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Features • News • How You Can Help

Autumn/ Winter 2012 -2013

EACH supports families and cares for children and young people with life-threatening conditions across Cambridgeshire, Essex, Norfolk and Suffolk. We rely on public support for the majority of our income and need your help.

WELCOME to Footprints, the newsletter promoting the work of East Anglia’s Children’s Hospices (EACH) and our supporters. Please feel free to pass this copy on to family, friends and colleagues and help us spread the word!

Fundraising in Cambridgeshire: EACH Fundraising, 42 High Street, Milton, Cambridge, CB24 6DF Tel: 01223 205180 Fundraising in Norfolk: EACH Fundraising, Quidenham, Norwich, NR16 2PH Tel: 01953 715559 Fundraising in North Essex: EACH Fundraising, North Colchester Business Centre (Room 4), 340 The Crescent, Colchester, Essex, CO4 9AD Tel: 01206 848450

We support... families and care for children and young people with life-threatening conditions across Cambridgeshire, Essex, Norfolk and Suffolk. We continue to develop and deliver... a range of services including: overnight short breaks, day care, specialist play, music therapy, hydrotherapy, parent and sibling groups, symptom management support, care at end of life and bereavement support for all family members.

We need... to raise more than £5.75 million from public donations to deliver our services this year. This amounts to more than £15,000 a day, every day of the year.

Fundraising in Suffolk: EACH (The Treehouse), PO Box 983, Ipswich, Suffolk, IP1 9UB Tel: 01473 237243 And online... EACH Retail: EACH, Unit 7, Brunel Business Court, Brunel Way, Thetford, Norfolk, IP24 1HP Tel: 01842 821620 Our shops are in Attleborough, Bury St Edmunds, Cambridge, Colchester, Diss, Downham Market, Halstead, Ipswich, Long Stratton, Lowestoft, Stowmarket, Whittlesey and Wymondham.

Renee Lewis-Driver from Copford in Essex is 11 years old and lives with her mum Stacey, dad Crispian, and sisters Sienna and Tia. Renee and her family receive care and support from EACH and have done so for the last three years, after being made aware of the charity by their community nurse. Renee has interstitial lung disease and needs extra oxygen overnight, and during the day when she feels tired. Renee also has a condition called hypogammaglobulinemia which affects her immune system. Renee visits The Treehouse in Ipswich and she and her family benefit from a number of EACH services including day care, trips and holidays, specialist play and music therapy sessions. Day care allows Renee to have fun and spend time with friends she has made in the hospice and means her parents can have a much-needed break. Trips they’ve had to Dream Night at Colchester Zoo and Disneyland have allowed Renee and her family to spend quality time together, and specialist play and music therapy allows Renee to express her feelings and most importantly have fun!

Renee especially loves music therapy sessions and she sang to countless other children and their families at our ‘Music in the Woods’ event this summer. Ray the music therapist also visited Renee at home when she was recovering from surgery. Stacey said: “EACH has been a great support for Renee and us as a family – they’re fantastic. When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. “Renee loves going to the hospice, but it’s great that care staff are also able to visit us at home too. When Renee was recovering from an operation the charity’s play specialist and music therapist came to visit. We wouldn’t have been able to take her to the hospice and we didn’t want her to miss out.” Renee said: “I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. The garden and the woods at the hospice are great and so is the sensory room. I also like doing arts and crafts. We also got to go to Disneyland and it’s a trip I’ll never forget.”

Tracy Rennie – Director of Care There are many changes taking place at EACH to ensure we continually improve the quality of the care and support we provide to local life-threatened children, young people and their families. Our three hospices are now open 24/7, meaning we can continue to be flexible as demand for care increases, and to do this we’ve recruited a number of nurses and carers across all three sites. We cared for 478 children and young people during 2011-12, an increase of 21% on 2010-11, and 572 families (an increase of 5%). 86,500 hours of care and support were received by families, 11% more than in 2010-11 and 455 siblings were supported during the year. We accepted 176 referrals - an increase of 35% on the previous year. Our new True Colours Symptom Management team provided 24 hour symptom management support enabling more care in the family home, and we’ve supported more bereaved families than ever before. We’ve introduced a number of new roles including Head of Family Services, Complementary Therapy Co-ordinator, Nurse Consultant and Young Person’s Lead. Continue reading to find out more. Our ability to continue improving our services is down to you, our supporters, who raise funds and dedicate time to volunteering. Thank you from all of us at EACH.

