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INDUSTRY, RESEARCH & BABICM UPDATES
ESSENTIAL GDPR DATA UPDATE
WHAT'S ON & WHAT YOU NEED TO KNOW Welcome to the Autumn BABICM Bulletin. In this edition you'll find information on unmissable & exclusive BABICM training & events for 2017 as well as industry events we felt you should know about! If you have any questions about our events or updates, please do contact us via email at: email@example.com
BABICM NEWS 2017
ESSENTIAL UPDATE: BUSINESS
General Data Protection Regulation WHAT DOES IT MEAN? TRACEY CLARKE, BABICM COUNCIL MEMBER Technology used for Processing Data; Subject Access Requests; Privacy by Design; Updating your Terms of Business and Associate Contracts; Appointment of Data Protection Officer (if required); Breaches and Fines. As with any new legislation which generates mandatory requirements with which to comply, the initial response is to panic and stress over yet another set of red tape regulations to bow down to, more paperwork and things you have to remember. It's all just too much! As professionals in the field of brain injury case management and independent therapy, certain types of personal data must be treated with particular care due to the sensitive nature of that personal data. This is of course common sense. ‘Health’ comes under what the ICO calls the ‘special category’, making it a mandatory obligation to comply with the GDPR. Enough of the scare-mongering tactics. Good old fashioned common sense and a balanced approach are what is needed. You have all experienced the wrath of CPD, that fear of being randomly picked every two years by selection to be brutally grilled and audited. The HCPC is not a monster, in the same way the ICO is not there to hold you at gun http://bit.ly/BABICMsurv1 point. (Continued overleaf...)
BABICM NEWS 2017
As long as you have a solid plan of action in place to cover (amongst other areas): Training for your team, with regard to understanding breaches; A chain of command – who are the processors, who is the data controller and who is the data protection officer; A good understanding about ‘consent’ and ‘the right to be forgotten’; How all your systems are data mapped – what the information flow is; The fundamental policies in place; Privacy impact assessments (posh name for risk assessments) carried out; Information notices in place; Audit of your internal and external data processing activities; A data protection breach register for recording breaches. There are also many more areas that need to be addressed, such as: Technology used for Processing Data; Subject Access Requests; Privacy by Design; Updating your Terms of Business and Associate Contracts; Appointment of Data Protection Officer (if required); Breaches and Fines. The right for individuals to be forgotten is going to be the biggest theme that runs throughout this legislation. Transparency, making your organisation available to be contacted on all your materials, website, email signatures, newsletters is absolutely paramount. Any person new to this legislation will likely feel daunted by its implications. Looking at what needs to be put in place, who is to be responsible for compliancy as part of the case management or therapy company, who is going to police the system and what are the breaches that need to be addressed and how they need to be reported. There is no need to panic, there is still plenty of time to schedule in all the different tasks required to be compliant in readiness for May 2018. It’s all about staying calm, being organised and thorough, breaking down each component and tackling each part one at a time. You all do battle on a day-to-day basis running your own practices/businesses, further stress in dealing with more mandatory legislation can be dealt with. You need to seek assistance in putting your mind at rest. Some great webpages for further reading and information can be found at:
ico.org.uk/for-organisations/data-protection-reform/overview-of-the-gdpr/ http://bit.ly/BABICMsurv1 dma.org.uk/gdpr
BABICM NEWS 2017
Acquired Brain Injury: The lived experience of relatives and friends. Mark Holloway, Research student (Social Work and Social Care) at the University of Sussex, provides BABICM members with a summary of his latest research. Family members are themselves affected by the impact of Acquired Brain Injury (ABI) upon their relatives and they play an important role in the rehabilitation and long term support required. This study aims to understand how families are impacted and their views on the formal and informal support received directly or indirectly as a consequence of the ABI. To date there has been very little research undertaken by social workers in relation to ABI and/or the experience of family members. A mixed methods research design was employed to capture the lived experience of family members of people with ABI. The results of the quantitative and qualitative data were triangulated against the literature. An online survey was completed by 110 relatives of people with an ABI, seeking their experience of the condition, its impact upon their lives and their views of services. The results of the survey were collated and organised in SPSS (version 24). Non-¬‐parametric Spearman’s Rho Correlations (non-¬‐parametric test) were performed upon the results. In-¬‐depth, semi-¬‐ structured interviews were conducted with 16 family members of people with severe ABI to ascertain the family members’ experience of their relatives’ condition, its impact upon them and their views of the associated formal and informal support received. Inductive thematic analysis of the transcribed interview data was undertaken to identify themes. The quantitative element of the research identified strong correlations between the relative’s assessment of the invisible impairments suffered by those with an ABI (cognitive, executive, behavioural and emotional difficulties) and lack of insight. This correlation was not present in relation to physical impairment. It was observed that increased loss of insight and behavioural difficulties were strongly correlated with http://bit.ly/BABICMsurv1 loss of friendships by the non-injured family member. (Continued overleaf...)
