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A Comprehensive Resource Guide for California’s Central Valley Caregiver

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Having the Heart to Care


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Having the Heart to Care A Comprehensive Resource Guide for California’s Central Valley Caregiver, 2014 Edition San Joaquin, Stanislaus and Merced Counties Šcopyright 2013-2014 by Healings in Motion All rights reserved including the right to reproduce this handbook or portions thereof in any form.

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Healings in Motion (HiM) is pleased to present the Resource Guide for California’s Central Valley Caregiver, 2014. The theme for this year’s publication coincides with our 6th annual “Caring for the Caregiver” Symposium, “Having the Heart to Care”. It blends national, state and local resources for San Joaquin, Stanislaus and Merced counties. This handbook is intended to be a valuable tool for families, Clinicians and organizations supporting the continuum of care.

Board Members Mary Nicholson Board Chair

Rayn J. White, Esq. Vice-Chair, Secretary

Talanna Williams Treasurer

Jim Chong Member

The Resource Guide for California’s Central Valley Caregiver, 2014, is made possible in part by generous financial support from Genentech, San Joaquin General Hospital, Dameron Hospital, Health Plan of San Joaquin, South San Joaquin Irrigation District, Republic Services and the Sierra Health Foundation. Note: We appreciate the information for listings and advertisements in this handbook. Their inclusion does not imply an endorsement of products or services. Please use your best judgment and seek references appropriately.

www.healingsinmotion.org contact@healingsinmotion.org (877) 672-4480

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J. “CHAKA” Santos Member

Connie Seaton Member

Pam Galley Member-Elect

Committee Corie Moyer Dennis Lee Manuel Mendoza Ana Marquez Les Fong Sandra Jemison

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Our Mission Healings in Motion’s mission is to reduce the incidence of stroke through education and to support recovery from stroke, Traumatic Brain Injury and some neurological impairments. We support Caregivers honoring their vital role in recovery and the continuum of health care. Healings in Motion is patient-driven and was founded by stroke survivors, Caregivers and concerned clinicians. We are based in Stockton, CA and we serve San Joaquin County and its surrounding region. To volunteer or for more information, visit our website at www.healingsinmotion.org Like us at Facebook www.facebook.com/HealingsinMotion

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Programs and Services Healings in Motion (HiM) is a not-for-profit organization serving San Joaquin County and regional areas within the Central Valley. HiM’s mission is to reduce strokes through education. Many chronic diseases and bad habits are triggers for a stroke. Therefore our approach is for whole wellness. We offer health coaching, educational programs, events honoring champions and Caregivers and we provide support telephonically and through community outreach. Our signature programs include: Stroke Awareness Day, The Coach for Life’s Champions Awards Celebration, the Central Valley Recover, Awareness, Preventing Strokes Program (CV-RAPS), the “Caring for the Caregiver” Symposium and The Brain Aneurysm/AVM Support Group. In addition to our programs, we assist in finding resources. We developed The Stroke Resource Guide and this publication, Having the Heart to Care, A Comprehensive Resource Guide for Caregivers in California’s Central Valley. Note: We initially provided ALL of our programs at no charge. After much advisory and consideration, we now charge a minimal fee to establish a value to our work and services and provide a vested interest in greater participation.

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Community Education Courtesy of the Stroke Awareness Foundation, Stanford and Genentech, Healings in Motion presents an updated presentation for stroke awareness, the risk factors, symptoms and current forms of treatment. To schedule a presentation in your community, place of worship or work place, please call HiM at 877-672-4480 or email us at contact@healingsinmotion.org.

Donations As a not-for-profit community-based organization, HiM accepts requests to speak and participate at community events. Transportation, printed materials and preparation for the presentations are costly. We rely on financial support from individual donors, foundations and corporate partners. Tax deductible donations enable HiM and volunteers to continue offering great programs and services to our community. All donations are tax-deductible to the extent allowed by the law. Healings ad 5/6/13 8:29 AM Page 1 Tax ID 26-1950010

Aging in place with confidence and dignity Our programs focus on “healthy aging” with emphasis on prevention of illnesses, counseling, falls and the management of chronic physical conditions. Our goal is to help seniors prolong their independance and quality of life by providing the services they need to live comfortably in their own home. 178 W. Adams Street • Stockton, CA 95204 209.890.1300 • Fax: 209.890.1301 email: info@centralvalleyseniorservices.org www.centralvalleyseniorservices.org www.healingsinmotion.org

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Having the Heart to Care Contents

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Having the Heart to Care

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Caregiver Profile

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A Tool for Caregivers

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Disclaimer

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A Growing Nation of Caregivers

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Self-Care

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Glossary

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Resources

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HiM’s 2014 Programs

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Having the Heart to Care Plunging into the role as a Caregiver is filled with assumptions and fear of the unknown. High anxiety is experienced by a growing number of men and women caring for a spouse, parent, child or another loved one. Right in the midst of living an already busy schedule, adding the role of Caregiving is daunting, but not exclusive. Former First Lady Rosalind Carter said, “At some point in life, everyone will either ’be’ a Caregiver, ’need’ a Caregiver or ’wish‘ that they had one.” That statement crystalized the growing need for Caregivers as our population ages. The skills acquired by Caregivers are not automatic, nor transferred through osmosis. You learn and grow as you serve in some capacity or stage of Caregiving. Too often it is trial and error. The intensity of the responsibility is based on the progression of a chronic illness or disability. Many Caregivers feel guilt, remorse and/or even bitter and fearful of causing harm to their loved one. The Caregiving process begins with running an errand, washing clothes or helping with preparing foods. As the role of the Caregiver increases, more information, resources and answers to questions are needed. How do I turn properly to prevent bed sores and not injure myself? What moisturizes and prevents a stale breath? How do I get a 2nd opinion? What are some bed activities to keep the mind stimulated? Where and when do I find reliable resources that can make Caregiving easier and more manageable? These are only a few of many questions many Caregivers want to know more about. Caregiving can make you weary, frightened and burned out. It can be lonely, overwhelming and challenging. It can also be rewarding and fulfilling. In addition to paying bills and managing finances, the Caregiver may be charged with making tough decisions on behalf of a loved one. The Caregiver is the advocate or voice communicating with medical teams or be an overseer with professional care centers. Above it all, the journey is memorable and cherished because you have the heart to care.

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Caregiver Profile • • • • • • • • • • • • • • •

Pay Bills & Manage Finances Maintain Records and Opportunities Provide Transportation Do Household Chores Hire Handy People to Do Work Around the House Medication Management Bathing and Dressing or Undressing Advocate Be Resourceful Be Accountable and Make Sure Others Are Too Be Comforting Offer Hope and Inspiration Be a Coach Juggle Everything Be Fierce

Know when you need help • • • • • •

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Fear Burn Out You Are Frightened Feel Not in Control Angry and Short Tempered Feel Stuck Feel Isolated

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A Tool for Caregivers Having the Heart to Care, A Comprehensive Resource Guide for California’s Central Valley Caregiver, is a compilation of information to assist the growing population of family members and skilled professionals caring for elderly seniors, those who are chronically ill and those with a long-term disability. This handbook is culturally inclusive and a valuable resource reflecting the Central Valley’s diverse population. Unique community resources are coupled with nationally recognized agencies that serve Caregivers. Our focus is on self-care for the Caregiver by providing information that makes Caregiving easier, less stressful, prevent burnout and promote wellness. Dr. Gladys Taylor, international speaker on Caregiving says, “We [Caregivers] only come this way one time so we should take better care of ourselves.”

Disclaimer This handbook is not an all-encompassing guide. It is a useful tool for reader’s to delve further into the wealth of resources that currently exist for balance and support. All of the information compiled in this guide was valid and accurate at the time of printing. Use this tool at your discretion It is now part of your Caregiver Toolkit. www.healingsinmotion.org

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A Growing Nation of Caregivers “Not only are their contributions the foundation of the nation’s long-term care system, but are an important component of the U.S. economy, with an estimated economic value of about $350 billion in 2006.” (Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving, a study led by Mary Jo Gibson, AARP Public Policy Institute) The good news is that we are living longer. The bad news is that we are living longer with chronic diseases. There are health fairs regularly, more assisted living and home health care businesses are opening up because caregiving has become a new norm for many households. The “baby boomer” generation, the largest age segment in America, is aging, and diseases, like Alzheimer’s, are estimated to increase in California by as much as 30%. In addition, an increasing number of grandparents are caring for grandchildren. The challenges of the Caregiver have reached a crisis state. Caregivers are primarily taking care of parents, a spouse or significant other, friends, parent-in-law and others, including grandparents, sons, daughters, and extended family. The contributions of America’s family caregivers, along with many friends and neighbors, often go unrecognized in public policy discussions about the costs of health care and long-term services and support. Yet unpaid caregivers provide by far the majority of long-term services and support received by persons with chronic illnesses and disabilities.

