Thriving on Nutrition Support
Vol. 1, #12
Letter From the Director The Nutritional Restart Center (NRC) was started in the '90s by Dr. Doug Wilmore and Dr. Theresa Byrne. This was the first formal intestinal rehabilitation program. It was instrumental in defining the appropriate diet and medication management for people with short bowel syndrome. ThriveRx embraced the NRC concept to create Maximize Health, a unique home-based intestinal rehabilitation program. Consumers who have joined Maximize Health receive expert education on diet and medication management. Many have successfully reduced their parenteral nutrition needs and improved their quality of life. To celebrate seven years of Maximize Health, we’ve created a new logo and enhanced the program offerings. Visit thriverx.diplomat.is to see what Maximize Health is all about! Deb Pfister, Director of Nutrition
Stay informed. Stay involved.
Ann Weaver, Senior Consumer Advocate
PRESERVING PATIENT ACCESS TO COMPOUNDED MEDICATIONS
MEDICAL NUTRITION EQUITY ACT OF 2017
Act HR 2871 was introduced by congressmen Morgan Griffith and Henry Cuellar. According to the National Home Infusion Association, this bipartisan legislation will ensure patient access to lifesaving compounded medications dispensed by an out-of-state pharmacy. For more information about HR 2871, visit nhia.org. To see if your legislator is a cosponsor of this bill, visit govtrack.us/congress/bills/115/hr2871.
HR 2587 and S1194 would require public and private insurance coverage for medically necessary foods (including vitamins) for individuals with digestive and inherited metabolic disorders if they are prescribed by the patient’s provider. For more information about this bill, visit naspghan.org.
CALENDAR EVENTS IN 2018 Feeding Tube Awareness Week Feb. 5–9, 2018 For more information, visit feedingtubeawareness.org.
Digestive Disease National Coalition 2018 Public Policy Forum March 4–5, 2018 For more information, visit ddnc.org.
Rare Disease Day Feb. 28, 2018 For more information, visit rarediseaseday.org.
What are people saying about ThriveRx? "[ThriveRx] has always strived for excellence, and in my eyes, [they] have achieved that goal! The customer service is beyond impeccable. Thank you so much to all who have a hand in the patient's care; it truly does take a village!" —Hannah and Tammy Tansey
ThriveRx provides high-touch care for individuals with complex gastrointestinal disorders who require enteral or parenteral nutrition. We believe everyone deserves the opportunity to thrive and live an empowered life. TO LEARN MORE ABOUT HOW WE CAN HELP YOU THRIVE ON NUTRITION SUPPORT, VISIT THRIVERX.DIPLOMAT.IS.
Consumer Spotlight • Carissa Haston I live in New Cumberland, Pennsylvania. I was initially diagnosed with gastroparesis and then chronic intestinal pseudoobstruction. For the past 23 years, I have been on either TPN or tube feeds. In 2006, I underwent a multi-organ transplant, including small bowel, stomach, pancreas, and liver. In addition to the GI issues, I have been diagnosed with mitochondrial disease and dysautonomia.
"Being on TPN hasn't kept me from pursuing my dreams. Use it to enhance your life. Don't view it as a setback. Find ways to make being on it more manageable. If you need help, ask for it." —Carissa Haston
I received a degree in studio art with a double concentration in graphic design and illustration in 2000. I was accepted into a art-therapy master’s program but withdrew due to health issues. I continue to work with my passion to help people cope with chronic or terminal illnesses. I founded G-PACT, a nonprofit organization fighting paralytic conditions of the digestive tract, including gastroparesis, chronic intestinal pseudo-obstruction, and colonic inertia. Run by volunteers, G-PACT has been advocating and conducting and funding research for 16 years. G-PACT also provides
a range of support programs and services to patients. We enjoy helping others and making a difference in their lives. I also work part-time at the library. I love to read, draw, and create art in a variety of media. I am working on illustrating and writing a book. I enjoy the outdoors— mudslinging, taking walks in the park, sitting in trees, playing in the creek, watching animals play. If I am not strong enough to walk, I always try to at least go outside and sit for a while when the weather is nice. It helps me feel better. TPN is my lifeline. It keeps me fighting. Although it can be a nuisance to hook up, especially when I don't feel well, it gets me through the day. I can do almost anything I want in moderation while on TPN. In fact, it has allowed me to do things I wouldn't be able to do otherwise. I have completed high school and college and started G-PACT while on TPN. It kept me alive for years while waiting for my transplant and has since brought me through critical times.
