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Leading in Psycho-Social Health Research Annual Report 2009


Table of Contents Executive Summary

4

From the Director

6

Program Manager’s Report

9

Industry Engagement

3

IPP-SHR Practitioner Researchers Scheme

10

IPP-SHR Adjunct Personnel

11

Publications 2009

12

Published Articles

13

Conferences

14

Review Activities

15

Current Domestic Research Projects

16

Current International Research Projects

19

Journal Activities

21

Post-Graduate Research Activities

22

Media

23

Website

24

Psycho-Social Review

25

IPP-SHR Podcasts

26

IPP-SHR: International Program of Psycho-Social Health Research The International Program of Psycho-Social Health Research (IPP-SHR) provides international leadership through research, publication, education, media, newsletter, podcasting and other online activities in the area of psycho-social health research. This Science, Engineering and Health Faculty initiative explores a broad range of psycho-social health issues including: haematology and oncology; palliative care; Indigenous health; rural and remote health; mental health; obstetrics; bio-ethics; and the interface between patients and the health care system. In essence the program is concerned with contributing to the development of psycho-social services that assist people to deal with the many challenges associated with serious physical and/or mental illness. The core aim of IPP-SHR is to ”make a difference” by informing policy and service delivery in the real world of health care. IPP-SHR is an innovative strategic research initiative that charts new directions in unexplored topic areas and incorporates state of the art methodologies and technologies. The innovation and originality inherent in IPP-SHR’s approach to research is expressed through the way in which it applies a collegial, organisationally flat structure to its teamwork. IPP-SHR’s operation is efficient, productive and user friendly, resulting in high tangible outcomes. At IPP-SHR, the focus is as much on the process as on the product.


Research thatconnects IPP-SHR’s Logo IPP-SHR’s logo is based on a tessellation of dovetailing segments that give the illusion of a circle of movement around a central pivot. This motif provides a diagrammatic representation of the holistic philosophy that informs the present development of the research program. The central pivot is the individual and the interlocking segments represent the many aspects of the person’s psychosocial experience.

Podcasts The IPP-SHR podcast logo takes the philosophy, branding and conceptualisation of the IPP-SHR logo for use in podcasting endeavours. The tessellation, surrounded by the sound wave patterns, remains at the core of the logo, both to represent the multitude of psycho-social aspects addressed through our podcast programs and to remain consistent with IPP-SHR’s identity.

What is Psycho-Social Health Research? Psycho-social is a broad holistic term that refers to the emotional, social and spiritual aspects of the human experience. The underlying assumption is that an individual’s experience can only be understood as a complex interrelationship between their inner psychological dimension and their external social context. In health care, psycho-social research is predominantly concerned with how individuals deal with the challenges of serious mental and/or physical illness. In this context, the notion of the “individual” embraces the patient, their significant others and those who care for them, professionally and other wise.

Leading in Psycho-Social Health Research


ch ts IPP-SHR’s Vision IPP-SHR’s vision looks to the future both in its aims and its processes. IPP-SHR’s aim is to become a recognised international leader in psycho-social health research. Through its processes, IPP-SHR embraces the oppor tunities offered by 21st centur y technologies and has, at its core, a respect for flexible and innovative approaches to program and team management. Our vision of international leadership moves beyond the present scope of our program, seeking to provide an umbrella for the full diversity of disciplines that address the psycho-social journey from bir th to bereavement, in all areas of physical and mental health. Academic research provides the viable medium for translating the vision into reality. In essence IPP-SHR is motivated to make a difference in the real world of health care by actively listening to those at the coal face, translating their concerns to research and ensuring, through praxis, that the findings are used to address the concerns raised. IPP-SHR’s vision is to make sure that psycho-social issues are constantly on the health care agenda, and insights from research on the human experience of health and illness drive health policy and ser vice deliver y. IPP-SHR intends to be at the forefront of developing creative and effective ways of ensuring that the insights gained in academic research are accessible to all those interested. The twin challenges of ensuring regional relevance and global significance defines IPP-SHR’s vision of the future. IPP-SHR is not restricted by geographical location but is founded on the understanding that psycho-social issues are relevant to all. This vision is to ensure that IPP-SHR’s research culture is readily identified by the successful use of innovative technology, and flexible workforce management that demonstrates the possibility of establishing viable research programs in diverse global locations. IPP-SHR’s aim of moving beyond the present dependence on location for identity reflects future directions in the management, and dissemination of research.

Annual Report 2009

3


Executive Summary for 2009 IPP-SHR consolidated its Industr y engagement, psycho-social health promotion and research capabilities during 2009, with numerous mentions and success. During 2009, IPP-SHR published 18 HERDC eligible ar ticle and delivered 14 presentations at international and domestic conferences. IPP-SHR also released 44 podcasts and published three issues of the Psycho-Social Review (PSR). Subscriber numbers grew modestly during 2009 to 6497 for the PSR and 4129 for IPP-SHR podcasts. IPP-SHR began six new research projects, three being with international par tners. During 2009, IPP-SHR received $175,607 of external research funding. IPP-SHR also recruited three additional IPP-SHR Practitioner Researchers which will bolster fur ther research output for 2010.

Leading in Psycho-Social Health Research


Executive Summary Peer Reviewed Articles

18 HERDC Eligible Articles Published

Conference Presentations

14 Presentations/ Workshops/ Posters

Invitation Presentations

Psycho-oncology research Qualitative research management IPP-SHR Practitioner Scheme Relocation research

International Programs

Regional Cancer Control Centre, Trivandrum, Kerala, India Leukaemia and Blood Foundation, New Zealand HIV/ AIDS Community Care Centre, Kerala, India Bangladesh Medical Research Institute British Columbia Cancer ControlAgency, Canada McMaster University, Ontario, Canada Kenya Medical Institute, Nairobi, Kenya

New Research Projects

The experience of survivorship for haematology patients cared for by The Leukaemia Foundation of Queensland Health care needs of HIV/AIDS women attending Community Care Centres in Kerala, India The Psycho-social impact on displaced youths during post-election violence in Nairobi West, Kenya The role of bereavement care provided by a Queensland Hospice service A longitudinal study on factors influencing donor-decision making for renal transplant patients Factors that contribute to the learning and integration of International Medical Graduates employed at Redland Hospital

Postgraduate Activities

6 PhD Postgraduate students

Review Activities

20 Journals 5 Editorships PhD and Master thesis examination 6 Book reviews

Presentations/ Professional Workshops

Renal transplant Indigenous cultural issues Relocation issues

Journal Activities

Austral-Asian Journal of Cancer Vol. 8 Iss. 1-4. OJS System Implemented

Newsletter

6,487 Subscriber Base3,189 Hard Copy, 3,308 Email Copies

Professional Booklets

216 Hardcopy Haematology and Palliative Care Booklets distributed 166 Books sold

Online Activities

21,147 Unique vsitors 253 Full text article distributed/month 480 Booklets downloaded

