From left: Laura Oxenham-Murphy, manager of quality; Sonia Pagura, senior director of quality, safety and performance; Alifa Khan, family leader and vicechair of the Family Leader Accreditation Group (FLAG); Adrienne Zarem, family leader and chair of FLAG; Elena Garisto, quality coordinator.
Families advance patient-centred quality and safety nationwide By Robyn Cox hen Adrienne Zarem and Alifa Khan, family leaders at Holland Bloorview Kids Rehabilitation Hospital, first joined the Family Leader Accred-
itation Group (FLAG) as chair and vice-chair they knew they were joining something different. They were on the leading edge of a movement to advance health quality through shared
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decision-making with patient and families. FLAG posed an opportunity for family leaders to improve quality and safety as a crucial part of Holland Bloorview’s accreditation preparedness strategy. One year later and they are two of the first family surveyors with Accreditation Canada, an organization that reviews health centres across Canada for best practices in quality and safety. They are bringing lived experience and valuable insight to the accreditation process, nationwide. How did Zarem and Khan go from shifting the conversation at one hospital to shifting the conversation across the country in a single year? Before taking leadership roles on FLAG, Zarem and Khan were members of the Family Advisory Committee at Holland Bloorview. They were accustomed to informing and developing initiatives across the hospital. Zarem was also participating in a Canadian Association of Paediatric Health
Centres (CAPHC) committee working on a reporting system for paediatric rehabilitation centres across Canada. In April 2016 the quality, safety and performance team at Holland Bloorview launched an unprecedented engagement strategy to embed family leaders on its accreditation steering committee and on each accreditation working group at the hospital, to prepare for the hospital’s accreditation survey in October 2017. At the same time, they developed the FLAG framework to bring these family leaders together to share experiences and learnings. It was a natural fit for Zarem and Khan to take leadership roles. “Patients and families know best what will improve their care experience most,” says Sonia Pagura, senior director of quality, safety and performance at Holland Bloorview. “Health care organizations must partner equally with patients and families through training and engagement on quality www.hospitalnews.com
Published on Nov 29, 2017