Staff Spotlight • Kara Meinshatt, Intake and Authorizations Supervisor Kara Meinshatt started as one of the first intake coordinators for ThriveRx in April 2012. She has worked in various areas of pharmacy for the past 10 years, including retail, long-term care, and home infusion. In October 2013, she was promoted to supervisor of intake and authorizations. She is also a winner of the BioRx Founder’s Club Award for 2014, which shows her commitment to the ThriveRx team.
Sherry Weigel, manager of reimbursement, added: “Kara is very knowledgeable and always goes above and beyond for patients. She makes herself available to patients and always takes the time to resolve any issues that may arise. Kara is always pleasant and understanding, even in the most hectic of circumstances. We are fortunate to have her on our team.”
Kara works with her team to verify coverage for all services and obtain authorizations when needed. She ensures there is insurance coverage for all services provided to ThriveRx consumers and resolves insurance issues as they arise. Outside of ThriveRx, Kara enjoys spending time with her 6-year-old daughter, Lilly. She is an avid Ohio State fan and cheers them on every Saturday in the fall. She has three dogs and three cats: Kylie, Duke, Jackson, Beau, Joey, and Carson.
Kara Meinshatt and her daughter Lillian
CONTACT US Call 888.6.THRIVE Fax 888.401.8557
RECYCLE & REUSE Parenteral and enteral nutrition therapies often come with a large amount of waste. Here are some tips to help understand what can be reused and recycled: REUSE Consider reusing a product before recycling or discarding. Ice packs might be accepted by school programs, scouts, and meal programs. Cardboard boxes can be offered for free at yard sales or stores. Remember to remove the shipping stickers. Styrofoam can be used for arts and crafts at home or be donated to a school. RECYCLABLE Many items we use every day for nutrition support might be able to be recycled. Contact your city or county waste disposal company for recycling and hazardous waste collection guidelines. Some communities offer drop-off days for medications and other medical supplies that canâ€™t go in the trash. When in doubt, keep it out.
NOT RECYCLABLE Tubing: It can easily get tangled in the recycling centerâ€™s sorting equipment. Styrofoam: This is not recyclable in most areas; check with your waste disposal provider about disposal options.
Batteries: Some home improvement stores and specialty battery stores will accept them.
Blood products: Any item that has been exposed to blood is not recyclable and should be placed in a sharps container.
Ice packs: While these are not recyclable, the contents are not hazardous and are often biodegradable. If biodegradable, cut open the plastic outer packaging, throw away the biodegradable gel, and rinse and recycle the outer packaging.
Multi-material items: These items contain different types of materials, such as syringes made from rubber and plastic, infusion bags made from multiple types of plastic, and other products made of paper and plastic.
Sharps containers: These can be mailed back to the sharps container company for disposal or brought to a hazardous waste collection day in your area. Syringes without needles: Syringes that have not been used for blood, such as saline flushes, can be recycled if completely dry. Be sure to separate all pieces in advance, removing the plunger from the syringe and the rubber stopper from the plunger. Wrappers and packaging: Most are recyclable, including plastic wrappers from flushes and intravenous tubing packaging. Remember to separate the paper from the plastic on any wrappers that contain both. Zippered bags: Place small zippered bags inside one large bag and zip it up before putting in your recycling bin.
Small recyclables: While paper and many types of plastic are recyclable, the recycling equipment cannot capture small items and will often discard them. Wet items: Wet fluid bags, syringes, or wet items of any kind are problematic for the recycling equipment. Allow wet recyclable items to dry thoroughly before placing in the recycling bin. RESOURCES The EPA website includes resources on how to recycle: epa.gov/recycle
What can be recycled? republicservices.com/cms/documents/RecylingGuide1pager.pdf
7167 E. Kemper Road Cincinnati, OH 45249
We are celebrating seven years of Maximize Health with a new look and expanded program. Learn more about this program from two ThriveRx consumers by watching their videos at thriverx.diplomat.is or on our Facebook page at facebook.com/thriverx.
The information herein is for educational purposes only and may not be construed as medical advice. Diplomat Pharmacy Inc. takes no responsibility for the accuracy or validity of the information herein, nor the claims or statements of any manufacturer. Copyright ÂŠ 2017 by Diplomat Pharmacy Inc. Diplomat, Diplomat Specialty Infusion Group, and ThriveRx are either trademarks or registered trademarks of Diplomat Pharmacy Inc. All rights reserved. THRV-117547-1117