Members’ Magazine | Autumn 2013 www.wlmembership.org
Age is just a Number
Read Alf’s story on page 8
Don’t hide your symptoms See page 10
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Dear members, Welcome to the autumn edition of the be healthy, be heard membership magazine It’s now been six months since we took over the reins from the Primary Care Trusts and we’ve been working hard to make sure the services we are commissioning meet the needs of patients across West Leicestershire. To help you understand more about our role in the NHS and our plans for this year we’ve produced a new patient guide. You can find out more on page 3. We are currently working on a number of projects including a review of community health services in Ashby. You can read the latest news and developments on pages 4 and 5. We’ve also been busy creating a new self-help directory which offers contact details for a whole range of groups, clubs, classes and organisations that can offer you support with managing a long-term condition. Find out more on page 7. Our cover star, 93 year old Alf Winter, proves that age is indeed just a number as he explains his role as the primary carer for his 59 year old son. You can read his inspirational story on pages 8 and 9. This edition also features a followup to our cancer screening article from the summer issue with more information on bowel cancer. Bowel cancer can be successfully treated in over 90% of cases and screening can detect this type of cancer at a much earlier stage. Whilst talking about bowel problems might seem
embarrassing, it’s important to speak with your GP if you have any concerns. Turn to page 10 to learn more. Here at West Leicestershire CCG we want to make sure that the voice of our patients influences everything we do. Our Listening Booth has been out and about across the area hearing your views on the NHS and local healthcare services. More information is available on page 12. We’re also encouraging you to share your email address with us so we can keep you informed of our latest news, consultations, events and online surveys via our regular e-bulletin. Turn to page 11 to find out more. With the nights getting darker you might be thinking about Bonfire night and perhaps getting friends and family together for a firework display at home. On page 14 you can find handy tips and advice on how to stay safe when organising your own display. Wishing you a healthy autumn, Dr Nick Pulman Chair, West Leicestershire Clinical Commissioning Group
If you have a practical tip, health suggestion or an interesting story, please send it for inclusion in the next issue using the contact details below. We are also looking for cover stars – send us your picture and health story if you would like to appear on our cover Email: firstname.lastname@example.org Post: Please send all correspondence to: West Leicestershire Clinical Commissioning Group Freepost ADMAIL 4149 Loughborough LE11 1YW Telephone: 0300 555 5345 Please note that the membership helpline is open between 9am and 5pm, Monday to Friday. Published by: GEM CSU, St John’s House, 30 East Street, Leicester, LE1 6NB
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We’ve created a new prospectus called Moving healthcare forward together. The prospectus has been created as a handy guide to help explain who we are, how we are run and our plans for the year ahead. It can be downloaded from our website at www. westleicestershireccg.nhs.uk and is also available at your local GP surgery. Our website also has a wealth of information including details of local health services, health advice, opportunities to get involved with consultations to shape services and copies of our plans and strategies.
West Leicestershire Clinical Commissioning Group (WL CCG) have now been a statutory NHS body for more than six months and we want to make sure our patients know how we are working to improve healthcare services in West Leicestershire
Who are we?
How are we run?
• We are a new clinically-led local NHS organisation covering North West Leicestershire, Charnwood, and Hinckley & Bosworth
We are clinically-led by a Board that is made-up of local GPs, specialist clinician, a nurse, practice manager and three local residents, who are supported by a team of experienced NHS professionals.
• Set up in 2011 and officially launched in April 2013 • Responsible for planning and buying local health services for all our 366,000 residents, including;
We are committed to continually improving:
- hospital and ambulance
• the quality of our local health services, and
• the health and wellbeing of our local population
- community nursing - mental health and learning disability services - services provided by voluntary sector organisations • Work with family doctors from the 50 GP practices in the local area • £362 million budget • Work in partnership with all other local health and social care providers
• the way in which our NHS resources (staff, equipment and buildings) are used The big things we are going to do this year Local views and suggestions have also helped us to decide which priority areas we need to focus on this year. This will enable us to make really big improvements to the health and lives of local people. Details of our plans for 2013/2014 can be found in our prospectus.
