ANNUAL REPORT 2017
Creating new models for assisting and encompassing leisure activities for young people with severe functional diversity
Letter from the president Dear friends and collaborators, One more year it is a pleasure for me to present our memory. I want to emphasize that our sheltered housing has 5 places subsidized by the Generalitat Valenciana and it is already the house of Ismael, Adrián, Irene, Arturo and Braulio. They need to become independent, like any young person of their age, and our sheltered housing allows it. They are assisted 24 hours a day by professionals who, in addition to taking care of them, develop their abilities to the maximum. They enjoy an active social life thanks to the companions with whom they share their home, the volunteers and the relatives. Parents, siblings and other families have free access to housing and can participate actively in the day to day of the house. Entering our Lukas Foundation Center is discovering a new way of addressing serious functional diversity. Understood from the integration and the need to make therapy centers and sheltered housing environments where anyone would want to stay to live. We hope that our pioneer model can soon be a reality in more places in Spain. Several young people have also enjoyed our temporary stays. Especially Ignacio, who has been living in the home for almost 6 months participating and enjoying all the activities with his classmates. We have offered more than 900 therapies, of which 10% have been awarded scholarships. Our adapted bicycles are very successful and are increasingly demanded by different entities. All this would not be possible without the support of our professionals, volunteers and donors. Only thanks to your help can we continue moving forward with enthusiasm in our projects. Among all of us, we achieved a lot of smiles in our kids, they deserve it! A very cordial and affectionate greeting
Ron Kok
AnneMarie Otten
HONORARY PATRON
COUNSELORS International: Anke Procee, Jolande Otten, Ton y Linda van
PATRONS
der Veer Social affairs: José Carlos
Founding President: Anne Marie Otten
Bermejo
Vice-president: Erika Müller
Doctors: Ricardo Martino y
Treasurer: Ana Vallejo
Francisco Carratalá
Vocales: Carmen Calvet
Lawyers: Pedro Horcajada
Elena Guembe
Building and planning: Antonio
Karin Pascual
García
Lisette de Leeuw
Comunications: José Ballesteros
Index • Our mission...................................................................................................... 1 • What have we achieved in 2017? ................................................................. 2
• LKF Centre..................................................................................................... 3 • Adapted leisure activities................................................................................... 11
• Integrated parks................................................................................................. 13 • We are better connected.................................................................................... 14 • We have achieved this thanks to....................................................................... 15 • Charity events................................................................................................... 19 • Partners............................................................................................................. 20 • Our accounts..................................................................................................... 21 • How can you help?............................................................................................. 23 • What is our next challenge?............................................................................... 24
TEAM Manager: Susana Pérez Accountant: Alba Amelines Fundraising: María del Palacio Communication: Marta Carranza Quality and CRM: Inmaculada Flores Social worker: Inmaculada Grimal Programs: Yolanda Santos Caregivers of Sheltered Housing: Yolanda Rodríguez, Julián Cortés, José Manuel Carmona, Isabel Martínez, Maite Ramos, Rosella Blanquer y Marina Cerezo. Reception: Carmen Escribano General services: Antonio Rodríguez y Josefina Montoya
Accurate as of May 31st, 2018
Lukas Foundation is registered in the Welfare Foundations Registry of the Education Ministry with the number 934SND.
www.fundacionlukas.org
Lukas Foundation: Our mission Improve the quality of life of highly dependent people with severe disabilities, and that of their families.
Our values Respect human dignity Social inclusion Ethical commitment Proximity Positivity Excellence Transparency in management 1
Lukas Foundation - Annual Report 2017
What have we achieved in 2017?? We increased the number of young people in our adapted housing up to five, a real home
Extension of adapted leisure resources in Madrid and Alicante
Completion of the Integrated Park in the CEIP Escuelas Bosque in Madrid 2
Lukas Center: Therapies Center
www.fundacionlukas.org
+ Adapted Housing
Innovative Model
To enter our Lukas Foundation Center is to discover a new way of addressing serious functional diversity. Our model understands the integration and the need to make therapy centers and adapted housing environments a place where anyone would want to stay to live.
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✓ No architectural barriers ✓ Roof cranes to facilitate transfers ✓ Bright spaces ✓ Family atmosphere ✓ Environmentally friendly ✓ Sensory garden with trees and aromatic plants ✓ Adapted garden with seedbeds at wheelchair height
Lukas Foundation - Annual Report 2017
GETTING TO KNOW THE LUKAS CENTER Our center has received numerous visits this year from families, training centers, politicians, associations, etc...These visits have served to promote our pioneering model:
They visit us:
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115
VISITS
PEOPLE
Majors and deputies of the Valencian Parliament
Gormaget Center
Infanta Elena Center
ADACEA
Alvaro Galán, Elena Navia (ASPACE) and Ruth Moreno (Momo Center) “We love the degree of involvement of the staff in the center, the relationship that is flourishing with families and that the facilities are fully adapted”
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• Residence Home In our home, which has 5 places subsidized by the Generalitat Valenciana, these young people become independent, like any adult of their age, and are assisted 24 hours by professionals who develop their capabilities to the fullest. They also have an active social life thanks to the housemates, the volunteers, as well as their relatives, who have free access to the house.
