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2013 Annual Report

Home Hospice of Grayson, Cooke, & Fannin Counties

It’s about living . . .


contents Letter from the board president 04 financial highlights 05 Patient care 06 Pathways palliative care 08 Support services 10 Camp dragonfly 12 Volunteer services 14

A look ahead 16

Ways to give 17


Letter from the board president

Dear Friends, It has been my privilege to serve as President of the Board of Directors of Home Hospice of Grayson, Fannin, and Cooke Counties this past year. I am humbled by the devotion of the Leadership Team and all employees and staff of this organization to see that the physical, emotional, and spiritual needs of each patient nearing end of life, as well as their families, are met, regardless of ability to pay. This work requires tireless commitment and, often, personal sacrifice. In the more than thirty years, Home Hospice has been serving our area, the numbers of programs and services offered by Home Hospice have been constantly evolving to better meet the needs of the families served by Hospice. This has been possible because of the excellent staff; the diverse group of individuals who voluntarily serve on the governing board; the members of the Auxiliary who provide so much support to the staff and lead out in the annual "Light Up a Light" campaign; and the volunteers who have been trained to provide additional services and assistance to families served by Home Hospice. Additionally, Home Hospice has been fortunate to have so many members of the community provide financial assistance to Hospice through their memorial gifts and by devoting time to other fund-raising efforts, including the annual golf tournaments and the annual fish cook-off. As we look to the future with many more regulatory requirements, increasing numbers of patients without insurance or financial resources, and competition from for-profit hospices, the management team and the Board of Directors must become even more innovative to confront these challenges. I am confident this organization, with its years of experience and forward thinking, will stand strong and continue to be the leader in providing the very best hospice service in our area. Sincerely,

 

Donna Bedgood

Board of Directors 2013 Donna Bedgood, President Mark Tooley, Immediate Past President Lois Emerson, President Elect Lyn Jostes, Treasurer Virginia O’Hanlon, Secretary Tim Harkins Sue Malnory Roger Osterhout Stephanie Richardson Robert Shannon David Stone Arie Vanderveer Brenda Moore Jeanie Kelley Jane Dudley Sue Keating, Auxiliary President – Grayson Karla Hutcherson, Auxiliary President – Cooke

Grayson County Advisory Council 2013

Cooke County Advisory Council 2013

Joann Adair Avo Butler Joan Douglass Norma Jean Fry Martha Holliday Jenny Reynolds Jim Walker Rev. Lander Bethel Cherry Cunningham Jean Flick Bob Montgomery Tohnie Hynds Dr. Charles Phelps Tammy Roque, MD Sue Sappenfield Dr. Howard Starr Janis Thompson Carol Shaffer Betty Stephens Gerri Bandemir Tom Kyle

John Roane Linda Davis Jane Dudley Marilyn Melton Betty Morgan Paul Liscom Wanda Rose Bernice Sicking Carolyn Hendricks Jeannie Kelley Mary Ann Hess Pat Wimmer Gail Knight Patty Bowden

President of the board

4


Letter fromhighlights the board president financial

Revenue

Fundraisers & Investments

Total from Fundraisers: $137,950  First Ever Fish Cook Off- Grayson  Eighth Annual Golf Tournament– Grayson  Eleventh Annual Golf Tournament– Cooke  Trees of Honor  Light Up A Life in Cooke and Grayson County Total from Investments: $10,624

Contributions

Total Contributions: $167,673 Thank you to all our donors for supporting our mission through memorials, estates and trusts, undesignated gifts, and gifts for Camp Dragonfly.

Expenses

Thank you to all of our Grant and Foundation Donors Total: $136,536  Texoma Health Foundation  Livengood Charitable Trust  Sherman Service League  Community Health Charities  United Way of Grayson County  Cooke County United Way  Various Other United Way Organizations  Wal-Mart Foundation  Walton Family Foundation  Home Depot Foundation  Denison School Food Service  Oliver Dewey Mayor Foundation

We received $66,000 in grants for Charity and Indigent Care, patients with little or no means to pay. We spent $327,000 for Charity and Indigent care. * Note that these numbers are unaudited and approximates

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Patient care

 We help the patient remain in familiar surroundings, where they feel comfortable and secure.  The patient decides on the plan of care that best meets their needs and those of their family.

