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Help, Understanding & Group Support

HEART TO HEART Volume 1

Spring 2015

HUGS Embraces the Green Family

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yan was born in October 1998 to Alphonso and Phyllis Green. The Greens finally felt like their family was complete after years of trying to conceive. He was nothing short of a blessing to their little family. They faced many challenges with Ryan’s health, but they decided, as a couple, that no matter what the situation was, they were going to nurture, love and support their son. Alphonso and Phyllis turned to their faith, their family and their friends for encouragement and clarity during this difficult time in their lives. One of the hardest trials for them was the uncertainty of his diagnosis. The doctors could not give a clear diagnosis for Ryan’s situation, leaving the family with very little information. Thanks to the Air Force, the family moved to Hawaii. It wasn’t until meeting Dr. Pederson at Tripler Army Medical Center that Ryan was properly diagnosed with a Chromosome Disorder, Seizure Disorder and Pervasive Developmental Disorder. Phyllis decided to stop working so she could better care for her son and dedicate her time to him. Since the age of 9, Ryan has suffered seizures that stop his heart and stall his

family has attended HUGS Family Dinners, Celebration of Life and Holiday Events. Phyllis has expressed her joy and gratitude for this organization saying, “It’s a warm, inviting environment. It is truly a wonderful way to meet other families.” Today, Ryan is a happy, head strong, 16-year-old with a great sense of humor and an infectious laugh.

The Green Family

breathing, leaving him tired for days. Because of his condition, Ryan has been on numerous medications for years. Despite the struggles and challenges, Phyllis says her son is a strong and loving person. She describes Ryan as “her little fighter,” just like his father. “HUGS is a warm inviting environment. It is truly a wonderful way to meet other families.” The Green family came to HUGS through the Tripler Army Medical Center. Since being referred, the

The Green family has been a wonderful addition to the HUGS ‘Ohana. They have encountered their fair share of turmoil, but knowing that they have their faith, their family, and HUGS, they know they are never alone. When asked to share a word of encouragement to other families, Phyllis says, “Don’t dwell on the situation and problems at hand.” “Love your child, because your child depends on you.” HUGS would like to send a big mahalo to the Green family for taking the time out of their busy schedule to share their story with all of us and for sharing the wonderful picture of their family. We are sending our positive thoughts and best wishes their way!


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For Hawaii’s Seriously Ill Children and their Families HONORARY TRUSTEES June Jones Barbara Marumoto BOARD OF DIRECTORS Patrick Klein President Jason Higa Past President Christine Daleiden President-Elect Chason Ishii Vice President Wenli Lin Vice President Charles Loomis Vice President JoAnn Lumsden Vice President Bill Tobin Vice President Franklin Tokioka II Treasurer Catha Combs Secretary Darrick J. M. Ching Calvert Chipchase Joel Emperador Rojo Herrera, Jr. Elizabeth Ignacio, M.D. Anne Lee Iris Matsumoto Carri Morgan Terri Okada Sonja Swenson Rogers

2015 is here and we at HUGS are looking forward to new and exciting initiatives to support Hawaii’s 250 kids and their families who are struggling with the many challenges of childhood illness. But, first, I would like to extend our sincere mahalo to the many, many individuals, community groups and companies who brought joy and holiday smiles to our children and families this past Christmas. Thank you to Hawaiian Airlines Pilots and Flight Attendants, Holy Trinity Church, United Parcel Service, Pacific Guardian, and many others who contributed hundreds of toys and gifts for our families. To Spike and Serve for hosting 17 HUGS families at its fabulous Breakfast with Santa event. To the Berganio family who donated specially decorated wreaths for our families as well as Christmas bags filled with toys, blankets and other special gifts for children in the hospitals. To A Keiki’s Dream and the Baldwin High School National Honor Society for helping to create a fun-filled holiday party for our Maui families. To Steven and Shigemi Nakao and the Tenrikyo Mission volunteers for all of their help in producing a very special holiday event for our Oahu families. The list goes on and on… take a look at the photos in this issue to see the faces of the caring community that supports HUGS. We are so grateful for their generosity in sharing their time and resources to make Christmas a very special time for HUGS’ families and children!