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Fit for the
– having your say on community health services in Ashby West Leicestershire Clinical Commissioning Group is carrying out a review into community health services in Ashby de la Zouch, including Ashby Hospital We want to make sure that patients get the right care, at the right time, in the right place. The review will help us to understand how well the current services meet patients’ needs and whether we are making the best use of resources. This review is part of a larger set of plans to help bring healthcare closer to home, ideally in patients’ own homes or local health centres. Community health services cover a wide variety of healthcare. Overall they refer to care that is not critical or for an emergency, and which can be provided within community settings, such as a community hospital or patients’ homes. For
instance they include care for people with longterm conditions. Another of its familiar functions is outpatient clinics, along with others for specific issues, like sexual health. Community health services are also multi-disciplinary and involve consultant specialists, specialist nurses, district nurses, school nurses, therapists, and others. Currently, Ashby Hospital provides the following: • Outpatient clinics for a variety of conditions • Therapy services for in and outpatients, including physiotherapy and occupational therapy • Specialist clinics for children and young people e.g sexual health, bedwetting
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• Rehabilitation and end-of-life care • A staff base for school nurses, district nurses, health visitors and therapy staff, special needs children’s services, falls team In patients’ homes we have already been piloting a ‘virtual ward’ so patients can be treated by health and social care professionals in familiar surroundings rather than in hospital. Still on the home front, Leicestershire Partnership Trust is running ‘Intensive Community Support’ which also aims to give care in people’s homes as much as possible, integrating health and social care. As Ashby people know, the hospital is a Victorian building. Professional surveys have shown that it is currently safe and there is a backlog of maintenance work which would cost almost £1m. Each year it costs £380,000 to run the building, i.e. not including the healthcare budget. This summer we have been working with our partners and listening to our patients and the public to help us better understand how and where these services should best be provided in the future. We held an engagement event attended by more
than 60 people, and we launched a public survey. We have been using a ‘Listening Booth’, a small public kiosk where people can have their say. It has been out and about in West Leicestershire to gather views. Thanks to people’s answers, we will be better placed to understand what the best options may be for the future. Nothing has been decided yet. If the options involve significant changes to present-day healthcare services, then there will be a full public consultation to make sure the views of patients are at the heart of tomorrow’s community healthcare. We’ll be keeping patients and the public informed throughout the Fit for the Future review process using the be healthy, be heard membership scheme, our website and other channels including the local media. You can visit our website at: www.westleicestershireccg.nhs.uk; join the membership scheme at www.wlmembership.org, or if you’re already a member and want to update or give us an email address so you can receive our e-bulletins please contact email@example.com or call 0300 555 5345. Autumn 2013, Issue 6 be healthy be heard 5
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Turn your Friday
for Breast Cancer Care! 1 in 8 of us will be diagnosed with breast cancer during our lifetime so this October, Breast Cancer Care wants people across the UK to show their support by organising a fun crafty Pink Friday event at work or home. Breast Cancer Care is encouraging people nationwide to take part in its Pink Friday fundraising campaign by wearing pink, eating pink and crafting pink on any Friday of the month! All the money raised will go towards supporting women and men affected by breast cancer.
From knitting pink cupcakes to crocheting a group quilt to designing your own cards, having a Pink Friday is really easy to do! Make sure you enjoy some pink treats too!
Breast Cancer Care supporter Andrea McLean said: “Grab your favourite ladies together for an afternoon of pampering, partying or just simply some quality time together with decadent cakes, all pink themed of course! We’ve all had loved ones and friends affected by breast cancer so it really doesn’t matter what you do, so long as it’s pink and on a Friday – the best day of the week!” Register now for a free Pink Fridays fundraising kit, full of party ideas and fundraising tips. Visit www.breastcancercare.org.uk/pinkfridays or call 0870 164 9422. West Leicestershire Clinical Commissioning Group is always keen to hear from you! Send us your photos and stories from any events you are involved in over Breast Cancer Awareness month to Communications@ westleicestershireccg.nhs.uk with your full name and details of the event!