BABICM NEWS 2017
The results of the inductive thematic analysis identified seven themes which were: 1 The Context 2 The All-Encompassing Challenge 3 Family Loss and Grief 4 The Unavoidable Burden 5 The Poor Experience of Support 6 Positive Support and Change 7 The Curator of Narrative The research identified that family members’ experience is complex and enduring, encompassing most aspects of life, and is affected by the context in which it occurs as well as by formal and informal support structures. The particular nature of the grief and loss experienced by families is ambiguous, develops over time and leads to ambivalent feelings for family members who perceive no option but to remain involved. Informal and formal support frequently fails to take account of the reality and complexity of the condition and fails to integrate the relative by recognising their own losses and trauma. Relatives’ views on the services received identified significant gaps in practitioner knowledge, most especially of those aspects of life that were of most concern to them, the invisible impairments and issues with insight. Practitioners that were valued were more likely to be specialists in the condition and practiced as “expert companions” supporting the relative to develop a new “neuro-¬‐ narrative” to reconstruct their identity in the face of their ongoing grief. The specific nature of the condition requires such an approach if input is to be effective. The knowledge required by family members does not exist at the time of the injury as it is person, family and context specific; this requires co-¬‐construction to assess, understand and to integrate this understanding into adaptation to life post-¬‐injury by the involved family member. Quantitative data identified that Brain Injury Case Managers were the most positively reported upon service, followed by Neuropsychologists and the charity Headway. The least positively reported upon service was Social Work. Greater understanding of the complex lived experience of family members may support more effective responses to both them and the individual with ABI, integrating services and families to improve quality-¬of-¬life. As ABI is a process with changes to functioning developing over time, the information and knowledge required by loving and supportive relatives needs to be created with them, being person, family, injury and context-specific. Mark Holloway DipSW MA, Brain Injury Case Manager, SSCR Fellow.
BABICM will circulate any research articles that are released on http://bit.ly/BABICMsurv1 the basis of this thesis as soon as we have them.
BABICM EVENTS DIARY 16TH SEPT 2017
25TH SEPT 2017
WHERE? RADISSON BLU EDINBURGH
Sleep, anxiety & fatigue management is an issue for many case managers in their work with brain injured individuals. This one-day workshop is ideal for all brain injury case managers to help them address these common concerns for clients of all ages. The workshop will be held in Manchester.
SAFEGUARDING CLIENTS & PROTECTING PROFESSIONALS IN THE SOCIAL MEDIA AGE Our exciting digital age provides significant social & developmental benefits for case managers, health professionals & our clients. Yet it also comes with many unknown threats. Cyber expert Jeff Goodright has created this course for BABICM to help you identify & manage the risks & threats posed to vulnerable adults & professionals.
Lisa Henderson QC, from Ampersand Advocates will introduce the event and consider why this topic is of importance to litigators and case managers; referring not only to client vulnerability but how a social media profile can be unhelpful to clients in litigation and how disclosure as evidence can damage credibility of clients and families.
26TH SEPT 2017
FEE: BABICM MEMBERS= £80
SLEEP, ANXIETY & FATIGUE IN ACQUIRED BRAIN INJURY
9TH NOV 2017
BEYOND BEGINNINGS: NEW & WOULD BE WORKSHOP (PART TWO)
SAVE THE DATE!
