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Annual Review June 2018 - March 2019


Our Values “We aim to deliver seamless and holistic care from a centre of excellence for local people living with dementia.

Our achievements:

We support people including family and carers through the entirety of the dementia journey from pre-diagnosis through to end of life and just like dementia we do not discriminate.

• Bringing together dementia services in the area into one location

We work in partnership with the NHS, West Sussex County Council and other statutory, voluntary and charitable organisations from within the community.”

• Be a local charity for local people

• Providing a centre of excellence to support people living with dementia

• Being an integral part of the community

• Offering dementia training and education and be a beacon for best practice in the provision of dementia services and care.

Our Vision “A society where dementia is wholly understood and accepted, enabling people living with dementia to be fully supported throughout the whole of their journey.”

Empowering

Quality

Valuing

Passion

Adaptability

Focusing on individuals’ strengths and what they can do

Ensuring the highest standards in everything we do

Our staff and our customers, promoting diversity

We are dedicated to ensuring the positive impact of our work

Always responding to the changing needs within our community


Time to Reflect

A proud look at 2018-2019

Sally Tabbner Chief Executive

After a very pressurised time leading up to the official opening of Sage House in May 2018, our main objective since has been to concentrate efforts on delivering our first year of services at Sage House; whilst continually reviewing these services and activities to determine which were the most popular and what we could develop in line with our customers’ requirements, needs and wishes.

It has been a chance to start seeing the people, instead of talking about their condition. It has been a hugely rewarding and enjoyable year, getting to know our many customers, their stories and interesting backgrounds as well as their personal journeys. One of the most poignant facts that you come to appreciate when listening to people is that

Listening to our staff, volunteers and customers helps us to keep improving and adapting, so that our services are what our customers want.

3 min

Dementia Doesn’t Discriminate. In the UK, someone will develop dementia every 3 minutes

On behalf of myself and the Trustees, I would like to thank the small team of staff and volunteers for all of their hard work and ongoing dedication at Sage House. We have an absolute genuine appreciation and thanks for the vast contribution made by the 55 volunteers registered with Dementia Support this year.

This report covers a ten month period due to the financial year of the charity being changed during 2018-2019. Future reports will represent a full twelve month period.


Meet Barrie“The man I love,

I

”I am a retired local businessman and my career includes over 50 years of aviation experience.” “ I’ve flown a variety of aircraft from single propeller to multi engine as well as helicopters and before I retired I launched a bespoke flight charter business at Goodwood. I have Alzheimer’s.

850,000

5,500

Number of people in the UK currently living with dementia

People living with Dementia in the Sage House catchment

I visit Sage House most days for lunch and often go to the classes including Tai Chi, the different art classes, singing and the Veteran’s group. It is truly a fantastic place and I began my connection with the charity as an ambassador for them in 2015.”

2 Million Number of people in the UK in 2051 living with dementia

Dementia is one of the main causes of disability later in life

Dementia Support was the vision of several people who had experienced dementia within their families and felt passionately that those affected deserved better. Founded in 2014, we are a young and ambitious charity. The dream was to bring together the different dementia services that existed in the local area into one dementia-friendly community hub; and after raising £1.74 million from our capital appeal, that’s exactly what we did. The objective was, and remains, to work alongside existing organisations to bring together and enrich their offering and the services they provide and to ultimately provide exceptional dementia care in the West Sussex area including Chichester, Bognor Regis, Selsey and the Witterings to the South, Emsworth up to Midhurst in the West, Petworth and bordering along the River Arun down to the West of Littlehampton. Our goal was to develop a definitive integrated model in continuing care for people with dementia as well as provide full support for families and carers.


5 Ways to Wellbeing

The story so far

Our focus for the charity is to improve and support every individuals wellbeing; be they someone living with dementia or their carer. The charity supports the principles of the “5 Ways to Wellbeing� and includes these in all service design. The 5 Ways provide a set of simple things that individuals can do in their everyday lives to promote their wellbeing and improve their quality of life.

With the people around you. With family, friends, colleagues and neighbours.

Try something new. Rediscover an old interest. Set a challenge you enjoy achieving. Learning new things will make you more confident as well as being fun.

Go for a walk or just step outside. Play a game or Garden. Dance. Most importantly, discover a physical activity you enjoy and that suits your level of mobility and fitness.

