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East Anglia’s Children’s Hospices

During 2011-12 we delivered an unprecedented amount of care and support to life-threatened children, young people and their families. Additionally we were very pleased to receive HRH The Duchess of Cambridge as our Royal Patron, a major boost for families, volunteers, staff and supporters. One of our key objectives was to increase the amount of care and support delivered at all three hospice sites and throughout the community across East Anglia. This has been achieved. We opened our hospices 24/7, accepted 35% more referrals on the previous year and our new True Colours Symptom Management team provided 24 hour symptom management support, enabling more care to take place in the family home. We supported more bereaved families than ever before.

In an economically challenging climate, the charity has been able to sustain both its voluntary fundraising and statutory income during the year and has recorded another surplus which it will reinvest in service expansion. We also produced a Strategic Plan for 2012-15 which sets out our purpose, vision and values, strategic aim and objectives, critical delivery factors and financial plans for the next three years. This will ensure we can continue to increase and develop the care and support we provide whilst remaining at the forefront of children’s palliative care. Charles Paull Graham Butland Chairman Chief Executive Board of Trustees


In partnership with others, to increase the provision across East Anglia of palliative care services which are of high quality and meet the needs of children, young people and their families. New referrals - 35% more than last year (130)

176

Children and young people cared for - 21% more than last year (394)

478

Hours of care and support received - 11% more than last year (78,000)

86,500

Families supported - 5% more than last year (547)

572

All families of children and young people with life-threatening illnesses or complex health care needs will be able to access appropriate services of high quality. For the year ended 31st March 2012

Where each pound came from

%

Donations and gifts

41

Statutory funding

27

Stable Trading turnover

14

Legacies

11

Trust income

6

Investment income

1

Where each pound went to

%

Care costs, education, training and research

74

Cost of generating funds

14

Stable Trading shop costs

11

Governance costs

1


Charlie Middleton is four years old and lives with his Mum Cheryl and Dad Robin. Charlie has complex health care needs and has received care and support from EACH since he was 18 months old. Charlie was born by emergency caesarean and needed full resuscitation and ventilation. All of his major organs suffered as a result of oxygen starvation. This means Charlie has Cerebral Palsy, severe epilepsy, visual impairment, reflux problems, is fed into his tummy with a tube and takes up to ten different medications per day. He has severe developmental delay and is starting to show signs of scoliosis. Charlie was an unsettled baby and could cry for 8-9 hours straight. He had multiple seizures every day and spent a lot of time in hospital. He learnt to take milk orally which was a huge achievement, but was still difficult to feed. Cheryl said: “EACH provides care for Charlie in exactly the same way as we do, but with a bit of extra spoiling! It's great knowing that we can take Charlie and don't

have to worry. Not only are his care needs met, but he gets loads of cuddles and has lots of fun too. “Charlie has day care and overnight stays at the hospice. It means Robin and I can have a break and Charlie gets the best possible care. Nurses also come to our home once a week, and it means we can relax at home and catch up on much-needed sleep, knowing Charlie is well cared for. “Charlie had his first hydrotherapy session recently and he absolutely loved it. He can become quite tense due to his condition, but the hydrotherapy helped him to relax and really eased his muscles and joints. “Charlie has music therapy which is a great outlet and gives him the opportunity to express himself. He likes playing the wind chimes as he is able to make beautiful sounds with minimal effort. He also does arts and crafts when he’s at the hospice with the play specialist and brings them home with him. “The care and support EACH offers to our family is invaluable and we really would be lost without them.”


In the 2012 budget, a reduced rate of 36% for inheritance tax was confirmed for estates leaving 10% or more of the taxable estate to charity.

Leaving a gift in your Will to EACH will help to ensure that we are here to care for children, young people and their families for generations to come – being there alongside them for every step of their journey. When it comes to your Will we understand family and friends come first, but if you can, please remember EACH - a local cause for local families. We receive gifts from £50 to £500,000 and every donation is valued, however small or large. They are all important and make a big difference to the children and families we help. Sadie Applegate left us a gift of £30,000 in her Will – she had been a loyal supporter of EACH since 1995. Her lifelong friend Alison told us: “Sadie was a very loyal and trusted friend. As is mirrored in her support to EACH, she was a very generous and sincere lady. She knew who she liked (and who she didn’t) and for those she cared for nothing was too much trouble. Birthdays and important dates were never forgotten and we enjoyed many meals and trips out together. She was a very special lady who we miss very much.” For more information on how your gift could help, call 01953 715545 or get in touch with your local EACH fundraising team. Cambridgeshire: 01223 205180 • Essex: 01206 848450 Norfolk: 01953 715559 • Suffolk: 01473 237243 EACHhospices

Registered Charity No. 1069284

@EACH_hospices


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