emphasis on means to prevent disabilities. Affirmative action, including reservation of dwelling units and shops for persons with disabilities.

National Trust for Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation and Multiple Disability Act, 1999 This Act has provisions for legal guardianship of the four categories and creation of enabling environment for as much independent living as possible. This act provides for the constitution of a national body for the welfare of the persons with Autism, Cerebral

The Act deals with the development of manpower for providing rehabilitation services, providing the constitution of the Rehabilitation Council of India for regulating the training of rehabilitation professionals and the maintenance of a Central Rehabilitation Register and for matters connected therewith or incidental thereto.

The Mental Health Act, 1987 This Act consolidates and amends the law relating to the treatment and care of mentally ill persons to make better provision with respect to their properly and affairs and for matters connected therewith or incidental thereto.

Employees State Insurance Act, 1948 The Act provides certain benefits to employees in case of sickness, maternity and employment injuries and to make provision for certain other matters in relation thereto. The Act also guarantees reasonably good medical care to workers and their immediate dependants.

Exemptions Under Income


Section 80U, as it existed till the assessment year 1989-90 and earlier years, provided for a deduction in the case of a resident individual assesses suffering from a permanent physical disability (including total blindness). By an amendment made by the Finance Act of 1989, with effect from assessment year 1990-91, the deduction was also made applicable to the assesses who are suffering from mental retardation to the extent specified in the rules made in this behalf by the Board.

The All India Service (Special Disability Leave) Regulations, 1957 These regulations may be called the All India Services (Special Disability Leave) Regulations, 1957.

Extensive Infrastructure for Differently-abled In order to effectively deal with multi dimensional problems of persons with disability and for development of manpower in different areas, the government has developed extensive infrastructure for them. The following seven national institutes have been setup in each major area of disability: • Pt. Deendayal Upadhyaya Institute for the Physically Handicapped, New Delhi • National Institute of Visually Handicapped, Dehradun • National Institute for the Orthopaedically Handicapped, Kolkata • National Institute for the Mentally Handicapped , Secunderabad. • Ali Yavar Jung National Institute for the Hearing Handicapped, Mumbai • National Institute of Rehabilitation Training & Research, Cuttack • National Institute for Empowerment of Persons with Multiple Disabilities, Chennai llll

info Welfare From aids and appliances, scholarships, awards and monetary benefits to reservations in government jobs and incentives for private employers, the government has rolled out various schemes/programmes to ensure development of the persons with disabilities.

Education Get detailed information about schemes related to National Scholarships and Integrated Education for persons with disabilities. Downloadable forms are also available.

Scheme of National Scholarships for Persons with Disabilities Under the Scheme of National Scholarships for Persons with Disabilities every year 500 new scholarships are awarded for pursuing post-matric professional and technical courses of duration more than one year. However, in respect of students with cerebral palsy, mental retardation, multiple disabilities and profound or severe hearing impairment, scholarship are awarded for pursuing studies from IX Std. onwards.

Scheme of Integrated Education for the Disabled Children The centrally sponsored scheme of Integrated Education for the Disabled Children (revised 1992) is being implemented in States and UTs in over 90,000 schools benefiting over 2,00,000 children with disabilities. The scheme was introduced with a view to providing educational opportunities for children with disabilities in general schools, to facilitate their retention in the school system. It provides for facilities to students with disabilities including expenses on books and stationery, expenses on uniforms, transport allowance, reader allowance, escort allowance, hostel accommodation and actual cost of equipment. The scheme also supports the appointment of special teachers, provision for resource rooms and removal of architectural barriers in schools.

Employment Information on vocational rehabilitation centres, special llll

employment exchanges for persons with disabilities, reservation in posts and services under the Government of India, etc is available on the website. Details regarding schemes and incentives related to employment and downloadable forms are also given.

Vocational Rehabilitation Centres for Handicapped Seventeen Vocational Rehabilitation Centres for handicapped (VRCs) have been functioning in the country, one each at Ahmedabad, Mumbai, Bhubaneswar, Bangalore, Kolkata, Delhi, Jaipur, Hyderabad, Jabalpur, Guwahati, Kanpur, Ludhiana, Chennai, Thiruvananthapuram, Vadodara, Agartala and Patna. Out of these, Vocational Rehabilitation Centre at Vadodara has been set up exclusively for handicapped women. These Centres evaluate the residual capacities of the handicapped and provide them training, facilitating their early economic rehabilitation.