Jacqui Taylor Young Person’s Lead I took on this new post in April 2012 and my role is to discover what young people (both life-threatened and siblings aged 13 and over) need and want from us and how we deliver it. The first stage has been to establish a young person’s team of care managers, nurses, carers and family support practitioners at all three hospices. Over this next year, we’ll focus on developing staff skills and knowledge, including a greater understanding of the transition process into adult care. We also feel there are wonderful opportunities for volunteers to work with young people, and we’re exploring this too. We've been working with young people to influence our services, including the development of our young person’s website and young person’s space at Milton. We've also been in consultation with adult hospices to inform their services, and this will underpin future developments.

Louise Denby – Head of Family Services I joined EACH in July, and in my new role I will support the EACH Trustees’ vision for the

delivery of high quality, equitable and consistent care. My main focus for the next six months is to complete the successful implementation of our electronic care records known as SystmOne. This will see us using the same system used in the NHS and will improve communication. I’ll be working with teams to ensure all our services meet the same high standards and support the development of psycho-social services including complementary therapies. I’ll also be working to improve the understanding of EACH and what we can provide to children and families with our local care professional partners.

Dr Linda Maynard – Nurse Consultant, Children's Palliative Care and Lead Nurse As Nurse Consultant, I support Tracy Rennie in the development of EACH as a specialist children’s palliative care provider ensuring we maintain clinical excellence. The post combines the delivery, accountability and evaluation of care and support services along with management, clinical research, education and teaching responsibilities. It is a key part of my role to make sure that the care and support delivered to children and their families is of the highest standard possible across the organisation. My experience as a Children’s Advanced Nurse Practitioner and Independent Prescriber contributes to this.

I am also responsible for the new True Colours Symptom Management Team - a 24/7 specialist nursing care, support and advice service for life-threatened children, young people and their families across East Anglia. This is the first time that families have been able to have the symptom support and advice they need for their children at any time of the day or night. The service has enabled more families the choice of being able to care for their children at home during their last days of life.

Catie Grant – Complementary Therapy Co-ordinator In June this year I took on the role of EACH Complementary Therapy Co-ordinator, having previously worked as an EACH nurse, and I’m based at The Treehouse. My appointment is as a result of findings from a Department of Health funded project in 2010 and a pilot scheme run at Milton in 2011-12 involving a massage group and individual massage sessions for children and families receiving our care and support. My initial objective is to implement complementary therapy in all three hospice buildings with support from our advisory group. The plan is to recruit Complementary Therapy Co-ordinators at Milton and Quidenham and identify complementary therapy volunteers to help us. The therapies we hope to offer are reflexology and massage, and aromatherapy in the longer term.


Jumbo abseil

We’re delighted to announce Wilkinson has chosen EACH as their new regional Charity of the Year.

On 4th August we held our first abseil in Colchester down the iconic Jumbo Water Tower. 52 people took part, raising £8,000. Jo Colbert, EACH Essex Partnerships Manager, organised the event and decided to lead by example by being the first down the Tower. She said: “I was absolutely terrified of abseiling 70ft but inspired by the children and families we care for. It was an exhilarating experience and we’re already planning a higher abseil for next year!”

For the last four years Wilkinson has nominated national charities, but this year the company has pledged to support smaller local charities. The 17 stores covering Essex, Ipswich, North London and Hertfordshire will be doing lots of fundraising activities throughout the year to raise as much awareness and money as possible. In July, the Southend-on-Sea staff came up with the idea of making a ‘coin butterfly’, as butterflies are the symbol of children’s hospices, and the event raised £216!