Aloha,

In 2015, with all of the road construction nowadays, HUGS is bringing some programs to West Oahu with several family dinners and respite nights. Thanks to foundation grants, we will be able to provide neighbor island families with gift cards and transportation vouchers during their child’s stay on Oahu. And we are reaching out to the community to help us expand our services to more families. 2015 is a busy year but we are focused on meeting the needs of our families in new and better ways. We welcome the involvement and support of the community to help us accomplish this. Want to lend a hand? Just give me or one of our staff a call at HUGS at 732-4846.

Mahalo, Joan Naguwa HUGS Executive Director

MEDICAL ADVISORS

Aloha,

Desiree Medeiros, M.D. Darryl Glaser, M.D. Howard Klemmer, M.D. HUGS STAFF Joan Naguwa Executive Director 3636 Kilauea Avenue Honolulu, HI 96816-2318 Tel: (808) 732-4846 Fax: (808) 732-4881 Email: HUGS@hugslove.org Website: www.hugslove.org

As we start 2015, I am honored to serve as the new President of the HUGS Board of Directors. I have been a Board member of HUGS for seven years and am committed to making sure that Hawaii’s seriously ill children and each member of their families are supported emotionally and financially throughout their journey.

I would like to acknowledge Jason Higa, Past President, for his strong leadership and commitment to HUGS over the past two years and welcome two new Board members, Elizabeth Ignacio, M.D. and Anne Lee. Our Board of Directors is an energetic group who have great compassion for our HUGS children and families and will ensure that their needs are met within our resources. Thank you to everyone that has donated to HUGS this past year. None of the services and support that we provide would be possible without the community’s generous donations. We rely on the community’s help to make sure those resources are available for our children and families. I humbly ask that you consider making financial or in-kind contributions to HUGS throughout the year. Mahalo,

AUW Designation #96590 CFC Designation #84333

Patrick E. Klein President

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Mahalo

Save the date! HUGS Love

Gala,

Saturday, May 2 Pomaika‘i Ballroom at Dole Cannery 5:00 pm – 9:00 pm Details coming soon.

“We are so grateful for the funds each of these groups granted us this year,” said Joan Naguwa, HUGS Executive Director, “Their generosity has allowed us to better serve families with seriously ill children across the state of Hawaii.”

HUGS received $124,181 in grant money last year, which helped cover HUGS extensive list of programs aimed at helping local families, including SibCamp, SibShops, military families, Celebration of Life, Peer to Peer Support, Airfare Assistance and general overhead support. HUGS would like to wholeheartedly thank the following organizations for their support: Cades Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $5,000 Friends of Hawaii Charities: . . . . . . . . . . . . . . . . . . . . . . . . $5,000 Freeman Family Fund: . . . . . . . . . . . . . . . . . . . . . . . . . . . . $10,000 Fumiko Tamura Foundation: . . . . . . . . . . . . . . . . . . . . . . . . $2,415 Hawaii Community Foundation: . . . . . . . . . . . . . . . . . . . . $10,000 Annie Sinclair Knudsen Memorial Fund: . . . . . . . . . . . . . $3,000 Omidyar Ohana Fund: . . . . . . . . . . . . . . . . . . . . . . . . . . . . $10,000 Hazel H. Takumi Foundation: . . . . . . . . . . . . . . . . . . . . . . . . $1,000 NFL Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $3,500 Tommy Holmes Foundation Fund: . . . . . . . . . . . . . . . . . . $15,000 Hawaii Lodging & Tourism Association: . . . . . . . . . . . . . . $5,000 Williamson Rindge and Hole Family Foundation: . . . . . . . . $2,750 Maui Nui Community Fund: . . . . . . . . . . . . . . . . . . . . . . . . . $1,000 The Austin Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . . $10,000 Locations Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $5,612 Ho/Ching Charitable Fund: . . . . . . . . . . . . . . . . . . . . . . . . . . . $500 First Hawaiian bank Foundation: . . . . . . . . . . . . . . . . . . . . $3,000 Beta Beta Gamma Foundation: . . . . . . . . . . . . . . . . . . . . . $7,904 Hawaii Hotel Industry Foundation: . . . . . . . . . . . . . . . . . . $5,000 June Jones Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . $10,000 HSMAI-Hawaii Chapter: . . . . . . . . . . . . . . . . . . . . . . . . . . . $3,000 Hawaii Bowl Foundation: . . . . . . . . . . . . . . . . . . . . . . . . . . $2,500 Charles Pankow Foundation: . . . . . . . . . . . . . . . . . . . . . . . $3,000

