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Survive and Thrive Resource Directory Center for Integrative Oncology and Survivorship


The World Health Organization defines health as “a state of complete physical mental and social well-being and not merely the absence of disease or infirmity.� At the Center for Integrative Oncology and Survivorship, part of the Cancer Institute of Greenville Health System (GHS), we work to encourage every individual and family affected by cancer to have the best quality of life possible. Our hope is that the resources in this guide will help you achieve that goal.


PART 1: GHS PROGRAMS.......................................................................................... 3 Center for Integrative Oncology and Survivorship ............................................................4 Survivor’s Hand ............................................................................................................................5 Cancer Support Community at GHS Cancer Institute .....................................................6 Smoking Cessation ......................................................................................................................6 Lymphedema Management Program ....................................................................................7 Cancer Genetics Program..........................................................................................................7 PART 2: RESOURCES BY NEED/TOPIC....................................................................9 Mental Health ( SDI 1, 2, 6, 8, 9, 10) .....................................................................................10 Cancer Support Community Helpline..............................................................................10 American Cancer Society Hotline.....................................................................................10 Support Groups for All Survivors...........................................................................................10 One-to-One Mentor Support.................................................................................................. 11 Local Mental Health Centers.................................................................................................. 12 Fatigue ( SDI 4)............................................................................................................................ 13 Financial Assistance ( SDI 3)....................................................................................................14 General......................................................................................................................................14 Co-pays..................................................................................................................................... 15 Prescriptions............................................................................................................................. 16 Local/Regional Transportation........................................................................................... 17 Long-distance Travel.............................................................................................................. 17 Nutrition ( SDI 11)........................................................................................................................18 Appearance ( SDI 7)................................................................................................................... 19 Feelings of Isolation ( SDI 5)....................................................................................................20 Spirituality ( SDI 6)...................................................................................................................... 21 Caregiver Support...................................................................................................................... 21 Smoking Cessation ................................................................................................................... 22 Survivorship ................................................................................................................................ 23 Contents continued on page 2 SDI Note: SDI icons throughout this book refer to the Suscro Distress Inventory, a tool

used by GHS staff to help you through challenges you may face.


PART3: RESOURCES BY DIAGNOSIS.....................................................................25 Bladder Cancer........................................................................................................................... 26 Brain Tumor................................................................................................................................. 26 Breast Cancer............................................................................................................................. 27 Colorectal Cancer......................................................................................................................30 Esophageal Cancer..................................................................................................................... 31 Gastric Cancer............................................................................................................................. 31 Gynecologic Cancers (Cervical, Ovarian, Uterine).......................................................... 32 Head and Neck Cancer ........................................................................................................... 33 Kidney Cancer............................................................................................................................ 33 Leukemia and Lymphoma ......................................................................................................34 Liver Cancer................................................................................................................................ 35 Lung Cancer................................................................................................................................ 35 Melanoma.................................................................................................................................... 36 Multiple Myeloma .................................................................................................................... 36 Pancreatic Cancer...................................................................................................................... 37 Prostate Cancer ......................................................................................................................... 37 Skin Cancer.................................................................................................................................. 38 Testicular Cancer....................................................................................................................... 38 PART 4: OTHER SUPPORT.......................................................................................39 Cancer Information/Education..............................................................................................40 Fertility Support.........................................................................................................................40 Men’s Support.............................................................................................................................41 One-to-One Connections........................................................................................................41 Online Support........................................................................................................................... 42 Website Customization........................................................................................................... 42 Women’s Support..................................................................................................................... 43 Young Adult Support................................................................................................................ 43 COUNTY RESOURCES............................................................................................. 44

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Part 1: GHS Programs

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Center for Integrative Oncology and Survivorship (CIOS) GHS’ Center for Integrative Oncology and Survivorship is a patient-centered program integrating traditional cancer care with evidenced-based complementary therapies. Complementary therapies are non-medical and address emotional, spiritual and physical needs. Complementary therapies with traditional cancer care treat the “whole patient.” Complementary Therapies • “Moving On” Oncology Rehabilitation Program (physician referred 12-week exercise program) • Yoga • Massage • Acupuncture • Music therapy • Nutrition counseling • Mindfulness-based stress reduction programs • Psychosocial services • Biofeedback These therapies help manage cancer symptoms and maintain energy levels from diagnosis to after treatment.

Who is a survivor? An individual is a cancer survivor from the time of diagnosis. Not only is the individual who is diagnosed a survivor but also anyone who is affected by an individual’s cancer, be it a family member, friend or voluntary caregiver.

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CIOS is one of the first centers to combine integrative oncology and survivorship. This combination improves outcomes, highlights cancer prevention and enhances quality of life. CIOS houses a multidisciplinary team of professionals consisting of physicians, nurse practitioners, nurses, nutritionists, counselors, social workers and other clinicians who provide direct services or refer patients, during all stages of survivorship, to programs that address their needs. For more information on CIOS, call (864) 455-1346 or visit www.ghs.org/cios.

An individual is a cancer survivor from the time of diagnosis, throughout treatment and beyond. CIOS works to facilitate the best quality of life possible from the initial point of survivorship. Survivor’s Hand A GHS cancer survivor/volunteer will walk you through the Cancer Institute to familiarize you with treatment areas and equipment. The tour will include the Radiation Department, Laboratory, Chemotherapy Infusion Department and Main Lobby. We hope the tour will decrease any treatment fears you may have and connect you with other survivors and support groups. This tour is designed to help you increase your quality of life during and after treatment. For a tour, call (864) 455-5894. Tour times are Tuesdays and Thursdays at 2 p.m. and on special request. Location is 900 W. Faris Road, at the GHS Cancer Institute’s Center for Integrative Oncology and Survivorship.

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Cancer Support Community at GHS Cancer Institute Cancer Support Community is the largest nonprofit provider of psychosocial services to cancer survivors in the country. GHS is proud to be its first hospital partner. Programs offered are free and evidence-based. The Cancer Support Community (CSC) at GHS offers programming to address the emotional and social needs of those affected by cancer. Its mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. Part of CSC programming is to offer a monthly calendar of items in these four areas: • Comprehensive Support: Enhancing well-being through support groups facilitated by a licensed professional, one-to-one connections and development of community. • Education: Empowering through classes, evidence-based workshops and print materials. • Healthy Living Programs: Improving quality of life through stress reduction, movement, nutrition and mindfulness. • Social Activities: Connecting and engaging with others in a supportive environment, learning new things and having fun. Look for the calendar at www.ghs.org/cancersupportcommunity. For more information or to be placed on the mailing list for the calendar, call (864) 455-5809. Smoking Cessation Program GHS is proud to offer the smoking cessation program called QuitSmart. This highly successful program takes an evidence-based, multi-disciplinary approach to systematically wean patients off tobacco. QuitSmart takes place at GHS’ Center for Integrative Oncology and Survivorship, 900 W. Faris Road, Greenville, SC 29605. For more information, call (864) 4555219. For an appointment, call (864) 455-1346.