Do something nice for a friend, or a stranger. Thank someone. Smile. Volunteer your time. Join a community group. Look out, as well as in. Seeing yourself, and your happiness, as linked to the wider community can be incredibly rewarding and Be curious! Catch sight of the creates connections with the beautiful. Remark on the unusual. people around you. Notice the changing seasons. Savour the moment and what you are feeling. Reflecting on your experiences will help you appreciate what matters to you.

The refurbishment of an old call-centre has provided a practical and friendly environment for people living with dementia. Opened in May 2018, Sage House is a unique dementia support hub. It is the first of its kind in the UK and delivers a range of support services for people living with memory loss and dementia plus

their families. Sage House is an innovative building, designed to meet the needs of people affected by dementia, so that they can easily navigate both the building and those services which can support them. Centred around a large open reception area, staff and volunteers are on-hand to help.


Sage House

Wayfinding Service

A Unique Dementia Support Hub

There when you need a little bit of help

Sage House has been developed to ensure that people living with memory loss and dementia are fully supported throughout the whole of their journey, from pre-diagnosis to end of life care. Before opening, we undertook a needs-analysis of dementia services in West Sussex, consulting with various stakeholders. This identified gaps in provision and helped us plan services to avoid duplication and meet any unmet needs.

200 people per day can be accommodated in Sage House

The building itself has been designed to reduce anxiety and minimise confusion, from the lighting we have installed that reduces shadowing to the ceiling panels that reduce noise levels. The innovative dementia-friendly signage and colour-coded zones demarcate the different services that we offer and make it easier for people to navigate independently.

Pink Zone

Orange Zone

Green Zone

Wayfinding Service

Wellbeing activities

Personal Care

NHS Memory Assessment Service (MAS) Financial and legal advice clinics

Wellbeing courses for carers

Smart Zone

Day Breaks - respite care Daisy’s CafÊ

During this first year, we have already seen an average of 100 visitors a day.

We launched our flagship Wayfinding Service in May 2018. Our unique Wayfinding Service offers personalised practical and emotional support, information and guidance throughout the entire dementia journey, from pre-diagnosis through to end of life. It is free to access and is open to the person with dementia, carers, friends and extended family. The service was developed to meet a gap in local service provision. It provides people with

immediate advice to help navigate the complex world of health and social care and dementia support services both at Sage House and in the community. We have two Wayfinders based at Sage House supported by a team of volunteers. The support provided at pre-diagnosis is not available anywhere else, as other providers are unable to support individuals until a formal diagnosis has been made. Currently in west Sussex, this can take up to ten months.

Our achievements in 2018-2019:

2,500 supported in the first year by Sage House Wayfinder service

2,500 people have been supported through the Wayfinding Service in the first year. Over the year, they have built up a client list and by the end of March 2019 we were supporting a total of 463 customers. The number of contacts to the service have increased significantly throughout the year starting in June 2018 at 75 and finishing in March 2019 at 245 contacts for the month. This represents an increase of 327% over the course of the ten-month period.


Meet Anne & Bob

“Bob struggled to come to terms with his condition, especially when his driving licence was revoked. Meanwhile I felt utterly bombarded with information, form filling, and taking on responsibility for both our lives. As his condition progresses further, daily life is becoming more and more difficult. Going out is a real challenge – even conversation is difficult. It’s a lot to cope with.

“The man I love, the man I married, started to disappear. Our whole world turned upside down.”

In 2014, Bob and Anne enjoyed busy, active lives, and were looking forward to retiring together. When Bob was diagnosed with dementia, everything changed. Each new day brought fresh challenges. They struggled to cope, until they first came to Sage House, as Anne explains:

“I’ll never forget the first time we came to Sage House. The moment we walked in – everyone looked up and smiled. They understood. In other places, Bob becomes agitated and overwhelmed, but he’s completely comfortable here. Everyone is so friendly.

“We knew that something wasn’t right, but the diagnosis was still a huge shock. Bob had always been so healthy and active – he was a carpenter, martial arts teacher and an Army Veteran too. The man I love, the man I married, started to disappear. Our whole world turned upside down.

“That first morning, I broke down in tears. I admitted that I wasn’t coping. I was offered an appointment with the

I trained and worked as a carpenter and taught Martial Arts throughout my life. I was diagnosed with dementia in my late sixties and it was a big shock for myself and Anne to whom I’ve been married for 49 years. We have two daughters and 3 grandchildren and live in Clymping. Anne and I use the Wayfinding service and we helped with the launch of the Wayfinder appeal in May - Bob

With the help and support on offer at Sage House, Bob and Anne have found that living well with dementia can become the new ‘norm’. As Anne says, “We’re just getting on with it now, aren’t we Bob?” And Bob replies, smiling, “Yes, and I hope we always will”.