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HUGS Announces 2015 Executive Board

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ONOLULU – www.hugslove.org- HUGS, a local non-profit helping families with seriously ill children, today announced its 2015 HUGS Board of Directors officers, which includes Patrick Klein, President; Jason Higa, Past President; Christine Daleiden, President-Elect; Chason Ishii, Vice President; Wenli Lin, Vice President; Charles Loomis, Vice President; JoAnn Lumsden, Vice President; Bill Tobin, Vice President; Catha Combs, Secretary; and Franklin Tokioka II, Treasurer. The 2015 HUGS Board Members also include Darrick J. M. Ching, Calvert Chipchase, Joel Emperador, Rojo Herrera, Jr., Elizabeth Ignacio, M.D., Anne Lee, Iris Matsumoto, Carri Morgan, Terri Okada, and Sonja Swenson Rogers. “We are excited to have the expertise and leadership of a great Board of Directors who are committed to helping Hawaii’s families with seriously ill children, “ says Joan Naguwa, HUGS Executive Director. “We are serving more children and their families each year and need a top-notch board to help us secure the resources to meet their needs. We’re so happy these caring business people are giving back so freely to Hawaii’s families, by serving on our board.”

Board President Patrick Klein, Director of Advertising at Oahu Publications (dba Honolulu Star-Advertiser), will lead the organization. His years working in Hawaii in advertising combined with his years living in Fukuoka Prefecture, Japan, working for the Japanese government, gives Klein invaluable experience working on a local, national and international level. A Maryknoll High School graduate raised in Kailua, Kline holds a Bachelor of Science in Business Administration with a concentration in marketing from Gonzaga University in Spokane, Washington. Klein also is a Pacific Century Fellow, Class of 2012. In addition to his work with HUGS, Klein currently serves on the board of directors for Hospice Hawaii and Big Brothers Big Sisters. Currently he belongs to numerous trade organizations such as the Honolulu Board of Realtors, Japanese Chamber of Commerce, Building Industry Association, and the Society for Human Resource Management Hawaii Chapter. For more information about HUGS and how you can get involved please contact HUGS at 808.732.4846 or check out their website www.hugslove.org.

About HUGS For more than 30 years, HUGS has been helping Hawaii’s families with seriously ill children to improve their quality of life through programs that address the emotional, social, physical, and financial needs of each family member and the entire family. HUGS relies on donations made by the community to provide services free of charge to families with a seriously ill child, ages birth to 21 years.

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Meet the HUGS Staff

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UGS is excited to start off 2015 with a bang. We are looking forward to not only continuing the support services for our families, but also to grow our programs and services this year. We’d like to introduce you to the team who makes it all possible. With only six staff members, it’s fair to say we all wear many hats and can be seen not only in our own departments, but doing a multitude of other things to make HUGS as supportive and welcoming as it has always been. Joan Naguwa, Executive Director, provides overall leadership and oversight of HUGS administrative operations and programs, fund development, community partnerships and just about everything else that happens at HUGS for our children and families. She has over 35 years of program development and executive management experience in several nonprofit agencies and community organizations in Hawaii.

