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“ This peculiar disjuncture in my knowledge of the physical world caused such total crisis in my thinking and activity that it is only now, some six months later, that I am beginning to realize what has happened to me. � Jo Spence, 1982-86


“ Dipping into the archive is always an interesting, if sometimes unsettling, proposition. It often begins with anxiety, with the fear that the thing you want won’t surface. But ultimately the process is a little like tapping into the unconscious, and can bring with it the ambivalent gratification of rediscovering forgotten selves. � Moyra Davey, 2007


“ [...] In the shadows of my fears came also a rebellion, against the rubbish I discovered that I was being fed about my treatment options. � Jo Spence, 1982-86


“ [...] I no longer have to push myself to do anything, to prove anything. I can just sit on the bed and be. “ Moyra Davey, 2007


“ [...] The stigma associated with MS far outweighs any benefit that comes from awareness [...] I always get the ohhhh you poor thing look once anyone finds out that I have MS, and quite frankly, I’m not interested in their pity. ” Jazz1982, 2014


Reading list Conrad, P., (1992) Medicalization and Social Control. Annual Review of Sociology. Davey, M., (1993) Notes on Photography and Accident. Transart. Goffman, E., (1976) Stigma. 4th ed. England: Penguin Books Hevey, D., (1992) The Creatures Time Forgot: Photography and Disability Imagery. London: Routledge Spence, J., (1986) Putting myself in the picture: A Political Personal and Photographic Autobiography. UK: Camden Press LTD. Vick. A., (2013) The embodied experience of episodic disability among women with multiple Sclerosis. Disability & Society. Watson. N., (2010) Well, I Know this is Going to Sound Very Strange to You, but I Don’t See Myself as a Disabled Person: Identity and disability. Disability & Society Wood. L., (2012) Media Representation of Disabled People The Role of Charities in the Continuing Oppression of the Disabled Community. Disability Planet Jazz1982 (2014) “Post-MS, I’m one of the strongest people I know” – PatientsLikeMe MS member Jazz1982 opens up about her experiences with MS. Patients Like Me.


The Journal of a Disappointed Woman  

In 2012, I received a diagnosis of remitting-relapsing Multiple Sclerosis (MS), a turning point in my life. The unpredictability of the dise...

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