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Lymphedema Management Program (LMP) LMP at GHS’ Center for Integrative Oncology and Survivorship helps patients prevent or control cancer-related lymphedema. The program includes decongestive therapy by a specially trained and certified physical therapist, presurgery screening, lymphedema education and oncology rehabilitation. The program is located at the GHS Cancer Institute, 900 W. Faris Road, 1st Floor, Greenville, SC 29605. Physician referral is required; for more information, call (864) 455-1346 or visit ghs.org/oncologyrehab. Cancer Genetics Program The program is staffed by board-certified genetic counselors. Carla Jorgensen, MD, a medical oncologist, is the program’s medical director. The program’s goal is to identify individuals and families at increased risk of having an inherited cancer syndrome and to offer options for genetic testing, screening, and medical management based on medical and family histories. For many families, genetic testing can affect management recommendations to ultimately reduce the risk of developing certain types of cancer and identify those individuals in the family who can be defined as high risk. Appointments are by physician referral. For more information, call (864) 455-5836. Should I seek genetic counseling? If you or a close family member (parent, child, brother, sister, aunt/uncle or grandparent) has a history of any of the following or if there already has been genetic testing in your family and there is a known gene mutation, please ask your doctor about referring you for a genetic counseling appointment.

Make a Difference: Volunteer We understand that volunteering is giving of yourself and your time. We greatly appreciate any amount that you are able to provide. We have exciting opportunities to provide support in our Center for Integrative Oncology and Survivorship. Get in on the ground floor of something GREAT! Please call (864) 455-5809 for more information about volunteering.

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Breast Cancer • Diagnosed at any early age (50 years or younger) • Two types of breast cancer in the same person at any age • Triple negative breast cancer (ER/PR/Her2Negative) • Diagnosed with breast cancer at any age with … - One relative with breast cancer before age 50 or ovarian cancer at any age OR - Two relatives on the same side of the family with breast cancer or pancreatic cancer at any age • Male breast cancer • Multiple relatives on the same side of the family with breast cancer at any age • Breast cancer with any of these other cancers or features: - Sarcoma, non-medullary thyroid cancer, adrenocortical carcinoma (cancer), brain tumors, stomach cancer, uterine cancer leukemia/lymphoma, very large head size, skin changes (specific to a genetic condition known as Cowden syndrome) Other Female Cancer • Ovarian cancer at any age • Uterine cancer before age 55 Colon Cancer or Polyps • Colon or rectal cancer diagnosed before age 50 • More than 10 colon polyps • Colon or rectal cancer with any of the following cancers in the same individual or another family member, especially if diagnosed before age 50: - Uterine, stomach, ovarian, small bowel, kidney/ureter, brain, pancreatic, bile duct (also sebaceous gland adenomas and keratoacanthomas)

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Part 2: Resources by Need/Topic

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Mental Health SDI 1, 2, 6, 8, 9, 10 Cancer Support Community Helpline: 1-888-793-9355 CSC’s toll-free Helpline is open weekdays 9 a.m.-8 p.m. ET. A counselor can help with emotional and social worries that cancer sometimes brings to life; find a nearby support group, online support group or discussion group; provide short-term cancer counseling and emotional support; and arrange for Open to Options™ treatment decision support counseling. American Cancer Society Hotline: 1-866-227-4395; provides information on ACS programs, local resources and support. Support Groups for All Survivors Managing Stress Support Group: Cancer Support Community (CSC) at GHS. 1st Thursday monthly. GHS Cancer Institute Lobby, 900 W. Faris Road, Greenville, SC 29605. Call (864) 455-5694 to register or for more information. Thrive: Cancer Support Community (CSC) at GHS. 3rd Thursday monthly. GHS Cancer Institute Lobby, 900 W. Faris Road, Greenville, SC 29605. For all survivors regardless of diagnosis, level of distress or length of time since diagnosis. Call (864) 455-5694 to register or for more information. Cancer Warriors (for Men): Monthly meeting at the Eastside Office of GHS Cancer Institute, 65 International Drive, Greenville, SC 29615. Call (864) 987-7000. Cancer Caring Connection: For patients, survivors and their families. Call (864) 560-1800. Cancer Patients: Cancer Society of Greenville County; 1st and 3rd Tuesdays monthly, 11:30 a.m. 113 Mills Ave., Greenville, SC 29605. For individuals with any type of cancer. Call (864) 232-8439. CARE (Come and Receive Encouragement): Brushy Creek Baptist Church, 4999 Old Spartanburg Road, Taylors, SC 29687. 2nd Tuesdays monthly, 6-7:30 p.m. Christ-centered support group. Call (864) 292-3568.

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One-to-One Mentor Support (for those who went through a similar cancer experience) 4th Angel (Cancer Patient and Caregiver Mentoring Program): www.4thangel.org, 1-866-520-3197. Part of the Scott Hamilton CARES initiative. One-to-one confidential outreach and support from a mentor, opportunity for patients and caregivers to connect with someone who went through similar experience. Imerman Angels: www.imermanangels.org, 1-877-274-5529. Global nonprofit that matches and individually pairs a person touched by cancer with someone who has already fought and survived the same type of cancer (a Mentor Angel). Cancer caregivers also receive 1:1 connections with other caregivers and survivors.

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Local Mental Health Centers Brownell Center (outpatient psychotherapy and psychiatry): 701 Grove Road, Greenville, SC 29605; (864) 455-8431 Center for Integrative Oncology and Survivorship (CIOS): Individual counseling; 900 W. Faris Road, 1st Floor, Greenville, SC 29605; (864) 455-1356 Anderson Mental Health Center: 200 McGee Road, Anderson, SC 29625; (864) 260-2220 Greenville Mental Health Center: 124 Mallard St., Greenville, SC 29601; (864) 241-1040 (includes acute crisis services) Greenwood Mental Health Clinic: 1547 Parkway, Ste. 200, Greenwood, SC 29646; (864) 223-8331 Greer Mental Health Clinic: 220 Executive Drive, Greer, SC 29651; (864) 879-2111 Laurens Mental Health Center: 442 Professional Park Road, Clinton, SC 29325; (864) 938-0912 Oconee Mental Health Clinic: 115 Carter Park Drive, Seneca, SC 29678; (864) 885-0157 Pickens Mental Health Clinic: 314 W. Main St., Pickens, SC 29671; (864) 878-6830 Spartanburg Area Mental Health Clinic: 250 Dewey Ave., Spartanburg, SC 29303; (864) 585-0366 Union Mental Health Clinic: 130 Medical Sciences Drive, Union, SC 29379; (864) 427-1224

You also may contact ‌ American Psychosocial Oncology Society: www.apos-society.org; local helpline is 1-866-276-7443 (connection within 24-48 hours for counseling services)

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Fatigue SDI 4 Research shows that exercise can help reduce fatigue. Cancer Support Community at GHS: Offers several activities including yoga, a walking club, and strength and stability classes. For a schedule of classes and/or more information, call (864) 455-5809 or visit www.ghs.org/cios. “Moving On” Oncology Rehabilitation Program at GHS: For individuals who have completed and are less than 3 years post-treatment. Moving On allows patients with cancer to “move on” past the challenges of their disease by decreasing fatigue, increasing strength and improving quality of life. The program centers on aerobic conditioning and strengthening, which have been repeatedly demonstrated as beneficial for patients experiencing profound fatigue and deconditioning associated with cancer. Physician referral is required. For more information, call (864) 455-1346. Yoga Classes (Free): Cancer Support Community, GHS Cancer Institute, Mezzanine Level, 900 W. Faris Road (Entrance 8), Greenville, SC 29659; call (864) 455-4399 for a schedule. Circle of Hope (Free Water Exercise Classes): For women who have had cancer; takes place at the YMCA at 721 Cleveland St., Greenville, SC 29601. Classes are Mondays and Wednesdays 1-2 p.m. Go to the facility and fill out paperwork before class for access or call (864) 242-4651/288-2118. Counseling: Learn how to save energy, reduce stress and distract yourself from the fatigue. (See more in this Mental Health section.) Nutrition: Proper nutrition is an important component in fighting fatigue. (See section on Nutrition.) 13