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Caregivers are more at risk for infectious diseases, such as colds and flu, and chronic diseases, such as stroke, heart problems, diabetes, and cancer. Depression is twice as common among caregivers compared to non- caregivers. The biggest challenge in Caregiving is self-care. The recognition of the challenges is just the beginning. Now it is time to be armed with resources, know your options and become fearless as a Caregiver. Attending events like the annual “Caring for the Caregiver� Symposium presented by Healings in Motion is therapeutic for the Caregiver’s mind, body, and soul.

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Self-Care Here are a few tips: Have you ever thought about being in business for yourself? You may already be juggling your Caregiving responsibilities with your business. Take steps to prevent or control chronic disease. Taking care of your own health will help you to better care for your loved one longer. It will help you be better as a professional Caregiver. Be wise. Don’t neglect your health. Immunize. Get influenza (flu) vaccine: The Center for Chronic Disease recommends that caregivers of the elderly immunize every year. Get a yearly check-up and the recommended cancer screenings (mammogram, cervical screening, etc.). Tell your doctor that you are a caregiver. Tell your doctor if you feel depressed or nervous. Take some time each day to do something for yourself. Read, listen to music, telephone friends, or exercise. Eat healthy foods and do not skip meals. Tammy Ruiz Owner 209-430-1133 www.tammysjanitorial.com service@tammysjanitorial.com Residential & Commercial Servicing San Joaquin Valley 12

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Your health is your primary business! Develop your own Caregiver Tool kit. Here are some of the items it should include: 1. Patient’s Medical Advance Directive and yours also! 2. The Having the Heart to Care handbook 3. Plan to attend the yearly “Caring for the Caregiver” Symposium presented by Healings in Motion for all kinds of helpful tools. 4. A Journal to record your thoughts and experiences-it will be very valuable later. 5. A notebook that helps you keep records and stay organized with medical visits and meds. 6. A list of services that are recommended by other Caregivers, friends and family. You may not need their information or services now, but you will have them, when you need them. 7. Create a template of all of your responsibilities. Take it out of your head! It will help you sleep. 8. Develop a list of people to call for help with respite, chores and to share tasks as needed. Feel like you’re on a sinking ship? Find a professional health coach to work with you telephonically to help you regain your power and forge ahead!

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Glossary Many people caring for a loved one never even heard of the term, “Caregiver”. Not knowing that simple reference blocks them from having a huge amount of information that could save time, alleviate stress and open the door for Caregivers to communicate. To support your loving and/or professional Caregiving journey, here are some of the words used in health care that may help you navigate better.

A Acute Care Acute care is usually given in a hospital’s Emergency Department. Medical care for health problems that are new can quickly get worse, or result from a recent accident. Advance Directives Written instructions to health care professionals about the amount and type of medical care and treatment a person wants. Advance directives are used when people are too ill or injured or are unable for other reasons to state these wishes for themselves. There are two types of advance directives. One describes the type of care a person wants. The other names someone else (health care proxy or agent) to make medical choices, if needed. You can fill this form out on line by going to the Secretary of State website. Adult Day Care Social and recreational activities offered in a group setting. Adult day care does not offer health services that require a nurse. Adult Day Health Care Programs that provide social and recreational activities and health services to adults who are physically (body) or cognitively (mind) impaired. These take place in supervised and structured settings. 14

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Adult Protective Services (APS) State and local agencies that investigate reports of abuse or neglect. They also offer services to adults (18 years and older) who are physically, sexually, financially, or emotionally abused by someone involved in care. These abuses include neglect, exploitation, or abandonment. Alzheimer’s, a form of Dementia Alzheimer’s disease is a condition in which nerve cells in parts of the brain start to die. It is progressive, which means that mental and physical functions decline in stages. Ambulatory Care Medical care given in an outpatient setting (where the patient is not admitted to a facility). This is usually a doctor’s office or clinic, but may be a hospital. It includes diagnosis, observation, treatment, and rehabilitation. Aphasia Aphasia is an acquired communication disorder that impairs a person’s ability to process language, but does not affect intelligence. Aphasia impairs the ability to speak and understand others, and most people with aphasia experience difficulty reading and writing. Area Agency on Aging (AAA) Agency that gets state and federal funding to plan and coordinate services for people over age 60 within a local area. In some cities, towns and states, the AAA is also known as Department of Aging (DOA). Assisted Living or Assisted Living Facility (ALF) A residence for people who do not want to, or cannot, live independently (on their own) but do not need nursing home care. ALFs offer different kinds of services, including social activities, supervision, and some health care services (but not as many as in a nursing home). ALFs are privately owned and prices vary.

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Assistive Technology or Equipment Any device that helps you live independently or “assists” you to live functioning better. There are both high tech and low tech adaptive or assistive devices, including high tech devices include wheelchairs (powered and manual), electronic magnifiers, vehicle modifications, telephones with enhanced amplification (for those who are hard of hearing), special kitchen supplies, computer programs, and other types of technology. Attending Doctor Senior doctor at a teaching hospital. This doctor is often in charge of (responsible for) a patient’s care. The attending doctor supervises fellows (postgraduate doctors in a specialty), residents (house staff or doctors-intraining), and medical students.

B Balance Disorder A balance disorder is a condition that makes you feel unsteady or dizzy, as if you are moving, spinning, or floating, even though you are standing still or lying down. Balance disorders can be caused by certain health conditions, medications, or a problem in the inner ear or the brain. Bed Hold Policy A term used in skilled nursing facilities to define the length of time the facility will hold a patient’s bed in case he or she has to leave the facility for care elsewhere, such as hospital, or for any other reason. There is a fee for holding a bed and each facility has its own policies and fees. If a patient has to leave the facility and did not secure a bed hold, there is no guarantee that he or she will be able to return to that facility for continuation of care and treatment. Bed Sores Bed sores, also known as pressure ulcers, are the painful condition that occurs when constant pressure is applied to soft tissue. They are most often the result of a patient being bedridden and unable to change positions of 16

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their own volition. Besides being extremely painful, bed sores can lead to many dangerous complications for sufferers, including osteomyelitis (a bone infection), sepsis (whole-body inflammation), anemia, and gangrene. Beneficiary Listed as the recipient of an individual’s belongings after death. Usually the beneficiary is listed on an insurance policy. Blood Pressure Blood pressure rises with each heartbeat and falls when your heart relaxes between beats. While BP can change from minute to minute with changes in posture, exercise, stress or sleep, it should normally be less than 120/80 mm Hg (less than 120 systolic AND less than 80 diastolic) for an adult age 20 or over. About one in three (33.5%) U.S. adults have high blood pressure. Blood Type There are eight different common blood types, which are determined by the presence or absence of certain antigens – substances that can trigger an immune response if they are foreign to the body. There are four major blood groups determined by the presence or absence of two antigens – A and B – on the surface of red blood cells: • Group A • Group B • Group AB • Group O

has only the A antigen on red cells (and B antibody in the plasma) has only the B antigen on red cells (and A antibody in the plasma) has both A and B antigens on red cells (but neither A nor B antibody in the plasma) has neither A nor B antigens on red cells (but both A and B antibody are in the plasma)

O positive is the most common blood type. Not all ethnic groups have the same mix of these blood types. Hispanic people, for example, have a relatively high number of O’s, while Asian people have a relatively high number of B’s. www.healingsinmotion.org

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Brain The amazing brain is an organ that serves at the center of the nervous system. It has the centralized control over all of the body’s organs. Brain Attack Blockage to the brain; a stroke. Everyone is used to referring to blockage of the heart as a “heart attack. When that happens to the brain, it too is an attack. See Stroke.