Lions supporting EACH The Lions Club of Saffron Walden raised £1,250 from a raffle earlier this year. After the cheque presentation and a talk from fundraiser Melissa Collett, we’re delighted they’ve decided to support us at their Michaelmas Fayre in September too.

Grandmother’s Jubilee tea party Lyn Barton, whose grandson Charlie receives care at The Treehouse, hosted a Jubilee tea party at her home in Dedham. Family and friends tucked into sandwiches, cakes, trifles and plenty of tea, raising a truly amazing £600! Our thanks to Lyn and her family for all their support. Read her grandson Charlie’s story on page 17.

Buckets raise cash! Between June and August we had four supermarket collections in Colchester, Saffron Walden and Braintree. A massive thank you to all the volunteers who manned the collections, and everyone who made a donation, helping us raise a fantastic total of £940.37!

A huge thank you to classmates Paddy Brown & Jack Aldrich for cycling from Saffron Walden to Edinburgh and raising a fantastic £2,154!

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Horse racing to camel racing! The dry weather of April stopped the Essex Farmers and Union Hunt from holding their Easter Point to Point meeting at Marks Tey, but the jockeys had a go at camel racing instead raising £1,225! A big thank you to the Point to Point Committee and the East Essex Hunt for the £566 raised from gate collections at the three race meetings. For more information contact the Essex team: EACH Fundraising, North Colchester Business Centre (Room 4), 340 The Crescent, Colchester, Essex, CO4 9AD Tel: 01206 848450

We’re calling for supporters to set themselves a personal challenge over the next 12 months to raise funds for EACH. It doesn’t matter if it’s a challenge that faces your fears or realises your dream. There are many exhilarating challenges you could take on including: Cycling from the heart of London to the iconic Eiffel Tower in Paris Trekking in the Himalayas, the Sahara or Transylvania and giving some time to helping the local community Taking part in a 10,000ft freefall parachute jump Running for EACH in local events and marathons

Trekking to heights over 5,500 metres on Kilimanjaro, one of the world’s most picturesque peaks Trying something different, like the Lapland Husky Trail or Zambezi rafting blast Or design your own challenge – the sky’s the limit! Supporters Steve Lillistone and Paul Saunders completed a 10,000 ft tandem skydive. Here’s the pair looking rather relieved, but very pleased with themselves, after raising over £700. Check out our challenge website page at

We provide care and support to life-threatened children and their families in Cambridgeshire, Essex, Norfolk and Suffolk. We also support families who are bereaved of a child, depending upon the bereavement support needed and the availability of other services locally. Referrals can be made for our care services by anyone - family or care professionals.

For care enquiries only, please contact the hospices directly: Cambridgeshire tel: 01223 815115 Norfolk tel: 01953 888603 Suffolk & North Essex tel: 01473 271334 Full information is available online.:

Madi Balaam, 14, along with her Mum Sharon, Dad Adrian, brothers Toby, 18, Noah, 5, and sister Connie, 3, are supported by our EACH Milton hospice. Madi receives care from EACH as she has a number of complex health conditions including Noonan’s Syndrome, Epilepsy, Attention Deficit Hyperactivity Disorder, Oppositional Defiant Disorder, Autistic Spectrum Disorder and two heart conditions known as mitral valve regurgitation and ventricular hypertrophy. She is also gastrostomy fed. Due to the complexity of her healthcare needs, Madi requires specialist 24/7 care something which only her very close family and EACH can deliver. For the past 10 years the Balaam family has received short-break and overnight care for Madi, as well as music therapy, hydrotherapy and trips organised by care staff. They have also made use of sibling support and advice and guidance from the family support team. Sharon said: “We wouldn’t be a family without EACH. I can’t even begin to imagine what life would be like without them. Madi faces many challenges and needs constant care and attention, and only myself, my husband Adrian, and EACH nurses can really care for Madi.