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Lukas Foundation - Annual Report 2017
Our sheltered house is a pioneer in this particular field responding to the social need which arises from the increase in the life expectancy of people with severe multiple disabilities. Families find themselves in a complicated situation because residential facilities for these young people are scarce.
TEMPORARY STAYS
17 USERS
160
DAYS OF STAY
Stay Jhair family Ignacio´s Stay Ignacio has grown older! Since then he wants to become independent, with his friends, his plans and his music. What a discovery!
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• Therapies Center USERS 2016
SESSIONS
2017
319
392
2016
2017
830
960
MORE THAN 10% OF THE TOTAL THERAPIES ARE PAID THROUGH GRANTS: 115 SESSIONS
Physical therapy in room: We use the Neuroevolutionary Concept as a baseline, assessing and treating children and adults with alterations in the development of function, movement and postural control.
Water physiotherapy: All the benefits of physiotherapy are provided in an environment which facilitates relaxation of body and mind. This therapy improves the physical, respiratory and emotional condition.
Water Therapies: Therapies in the aquatic environment under the parameters of the Osso method. This method treats the person as a complete being, and seeks the balance and improvement of the visceral, motor and sensory functions.
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Lukas Foundation - Annual Report 2017
Sensory stimulation: Our sensory stimulation room is equipped with structures and materials (vibratory musical water bed, light panel, fiber optic cascade, bubble column, to mention a few.) These are designed to carry out basal and multisensory stimulation, ideal for people with severe cognitive and motor impairments.
Other therapies available Logopedic Rehabilitation: With medium and long term focus, logopedic rehabilitation allows the acquisition of language as the main means to facilitate interpersonal communication and as a way of understanding oral and written language. Assisted therapy with dogs: Alternative and innovative therapy that includes an animal for motivation. This type of therapy helps to improve the cognitive, physical, social and/ or emotional functions of the participant. Occupational therapy: A quality intervention is offered, encompassing the person and their environment, designed to favor the progressive inclusion into the social structure. We provide advice on technical aids and adaptation, as well as accompaniment until the individual and the family learn to integrate each other’s needs.
If you are interested write to terapias@fundacionlukas.org
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www.fundacionlukas.org
PROGRAMS and ACTIVITIES SUMMER SCHOOL
July, 2017:
13
USERS
We offered our third edition of the Summer School with activities such as: hydrotherapy, assisted therapy with dogs, boccia, sign language workshop, excursions, outings with adapted bikes, laughter therapy workshops, music therapy, cooking among others. We have enjoyed the support of the Provincial Council of Alicante with bus transportation.
Course 2016-2017:
RESPITE CARE
49
USERS
The Respite care program is one of the most popular programs for families who care for children with disabilities. This program is offered to children and young people with various disabilities between the ages of 5 and 22 years old. It takes place on Saturdays from 10 a.m. to 1:30 p.m. The respite program offers activities such as playroom, theater workshop and adapted sport.
"The respites are very important for Daniel's leisure, because he changes his attitude and he's very happy since the day before, because he knows he's going to come here. And it gives me a lot of peace because there is a lot of protection, care and great professionals " Patricia, mother of Daniel
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Lukas Foundation - Annual Report 2017
INFORMATION SERVICE
Course 2016-2017
50
The orientation and information service for family members of children and young people with severe functional diversity takes place face to face or over the phone.
USERS
AWARENESS RAISING FOR SCHOOLS
Course 2016-2017
356
USERS
By seeking participation and mobilizing interested pupils we were able to provide information to the general population about functional diversity. This is a powerful tool to promote social change and create a more fair and supportive society.
ACTIVITIES IN MADRID Our activity of support of families with children and young people who have serious functional disabilities in the Community of Madrid is gaining momentum. In 2017 we awarded grants for the adaptation of a wheelchair and therapies to improve the quality of life of these children and young people, especially neurological physiotherapy under the Bobath concept, respiratory physiotherapy and Shiatsu. In addition to these grants, aid has been given to other entities such as Son Ă ngeles, for the implementation of therapies and the Bosque Public School for the building and use of its children's integrated playground.
148
SCHOLARSHIPS
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Adapted leisure: ADAPTED BIKES More than 100 direct beneficiaries
More than 200 indirect beneficiaries
Our adapted bicycles work in tandem with the wheelchairs, which are attached to the bikes. In this way, the person with disabilities is seated in the chair at the front and right behind is the person who pedals. They provide children and young people with disabilities, and dependent people of any age, with a fun and stimulating adapted leisure experience.