John Denman “When I think about Dad, I think about the fact that when life got tough for me, he would make it better. He was the best Dad anybody could ask for.” Lisa Denman still misses her Dad, John Denman, but she is grateful for the time she and the rest of her family had to spend with him in the last year of his life. John Denman had a terminal illness, but the care that Home Hospice gave him allowed him to stay at home with his family. His family meant the world to him. “My mom ran into one of the Home Hospice nurses a couple weeks back and the nurse remembered mom,” said Lisa. “It meant a lot to her and the nurse was a sweet as can be! When the nurses and aides came in to help bathe and take care of Dad, they were really good; they became almost like an extension of the family.” “The last year that I was with him, we would go for walks or sit on the swing and just talk,” said Lisa. “I got to know my dad in that last year more than I ever had. I can’t tell you how much he meant to me.” John also had a strong relationship with his great granddaughter, Faith. She liked to call him “Papa.” While he was sick, Faith would make sure he drank his water and had his cane when he needed it; she took care of her Papa. “He was afraid that Faith would forget him, but she hasn’t forgotten him,” said Lisa. The Bear Hugs volunteers for Home Hospice made a special bear for Faith out of her Papa’s clothes. Lisa brought Faith to the Home Hospice office to pick up the Bear Hugs. As soon as Faith pulled the orange bear out of the bag, it became ‘hers’. When Lisa tried to hold it once, mentioning that the orange shirt was her favorite of the ones her father wore, little Miss Faith, began tugging on it, saying, “My bear, my bear!” and that is the bear she held tightly in her arms as she walked out of the door.

 We help the patient remain as independent as possible, supported by our interdisciplinary team and guided by their physician.  We provide access to an on-call registered nurse and other disciplines, 24 hours a day, 7 days a week.  Our nurses are specialists in pain and symptom control.  We provide hospice aides to assist with hygiene and personal care tasks.  Our hospice team collaborates with the patient and their family to develop a plan providing the most appropriate medications, equipment, and activities.  We provide assistance to the patient and their family now and in the future.  Physicians, Nurses, social workers, spiritual care counselors, aides, and bereavement professionals approach care from a holistic perspective, addressing physical, emotional, financial and spiritual concerns.

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Patient care

A total of

530

patients

and their families were served in 2013 and their families are still receiving support In 2013, A total of

31, 349

days of care.

were provided to patients and their families

41

uninsured individuals received a total of

1,967

days of care

Care for uninsured individuals increased significantly in the second half of the year rising from

5.2%

9.5%

January-June to

July-December

$327,000 (Rounded off for reporting purposes)

Was spent providing hospice care to uninsured individuals 7


Pathways palliative care

Palliative Care Moment Our Pathways Program helped a lady who had been “lost in the system”. She was living in a home with no running water after losing her home in a fire, and was dealing with grief after losing her husband in September who was her only source of income. To make matters worse, her benefits were taken away from her. Pathways social worker, JoCarolyn Chambers, stepped in to offer support and help. She helped the lady get into contact with the VA and the social security office. JoCarolyn helped her get the death benefit from social security, food stamps, and an indigent medical waiver. She feels more hopeful and her church is now helping her rebuild her home. Our Pathways Program helped a couple who was dealing with several difficult medical decisions. The husband’s health had been declining in the last year and Pathways Social Worker, JoCarolyn Chambers, met with them to discuss advance directives and goals for his life. JoCarolyn also provided much needed emotional support to the wife. The couple was recently faced with another huge medical decision and the wife called JoCarolyn at 9:00 at night stating, “I told the doctors we have palliative care and I wasn’t going to make a decision until I talked to you and knew more about my options.” We met a lady who had just learned that her lung cancer had spread, and wanted to seek further treatment. Her main concerns are for her son and mother. Our Pathways program staff has provided resources for her, helped make contacts on her behalf, provided emotional support, helped her fill out advance directives, and helped her discuss her goals of care with her family.

Palliative medicine and supportive care is a medical specialty focusing on comfort care and provides support and education to individuals and families who are facing serious or chronic illness. Pathways focuses on the patient as a whole person, taking the time to provide information, resources and services developed around what is most important to the patient and their family. The Pathways program provides the kind of information and education needed for good decision making. This program is offered at no charge to patients or their families. Palliative and supportive medicine is not the same as hospice care. Patients seen by the Pathways team are often still receiving treatments designed to treat their serious illness or injury. Our primary goal is to improve the quality of life for patients and their families who are facing serious illness.