C Capacity In health care settings, “capacity” refers to a patient’s ability to understand and use medical information (such as treatment options, risks, and benefits) when making decision and choices about medical care. Capacity varies; a person may have the capacity to make some choices, but not others. A “health care proxy” can act as the patient’s decision maker if the patient loses capacity due to illness. Care or Case Manager Nurse, social worker, or other health care worker who plans and coordinates services for a patient’s care. This person usually works for an agency or facility. Caregiver “Caregiver” can mean family members, friends, and neighbors who provide on-going help and assistance to people who are ill, frail, or disabled. Doctors, nurses, and social workers may use the term “caregiver” when talking about themselves. Caregiver Assessment This is a way to gather information to determine what level and kind of care a caregiver is able to provide. It assesses the caregiver’s own health and other responsibilities, resources and strengths (such as experience or special skills) as well as what he or she is willing and able to do. It also considers the caregiver’s own need for support and/or other services. 18

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Caregiver Coaches A professionally trained health or personal mentor to help Caregiver maintain a program for self-care, maintain goals and balance to prevent burn-out and minimize stress. Caregiver Support Group A group of people who meet regularly to help each other by discussing feelings, common problems, ways of coping, available resources, and many other issues related to caregiving. Support groups may be for caregivers of patients who have certain diseases (such as Alzheimer’s, stroke and cancer. Some support groups meet in person while others are only online or by telephone. Care Plan A detailed written plan that includes needed tasks for patient care. It likely includes services provided by nurses, therapists, home health aides, and attendants. A good care plan should also list the tasks that family caregivers (who often do many of the tasks) do. A Caregiver Coach helps with the development and execution of a care plan. Certified Nursing Assistant (CNA) Person trained and certified to assist patients with non-clinical tasks such as eating, walking, and personal care (like taking a bath). This person may be called a “nursing assistant� in the hospital. Chronic Illness Physical or mental disability that lasts a long time or recurs (goes and comes back again). Treatment goals are to manage the illness and its symptoms, not cure them. Cognitive Brain Form a logical, plausible thought after considering the circumstances. Attention, Working Memory, Processing Speed, Long Term Memory, Visual Processing, Auditory Processing, Logic and Reasoning, Multi-Tasking and Decision Making. www.healingsinmotion.org

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Cognitive Impairment After a stroke, Traumatic Brain Injury or another illness, problems may occur that affect how clearly a person thinks, learns a new task, and remembers events and timelines or the speed at which it occurs. Community (Out-of-Hospital) DNR An order (signed by a doctor) that says that the patient should not be resuscitated (given Cardiopulmonary Resuscitation, or CPR to restart a heartbeat) if he or she is at home when the heart stops beating. If emergency services are called, this order must be given to the medical team. Competence A legal term, usually used in a guardian hearing, means that a person is able to make decisions for themselves. To do that, he or she has to be an adult (18 years of age or older) and have capacity, which means the ability to understand and use information when making decisions. A judge is the only one who can declare a person “incompetent� (lacking the ability to make decisions). Chronic Illness According to the Centers for Disease Control and Prevention (CDC), 70 percent of all deaths in the United States are due to chronic diseases. Lack of physical activity, tobacco use, not consuming enough fruits and vegetables and drinking too much alcohol are common causes of chronic disease. According to the CDC, heart disease, cancer and stroke are the most common types of chronic diseases. With the exception of genetic risk factors, these chronic diseases can be prevented. Custodial Care Also called personal care. It is the kind of help or supervision people need with daily tasks such as getting dressed, eating, taking a shower or bath, going to the bathroom, and getting into a bed or chair. Custodial care may be given at home by family members or by home care aides or personal care attendants. This care is not paid for by insurance unless the patient also needs skilled care from a nurse or therapist. 20

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D Dementia A loss of brain function that disrupts or impairs a person’s memory, ability to think or speak clearly, and ability to perform everyday tasks. It can also affect a person’s personality, mood, social interaction (how he or she relates to others), and judgment. Discharge Planner Nurse, social worker, or other health care worker who coordinates a patient’s transition (move) from one care setting to the next, such as from hospital to home. DNA Do Not Intubate (DNI) Order A DNI order instructs health care workers not to insert a breathing tube through the patient’s nose or mouth into the throat once breathing has stopped. A DNI order is part of an advance directive and is separate from a DNR order. Do Not Resuscitate (DNR) Order A DNR order instructs health care workers not to perform cardiopulmonary resuscitation (CPR) or other actions to restart a person’s heart or breathing once it has stopped. By law, a DNR order must be offered to patients and families. Signed DNRs must be part of the patient’s medical chart. A DNR order is part of an advance and is separate from a DNI order. Dual Eligible People who financially and medically qualify (meet the requirements) for both Medicare and Medicaid. Durable Medical Equipment (DME) Medical equipment that can be used more than once. It includes crutches, knee braces, wheelchairs, hospital beds, and prostheses. www.healingsinmotion.org

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Durable Medical Power of Attorney A type of advance directive. It names a person to make health care choices for someone else if he or she becomes incompetent or cannot express wishes. Durable Power of Attorney A document which names a person who can make financial (money) decisions on behalf of someone else. This power of attorney remains in effect even when a person is disabled or incapacitated. Durable power of attorney covers financial (money) matters, not medical decisions.

E Elder Law Attorney A lawyer who specializes in the rights and issues of older adults and their health, finances, and well-being.

F Family Caregiver Any family member, partner, friend, or neighbor who provides or manages the care of someone who is ill, disabled, or frail. There may be more than one family caregiver involved in a person’s care. Types of care include: • • • • • • •

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Eldercare Stroke Care Cancer Care Dementia (Alzheimer’s being the most common)” Diabetes Care Visible and Invisible Disabilities Caregivers to Veterans

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Family Caregiver Support Program (FCSP) The family caregiver is the person(s) considered to be the primary source of support and routine assistance, and who may or may not be related by blood or marriage. This federal program, run by the U.S. Administration on Aging, offers support services to family caregivers who are: • 60 years and older; adults of any age with dementia; • Grandparents 55 years and older caring for grandchildren under age of 18 • Adults with developmental disabilities aged 19 to 59. Services include counseling, information and referral, respite, and some funding for certain home modifications or emergency response systems. Each FCSP is under the direction of its local Area Agency on Agency (AAA) or Department of Aging (DOA). Formal Caregivers This term usually refers to professionally trained caregivers. They usually work under the employment of for-profit Home Care Agencies that often gain contracts to provide respite service or scheduled care. Many formal Caregivers belong to SIEU, the largest national union speaking for formal Caregiver rights http://www.seiu.org/seiuhealthcare

G Geriatrician A medical doctor with special training in the diagnosis, treatment, and prevention of disabilities in older adults. Gerontologist A health care professional trained to work with older adults and their families. He or she may have an MS or PhD degree.

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Guardian There are times when individuals, such as children or the elderly, are forced to rely on other people for assistance in their daily lives because they lack the capacity to make decisions on their own. They require outside help in the form of surrogate decision makers, who have the legal authority to act on their client’s behalf in all matters. Usually, these people are family members; however, if a family member is not available, or a third-party is requested for representation, a court-appointed guardian is assigned. Guardianship The process in which the guardian gets named by a judge.

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Healings in Motion presents Brain Aneurysm /AVM Stroke Support Group San Joaquin County and Surrounding Areas 2nd Thursday monthly, 5:30pm-7:00pm hosted by Dameron Hospital 525 West Acacia Street Stockton, CA 95203

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H Health Care Disparity Health disparities refer to differences between groups of people. These differences can affect how frequently a disease affects a group, how many people get sick, or how often the disease causes death. Many different populations are affected by disparities. These include

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Racial and ethnic minorities Residents of rural areas Women, children, the elderly Persons with disabilities

HIPAA HIPAA, the American Health Insurance Portability and Accountability Act of 1996, is a set of rules to be followed by doctors, hospitals and other health care providers. HIPAA helps ensure that all medical records, medical billing, and patient accounts meet certain consistent standards with regard to documentation, handling and privacy. HIPAA requires that all patients be able access their own medical records, correct errors or omissions, and be informed how personal information is shared OR used. Other provisions involve notification of privacy procedures to the patient. HIPAA provisions that have led in many cases to extensive overhauling with regard to medical records and billing systems. Home-delivered Meals (Meals on Wheels) Meals brought to people who cannot prepare their own meals or are homebound (cannot leave their homes). Home Care, also referred to as Custodial Care Includes assistance with the activities of daily living such as light housekeeping, assistance with bathing and dressing, preparation of nutritious meals, help with walking and getting in / out of bed, medication reminders, conversation and companionship, and transportation to name a few. Home www.healingsinmotion.org

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care services are generally not covered by insurances such as Medicare or HMO’s, however there are some private and long term care insurance policies that may cover services. Home Health Aide (HHA) A person trained to provide basic health care tasks for those who are elderly or disabled. Tasks include taking vital signs (such as heart rate and blood pressure) or helping with “dry dressing� for wounds. Tasks also include personal care, light housecleaning, cooking, grocery shopping, laundry, and transportation. Home Health Care Home Health Care, also referred to as Skilled Nursing or Paraprofessional Care, covers a broad range of services including: Nursing Care, Physical Therapy, Occupational Therapy, Speech Therapy, Medical Social Work, and Respiratory Therapy. Skilled Nursing care is provided by a registered nurse (RN), nurse practitioner (NP), or a licensed practical nurse (LPN). Paraprofessional care is provided by home health aides, personal care assistants, physical therapy assistants, or certified occupational therapy assistants (COTA). Hospice A program of medical and social services for people diagnosed with terminal (end-stage) illnesses. Hospice services can be given at home, in a hospital, hospice residence, or nursing home. They are designed to help both the patient and his or her family. Hospice care stresses pain control and symptom management. It also offers emotional (feelings) and spiritual (faith) support.

