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CURE Connections eNewsletter

October 2012

Our mission: To improve the lives of families coping with childhood cancer or chronic blood disorders by providing emotional, educational and financial assistance.

FOCUS ON... KATIE FOSTER Katie Foster recently welcomed a new addition to her family-Aurora, a Siberian Husky. Katie, age 15, was diagnosed with Rhabdomyosarcoma in November 2011. She is currently a sophomore at the School of the Arts in Rochester. Her arts major is dance. She also dances at Deborah MacKay School of Dance in Webster. Katie shares Aurora with her sisters Claire, 13, Aideen, 12, Meghan, 8, and her parents Lisa and Jeff.

LEARNING PROBLEMS ASSOCIATED WTIH DIAGNOSIS AND TREATMENT OF CHILDHOOD CANCER AND BRAIN TUMORS

Wednesday, October 17 from 6:30-8 p.m. at CURE Topics Include:      

How diagnosis of cancer and certain treatments can affect learning Who is most at risk How to monitor problems How to advocate for school services Short-term learning issues for all cancer patients (fatigue, missed instruction, processing Long-term learning issues for patients who received treatment for ALL or brain tumors

Presenter Kathy Wissler, M.Ed, Educational Consultant and local expert on cognitive late effects of treatment for cancer and brain tumors in children.


Admission is FREE but a reservation is required. Contact Kiersten Kunick at the CURE office at 585-473-0180 or kiersen.kunick@curekidscancer.com

HOST A PENNY DRIVE FOR CURE CURE's Million Penny Drive officially kicks off on October 15. If you know of a school or business willing to collect pennies, please contact CURE's Emily Rowe at erowe002@gmail.com. We'll deliver collection jugs, and pick them up at the conclusion of your drive. You provide the pennies and we'll do the rest! Don't miss your chance to be a part of the Million Penny Drive!

CURE FAMILY NEEDS HELP A family who has just moved to our area from out of state is in need of items to furnish an apartment. The family includes a 14year-old boy who is currently undergoing cancer treatment, his 7 year-old brother, 2 month-old sister, and his mother. Items needed include beds and bedding, dressers, sofa, chairs, lamps, kitchen table, dishes, cookware, flatware, TV, towels, sheets, blankets, baby swing and bouncer, stroller, PS2 gaming system and games, age appropriate toys. If you are able to help, please contact Linda Morrison at either 585-275-1287 (office), 585-697-4470 (cell) or linda.morrison@curekidscancer.com.

YOUR FEEDBACK ON "RESOURCES" IS REQUESTED Last month, CURE announced the addition of a new "Resources" section to our website. It was created to help address requests we often receive for help in locating reliable sources of information about diseases, treatments, college scholarship opportunities, sources of emotional or financial support, books, etc. We invite you to visit the site, and let us know what you think. Is it user friendly? Is the information helpful? Are there other sources that we should include? To link to our "Resources", click here or visit our website at www.curekidscancer.com. Please send us your feedback at staff@curekidscancer.com.


4th ANNUAL "RECIPE FOR A CURE" BRUNCH SAVE THE DATE! Sunday, November 18 from 11 a.m.-2 p.m. Raddison Hotel Rochester Riverside 

A truly incredible brunch prepared by Rochester's finest professional chefs from the American Culinary Federation: Rochester's Professional Chefs/Cooks Association

Music, Live and Silen Auctions, Wine Auction

Vounteers and donations to live and silent auctions are needed. For more information, please see the "Volunteer Opportunities and Other Ways to Help" section of this newsletter.

Tickets are $40 in advance, $50 at the door. Children 6-12 $25. Children under 6 free. Corporate sponsorships are available. For more information or to purchase tickets, visit www.curekidscancer.com or click here.

CONGRATULATIONS! 

Amanda Streb, age 18, finished treatment for Pineoblastona (brain tumor) in September. She plans to travel to Germany to spend time with her uncle and sample life abroad. Safe travel Amanda! 

 Claire and Ramzi Abbsud welcomed their new daughter, Nora Louise, on September 17. Claire is a nurse on the 4-3600 Unit at Golisano Children's Hospital. Jonathan Leuschner had a lot to celebrate recently. He turned four on September 22, and had his last dose of chemotherapy for a Wilm's Tumor two days later. Jonathan likes to play with cars and trains. He lives with his parents Erin and Eric, and baby sister, Claire. Congratulations Jonathan! If you have good news you would like to share, please send it to Kiersten Kunick at kiersten.kunick@curekidscancer.com or call 585-473-0180.


OUR SINCERE SYMPATHY TO THE FAMILY AND FRIENDS OF: KYLEIGH WENNER, September 8, 2012

CURE'S BEREAVEMENT GROUP NEWS The next monthly meeting will be held Wednesday, October 24 from 7:008:30 p.m. at CURE. Meetings are warm and supportive. Joan Reeves, a bereaved parent, cofacilitates the meetings with social worker Jade Giesy, and CURE parent advocate Linda Morrison. Parents, grandparents and friends are welcome to attend. Reservations are not required. For more information please contact Linda Morrison at 585-275-1287 or linda.morrison@curekidscancer.com.