Services Provided: 

Help to understand complicated medical circumstances



Help with consideration of options and thinking through difficult decisions



Help to improve symptoms including physical pain, shortness of breath, nausea and more



Help to improve emotional pain, depression and anxiety



Help for you in coping with transitions through stages of illness



Help in dealing with feelings of sadness, loss and grief



Help with planning for the future

8


Pathways palliative care

Pathways officially began in

October 2013

These statistics come from the 3 months that the program was offered in 2013

21

individuals with a chronic, complicated, or serious illness received an average of 3 visits and 3 phone calls from the licensed clinical social worker who is the program coordinator

41

Face-to-face visits were made by the licensed clinical social worker

3

visits were made by the Pathways Palliative Physician

9


Support services

Grief

port

Sup-



When Life Changes Support Group



The Parent Network



Cooking for One



Seasons of the Heart



Quarterly Memorial Services



When Families Grieve Seminar

Hope for the Holidays Workshops  Spring Tea– encouraging those who have lost their mother 

Cooking for One Support Group

Melinda, one of the best cooks in the office, leads the Cooking for One support group in which she teaches members of the group easy ways to cook for one and creates a fun social environment for the group. In October 2013 two of the men participating in “Cooking for One” surprised the women in the group with roses! Each of the women had the chance to pick their favorite color. The women were so excited because some of them hadn't received flowers since their husbands died. "The day they brought the roses was my mother’s birthday,” said Melinda. “Daddy used to get her yellow roses all the time; it was a very special moment, and I’ve told that story to everybody! You never know what small thing you can do to touch someone.”

“I’ve found my joy again”

In her role as Bereavement Coordinator, Jolene Senek, LBSW, CT, GC-C, has the opportunity to stay connected with the family members who have lost a loved one for 13 months after their loss. She provides one -on-one counseling, a listening ear, support groups, a grief camp for kids called Camp Dragonfly, and several other services. These services have a large impact in the community because Home Hospice offers them to anyone who is in need of support; participants do not have to have a loved one on Home Hospice care. “I remember one lady that I counseled with who was so angry about losing her husband and she felt like she had no support from her friends,” said Jolene. “When I saw her further down the road, she came up to me and said, ‘I just want you to know, I’ve found my joy again.’ Things like that bring tears to my eyes. In this role, I see people at their worst, in the midst of their grief and loss, but when I see them down the road and I see them smile again, it reminds me why I am doing what I do.”



Men’s Coffee Support Group



Step-by-Step– walking support group

Caregiver Support 

Caregiver Support Group



Caregiver Comfort Thyself inar



Caregiver Classes

Sem-

Community Education 

Partners in Education (PIE)



Fannin Partners in Education (FPIE)



The Great Conversation Workshops

Conflict Resolution Workshop  Hospice Foundation of America Teleconference: “Improving Care for Veterans” 



The Last Walk



Showing of “Honor Flight: The Movie”- honoring Veterans



LIVE Video Webcast“Using the DSM for Revo-

10


Support services

120

Individual counseling sessions were provided to members of our community who had experienced a loss and were struggling to heal

20

supportive grief seminars and workshops were offered to the community

18

Community education presentations on various topics were offered

Over

570

People attended one or more of our community education programs I couldn’t have made it without the grief support offered by Home Hospice. - a family member

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Camp dragonfly

“This was the best thing for my children”

An 11-year-old girl who was dealing with grief after losing a family member, attended Camp Dragonfly in spring of 2013. Her grandmother said that she was more self assured and more peaceful after she returned home from camp. There are other kids in Texoma who need healing like this little girl, and there is a great need for these children to find support and guidance through their grief process. Children grieve differently than adults. Some children have behavior problems, some struggle with school work, some become argumentative or fearful, some hesitate to be away from a parent, and many don’t like to be alone. Children dealing with grief often feel isolated as well, feeling that no one understands. One of the goals of Camp Dragonfly is to give the campers a chance to be with others who can relate to their feelings of grief and sadness and to help them realize that they are not alone. The campers often report feeling better after attending camp. “This was the best thing for my children, they attended approximately ten months after their father’s death and it really helped both of them move on. They understood it was okay to grieve and to remember their dad, but that life continues. They still talk about Camp Dragonfly!” — From a mom “My child very much enjoyed camp. She has always felt different from other children and camp seemed to make her feel like she belonged. She even wanted to go to summer camp when she thought it was a week-long Camp Dragonfly! The grief counselor I talked to was awesome! She was very honest and straight forward with me. She even asked me how I was handling everything.” — From a mom