I Incontinence Loss of bladder (urine) or bowel movement control.

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Informed Consent Legal term meaning that a person with mental capacity has given permission for medical treatment. Consent comes after a full disclosure (talk) of treatment risks and options. Intern A doctor who has finished medical school and likely in the first year of special training. Interns are supervised by attending doctors and residents. Insurance The Patient Protection and Affordable Care Act (Affordable Care Act) is the federal law passed in 2010 that provides affordable health insurance to more Americans. The historic law will change the way health insurance companies provide coverage, as well as the way consumers get coverage. Covered California

The online “marketplace� that will make it simple and affordable to purchase quality health insurance and get financial assistance to help pay for it. If your income is limited, you may be eligible for free coverage through Medi-Cal. Californians can get health coverage that cannot be denied by health insurance companies or canceled if they are sick or have a pre-existing health condition, such as asthma or diabetes.

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By 2014, about 2.6 million Californians will be able to access financial assistance through Covered California to pay for their health insurance, and 1.4 million will be newly eligible for Medi-Cal. An additional 2.7 million will benefit from coverage that is guaranteed whether they buy an insurance plan through Covered California or on their own. All health insurance plans purchased through Covered California must cover certain services called essential health benefits. These include doctor visits, hospital stays, emergency care, maternity care, children’s care, prescriptions, medical tests and mental health care. Health insurance plans also must cover preventive care services, like mammograms and colonoscopies, for free. All plans being sold in the Covered California marketplace, as well as those sold outside it, will be required to include these benefits. Fines for No Insurance Coverage Starting in January 2014, most adults will be required to have public — such as Medi-Cal or Medicare — or private health insurance or pay a fine. The fine becomes more costly over a three-year period. In 2014, the fine will be 1 percent of yearly income or $95 per person, whichever is greater. For adults with children, the fine for lack of coverage for the child is $47.50. By 2016, the fine will be 2.5 percent of income or $695 for an individual, $2,085 for a family, whichever is greater. Covered California is managed by the California Health Budget Exchange. For more information go to www.hbex.ca.gov

J Joint Commission The Joint Commission is an independent, not-for-profit organization that accredits and certifies more than 20,000 health care organizations and programs in the United States. Joint Commission accreditation and 28

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certification is recognized nationwide as a symbol of quality that reflects an organization’s commitment to meeting certain performance standards. LGBT LGBT are the initials for lesbian, gay, bisexual and transgender. The L refers to Lesbian, which means a woman who is attracted to other women. The G refers to Gay, which means a man who is attracted to other men. Bisexual is identified with the B, and transgendered with the T. A bisexual is someone who is attracted to both genders, and a transgendered person is someone who feels they are another gender. Living Will A type of Advance Directive that outlines a person’s treatment wishes if he or she is too ill or injured to make such choices. Laws about living wills vary from state to state. Licensed Practical Nurse (LPN) A health care worker who provides basic bedside care such as checking vital signs (temperature, blood pressure, and pulse). LPNs can also prepare and give injections and enemas, monitor catheters, apply wound dressings, treat bedsores, and give alcohol rubs or massages. LPNs report to registered nurses and doctors. Long-Term Care (LTC) A term used to describe the care needed by someone who must depend on others for help with daily needs. LTC is designed to help people with chronic health problems or dementia live as independently as possible. While many people think that long-term care happens only in a nursing home, in fact most long-term care is given by family caregivers in the patient’s home. Long-Term Care Insurance Private insurance designed to cover (pay for) long-term care expenses at home or in a facility other than a hospital. There are many long-term care insurance policies with a wide range of benefits (services they pay for). www.healingsinmotion.org

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Lyme Disease An infection caused by a kind of germ carried by deer ticks (found in the northeastern and north-central United States) and western black-legged ticks (found mostly on the Pacific Coast). These ticks can spread the disease to animals and humans through tick bites. These ticks are typically about the size of a sesame seed.

M Managed Care Plans Health care system that includes financing (paying for) and delivering health care services. Many are Health Maintenance Organizations (HMOs) that offer a package of health care benefits to those insured. Meals on Wheels Association of America A national organization with a mission to support local programs and to end senior hunger and is operated through local agencies. Medicaid Health insurance program for people with low incomes. Medicaid is financed by both the federal and state government. States set their own rules about who can get Medicaid and what services it covers (pays for). Medicare A federal health insurance program for people aged 65 or older, or for those aged 64 or younger who have certain disabilities. You can learn more about Medicare terms by visiting the Department of Health & Human Services’.

N Nurse Practitioner (NP) NP is a registered nurse with advanced training and experience. NPs can diagnose and manage most common, and many chronic, illnesses. They do so alone or along with the health care team. Today, NPs can prescribe medications and provide some services that used to be done only by doctors. 30

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Nursing Home or Skilled Nursing Facility (SNF) Facility that provides 24-hour care (all day and night) to patients who are chronically ill or disabled. Patients must be unable to care for themselves in other settings or need extensive (a lot of ) medical care.

O Occupational Therapist (OT) Licensed health care professional who helps patients learn again how to do activities for daily living. OTs can also help plan ways to adapt (change) a person’s home so he or she can be as independent (do tasks alone) as possible.

P Palliative Care Palliative care means keeping a patient as comfortable as possible during an illness. Palliative care may come into play at any point after a physician diagnoses a life-threatening condition. When patients find the side effects of treatment too much to bear and physicians have determined that the disease is incurable, palliative care may become the only focus of medical care. At this time, some patients opt for hospice services, during which health care workers give only palliative care. In the last months of life, hospice workers including physicians, nurses, clergy and social workers, concentrate on keeping the patient comfortable. Paratransit Special transportation for people with mobility (walking) problems. It may be a taxi or special van. Sometimes paratransit runs on a fixed schedule (as for shopping). Other times, people must call to for a reservation. Patient Assessment A way to gather patient information so as to assess functional needs (what tasks people need help with) and eligibility for services (what services they can get). Information may include health status, financial (money) status, mental status, and living situation. www.healingsinmotion.org

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Patient Bill of Rights Listing of ways a health care facility will treat patients with dignity and respect. It includes how patients can fully participate (take part) in making health care choices. Personal Emergency Response System (PERS) Electronic device that allows a person to call for emergency help at home. The device connects to the patient’s phone and is programmed to signal a response center when the “help” button is pressed. The patient may also wear a “help” button as a necklace or bracelet. This allows the person to move freely around his or her home. Lifeline is a company that provides this service. Physical Therapist (PT) Licensed professional trained to treat people with impaired motor function (such as problems walking). PTs use exercise, massage, and other ways to help improve a person’s function and strength. Power of Attorney (POA) Legal term that allows one person to act as someone else’s attorney (lawyer) or agent. POA can be just for certain, specific responsibilities or it can be for more broad issues having to do with financial (money) affairs. Primary Care Provider (PCP) This term almost always refers to doctors, nurse practitioners, or physician assistants who provide preventive care (before people are sick). PCPs diagnose and treat common medical problems, assess how urgent these problems are, and may refer patients to other specialists if needed. PCPs practice in the community, not a hospital or other health care facility. Provider Often used to describe a person or agency that delivers health care or social services. Providers can be individuals (doctors, nurses, social workers, and others) or facilities (hospitals), or agencies (home care), or businesses that sell services or equipment. 32

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R Registered Nurse (RN) A person who has graduated from a formal nursing education program and is licensed to practice by the state board. RNs assess, plan, implement (carry out), and evaluate patient’s nursing care along with the rest of the health care team. Rehabilitation (“Rehab”) Services to help people get back their mental (thinking and feeling) and physical (body) functions lost due to injury or illness. Rehabilitation may be given at the hospital or in a nursing home, special facility, or the patient’s home. Resident A person who lives in a long-term care setting (such as a nursing home). Resident Doctor A medical doctor who has finished medical school and internship and now is being trained in a specialty (such as surgery, internal medicine, or geriatrics). Respite Care Temporary (a few hours or up to a few days) care to offer relief for the family caregiver. Respite care may be given in the patient’s home or the patient may have a short stay somewhere else. It can be scheduled regularly (for example, two hours a week) or provided only when needed. Restorative Potential The level of function (ability to move or do activities of daily living) that a patient is likely to regain, based on the patient’s condition and diagnoses. This is used by Medicare and other insurances to determine rehabilitative needs and the continued pay for treatment.