Wayfinding team straight away. I didn’t have to wait. It was such a relief. Jacquie has been my absolute support ever since. If there’s something I’m worried about, something I don’t understand, I can talk to Jacquie. If there’s a specific problem or complex form that needs filling in, she works through it with me. It’s heart breaking to see Bob decline, but Sage House is helping us to make the best of each day. “Bob really enjoys the Veterans’ Group each week. He chats with new friends and enjoys remembering and reminiscing. I get a lot out of the Carer’s. And we love the café too, we chat to others and enjoy having some relaxed ‘time out’ together. We feel supported here, and I know that, as time goes on, we can rely on Sage House to be there for us.”


Our objectives for Wayfinding 2019-2020:

Wellbeing Activities

1. To ensure the general public and health and social care providers are aware of the Wayfinding Service and how they can access help and support for people living with dementia.

For mind and body

Our achievements in 2018-2019

Developed around pilot events tested in 2017, our programme of wellbeing activities is underpinned by the 5 Ways to Wellbeing. These values of Take Notice, Connect, Be Active and Keep Learning are at the core of our activity programme. Run from Sage House and delivered by volunteers, these drop-in activity sessions include; special interest reminiscence groups, physical activity groups, keeping healthy, sensory activities (smell, music etc), social interaction, plus activities designed to support people to live well, and importantly retain independence for as long as possible.

This year we saw a range of activities being developed for people to “drop-in� to. These were based on and developed from the pilot events tested during 2017 with people living with dementia. We are grateful to have such a diverse range of activities on offer as many of the activities are led by volunteers; whilst a few are hosted by specialist tutors.

2. To embed the use of a bespoke outcomes star that we have developed to measure the impact achieved by the Wayfinding service.

We are always listening to our customers and asking them to feedback ideas. Activities currently on offer include singing, a range of different art classes, chairobics, dance classes, reminiscence groups, cognitive stimulation sessions, tea and chat groups including a regular veteran group, therapy animals, yoga and laughter therapy, and Tai Chi.

300 people attended different activities in March 2019


In total, we had 300 attendees at different activities in March 2019 and we were running eight different activities per month often once a week Painting for Fun

Tea at Tangmere

This started pre-May 2018 and is guided by a volunteer who is passionate about painting. It began as a monthly group but due to its popularity it has increased to fortnightly. Using acrylics, Painting for Fun participants create an individual piece of work that is then made into a single collage from all of the paintings based on a monthly theme. Over the past year, themes have included bluebell woods, cakes and autumn. The group also contributed to the artwork which was used for our Christmas cards in 2018.

Led by a group of volunteers, this activity was also started before May 2018. It is a social group for all including carers with various activities for people to take part in, including puzzles, games, jigsaws, colouring and simple painting.

Water Colour Painting This also started before June 2018. The sessions cater for all levels of painting ability and again are based around a monthly theme. People can draw then paint a picture or paint a pre-drawn picture using water colours. Themes have included, flowers and fruit, sports, beach holidays. Again, the group is led by a volunteer with a passion for painting.

Singing for the Soul (including Singing for the Soul too) These singing groups started pre-May 2018. It was initially set up as weekly session on a Monday at the Village Hall and advertised as dementia friendly. A weekly Friday group started in May 2018 once Sage House was opened. The group was designed to enable people to gather as a group and sing a collection of songs across a broad range.

Dancercise/Move2Music This physical activity session started in July 2018. It was developed in response to feedback from customers wanting to do more physically active exercises. The group practice routines to music from the 1960’s-1980’s with the aim of supporting co-ordination and balance.

Veterans Group

Chairobics

This popular group was started in July 2018. The volunteerled group enables ex-service people, both carers and customers living with dementia to talk about when they served. The group also has arranged talks and visiting groups such as the local youth cadets.

This group started in August 2018 with additional sessions added to the programme from February 2019. Originally running as a monthly group, it was increased to fortnightly due to demand. The group provides chair-based exercises that help with balance, coordination and strength.


Fine Art This group was run by students from the University of Chichester, from January 2019 for 10 weeks. The course used different mediums including clay, paint and drawing. The course was designed and delivered by 2nd Year Fine Art students as part of their degree.