Podcasting Activities

44 Podcasts completed

Media

26 Media Releases

Staff

Annual Report 2009

12 Team Members

5


From the Director The well known aphorism that the whole is more than the sum of its par ts ver y much defines the experience of IPP-SHR this year. Now in its four th year of operation, it is exciting and deeply satisfying to watch how over time there has been an increasing synergy between the many different aspects of the program. There is an internal energy and dynamism with IPP-SHR where ever y aspect reinforces and expands all other aspects in a way that value-adds to the program and produces definable benefits for the university and the range of academics, health professionals, policy makers and consumer organisations that the program ser ves. Ever y time our quar terly review, Psycho-Social Review, is published and circulated there is a major increase in hits to the website with people from a range of professions and organisations requesting ar ticles profiled in the review or seeking information on projects described. The regular for tnightly IPP-SHR podcast not only brings feedback from satisfied listeners about the usefulness of the information but also leads to collaborations on grant submissions and publications with other researchers around the world. Visitors to the website bring not only requests for fur ther information about IPP-SHR’s research but also, through mutual engagement, a learning experience for our program about the creative and impor tant work of others in the psycho-social arena around the world. Many of the interesting stories from visitors become news items in the quar terly review and so the cycle continues. The IPP-SHR circle of industr y engagement in research also continues to spiral. The modus operandi for working closely in terms of setting the research agenda and funding of research projects with practitioners and policy makers in the real world of health care continues to go from strength to strength. Impor tant and interesting research projects have been initiated, such as the exploration of the factors that contribute to the learning and integration of international medical graduates (in collaboration with Redland Hospital) and a major state-wide research project on sur vivorship in haematology (in collaboration with the Leukaemia Foundation of Queensland). The results of industr y projects on bir th, ethical decision-making and the Obser ver Program for overseas trained doctors have been published. Innovative industr y collaboration research strategies, such as the IPP-SHR Practitioner Researcher (IPR) scheme, has expanded. This year IPP-SHR has been honoured to welcome to its IPR scheme such excellent people as Ms Anne Wilson, a social work practitioner from Princess Alexandra Hospital doing impor tant research in head and neck cancer; Mr Gideon Odhiambo, a psychologist from the University of Nairobi in Kenya working on refugees and displaced persons in Sudan; Ms Mar y Anne Skarparis from the Leukaemia Foundation of Queensland exploring issues of sur vivorship in haematology; and Ms Vivien Houston, social work practitioner employed through the Queensland Health National Par tnership Agreement on Homelessness

IPP-SHR’s research is about actively listening to the local but maintaining the focus on the bridge that links the regional, rural and remote with the metropolitan.

Leading in Psycho-Social Health Research


completing work in relation to homelessness and Emergency Depar tment presentations. The quality, depth and richness of the work being produced by these highly motivated, dedicated and talented people is awesome to witness. We in IPP-SHR are humbled to play a suppor tive role in helping such an inspiring group of people provide leadership in their areas of exper tise. Any discussion of inspiring people that drive the synergistic energy of IPP-SHR must also include our range of adjunct staff. Adjunct Associate Professor David Henderson continues to provide a high level of contribution through initiation of grants, co-authorship of publications and conference presentations on ethical issues in professional medical care and international medical graduates. Dr Sue Rice, Adjunct Research Fellow, is involved in IPP-SHR’s Australia/India program, conducting work on HIV/AIDS. Dr Marie-Therese Proctor, Adjunct Research Fellow, is being mentored with regards to publications from the longitudinal children’s study at Westmead. We are continually impressed by and appreciative of the impor tant contribution of our adjunct staff. IPP-SHR is a program that builds bridges across diverse geographical and topic areas. Our focus, as demonstrated by our name, is to provide international leadership. We are thrilled with the development of the international aspect of our program with research and publications now being completed in diverse locations including India, Canada, New Zealand and Africa. But just as exciting are the links from the local to the international. Locally funded IPPSHR research on issues such as international medical graduates, relocation for specialist care and palliative care are now being translated into active research projects that are applied in diverse locations around the globe. IPP-SHR does not just ‘think globally but act locally’, we are successfully creating strong bridges in research that enables research process to radiate out from the local to the international. A similar process happens with research content. By way of example, much of IPP-SHR’s research focuses on health concerns for regional, rural and remote areas. But as demonstrated by our work on relocation for specialist treatment and sur vivorship in haematology, the strong message from IPP-SHR’s research is that to assist those in regional, rural and remote areas it is impor tant not to compar tmentalise or sever links with the metropolitan areas. At a time when most specialist health care is centralised in major metropolitan areas it is an imperative to acknowledge the impor tant fact that there is no divide. Regional, rural and remote patients receive specialist treatment and are provided with suppor tive care from health care and consumer institutions in major metropolitan areas. IPP-SHR’s research is about actively listening to the local but maintaining the focus on the bridge that links the regional, rural and remote with the metropolitan. IPP-SHR is blessed with a wide range of people who contribute in a diversity of ways from involvement as coinvestigators on grants, co-authors on publications and podcast inter viewees, to media work, to name but a few. It is simply not possible in an editorial to mention all of the dynamic people with whom we work. But it is possible to say that we highly value and appreciate all the effor ts of the many people who contribute to the ‘sum of our par ts’. If you are reading this editorial – our sincere thanks to you. Any discussion of the IPP-SHR energy and success must include a huge and sincere thank you to our dedicated team. It would not be possible to achieve what we do without your focused, disciplined and productive contribution to the program. A special thank you in this regard has to go to our Program Manager, Mr Hamish Holewa, whose untiring creative energy and competence are major factors driving this program. It is always a privilege to be able to make a difference through the work you do. It is with pride that I can repor t that we have strong evidence that IPP-SHR is doing just that

Dr Pam McGrath B.Soc.Wk., MA., Ph D NHMRC Senior Research Fellow Director

Annual Report 2009

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dedicated team at IPP-SHR

IPP-SHR is only as strong as its team. IPP-SHR would like to thank all team members for their hard work, dedication and creative energy throughout 2009. IPP-SHR would also like thank the numerous contractors and ser vice providers that have also worked with us during the year.

Leading in Psycho-Social Health Research


Program Manager’s Report 2009 represented growth in IPP-SHR’s Practitioner Research scheme, fur ther evidence of the efficacy of our industr y engagement model and a maturation of the program’s research capabilities. The year also saw the commencement of six new research projects, three of which are par tnered with international institutions. The IPP-SHR Practitioner Researcher (IPR) scheme showed encouraging growth with the recruitment of three additional IPR’s. This growth not only represents recognition by the health professionals for the need to incorporate research into their work but also to use research as a method to inform ser vice deliver y. Growth in the model also affirms IPP-SHR’s industr y engagement and communication program in which the IPR scheme has been promoted throughout IPP-SHR communication materials. The benefits from the IPR scheme extended from positive publicity and exposure to decision makers within health care institutions. Two IPR’s have expressed strong desire to maintain research as an element of their practice through the pursuit of Research Higher Degrees under IPP-SHR. Additionally, decision makers at health care institutions are recognising the positive HR capabilities of engaging staff in this project and have indicated a willingness to fund Practitioner Researcher programs. Fur thermore, it is anticipated that the IPR program will benefit from recent changes to standard employment contracts for Queensland Health staff which incorporates research into their role description. It is also pleasing to note the beginning of five new research par tnerships and projects during 2009. These par tnerships affirm IPP-SHR’s reputation as a provider of collaborative research ser vices that engage and assist professionals working at the ‘coalface.’ The par tnerships and projects are diverse in topic, organisational structure and are situated in both a domestic and international context. New research projects that commenced in 2009 include: The Effects of Bereavement Ser vices on Mor tality, Cittamani Hospice, Australia; Providing Psycho-Social Ser vices for Displaced Youth, Nairobi, Kenya; International Medical Graduate Research, Canada and Australia; and the Exploration of Unmet Need for Childhood Cancer in Bangladesh. IPP-SHR received $175,607 of external research funding in 2009. IPP-SHR has also increased its academic output with nineteen Higher Education Research Data Collection (HERDC) registered publications, 2 books in-press and 14 conference presentations. IPP-SHR’s website recorded an average of 160 full text ar ticle requests or abstract views per month, fur ther evidence that IPP-SHR’s modus operandi of producing “research that connects” is working. IPP-SHR’s communication strategy also passed major milestones during 2009 asIPP-SHR published its 100th podcast with a special collaboration between Psycho-Oncology New Zealand in Dunedin. Additionally, reflecting the wider spread audience of IPP-SHR podcasts, IPP-SHR was provided with a presentation both at the Oncology Social Workers Australia conference held at the Clinical Oncology Society of Australia’s annual meeting. Following strong feedback from listeners, IPP-SHR will release a new podcasts program in 2010, titled, ‘Research Notes.’ This program intends to provide practical and methodological insights into conducting research and will complement the content podcast. Podcast subscriber numbers remain strong, with 1770 email subscribers and approximately 1500 RSS, or direct listeners. As an increasing majority of IPP-SHR’s external research contributions come from the implementation of IPP-SHR’s collaborative industr y model, being open, flexible and in the forefront of health practitioners minds increases oppor tunities for industr y collaboration and subsequent funding. IPP-SHR is well placed to continue to expand its research foothold and has a range of synergistic models that return a high level of outcomes on its research investment.