Marty Oliphant, MSW, Director of Programs, provides oversight and direction to all of HUGS Programs and services. Marty has held numerous leadership and social work positions in the nonprofit and government sectors for the past 19 years. He is married and has two incredible children.

Jamie McLaughlin, Development Coordinator, oversees fund development, including individuals, corporations and the Annual Gala. She also oversees the HUGS brand and media relations including collateral development, social media, print and television. Prior to joining HUGS, Jamie worked for various non-profits supporting children and families.

Nicole La Rose, HUGS Family Services Program Manager is responsible for the planning and implementation of HUGS programs to support seriously ill children and their families, including Respite Care for parents and care takers, Family Events, Peer Groups and other programs. Nicole was born in Honolulu and, after growing up in California, returned to the islands for college and to be closer to family.

Stephanie Caoili is the Family Services Program Specialist for HUGS. She is responsible for the intake, assessment and follow-up of family referrals to HUGS. She actively supports HUGS families and potential HUGS families through the hospital outreach program, respite activities, support groups, sibling and parent support activities, and other aid programs. No stranger to working with children, Stephanie most recently taught fourth grade with the Hawaii Department of Education.

Ann Yasui, Volunteer Coordinator, is responsible for the recruitment, training and retention of HUGS very valuable volunteer team. Ann reaches out to schools and community groups to ensure that HUGS always has an enthusiastic and compassionate team of volunteers. She is married to Dr. Steve Yasui (Kaiser Honolulu Clinic) and they have a daughter attending school in Philadelphia.

#HUGSFirstSelfie

Connect with HUGS on social media! HUGSHawaii

hugslovehawaii

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Shining Stars in HUGS Holiday Happenings

Sugano Agency - State Farm Insurance

Steven Nakao family and friends

UH Manoa HOSA Club

The Berganio family and friends

David Kila and family

HUGS WOULD LIKE TO THANK THE FOLLOWING: Holy Trinity Church Honolulu Sunset Rotary HSMAI Iolani Cub Scout Pack 325 La Pietra Hawaii School for Girls Leilehua High School Band Oceanic Time Warner Cable Pacific Guardian Life PBR Hawaii Prisma Dance Punahou School Safeway Spike and Serve Steven Nakao Family and Friends Sugano Agency - State Farm Target Tenri Cultural Center and Tenrikyo Hawaii The Foresters Tiki’s Grill & Bar UH Manoa HOSA Club United Parcel Service

100th Infantry Battalion Veterans Club Aloha Table Tennis Association Aloha United Way Baldwin High School National Honor Society Berganio Family and Friends Bubba Gump Shrimp Co. Christina’s Photography City Mill Cookie Corner Cookies by Design Costco Darby Gill (A Keiki’s Dream) David Kila-8th Grader at Kamehameha School Dispute Prevention & Resolution, Inc. Drill Team Hawaii Epic ‘Ohana Inc. Franklin Tokioka II Girl Scouts of Hawaii Hawaiian Airlines and Donald Del Carmen Hawaiian Telcom HIHO (Hands In Helping Out) Hinano

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Shining Stars in HUGS Holiday Happenings

Cookies By Design and Cookie Corner

Aloha United Way

Carrie Morgan and Punahou School Students

Hawaiian Airlines Hawaiian Telcom

HMSAI La Pietra School for Girls

Tenri Cultural Center and Tenrikyo Hawaii

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♼

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NonProfit Organization U.S. Postage

PAID

Help, Understanding & Group Support

Honolulu, HI Permit No. 9613

3636 Kilauea Avenue • Honolulu, HI 96816

“HUGS is our second family.” — HUGS Dad, Chris

Going Green HUGS wants to go green. If you are interested in receiving the quarterly Heart to Heart Newsletter via email please let us know by emailing us at info@hugslove.org.

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Spring heart to heart 2015  
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