Memory Matters The first course ran from October – December 2018 to a group of 8 attendees. We ran it with the NHS cognitive stimulation group. Following this we developed our own Memory Matters course, still based on Cognitive Stimulation techniques the course covers a broader range of topics. We now deliver our own Memory Matters course independently from the NHS. Another session ran from January 2019 to April 2019 for four people. The 10 week course comprises of weekly sessions exploring childhood memories, holidays, wellbeing and mindfulness, nature and gardening, music, art, famous faces and creating a life story.

Our objectives for 2019-2020: 1. To develop a range of activities with our customers to be involved in, to reduce the loneliness and isolation experienced by many people. 2. To develop a range of activities with our customers focused on physical and mental wellbeing to improve the physical and mental wellbeing of those living with dementia and memory loss.


Meet John & Sue “It’s the little everyday problems that make dementia into one big problem.” John and his wife Sue love reminiscing about their zookeeper days, and they have lots of amazing stories to share. Coping with John’s Parkinson’s and related dementia isn’t easy but, with the help of Sage House, they’re ready to take on each new challenge, as Sue explains: “We love coming to Sage House every Tuesday. Move 2 Music is good, we have a laugh together, don’t we John? It helps a lot. You can see some of the old boys in there, they’re up and dancing, singing along to the Beatles, Chuck Berry and such like. It brings back good memories of our Cleethorpes days, in the 60s and 70s.”

I was Head Zookeeper at Lambton Safari Park and spent most of my life working with wild animals. When I was diagnosed with Parkinson’s dementia, I thought ‘oh well, I’ve nearly been trampled to death by an angry elephant so, what will be will be’. Sue and I are supported by a Wayfinder, and we go to Move To Music which is exhilarating and great fun - John

“We both worked in zoos and safari parks for 17 years. It was a good life, but hard work. We had an elephant, Tanya her name was. I used to take her down the beach about a mile away, riding on her back, so she could bathe in the sea. Hard to believe it now.”

“About 15 years ago, John was diagnosed with Parkinson’s, and we moved down to Bognor. Then two years ago he was diagnosed with dementia, connected to the Parkinson’s. He loses his train of thought mid-sentence, and forgets things all the time. It’s the little everyday problems that make dementia into one big problem. “We’ve been really pleased with the support we’ve had at Sage House. We like the design and the colours. Everyone is really nice, they make time for you, especially our Wayfinder, Jacquie. We’ve made some friends, although we both have a job remembering their names! We like to welcome new people – we’re like the old timers now.

“We’re coping OK. We take each new step as it comes along. It’s good to know Jacquie is there when we need her, and we’re thinking about coming to Sage House twice a week. The painting class sounds fun.” Sage House has become a hugely positive part of both John and Sue’s lives. They know where and how to access the support they need, and they enjoy the activities and community atmosphere. It’s vital that Sage House is open and available to everyone living with dementia in our area, and we’re incredibly grateful to everyone who supports us.


Day Breaks

Our achievements in 2018-2019

Providing respite for Carers

During our first year we delivered 2,804 half day sessions. By the end of March 2019 the service was at 92% capacity.

Day break services provide specialist and personalised day care for those living with dementia and memory loss. The service not only benefits the individual with dementia but provides a muchneeded break and respite for carers and families. We do charge customers for this service and offer subsidised places which are dependent upon an individual’s financial situation.

The number of half day sessions offered for Day Breaks has increased from 191 per month to 468 per month an increase of 245% during ten months. Furthermore, capacity levels of service uptake have grown from 64% in June 2018 to 92% in March 2019.

Day Breaks are designed to stimulate individuals cognitively and enable people to live well with dementia. Customers spend a half or full day at Sage House, participating in meaningful activities designed to stimulate and engage the individual, whilst building on their own individual interests. A two-course lunch is freshly cooked by Daisy’s Café to meet individual nutritional requirements of our Daybreaks customers. Our support staff can offer a range personalised care including assisted bathing, feeding and medication administration.

In a recent survey 100% of carers said they feel that their loved one really benefits from attending day breaks.