Financial Assistance SDI 3 General Cancer Association of Anderson County: www.cancerassociationanderson.org; (864) 222-3500; 215 E. Calhoun St., Anderson 29621 Cancer Association of Spartanburg and Cherokee Counties: www.cancerassociation.org; (864) 582-0771; 209 E. Main St., Ste. 100, Spartanburg, SC 29302 Cancer Society of Greenville: www.cancersociety.org; (864) 232-8439; 113 Mills Ave., Greenville, SC 29605 Union County Cancer Service: (864) 427-8752; 117 Fant Lane, Union, SC 29379 Bone Marrow Foundation: www.bonemarrow.org, 1-800-365-1336. Provides financial assistance to bone marrow transplant patients (typically between $300500, but up to $1,000); application is online, requires MD and social worker assistance to complete; can apply up to 6 months post-transplant. Cancer Fund of America: www.cfoa.org, 1-865-938-5281 (not toll free). Nonprofit organization set up to help cancer patients obtain products for free. The C.H.A.I.N. Fund: www.thechainfund.com, 1-203-691-5539 (not toll free). Nonprofit organization helping individuals with a cancer diagnosis meet household/living expenses. Funds are limited, so applicants may be placed on a waiting list. Application is available online. Livestrong: www.livestrong.org, 1-855-220-7777. Support through education, referrals and counseling services; fertility preservation information and assistance; financial, insurance and job concerns counseling and resources; Livestrong Navigation Services. Social Security Administration for Disability: www.ssa.gov/, 1-800-772-1213 United Way: For a list of all emergency and charitable organizations in your area, call 211.

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Co-pays CancerCare Co-pay Assistance Program: www.cancercarecopay.org, 1-866552-6729. Provides assistance for medications. Monies are from different grants that CancerCare receives. Grants are diagnosis specific, so they do not service all diagnoses; when funds run out, you must wait until more monies arrive. Chronic Disease Fund: www.cdfund.org, 1-877-968-7233. Provides immediate access to financial assistance to expedite medication therapy management (maintains separate disease trusts with separate funds for every disease state covered). Check website or call to find out if monies are available under particular disease trust. Healthwell Foundation: www.healthwellfoundation.org, 1-800-675-8416. Addresses the needs of individuals who cannot afford their insurance copayments, premiums, co-insurance or other out-of-pocket healthcare costs. National Organization for Rare Disorders (NORD): www.rarediseases.org, 1-203-744-0210 (not toll free). Assists uninsured or under-insured individuals in getting medications. Offers assistance for bladder cancer, Hodgkins lymphoma, multiple myeloma and advanced renal cell carcinoma. Partnership for Prescription Assistance (PPA): www.pparx.org, 1-888-4772669. Offers a single point of access for more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. Patient Access Network Foundation: www.panfoundation.org, 1-866-316-7263. Assists patients who cannot access the treatments they need because of out-ofpocket healthcare costs including deductibles, co-payments and co-insurance. Patient Advocate Foundation’s Co-pay Relief Program: www.copays.org, 1-866512-3861. Provides direct co-payment assistance for pharmaceutical products to insured patients (including Medicare Part D beneficiaries) who financially and medically qualify. Patient Services Incorporated (PSI): www.uneedpsi.org, 1-800-366-7741. Assists patients with chronic medical illnesses in accessing health insurance (COBRA) and pharmacy co-payment assistance.

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Prescriptions Free Medicine: www.freemedicineprogram.org/, 1-573-996-3333 (not toll free). Assists uninsured and under-insured individuals to get their medications free or at low cost. Help Rx: www.helprx.info/. Mission is to provide the best markdowns on prescription drugs on the web. A free service. Discounts are good at virtually every pharmacy in the U.S. Needy Meds: www.needymeds.org/, 1-800-503-6897. Works with Rx Outreach, the world’s largest nonprofit pharmacy, to offer generic medications assistance program that helps people unable to afford certain more expensive generic medication. Simplefill: 1-877-386-0206. Helps uninsured and under-insured Americans afford their prescribed medications. You may want to find out if the pharmaceutical company that makes your medication has a prescription assistance program—many do!

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“Never doubt that a small group of individuals can change the world.� Margaret Mead, author

Local/Regional Transportation American Cancer Society (ACS) Road to Recovery: 1-800-ACS-2345. Provides rides to and from medical appointments through a network of volunteer drivers. CancerCare: www.cancercare.org, 1-800-813-HOPE (4673). Provides financial assistance for transportation costs (based on income qualifications). Call to determine if you meet criteria; if approved, application will be mailed. Cancer Society of Greenville: (864) 232-8439; 113 Mills Ave., Greenville, SC 29605. Mileage reimbursement program: Pays for miles from home to medical appointments and back. LogistiCare: 1-866-910-7688. Transportation for Medicaid patients to and from medical appointments. Rides must be arranged 3 days before appointment. Long-distance Travel Angel Flight: www.angelflight.com, 1-819-749-8992 (not toll free). Free air transportation for any legitimate, charitable, medical-related need. Transportation also is arranged for those who are financially distressed or in a time-critical, nonemergency situation because of their medical condition. Corporate Angel Network: 1-914-328-1313 (not toll free); Westchester County Airport, White Plains, NY 10604. Matches patients with cancer in need of travel with private corporate jet schedules.

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Nutrition SDI 11 Nutrition Counseling: (864) 455-1346; GHS Center for Integrative Oncology and Survivorship Healthy Way: (864) 455-2862. Program for weight management focusing on healthy behaviors, food choices and nutrition. Each Thursday, 3:30-4:30 p.m. Call Center for Integrative Oncology and Survivorship. American Institute for Cancer Research (AICR): www.aicr.org, 1-800-843-8114. Focuses on the relationship between nutrition and cancer prevention; offers programs on diet, education and prevention including a nutrition hotline; free seminars on diet and cancer, a quarterly newsletter, and other resources and professional services. Cancer Project: www.cancerproject.org, 1-202-244-5038 (not toll free). Provides comprehensive information about the role of dietary factors in keeping people healthy; classes, books, video programs, fact sheets, brochures and other educational materials on cancer prevention and survival. Cook for Your Life: www.cookforyourlife.org. Free cooking website that aids survivors and their families by providing easy-to-make healthy recipes, instructional videos and informative articles; only website with a unique search tool to help users find recipes to suit their needs as they go through the rigors of cancer treatment. Cancer Dietitian: www.cancerdietitian.com. Lifestyle tips for prevention and survivorship.