Hamish Holewa BSc (CompSci), B Ed, GradDip HEcon Program Manager

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Industry Engagements 2009 saw an increase in IPP-SHR’s collaborative research program with 3 additional IPP-SHR Practitioner Researchers (IPR’s) and two Adjunct Research Associates coming on board. In addition, IPP-SHR was granted a $225,000 Industr y- funded research project that seeks to explore sur vivorship issues for people diagnosed with a haematological malignancy. Recognising the demand for research engagement programs, IPP-SHR launched a website information por tal for health professionals and others interested in psycho-social health research. The por tal provides a complete over view of research engagement activities conducted by IPP-SHR.

IPP-SHR’s Practitioner Researcher Scheme (IPR) Three new IPR’s joined IPP-SHR in 2009. The IPP-SHR Practitioner Researcher Scheme bridges the gap between health professionals wishing to under take research on issues per tinent to their professional practice, whilst also maintaining clinical practice. The scheme operates on the principle of mutual collaboration and in-kind suppor t. IPP-SHR provides the exper tise and research leadership in developing the research project. The IPR works closely with the IPP-SHR team to refine the project and is suppor ted to maintain a sense of ownership that drives the completion of the project. The scheme operates on a Memorandum of Understanding (MOU) with the practitioner’s organisation, which details an agreement of research time for the practitioner and the process of collaboration and in-kind suppor t. The expectation is that on completion of the project, the findings are translated into a repor t for the practitioner’s organisation and peer-reviewed publications. At present, IPP-SHR has four IPRs.

Ms Anne Wilson Anne is a senior social work practitioner who has had many years of experience working with head and neck cancer patients at the Princess Alexandra Hospital (PAH), Brisbane. Anne was appointed an IPP-SHR Practitioner Researcher in order to facilitate her under taking of a socio-demographic profile of the head and neck patients and their families treated at the weekly Head and Neck Cancer Clinic at PAH. The outcome has been the first comprehensive profile of head and neck cancer patients and their families treated at a major Australian specialist hospital. As a positive outcome of the IPR experience, Anne has developed a strong commitment to research and has now been appointed as an Adjunct Associate with IPP-SHR to continue research in this field.

Mr Gideon Odhaimbo Gideon is a psychologist who graduated from the University of Nairobi in Southern Sudan, Africa. Gideon has been appointed as an IPP-SHR to under take research with refugees and displaced persons in Sudan. represents IPP-SHR’s first step in establishing a viable research program

Leading in Psycho-Social Health Research

in Kenya and is working with refugees Practitioner Researcher to suppor t him The appointment of Gideon as an IPR in Africa.


Ms Mary Anne Skarparis Mar y Anne is a suppor tive care co-ordinator for the Leukaemia Foundation of Queensland. Mar y Anne has been appointed as an IPR to provide suppor t and gain experience in research operation and training. As par t of Mar y Anne’s IPR appointment, she will provide research suppor t for the Haematology Sur vivorship program and help foster the integration of the programs’ findings into practice and operation development.

Ms Vivien Houston Vivien is a social worker employed through Queensland Health under the National Par tnership Agreement on Homelessness (NPAH) and resides with the Emergency Depar tment at the Princess Alexandra Hospital, Brisbane. Vivien is conducting a 3 stage project that explores homelessness in the Emergency Depar tment. Vivien’s research will document homelessness within the Emergency Depar tment from the perception of clients, ser vice providers and the wider community. The research will be used to develop a model to provide better primar y and follow-up care for homeless people who present at the Emergency Depar tment.

IPP-SHR Adjunct Personnel Dr Sue Rice Dr Sue Rice is an Adjunct Research Fellow who is involved in IPP-SHR’s Australia-India program. Dr Rice is under taking research on the topic of ‘Health care needs of HIV/AIDS women attending community care centres in Kerala, India’ (Project H09/09-052). This research aims to gain a better understanding of the health care needs of female HIV/AIDS patients accessing the newly established Community Care Centres across Kerala, India. The Community Care Centres are an integral par t of a suite of newly established inter ventions and ser vices initiated by the Indian Government under its National Aids Control Program (II and III) to address the transmission, treatment and suppor t of HIV/AIDS nationally. Dr Rice has obtained ethical clearance for her project and will begin data collection in Kerala next month.

Dr Marie-Therese Proctor Dr Marie-Therese Proctor is an Adjunct Research Fellow whom IPP-SHR is mentoring with regards to publishing the research findings from her longitudinal children’s study. Dr Proctor is a Psychologist and Research Officer for the Life-Limiting Conditions Research Project within the Oncology Depar tment, The Children’s Hospital, Westmead.

Dr David Henderson Dr David Henderson is an Adjunct Associate Professor with IPP-SHR who is involved in a wide range of research activities. These include obtaining grant funding, publishing, and conference presentations. Dr Henderson has been directly involved in a number of impor tant IPP-SHR research projects, including our work on ethical decisionmaking in Acute Medicine and Emergency Depar tment, and the recent work on the integration of International Medical Graduates. Dr Henderson has been an investigator on five IPP-SHR research grants, is a co-author on five peer-reviewed publications, and has been a co-author of six conference presentations.

Research and Technical Team IPP-SHR has a highly trained team of twelve research and technical staff suppor ted by grant funds. Team members are trained in a range of activities including, but not limited to: transcribing, coding, par ticipant enrolment, ethics submission, inter viewing, sound recording and editing, web and database development, project management, media work, and proof reading.

Annual Report 2009

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Publications 2009 Academic Engagement – Research that Connects IPP-SHR provides academic and research engagement through publishing, post-graduate training and education, conference presentations and research projects. IPP-SHR works hard to ensure that all findings are translated into an academic medium. Last year, IPP-SHR members published 19 peer-reviewed ar ticles, presented 14 conference papers, and had 2 books and 1 book chapter in- press. The program is driven by a commitment towards the knowledge transfer between academic research outputs and those at the coalface of healthcare. IPP-SHR facilitates this process through a robust Industr y engagement program which includes the IPP-SHR Practitioner Research Scheme, Adjunct position, Postgraduate Training oppor tunities and collaborative research funding schemes with Industr y par tners. This is complemented by a wider translation program based on podcasting, web-based activities, quar terly review (Psycho-Social Review), media publicity and traditional academic outputs.

Academic Activities Year

HERDC Publications

Books

Book Chapters

Conference Presentation National/ International

2009

18

2 (in press)

1 (in press)

14

2008

15

-

-

9

2007

18

1

1

22

2006

12

1

1

11

Total

64

4

3

56

Leading in Psycho-Social Health Research


Published Articles 1.

McGrath, P & Leahy, M (2009) “Catastrophic bleeds during end-of-life care in haematology: Controversies from Australian research”, Suppor tive Care in Cancer 17; 5: 527

1.

McGrath, P (2009) “The Easy Option? Australian findings on mothers’ perception of Elective Caesar as a bir th choice after a prior Caesarean Section”, International Journal of Nursing Practice 15(4): 271-279

2.

McGrath, P., Holewa, H., Koilparampil, T., Koshy, C., & George, S (2009) “Learning from each other: crosscultural insights on palliative care in Indian and Australian regions”, International Journal of Palliative Nursing 15(10): 499-509

3.

McGrath, P., Henderson, D., & Phillips, E (2009) “Integration into the Australian health care system: Insights from International Medical Graduates”, Australian Family Physician 38(10): 844-848

4.