In Alicante Availability of 6 adapted electric bicycles, 2 We-hoo children's trailers and 2 ride bikes.
In Madrid Availability of 3 adapted electric bicycles, 1 We-hoo children's trailer and 2 ride bikes. Design of five routes for adapted bicycles in the north of Madrid.
Who does make use of our adapted bicycles? - People with functional disabilites of any age, from the Community of Madrid and the Valencian Community, as well as their family members. - Users of various entities working with disability and dependency. - Other users who might be participating in any of the various solidarity events.
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Lukas Foundation - Annual Report 2017
Riding the Camino de Santiago with adapted bicycles? In June of 2017 we participated in a charity event organized by Solidarios Non Stop of BBVA AM. This was a memorable experience. The generous support received showed that with broad support from many people from all walks of life, goals can be achieved. Making the Camino de Santiago with an adapted bicycle is possible, and from now on, our goal is that every year more and more people with disabilities can be encouraged to participate in this adventure.
#BBVAAMSolidarios
BOCCIA
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USERS This game of strategy and precision is similar to petanque, although it has its own rules designated by an international regulator. It is a perfect sport for people with severe functional disabilities, and it is possible to join the Boccia Federation in order to compete, as our competitor Arturo has done. In 2017, 47 boccia matches were held in our center.
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www.fundacionlukas.org
Integration parks PARK OF INTEGRATION ESCUELAS BOSQUE This was a collaborative project between the CEIP Escuelas Bosque, the parents of the pupils, the Community of Madrid (responsible for the development of the land,) and Lukas Foundation, which acquired and placed the selected play equipment in the playground. This was posible thanks to a generous donation.
PARK AND GARDEN OF THE LUKAS CENTER Our integrated garden located within the premises of the Loukas Foundation Center allows us to enjoy cheering outdoor activities, such as barcacues, boccia matches and other adapted leisure activities. This sensory garden also gives families the opportunity to relax in our fully accessible orchard.
PARQUE EN BUSOT In the town of Busot, there is now a public park adapted for people with disabilities. This 2,500m2 park, with adapted games and picnic areas, is also wheelchaired accessible and offers an adapted bathroom with changing table.
MANUAL
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We have a Manual of Construction and Equipment of Integrated Playgrounds, at the disposal of professionals of the sector, associations and public entities interested. In fact, it has been considered as a reference in the Accessibility Manual for urbanized public spaces of the Madrid City Council. Our Manual is available on our website.
Lukas Foundation - Annual Report 2017
We are connected ☑
Website visits
2017
☑
64.016 VISITS
Media More than 65 mentions in the media
☑ Social networks 2017
2016 1.152
1.290
followers
followers
@Fundacion_Lukas
2.394 fans
facebook.com/fundlukas/
7.711
visualizations
Our social networking activity continue to grow, especially on Facebook and Youtube.
3.170 fans
10.208
visualizations
Fundación Lukas
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www.fundacionlukas.org
We have achieved all of this thanks to: • OUR MEMBERS 250 members 38.826 € membership fees 155 € average donation
Evolution of the number of members 300
250
250
173
200
142 120
150
63
100 50
199
213
21
0 2009
33
2010
2011
2012
2013
2014
2015
2016
2017
Our Member´s Club in 2017 Thank you for your support !! Friend member (5-10€ monthly) Fan member ( 11-25€ monthly) Enthusiastic member (26-50€ monthly) Commited member (51- 99€ monthly) Honorary member (from 100€ monthly)
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Lukas Foundation - Annual Report 2017
• OUR VOLUNTEERS Volunteers in action Volunteers in Madrid Volunteers in Alicante
66 55
Total hours of volunteer work 734
Total hours of volunteer work 1155
The number of volunteers who become involved with the Lukas Foundation increases every year, both in Madrid and Alicante. These volunteers are people who have decided to devote part of their time to people with functional diversity, either directly or indirectly. Involvement includes participation in events, translations, emotional support, office work, etc. All of these activities have helped us to grow and we sincerely appreciate every minute dedicated to our cause.
You are a role model!
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www.fundacionlukas.org
• AWARDS AND GRANTS AWARDS AND SUPPORT FROM PRIVATE ENTITIES: 19.740€ BBVA Solidarios Non Stop Deutsche Stiftung "Día Solidario" Grupo CIMD Financial support from Caixa Comunidad Valenciana
PUBLIC GRANTS: 95.980€ Generalitat Valenciana grant for maintenance and equipment for residence home Diputación de Alicante grant for programmes and equipment
• CHARITY PRODUCTS There are already many companies that support us offering their products to benefit our foundation, these include jewelry, fun tops, wine, aromatherapy, panettones, cosmetics...