Nutrition is a vital component to your treatment plan, during and after cancer therapy. Many changes may occur that can affect your nutrition status. Change in taste: You may develop a metallic taste in your mouth or have increased or decreased sensitivity to salt or spice. Appetite: You may notice a decrease or increase in appetite based on your stage of treatment and type of treatments. Gastrointestinal changes: You may develop nausea, vomiting, diarrhea, constipation or dry mouth. For information related to symptom management and good nutrition during or after treatment, visit oncologynutrition.org or cancer.org/healthy/index.


Appearance SDI 7 American Cancer Society: Look Good ‌ Feel Better: 1-866-227-4395 or (864) 627-1903. Monthly workshops conducted by a licensed cosmetologist to help women deal with appearance-related side effects of treatment; sponsored by American Cancer Society and facility where meets. Registration required. American Cancer Society: 145 Milestone Way, Greenville, SC 29615; (864) 6271903. Wigs at no cost. Cancer Society of Greenville: 113 Mills Ave., Greenville, SC 29605; (864) 2328439. Wigs at no cost. Second to Nature Boutique: 900 W. Faris Road, 1st Floor, Greenville, SC 29605; (864) 455-5230. Specialty shop providing prosthetics, post-surgical bras and camisoles, wigs, hats, turbans, apparel and skin care. Parisienne Wigs: 2120 Laurens Road, Greenville, SC 29607; (864) 297-8235.

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Feelings of Isolation SDI 5 Cancer Support Community at GHS: (864) 455-5809. Offers programs to address the emotional and social needs of all individuals affected by cancer. Offerings include yoga, exercise, support groups for survivors and caregivers, social events, and educational classes. All programs are free and evidence-based. For more information and/or a calendar of upcoming events, go to www.ghs.org/cios. American Cancer Society (ACS): www.cancer.org, 1-800-227-2345. Call this hotline for support groups in your area. Reach to Recovery for breast cancer survivors provides connection to another local survivor. Cancer Association of Anderson County: 215 E. Calhoun St., Anderson, SC 29621; www.cancerassociationanderson.org. Support groups. Cancer Caring Connection: (864) 560-1800. Support group for patients, survivors and their families. Cancer Society of Greenville: 113 Mills Ave., Greenville, SC 29605; (864) 2328439. Variety of support groups. Cancer Support Community Helpline: 1-888-793-9355. Counselors help with emotional and social worries related to a cancer diagnosis, referral to nearby support group, online support or discussion groups. CARE (Come and Receive Encouragement): (864) 292-3568. 2nd Tuesdays monthly 6-7:30 p.m. Brushy Creek Baptist Church, 4999 Old Spartanburg Road, Taylors, SC 29687; Christ-centered support group. NOTE: For diagnosis-specific support groups, please turn to page 25. Diagnosis support groups are listed first in each section. 20


Spirituality SDI 6 Spiritual Care and Education at GHS: (864) 455-7942 Mindfulness-based Cancer Survivorship (MBCS): (864) 455-5809. Center for Integrative Oncology and Survivorship (CIOS) at GHS. Call for more information and schedule of classes. Caregiver Support Caregiver Support Groups Cancer Support Community at GHS: 900 W. Faris Road, Greenville, SC 29605; (864) 455-5809 Cancer Society of Greenville County: 113 Mills Ave., Greenville, SC 29621; 2nd Tuesdays monthly, 3 p.m.; (864) 232-8439 Caregiver Resources Empowering Caregivers: www.care-givers.com. Education and information on many caregiver issues, links to weekly chats, free biweekly newsletter, journaling opportunities. Family Caregiver Alliance: www.caregiver.org, 1-800-445-8106. Supports and assists caregivers through education, research and services that include publications, caregiver training, workplace program, research and policy initiatives and advocacy. Lots a Helping Hands: www.lotsahelpinghands. Connects caregivers through the power of community (whether you need help or want to provide it). National Alliance for Caregiving: www.caregiving.org. National nonprofit agency for caregivers offering free studies and brochures. National Family Caregivers Association (NFCA): www.thefamilycaregiver.org, 1-800-896-3650. Supports, empowers, educates and speaks up for the men and women who care for chronically ill, aged or disabled loved ones. Strength for Caring: www.strengthforcaring.com. First national program for cancer caregivers to address both the physical and psychosocial health needs of the patient and caregiver; free workshops, caregiver tips and resources.

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Smoking Cessation Support Groups Cessation Support (Patewood Memorial Hospital): Community Room, 175 Patewood Drive, Greenville, SC 29615. Tuesdays, 6:30-7:30 p.m. Nicotine Anonymous: 12-step program for those who want to quit tobacco and nicotine addiction. Greer: Village at Pelham, 250 Westmoreland Road (medical office building in front of hospital); Tuesdays, 6 p.m. Clemson: Fr. Hill Presbyterian Church, 399 College Ave., Room 205, Wednesdays, 5:45 p.m. Cessation Resources Smoking Cessation Program (QuitSmart): Evidence-based multi-disciplinary approach; systematic weaning of nicotine. Center for Integrative Oncology and Survivorship, 900 W. Faris Road, Greenville, SC 29605. For more information, call (864) 455-5219. For an appointment, call (864) 455-1346. See also page 6. QuitWell: GHS and the American Cancer Society have developed a customized program to stop smoking. Cost is $40 but scholarships are available. Call (864) 455-WELL (9355) to enroll or get more information. Baptist Easley Hospital Tobacco Cessation Program: (864) 442-STOP (7867); 200 Fleetwood Drive, Easley SC 29640 National Cancer Institute Smoking Quitline: 1-877-44U-Quit (448-7848). Counseling by trained persons. South Carolina Tobacco Quitline: www.scdhec.gov/quitforkeeps, 1-800-QUITNOW (784-8669). Free comprehensive tobacco treatment service featuring phone and Internet counseling 8 a.m.-3 p.m. every day. Online Support www.quitcoach.com www.quitnet.com

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Survivorship Center for Integrative Oncology and Survivorship (CIOS): 900 W. Faris Road, 1st Floor, Greenville, SC 29605. This patient-centered program addresses the “whole person” through traditional cancer care along with evidenced-based complementary therapies. (Complementary therapies are non-medical and address emotional spiritual and physical needs.) CIOS houses a multi-disciplinary team of professionals including physicians, nurse practitioners, nurses, social workers, counselors, nutritionists and other clinicians who provide direct services or refer patients during all stages of survivorship from diagnosis on. For more information or to get assistance for a survivorship referral, call (864) 455-1346 or visit www.ghs.org/cios. See also page 4. Cancer Support Community (CSC) at GHS Cancer Institute: 900 W. Faris Road, Ground Floor, Greenville, SC 29605. This extensive community includes a monthly calendar of programs that address the social and emotional needs of all individuals impacted by cancer. Offerings include yoga, Walking Club, Writing Program, Healthy Way, support groups, KidSupport™, Mindfulness-based Cancer Survivorship (MBCS) and Reiki. For more information or a calendar, call (864) 455-5809 or visit www.ghs.org/cancersupportcommunity. See also page 6.

Cancer Survivors Park of Greenville, SC (a project of Patients First) The Cancer Survivors Park is both a tribute to survivors learning to live and thrive through cancer as well as a place of reflection and remembrance of those who have passed on and left friends and families as “survivors” of their lives and heritage. Located behind the Greenville Chamber of Commerce, the gardens, pavilion area and healing spaces are a gathering place for patients and families to gain respite and strength and for communities to celebrate life. Once completed, the park also will serve as a focal point for education about the disease, information about resources and inspiration for continuing along the healing journey. To learn more, visit www.cancersurvivorspark.org or call (864) 255-5010.