“Due to her many conditions and healthcare needs, Madi is limited in the things she can do, but hospice staff go out of their way to ensure every child is given the opportunity to develop their skills and have fun. Madi loves water and is always treated to a session in the hydrotherapy pool. If the pool isn’t in use Madi will be given a long bath where she’ll splash about. Madi plays games and takes part in music therapy sessions. “When Madi has care at the hospice, this is the only time Adrian and I can spend time together as one of us always has to be with Madi. She sleeps in the same room as us as she has epilepsy and we need to monitor her. She is fed overnight, doesn’t sleep very well and is often up at 4am. Overnight care means we can have a good night’s sleep and devote quality time to Toby, Noah and Connie. “Madi really is a miracle and has gone through so much in her life so far. She’s had pneumonia, a collapsed lung, two heart attacks, septicaemia and MRSA on top of the conditions she already has. She’s remarkable. “EACH staff are amazing and we couldn’t survive without them.”

Community support Huge thanks to our Cambridgeshire Friends Groups who have raised over £10,000 so far this year. The Peterborough Friends have tirelessly collected for EACH at supermarkets and garden centres, as well as holding stalls at fetes and fun days and collecting money in Smartie tubes! The Milton Friends yet again organised the annual fundraising Gala Day in May with pony rides, face painting and fabulous entertainment. Also special thanks to Dave and Val Cousins, two of our Village Volunteers, who have put up posters, picked up collection boxes and organised fundraising events of their own, as well as regularly volunteering for EACH at our Central Distribution Centre in Thetford!

Corporate support Technology business Velocix moved into Milton earlier this year from the Cambridge Science Park and have chosen to adopt EACH as their Charity of the Year. The Lord Lieutenant of Cambridgeshire Hugh Duberly CBE officially opened the building in June. The company held a BBQ for staff and customers and EACH were invited along to receive the proceeds of a raffle held on the day. A fantastic £1,077 was raised and EACH would like to thank everyone for their support. Also, Becky McCoan and Debbie Hodges from Velocix took part in our TEAM EACH Day at Sibson Airfield, Peterborough in August where they jumped 12,000ft from a plane!

Come and join in the fun of Halloween and take part in our Twilight Walk at Milton Country Park on Saturday 27th October. Dress to impress – whether as a witch or wizard, cat, elf, sprite, goblin, fairy or even your favourite film character – let your imagination run wild! Prizes will be awarded for best dressed individual, family and corporate team. There will be activities and surprises along the way. The walk will start at twilight when Milton Park becomes a place of adventure. Brass bands will be leading the way playing all our favourite Halloween tunes. Witches’ broomsticks are optional! Children £5, with sponsorship encouraged and donations also welcome. To register please visit or contact Sophie Horsford on 01223 205180

Sawston Fun Run

Sawston Fun Run braved the elements this year, with runners and marshals battling with heavy rain and strong winds. Despite this, a fantastic £13,680 was raised taking the cumulative total raised by the event to £368,000. A multitude of charities benefitted from the run with EACH receiving £2,000 and we would like to thank the Rotary Club of Sawston District, sponsors and the runners for their kindness and generosity over the years.

Trophy Winners The Peterborough Friends ran a stall at the Deeping Carnival in July to raise funds for EACH. They did such an amazing job of setting up the stall they won the award of ‘Best Non-Trade Stall’…and they even won a trophy! Congratulations to the Peterborough Friends!"

Well done to 10-year-old Rhona Wickson who raised £133.40 by doing a sponsored swim

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Wednesday 10th October Charity Golf Day, Burghley Park Golf Club, Stamford Sunday 4th November Lode Half Marathon and Three Mile Fun Run Sunday 4th November Huntingdon Family EACH Race Day, Huntingdon Racecourse We’re also planning another Cambridge Abseil following the success of last year’s event – date TBC. For more information contact the Cambridgeshire team: EACH Fundraising, 42 High Street, Milton, Cambridge, CB24 6DF Tel: 01223 205180

Santa Runs Sunday 25th November Bury St Edmunds Santa Run 10am Sunday 25th November March Santa Run 11am Sunday 2nd December Braintree Santa Run 10am Sunday 2nd December Lowestoft Santa Run 11am TBC! Friday 7th December Colchester Business Park Santa Run Sunday 9th December Ipswich Santa Run 10am Sunday 9th December Great Yarmouth Santa Run 11am Sunday 16th December Cambridge Santa Run 10am