Real life story – Sarah Turner, Leicestershire Sarah Turner said; “I was diagnosed with breast cancer in 2010 at the age of 35. My daughter was just three months old. It was really scary and as a younger woman with breast cancer I felt very lonely and isolated. I used many of Breast Cancer Care’s services but I found their helpline and Younger Women’s Forum particularly helpful. The knowledge and information I received helped me to make informed decisions about my treatment. At the Younger Women’s Forum I met other young people who knew what I was going through and it was great to get that emotional support.
“Since my diagnosis I have quit my job, started my own business and moved from bustling London to lovely Leicestershire. I’m now giving back to Breast Cancer Care by sitting on their fashion show committee. The Show helps raise around half a million pounds each year to ensure Breast Cancer Care can continue to provide their services for free. “Breast cancer has been a huge journey but I do feel I now value life and the simple things more. Yes it’s devastating, yes it is the hardest thing you will ever need to deal with and yes it will change your life. But breast cancer isn’t the end – think of it as a beginning.”
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HelP & suPPort at your
fingertips Later this year West Leicestershire Clinical Commissioning Group will be launching a brand new self-help directory to support patients with long-term conditions. The directory will contain contact details for a range of groups and organisations who can offer support, advice and guidance for conditions including asthma, Parkinson’s disease, chronic obstructive pulmonary disease and other respiratory conditions, heart conditions, diabetes, multiple sclerosis and mental health. There will also be information for carers and details of local groups or services that can help with stopping smoking, weight management and pain management. GPs across West Leicestershire will also be able to access the directory and advise patients on where they can access additional local self-help. The directory will be available on our website soon and we’ll let you know when it is up and running.
message West Leicestershire Clinical Commissioning Group has introduced a new text messaging service called ‘Flo’ to help support patients to self-manage their long-term conditions. Patients who could benefit from this innovative new service will be offered more information by their GP and given the option to sign up to ‘Flo’. Once signed up, patients will receive text messages including reminders to take medication and information to help them to manage their condition better, for example asthma and blood pressure. As part of the service some patients could benefit from having a blood pressure machine which they can use at home over a period of time. ‘Flo’ sends text messages to remind patients when the readings are due and asks the patient to text the readings back as well as sending reminders to take their medication. All of the readings are then available for their GP to review on the ‘Flo’ website to see if there is an improvement in the patients’ blood pressure without the need for the patient to make numerous visits to the practice. If you have a long-term condition, speak to your GP to find out if ‘Flo’ could help you manage your condition better.
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Age is just a Sitting on a comfy sofa in a home in Ashby-de-la-Zouch it’s hard to believe that the gentleman on the other cushion is in his 93rd year of life. With the determination, charm and wit of a man far more his junior, Alf Winter is an inspiring character But what makes be healthy, be heard member Alf so inspiring? Well, he is the primary carer for his 59 year old son, Keith who has cerebral palsy and is now wheelchair bound. “I just do it,” says Alf who has been Keith’s main carer all his life. A typical morning for Alf starts at 6am as he gets himself up and organised for the day ahead. At 7am, a professional care worker arrives to bathe and dress Keith whilst Alf gets his son’s breakfast ready. The care worker comes for one hour every day but the rest of the time, it’s just Alf providing the care Keith needs. When they leave at around 8am, Alf continues his day cooking, cleaning, washing and shopping with breaks for visitors including Eileen Wheeler, scheme manager of the sheltered accommodation run by Derwent Living, who visits daily to check on them.
West Leicestershire CCG has signed the The Leicestershire Carers Charter which has been developed as a result of one of the actions promised in the Joint Leicester, Leicestershire & Rutland Carers Strategy 2012-2015. The charter has seven promises; written by carers, for carers. When we signed the charter we promised that we will: • Recognise and value carers • Recognise young carers • Inform and advise carers • Help and support carers • Involve carers in developing services • Support carers in employment • Involve carers in care planning and discharge
“We used to live in a three bed house,” says Alf, “but it became a bit too much for me. We had a stair lift to help but here everything is on the same level and Keith can do more for himself.”