McGrath, P (2009) “Parental protectiveness during continuation therapy for children with Acute Lymphoblastic Leukaemia”, IPP-SHR Occasional Paper Series 1; 3: 1-25

5.

McGrath, P., & Phillips, E (2009) “Ethical Decision-Making in an Emergency Depar tment: Findings on Nursing Advocacy”, Monash Bioethics Review 28(2): 16.1-16.16

6.

McGrath, P., & Phillips, E (2009) “The breast or bottle? Women’s infant feedings choices in a subsequent bir th after a previous Caesarean Section”, Australian Journal of Advanced Nursing 27(1)

7.

McGrath, P., & Huff, N (2009) “The medicine is to get me better’: Findings on Pediatric Patients’ Responses to Play with Medical Equipment”, Austral-Asian Journal of Cancer 8(2): 83 - 91

8.

McGrath, P (2009) “I have to get really honest with me’: Findings on recover y from mental illness”, International Journal of Psychosocial Rehabilitation 14(1):65-75

9.

McGrath, P., & Phillips, E (2009) “Insights from the Nor thern Territor y on factors that facilitate effective palliative care for Aboriginal Peoples”, Australian Health Review 33(4): 636 – 644

10. McGrath, P., Patton, M-A., & Leahy, M (2009) “And tell yourself: This is not me. It’s the drug: Experiences of coping with psychological impact of steroid treatments in Haematology”, The Patient: Patient Centered Outcomes Research 2(1): 13 *See Pam 11. Alexander, S (2009) “Malignant fungating wounds: managing pain, bleeding and psychosocial issues”, Journal of Wound Care 18(10): 418-42 12. Alexander, S (2009) “Malignant fungating wounds: key symptoms and psychosocial issues”, Journal of Wound Care 18(8): 325-329 13. Alexander, S (2009) “Malignant fungating wounds: managing malodour and exudates”, Journal of Wound Care 18(9):374-382 14. Alexander, S (2009) “Malignant Fungating Wounds: Epidemiology, Aetiology, Presentation and Assessment”, Journal of Wound Care 18( 7): 273-280 15. McGrath, P., & Henderson, D (2009) “The Obser ver Program: Insights from International Medical Graduates”, Education for Health 22(3) 16. Proctor, M-T (2009) “In sickness and in health: Including the spiritual domain as an aspect of psychological assessment”, InPsych - The Bulletin of the Australian Psychological Society 14-15 17. Rice, S., & McAuliffe, D (2009) “Ethics of the Spirit: Comparing Ethical Views and Usages of Spiritually Influenced inter ventions”, Australian Social Work 62(3): 403-420 18. Proctor, M-T., Miner, M., McLean, L., Devenish, S., & Ghobar y-Bonab, B (2009) “Exploring Christians’ explicit attachment to God representations: The development of a template”, Journal of Psychology & Theology 37 (4): 247-265

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Conferences and Presentations 2009 IPP-SHR team members continually work to present the program’s findings to a wide range of national and international audiences. The following is a list of presentations from 2009.

Invited Workshops McGrath, P (2009) Workshop discussion on Indigenous cultural issues at the Vulvar Cancer Genetics Workshop, sponsored by the Menzies School of Health Research, Dar win and Royal Women’s Hospital, Melbourne. Holewa, H (2009) “Dislocation and Invisibility: A workshop on relocation for specialist treatment”, Psycho-Oncology New Zealand 8th Conference. Dunedin, New Zealand

Poster Presentations Wilson, A Holewa, H., McGrath, P., & Cumming, S. (2009) “IPP-SHR Practitioner Researcher Scheme: Integrating Research into Professional Practice”. Poster presented at the OSWA National Conference. Gold Coast McLean, L., Shaw, J., Streimer, J., Vander word, J., Lev y, Y., & Proctor, M-T. (2009) “Psychosocial factors influencing adjustment to severe burns injur y: A literature review and proposal for a longitudinal study”. Peerreviewed poster presented at the Australian & New Zealand Burns Association Conference.Wellington, New Zealand

Conference Presentations Proctor, M-T (2009) “Negotiating a child’s death within a spiritual paradigm: A family’s journey of loss and bereavement”. Peer-reviewed paper presented at the Together! Cultural connections for quality care at the end of life - Palliative Care 2009 Conference (Combining the 10th APCC & the 8th APHC). Per th Proctor, M-T., Stevens, M., Nagy, S., Lord, B., & O’Riordan, E (2009). “In sickness, until death do us par t: Points of transition in the journey of caring for a child or adolescent diagnosed with a life-limiting condition”. Peer-reviewed paper presented at the Health in Transition 2009 – Researching for the future: 4th International Conference on Community Health Nursing Research. Adelaide Rice, S., & Washington, P (2009) “Mapping the Violence: A progress repor t on research into family and domestic violence in Family Relationship Centres”. Paper presented at the Family Relationship Services Australia, 2nd National Conference ‘Children and Families: Reducing Risk, Building Resilience’. Sydney Holewa, H., & McGrath, P (2009) “Psycho-Oncology: Back to the Future”, Keynote presentation at the PsychoOncology New Zealand 8th Conference. Dunedin, New Zealand Holewa, H (2009) “Qualitative Project Management: Collaboration Scalability and Efficiency”. Paper presented at the AQM 2009: The 10th International Interdisciplinary Conference: Advances in Qualitative Methods. Vancouver, Canada Vaughan, G, McGrath P, Holewa H (2009) “Research Findings on the VBAC experience”. Presentation at the Women’s and Children’s Hospitals Australasia Conference. The times they are a changin’: Engaging in health care reform . Brisbane McGrath, P (2009) “Psycho-social Oncology: Maintaining the Momentum”, Keynote presentation at the Oncology Social Work Australia (OSWA) National Conference. Gold Coast McGrath, P (2009) “IPP-SHR Practitioner Researcher Scheme: Integrating Research into Professional Practice”. Presentation at the OSWA National Conference. Gold Coast

Leading in Psycho-Social Health Research


Review Activities 2009 International and National Board Memberships Editorial Board, Human Research Ethics Committee, Central Queensland University, Editorial Board, Chairperson of Scientific Advisory Board (Overseas), Tourism and Travel Health Chief Operating Officer, Austral-Asian Journal Of Cancer Editorial Board, International Journal of Psychosocial Rehabilitation Chairperson Australia Pacific Region, International Research Promotion Council (Australian Editor) Editorial Board, Austral-Asian Journal of Cancer

National and International Journals Reviewer Qualitative Health Research

Australian Family Physician

Journal of Bioethical Inquiry

Palliative Medicine

Cancer Nursing Practice

Sociology of Religion: A Quarterly Review

Rural and Remote Health

Monash Bioethics Review

Australian Health Review

Western Journal of Nursing Research

Clinical Nursing Research

Haematologica

Journal of Psychosomatic Research

Healing Ministry

Supportive Care in Cancer

Death Studies

Leukaemia Research

Medical Science Monitor

Journal of Palliative Care

American Journal of Hospice and Palliative Medicine

Annual Report 2009

15


Current Research Projects for 2009 Phase: Submission •

Preliminar y submission of grants Health Professional Understanding of Psychological Sequale in Haematology

Phase: Start Up • • •

Obtain funding Ethics clearance Establish team Displaced Youth in Kenya Buidling Babies Brains, Mater Parent Aide Unit Unmet Need for Childhood Cancer, Bangladesh Facilitating Access to Medical Practice: Comparative Factors Between Australia and Canada

Phase: Work-in-Progress • •

Data Collection Data Analysis HIV/AIDs and Stigma in CCC, India Outcome Evaluation of Renal Transplant Patients Leukaemia Foundation Queensland: Sur vivorship Issues for Haematology Patients

Phase: Publication •

Dissemination and publication of findings Haematology and Palliative Care Overseas Trained Doctor Study Questionnaire in Hospice Factors Contributing to Successful Integration of International Medical Graduates To Australian Health Force Leukaemia and Blood Foundation New Zealand: Relocation for Haematology Treatment Grief and Bereavement