Camp Dragonfly is a community-based grief camp for children who have suffered the death of a loved one. Camp staff members are dedicated to assisting children on their journey toward healing within a therapeutic, safe, caring environment. WHY do we offer the camp?  1 in 20 children under age 15 will lose a parent  Children react differently than adults  Serious behavior and emotional problems may arise  Affordable help is available at grief camp

“Some people have the impression that going to a grief camp ‘only brings up sad thoughts;’ While it may bring up a few tears, attending camp can actually give kids their voice back and help them discover that they are not alone in their grief. Campers learn ways to process feelings and treasure memories.” —Camp Director, Jolene Senek, LBSW, CT, GC-C.

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Camp dragonfly

9

sessions of Camp Dragonfly offered since 2008

30

kids attended camp dragonfly in 2013

35

guardians were provided with information and resources to help them with their own grief and their child’s grief.

100 %

of guardians that responded to the post-camp evaluation said that their child showed improved behavior or was more open to discussing his/her loss.

“In the words of my son, ‘This was the best 3 days of my life.’ Camp Dragonfly has been amazing for my children and I am sure many others.” -From a mom

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Volunteer services

Direct Patient Interaction:

Patient and Family Care Program  The Legacy Program  Eleventh Hour  Pet Peace of Mind 

THE PARK MANOR CUT-UPS: SEWING TO HELP OTHERS Every Tuesday and Friday afternoon at 2:00, a charming group of women gather together at The Park Manor Senior Apartments to sew teddybears for the Bear Hugs Program, which takes clothing once worn by a deceased family member to create a teddy bear from the fabric. These bears allow the family members to hold memories of their loved one close to their hearts. “We were sitting together playing games one day, and we decided we ought to go to work and do something for other people.” —Marie Davis, who has been nick-named head honcho of the group The Park Manor Cut-Ups is made up of women from all different walks of life including a long-time school teacher, a paralegal, and even an eighteen wheeler truck driver. Although they are all retired now, they are working hard to help others. “One thing that got me interested in helping this group was that we all used to have productive and busy lives and we worked hard; this was a way we could still do something productive on a very worthwhile project,” said Linda Douglass. “I feel like I’ve done something for somebody, and we’ve all been touched by Home Hospice in one way or another.” As they gathered the completed bears to bring to the Home Hospice office where family members pick up their keepsake, you could hear the ladies talking to the bears. One of them reassured the bears, “You’re about to go home.” “We try to give each of the bears a personality, but it’s not just about making the bears; it’s about the fellowship,” said Linda. “In the last year, everyone has been hit by death and we share each other’s burdens. This is family out here.” The work done by the Park Manor Cut-Ups and by other Bear Hugs volunteers brings joy to family members who have lost a loved one.

Indirect Patient Interaction:       

The Bear Hugs Program Tuck In Calls Petal Pushers Bereavement Volunteers Whispers from Home Food Committee Volunteers Office Volunteers

Community Support:

Ambassadors  Auxiliary  Professional Volunteers 

“Our patients look forward to volunteer visits – someone they can talk to, play games with, and give them a smile or a hug or a squeeze of the hand! - Cathy Kinsella, Volunteer Coordinator, Cooke County

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Camp dragonfly Volunteer services