Special Employment Exchanges for Physically Handicapped Employment Exchanges under the the National Employment Service are generally responsible for the placement of physically handicapped. Besides, Special Employment Exchanges have also been set-up for their selective placement.

Reservation Persons with disabilities (physically handicapped persons) can avail reservation in posts and services under the Government of India. In case of direct recruitment to Group A, B, C & D posts, 3% of the vacancies shall be reserved for persons with disabilities of which 1% each shall be reserved for persons suffering from (i) blindness or low vision, (ii) hearing impairment and (iii) locomotor disability or cerebral palsy in the posts identified for each disability.

December 2013 Volume 1 l Issue 4 hearing impairment and (iii) locomotor disability or cerebral palsy in the posts identified for each disability.


Scheme of Assistance to Disabled Persons for Purchase / Fitting of Aids and Appliances (ADIP Scheme) The main objective of the scheme is to assist the needy disabled persons in procuring durable, sophisticated and scientifically manufactured, modern, standard aids and appliances that can promote their physical, social and psychological rehabilitation, by reducing the effects of disabilities and enhance their economic potential. The aids and appliances supplied under the scheme must be ISI.

Deendayal Disabled Rehabilitation Scheme This scheme promotes voluntary action for persons with disabilities with the objectives to create an enabling environment to ensure equal opportunities, equity, social justice and empowerment of persons with disabilities. The scheme encourages voluntary action for ensuring effective implementation of the People with Disabilities (Equal Opportunities and Protection of Rights) Act of 1995.

Scheme of National Awards for Empowerment of Persons with Disabilities The Scheme for giving National Awards to the outstanding employers of persons with disabilities as well as the most outstanding employees was approved in 1969. The Government of India has been amending scope of the scheme whenever required keeping in view the changing scenario. Schemes arising out of the Implementation of the Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995

Three percent of the vacancies in case of promotion to Group D, and Group C posts in which the element Some of the Schemes are of direct recruitment, if any, does given below: not exceed 75%, shall be reserved • Incentives to Employers in for persons with disabilities of the Private Sector for which one per cent each shall be reserved for persons suffering from Providing Regular (i) blindness or low vision, (ii) Employment to Persons with llll


Disabilities • Models to promote awareness about accessibility features in public buildings • Composite Regional Centres for Persons with Disabilities (CRCs) • District Disability Rehabilitation Centers (DDRCs)

Financial Assistance Financial Support for Self-Employment Ventures The National Handicapped and Finance Development Corporation (NHFDC) has been providing loans on concessional terms for undertaking self-employment ventures by the persons with disabilities through state channelising agencies. • Schemes Implemented through State Channelising Agencies (SCA) & Nationalised Bank • Micro Financing Scheme • Schemes for Parent's Association of mentally retarded persons • Procedure for obtaining Loan

Special Education with Financial Assistance According to the report of manpower development published by the Rehabilitation Council of India, more than 1,00,000 teachers will be needed in the next ten years to cater to the educational needs of disabled children in schools. Bachelor's and master's level teacher programmes are needed for preparing teachers to help disabled children realise the objective of education for all. Hence, the University Grants Commission (UGC) supports selected university departments and colleges of education in the country to offer special education, with financial assistance available under the programme of Integrated Education for Disabled Children by the Ministry of Human Resource Development, Government of India, or within the available resources of the UGC.



December 2013 Volume 1 l Issue 4


The Office of the Commissioner for Persons with Disabilities The Office of the Commissioner for Persons with Disabilities has been established as an Independent Statutory Authority under the Persons with Disability Act, 1995. It is a quasi judicial authority which looks into the complaints of persons with disabilities regarding infringement of their rights. Independent Office of the Commissioner for Persons with Disabilities has started functioning in Delhi from August, 2009. Till then the Department of Social Welfare was looking after the functions of Commissioner for Persons with Disabilities.

• Limitation of the filed of vision subtending an angle of 20 degree or worse.

• Low vision Person low vision means a person with impairment of visual functioning even after treatment or standard refractive correction but who uses or is potentially capable of using vision for the planning or execution of a task with appropriate assistive device.