Phase: Completion • •

Finalised project All data translated into publications Children’s Leukaemia Longitudinal Study Ethics in Acute Medicine Mental Health Recover y Indigenous Palliative Care Ethics in Accident and Emergency Decision Making for VBAC Study Steroids in Haematology Volunteers in Hospice Chemo Club

Leading in Psycho-Social Health Research


Domestic Research Projects Factors that Contribute to the Learning and Integration of International Medical Graduates Bayside Health Service District There has been an increasing reliance on the employment of International Medical Graduates (IMGs) or Overseas Trained Doctors to staff hospitals and other health ser vices in Australia. It has been noted that IMGs may not be interchangeable with local graduates and that significant effor ts may be required to assist successful integration of IMGs into the Australian health system. Fur thermore, there has been little research on the educational and social factors that influence the ability of IMGs to learn and be integrated into the Australian health system. This research is intended to contribute towards understanding the experiences of IMGs entering the Australian medical workforce and provide knowledge to suppor t fur ther research and policy initiatives. The project will explore the experience of International Medical Graduates (IMGs) who have entered the Australian medical workforce at Redland Hospital, Queensland, Australia. Through a qualitative methodology, with an anticipated for ty par ticipants, the study will explore the value of any activities that IMGs under took, and other factors that influenced their training and integration into the Australian medical workforce.

Examination of Factors that Contribute to a Successful Outcome for Renal Transplant Volunteers: A Longitudinal Study Princess Alexander Hospital, Queensland Health This project is conducted in collaboration with the Renal Transplant Unit and Depar tment of Psychiatr y at Princess Alexandra Hospital, Brisbane. The study aims to examine two key notions in relation to kidney donation: 1. Decision-making in relation to donation of a kidney by a live donor; 2. Outcomes for the live donor and their family from the act of donating a kidney. This study aims to document factors that contribute to ethically and emotionally sound decision-making by donors that can be predictive of positive donor outcomes post-transplant. It is anticipated that by the end of the study, predictive information will be obtained as to what decision-making factors are likely to relate to positive or negative outcomes. This information is essential to ensure the efficacy of the screening process and to ensure donors are adequately informed of the possible consequences of their decision-making.

Extension Study of Questionnaire use in Hospices IPP-SHR Extension Study As the results of the original questionnaire study have been received with much interest by the palliative care community, it is considered impor tant to extend the work to include the experience with other hospices. IPPSHR has been approached by hospices in other states of Australia and therefore, will eventually have national data on this topic.

Annual Report 2009

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Domestic Research Projects Health Professionals’ Perspectives on the Psychological and Psychiatric Sequelae for Patients of Steroid use in Haematology Treatments North Fremantle Hospital, Western Australia This study aims to explore health professionals’ experience in caring for haematology patients who are administered high doses of steroids during treatment. Literature indicates that there is scant work conducted on this impor tant topic. The study will provide insights into the health professionals’ experience in responding to the emotional difficulties created by steroid use, with intention to develop effective strategies for providing suppor tive care to patients.

Who are our Patients? Socio-demographic and Psycho-social Profile of Newly Referred Head and Neck Cancer Patients from an Australian Tertiary Hospital Princess Alexandra Hospital This research aims to document the socio-demographic and psycho-social profile of newly referred head and neck cancer patients who received treatment at the Princess Alexandra Hospital (PAH) Head and Neck Clinic from 2007. As there is presently a lack of available literature on this topic, this study meets a significant need for baseline information for practitioners, academics and other stakeholders working in the area of head and neck cancer. This study will use pre-existing retrospective de-identified information available on hospital records to develop this profile. This study is par ticularly impor tant in an Australian context as the only available data is from overseas and such data contradicts the local experience. This socio-demographic and psycho-social profile is needed to inform psycho-social inter vention with these patients on evidence-based practice relevant to an Australian context, rather than being purely informed from overseas research data.

Effective Management of Volunteers in a Hospice Setting IPP-SHR / Hospice Collaboration This research aims to document the socio-demographic and psycho-social profile of newly referred head and neck cancer patients, who received treatment at the Princess Alexandra Hospital (PAH) Head and Neck Clinic from 2007. As there is presently a lack of available literature on this topic, this study meets a significant need for baseline information for practitioners, academics and other stakeholders working in the area of head and neck cancer. This study will use pre-existing, retrospective, de-identified information available on hospital records to develop this profile. This study is par ticularly impor tant in an Australian context as the only available data is from overseas which contradicts local experience. This socio-demographic and psycho-social profile is needed to inform psychosocial inter vention with these patients, on evidence-based practice relevant to an Australian context, rather than being purely informed from overseas research data.

Leading in Psycho-Social Health Research


International Research Projects The International Program of Psycho-Social Health Research (IPP-SHR) realises that research is situated in a global context and that, with innovation and uptake of information technologies, geographic location is becoming less impor tant. Fur thermore, research oppor tunities are increasing within international collaboration frameworks and, depending upon research speciality and methodology, can be under taken remotely. Whilst political and cultural differences represent the largest challenges in conducting research within an international context, location is no longer an insurmountable barrier. As research potential exists within an international context, providing leadership and engaging with stakeholders involved in the psycho-social health research enterprise is an impor tant imperative for a program that wishes to use such potential. In addition to traditional research contacts and relationships, IPP-SHR uses three synergistic enterprises in promoting its message. These include IPP-SHR’s website, the Psycho-Social Update and IPP-SHR podcasts. Through such exposure and leadership, IPP-SHR experiences positive externalities including: increased research uptake, ar ticle requests, publication abstract views and greater dissemination of the program’s research.

Unmet need for Childhood Cancer, Bangladesh

Investigators: Professor Charles Larson, Director Centre for International Child Health, British Columbia, Canada; Dr Stuar t Peacock, Co-Director, British Columbia Cancer Agency, Canada; Professor O.B. Tim Eden University of Manchester, United Kingdom; Mr Hamish Holewa, IPP-SHR Program Manager, CQUniversity Australia; Dr Paul Rogers, Medical Director & Division Head of Paediatric Oncology/ Heamatology and BMT, C&W Hospital BC, Canada; Dr Shameul Alam, Research Associate, Faculty Of Medicine, Kagawa University, Japan.Dr Syed Rashman, British Columbia Cancer Agency Childhood cancer is a major health threat in developing countries. An estimated 250,000 children develop cancer each year, and 80% of them live in developing countries (BBC 2002, American Cancer Society, 2007). Eight out of ten of the world’s children die without receiving treatment. 80% are either not diagnosed, or are denied potentially lifesaving treatment (BBC, 2002). Four in five are from low and middle income countries where childhood cancer is just one of many priorities struggling for resources (World Child Cancer, 2009). In poorer countries, childhood cancer is too often detected too late for effective treatment, and appropriate treatment is too often not available or affordable. Many children are never diagnosed at all, and when a diagnosis is made the treatment options may be limited (UICC, 2006). The main objective of this international research team is to investigate the scale and nature of the problem; generate financial and technical resources, and to design and implement research and inter vention programs to combat childhood cancer in developing countries, star ting in Bangladesh.

Annual Report 2009

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International Research Projects HIV/AIDS Women Attending Community Care Centres in Kerala, India

Investigators: Dr Sue Rice (CQUniversity), Dr Rita Cross (Government State Owned Control Society), Dr Pam McGrath (CQUniversity), Mr Hamish Holewa (CQUniversity) This research aims to gain a better understanding of the health care needs of female HIV/AIDS patients accessing the newly established Community Care Centres across Kerala, India. To date, there is limited literature from either the perspectives of HIV/AIDS Health Care Practitioners or the contexts of the Community Care Centres in relation to the health care needs of patients. This study meets a significant need to identify the health care needs of women relevant to CCCs and how ser vice approaches and procedures could be adjusted to better meet these needs.