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Robotics More and more procedures are being done on an outpatient basis using robotic.. Hospitals use Robotics for surgical procedures or diagnostic studies that do not require an overnight stay. This medical device help hospitals eliminate life-threatening drug and diluent exchange errors, improve drug potency, decrease other medical mistakes and sterility risks, reduce waste and controlled substances’ diversion and diminishes the gap between the rising patient volume/acuity and scarce nursing and pharmacy staff.

S Senior Centers Centers that provide services to senior citizens, aged 60 and over. They may offer social activities (like music or crafts), meals, health screenings (such as blood pressure checks), learning programs, and exercise classes. Skilled Care Nursing care given in a patient’s home or in a facility. It may include injections (shots), tube feeding, and changing sterile wound dressings. Most insurance plans require patients to need at least some skilled care before they can get other home care services. Speech Therapist Licensed health care professional who diagnoses and treats people with speech, language, or hearing problems. State Health Insurance Program (SHIP) State program that helps older adults with concerns about insurance, benefits, and claims. Stroke A stroke occurs when blood circulation to the brain fails. Brain cells can die from decreased blood flow and the resulting lack of oxygen. There are two categories of stroke: Ischemic, caused by a blockage of blood flow and 34

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Hemorrhagic, caused by bleeding. 800% of the strokes are Ischemic stroke, is the most frequent cause of stroke and is responsible for about 80 percent of strokes. Many of these stroke are preventable, while hemorrhagic strokes are more fatal. Stroke Disabilities Although stroke is a disease of the brain, it can affect the entire body. Some of the disabilities that can result from a stroke include paralysis, cognitive deficits, speech problems, emotional difficulties, daily living problems, and pain. Paralysis: A common disability that results from stroke is paralysis on one side of the body, called hemiplegia. A related disability that is not as debilitating as paralysis is one-sided weakness or hemiparesis. The paralysis or weakness may affect only the face, an arm, or a leg or may affect one entire side of the body and face. A person who suffers a stroke in the left hemisphere of the brain will show right-sided paralysis or paresis. Conversely, a person with a stroke in the right hemisphere of the brain will show deficits on the left side of the body. A stroke patient may have problems with the simplest of daily activities, such as walking, dressing, eating, and using the bathroom. Motor deficits can result from damage to the motor cortex in the frontal lobes of the brain or from damage to the lower parts of the brain, such as the cerebellum, which controls balance and coordination. Some stroke patients also have trouble eating and swallowing, called dysphagia. Cognitive Deficits: Stroke may cause problems with thinking, awareness, attention, learning, judgment, and memory. If the cognitive problems are severe, the stroke patient may be said to have apraxia, agnosia, or “neglect.� In the context of stroke, neglect means that a stroke patient has no knowledge of one side of his or her body, or one side of the visual field, and is unaware of the deficit.

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Language Deficits: Stroke survivors often have problems understanding or forming speech. A deficit in understanding speech is called aphasia. Trouble speaking or forming words is called dysarthria. Language problems usually result from damage to the left temporal and parietal lobes of the brain. Emotional Deficits: A stroke can lead to emotional problems. Stroke patients may have difficulty controlling their emotions or may express inappropriate emotions in certain situations. One common disability that occurs with many stroke patients is depression. Post-stroke depression may be more than a general sadness resulting from the stroke incident. It is a clinical behavioral problem that can hamper recovery and rehabilitation and may even lead to suicide. Post-stroke depression is treated with antidepressant medications and therapy. Pain: Stroke patients may experience pain, uncomfortable numbness, or strange sensations after a stroke due to many factors including damage to the sensory regions of the brain, stiff joints, or a disabled limb. There may be uncommon causes for pain as well. Subacute Care Care or monitoring (watching) after a hospital stay. This can be in a less intensive setting (such as a rehabilitation service) or in a special unit in a hospital. Subacute care is usually short-term. Surrogate Decision Maker Person chosen by a patient to make choices if he or she cannot do so and advocate on the patients behalf.

T Telemedicine Telemedicine is the use of medical information exchanged from one site to another via electronic communications to improve a patient’s clinical health 36

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status. Telemedicine includes a growing variety of applications and services using two-way video, email, smart phones, wireless tools and other forms of telecommunications technology. Transition A move from one care setting (hospital, nursing home, or home) to another. Care during transitions involves coordination and communication among patient, providers, and family caregivers.

V Ventilator A machine that pushes air into the lungs through a breathing tube inserted into the patient’s throat. Also called a respirator or “vent.” Visiting Nurse A term often used for a nurse who visits patients in their homes. The job of a visiting nurse includes checking vital signs (such as heart rate and blood pressure) and physical health. The visiting nurse follows a doctor’s treatment plan.

W Will Legal written document stating what a person wishes to be done with his or her belongings (property) and assets (money) after death.

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Resources

VA Caregiver Support American Foundation for Suicide Prevention (AFSP) (888)-333-2377 www.afsp.org Anxiety Disorders Association of America (240) 485-1001 www.adaa.org Freedom from Fear 308 Seaview Avenue Staten Island, NY 10305 (718) 351-1717 http://freedomfromfear.org National Resource Directory Connecting wounded warriors, service members, veterans, their families and caregivers with those who support them. www.nrd.gov Tributes FREE tributes celebrating the lives of a loved one and reach on-line support during your period of grieving. www.tributes.com VA Caregiver Support (855) 260-3274 www.caregiver.va.gov 38

Veterans Benefits Administration www.VBA.VA.gov Veterans Home Care 548 Market Street #71697 San Francisco, CA 94104 (877) 878-4248 www.veteranshomecare.com

Services Adaptive/Assistive Equipment Alert Medical Response 3012 S. Soderquist Road Turlock, CA 95380 (209) 262-4685 www.alertmedicalresponse.com Assistive Technology www.assistivetech.net Deaf and Disabled Telecommunications (DDTP) 1333 Broadway Street, Ste 500 Oakland, CA 94612 (510) 302-1100 (800) 806-1191 http://ddtp.org Durable Medical Equipment www.rediscoverwalking.com

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Resources Lifeline - St. Joseph’s Medical Center 1800 N. California Street Stockton, CA 95204 (209) 467-6468 www.dignityhealth.com

Disability Resource Agency for Independent Living - DRAIL Dedicated to increasing the independence of individuals with disabilities through resources, advocacy and services.

Shield Health Care (800) 765-8775 www.shieldhealthcare.com

Modesto Office 920 12th Street Modesto, CA 95354

Advocacy

Stockton Office 501 W. Weber Avenue, Suite 200-A Stockton, CA 95203 www.drail.org

Organizations that promote the health, dignity, rights and quality of life for seniors and those with disabilities. AARP (886)872-2277 www.aarp.org Adversity to Advocacy (415)672-9050 www.adversity2advocacy.com American Civil Liberties Union (212)549-2500 American Rights Coalition 800-823-6060 Consumer Complaints (800)782-1110 www.healingsinmotion.org

National Alliance of Mental Illness (NAMI), California NAMI California is a grass roots organization of families and individuals whose lives have been affected by serious mental illness. NAMI educates and advocates for quality and respect, without discrimination and stigma to provide leadership in advocacy, legislation, policy development, more support for mental illness throughout California. 1851 Heritage Lane, Ste 150 Sacramento, CA 95815 (916) 567-0163 www.namicalifornia.org 39


Resources California Health Advocates 5380 Elvas Avenue, Suite 221 Sacramento, CA 95819 (916)231-5110 www.cahealthadvocates.org

Disability Rights California (DRC) DRC is a non-profit organization which advances human and legal rights for persons with disabilities, providing legal assistance to protect those rights. Services and issues dealing with special education, Lanterman Act, benefits (i.e. Social Security, Medi-Cal, In-Home Supportive Services), housing rights, employment rights, access to services and more. 1831 K Street Sacramento, CA 95811-4114 916-504-5800 www.disabilityrightsca.org San Joaquin Pride Center 109 N. Sutter Street Stockton, CA 95202 (209) 466-SJPC (7572) www.sjpridecenter.org

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Aphasia Aphasia Foundation Get the Aphasia Handbook (800) 922-4622 www.aphasia.org Aphasia Foundation www.aphasiahope.org

Assisted Living Villa Marche 1119 Rosemarie Lane Stockton, CA 95207 (209) 477-4858 www.villamarchecare.com

Benefits Benefits Check Up www.benefitscheckup.org Clinical Trials www.clinicaltrials.gov Medicaid www.CMS.gov/home/medicaid.asp Medicare 7500 Security Boulevard Baltimore, MD 21244 (800) 633-4227 www.medicare.gov