• Leprosy cured • Loss of sensation in hands or feet as well as loss of sensation and paresis in the eye-lid but withy no manifest deformity. • Manifest deformity and paresis but having sufficient mobility in their hands and feet to enable them to engage in normal economic activity; • Extreme physical deformity as well as advanced age which prevents him from undertaking any gainful occupation.

Who benefits under the Act A person with disability means a person suffering from not less than forty percent of any disability as certified by a Medical Authority. The disability as per the PWD Act, 1995 is as follows:

• Blindness Blindness refers to a condition where a person suffers from any of the following conditions, namely:• Total absence of sight; or • Visual acuity not exceeding 6/60 or 20/200 (snellen) in the better eye with correcting lenses; or

• Hearing impairment

Hearing impairment means loss of sixty decibels or more in the better ear in the conversational range of frequencies;

• Locomotor disability Locomotor disability means disability of the bones, joints or muscles leading to substantial restriction of the movement of the limbs

or any form of cerebral palsy;

• Mental retardation Mental retardation means a condition of arrested or incomplete development of mind of a person which is specially characterized by sub normality of intelligence;

• Mental illness Mental illness means any mental disorder other than mental retardation;

Powers of Commissioner Section 61 of PWD Act The Commissioner within the State shall • Coordinate with the departments of the State Government for the programmes and schemes for the benefit of persons with disabilities • Monitor the utilization of funds disbursed by the State Government • Take steps to safeguard the rights and facilities made available to persons with disabilities. • Submit reports to the State Government on the implementation of the Act at such intervals as that Government may prescribe and forward a copy thereof to the Chief Commissioner.

Section 62 of PWD Act

Commissioner to look into complaints with respect to the matters relating to deprivation of rights of person with disabilitiesWithout prejudice to the provisions of sections 61 the Commissioner may of his own motion or on the application of any aggrieved person or otherwise look into complaints with respect to matters relating to• Deprivation or rights of persons with disabilities; • Non-implementation of laws, rules, bye-laws, regulations, executive orders, guidelines or instructions made or issued by the appropriate Governments and the local authorities for the welfare and protection of rights of persons with disabilities, The take up the matter with the appropriate authorities

Sction 63 of PWD Act Authorities and officers to have certain powers of civil court• The Chief Commissioner and the Commissioners shall, for the purpose of discharging their functions under this Act, have the same powers as are vested in a court under the Code of Civil procedure, 1908 (5 of 1908) while trying a suit, in respect of the following matters, namely:• Summoning and enforcing

the attendance of witnesses; • Requiring the discovery and production of any document; • Requisitioning any public record or copy thereof from any court or office; • Receiving evidence on affidavits; and • Issuing commissions for the examination of witnesses or documents. • Every proceeding before the Chief Commissioner and Commissioners shall be a judicial proceeding within the meaning of sections 193 and 228 of the Indian Penal Code (45 of 1860) and the Chief Commissioner, the Commissioner, the competent authority, shall be deemed to be a civil court for the purposes of section 195 and Chapter XXVI of the Code of Criminal Procedure, 1973 (2 of 1974).

Activities by the Office of the Commissioner Disabilities • Grievances of disabled persons to secure their rights. • Co-ordination with the Departments of Delhi Government. • Monitor the utilization of government funds.


Office of the Chief Commissioner for Persons with Disabilities, Ministry of Social Justice & Empowerment Sarojini House, 6, Bhagwan Dass Road, New Delhi Name


Email Address

Telephone Number

Kumari Selja

Minister for Social Justice & Empowerment

23381001, 23381390

Shri Manikrao Hodlya Gavit

Minister of State for Social Justice & Empowerment

23383757, 23383745

Shri Porika Balram Naik

Minister of State for Social Justice & Empowerment 23383757, 23383745

Ms. Stuti Kacker

Secretary (DD)

23389164, 23389552(Fax)

Shri Prasanna Kumar Pincha

Chief Commissioner for Persons with Disabilities

23383907, 23386006 (Fax)

Shri T. D. Dhariyal

Dy. Chief Commissioner for Persons with Disabilities

23384219, 23386006 (Fax)

Shri Shashi Shanker Sinha

Dy. Chief Commissioner for Persons with Disabilities

23384762, 23386006 (Fax)




info Barrier Free Built Environment The Central Public Works Department (CPWD) has issued comprehensive guidelines for Barrier Free Built Environment to make buildings and facilities friendly for use by persons with disabilities.