Relocation for Specialist Treatment for Haematology Patients and Their Families: The New Zealand Experience Leukaemia and Blood Foundation, New Zealand Investigators: Dr Pam McGrath (CQUniversity), Mr Hamish Holewa (CQUniversity), Ms Pru Etcheverr y (LFBNZ) This study aims to explore the unique experiences of patients and families undergoing relocation for specialist treatment for a haematological malignancy in New Zealand. The insights gained will be used to ensure optimal ser vice deliver y to patients and families to address the issue of localised information on relocation within a New Zealand context.

Assessment of Perceptions Of Refugees On Humanitarian Aid - Makpandu South Sudan World Vision, South Sudan Investigators: Dr Pam McGrath (CQUniversity), Mr Gideon Odhaimbo (W V), Mr Hamish Holewa (CQUniversity) This study aims to explore the perceptions of refugees from the Democratic Republic of Congo receiving humanitarian aid in South Sudan. The research aims to assist in addressing the concern of providing best practice suppor t to trauma affected, relocated populations.

Peer-review Assessment of Advanced Skills for Specialist Entry: Comparative Study of the Canadian and Australian Approach for Integrating/ Certifying International Medical Trained Graduates McMaster University, Ontario Canada Investigators: Dr Pam McGrath (CQUniversity), A /Prof Anne Wong (Mc Master University), Mr Hamish Holewa (CQUniversity) This comparative study aims to explore policy cer tification and implications of International Medical Trained graduates entr y into specialist or consultative level medical appointments within an Australian and Canadian context.

Leading in Psycho-Social Health Research


International Research Projects Psycho-Social Impacts of Displacement of Youth during the Post Election Violence in Nairobi West, Kenya Nairobi West, Kenya Investigators: Dr Pam McGrath (CQUniversity), Mr Gideon Odhiambo (Kenya University), Mr Hamish Holewa (CQUniversity) This research focuses on the psycho-social impacts of internally displaced people (IDPs) in the Rift Valley Provence in Nairobi West, Kenya, who are in this position as a result of the 2007 election dispute. Such a dispute resulted in political instability and significant losses of life and proper ty. Amnesty International repor ts that since December 2007, more than 1,000 people have been killed in politically motivated or ethnic attacks in Kenya. Consequently, the Rift Valley Province has experienced signicant violence and unrest. These insights will make a contribution towards understanding the psycho-social impact upon IDPs who have become displaced from their homes and such insight can form the basis for the development of policies and strategies for the provision of humanitarian aid for youth displaced due to post-election violence.

Journal Activities During 2009 IPP-SHR has continued to suppor t and be a major affiliate of the Austral-Asian Journal of Cancer (AJC), a HERDC recognised, peer-reviewed, multi-disciplinar y cancer journal. As a truly international effor t, the AJC gained 3 additional editorial offices during 2009. The AJC now has editorial offices in: India, China, Australia, Greece, the United Kingdom and the United States of America, Japan, Kuwait, Scandinavia and Poland. Following on from the implementation of an Open Access model of publishing, the AJCs readership has increased to over 620 readers per month. The Open Access model allows for free and easy access to full text ar ticles published in the AJC. IPP-SHR plays a key role in the AJC strategy and operations. Highlighting IPP-SHR’s international project management and communication skills, IPP-SHR has continued to implement operational changes to the AJC throughout 2009 which has overseen editorial processes and a galvanisation of the suppor t of those interested in the AJC.

OA

A pivotal change in 2009 was reflected in the implementation of the Open Journal Systems (OJS) architecture on AJC ser vers. In conjunction with the Public Knowledge Project, Stanford University, IPP-SHR has implemented the Open Journal Systems (OJS) architecture on AJC ser vers. Training in the operation of the new system has been completed and all editorial offices, authors and readers interact with the journal through this system. Anecdotal repor ts from editors and readers suggest that this system has helped create a journal community, which is also reflected in the increase in ar ticles submitted.

OA

OPEN ACCESS

The AJC has applied for indexation with Medline and hopes to be included in early 2010. In 2009, the AJC also joined the Director y of Open Access Journals and the International Committee of Medical Journal Editors. IPP-SHR hopes to establish a new journal in the near future, tentatively titled, “The Austral- Asian Journal of Psycho-Social Health Research” which is based on the same operating structure as the AJC.

Annual Report 2009

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Postgraduate Activities IPP-SHR had four doctoral students exploring a wide variety of psycho-social issues. All of IPP-SHR’s postgraduate students par ticipate in research that bridges the gap between health research and health care. During 2009, IPPSHR celebrated its first PhD, which was awarded to Dr Judi Parson for her work on play therapy.

Current Postgraduate Students Dr Judi Parson was awarded the degree of Doctorate during 2009. Judi’s work focused on exploring nursing perspectives on play therapy for children with cystic fibrosis who are receiving invasive techniques. Susan Alexandra, submitted. Susan’s PhD focuses on wound management and palliative care. Specifically, she is investigating the lived experience of malignant wounds from the perspective of patients, caregivers and nursing staff. Bree Ryan, confirmed doctoral student. Bree’s doctoral studies focus on genetic testing and gender. Bree is anticipated to submit in early 2010. Noritta Morseu-Diop, confirmed doctoral student. Noritta’s thesis focuses on an exploration of recover y suppor t ser vices for Indigenous people in prisons. Dr Tabassum (Neeta) Ferdous. Neeta’s PhD study aims to explore: (1) How do diabetic individuals of culturally and linguistically diverse (CALD) backgrounds manage their diabetes since their arrival in Australia? and; (2) How different health educational resources impact on their self management capacity towards a good quality of life? Anne Eaton, masters student. Linking with her work as a midwife academic, Anne’s masters is looking to explore the factors that influence women’s bir thing choices in regional and rural Queensland

Leading in Psycho-Social Health Research


Media Aligning with IPP-SHR’s philosophy of making a difference and disseminating research to the public, our strong and committed focus to media has resulted in extensive domestic and international coverage across multiple channels and mediums. The strength of IPP-SHR’s media presence continues to consolidate its position as a world leader in psycho-social health research and reflects CQUniversity’s leadership in suppor ting this program. IPP-SHR targets the media through a variety of innovative methods. Research updates and news are released periodically to build a media and public profile for IPP-SHR. Also, special interest and current political and social events influence IPP-SHR’s media dissemination. IPP-SHR disseminated twenty-six media releases in 2009. Whilst in addition, key media representatives receive copies of the Psycho-Social Review and IPP-SHR Podcasts. These releases have resulted in over one hundred published media occurrences across all spectrums of media deliver y including: print, radio, the internet and trade publications.

17 Dec ‘09

New Issue: AJC Vol. 8, Issue 4

20 Aug ‘09

10 Dec ‘09

Mutual Learning for Service Development informed by CrossCultural Palliative Care Services Research Project

Dr Judi Parson, IPP-SHR Doctoral Graduate, Launches AAPT Conference in August 2009

11 Aug ‘09

Off-the-press: IPP-SHR Doctoral Student Susan Alexander’s recent article on the Epidemiology, Aetiology, Presentation and Assessment of Malignant Fungating Wounds

03 Aug ‘09

IPP-SHR welcomes Professor Scott Bowman as the incoming Vice-Chancellor and President of CQUniversity

05 Dec ‘09

Psychosocial Oncology New Zealand Conference welcomes IPP-SHR

01 Dec ‘09

International Medical Graduate Insights into Integrating into the Australian Health Care System

15 Nov ‘09

Dr McGrath to Present National Keynote Speech on Psycho-Social Oncology to OSWA Conference

14 Jul ‘09

On-Line Manuscript Submission Implemented for Austral-Asian Journal of Cancer

13 Nov ‘09

New Qualitative Findings on Mothers' Decision-Making about Vaginal Birth after Caesarean Section