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Resources Office of Minority Health California Regional Office Christina Perez, FNP, MN, RN,RMHC 90 7th Street Suite 5-100 San Francisco, CA 94102 (415) 437-8124 F: (415) 437-8069 E: christina.perez@hhs.gov

Patient Assistance for Prescription Drugs www.patientassistance.com Senior Medi-Benefits 3195 Adeline Street Berkeley, CA (510) 420-0550 (888) 789-4589 www.seniormedi-benefits.org Social Security (Disabilities) (877) 803-6314 www.social-security-disability.org U. S. Government Benefits www.benefits.gov

Brain Related Alzheimer’s & Memory Center 6137 N. Thesta Avenue, Suite 101B Fresno, CA 93710 (559) 227-4810 www.fresno.ucsf.edu/alzheimer www.healingsinmotion.org

Alzheimer’s Association of Northern CA 1455 Response Road Sacramento, CA (916)930-9080 (800)272-3900 www.alz.org/norcal American Foundation for Suicide Prevention (AFSP) (212) 363-3500 www.afsp.org Anxiety Disorders Association of America (240) 485-1001 www.adaa.org Association for Behavioral and Cognitive Therapies (212) 647-1890 ww.abct.org BeHaveNet A comprehensive resource guide for psychological illnesses. www.nextstepincare.org Brain Aneurysm Foundation 269 Hanover Street Hanover, MA 02339 781-826-5556 . 888-272-4602 www.bafound.org

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Resources Brain and Behavior Research Foundation 60 Cutter Mill Road, Ste 404 Great Neck, NY 11021 (800) 829-8289 www.bbrfoundation.org

B.R.A.I.N. Brain Rehabilitation and Injury Network 5267 Warner Avenue Huntington Beach, CA 92649 (714) 318-6076 www.thebrainsite.org The Healing Brain Trust 459 Broadway, Suite 302 Everett, MA 02149 (877) 252-8480 www.braintrust.org

A monthly lunch and learn program, presented by Healings in Motion www.healingsinmotion.org

4th Tuesday 12pm-2pm Hosted by Dameron Hospital 525 West Acacia Street Stockton, CA 95203 (209)944-5550

Stroke American Stroke Association 7272 Greenville Ave. Dallas, TX 75231 888-4-STROKE 888-478-7653 www.strokeassociation.org National Stroke Association 9707 E. Easter Lane, Suite B Centennial, CO 80112 800-STROKES 1-800-787-6537 www.stroke.org

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John Kawie, Comedian and Stroke Survivor Marilyn Kawie, Caregiver Speakers at Stroke Awareness Day, San Joaquin County May 22, 2014 Presented by Healings in Motion

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Resources Genentech P.O. Box 9030 South San Francisco, CA 94083 (650) 467-0810 www.gene.com Stroke Resources PO Box 77321 Modesto, CA 95357 (209) 521-1786 http://strokeresources.org Brain Injury (866) 882-7246 www.braininjury.com Brain Injury Association of CA 888-662-4222 www.biaca.org

Brain Resource Center 263 W. End Ave. #1D New York, NY 10023 (212) 877-2130 www.brainresourcecenter.com Head Injury 206-621-8558 www.braininjury.com Post-Traumatic Stress Disorder (PTSD) (262) 567-6600 www.anxietydisordersfoundation. org Traumatic Brain Injury of CA Two Commerce Square 2001 Market Street, Suite 2900 Philadelphia, PA 19103 www.traumaticbraininjury.com

hpsj.com

Making a DIFFERENCE one family at a time! www.healingsinmotion.org

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Resources Chronic Illness

Center for Disease Control and Prevention You will find comprehensive information about chronic disease on their website. 1600 Clifton Rd. Atlanta, GA 30333, USA 800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 www.cdc.gov

Know Hepatitis B is the first multi-lingual campaign from the government promoting testing for Hepatitis B for Asian Americans and Pacific Islanders

1 in 12 Asians Americans and Pacific Islanders has Hepatitis B. It is common in many parts of the world, with an estimated 350 million people living with the disease worldwide. In the United States, an estimated 1.2 million Americans are infected. However, Hepatitis B disproportionately affects Asian Americans and Pacific Islanders because it is especially common in many Asian and Pacific Island countries. 50% of Americans living with chronic Hepatitis B are Asian.

Elder Care There are a few things that you can do to insure a safer environment for elder seniors. As baby boomers age and take care of their parents, the industry for home conversions will also boom.

Main Entrance • Install a threshold ramp and chair railings to make it easier to leave and enter the home. • Repair cracked sidewalks or uneven pavers that pose a tripping hazard. 44

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Resources Bathroom Safety • • • •

Install grab-bars by the toilet and in your bathtub or shower. Add a no-slip rubber mat to the bottom of your bathtub or shower to prevent slipping. Add a shower chair or bench for enhanced stability and ease of bathing. Use a nightlight in the bathroom and hallway to illuminate the path from the bedroom to the bathroom at night.

Stair Safety • • • • •

Reinforce handrails. An adult should be able to securely wrap his or her hands around the entire handrail with ease. Add a second handrail on the opposite wall, if possible. Increase lighting on stairs. Use a two-way switch so the light can easily be turned on and off from both upstairs and downstairs. Remove rugs from the top and bottom of stairs. If possible, convert a downstairs room into a bedroom to reduce stair use.

Living Space Safety • • •

Remove throw rugs and runners or use double-sided tape and a non-slip backing to securely hold them in place. Secure extension cords against the baseboards and out of high-traffic areas. Reduce clutter. Remind children to keep toys and books off the floor.

Kitchen Safety • • •

If your elderly parent will be cooking or preparing meals, place pots and pans at waist level for easy access. If your elderly parent should not be cooking due to impairment, consider disconnecting the stove when you’re not be home to prevent him or her from turning it on. Place a microwave on the counter (rather than over the stove) to reduce bending and stretching while preparing food.

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Resources Advantage Home Design 1671 Dickey Court Ripon, CA 95366 (209) 918-5910

Aging Parents. Com Dr. Mikol Davis & Carolyn Rosenblatt, RN, Attorney 930 Irwin Street, Suite 215 San Rafael, California, 94901 (866) 962-4464 www.agingparents.com

Caregiver Support Central Valley Senior Services 178 West Adams Street Stockton, CA 95204 (209) 890-1300 www.centralvalleyseniorservices.org Del Oro CRC Serving Alpine, Amador, Calaveras, Colusa, El Dorado, Nevada, Placer, Sacramento, San Joaquin, Sierra, Sutter, Yolo and Yuba Counties 8421 Auburn Blvd, Suite 120 Citrus Heights, CA 95610 (916)728-9333 www.deloro.org Valley CRC Serving Fresno, Kern, Kings, Madera, Mariposa, Merced, Stanislaus, Tulare and Tuolumne Counties 3845 North Clark Street, Suite 201 Fresno, CA 93726 www.valleycrc.org 46

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Resources Eldercare at Home www.healthinaging.org

Elder Law Answers G. Archer Bakerink, A Professional Corporation 215 North San Joaquin P.O. Box 204 (95201) Stockton, CA 95202 (209) 598-7774 www.elderlawanswers.com Family Caregivers Alliance (800)445-8106 www.caregiver.org/caregiver Home Care: A Family Caregiver’s Guide www.nextstepincare.org

Rosalynn Carter Institute for Caregiving 800 GSW Drive Georgia Southwestern State University Americus, Georgia 31709-4379 (229) 928-1234 www.rosalynncarter.org The National Alliance for Caregiving 4720 Montgomery Lane, 2nd Floor Bethesda, MD 20814 (301) 718-8444 www.caregiving.org California’s Advance Health Care Directive http://www.sos.ca.gov/ahcdr/forms. htm

For Your Health and Independence TM

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Resources Dental Care

University of the Pacific Dental Care Clinic A program providing comprehensive, quality dental care at reasonable prices. Dental Residents treat patients by integrating all phases of dentistry, with an emphasis on advanced comprehensive treatment. Denti-Cal and other insurance accepted. 757 Brookside Road Stockton, CA 95207 (209) 946-7404 www.dental.pacific.edu Kuy E. Ky, DDS 8807 Thorton Road, Suite A Stockton, CA 95209 (209) 473-3221

Disabilities Arc-San Joaquin Stockton, CA 95202 (209) 955-1625 Fax: (209) 955-1627 www.thearcsj.org Hanger 7551 Timberlake Way, Suite 110 Sacramento, CA 95823 www.hanger.com