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Cancer Survivors Network (American Cancer Society): csn.cancer.org. Online community for cancer survivors, families and friends. National Coalition for Cancer Survivorship (NCCS): www.canceradvocacy.org. Oldest survivor-led cancer advocacy program in the county; evidence-based advocacy, patient education, access to credible and accurate patient information such as NCCS’ award-winning Cancer Survival Toolbox. National Cancer Institute: Office of Cancer Survivorship: survivorship.cancer.gov, 1-800-422-6237. Offers publications on all oncology diagnoses, issues and survivorship.

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Part 3: Resources by Diagnosis

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Bladder Cancer Bladder Cancer Advocacy Network (BCAN): www.bcan.org/, 1-888-901-BCAN (2226). Provides educational and support services for the bladder cancer community, increases public awareness and advances research. United Ostomy Associations of America Inc.: www.ostomy.org/, 1-800-826-0826. Offers support, information and advocacy to ostomates and their caregivers. Brain Tumor American Brain Tumor Association (ABTA): http://hope.abta.org, 1-800-866ABTA (2282). Supports brain tumor patients and their families, provides educational materials; opportunity to speak with a social worker. Brain Tumor Society: www.tbts.org, 1-800-770-TBTS (8287). Strives to improve the quality of life of brain tumor patients and their families, distributes information about brain tumors, and provides support. Brain Trust: www.braintrust.org, 1-877-252-2480. Provides online community to share information and support about brain tumors and related conditions; over a dozen online support groups. National Brain Tumor Foundation (NBTF): www.braintumor.org, 1-800-934-CURE (2873). Provides information, counseling, and patient support services to brain tumor patients and their families; newsletter, patient-to-patient support line, resource guide, list of support groups, and training for caregivers. Southeastern Brain Tumor Foundation: www.sbtf.org. Information, education and support services for brain tumor patients and their families; links to additional brain tumor organizations to brain tumor survivors throughout the Southeast.

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Breast Cancer

Support Groups

Return to Wellness: (864) 455-5809. 2nd Thursday monthly. Cancer Support Community, GHS Cancer Institute, Lobby Group Room, 900 W. Faris Road (Entrance 8), Greenville, SC 29605. Post-treatment breast cancer support group. Call to register. FORCE (Facing Our Risk of Cancer Empowered): www.facingourrisk.org. National nonprofit for individuals and families affected by hereditary breast and ovarian cancer. PINK (Partners in Nurturing and Knowledge): (864) 228-1654. Last Thursday monthly, 6:30-8:30 p.m. First Baptist Church Simpsonville, 3 Hedge Street– Building B, Simpsonville, SC 29681. Survive and Thrive: www.cancersocietygc.org, (864) 232-8439. 1st & 3rd Thursdays monthly. Cancer Society of Greenville, 113 Mills Ave., Greenville, SC 29605. Uplift: 1st Monday monthly, 5:30 p.m. Westminster Presbyterian Church, 2310 Augusta Road, Greenville, SC 29605. Young at Heart–Taylors Baptist Church Family Life Center: (864) 244-3535. 1st Tuesday monthly, 6-7:30 p.m. 200 W. Main St., Taylors, SC 29687. In the Family Life Center.

Resources

Breastcancer.org: www.breastcancer.org. Information, education, Community Section with chat rooms, stories.

27


Breast Cancer Network of Strength: www.networkofstrength.org, 1-800-2212131/Spanish 1-800-986-9505. Several other languages available. Educational information on multiple topics of daily concern, such as nutrition to lowering cancer risks, symptoms, treatments and side effects. Breast Cancer Resource Committee (BCRC): www.bcrc.org, 1-202-463-8040 (not toll free). National nonprofit targeting African Americans; provides early detection programs, treatment education, support groups, peer counseling, newsletters. Breast Cancer Stories: www.BreastCancerStories.org. Online support community where those touched by breast cancer can share their experiences with loved ones and one another. BrightPink: www.Brightpink.org. Support for women under 45; outreach groups, peer forums and support, educational materials. Living Beyond Breast Cancer: www.lbbc.org, 1-610-645-4567 (not toll free). Empowers women affected by breast cancer “to live as long as possible with the best quality of life.” Looking for a Cure: www.lookingforcure.org. Most recent breast cancer information; constantly updated. Look Good … Feel Better: (864) 627-1903 or 1-866-227-4395. Monthly workshops conducted by a licensed cosmetologist to help women with appearance-related side effects of treatment. Sponsored by American Cancer Society and facility where group meets. Registration required. Men Against Breast Cancer (MABC): www.menagainstbreastcancer.org, 1-866-547-6222. Provides services to support husband/partner of women with breast cancer. Mothers Supporting Daughters with Breast Cancer (MSDBC): www.mothersdaughters.org, 1-410-778-1982 (not toll free). Free support services to help mothers who have daughters with breast cancer. National Breast Cancer Foundation Inc.: www.nationalbreastcancer.org. Website to increase awareness, educate and provide support services to patients and survivors. 28


Pink-Link: www.pink-link.org. Online breast cancer support network. Reach to Recovery: (864) 627-1903. Patient-to-patient support for breast cancer patients (program of the American Cancer Society). SHARE–Self Help for Women with Breast or Ovarian Cancer: www.sharecancersupport.org, 1-866-891-2392 (toll-free hotline). Supports, educates and empowers people affected by breast or ovarian cancer. Sharsheret: www.sharsheret.org, 1-866-474-2774. Addresses the needs of Jewish women with breast cancer. Susan G. Komen–SC Mountains to Midlands: www.komenscmm.org; 864-234-5035; 531 S. Main St., Ste. MC-10, Greenville, SC 29601. Online community, education, connection to resources. Sisters Network Inc.: www.sistersnetworkinc.org, 1-713-781-0255 (not toll free). Increases awareness and support for women in African American community, financial support, monthly e-newsletter. Closest affiliate chapter is in Andrews, SC: unityandrewssc@sistersnetworkinc.org, 1-843-278-9163 (not toll free). Resources for Young Women with Breast Cancer Brenda Mehling Cancer Fund: www.bmcf.net. Provides grants to women 18-40 years old to assist with co-payments, transportation, insurance, repairs, groceries (typical grant is $500). Kristy Laschy Foundation: http://www.kristylasch.org/. Financial assistance for women under 30 living with breast cancer (medical-related expenses only). The Tigerlily Foundation: www.tigerlilyfoundation.org. Educates, empowers, advocates, supports and inspires women affected by breast cancer. Provides practical services to assist patient and family, such as financial assistance, chemo buddy program, support group. Young Survival Coalition (YSC): www.youngsurvival.org, 1-877-YSC-1011 (9721011). Focuses on issues unique to women age 40 and under who are diagnosed with breast cancer.

29


Colorectal Cancer

Support Group

Call (864) 583-2721 for dates and times.