06 Jul ‘09

21 Oct ‘09

IPP-SHR's Affiliated Journal, the Austral-Asian Journal of Cancer, is Launched in Cyprus

IPP-SHR is Pleased to Announce the Appointment of Dr Proctor as Adjunct Research Fellow with CQUniversity

30 Jun ‘09

Important Milestone Reached in Study into the Integration of International Medical Graduates into the Australian Healthcare System

22 Jun ‘09

Appointment of Dr Sue Rice - Adjunct Research Fellow

15 Jun ‘09

Off-The-Press: The Medicine is to Get Me Better: Findings on Pediatric Cancer Patients’ Response to Play with Medical Equipment

18 Sep ‘09

MOU signifies start of research collaboration between IPP-SHR and Africa

11 Sep ‘09

IPP-SHR Podcasts Return: The 'Protective Wall': The Desire by Chinese Fathers to Shield Their Children from Knowledge of their Cancer and How to Assist Them

03 Sep ‘09

The Importance of Play for Paediatric Cancer Patients

11 Jun ‘09

Extended Jane Grassley Podcast Now Released

25 Aug ‘09

The Psychological and Psychiatric Sequelae of Corticosteroid Use for Haematology Patients - Seminal Australian Findings

01 Jun ‘09

New Issue AJC Vol. 8 Issue 2

Annual Report 2009

23


Psycho-Social Awareness and Exposure Year

Website Unique Visitors

Website Visits

PSR Impressions

Podcast Subscribers

2009

21,147

44,389

6,497

4,129

2008

11,223

32,141

6,007

3,554

2007

8,034

10,973

4,800

N/A

2006

1,896

2,725

3,000

N/A

Website

www.ipp-shr.cqu.edu.au IPP-SHR’s website: www.ipp-shr.cqu.edu.au, is the first por t of call for all interested par ties, including academics, policy makers, health professionals and consumers, and media contacts interested in accessing IPP-SHR information and resources. The website is pivotal to IPP-SHR’s global presence, its research procedures and methods, and provides an increasingly impor tant method of dissemination of research and information. The website provides information on all facets of IPP-SHR’s activities, including: the “Psycho-Social Review,” research projects, podcasting, news items and upcoming events. 2009 has seen a continued increase in external visitors to the website and content available on the website which has culminated to a peak of 2500 unique visitors per month and has an average of 1800 unique visitors per month. IPP-SHR’s website offers ease of use and an effective method of disseminating information and remaining in contact with those interested in psycho-social health research. A key component of the success of the website is that it provides researchers with direct feedback on the use and interest of their ar ticles and news items, subsequently providing an indicator to the ar ticle, news or podcast’s interest. IPP-SHR’s terms and conditions allow for the shared used of this information to team members which have lead to research meetings and projects. IPP-SHR’s success within its website endeavours is dependent upon embracing new technologies with an innovative focus, and providing adequate resource suppor t. IPP-SHR’s website is in a position for continual growth in 2010, and subsequently greater dissemination of IPP-SHR, CQUniversity’s research.

Leading in Psycho-Social Health Research


Psycho-Social Review – The Quarterly Review The Psycho-Social Review (PSR) is a quar terly review circulated to an international audience of more than 6000 ser vice providers, policy makers and academics with an interest in the human experience of serious illness. The review showcases the latest psycho-social health literature, innovative psycho-social programs, commentar y by leading psycho-social health researchers and practitioners, and an update on IPP-SHR activities. The PSR remains an impor tant cornerstone of IPP-SHR’s leadership within the psycho-social research community and provides an effective means of dissemination for IPP-SHR. Anecdotal repor ts gathered regarding the PSR’s wider readership from health professionals, academics and other ser vice providers reflect its impor tance in promoting psycho-social research and suppor tive care ser vices. The PSR’s subscription numbers plateaued during 2009 with insignificant addition or attrition to base subscription numbers. This represents the maturation of IPP-SHR’s reach and scope in targeting core health professionals and individuals interested in Psycho-Social Health research. Most growth in the PSR will be electronic versions of the PSR. Volume 4 Issue 3 was delivered to 3189 physical addresses and 3308 electronic addresses. Improvements to the PSR’s Customer Relation Management database and operations continued to provide efficiency and ensure low cost production. During 2009 the Psycho-Social Review under went a subtle design update to allow for greater sponsorship oppor tunities and clearer links to ser vice providers and IPP-SHR websites. Website analysis reflects rises in ar ticle requests, website traffic, abstract views, electronic contact and content submissions following a PSR release. Fur ther work on the development of the e-version of the PSR is planned in 2010. This includes a greater linkage between postal and electronic content, member forums, easier layout and navigation, and a flipable PDF. It is anticipated the e-version will be released in conjunction to planned upgrades of the IPP-SHR website.

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Podcasts Coupled with the Psycho-Social Review and the website, IPP-SHR Podcasts represent an impor tant pillar in IPPSHR leadership strategy in the psycho-social enterprise. In 2009, IPP-SHR published 44 podcasts and maintained a consistent publishing output of one podcast per week ever y Friday. Reflecting this commitment, subscription numbers increased to 1770 email subscribers while RSS subscribers remained constant at approximately 1500 viewers. IPP-SHR reached a significant milestone in 2009 when it celebrated its 100th podcast with a special podcast inter viewing key note and significant speakers at the Psycho-Oncology of New Zealand conference in Dunedin. IPP-SHR Podcasts were also represented at the Oncology Social Workers Australia annual conference with a listening and information booth and introduction to this resource by the conference convener. IPP-SHR Podcasts continue to be innovative with new dissemination strategies and content being released and planned during 2009. To increase dissemination and remove burdens for other institutions or individuals wishing to post IPP-SHR Podcasts, new licensing was introduced on the website under the Creative Commons Attribution - Non Commercial – Share Alike 2.5 Australian license. This license gives users automatic permission to post, use and distribute IPP-SHR Podcasts freely with appropriate attribution. In 2010, IPP-SHR Podcasts will expand its content with a new podcast called ‘Research Notes.’ ‘Research notes’ will be a complimentar y podcast which will explore the practicalities, methodology and issues associated with conducting research. ‘Research Notes’ has come from a direct response from podcast listeners who wish to understand the ‘how’ and ‘why’ of the research, not just its content. It is hoped that this new format will increase listenership to the podcasts by offering additional content and a complete picture of research that maps methodology to outcome.

IPP-SHR at PONZ. Showcasing IPP-SHR Podcast’s reach and technical ability, IPP-SHR conducted a special series of podcasts recorded at the Psychosocial Oncology New Zealand annual conference to celebrate its 100th release. The podcasts covered issues and theme’s from keynote speakers and were co-published between PONZ and IPP-SHR, CQUniversity.

Leading in Psycho-Social Health Research


IPP-SHR Podcast List for 2009 For Sacred Use Only: Tobacco Use Among American Indian/Alaskan Natives in the USA Claradina Soto, Doctoral Student and Project Coordinator, Institute for Prevention Research, Keck School of Medicine, University of Southern California, USA

Queens Medical Centre, University of Nottingham, United Kingdom

The Artificial and the Natural: Psychiatrists’ Dealing With Moral Distress Dr Wendy Austin, Professor and Canada Research Chair in Relational Ethics in Health Care, Faculty of Nursing, University of Alberta, Canada

We Did Not Choose This Life: The Stigmatisation of Poverty Dr. Linda Reutter, Professor, Faculty of Nursing, University of Alberta, Canada

Steroid Use in Haematology: The ‘Loud Silence’ On Psychological Side Effects Dr Pam McGrath, Director, International Program for Psycho-Social Health Research, Central Queensland University, Brisbane, QLD, Australia

An Unexpected Diagnosis: How Parent/Newborn Experiences are Affected from Increased Newborn Screening Dr Rachel Grob, Director, The Child Development Institute, Sarah Lawrence College, Bronxville, NY, USA