This FREE event is ideal for registered practitioners who are looking to apply for Advanced membership status. It will guide you through the application, how you need to prepare and what happens on the day of your review.
This is perfect for those who have completed our 'New & Would Be' Workshop (Part One) and starting their case management journey. Hosted in Birmingham.
BABICM ANNUAL CONFERENCE 2018 13 & 14 JUNE 2018. Details to be announced soon.
FOR FURTHER INFORMATION & TO BOOK, PLEASE VISIT: http://bit.ly/BABICMEVENTS
FOR FURTHER INFORMATION & TO BOOK, PLEASE VISIT: ukabif.org.uk/ukabifs-9th-annual-conference-2017
EVENT SUMMARY: ANNUAL CONFERENCE 2017
FROM THE BABICM CHAIR... What a brilliant BABICM Annual Conference 2017! We are incredibly proud that BABICM continues to attract high quality content and speakers from across the world to our conferences and this year’s was no exception. The positive theme of looking to the future helped to engage and inspire delegates who asked challenging and thought-provoking questions. From an excellent Keynote Speech from Sue Lukersmith on the taxonomy of Case Management to the seriously engaging Christine Croisiaux and Dr Howard Fine, this year's delegates were treated to a real smorgasboard of thoughts as to the value of case management, how to apply progressive new methodologies to clients and how to create and champion joined-up thinking about Case Management to benefit our clients - whatever their age. We were also proud to be named as a 'collaborator' to the Serious Injury Guide (visit www.seriousinjuryguide.co.uk for more information) by Colin Ettinger of Irwin Mitchell. This Guide offers a 'process and method of working at a high standard' across the personal injury sector and BABICM is delighted to announce that we will be working with our contacts to encourage litigators, barristers and others to work within the code. (Continued overleaf...)
EVENT SUMMARY: ANNUAL CONFERENCE 2017
SAV E TH E DA ANNU TE! AL C
ONFE RENC 13 & E 201 14 JU 8 NE
Day Two offered delegates the opportunity to see radical technology and innovation in action. There is so much technology out there for us to use for our clients, from the Amazon Echo to wireless home control systems. What's great about these solutions is that they're the norm and for all of us, so to integrate them into our clients' lives is incredibly easy, rewarding and less alienating. Our afternoon speakers offered video case studies and realistic development updates for Exo-skeletons and other technologies to help us support our clients and also help litigators to budget for what's to come. If we can't get their support and recognition during the litigation stage then clients miss out as their long-term rehabilitation needs are undervalued. My thanks, as ever, go to the organising committee and admin team, our wonderful speakers and our captivating sponsors and exhibitors, all of whom helped to create a lively and buzzing atmosphere throughout the two-day event - and opened our eyes to exciting new solutions!
FOR ALL CONFERENCE TWEETS & FEEDBACK, VISIT: twitter.com/hashtag/babicm2017 (click on 'latest')
ANNUAL GENERAL MEETING 2017 The Annual Conference provides BABICM with the perfect opportunity to get your feedback on our activities that help to champion brain injury case management and enhance opportunities for our members. BABICM prides itself on being an ‘ open door organisation' and we welcome and encourage you to take part in our Annual General Meetings (AGMs) as we value your contributions.
Please do join us at next year's conference & AGM so that we can continue to build a relevant, proactive and valuable membership organisation. WE LOOK FORWARD TO SEEING YOU THERE!
AUTUMN BULLETIN 2017
THE FINAL WORD GET INVOLVED! JOIN OUR CHILDREN & YOUNG PEOPLE SUBGROUP
If you have an article of interest or news you think BABICM members may like to hear then please get in touch with us via: firstname.lastname@example.org
The BABICM Subgroup for Children & Young People is looking for enthusiastic BABICM members with a real understanding of Brain Injury Case Management & young people, to join the group after a number of industry retirements. Helping to steer events, training and the direction of research and support that BABICM offers in this field.
IS THIS YOU? Contact email@example.com for more information.
w: www.babicm.org e: firstname.lastname@example.org t: 0161 762 6440