Resources

Anal Cancer Foundation: www.analcancerfoundation.org, 1-646-593-7739. Provides support, resources, forums, programs to raise awareness. Chris4life Foundation: www.Chris4life.org, 1-855-610-1733. Provides $250 grants to qualified patients with colorectal cancer for basic living expenses. Colon Cancer Alliance: www.ccalliance.org, 1-877-422-2030. Organization of colon and rectal cancer survivors, caregivers, people with a genetic predisposition to the disease and other individuals touched by colorectal cancer; quarterly newsletter, support program, advocacy. Colon Cancer Solutions (CCS): www.gicancersolutions.org, (864) 583-2721. Colon cancer advocacy group based in Spartanburg that works to provide support to patients and families. Colon Club: www.colonclub. Nonprofit raising awareness of colorectal cancer in out-of-the-box ways, support and connections for survivors. Colorectal Cancer Network (CCNetwork): www.colorectal-cancer.net, 1-301-879-1500 (not toll free). Supports family and friends of colorectal patients through educational materials and information, as well as group and peer-to-peer counseling. Colorectal Care Line: www.colorectalcareline.org, 1-866-657-8634. Limited financial assistance for transportation, etc. Fight Colorectal Cancer: http://fightcolorectalcancer.org; Answer line: 1-877427-2111. Educational information, My Cancer Watch, advocacy. Meredith’s Miracles Colon Cancer Foundation: www.meredithsmiraclesfoundation.org, 1-847-227-7547 (not toll free). Provides financial support to individuals 40 years or younger going through treatment for colon cancer.

30


Esophageal Cancer Esophageal Cancer Awareness Association: www.ecaware.org/, 1-800-601-0613. Provides outreach for esophageal patients, caregivers, survivors; increases public awareness; offers education and information in a supportive environment. Esophageal Cancer Education Foundation: www.fightec.org, hotline 1-732-3857461 (not toll free). Walks the journey with patients who have the disease, brings awareness, educates the public; support groups, newsletter, education. Gastric Cancer Cancer Support Community: www.cancersupportcommunity.org, 1-888-793-9355. Provides education and support to patients and family members. Debbie’s Dream Foundation: www.debbiesdream.org, (954) 475-1200. Nonprofit providing education and support to patients, families and caregivers; raising awareness about stomach cancer; advancing funding for research. Gastric Cancer Foundation: www.gastriccancer.org. Education, advocacy, stomach cancer patient registry, research. 31


Gynecologic Cancers (Cervical, Ovarian, Uterine)

Support Groups

Conversations: www.ovarian-news.org, 1-806-355-2565 (not toll free). Supports those fighting ovarian cancer and other related illnesses. Increase public and professional awareness and understanding of ovarian cancer, advocates for increased research and funding for more effective diagnostics and treatment, and provides tips for coping with the side effects of ovarian cancer and treatment. Provides matches for women seeking to contact other women with ovarian cancer. FORCE (Facing Our Risk of Cancer Empowered): www.facingourrisk.org. National nonprofit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. Greenville Lunch Bunch: www.scovariancancer.org, (864) 325-6296. Informal group specific to ovarian cancer who meet once a month for lunch or dinner to talk, support each other and meet new patients. 2nd Monday at noon at various restaurants.

Resources

Eyes on the Prize: www.eyesontheprize.org. Education regarding every aspect of gynecologic cancers. Gilda Radner Familial Ovarian Cancer Registry: www.ovariancancer.com, 1-800682-7426. Registry for women with relatives who had ovarian cancer to help research institutions improve diagnosis and treatment of the disease; FAQ, survey, newsletter. Gynecologic Cancer Foundation: www.thegcf.org, 1-800-444-4441. Educational materials, hotline, database of gynecologic oncologist cancer specialists. National Cervical Cancer Coalition: www.nccc-online.org, 1-800-685-5531. Education regarding cervical cancer and relation to HPV, support for women with cervical cancer, Phone Pals, E-Pals. National Ovarian Cancer Coalition: www.ovarian.org, 1-888-682-7426. Education regarding ovarian cancer; improve survival and quality of life for women with the disease; helpline. Ovarian Cancer National Alliance: www.ovariancancer.org, 1-866-399-6262. Facilitates research, provides downloadable tools such as symptom diary and data on risk factors, resources, support community for women with the disease. 32


SHARE–Self Help for Women with Breast or Ovarian Cancer: www.sharecancersupport.org, 1-866-891-2392 (toll-free hotline). Supports, educates and empowers people affected by breast or ovarian cancer. South Carolina Ovarian Cancer Foundation (SCOCF): www.scovariancancer. org, 1-803-926-3462 (not toll free). 110 B Edinburgh Court, Greenville, SC 29607. Supports women diagnosed with ovarian cancer; educates the public about the disease and supports research. Upstate chapter: (864) 373-6306. Head and Neck Cancer

Support Group

Support for People with Oral and Head and Neck Cancer (SPOHNC): (864) 2326334. 1st Sunday monthly, 2-3:30 p.m. Christ Church, 10 N. Church St., Greenville, SC 29601.

Resources

Oral Cancer Foundation: www.oralcancerfoundation.org, 1-949-646-8000 (not toll free). Designed to reduce suffering and save lives through prevention, education, research, advocacy, and support for people with oral cancer and their loved ones; online forum for patients and survivors, education, comprehensive resource list. Support for People with Oral and Head and Neck Cancer (SPOHNC): www.spohnc.org, 1-800-377-0928. Provides current information for patients trying to gain a better understanding of their illness; one-to-one support, patient information packets, awareness ribbons and pins, cookbook and newsletter. Yul Brynner Head and Neck Cancer Foundation: www.yulbrynnerfoundation. org, 1-843-792-6624 (not toll free). Provides support for head and neck cancer patients; educates children and adults about cancer, treatment, and prevention; supports ongoing research. Kidney Cancer Kidney Cancer Association: www.kidneycancer.org, 1-800-850-9132. Education, financial assistance, virtual communities for support, nurses hotline. National Organization for Rare Diseases: www.rarediseases.org, 1-202-5885700. Financial assistance for advanced renal cell carcinoma, online patient communities, information center.

33


Leukemia and Lymphoma Support Leukemia, Lymphoma, Myeloma Support Group Upstate Oncology Associates: (864) 201-9515. 4th Monday monthly, 5:30-7 p.m. 317 St. Francis Drive, Ste. 340, Greenville, SC 29601.