‘It’s Up To You...’: How Doctors Influence Women’s Birth Choices Following a Caesarean Dr Karen Goodall, Lecturer in Psychology, School of Social Sciences, Media and Communication, Department of Psychology, Queen Margaret University, Edinburgh, United Kingdom

I’m Not Worthless or Childlike: Stigma and Ageism within Health Care Practices Dr Stephen Neville, Senior Lecturer and Postgraduate Programme Coordinator, School of Health and Social Services, Massey University, Auckland, New Zealand

Loss and Disorientation: Helping international medical graduates integrate into the Canadian workforce Dr Anne Wong, Associate Clinical Professor, Director, Department of Anaesthesia, Health Sciences Centre, McMaster University, Ontario, Canada

Terminal Dehydration: The Experience and Perceptions of End-of-Life Palliative Care Nutrition and Hydration Dr Pamela van der Riet, Senior Lecturer and Deputy Head, School of Nursing and Midwifery, University of Newcastle, New South Wales, Australia The Ideal Reality: Patients’ Expectations On the Use of Medications Dr Lisa Dolovich, Research Director and Associate Professor, Department of Family Medicine, McMaster University, Ontario, Canada Self-Discipline and Self Care: Patients’ Perspectives of Telemedicine Assisted Diabetes Management Dr Paula Trief, Senior Associate Dean for Faculty Affairs and Faculty Development and Professor, Department of Psychiatry and Medicine, SUNY Upstate Medical University, Syracuse, NY, USA Managing the Debilitating Affects of Chronic Pain Dr Carol Campbell, Assistant Professor, College of Arts and Sciences, Zayed University, Abu Dhabi, United Arab Emirates The Combating Civilian: Suicide Risk Factors in Combat Veterans Dr Lisa Brenner, Director of Education, Veterans Administration VISN 19 Mental Illness Research, Education and Clinical Centre (MIRECC), Denver, Colorado, USA Social Well-being: The Therapeutic Values of Urban Public Spaces Dr Vicky Cattell, Honorary Senior Lecturer, Centre for Psychiatry, Wolfson Institute of Preventative Medicine, Queen Mary’s School of Medicine and Dentistry, London, UK The Final Shock?: What Prevents Physicians from Discussing Deactivating Defibrillators at the Endof-Life Dr Nathan Goldstein, Assistant Professor, Director, Integrated Fellow in Palliative Medicine, Hertzberg Palliative Care Institute, Brookdale Department of Geriatrics and Adult Development, Mount Sinai Medical Centre, NY, USA Action or Inaction: What Influences a Stroke Sufferer to Seek Help and When Natasha Moloczij, Person Centred Rehabilitation Research Team (PCRrt), Auckland University of Technology, New Zealand Company in the Cyber-Age: A Dutch Intervention with Seniors Using the Internet to Overcome Loneliness Dr Tineke Fokkema, Researcher at the Netherlands Interdisciplinary Demographic Institute, (NIDI), The Hague, Netherlands Transcending Race: Surrogates on the Burdens of End-of-Life Decisions Dr Ursula Braun, Research Director, Palliative Care Unit, Michael E. DeBakey VA Medical Centre, Houston, Texas, USA Stigma Causes TB Sufferers in Ghana to Avoid Seeking Help Dr Emmanuel Atsu Dodor, PhD graduate in Public Health, Division of Epidemiology and Public Health,

Helping Teenagers with Cancer to Connect Jane Cassano, Social worker, Paediatric Oncology, McMaster Children’s Hospital, Ontario, Canada

Confronting a Two Faced System: Integration of a Holistic Paradigm of Practice in South Africa Dr Adele Agatha Tjale, Lecturer, Medical School, Department of Nursing Education, University of Witwatersrand, Johannesburg, South Africa A Mother’s Guidance: Grandmother Breastfeeding Support for Mothers Dr Jane Grassley, Assistant Professor, College of Nursing, Texas Women’s University, Texas, USA To Recruit and Retain: Overseas Trained Doctors Working In Rural Indigenous Areas Dr Angela Durey, Lecturer, Rural Health Teaching and Learning, Combined Universities Centre for Rural Health, University of Western Australia A Social Evil?: Peer-based Needle Program For Drug Users In Vietnam Dr Anh Ngo, Research Fellow, School of Population Health, University of Queensland, International Health Evidence for Health Policy in Vietnam Project, Health Strategy and Policy Institute, Hanoi, Vietnam Understanding the Bond: The Indigenous Connection To Country Jonathan “Yotti” Kingsley, PhD Candidate, Deakin University, Melbourne, Australia and visiting Scholar, Cambridge University, UK Keeping Ones Distance: Social Avoidance of People with Mental Disorders Dr Anthony Jorm, Professorial Fellow, ORYGEN Research Centre, University of Melbourne, Victoria, Australia Staying Strong: Understanding the Resilience of Bosnian Refugee Women Dr Marie-Antoinette Sossou, Assistant Professor, College of Social Work, University of Kentucky, USA The Price of Perfectionism: Understanding The Emotional Turmoil Of Classical Dance Dr Antoinette van Staden, Director, South African Youth Ballet Company, University of Wolverhampton, UK Threatening and Appealing: The Fear of Childbirth Christina Nilsson, School of Health Sciences, University College of Boras and Vaxjo University, Sweden Being Truthful, Nurturing Hope: Doctors’ Communications with Cancer Patients Dr Geraldine Leydon, Senior Postdoctoral Research Fellow and Medical Sociologist, University of Southampton, Aldermoor Health Centre, Southampton, United Kingdom

‘It’s Okay to Cry’: Helping Chinese Fathers Cope with Their Child’s Cancer Dr Betty Wills, lecturer, Trent/Fleming School of Nursing, Ontario, Canada

Fear of the Unknown: Supporting Cancer Patients Who Are Facing Radiation Therapy Caragh Miller, Lecturer, Division of Radiation Therapy, School of Medicine, Trinity College, University of Dublin, Republic of Ireland Sex after Surgery: Helping Nurses Talk to Colorectal Cancer Patients about Sexuality Marie Beck, Colorectal Nurse Specialist, Lincoln County Hospital, Lincoln, UK ‘Incomprehensible Shock’: How Patients Make Sense of Acute and Unexpected Spinal Injury Dr Vibeke Lohne, Associate Professor, Faculty of Nursing, Oslo University College, Oslo, Norway. ‘It Cuts Both Ways’: Understanding the ‘Almost Normal’ Life of Adolescents with Defibrillators Dr Vicki Zeigler, Assistant Professor, College of Nursing, Texas Woman’s University, Texas, USA. ‘Should We Restore The Tooth Or Extract It?’: Ethical Challenges Involved In Spending The Public Health Dollar Nancy Baum, PhD candidate, Department of Health Management and Policy, School of Public Health, University of Michigan. Ann Arbor, Michigan, USA ‘An Inescapable Reminder’: Understanding the Distress of Living with a Malignant Wound Susan Alexander, Doctoral student, Central Queensland University, Queensland, Australia ‘You Are The First Person Who’s Asked Me...’: The Importance Of Understanding Loss And Grief In People With Schizophrenia Maria Mauritz, Manager, Support and Psychosis Programme, GGNet Zevenaar, Warnsveld, The Netherlands ‘Catch Me Before I Fall’: Supporting Young People With Mental Illness As They Become Adults Pauline Jivanjee, Co-Principal Investigator, Research and Training Centre on Family Support and Children’s Mental Health, Portland State University, Portland, Oregon, USA Factors Which Influence Indigenous Peoples’ Cancer Seeking Behaviour Shaouli Shahid, Sessional Academic, Centre for International Health, Curtin University of Technology, Perth, Western Australia


Contact Details IPP-SHR, CQUniversity, Brisbane Office, Po Box 796 Toowong Q 4066 Australia Telephone: + 61 7 3025 3377 Email: ipp-shr@cqu.edu.au www.ipp-shr.cqu.edu.au


IPP-SHR Annual Report 09