Our objectives for 2019-2020: 1. To develop and expand our Day Breaks service to ensure it continues to meet the needs of the customers accessing it. 2. To record, monitor and evaluate the Day Breaks service to contribute to the development of a blueprint for a dementia hub delivery model. “I don’t know how I would have coped without Daybreaks at Sage House. Martin would probably have had to go into a home. I think the whole place is tremendous.” - Sheila I started my career as a nanny and then took up a job tubing smarties for Rowntree before deciding that I wanted to become a nurse! I signed up with the Army to do my nurse training and got my nickname from a matron I worked with who said calling Richardson (my maiden name) down the ward would take too long. I have Alzheimer’s and live in the Chichester Area Catherine, known as ‘Ricky’


Personal Care

Our objectives for 2019-2020:

Retaining dignity

1. To increase the number of customers using the bathroom facilities so that we reach maximum capacity within the year.

Designed to maintain and increase personal selfesteem and improve wellbeing, we provide a range of complementary therapies and personal care services at Sage House. The bathroom at Sage House has been specifically designed to provide a safe and relaxing environment, with a hoist for the bath and decorative sky panels in the ceiling to aide relaxation. Customers can book the bathroom and be shown how to use the bath and support their loved one themselves, or they can book for a support worker from Sage House to help with

the bath. Support workers offer baths to both external customers and also to customers from daybreaks. The purpose-built hair salon and holistic therapy treatment room are designed to increase self-esteem. Therapies that have benefited both carers and the person with dementia include reiki, massage and hair and beauty treatments. All treatments are performed by professionals who volunteer their time to Dementia Support. This enables us to keep costs very low and ensure these important services are available to everyone.

Our achievements in 2018-2019 The assisted bathing service and rental of the bathroom commenced in July 2018. It has proved popular for those experiencing difficulty with maintaining personal care and bathing at home, which is something often reported by carers as being one of the most challenging and controversial issues to manage within the home. Our first two bathing customers used the bathroom in June 2018; one was a customer in Day Breaks whilst the other was an external customer who booked in just to have a bath. Since then, the number of sessions has risen from 4 in its first month to 47 per month nine months later in March 2019.

2. To offer a wider range of therapy and treatment sessions and increase the availability so more customers can benefit.

“It has made a great difference to me. It is lovely to wallow in a bath. It has also helped with my skin and my arthritis.� Iris


Carers Support Caring for the carers The initial feasibility study identified a gap in provision and support for carers, with a specific dementia focus and understanding. These needs directly influenced the creation of our unique Wayfinding Service, which provides support for both the person with dementia and their carer including extended family.

The Smart Zone Technology to keep people living independently Technology and equipment can be invaluable for helping people living with memory loss to remain independent in their own home for as long as possible. With the innovative dementia technology and equipment on display in The Smart Zone in Sage House we can demonstrate to people what is available. Customers can also sample the latest innovations, to help them make informed decisions about the right product for their circumstances. We also help access grant funding that can contribute towards the cost.

This year saw the development of our Empowering Carers course which is available to the whole family. This new programme was designed to specifically support carers and families with practical advice, support and training following feedback of this gap in local service provision during early 2018. Sage House also hosts the monthly meeting for the Carers Support West Sussex partnership.

1. Develop partnerships across our area to support carers in the community.

The Smart Wall was installed in December 2018 to display the technologies available to customers to support independence.

To deliver a Be Smart Be Safe Day three times a year to promote the opportunities of independent living.

As part of the Wayfinding Service, volunteers run ‘chatter tables’ twice a week within Daisy’s Café. This offers carers with an informal opportunity to just drop-in and have a chat with someone who is there to listen. Over this year we have seen barriers broken down and friendships formed.

Our objectives for 2019-2020:

Our achievements in 2018-2019

Our objectives for 2019-2020:

Our achievements in 2018-2019:

2. Support carers based in the community by When we were young and impetuous, my husband Kim and I bought a derelict property on a small island on the Thames which we spent two years renovating! I have fond memories of bringing up our sons in the home we built together. I was diagnosed with dementia when I was 60. We’ve both benefited from many of the activities on offer at Sage House and feel part of their family - Kay

delivering our Empowering Carers course in community-based locations.


Daisy’s Café

Our objectives for 2019-2020:

Community Connection and Dementia Awareness

Our long-term goal is that the café will be profit-making and will contribute as a sustainable income stream for the charity. However, we realise that we have a long way to go and will use this year to:

Daisy’s Café is central to our hub at Sage House. The café provides a relaxed, informal setting for our customers accessing support services as well as the general public. It is vital in breaking down some of the barriers people face when living with dementia and reducing the stigma that some people associate with a dementia diagnosis. The café is a chance for everyone to make friends with other people from the local area and to share and talk about interests and life experiences. As such, it is a pivotal part of our mission to create a dementia-friendly community.