Carol Services Tuesday 11th December Colchester Carol Service, St. Michael’s Church 7:30pm Wednesday 12th December Bury St Edmunds Carol Service, St Peter’s Church 7pm Monday 17th December Norwich Carol Service, Chapelfield Methodist Church 7pm Tuesday 18th December Milton Carol Service, All Saints Church 7pm Tuesday 18th December North Norfolk Carol Service, Gresham’s Chapel, Gresham’s School, Holt 7pm Wednesday 19th December Ipswich Carol Service, St Augustine’s Church 7:30pm Wednesday 19th December South Norfolk Carol Service, Church of St Peter and St Paul, East Harling 7:30pm

Gift of Care - a gift you don't have to wrap, but one that means so much... Instead of buying novelty socks, aftershave or chocolates for family and friends this Christmas, give them a gift that really matters – a Gift of Care. You can make a donation to support EACH in lieu of traditional gifts, knowing that you’re making a difference to local life-threatened children, young people and their families. Shine for EACH If you’re planning on having a Christmas lights display, why not raise funds for EACH at the same time?

Spectacular Christmas Gift and Food Fair Ely Cathedral will host a Spectacular Christmas Gift and Food Fair between 16 -17th November. Local celebrities are making cakes to be sold in aid of EACH. The event takes place 10am – 4pm. Adults £2.50, children free. For more information about Christmas events and fundraising please contact your local fundraising office.

Working with colleagues in Malaysia Here at EACH we’re hoping to forge strong links with a Malaysian hospice following a tour by The Duke and Duchess of Cambridge to Singapore, Malaysia, Solomon Islands and Tuvalu in celebration of The Queen’s Diamond Jubilee. The Duchess of Cambridge, our Royal Patron, toured overseas from 11-19th September, during which time she and William visited Hospis Malaysia in central Kuala Lumpur which cares for adults and children. We hope to work closely with Hospis Malaysia following the tour to raise awareness and understanding of children’s palliative care, share best practice and to ensure high standards of care and support. EACH staff and children from Quidenham sent a short video message for Hospis Malaysia staff and hospice users to introduce themselves, which was also seen by The Duke and Duchess during their visit. In March The Duchess visited The Treehouse and delivered her eagerly-anticipated maiden public speech, and in Malaysia she delivered her first overseas speech. Speaking of her relationship with EACH, The Duchess said: “Through this patronage, I have learnt that delivering the best possible palliative care to children is vital. Providing children and their families with a place of support, care and enhancement at a time of great need is simply life changing”

Reflecting upon the new relationship between EACH and Hospis Malaysia, Tracy Rennie, EACH Director of Care, said “We are already in contact with Hospis Malaysia and senior EACH care staff have already met to discuss the ways in which we can work together. “We are delighted to support them in their development of children’s palliative care services, as well as sharing best practice to ensure the highest standards of care and support are delivered and to develop and expand services. “The Hospis Malaysia ethos and multi-disciplinary and holistic approach to delivering care in the community is very much one that we have focused on the past few years, and we hope to share information including how we deliver services, approaches to symptom management and care at home and staff training. “Since becoming Royal Patron, The Duchess of Cambridge has provided a real boost to our organisation and I hope Hospis Malaysia achieves the same.” Ednin Hamzah, Chief Executive and Medical Director at Hospis Malaysia said: “Though we may be in different countries, we share the same cause. The collaboration of Hospis Malaysia and EACH will only enhance palliative care for both our communities.”

3 Unfit Guys Climb a Hill… Wesley Penrose, Alistair Reardon and Andrew Powles completed the challenge of a lifetime in March 2012, trekking for 16 days across Nepal to Mount Everest Base Camp. A Charity Ball, kindly sponsored by Zenith Home Improvements, kicked off their fundraising and with the wonderful support of their family, friends and colleagues they exceeded their £10,000 target, raising an amazing £11,215.

