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THE FACE OF MSA

Kerry Simon takes charge of his course, charting a new roadmap to beat Multiple System Atrophy using unconventional methods Writer: Beth Schwartz

Photography: Erik Kabik

Declared the rock n’ roll chef by Rolling Stone magazine, Kerry Simon

I also spoke with Kerry’s movement specialist Peter Pinto on March 20,

was used to making splashy press announcements and hosting

who offered his observations of Kerry’s physical condition. In addition,

glamorous VIP openings for his always-on-the-culinary-cutting-edge

I interviewed Kerry’s nurse manager who wished to not be identified.

restaurants located in hot spots as far away as the Dominican Republic

Kerry’s physician at Lou Ruvo Brain Center for Brain Health/Cleveland

and as close as the several he owned right here in his home base of

Clinic, Dr. Ryan Walsh, declined to be interviewed for this story.

Las Vegas.

THE PATH TO PHOENIX TEARS In December 2013 he would again make headlines but it was to be a

Kerry, who will be 60 years old in June, has lived with the disease

much different kind of news story. Kerry would share with the world

for seven years although it was not officially diagnosed as MSA until

that he had been diagnosed with Multiple System Atrophy (MSA) – causing the renowned chef to experience a

the fall of 2013 (MSA is notoriously hard to diagnose as it is commonly mistaken for Lou Gehrig’s disease (ALS) or

much different kind of fanfare.

multiple sclerosis (MS)). Over the years Kerry has tried various treatments to combat his MSA

Kerry would become the face of the little-known

diagnosis but hasn’t met with much success.

disease that is a more severe and aggressive form of Parkinson’s and affects only about

Doctors originally thought, prior to Kerry’s

four in 100,000 people. MSA is a very rare

MSA diagnosis, that cancer was attacking

degenerative neurological disorder associated

his spine to the point where they gave him

with nerve cells in specific areas of the brain.

chemotherapy. As for the most cutting edge of

This cell degeneration causes problems with

treatments, stem cell therapy, was administered

movement, balance, and other autonomic

to Kerry at Mayo Clinic in early 2014.

functions of the body such as bladder control and blood-pressure regulation. At this time, there is no cure for MSA and no known way to prevent the disease from getting worse. The goal of treatment is to control the symptoms.

In an effort to bring Kerry relief from the effects of MSA, Jason Strange, Kerry’s primary caregiver, looked into various forms of medicinal cannabis. He finally settled on Phoenix Tears, also known as Rick Simpson Hemp Oil, which is a potent and sedative

And that’s where our story begins.

purified decarboxylated cannabis resin with 95 to 98 percent THC.

But not before I explain the parameters of my interview with Kerry

“It’s a methodology followed by tincture oil developed by Rick

which took place on February 10 at his home. Once an avid runner and

Simpson. It is slowly starting to garner attention in the medical

biker well-known for living a healthy lifestyle, Kerry is now confined to

community. More so in Europe because they have had more

a wheelchair and his speech so impaired and garbled that one of his

flexibility recently to do experimentation and perform clinical

caregivers, Jason Strange, a longtime friend who is not a nurse and

observations medicinally, but there has just been a plethora of

does not have any medical training, did most of the talking regarding

anecdotal evidence for various types of patients for this type of

Kerry’s use of medicinal marijuana. One of Kerry’s business partners,

preparation to cure a wide assortment of ailments,” Ari Farar, one of

Ari Farah, was also present during our February 10th interview to

Kerry’s business partners in a dispensary he is involved with, explains

discuss some of the chef’s related investment interests in a dispensary.

of Phoenix Tears.

17

May 2015 elevatenv.com

Profile for Elevate Nevada Magazine

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Elevate Nevada | May 2015 | The Inaugural Issue  

THE FACE OF MSA KERRY SIMON Former Denver Bronco reveals NFL’s secret to pain management Health Breakthrough: CBDs bring the healing witho...

Profile for elevatenv
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