Resources

Bone Marrow Foundation: www.bonemarrow.org, 1-800-365-1336. Support for bone marrow patients and families, information and resources, financial assistance. Leukemia and Lymphoma Society: www.leukemia-lymphoma.org, 1-914-9495213. Limited financial assistance ($100 for transportation/year and co-payment program for some diagnoses). First Connection Program provides one-on-one support for newly diagnosed patients. Local chapter: (864) 370-2402; 1990 Augusta St., Greenville, SC 29605. Lymphoma Foundation of America: www.lymphomahelp.org, 1-800-3851060. One-on-one counseling via phone; assistance with 2nd opinions, finding specialists, education and support. Lymphoma Research Foundation: www.lymphoma.org, 1-800-500-9976. Focuses on Hodgkin and non-Hodgkin lymphoma, financial assistance program, support network with one-to-one peer support. Max Foundation: www.themaxfoundation.org, 1-888-462-9368. Support for blood and rare cancer patients; international helpline for patients, families and caregivers with leukemia; assistance to obtain Gleevec and Tasigna through Novartis. National Lymphedema Network (NLN): www.lymphnet.org, 1-800-541-3259. Provides education, management and prevention information to lymphedema patients and the general public. National Organization for Rare Diseases: www.rarediseases.org, 1-202588-5700. Financial assistance for Hodgkin lymphoma and peripheral T-cell lymphoma; online patient communities; information center. Patients Against Lymphoma: www.Lymphomation.org, 1-610-346-8419 (not toll free). Voices patient perspectives and provides evidence-based education, support, and links to clinical trials specific to lymphoma. 34


Liver Cancer About Liver Cancer: www.about-liver-cancer.com, 1-800-465-4837. Provides information and news about liver cancer. American Liver Foundation: www.liverfoundation.org, 1-212-668-1000 (not toll free). Provides information, resources and relevant links for liver cancer. Liver Cancer Network: www.livercancer.com, 1-412-359-6738 (not toll free). Offers information on liver cancer, diagnosis, treatment and website links. Lung Cancer American Lung Association: www.lungusa.org, 1-800-LUNGUSA (548-8252). Provides health information and resources for those living with lung disease; helpline, newsletter, message board. Caring Ambassadors Program: www.lungcancercap.org, 1-503-632-9032 (not toll free). Addresses diagnosis, staging and challenges of living with various types of lung cancer; offers resource links; advises parents and family members about communicating with children about lung cancer. Lung Cancer Alliance: www.lungcanceralliance.org, 1-800-298-2436. Phone buddy program for patients, survivors and caregivers; toll free information hotline, online support community. Lung Cancer Circle of Hope: www.lungcancercircleofhope.org, 1-732-363-4426 (not toll free). Education and support. Lung Cancer Foundation: www.lungcancerfoundation.org, 1-650-598-2851 (not toll free). Support, education, empowerment, online support group monthly for all individuals affected by a lung cancer diagnosis. 35


Lung Cancer Online Foundation: www.lungcanceronline.org. Provides information to patients and families; directory of resources for medical care, support, services, treatment information and quality of life. LUNGevity Foundation: www.lungevity.org, 1-312-464-0716 (not toll free). Largest lung cancer support community on the Internet; 24-hour online support, a telephone buddy program, a card circle program, a personal web page to “blog your cancer journey”; online chats with specific themes. Mesothelioma and Lung Cancer: www.mesothelioma-lung-cancer.org, 1-800780-2686. Identifies locations of cancer hospitals by state, veterans’ resources, questions to ask MD during all states of care. Melanoma Aim at Melanoma: www.aimatmelanoma.org, 1-972-307-9325 (not toll free). Educational resources on melanoma and news on the latest research; NurseOnCall (online hotline for questions) is 1-877-246-2635. American Melanoma Foundation (AMF): www.melanomafoundation.org. Identifies available clinical trials, information on melanoma, opportunity for patients to share their stories. Multiple Myeloma

Support Group

Westminster Presbyterian Church: (864) 455-5896; 2310 Augusta St., Greenville, SC 29601

Resources

International Myeloma Foundation (IMF): www.myeloma.org, 1-800-452-2873. 24-hour hotline to answer questions from patients and family and provide information about medical services, pharmaceutical access and patient support groups. The Multiple Myeloma Research Foundation: www.themmrf.org. Provides up-todate news and information in living with and treating myeloma. My Multiple Myeloma: www.mymultiplemyeloma.com. For patients and caregivers. Myeloma Foundation: www.myeloma.org, 1-800-452-2873. Support group information; free downloadable publications on myeloma. 36


Pancreatic Cancer Hirshburg Foundation for Pancreatic Cancer Research: www.pancreatic.org, 1-310473-5121 (not toll free). Support and reference source for patients and their families, financial assistance. Call CancerCare at 1-800-873-4673 and ask for the Hirshburg Pancreatic Program. National Pancreatic Cancer Foundation: http://pancreaticcancerfoundation.com, 1-800-859-NPCF (6723). Provides support for those afflicted and those affected by pancreatic cancer; education; financial assistance. Pancreatic Cancer Action Network (PanCAN): www.pancan.org, 1-877-272-6226. Focuses national attention on need for a cure. Pancreatica: www.pancreatica.org, 1-831-658-0600 (not toll free). Support and education, free counseling on Cancer Information and Counseling Line (CICL) at 1-800-525-3777, opportunity to speak to a fellow survivor at 1-800-433-0464. Prostate Cancer

Support Group

US Too–Prostate Cancer Support Group: (864) 414-7780. 1st Mondays monthly, 7 p.m. Fellowship Greenville, 3161 S. Hwy. 1, Greenville, SC 29615.

Resources

Alliance for Prostate Cancer Prevention (APCaP): www.apcap.org, 1-239-3226691 (not toll free). Support, consultation, referrals, education and facts. American Urological Association Foundation (AUA): http://www.auanet.org/, 1-800-828-7866. Offers the “Prostate Cancer Resource Guide,” which includes information on diagnosis and treatment. 37


Man to Man Program through American Cancer Society: www.cancer.org/ treatment/supportprogramsservices/mantoman/index. Support program that offers community-based group education, discussion and support to men with prostate cancer. National Prostate Cancer Coalition (NPCC): www.naspcc.org, 1-888-245-9455. Provides in-depth education about prostate cancer; offers free and confidential screenings and actively works to increase funding for prostate cancer research. Prostate Cancer Foundation (PCF): www.pcf.org, 1-800-757-CURE (2873). Education, support, largest philanthropic agency funding and accelerating research for prostate cancer. Us TOO International Prostate Cancer Education and Support Network: www.ustoo.org, 1-800-80-US TOO (808-7866). Through publications and chapter support groups, helps men and their families learn about prostate cancer so that they can make better decisions about treatment options and cope with emotional and quality-of-life issues. Skin Cancer Skin Cancer Foundation: www.skincancer.org. Offers education and information on all skin cancers. Testicular Cancer Livestrong: www.livestrong.org, 1-855-220-7777. Free confidential support for men and their families; help with insurance challenges, clinical trial matching, fertility preservation or finding a support group. Testicular Cancer Foundation (TCF): www.singlejingles.org/, 1-512-582-0720 (not toll free). Awareness, education, support, Team Single Jingles. The Testicular Cancer Resource Center: www.tcrc.acor.org/ Testicular Cancer Society: www.testicularcancersociety.org, 1-513-696-9827 (not toll free)

38


Part 4: Other Support

39


Cancer Information/Education American Institute for Cancer Research (AICR): www.aicr.org, 1-800-843-8114. Cancer facts regarding reducing cancer risk, healthy living and survivorship. American Society of Clinical Oncology (ASCO): www.cancer.net. Information regarding all cancers, coping, survivorship, advocacy. Caring 4 Cancer: www.Caring4cancer.org. Education, information and support. Cure: Cancer Updates, Research and Education: www.curetoday.com, 1-800210-CURE (2873). CURE magazine, launched in 2002, is the largest consumer magazine in the U.S. focused entirely on cancer. National Cancer Institute: www.cancer.gov. Educates regarding diagnosis, symptoms, treatment. OncoLink: www.oncolink.org. Provides comprehensive information on coping with cancer, cancer treatments, research and learning about your cancer risk and how to decrease your risk. Fertility Support Fertility Center of the Carolinas: (864) 455-1600; 890 W. Faris Road, Ste. 470, Greenville, SC 29605. This fertility preservation program includes sperm banking and egg preservation. Piedmont Reproductive Endocrinology (PREG): (864) 232-7734; 17 Caledon Court, Ste. C, Greenville, SC 29615. This fertility preservation program works with Livestrong grants. Fertile Hope: www.fertilehope.org. National nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Livestrong Foundation Fertility Services: 1-855-220-7777. Navigation services provide education on fertility risks and options, help to find local fertility services and financial aid. Myoncofertility.org: http://myoncofertility.org, 1-866-708-3378. Provides information on fertility options.