12,101

Total hours of service were dedicated to our patients by Home Hospice volunteers

3,064

Hours of volunteer service in patient and family services

3,683

Hours of volunteer service in bereavement

293

Bear hugs given to family members of our patients

472

Flower arrangements delivered to patients through our petal Pushers Program

15


A look ahead

Dear Friends, It has been my privilege to serve for over eighteen years as a member of the staff of Home Hospice, walking alongside team members, volunteers, board members, community healthcare professionals, our patients and their families. And in that time, I have seen significant changes in hospice care and in all of healthcare. Each year, our commitment to the Home Hospice mission grows. I would not expect any less in the coming year. As the Affordable Care Act is implemented, Home Hospice is seeing significant growth in the number of those facing life’s final journey without benefit of insurance or financial resources for care, virtually doubling in the second half of 2013, and continuing to grow into 2014. As we have done in the past, our staff and volunteers are committed to meeting this need in our tri-county area with the highest quality, comprehensive, hospice care. Our experience and expertise, compassion and caring, benefit patient and family alike, helping to alleviate stress and anxiety and allowing time together to say important things like, “I love you,” and “good-bye.” Through the community-wide effort begun in 2013, Home Hospice will continue to take a leadership role in achieving greater outcomes for all in the healthcare system, assuring timely delivery of optimal care provisions, thus trending toward an overall cost reduction of healthcare in our community. We remain committed to active partnering and regular dialogue with all healthcare providers. This can only improve access and quality of care for all of us. In 2014, we expect growth in the important programs provided under the umbrella of the HOPE Center of Texoma, an effort initiated in 2013 by our leadership and talented, caring staff. Care for those who are living with serious or complicated, but not yet terminal, illness through Pathways Palliative Care program will continue to help individuals and their families navigate the healthcare system, have their choices honored, set goals for their own care, and plan for the best possible care as their disease progresses. Individuals in our community who are struggling to heal from a loss will find support and guidance from our caring professionals who are committed to meeting their needs. And Home Hospice remains committed to education for all in our community in the areas of advance care planning, grief and loss, and end-of-life concerns. Workshops and seminars such as The Last Walk, The Caregiver Class, and The Great Conversation, all planned for 2014, provide increased understanding and tools for individuals to use for themselves, for their family members and in support of their neighbors and friends during times of critical need. And, as we have since the beginning of Home Hospice in 1982, we will continue to provide the very best hospice care to those with insurance or reimbursement benefits and to those without. Our physicians, nurses, social workers, chaplains, hospice aides, office staff and volunteers know that they are intersecting the lives of dying patients and their loved ones at a time of critical need, and they are committed to meeting those needs with care and compassion, using all their experience and skill to alleviate pain and suffering, and providing support and guidance throughout the entirety of the final journey.

Mission Home Hospice is a non-profit organization, founded in 1982, dedicated to providing education, programs, services and quality care to ease physical, emotional and spiritual symptoms at end-of-life for patients, families, and caregivers regardless of ability to pay, as well as all in our communities who grieve.

Vision Home Hospice of Grayson, Cooke & Fannin Counties will endeavor to be the most trusted provider of professional, ethical, individualized palliative, end-oflife care; and to ensure excellence in patient care, family support, grief education and guidance, and community education since 1982. Home Hospice is the premier organization in which to serve holistically those who journey through the final phase of life and/or the healing phase of grief.

Our staff, board and volunteers are grateful for you support of our mission and efforts to meet the needs of our community members in many areas associated with end-of-life. In the spirit of hospice,

Sherry Little Executive Director

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Ways to give Give of your time Volunteer for one of the many opportunities to touch another life at a time of critical need.

Give of your resources Make a difference in the lives of those who are dying or grieving without resources for help; change the life of a child who has lost someone very important in their life— make a donation today.

Give of your heart Keep the mission of Home Hospice in your heart— tell the stories and help others understand the value in dying comfortable and with peace and dignity, the pain that grief can bring and the joy in healing.

Leave a Legacy By planning a gift in your estate plans, you can help us continue to achieve our mission and leave a legacy that will last forever.


Home Hospice of Grayson, Cooke, and Fannin Counties

Founded 1982 We are accredited by

Community Health Accreditation Program

We are a member of

National Hospice & Palliative Care Organization Texas New Mexico Hospice Organization Texas Non-Profit Hospice Alliance United Way of Grayson County Cooke County United Way

For more information on Home Hospice Visit www.homehospice.org Follow us at

https://www.facebook.com/homehospiceofgrayson Serving Grayson & Fannin Counties 505 W. Center Street Sherman, TX 75092 903.868.9315

Serving Cooke & Northern Denton Counties 316 S. Chestnut Street Gainesville, TX 76240 940.665.9891

*The stories and information contained herein are representative of the many programs and services provided by Home Hospice of Grayson, Cooke and Fannin Counties. The Publication, stories and/or information should not be republished in whole or in part without the consent of Home Hospice.


Home Hospice of Grayson, Cooke, & Fannin Counties Annual Report 2013