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RSC of San Joaquin, Inc 2339 W. Hammer Lane, Suite C, pmb #233 Stockton, CA 95209-2368 209-403-8878 www.rscofsanjoaquin.org United Cerebral Palsy 333 W. Benjamin Holt Drive Stockton, CA 95207 (209) 956-6379 www.ucpsj.org

Eye Care Eye Care America (800)222-3937 www.eyecareamerica.org

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Resources Food

Artesian Natural Foods 145 Lincoln Center Stockton, CA 95207 (209)952-8787 www.artesiannaturalfoods.com Green’s Nutrition & Health Food Store 1906 Pacific Avenue Stockton, CA (209) 464-5738 www.greensnutrition.com

Health Libraries Health Education Council 3950 Industrial Boulevard Suite 600 West Sacramento, CA 95691 (916) 556-3344 www.healthedcouncil.org Maino Community Health Library 1700 McHenry Avenue, Ste. 60B Modesto, CA 95350 www.suttergould.org/learning/ learning_mainolibrary.html

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National Library of Medicine 8600 Rockville Pike Bethesda, MD 20894 (301) 496-1131 (888)FINDNLM www.teh.nim.nih.gov Stanford Health Library (Main Location) G-2B Stanford Shopping Center Palo Alto, CA 94304 (650) 725-8400 (800)295-5177 http://healthlibrary.stanford.edu

Home Care Arcadia Home Health Care Stockton: (209) 477-9480 Modesto: (209) 572-7650 www.arcadiacare.com Healthy Living at Home, Inc. (209) 712-6670 www.healthylivingservices.org Somerford Place 3530 Deer Park Drive Stockton, CA 95219 (209) 951-6500 www.5sqc.com

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Resources Hospice

Bristol Hospice 2140 Professional Drive, 210 Roseville, CA 95661 (916) 782-5511 www.bristolhospice.com Community Hospice 4368 Spyres Way Modesto, CA 95356 (209) 578-6300 www.hospiceheart.org Hospice of San Joaquin 3888 Pacific Avenue Stockton, CA www.hospicesj.org Optimal Hospice Care 4568 Feather River Drive, Ste C Stockton, CA 95219 (209) 670-8000 www.optimalcares.com VITAS Hospice Services 16956 S. Harlan Road Lathrop, CA 95330 (209)858-2409 www.vitas.com

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National Hospice Foundation www.nationhospicefoundation.org The National Hospice and Palliative Care Organization www.nhpco.org

In-Home Support Services (IHSS) IHSS is a state program administered by your county that provides homecare assistance to eligible aged, blind or disabled individuals. To be eligible for IHSS, you must be on Medi-Cal, be blind, disabled, or 65 years of age or older, and unable to live at home safely without help. IHSS-Merced 708 W. 20th Street Merced, CA 95340 (209)385-3105 http://www.co.merced.ca.us/index. aspx?NID=1488 IHSS-San Joaquin County PO Box 201056 Stockton, CA 95201 (209) 468-1104 http://www.sjaging.org/IHSS/IHSS. htm

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Resources Hospitals

(See your phone book for total listing) Briggsmore Specialty Center 1409 E. Briggsmore Specialty Center Modesto, CA 95355 Central Valley Specialty Hospital For patients who still need Acute Rehabilitation and Skilled Nursing Services. 730 17th Street Modesto, CA 95354 (209)248-7700 www.centralvalleyspecialty.org

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Dameron Hospital STEMI Center Bariatric Surgery 525 West Acacia Street Stockton, CA 95203 (209)944-5550 www.dameronhospital.org Kaiser Permanente, Modesto Certified Stroke Center 4601 Dale Road Modesto, CA (209) 557-1000 St. Joseph’s Medical Center Certified Stroke Center STEMI Center MAKOplasty Surgery 1800 North California St Stockton, CA 95204 (209) 943-2000 www.stjosephscares.org

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Resources

Hospitals (continued)

San Joaquin County General Hospital Certified Stroke Center/ Trauma Center 500 West Hospital Road French Camp, CA 95231 (209) 468-6000 www.sjgeneralhospital.com Sutter Gamma Knife Center 2800 L. Street Suite 630 Sacramento, CA 95816 (888)287-2270 www.sutterneuro.org Sutter Gould Foundation 600 Coffee Road Modesto, CA 95355 (209)835-1500 www.suttergould.org

Sutter Tracy Community Hospital 1420 N. Tracy Blvd. Tracy, Ca 95376 (209)835-1500 www.suttertracy.org Valley Choice Fertility Clinic 1409 E. Briggsmore Avenue (209)550-4720 www.suttergould.org/services/ infertility-clinic.html Valley Heart Institute Part of Doctors Medical Center 4016 Dale Road Modesto, Ca 95356 (209) 577-5557 www.valleyheartinstitute.com

The Gamma Knife is a sophisticated instrument that pinpoints and delivers precise beams of radiation to tumors and other brain abnormalities. This 20 ton machine offers a noninvasive alternative to open brain surgery. It enables neurosurgeons and radiation oncologists to accurately target the treatment area in the brain. The Gamma Knife also allows doctors to treat previously inoperable lesions, while minimizing damage to surrounding normal tissue. 52

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Resources

Housing

Insurance

Franco Center Apartments-Senior Community Provides low-income, subsidized housing for senior citizens in the Stockton area. The complex offers studio apartments as well as one and two bedroom apartments. The community center is available to all seniors living in San Joaquin County

Freedom Equity Group Insurance Services 5050 Laguna Blvd. #112-542 Elk Grove, CA 95758 (916) 628-5865 http://fegins.com

7 North San Joaquin Street, Suite 40 Stockton, CA 95202 (209) 466-3577 (209) 460-502102 Email: tquintero@hacsj.com www.hacsj.com

Indian Health Indian Health Service www.ihs.gov/california CA Health Care Services http://www.dhcs.ca.gov/services/ rural/Pages/IndianHealthProgram. aspx Bay Area Indian Health Clinic www.indianhealthcenter.org

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Health Plans of America www.healthplansamerica.org Health Plan of San Joaquin 7751 S. Manthey Road French Camp, CA 95231 (209)461-2313 www.hpsj.com Scan Health Plan 999 Bayhill Drive, Suite 130 San Bruno, CA 95201 (650-581-2475 www.scanhealthplan.com

Journals www.eCareDiary.com A great place to connect with other Caregivers, including Caregiver Radio.

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Resources

Rehabilitation

California Department of Rehabilitation Vocational Services Clients must have documented disabilities. California Department of Rehabilitation assists Californians with disabilities to obtain and retain employment and maximize their ability to live independently in their communities. Eligible individuals are assisted in finding employment and/or independent living. Vocational training and counseling are also available. 1507 East March Lane, Suite A Stockton, CA 95210 (209) 473-5900 Fax: (209) 473-6511 www.dor.ca.gov

In-Shape/Custom Built 6 South El Dorado Street Suite 700 Stockton, CA 95202 www.inshapeclubs.com www.custombuiltpt.com

We’re proud to join community partners in support of

Healings in Motion and the

6th Annual Caring for the Caregiver Symposium

info@sierrahealth.org

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www.sierrahealth.org

www.healingsinmotion.org


Resources

Mental Illness

Respite and Day Care

Asian Americans for Community Involvement (408)975-2730 www.aaci.org

Respite offers a few hours of relief from your Caregiving duties. Respite affords the Caregiver time to refresh and include time for valuable self-care.

Behavioral Health Services, San Joaquin County 1212 N. California Street Stockton, CA 95202 (209) 468-8750 www.sjcbhs.org

Residential Care

Jene Wah, Inc. Jene Wah, Inc. is a comprehensive community services agency that enables elderly citizens to live independently and enhance their quality of life. This multiservice agency also provides nutrition information for seniors, transportation to doctor visits, interpretation services and assistance with tax preparation. In addition, they offer congregate meal services, homemaker services, personal care and telephone assurance. The agency is open to new immigrants. They provide naturalization classes in English and Chinese, as well as ESL.

