In this edition of HQ we have two great competitions for all you budding writers or artists. This is your chance to win vouchers to spend in the New Year. We also have information on some fun-packed activity weekends and camps we have coming up in the next year.
My bleeding disorder didn’t stop me... Have you or your family ever thought that you couldn’t do something because of your bleeding disorder? Only to find out that you can?
Time to get writing
Have you been on an adventure? An exciting bike-ride? Rock climbing? Horse riding? An activity weekend?
We want to hear from you. We want you to a write a story of no more than 800 words. Tell us about any exciting or memorable experiences you’ve had whilst living with a bleeding disorder. Whether it be about yourself, or a member of your family, tell us about a time where a bleeding disorder didn’t stop you. The competition is open to all Under 14s. Send your story to our office or e-mail it to Claire (contact details at the back of this magazine). The winning story will feature on the Young Bloods website and in our spring magazine. The competition closes on 28th February 2013 and winners will be contacted directly.
“Close the Gap” Are you an aspiring artist? Would you like to see your design used as part of a national campaign? Would you like to help us raise awareness? This is your chance. We would like you to design a campaign poster. The poster is to raise awareness about how people in other parts of the world do not have access to enough treatment. It should mention the UK’s treatment, and how we want to ‘close the gap’ for other countries. The winner will feature as part of the Haemophilia Society’s awareness raising work for World Haemophilia Day 2013. Here are some facts to get you started on your poster: Ÿ An estimated 6.9 million people are living with a bleeding disorder. Of these, 75 per cent remain undiagnosed and receive inadequate care or no care at all. Ÿ A child growing up with a bleeding disorder in a developing country may suffer needlessly, experiencing the crippling effects of untreated bleeds. They often miss days of school or don’t attend school at all. Ÿ We want to urge governments around the world to be true to the theme “close the gap” and ensure treatment for everyone. Even more information is available on the World Federation of Hemophilia website – www.wfh.org. The competition closes on 31st January and is open to Under-16s. You can design your poster by hand or on the computer, on one side of A4 paper. Send it to the Haemophilia Society office, or e-mail it to Claire by the 31st January 2013 (contact details are at the back of this magazine). Please remember to include your name, age and address with your poster. Winners will be contacted directly.
Activity Weekends This year weâ€™ll be running two activity weekends. Meet up with friends you made last year or come make new friends and try some exciting activities. There will be a weekend for 8 to 12 year olds at Peak Venture, Kingswood centre, South Yorkshire from Friday 24th May to Monday 27th May 2013.
The second weekend will be for 13 to 16 year olds at Dalguise, Perthshire, Scotland PGL centre from Friday 26th July to Monday 29th July 2013.
At the activity weekends you will meet other young people with bleeding disorders. You can get involved with activities such as abseiling, kayaking, raft building, archery, zip wire and team building. We have lots of Youth Leaders coming on the activity weekends. They either have a bleeding disorder or have someone in their family who has one. The Youth Leaders will get involved with the activities, and are there to support you and help you try new things. But most of all, they are there to help you have fun! All Haemophilia Society events are open to any child in a family affected by bleeding disorders. That means that siblings are welcome too. For more information, please contact Claire. Contact details are at the back of this magazine.
With so much to try why not come along?
Barretstown is a charity which runs a specially designed camp in Ireland, providing Therapeutic Recreation programmes. These are for children with serious conditions and illnesses, and their families. Children with bleeding disorders are welcome to take part in their Children & Teen Camps in the summer or their Family Camps in the spring and autumn. Barretstown has offered us several places in their camps throughout the year that we thought you might be interested in. For dates please visit www.youngbloods.org.uk or contact Claire. Barretstown will book and cover your flights and everything onwards. You only need to organise and pay for getting to and from the airport. You can find out more about what they do at www.barretstown.org. If youâ€™d like to find out more or book your place please contact: Family Liaison Department l Barretstown T: +353 (0) 45 863 147 E: firstname.lastname@example.org
Vicky Sutton-Smith The Haemophilia Society Outgoing Children & Families Officer Claire Treguer email@example.com Children & Families Officer The Haemophilia Society