Ride for Life – Thetford Forest A HUGE thank you to everyone who supported our 19th EACH Ride For Life. Almost 1,000 people took part again and have so far raised more than £30,000. Over £750,000 has been raised for EACH since the event started. If you still have sponsorship money to return, please contact the Norfolk fundraising office on 01953 715559 or email: The 2013 event will take place on Sunday 19th May and will mark its 20th anniversary, so make sure the date is in your diary to join us!

e wonderful Thank you to th t of the community spiri trand who rs ve O residents of ible £5,286.80 raised an incred eir 2012 for EACH at th ns de ar G Open and staff demy e h t a ll n Ac to a nks ng’s Lyn g for a h T isin t Ki ils a r fundra aising a pup r fo d 4.30 H an EAC erb £41 sup

Rock Choir Rock Choirs from across Norwich, Wymondham and Beccles joined together to perform a fantastic concert for EACH at City of Norwich School in the summer of 2012. The 70-strong choir performed wellloved pop hits, gospel and Motown songs from Rock Choir's feel good repertoire and raised over £1,300 for EACH in the process! For more information about Rock Choir visit

Well done and s to all chi Nurs taff at C ldren, pa ery w rents onke rs h £2,12 o raised a Day 5.50 mas spon from the sive sored ir walk . Congratulations to Paperclip of Great Yarmouth who held a Glitz & Glamour Ball in aid of EACH and raised £2,411

Huge thanks to Robert Hudson, Nick Wilby, Peter Fairhead and Tom Cooper, all from Ben Burgess in Norwich, who completed the 3 Peaks challenge raising an amazing £4,343

Unique support

Abseil Our first Norwich Abseil took place on Sunday 11th March and was a massive success. We had 60 people who were brave enough to take on all 150 feet of the Norfolk Tower! The abseil has raised about £17,000 and we’re looking to run it again in 2013... so if you fancy taking on the challenge yourself, watch this space.

Unique would like to congratulate EACH on the 21st anniversary of its Quidenham hospice and bring you a home insurance offer of a 21% discount on your home renewal. Purchasing is another great way to give, because for every policy sold Unique will make a donation to EACH at no cost to you. For more information visit: ff and ALL sta rough o t u o y tlebo thank ys in At A huge ainsbur S t 3,115.48 a £ s r le e custom ised an incredib of the rity who ra eir Cha ip! from th n t r ersh Year pa

Bullock Fair Charity Shop Bullock Fair Charity Shop in Harleston handed over their millionth pound to local charities recently and EACH were lucky enough to be presented with a cheque for £15,000 at their celebration in July. The charity shop has donated over £170,000 to EACH since 2006 and we are incredibly grateful to them for their ongoing support.

Supermarket Collections Are you able to spare two hours to help with one of our supermarket collections? • Sat 1st December - Tesco, Thetford • Mon 3rd/Tues 4th December - Tesco, Fakenham • Weds 5th/Thurs 6th December - Tesco, Downham Market • Thurs 6th December - Tesco, King’s Lynn • Fri 7th/Sat 8th December - Budgens, Holt • Tues 11th/Weds 12th December - Tesco, Sprowston, Norwich • Fri 14th/Sat 15th December - Tesco Harford Bridge, Norwich

BBC's Julie Reinger handing over a cheque to Graham Butland, EACH Chief Executive.

For more information contact the Norfolk team: EACH Fundraising, Quidenham, Norwich, NR16 2PH Tel: 01953 715559