Alf also has a monthly visit from Mencap, a charity supporting people with a learning disability, and their families and carers. “They come round to make sure I’m ok,” he says, “we have a nice chat over a coffee.”
“Keith is Alf’s reason for getting up in the mornings and he lives daily with the concern of what may happen to his son when he’s no longer around. Alf is such a caring person and ensures that Keith has everything he needs. He doesn’t realise how rare he is – not everyone would be prepared to show such commitment and very often put themselves second, especially when they reach the age of 93. Never have I observed such love and dedication from a father.”
Keith used to go to a day centre during the weekdays but now prefers to spend time with his father. “They’ve asked Keith if he wants to go back but he tells them he’s ok here with me,” says Alf, “and if he’s happy then I’m happy.”
Eileen Wheeler, Scheme Manager, Derwent Living.
Three times a year, Keith goes for respite care and Alf is usually taken on holiday by his daughter and son-in-law for a well-deserved rest. Despite being perfectly happy to take him away for a few days, it doesn’t stop Alf putting the needs of others before his own. “It’s not really fair on them,” he comments,
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“it’s their holiday too and they have to make sure we’re back ready for Keith coming home.” Aside from the few bits of extra support, Alf is happy in his role and manages the day-to-day stresses that being a carer can bring with positivity, “You can’t let it get on top of you,” he comments. As one of over 6 million carers in the UK, Alf has been sharing his story with others over the last few years. He’s inspired others through articles in local and national newspapers, spots on local TV news and magazine features for charities and support organisations. Showing no signs of slowing down, Alf proves that age is really just a number.
Find out more NHS information and advice: www.nhs.uk/carers Leicestershire County Council: www.leics.gov.uk/carers Carers Direct helpline: 0808 802 0202 The helpline is open from 9am to 8pm Monday to Friday, and from 11am to 4pm, at weekends. The helpline is closed on bank holidays. Calls are free from landlines and mobiles within the UK.
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sympt Don’t hide your
behind closed doors
In our summer edition we told you more about the free NHS cancer screening programmes. This autumn, be healthy be heard spoke to Beating Bowel Cancer who explained more about bowel cancer and its symptoms We all experience problems with our bottoms and bowels from time to time and usually there’s nothing to worry about. Not all symptoms mean it is bowel cancer.
There are many common conditions that can affect the health of our bowels, and although you might feel embarrassed to talk about them, it is important to get checked out by your GP.
However, if you have one or more of these symptoms for more than 3 weeks, you should talk to your GP:
The early symptoms of bowel cancer are very similar to other, much less serious problems with the bowel, such as haemorrhoids (piles), IBS (irritable bowel syndrome), diverticular disease, and inflammatory bowel diseases (Crohn’s or colitis). You should try to be aware of what is normal for you so that you recognise any unusual changes.
• A change in your bowel habit (diarrhoea, constipation, a feeling of incomplete emptying of your bowels) • Bleeding from the bottom or blood in your poo (with no obvious reason such as piles or a tear) • Pain, or a lump in your tummy • Unexplained tiredness, dizziness or weight loss Who are Beating Bowel Cancer? Beating Bowel Cancer are dedicated to saving lives by working in partnership with individuals, local communities, clinical communities and government to improve public awareness of bowel cancer and to increase the rate of early diagnosis. Their team of nurses supports bowel cancer patients and their families by phone, by email, on their forum and through Facebook and Twitter. Whether you are worried about symptoms, recently diagnosed or living with bowel cancer they are there to help. Call their helpline on 08450 719 301 or email firstname.lastname@example.org
Bowel cancer, also known as colorectal cancer, affects the colon (large bowel) or rectum (back passage). It usually grows very slowly over a period of up to 10 years, before it starts to spread and affect other parts of the body. The good news is that, if diagnosed early, bowel cancer can be successfully treated in over 90% of cases. Screening for bowel cancer The free NHS bowel screening programme involves a simple test which detects blood hidden in small samples of poo. Bowel screening can detect bowel cancer at a much earlier stage, before people are experiencing any obvious symptoms. The kit comes to you in the mail and you take samples over the course of a few days, in the privacy of your own home. Once complete you simply return the kit in the post to a laboratory for testing. A FOB test does not diagnose bowel cancer, but a positive
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test will trigger an invitation to have an investigation to find out what is causing the bleeding. Bowel screening kits are sent out every two years to everyone in England aged 60 to 74. People over 75 can request a screening kit by calling the helpline 0800 707 6060. The programme should start within a few days of your 60th birthday and continue as long as you are registered with a GP practice and they have an accurate record of your home address. If you are within the screening age range and have not yet received your first test kit, please contact the national helpline to request one. Find out more See how easy it is to complete the screening kit at www.beatingbowelcancer.org/bowel-1-2-3. For more information on bowel cancer symptoms and for support and information on surgery, treatment and living with bowel cancer, please visit www.beatingbowelcancer.org where you can also request printed booklets free of charge.