Our achievements in 2018-2019

I am a retired Restaurateur and head chef, I started cooking in professional kitchens when I was 14 years old. My wife Janet and I owned and managed restaurants in Sussex, Janet was front of house and I was head chef – we were the dream team. I was diagnosed with dementia this year and introduced to Sage House where we have now become regulars, using the café, the Wayfinding service and we also “Move To Music” every Tuesday - Frank

Having opened Sage House in May 2018, this first year has been focused on getting the café up and running. We have promoted the café within the local community and to other local businesses, with many coming in for lunch. As with many new ventures, the charity has subsidised the running costs of the café. Daily “chatter tables” run from the café to encourage everyone to come in and make friends. These have been designed to tackle loneliness and social isolation.

1. Increase the number of customers using the café so that we can break even by the end of the year. 2. Review and improve the environmental sustainability of café products and use local produce wherever possible.


Development of Dementia-Friendly Communities

Working in partnership

Development of Dementia-Friendly Communities

Our achievements in 2018-2019

Connect

We developed an inter-generational reading activity with children from Tangmere Primary School joining a Reading Group with our Day Break customers. This has contributed to a greater understanding of memory loss and dementia for them, whilst providing a welcome opportunity for our customers to interact with the younger generation and spark different conversations.

Our approach is based on working in partnership with all parts of the community. This includes businesses, community groups, statutory services and other charities. Our aim is to bring all of these parties together to enable people living with dementia to receive appropriate support with all of the issues affecting them, be it emotional, financial or physical so that they

This year saw the development of a range of community relationships as part of our mission to develop dementiafriendly communities. This involved working with the University of Chichester to create apprenticeships placements within Dementia Support at Sage House. We also work in partnership with the Alzheimer’s Society to deliver Dementia Friends training to companies, individual and community-based groups. We are also working with the local primary school in Tangmere.

The Charity has also provided many Dementia Friends sessions both out in the local area and within Sage House at various intervals.

Our achievements in 2018-2019 Through our partners we have been able to offer: • Solicitor clinics - Cameron James and Irwin Mitchell • Hairdressing - Hair at Number 4 and Creations • Relaxation therapies - Ian Ford at Mirage

Our objectives for 2019-2020: 1. Support the local community to become dementia-friendly. 2. Undertake research and evaluation in partnership with the University of Chichester.

• Technology and Equipment to support independence in the Home - Welbeing • Support with Benefits Advice and Claims - Age UK and the Department for Work and Pensions • Memory Assessment Service – Sussex Partnership NHS Foundation Trust • Smart Zone technologies and demonstrations Carers Support West Sussex Equipment Service

I am a car enthusiast and worked building and test-driving stunt cars for films! I have worked on a number of films and met various celebrities in my career and was diagnosed with mixed dementia in my mid-60’s. I was also a great stockcar racer and worked with the Rally Club for a number of years. I come along to Day Breaks each week - Dave


Organisational Objectives for 2019-2020 1.

Consolidate the services and measurement of outcomes achieved at Sage House This year we will focus on consolidating services within Sage House, whilst continuing to review and evaluate the outputs and outcomes from its services and activities. We will continue to develop all our services in line with our customers’ requirements, needs and wishes.

2. Expand services into the community We want to ensure that we deliver good quality dementia services for all across our geographical area. Therefore, an Outreach Service will be fully scoped and designed during 2019-2020 based upon the proposition and successes at Sage House. The aim is to develop an Outreach Service to fill gaps in the wider geographic areas of our catchment; and ensure that people who are not able to access Sage House can access support and participate in activities. Whilst we recognise that each community will have its own needs and gaps that we can fill, the elements of Sage House that we expect to be part of the outreach services are Wayfinding, Memory Matters, and some of the exercise groups.

Meet Martin I started out my career as a Sussex Police officer, serving the Shoreham community. After a number of years in the force my Dad asked me to take over the family business, ‘John’s’ Mens Wear in Surrey. I built the business and ended up owning a chain of men’s wear stores. I have mixed dementia which was diagnosed during my mid 70’s and I have been coming to Sage House Day Breaks since it opened in May 2018 - Martin

3. Develop a strategic approach to manage volunteers Volunteers are vital in all aspects of our work as a charity, from service delivery to fundraising. Acknowledging the growth of the volunteer base during 2018, a Volunteer Co-ordinator will be recruited to ensure that volunteer induction and ongoing support is maintained whilst ensuring that opportunities for people who have dementia to volunteer are actively pursued.

