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How can you help? We have been helping people for 50 years, but can only continue to do so with your help. We do our best to ensure that every penny we raise goes directly to those who need it. The organisation is run by volunteers and our running costs are kept as low as possible.

Registered Charity Number 255998

There are a number of ways in which you could help and support us. Join us: we want to get more people who have these conditions and/or their families involved so that we can build a support network within Hampshire & Dorset to support each other. Events: you could organize an event with your colleagues, friends or family to raise awareness or fundraise. Charity of the year: if you belong to a Rotary Club, Inner Wheel, Lions etc, you could nominate us to be the chosen charity for a period of time.

Get in Touch To find out more about our local association, please contact us

Sponsorship: If your company would like to sponsor us, or an event, please contact us about our needs. Legacies: we like to think that we will always be there for those who need our specialised services. A gift from you will help ensure our future.

Southampton & District Spina Bifida & Hydrocephalus Association Ferndean Lepe Road Langley Hampshire SO45 1YT E: P: 023 8040 2644 M: 07969 104367

Southampton and District Spina Bifida and Hydrocephalus Association

Supporting individuals with hydrocephalus or spina bifida and their families in Hampshire and Dorset 023 8040 2644 07969 104367

What is Hydrocephalus and Spina Bifida?

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Hydrocephalus meaning water on the brain is caused by a build-up of fluid in the ventricles of the brain. It can occur in premature babies, after meningitis, a head injury, a stroke, a tumour or in association with spina bifida. Treatment for hydrocephalus is usually surgical and ongoing throughout the person’s life. It can lead to problems with concentration, reasoning, vision and short term memory. Some people may also have difficulties with co-ordination, motivation and organisation. Spina bifida, literally meaning split spine, occurs early in pregnancy and can cause damage to the spinal cord and nerves resulting in paralysis/loss of control or sensation to any of the affected areas below the fault. Many people with spina bifida also have hydrocephalus. How do we differ from Shine?

What do we do?  Support individuals and their families with diagnosis and living with hydrocephalus and spina bifida  Provide locally centered information and advice  Provide social events for all age groups and peer support

Southampton & District Spina Bifida & Hydrocephalus Association and Shine work together but are separate organisations offering different services. It is usually a good idea to be a member of both! Shine help all people affected by spina bifida and hydrocephalus, as well as their carers and families within England, Wales and Northern Ireland. They share many of our aims but their focus is national whereas we see ourselves as a local befriending and support service. Shine

 Organise fundraising events

provide information concerning education, health, mobility, benefits and housing issues

a network of professional service advisors, specialist medical & education advisors

a free membership scheme with quarterly mailings for members which aims to inform, entertain and enthuse.

commission medical and social research

 Distribute welfare grants

Who are we? Southampton & District Spina Bifida & Hydrocephalus Association were the first charity in the UK to be set up for people with spina bifida, founded 50 years ago by a group of parents. These founders and their families still provide a wealth of support and experience to our members today. At present we are dedicated and committed to individuals with spina bifida or hydrocephalus and our boundary now includes the whole of Hampshire & Dorset (excluding the Isle of Wight).

closely with Shine  Liaise development workers to help with education, health and other related matters  Provide low cost holidays in our holiday chalet in Highcliffe  Produce a quarterly newsletter  Keep our members up to date with events from other providers in the local area.

Who are we  

Who are we

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