Get online and become an e-member Being a member of the be healthy, be heard scheme has a wealth of benefits including opportunities to have your say on how health services are provided, information on health initiatives and events, a membership card to get discounts and healthy living advice. However if you provide us with an email address, you’ll receive even more information from us. As an e-member you’ll receive regular e-bulletins containing CCG news,
partner information and events, and be sent email invitations to take part in the latest CCG consultations and online surveys. You can also opt to receive our quarterly magazine online if you’d prefer to help us cut down on paper waste and protect the environment. If you’d like to add or update you email with us then call us on 0300 555 5345 or email info@ elrmembership.org
If you’re not yet a member of the be healthy, be heard scheme but would like to join you can call: 0300 555 5345, pick up a postal form at your local GP practice, or complete a form online at www. westleicestershireccg. nhs.uk/getting-involved/ become-a-public-member
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Look out for our
If you spot our listening booth why not take the opportunity to share your views on local healthcare services?
West Leicestershire Clinical Commissioning Group (WL CCG) want to make sure the patient voice is part of everything we do. As part of our work to better understand the patient experience and to find out what is most important to our patients we’ve created a listening booth that will be travelling around West Leicestershire. Staffed by representatives from the CCG and our patient leaders, the aim of the listening booth is quite simply to listen. You might want to tell us what you like about local healthcare services, what improvements could be made or discuss any problems you may have experienced. Whatever your healthcare related story or experience, we want to hear from you. So if you spot our booth when you’re out and about, please come along and share your story.
NeW UrGeNT CAre CeNTre The new Urgent Care Centre at Loughborough Hospital is open 24 hours a day, 7 days a week and 365 days a year and you do not need an appointment. The Urgent Care Centre is for people of all ages who have urgent health needs that are not life threatening. Service enhancements include: ■ Round the clock access to medical support from health professionals ■ X ray availability from 5 days to 7 days a week ■ Working with EMAS to ensure right treatment, right place, first time
Less need for transfers to A&E which is better for patients and visitors ■ 143 additional parking bays including extra disabled, parent and child spaces You can contact the Urgent Care Centre by calling 01509 568800. ■
Loughborough Hospital Urgent Care Centre Hospital Way Loughborough LE11 5JY
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updates d n a s w e n – s e s a nd updat w e n – s e t a d p u – news a nd
On 3 July Healthwatch Leicestershire, Healthwatch Leicester, and Healthwatch rutland met with John Adler CeO of University Hospital Leicester (UHL). Fifteen representatives from all three local Healthwatch asked questions to John covering array of concerns such as patient to nurse ratio, emergency care, Carers Charter, delays in treatment, car park charges and UHL complaints procedure. These meetings will be taking place quarterly, all local Healthwatch members have the opportunity to submit questions. You can read latest questions and answers in full in the news section on our website: www.healthwatchleicestershire.co.uk
Healthwatch Leicestershire Healthwatch Leicestershire Interim Leadership Group (ILG) now meet in public at Voluntary Action Leicestershire. The Interim Leadership group provides strategic advice and guidance and has been overseeing the transition from Leicestershire Local Involvement Netwoks (LINks) to Healthwatch Leicestershire. These meetings are an opportunity for the general public to observe discussions and ask questions to the ILG members. The next meetings are taking place on 30 September and 5 November 2013. If you would like to come along call 0116 2574 999 or email: email@example.com Join Us Become a member of Healthwatch Leicestershire and together we can have a stronger voice to influence and challenge how health and social care are provided locally. Our members have the opportunity to get involved by representing local people at health and social care meetings, providing signposting support and helping us to engage with local communities across the county. Full details of our membership and how to get involved are available on our websites: www.healthwatchleicestershire.co.uk Autumn 2013, Issue 6 be healthy be heard 13
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Fireworks – the facts Every autumn many families enjoy watching fireworks but if you’re thinking of holding a display at home this year, make sure you stay safe
Did you know?
