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Upper Montclair Country Club Continental Breakfast 18 Holes of Golf Driving Range Golf shirt (first 100 registered golfers ) UMCC hat (first 100 registered golfers) Prizes Awards Lunch Silent Auction Raffle Hole-in-One prizes-

OFFICIAL ENTRY FORM Company_________________________________ Address__________________________________ City, State, Zip_____________________________ Phone____________________________________ E-Mail____________________________________

2010 Infiniti - courtesy of

Additional Golfers in foursome & Shirt size_______

Salerno Duane Infinity, Denville, NJ 2010 Volkswagen Beetle - courtesy of Joe Heidt Motors, Ramsey, NJ


Monday, August 30,2010 7:00-8:00 AM Breakfast & Registration 8:00 AM Shotgun start 1:00 PM Awards Lunch

Upper Montclair Country Club 177 Hepburn Rd. Clifton, NJ 07012

Outing Packages: Individual Golfer $250.00 Foursome $950.00 Includes breakfast, golf with cart & caddy, a golf shirt, hat, refreshments on the course & barbeque lunch. Don’t worry if you don’t have a foursome – we’ll be happy to match you up with another group. Even if you can’t join us for golf, please join us for the awards lunch!

About New Jersey Rett Syndrome Association (NJRSA) NJRSA is a NJ 501(C)3 organization established to contribute towards an improved quality of life for girls and women affected by Rett syndrome. We have established a network of Rett syndrome specialists serving the New Jersey tri-state area and are working with UMDNJ to establish a permanent Rett syndrome clinic in NJ. By raising awareness, we foster public attitudes conducive to early diagnosis, treatment, support and research of Rett syndrome.



_________________________________________ _________________________________________ Please check the appropriate box(es) below: □ Title sponsor - $2,500 □ Gold Sponsor - $1,500 □ Silver Sponsor - $750 □ Closest to the pin Sponsor - $250 □ Longest Drive Sponsor - $250 □ Hole sponsor - $150 □ Individual Golfers - $250.00 each □ Foursome - $950.00 each □ Award Lunch only - $40 □ Silent Angel Sponsor. I’d love to attend but cannot. Enclosed is my tax deductible donation. $______________________________ □ Auction / Prize / Goodie bag Item Donation(s) Merchandise Value $_____________________ Merchandise Description: _________________ ________________________________________ Golfing In Honor Of: _______________________ Please make checks payable to IRSF. IRSF Federal Tax ID: 31-1682518 Mail to IRSF c/o Leslie Greenfield 417 Brickyard Rd., Freehold, NJ 07728

Title Sponsor ($2,500.00) Includes 2 foursomes, 8 awards lunch tickets, two hole sponsorships, prominent display on front of all promotional materials and program, special recognition at awards lunch and on IRSF and NJRSA websites Gold Sponsor ($1,500.00) Includes one foursome, 4 awards lunch tickets, Sponsorship of one hole, prominent mention in all promotional materials and program, recognition at awards lunch and IRSF and NJRSA websites. Silver Sponsor ($750) Includes one twosome, 2 awards lunch tickets, sponsorship of 1 tee and recognition in program and at awards lunch and IRSF and NJRSA websites. Closest to the Pin Sponsor Longest Drive Sponsor ($250.00) A sign with your name and logo placed on a tee, recognition in program and awards lunch. Hole Sponsor ($150) A sign with your company’s name prominently placed on a tee and recognition in program and awards lunch. Silent Angel Sponsor: This level of sponsorship is for those who would like to make an anonymous donation of an amount of their choosing. We welcome all donations and gifts for The silent auction and prizes. THANK YOU!

Thank you to some of our Sponsors!

Salerno Duane Infiniti Denville , NJ Joe Heidt Motors Corp. Ramsey, NJ Northern Eagle Beverage Company Carlstadt , NJ Sysco Food Services of Metro NY Jersey City, NJ

Children with Rett Syndrome appear to develop “normally” for the first six to eighteen months after birth, then enter into a rapid degenerative stage of the disease. The child rapidly begins to lose their speech, parents will never again hear the words mommy or daddy from their daughters. Instead the ability to communicate verbally is replaced with the use of their beautiful penetrating eyes. Many children that once were able to crawl or walk find themselves unable to perform these functions. Purposeful hand use is lost as well and replaced with repetitive movements; the girls can no longer feed themselves or even hold onto their favorite toy. Additional symptoms that define the syndrome include; digestive difficulties, breathing abnormalities, seizures and severe scoliosis. It is a life of pain, frustration, and total dependence. Rett syndrome occurs spontaneously in approximately 1 in every 10,000 female births. There is no cure...yet. Due to recent discoveries, many scientists who study the gene involved in RTT and its protein have become convinced that understanding RTT will unlock answers to many other neurological conditions such as autism, bipolar disorder. It is now reasonable to expect some improvements for nearly all, which will significantly enrich their lives. Your help is our hope . Thank you!

Driving Toward the Cure Rett Syndrome Charity Golf Outing C/o Leslie Greenfield 417 Brickyard Rd, Freehold, NJ 07728

About Rett Syndrome

First Annual New Jersey Rett Syndrome Charity Golf Outing

“Driving Towards a Cure” Monday, August 30, 2010

About International Rett Syndrome Foundation (IRSF) IRSF is a national not-for-profit organization that channels over 95% of all net donations directly to program services. Your gift will be put to work immediately funding important research projects, family services and advocacy related to the treatment and cure of Rett syndrome.

Upper Montclair Country Club 177 Hepburn Rd, Clifton, NJ

Located 12 miles from midtown Manhatten, on Rt. 3 East, just off the Garden State Parkway exit 153. 4600 Devitt Dr., Cincinnati, OH 45246

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