4. Develop services that meet the needs of those with young onset dementia. We know from the feedback that we have had that people with young onset dementia want different things. During 2019-2020 we will therefore engage with our younger customers to identify what would work for them and design services appropriately.

5. Develop a proven model of success for a dementia support hub that can be replicated in other communities Our aim is to make a positive difference and improve outcomes for people living with dementia in Chichester and West Sussex. We also aim to develop a template for dementia support services that can be replicated across the country. This coming financial year we will review and finesse the service blueprint. Identifying the next steps in the development of the plan to achieve this.


Income & Expenditure Summary

Income

for the period 1 June 2018 to 31 March 2019

Voluntary donations

Total Funds Received for 01/06/18 - 31/03/19

Grants - Trusts and Foundations Charitable activities - Dementia support service Sage House

Income

£

Expenditure

£

Trading - café Trading - other

Voluntary donations

430,792

Charitable activities - Dementia support service Sage House

Grants - Trusts and Foundations

102,085

Trading - café

48,616

Charitable activities - Dementia support service Sage House

85,808

Trading - other

1,158

Trading - café

33,201

Fundraising activities

96,757

Trading - other

3,376

Governance

14,185

458,680

Investment

Expenditure Charitable activities - Dementia support service Sage House

Investment

619,396

9,915

Trading - café Trading - other

665,175

Net Income

45,781

Fundraising activities Governance

82p in every £1 goes directly towards the costs of delivering our Dementia Support service - Sage House

Classic cars, that’s my passion. I’m the proud owner of a Mercedes 170SV built in 1954. My wife Jean loves classic cars too. We’ve been married for 55 years now and have two children and six grandchildren. Since being diagnosed with dementia two years ago, I sometimes struggle to find words. On recommendation from our Wayfinder I have joined the cognitive stimulation therapy group, Memory Matters at Sage House and I’ve made some good friends there. - Tony


Auditors Statement We have audited the financial statements of DEMENTIA SUPPORT (the ‘charitable company’) for the period ended 31 March 2019 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). In our opinion the financial statements: • give a true and fair view of the state of the charitable company’s affairs as at 31 March 2019 and of its incoming resources and application of resources, including its income and expenditure, for the period then ended; • have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and • have been prepared in accordance with the requirements of the Companies Act 2006.

Fundraising – give, connect Robert Alistair Sadler FCA (Senior Statutory Auditor) for and on behalf of Robert Sadler and Company Ltd 30B Southgate Chichester West Sussex P019 1DP The full report of the Independent Auditors to the members of Dementia Support can be reviewed in the Report of the Trustees and Financial Statements for the period 1 June 2018 to 31 March 2019 which can be found on both the Charity Commission and Companies House websites

Following on from our Capital Appeal which raised a fantastic £1.7 million to create the first dementia hub in the country, this year we have focused on raising funds to operate the services within Sage House.

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Principal funding sources The charity’s funding is dependent on the donations received as a result of its fundraising activities. The charity has appointed a small fundraising team to help achieve its funding goals and seek out parties willing to make donations towards the charity’s objectives and activities.

Reserves policy The trustees have considered the future funding needs and commitments of the charity and deem it prudent to hold general unrestricted reserves equivalent to 6 months overheads at any time.

To donate by debit or credit card please visit our website: www.dementia-support.org.uk/


Boost your donation by 25p of Gift Aid for every £1 you donate I want to Gift Aid all donations to Dementia Support that I have made in the last 4 years, today and for all future donations, until I notify you otherwise. I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all my donations in that tax year it is my responsibility to pay any difference. I am not a UK tax payer Please notify us if you want to cancel this declaration, change your name or home address or you no longer pay sufficient income tax and/or capital gains tax.

Your support makes a huge difference to people living with dementia. We would love to keep in touch and let you know about our services, fundraising activities and events and other ways you can get involved. From time to time we will also send you a communication to update and refresh your communication preferences. Choose how you would like to hear from us.

Yes, I’d like to hear from you by: email

post

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To update how you would like to hear from us call 01243 958460 or email fundraising@dementia-support.org.uk

How we use your information: Your privacy is important to us and we are committed to protecting it. We will collect personal data whenever you use our services, request information or make a donation. We will only use it in ways you would reasonably expect or have agreed to, but we may supplement it using publicly available information. We may analyse your data to ensure that we are sending you the most relevant material, which helps save us money. Your information will be kept confidential to the required extent under the GDPR and we will only share your details with trusted suppliers acting on our behalf. For more information on how we use your information please refer to our Privacy Policy.