40


Men’s Support Cancer Warriors: (864) 987-7000. Monthly meeting at the Eastside office of GHS’ Cancer Institute, 65 International Drive, Greenville, SC 29615. One-to-One Connections with Other Survivors Survivor’s Hand: A GHS cancer survivor/volunteer will walk you through the Cancer Institute to familiarize you with treatment areas and equipment. The tour is designed to ease your treatment fears, connect you with other survivors and support groups, and increase your quality of life during and after treatment. For a tour, call (864) 455-5894. Tour times are Tuesdays and Thursdays at 2 p.m. and on special request. Location is 900 W. Faris Road, at the GHS Cancer Institute’s Center for Integrative Oncology and Survivorship. See also page 5. Cancer Hope Network: www.cancerhopenetwork.org. Connection to others with the same diagnosis. Imerman Angels: www.imermanangels.org, 1-877-274-5529. Global nonprofit that matches and individually pairs a person touched by cancer with someone who has already fought and survived the same type of cancer (a Mentor Angel); Cancer caregivers also receive 1:1 connections with other caregivers and survivors. R.A. Bloch Cancer Foundation: 1-800-433-0464. Matches up newly diagnosed patients for support. 4th Angel (Cancer Patient and Caregiver Mentoring Program): www.4thangel. org, 1-866-520-3197. Part of the Scott Hamilton CARES initiative. One-to-one confidential outreach and support from a mentor, opportunity for patients and caregivers to connect with someone who went through similar experience. 41


Online Support Groups and Communities Association of Cancer Online Resources (ACOR): www.acor.org. A unique collection of online communities designed to provide timely and accurate information in a supportive environment. CancerCare: www.cancercare.org. Counseling, support groups, educational opportunities, financial assistance. Cancervive: www.cancervive.org, 1-800-486-2873. Helps cancer survivors overcome challenges of “life after cancer” through support groups, educational materials, advocacy. Cancer Support Community: www.cancersupportcommunity.org, 1-202-6599709 (not toll free). Online support groups facilitated by licensed professional. Hotline for information and support is 1-888-793-9355. National LGBT Cancer Project–Out with Cancer: www.lgbtcancer.com. First and leading lesbian, gay, bisexual and transgender cancer survivor support and advocacy nonprofit organization committed to improving the health of LGBT survivors. Website Customization These sites afford the opportunity to develop one’s own website to keep others up to date on your journey. It allows the telling of your story to everyone at one time versus reiterating it multiple times. It also allows expression of one’s own thoughts and feelings, and loved ones are able to give their support and feedback. Caring Bridge: www.caringbridge.org My Life Line: www.mylifeline.org (specific to cancer diagnoses) 42


Women’s Support Cleaning for a Reason: www.cleaningforareason.org, 1-877-337-3348. Application and FAQ online; partners with cleaning services to offer professional house cleaning to help women undergoing treatment for any type of cancer. Foundation for Women’s Cancer: www.foundationforwomenscancer.org. Increases awareness and education, supports expanded research and training, and provides knowledge and hope for women diagnosed with cancer. Team Survivor: www.teamsurvivor.org. Assists women with a past or present diagnosis of cancer to come together to establish free exercise and health education programs in their communities. Young Adult Support I’m Too Young for This: www.ImTooYoungForThis.org, 1-877-735-4673. Global support community for young adults affected by cancer, use of music to make it hip to be a survivor and talk about cancer by providing “one-stop” access to hardto-find resources, peer support and social networks. Planet Cancer: http://myplanet.planetcancer.org/. Provides a critical community of peer support and advocacy for young adults with cancer. Surviving and Moving Forward: The SAMFund for Young Adult Survivors of Cancer: www.thesamfund.org, 1-866-439-9365. Assists cancer survivors between age 17-35 with transition into a successful post-treatment life; distributes grants and scholarships to enable survivors to pursue educational and professional goals as well as to help pay for living, job search and medical expenses.

43


County Resources Cancer Support Community (CSC) at GHS: CSCatGHS@ghs.org; (864) 4555809; 900 W. Faris Road, Greenville, SC 29605. Programs address the social and emotional needs of all individuals affected by cancer; offering support, educational classes, healthy living programs and a community for all survivors. American Cancer Society: www.cancer.org; 1-866-227-4395 or (864) 627-1903; 154 Milestone Way, Greenville, SC 29615. No appointment necessary. Referrals, support, Road to Recovery transportation program, Reach to Recovery. Hotline is 1-800-227-2345. Cancer Association of Anderson County: www.cancerassociationanderson.org; (864) 222-3500; 215 E. Calhoun St., Anderson, 29621. Financial assistance and support groups. Cancer Association of Spartanburg and Cherokee Counties: www.cancerassociation.org; (864) 582-0771; 209 E. Main St., Ste. 100, Spartanburg, SC 29302. Provides financial assistance for cancer medications, nutritional supplements, medical equipment, home care supplies, gas cards. Cancer Society of Greenville: www.cancersociety.org; (864) 232-8439; 113 Mills Ave., Greenville, SC 29605. All services are free; no appointment necessary. Minimal financial assistance. Medical and personal care equipment, wigs, prosthetics, individual and group counseling, educational materials. Union County Cancer Service: (864) 427-8752; 117 Fant Lane, Union, SC 293791901. Provides financial assistance for medications etc. (minimal assistance monthly while in treatment), nutritional supplements, medical equipment, wigs.

This directory was made possible by donors in the Upstate who have generously given to Greenville Health System Cancer Institute. 44


“If I had my life to live over, I’d dare to make more mistakes next time. I’d relax, I would limber up. I would be sillier than I have been this trip. I would take fewer things seriously. I would take more chances. I would climb more mountains and swim more rivers. I would eat more ice cream and less beans. I would perhaps have more actual troubles, but I’d have fewer imaginary ones. If I had my life to live over, I would start barefoot earlier in the spring and stay that way later in the fall. I would go to more dances. I would ride more merry-go-rounds. I would pick more daisies.“ Nadine Stair, author Her answer, at age 85, when asked what she would do is she had her life to live over again.


Center for Integrative Oncology and Survivorship GHS Cancer Institute, 1st Floor 900 W. Faris Road Greenville, SC 29605 (864) 455-1346

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Survive and Thrive Resource Directory  

At the Center for Integrative Oncology and Survivorship, part of the Cancer Institute of Greenville Health System (GHS), we work to encourag...

Survive and Thrive Resource Directory  

At the Center for Integrative Oncology and Survivorship, part of the Cancer Institute of Greenville Health System (GHS), we work to encourag...