â€œ This peculiar disjuncture in my knowledge of the physical world caused such total crisis in my thinking and activity that it is only now, some six months later, that I am beginning to realize what has happened to me. â€? Jo Spence, 1982-86
â€œ Dipping into the archive is always an interesting, if sometimes unsettling, proposition. It often begins with anxiety, with the fear that the thing you want wonâ€™t surface. But ultimately the process is a little like tapping into the unconscious, and can bring with it the ambivalent gratification of rediscovering forgotten selves. â€? Moyra Davey, 2007
â€œ [...] In the shadows of my fears came also a rebellion, against the rubbish I discovered that I was being fed about my treatment options. â€? Jo Spence, 1982-86
â€œ [...] I no longer have to push myself to do anything, to prove anything. I can just sit on the bed and be. â€œ Moyra Davey, 2007
“ [...] The stigma associated with MS far outweighs any benefit that comes from awareness [...] I always get the ohhhh you poor thing look once anyone finds out that I have MS, and quite frankly, I’m not interested in their pity. ” Jazz1982, 2014
Reading list Conrad, P., (1992) Medicalization and Social Control. Annual Review of Sociology. Davey, M., (1993) Notes on Photography and Accident. Transart. Goffman, E., (1976) Stigma. 4th ed. England: Penguin Books Hevey, D., (1992) The Creatures Time Forgot: Photography and Disability Imagery. London: Routledge Spence, J., (1986) Putting myself in the picture: A Political Personal and Photographic Autobiography. UK: Camden Press LTD. Vick. A., (2013) The embodied experience of episodic disability among women with multiple Sclerosis. Disability & Society. Watson. N., (2010) Well, I Know this is Going to Sound Very Strange to You, but I Don’t See Myself as a Disabled Person: Identity and disability. Disability & Society Wood. L., (2012) Media Representation of Disabled People The Role of Charities in the Continuing Oppression of the Disabled Community. Disability Planet Jazz1982 (2014) “Post-MS, I’m one of the strongest people I know” – PatientsLikeMe MS member Jazz1982 opens up about her experiences with MS. Patients Like Me.
Published on May 26, 2014
In 2012, I received a diagnosis of remitting-relapsing Multiple Sclerosis (MS), a turning point in my life. The unpredictability of the dise...