Please return this form to: Dementia Support, Sage House, City Fields Way, Tangmere, West Sussex PO20 2FP. dementia-support.org.uk/appeal

Appreciation Zone We couldn’t do it without you Thank you to all those who have given their time and money to enable Sage House to be the unique and special place it is, to so many people living with dementia. The past year has seen the charity build up a vital volunteer network who do so much for the charity. Volunteers provide support throughout Sage House in the café, reception & administration roles, by offering support and advice in Wayfinding as well as leading or supporting various activities, attending Committees or Board Meetings or being there at the many fundraising events that take place each year. We have developed a thorough induction and training programme, a full suite of policies and a volunteer handbook. We cannot emphasise enough that without our volunteers’ efforts, Dementia Support would not be able to provide the range and quality of the services that it is able to. Thank you to the wonderful and amazing 55 volunteers we have – that ensure Sage House and its services run every day.

I have had a number of careers starting out working on the telephone exchange and then working as a dental nurse - I also really enjoyed owning a bed and breakfast in Bognor for 20 years. I have Frontotemporal dementia and come along to Day Breaks and am most proud of being a grandmother of four and a great grandmother of two - Christine


We would like to say a special thank you to the following individuals, companies and charitable trusts and foundations who supported the charity during 2018/2019: Basil & Maureen Baird Bassil Shippam and Alsford Trust Ben Cornick Chichester Cathedral Chichester Golf Club Veterans Chris Coote Churchill Retirement Living, Harington Lodge Co-op Local Community Fund County Hall Players F Glenister Woodger Trust

Homebase Sausage Sizzle Support John Lewis & Partners, Chichester Lions Club Chichester Lions Southbourne, Littlehampton, Midhurst, Selsey & District David & Jenny Lowe David & Sandy Langmead Gwynne Oakley-Smith Luke Oakley-Smith Mirage Health and Wellbeing

Felpham Flower Club

Nationwide Chichester

Friarsgate Trust

Pagham Pram Race

Gerald Micklem Charitable Trust

Patricia Lewis

Patrick, Kit & Will

The Unforgettables

Vice-Presidents

The Patricia Routledge Charitable Trust

The Wates Foundation

Robert Langmead

The Wickins Family

Lucinda Langmead

West Bognor Flower Club

Sabine Margarson

Peacock Trust Peter Danks Rotary Club of Bognor Hotham Rotary Club of Chichester Priory

Westbourne House School Westbourne House School Rested Development Schools Triathlon

Patrons Margaret and Terry Bamford Derek Bell

Barry Sampson

Patrick and Maggie Burgess

S & T Joinery

Denise Patterson

Stella Symons Charitable Trust

Barrie Prescott

Sussex Community Foundation

Ambassadors

Sylvia Worden

Peter Haydn-Jones

Talks at Six

Joan Langmead

The Trefoil Trust

I live in a village just outside Chichester and I started to visit Sage House in the summer of 2018 after being diagnosed with dementia. I am a widow, my son and daughter live quite a distance away and I live alone but with good lifetime friends around me. Through a close friend I was introduced to my Wayfinder at Sage House, she has supported me with many emotional issues, including when it was decided I could no longer drive my car. I love to come to the Tai Chi and during the 10 week cognitive stimulation course I met many new people, I think it’s good for me to socialise. - Helen


In addition, we work in partnership with some amazing organisations who help us achieve fantastic outcomes for our customers. A special thanks goes to: Cameron James Solicitors Irwin Mitchell Solicitors Hair at Number 4 Creations Hair Salon Ian Ford – Mirage Carers Support West Sussex Wellbeing Age UK Sussex Partnership Foundation Trust / Memory Assessment Service (MAS)


Join us online

f Facebook: @dementiahub l Twitter: #Hub4Dementia i LinkedIn: /company/dementia-support Dementia Support, Sage House, City Fields Way, Tangmere, West Sussex PO20 2FP. dementia-support.org.uk/appeal Photography by Christopher Ison www.christopherison.com

Tel: (01243) 888 691 Email: info@dementia-support.org.uk Company no. 9044373

Registered charity no. 1158640

Profile for dementiasupport

Dementia Support Annual Report 2018 - 2019  

After a very pressurised time leading up to the official opening of Sage House in May 2018, our main objective since has been to concentrate...

Dementia Support Annual Report 2018 - 2019  

After a very pressurised time leading up to the official opening of Sage House in May 2018, our main objective since has been to concentrate...

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