Make a Will Ashton KCJ Solicitors are supporting EACH this year. By making a basic Will for £150 +VAT, Ashton KCJ will donate £100 per Will. Contact Faye Harrington or Alison Leaver on 01284 762331 quoting EACH100. They're also offering 30% discount to EACH supporters for some online Wills donating £10 to EACH per Will.Visit select ‘Online Wills’ using code: EACH30. For enquiries, please ring as 01284 727065. e who h We are indebted to all the grant making trusts, large and small, local and national, who recognise the importance of the work of EACH and who continue to help us. Over recent months we have received further generous donations from many of these, including The AIM Foundation, Bidwells Community Fund, Cambridge Students RAG Appeal, Cancer Community Chest, Dudley and Geoffrey Cox Trust, Entrepreneurs Trust, The Fence Club, Gippeswyk Educational Trust, Grimwade Trust, DC Moncrieff Trust, Oldhurst Trust and the Spurrell Trust. Any Trust or Foundation interested in finding out more about EACH services and funding needs, or in visiting one of our hospices, please contact our Trusts Fundraiser on 01223 205196 or

veryon tickets ou to e y k n a h d Draw n T a r G d EACH a recor bought It's been e Grand r. a e y is th r th g year fo breakin aw - raising Dr ! £60,000

EACH gift in every Will makes a difference Contact Mark Loades on 01953 715545

£3,000 in prizes every week. A lottery which offers players a great chance of winning and a wonderful way of caring and all for as little as £1 per week. To play, simply request an entry form from the dedicated lottery line on 0845 122 0772 (local rate) or download a copy from

Charlie Middleton is four years old and lives with his Mum Cheryl and Dad Robin in Stowmarket. Charlie was born by emergency caesarean and needed full resuscitation and then ventilation. His major organs suffered as a result of oxygen starvation. Charlie has Cerebral Palsy, severe epilepsy, visual impairment, reflux problems, is fed into his tummy with a tube and takes up to ten different medications per day. He has severe developmental delay and is starting to show signs of scoliosis. Cheryl said: “Robin and I were told about EACH when Charlie was five months old, and at the time I didn’t think it was for us. I thought we didn’t need help to care for Charlie, but reconsidered when he was 18 months old and wished we hadn't said no earlier on. “EACH provides care for Charlie in exactly the same way as we do, but with a bit of extra spoiling! It's great knowing that we can take Charlie in and don't have to worry. Not only are his care needs met, but he gets loads of cuddles and has lots of fun as well. “Charlie has day care and overnight stays. It

means Robin and I can have a break and Charlie gets the best possible care. Charlie’s needs are very complex so asking for help from family or friends isn’t really an option. “Nurses come to our home too, which means we can relax at home and catch up on much-needed sleep, knowing Charlie is being well cared for. It’s the only time we get a whole night’s sleep and we always say we can deal with anything as long as we get sleep! Charlie has started having hydrotherapy and he absolutely loves it. He can become quite tense due to his condition, but the hydrotherapy helps him to relax and really eases his muscles and joints. I have watched the sessions and it’s lovely to see him enjoying himself so much. Charlie has music therapy. He’s limited in his movements and has visual impairment, but music therapy is a great outlet and gives him the opportunity to express himself. He also does lots of arts and crafts with help from play specialists and brings them home with him. “The care and support EACH offers to Charlie, us as parents and our family as a whole is invaluable and we really would be lost without them.”


Carrying the Torch

In June, Suffolk Fundraiser Nikki Brown joined 3,000 other cyclists, seven of whom were representing EACH, in the 2012 Nightrider. It’s a 65 mile moonlit cycle ride through central London and an impressive £5,500 was raised for EACH.

EACH Treehouse volunteer Clive Coles was selected to carry the Olympic torch when the flame came through his home town of Woodbridge, Suffolk, on 5th July. Nominated for the honour by the Suffolk Fundraising team, Clive has been a volunteer for EACH since Nikki said: “It was a great event, even if it was 2007 and is always willing to give up his time to the hardest physical challenge I’ve ever faced! help. Since completing the run, Clive has taken his torch to several schools and EACH events Seeing London in the middle of the night was raising in the region of £800. He has also made something truly magical. The team spirit a guest appearance at the The Treehouse Music amongst the riders was brilliant and we took in the Woods and Siblings day. in sights such as Big Ben,Tower Bridge, Canary Wharf and Marble Arch among others. Five cyclists from Crown Mortgage Management in Ipswich took part in aid of EACH and we’d like to thank them for their efforts.”