• Don’t drink alcohol if you’re lighting fireworks • Keep fireworks in a closed box
• The majority of firework-related injuries happen at family or private parties
• Follow the instructions on each firework and be sure they’re suitable for home use
• Around half of all injuries are to children under the age of 17
• Light fireworks at arm’s length using a taper
• The most common injuries are to hands, followed by the eyes and face
• Stand well back and always supervise children around fireworks • Never go near a firework that has been lit. If it hasn’t yet gone off, it could still explode • Never throw fireworks or put them in your pocket • Light sparklers one at a time and wear gloves, don’t give sparklers to children under five • Keep pets indoors
• A rocket can reach speeds of 150mph and a firework shell can reach as high as 200 metres • Three sparklers burning together generate the same heat as a blowtorch For more information please visit: www. nhs.uk/livewell/fireworksafety/Pages/ Fireworksafety.aspx
• Only buy fireworks that comply with British Standard 7114 or its European equivalent. Instructions should be in English • Only buy from a licensed retailer. It’s illegal to sell fireworks to anyone under the age of 18 14 Autumn Autumn2013, 2013,Issue Issue6: 6:be behealthy healthybe beheard heard
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Apricot bread pudding Serves: 4 adults Preparation time: 15 minutes Cooking time: 35 minutes
Here’s a delicious version of bread and butter pudding, which is quick and easy to make What to do:
Grease a 1 litre baking dish with ½ teaspoon of the low-fat spread. Spread the bread with the rest of the low-fat spread and cut each slice into triangles. Arrange them in the dish with the chopped apricots.
25g low-fat spread
Beat together the eggs, milk and vanilla extract. Stir in the sugar, allowing a few minutes for it to dissolve. Pour over the bread. Cover and leave to soak for at least 20 minutes. Preheat the oven to 180°C, fan 160°C, gas mark 4. Uncover the pudding and bake for about 35-40 minutes, until set and golden brown. This recipe has been taken from the Change4Life ‘Supermeals for under a fiver’ cookbook
6 slices of sliced fruit bread 50g ready-to-eat apricots chopped 2 eggs 450ml semi-skimmed milk 1 teaspoon vanilla extract (optional) 45g caster sugar
Nutritional information: Per adult portion (i.e. ¼ recipe) 295 kcals/1233kJ 12g protein 8.5g fat, of which 3g saturates 46g carbohydrate, of which 29g sugars 1.5g dietary fibre 330mg sodium 0.8g salt Tips If you like, prepare the pudding in advance and keep in the fridge so that it can soak for several hours before baking. Use ordinary white bread instead of fruit bread and add a handful of sultanas and dried cherries or cranberries to the pudding. Autumn 2013, Issue 6: 6 be behealthy healthybe beheard heard 15
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Sit back and relax with a
Each Sudoku grid contains nine squares, each consisting of nine spaces; each square must contain the numbers one through nine, with no repeats. In addition, every horizontal row and vertical column must contain the numbers one through nine, with no numbers repeated.
We can provide versions of all be healthy, be heard membership publications in other languages and formats such as Braille and large print on request. Please contact the engagement and involvement department on 0116 295 4183. Please state which publication you require when you call.
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