The Ministry of Urban Development is the nodal Ministry for implementation of barrier-free built environment for the disabled and elderly persons as envisaged in Section 46 ofthe Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995 . The Ministry has prepared Model Building Bye-Laws which contain provisions for improving access to various public buildings by disabled and elderly persons. Moreover, Accessibility norms being followed by the government websites also pave the way for inclusiveness of persons with disabilities. A person with visual disability can now access the government portals using assistive technologies such as screen readers and magnifiers. Three National Awards have been instituted for Websites having the best accessibility features for persons with disabilities. One Award each will be given in the category of Websites belonging to Central and State. One Award each is given in the category of Websites belonging to Central and State governments, Public Sector Undertakings, and the Private Sector, respectively. National Awards for the Empowerment of Persons with Disabilities are given away by the President of India each year on 3rd December, to mark the International Day of Persons with Disabilities.

Braille Print of RTI Act (Press Note) The Constitution of India ensures equality, freedom, justice and dignity of all individuals and implicitly mandates an inclusive society for all including persons with disabilities. In the recent years, there have been vast and positive changes in the perception of the society towards persons with disabilities. It has been realized that a majority of persons with disabilities can lead a better quality of life if they have equal opportunities and effective access to rehabilitation measures. Recently Government of India has enacted Right to Information Act for the general people of India. The Ministry of Social Justice and Empowerment has got translated the Right to Information Act in Braille for the benefit of persons with visual impairment. The copies may be obtained fromNational Institute for the Visually Handicapped 116-Rajpur Road, Dehradun. Telephone No: 0135-2744491, 2735341. Fax No: 0135-2748147. lll

December 2013 Volume 1 l Issue 4


Proposed law on disabled set to be tabled in Winter Session New Delhi: Government is set to table the new disability bill in the ongoing Winter Session of Parliament, to guarantee civil and political rights to such people and expand the definition of disability. "We feel the country should be ready for new developments that have taken place in the world and so we are considering a new law. It will be more

encompassing with more disabilities being brought in," said Union Minister for Social Justice and Empowerment, Selja Kumari. The Minister said the proposed law seeks to repeal Persons with Disabilities Act of 1995 and replace it with a comprehensive rights based law in accordance with provisions of the United Nations Disability Convention, which India

ratified in October 2007. According to the UN body "disability is an evolving concept" and broadly casts "persons with disabilities" to "include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others."

Our Rights Nikita Patil / Mumbai In our life few things we get very smoothly and for few things we have to struggle hard, in that case should be accept defeat or left trying moving ahead. When we talk about our rights it becomes more important. In our life whenever we try to achieve new things , to make our own new ways, we should get our rights also. And if are deprived of our rights we should have the spirit to fight against our rights. We blind people always keep on demanding our rights regarding 3% reservation, right to equality, equal work within office or rights related to other facilities. Did we ever thought that there are many more rights which are significant in our life, as we try to demand our rights keeping the daily routine requirement of our life. Can it happen that all this discussion regarding our rights can be related to techniques. I consider that technique is the solution of every problem, so technique is having significant role in my life. Today we are not

receiving our all rights but we are try for our few basic right , among which one is right of technique. Technical rights- if we succeed in getting technical right, in that case we would be able to face lots of difficulties of our life. We can also make use of techniques. Softwares are developed in such a way that it becomes very easy for us to work with it. Oftenly it happen that any how we get job in bank but work is not allotted to us as per our ability. Many times different types of softwares are in use in banks and we are not aware about it, but if training is provided to us we can prove ourself the best. Nowadays a large number of blind people wants to make their career in field of IT and there will be no importance of education in our life if we are deprived of technical rights. Above case is not at every place, in few of the private offices we are using the technique in better way. We are demanding for the technical rights and hopefully we will get it but it will be fruitful only when society will relay on us.

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December 2013 Volume 1 l Issue 4


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December 2013


Volume 1 l Issue 4


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December 2013 Volume 1 l Issue 4


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Volume 1 l Issue 4

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December 2013

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December 2013 Volume 1 l Issue 4

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December 2013 Volume 1 l Issue 4






December 2013 Volume 1 l Issue 4






December 2013 Volume 1 l Issue 4






December 2013 Volume 1 l Issue 4





December 2013 Volume 1 l Issue 4


Advt. /Dec. / 2013 / 1






December 2013 Volume 1 l Issue 4




i Care Info December 2013