Fathers at Brandeston cycle 700 miles in nine days! A group of dads whose children attend Brandeston Hall Preparatory School, have raised more than £40,000 for EACH and Bowel & Cancer Research after cycling 700 miles from John O'Groats to Brandeston in nine days. Thanks to Brian Faulkner, Matthew Aldous, Charles Mesquita, Paddy Bishopp, Duncan Cogdell, Alex Ogilvie, Chris Dearling and everyone who supported them. A special thank you to Chris Seery who was unable to participate but was the energy behind the fundraising.

Top Newmarket racehorse trainer supports EACH… Top Newmarket racehorse trainer Jeremy Noseda is supporting EACH this season by making a donation for every winner and including our logo on jockey silks, polo shirts and rugs. Thanks to Jeremy, his Shalfleet stable staff and Tony Rushmer from Rushmer PR who also held a collection at Newmarket Ladies Day raising over £3.5K!

Twilight Walk – Pirates and Princesses theme

Secret Postcard Auction EACH Twilight Walk – Stop Press! New date - Saturday 13th Oct It’s not often the artistic expertise of David Sign up for this year’s Twilight Walk; a 3-mile sponsored walk for all the family. Starting and finishing at Copleston High School in Ipswich, the walk which has a Pirates and Princesses theme, takes in the magical ‘Never Never Land’ experience at The Treehouse. There's a registration fee of £6 for children, with adults free! For more information visit or call 01473 237243.

Music on the The Martlesham ee organised Green Committ ent this year ev another fantastic £5,000. and raised over eryone Thank you to ev d. involve

Cameron, Nick Clegg, Twiggy and Maggi Hambling are seen in the same room at the same time! The village of Westhall, near Halesworth, held an auction of postcardsized pictures by them and other people raising in the region of £5,000 with half donated to EACH.

ket’s wmar s e N o Ladie ou t ank y and their h t e o A hug Golf Club ptains wh ca r o ’s f n Links e H Suffolk’s Star for a Night concert and M rted EAC g suppo -12 raisin in the Regent Theatre raised 2011 0! £1,750 for EACH. Thanks to £5,10 everyone involved, including Bethany Woods who receives care at The Treehouse.

for her Mellors n o gh s li A H throu ou to Thank y support of EAC gsaw ji ing nd hand continu of seco e’s already le a s e h t Sh ,000 puzzles. bout £1 raised a e e r h at just t A big ts. thank n e v e you to whose D £5,80 staff have r HL 0 for E aised AC fundra ising in H through clu down days a ding dress events nd challenge Thanks over t who su o everyone last ye the pported ar. our Summe r Declu Big tter. We rais ed £8,5 00

Friday 26th - Tuesday 30th October Art Exhibition and sale, Unitarian Meeting House, Bury St Edmunds Saturday 3rd and Sunday 4th November The Whole Hog, Wantisden Hall, Suffolk For more information contact the Suffolk team: EACH (The Treehouse) PO Box 983, Ipswich, IP1 9UB Tel: 01473 237243

As worn by our Royal Patron HRH The Duchess of Cambridge Exclusively designed by Imogen Sheeran

Available online (free delivery) or from EACH shops

Can You Help EACH? Donate online or post a cheque payable to EACH Thinking about giving a really big gift? Please visit or call us for more information Make a regular standing order for as little or as all our k you to rt in our n a h t ig much as you like Ab took pa ers who a Party appeal. support Help by fundraising - on your own, with friends or at e Te been d Jubile Diamon tic £10,000 has your school s a ee A fant om Jubil Support EACH through your company or employer raised fr s and activitie Join EACH’s Local Hospice Lottery parties. Shop at, or donate items to, our charity shops Be part of our recycling initiatives Volunteer Leave a gift in your Will Registered Charity No. 1069284

Footprints Autumn 2012 / Winter 2012  
Footprints Autumn 2012 / Winter 2012  

Footprints, the newsletter promoting the work of East Anglia’s Children’s Hospices (EACH) and its supporters.