Golden Haven 2324 Lever Blvd. Stockton, CA 95206 (209) 464-4743 www.goldenhaven.net

238 East Church Street Stockton, CA 95203 (209) 463-7654 genewah@clearwire.net

National Alliance of Mental Illness (703) 524-7600 (209)468-3755 www.nami.org

Pain Management For Those in Pain (650) 968-2323 www.forthoseinpain.org

www.healingsinmotion.org

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Resources

Catholic Charities Provides personal care and homemaker services to low income seniors who are not eligible for In-Home Supportive Services (IHSS). In addition, Catholic Charities contracts to provide the following services: Caregiver Respite, Caregiver Chore, Home Modification, Telephone Reassurance and Caregiver Training. 1106 N. El Dorado Street Stockton, CA 95202 (209) 444-5951 www.ccstockton.org

San Francisco, CA 94103 (415) 434-3388 (800) 445-8106 www.caregiver.org

El Concilio 1755 W. Hammer Lane, Suite #8 Stockton, CA

Family Caregiver Support Program-San Joaquin County 102 S. San Joaquin Street Stockton, CA 95201 (209) 468-3814 www.sjaging.org

Family Caregiver Alliance 785 Market Street, Suite 750

Lodi Memorial Hospital operates a State-licensed Adult Day Services Program at Hutchins Street Square for older and disabled adults who cannot fully care for themselves. The Adult Day Services Center helps fill the gap between senior centers and full time residential care. The Adult Day Program provides a safe, stimulating environment, and includes meals, supervised exercise, music therapy, computer memory skills programs, entertainment, and arts and crafts. Supportive services are available to assist caregivers. (209) 369-4443 www.lodihealth.org/html/adult_day_care.html Respite Care Locator http://www.archrespite.org

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www.healingsinmotion.org


Resources United Cerebral Palsy of San Joaquin 333 W. Benjamin Holt Drive Stockton, CA 95207 (209) 956-0290 http://www.ucpsj.org

Self-Care Dental Office of Kuy E. Ky, DDS 8807 Thornton Road, Ste. A Stockton, CA 95209 (209) 473-3221 www.insiderpages.com/doctors/ Kuy-E-Ky-DDS-Stockton Foot Solutions Stonecreek Village 5759 Pacific Avenue, Ste. B120 Stockton, CA 95207 (209) 463-0200 http://www.footsolutions.com/ Healings in Motion Stroke Prevention, Recovery & Caregiver Support 56 S. Lincoln Street Stockton, CA 95203 (877) 672-4480 www.healingsinmotion.org Hyperbaric Oxygen Therapy 520 E. Center St Manteca, CA (209) 823-2131 www.oxygentherapytoday.com www.healingsinmotion.org

In-Shape 6 South El Dorado Street, Ste 700 Stockton, CA 95202 (209) 472-2231 www.inshapeclubs.com Solutions for Life 4560 North Pershing Ave Stockton, CA 95207, Suite A (209) 534-8000 www.s4lresources.com Tammy’s Janitorial Services P.O. Box 117 Stockton, CA 95201 (209) 430-1133 www.tammysjanitorial.com

Seniors AARP www.aarp.org Aging & Veterans Services 121 Downey Ave, Suite 102 Modesto, CA 95354 (800)510-2020 (209) 558-8698 www.agingservices.info/ Fall Prevention Center of Excellence www.homemods.org National Institute on Aging www.nia.nih.gov 57


Resources San Joaquin County Department of Aging Family Caregiver Support 102 South San Joaquin Street Stockton, CA 95201 www.sjaging.org

U.S. Senate Special Committee on Aging www.aging.senate.gov

Speech National Center for Voice and Speech 136 South Main Street, Suite 320 Salt Lake City, UT 84101-1623 (801)596-2012 www.ncvs.org

Therapy Constraint Induced Movement Therapy (CI Therapy) CI Therapy works because it helps patients overcome the learned nonuse that develops in the early poststroke or post-injury period. CI Therapy has been shown to rewire the brain; after therapy, a larger part of the brain is involved in producing movement of the weaker limb than before therapy.

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UAB Taub Therapy Clinic Center for Psychiatric Medicine C-700 1713 6th Avenue South Birmingham, Alabama 35233 (866)554-TAUB www.uab.edu

Chiropractic Dr. Dennis Nguyen, DC, PhD 2939 W. Capitol Avenue West Sacramento, CA 95691 (916)583-2632 Dr. Russell Rottacker, DC Chiropractic Neurologist 321 Cherry Lane Manteca, CA 95337 (209) 824-8160

Massage Therapy Choku-Rei Center 2028 West Orangeburg Avenue Modesto, CA 95350 (209) 450-6896 http://chokureicenter.com Mimosa Salon & Spa 150 W. Yosemite Avenue (209)823-7400 www.mimosa-salonspa.com

www.healingsinmotion.org


Resources

Rejuvenation Spa & Wellness Center 4509 Pacific Avenue Ste A (209) 451-4534 http://terrysmassagewellnesscenter. com Music Therapy with Melody 9767 Deep Water Stockton, CA 95219 (209)482-4470 www.musictherapywithmelody.com

Travel/Transportation Access-Able Travel Source www.access-able.com American Cancer Society The American Cancer Society presents the Road To Recovery Transportation Program. It provides transportation to and from treatment for people who have cancer who do not have a ride or are unable to drive themselves. (800) 227-2345 www.cancer.org/treatment/ caregivers/index Environmental Travel Companions (415) 474-7662 www.etctrips

www.healingsinmotion.org

San Joaquin County RTD P.O. Box 201010 Stockton, CA 95201 (209)467-6659 www.sanjoaquinrtd.com Wheelchair Get- Aways (800) 642-2042 www.wheelchairgetaways.com

Books and Magazines Books The Alzheimer’s Prevention Plan Gary Small, M.D. Neuroscientist www.drgarysmall.com Why Wait? The Baby Boomer’s Guide to Preparing Emotionally, Financially and Legally for a Parent’s Death Carolyn A. Brent, MBA www.caregiverstory.com

Magazines Home Care: A Family Caregiver’s Guide www.nextstepincare.org The Fearless Caregiver Magazine www.Caregiver.com

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Thank You toOur Sponsors

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www.healingsinmotion.org


Hacienda Crossings 4870 Dublin Blvd Dublin, CA 94568 (925) 452-1700

Store Hours: Mon-Sat 10:00 a.m. until 6:00 p.m. Closed on Sundays for Family Day

Barons wants to keep seeing smiling faces! Barons Jewelers was the vision of my father, Bart Heller. Bart turned his dream into reality when he opened Barons in Bayfair Mall in 1967. “Pop’s “ loved putting smiles on the faces of his customers as they purchased fine jewelry from him. Pop’ s built beautiful stores and filled them with elegant, dazzling pieces of jewelry. His legacy continues on today. I am inspired by my father and take pride in knowing that Barons is committed to giving you exceptional customer service and quality jewelry at a great price. Barons wants to keep seeing smiling faces! Come in and enjoy the Barons experience, we want to welcome you to the Barons family. Ronnie Heller President www.healingsinmotion.org

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Want Lower Electric Rates?

Add Your Voice Write a letter, make your voice heard, and have a say in what you pay.

EXPRESS YOUR SUPPORT ONLINE

or

A quick and easy way to show your support for SSJID’s plan online.

Get details at

SaveWithSSJID.com SOUTH SAN JOAQUIN IRRIGATION DISTRICT MANTECA • ESCALON • RIPON 62

www.healingsinmotion.org


www.healingsinmotion.org

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Healings in Motion 2014 Save the Dates Feb-December 2014

CV-RAPS Program at Dameron Hospital (4th Tuesday, 12n-2pm) • Date subject to changes

January – December 2014

Aneurysm/AVM San Joaquin Support Group (2nd Thursday, 5:30-7PM) • Date subject to changes

February 14, 2014

Romance Rendezvous An Evening of Love and Laughter A Fundraiser

March 21, 2014

Golf Classic

May 22, 2014

Stroke Awareness Day in San Joaquin County

July 12, 2014

Brain to Retain Expo, An Intergenerational Experience!

September 7, 2014

Coach for Life’s Champions Awards Dinner & Show

November 1, 2014

Caring for the Caregiver Symposium

December 22, 2014

County-Wide Christmas Luncheon for Stroke Survivors

Note: For updated information go to healingsinmotion.org www.facebook.com/healingsinmotion Healings in Motion @Brain2Retain 64

www.healingsinmotion.org


www.healingsinmotion.org

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FREE SPECIALIZED TELEPHONES For all eligible Californians

These are not ordinary phones. These phones do more so that millions with disabilities can do more. They amplify, caption, speech-assist and so much more . . . making communicating with family, friends, doctors and others easier. And they’re FREE to all eligible Californians. TO APPLY, Call 1-800-380-1500, or Visit www.CaliforniaPhones.org or bring a completed application to any California Phones Service Center in Sacramento, Berkeley, Redding, Fresno, Glendale, Riverside, Santa Ana, or San Diego.

AMPLIFIED

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SPEECH ASSIST

California Telephone Access Program, a program of the California Public Utilities Commission Deaf and Disabled Telecommunications Program. © 2013 California Public Utilities Commission

PICTURE DIAL

PORTABLE


Having the Heart to Care, A Handbook for Caregivers