OTHER HAPPENINGS "Ben Hall's Kickin' Cancer Benefit" Saturday, October 13 at the Bath VFW. Event begins at noon, Champs Chicken BBQ or Pulled Pork PLUS buffet served 2-6 p.m. Live music, door prizes, bake sale 50/50 raffle. Pre-sale tickets available for $10 from George Hall at 794-6679. Event benefits 13 year-old Ben Hall and his family.

HOLIDAY HEROES CURE Childhood Cancer Association will continue our holiday tradition of honoring the heroes in our lives with our Annual Holiday Heroes Campaign. It is your chance to publically recognize those who have touched your life in special ways. Perhaps it's someone who has shown great courage or lent a hand in the face of your family's crisis. You can remember a loved one or friend, or share a holiday greeting. We will publish your Holiday Hero messages in the Messenger Post newspapers throughout Wayne, Monroe, Ontario and Yates Counties in mid-December. Please watch your mail in early October for information about how to recognize your holiday hero!


BOOST TUTORING FOR KIDS AND TEENS Boost tutors are available during and/or after treatment for as long as needed, even after returning to school. These services are provided free of charge by retired, certified teachers who are dedicated to making a difference in the lives of children. If your child is struggling with schoolwork, even if treatment was completed long ago, please contact Linda Bolan at 585-317-7269 or Linda@boost4kids.com to learn more about how Boost tutoring may be able to help. Tutors are available during summer as well as during the school year. Please note...Boost's email address has changed! If you contacted

Linda by email, and didn't receive a reply, please try again at Linda@boost4kids.com.

BOOST NEEDS VOLUNTEER RETIRED TEACHERS If you have K-12+ experience, and are interested in making a difference in the life of a child with a chronic illness, who is struggling with school work and needs supplemental tutoring, please contact Linda Bolan at 585-317-7269 or by email at Linda@boost4kids.com for more information about Boost. Please note...Boost's email address has changed! If you contacted

Linda by email, and didn't receive a reply, please try again at Linda@boost4kids.com.

    

WISH LIST Nail polish & manicure kits, Legos, Uno Cards. Single layer fleece blankets Snack foods in individual snack sizes, tea & hot cocoa 2013 Calendars/ Appointment books Gift cards for gas, Wegmans and Walmart.


VOLUNTEER OPPORTUNITIES AND OTHER WAYS TO HELP 4th Annuual Recipe for a CURE Brunch, Sunday, November 18, Volunteers and auction items needed. 



Silent Auction Items:handmade jewelry, blankets, wreaths, gift baskets, sports equipment, children's items, gift certificates to local restaurants or businesses (please contact Mary at the CURE office before soliciting restaurants or businesses) and lottery tickets (any value) for our lottery basket. Live Auction items: handcrafted furniture, getaway weekend trip, airline tickets, fine jewelry, electronics, appliances and artwork.

Contact Mary Gallis at mary.gallis@curekidscancer.com New volunteers are always welcome! For more information click here. Please remember CURE in your will or estate planning and join the Margaret Hummel Society. For more information please contact CURE's executive director at brian.wirth@curekidscancer.com.

RECYCLE INK, TONER, SMALL ELECTRONICS & HELP CURE Wondering what to do with your old ink and toner cartridges? How about that cell phone that no longer works? Bring them to CURE and help us while helping to keep them out of landfills! We have contracted with a professional recycling company that will pick up items at our office and pay us a small reward for each item we collect. Please call the CURE office at 585-473-0180 to schedule a time to drop off your items.


ONGOING PROGRAMS Provided free of cost to our families           

Boost Tutoring (See article above for more information.) Coffee Group meeting for on treatment families-Thurs, 1-2p.m., Kaiser Room, 4th floor Golisano Hospital near the red elevators. Voyage Beads - patients use colored beads to build a tangible representation of their journey through cancer treatment. Vouchers for free parking - provided to families of CURE children who are hospitalized or visiting the outpatient clinic. Emergency financial assistance for on-treatment families. Parent-to-Parent, Patient-to-Patient Peer Support Program. Family Handbook and Comfort Bag for newly diagnosed families Emotional support and guidance from CURE's parent advocate, Linda Morrison Educational programs about school issues for patients and long-term survivors. Bereavement support for families experiencing loss. Social gatherings including Cancer Survivors Day picnic, Holiday Party, and Morton Fall Family Fun Day.

CONTACT US Please let us know if you move or change your email address. CURE Childhood Cancer Association 200 Westfall Road, Rochester, NY 14620 website: www.curekidscancer.com phone: 585-473-0180 fax: 585-473-0201 Brian Wirth, Executive Director, brian.wirth@curekidscancer.com, 585-473-0180 Mary Gallis, Associate Director, mary.gallis@curekidscancer.com, 585-473-0180 Kiersten Kunick, Program Coordinator, kiersten.kunick@curekidscancer.com, 585-473-0180 Linda Morrison, Parent Advocate, linda.morrison@curekidscancer.com 585-275-1287 Emily Rowe, Fundraising Coordinator, erowe002@gmail.com, 585-473-0180

CURE Connections Newsletter - October 2012  

CURE Connections Newsletter - October 2012

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