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Lukas Foundation - Annual Report 2017
Our network Comprises local, national and international entities concerned by disabilities, inclusivity and humanization of health affairs, as well as volunteer organizations. This is why we participate in benefit sports events, conferences and fairs just to mention a few...
ASOCIACIĂ“N DE VOLUNTARIOS EL CAMPELLO CEIP ESCUELAS BOSQUE
Member of:
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www.fundacionlukas.org
Charity Events
23.477€
EXHIBITION OF ART FOR GOOD CAUSES
OPEN-DOOR DAY
CHARITY CONCERT GIVEN BY IGNASI CAMBRA CHARITY GOLF TOURNAMENT in Madrid and Alicante CHRISTMAS CHARITY MARKET in Madrid and Alicante
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Lukas Foundation - Annual Report 2017
Partners
La Vieja Alquería ◆ Jaramartín ◆ Palacio de Cibeles ◆ Plexum ◆ La Chamartina ◆ Palomarejos Golf El Mentidero de la Villa ◆ Golfino ◆ Catai Tours ◆ Castellana Golf ◆ La Quintería ◆ Casa Julio ◆ Krous Sol y Mar ◆ Hotel El Xato ◆ La Ponderosa ◆ Finca El Partido ◆ La abeja de oro ◆ Citrama ◆ Lorea Allure Nails ◆ Cazapeonzas ◆ Beatriz Parreño ◆ Ana Pabon ◆ Grupo Gourmet ◆ Idarnet ◆ La Perla Víctor Ochoa ◆ Club de Golf La Herrería ◆ Bourguignon ◆ Valor ◆ Robenove ◆ Mercado de la luz ◆ Bella Donna
Do you want to cooperate with us? 91 75 99 126
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www.fundacionlukas.org
Our accounts Income Origin distribution
Source of funds
MEMBERS AND DONATIONS 74,3%
PRIVATE ORIGIN 84,2%
PUBLIC FINANCING 15,8%
PUBLIC ORIGIN 15,8%
USERS 6,7%
OTHER 3,2%
Expenses Destination of funds
Distribution by area GRÁFICO LKF CENTER 85,5%
MISSION 91,2%
AWARENESS 0,8%
ADMINISTRATION 5,1%
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FUNDRAISING 3,7%
PARKS 6,5% VOLUNTEERING 0,8%
FAMILIES 6,4%
Lukas Foundation - Annual Report 2017
INCOMES
Private funding Membership fees Private contributions Business contributions Promotional activities User fees Extraordinary and financial income Public funding Local entities Autonomic/provincial administration TOTAL
553.371,04 38.825,50 106.577,57 312.223,41 30.584,79 44.042,50 21.117,27 103.615,55 12.840,51 90.775,04 656.986,59
Mission areas Parks Families Volunteering Lukas Center Awareness Administration Fundraising TOTAL
489.182,54 32.023,82 31.524,72 3.819,05 417.995,90 3.819,05 27.527,94 19.676,16 536.386,64
EXPENSES
INCOME LESS EXPENSES
120.599,95
โ ข Transparency Transparency is a basic value for us, that is the reason why we are audited and we voluntary submit our financial statements to the analysis of the Fundaciรณn Lealtad. For another year running, in 2017 we have been credited with their seal.
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www.fundacionlukas.org
How can you help? YOUR HELP IS VERY IMPORTANT TO US AND FOR MANY YOUNG PEOPLE WITH DISABILITIES
• Volunteering • Become solidarity partner • Buy solidarity products • Make a donation or become a member Deutsche Bank : ES 68 0019 0309 67 4010038426
Join us to improve the quality of the life of people with severe disabilities and their families. Remember that the percentage of tax deduction for the first 150 € is 75% for donations made by individuals with tax residence in Spain.
Send an email to info@fundacionlukas.org for more information Enter the "Collaborate" section at www.fundacionlukas.org 23
Lukas Foundation - Annual Report 2017
What is our next challenge? • Promote the construction of more integrated playgrounds. • Continue with the residential activity in our adapted housing and increase the number of temporary stays. • Increase the number of those who benefit from all the therapies that are offered in our Lukas Center. • Inform the general population about the needs of these young people once they are adults. • Make the pilgrimage on the Camino de Santiago on an adapted bicycle with our youngsters. • Work towards the construction of a new 100% adapted housing in Madrid
Together, everything is possible! 24
MADRID
info@fundacionlukas.org Tlf. +34 91 759 91 26 / +34 636 299 112 ALICANTE - LUKAS CENTER
Carrer de la Passió, 2. 03550. Sant Joan d’Alacant terapias@fundacionlukas.org casahogar@fundacionlukas.org Tlf. +34 96 565 18 83 / +34 679 171 185
Deutsche Bank : ES 68 0019 0309 67 4010038426
www.fundacionlukas.org