Page 1

Lymphoedema Services pages 6&7 A valuable service offered to our patients

Lottery News pages 8&9 Find out the latest news from our Lottery team

Family Fun Days page 12 Various family fun days taking place this summer

Reflections page 16

Remember a loved one on this peaceful river cruise

Registered Charity No. 1113140

Spring/Summer Newsletter 2013



Care Quality Commission

A warm welcome to our Spring/ Summer Newsletter Let’s hope the fine Easter weather continues and we can all warm up after a long cold winter! We have had a positive year continuing to provide high standards of care to both our patients and their families and we look forward to the challenges ahead. We are constantly reviewing the quality and standards of our care at both of our hospices to ensure the care and service we provide is second to none. In these difficult economic times raising funds is not easy and I am extremely grateful to all of you who continue to support us in any way that you can, without your generosity and kindness, we wouldn’t be Our New Website able to do what we do. Our new look website was launched in March With very best wishes Paul Brinsley Chief Executive of Cornwall Hospice Care

this year. The new site is much more user friendly and has facilities allowing supporters to contact us, donate directly to us and register for events online. Check it out:

Mount Edgcumbe Hospice Porthpean Road, St Austell, Cornwall, PL26 6AB T 01726 65711 F 01726 874517 E St Julia’s Hospice Foundry Hill, Hayle, Cornwall, TR27 4HW T 01736 759070 F 01736 759567 E Income Generation & Distribution Centre Daniels Lane, Holmbush, St Austell, Cornwall, PL25 3HS T 01726 66868 F 01726 63261 E

Following recent care quality commission inspections within both hospices, the inspectors gave us excellent verbal feedback but we await official reports.

St Julia’s Hospice The staff at St Julia’s are looking forward to welcoming new full time and bank nurses to the team. Following the refurbishment the extra staff will enable the hospice to finally operate with all 10 beds open, plus 2 crossover beds.

Donate your time We rely heavily on volunteers to help us continue providing our services. Our volunteers help in different areas across the charity; working on the wards, in one of our 27 charity shops, at our warehouse, office administration and at our fundraising events. We are always looking for new volunteers to join our dedicated team, if you want to help please get in touch for more details. We currently have volunteer vacancies in our shops, our two hospices and our Income Generation department.

To find out more about volunteering for Cornwall Hospice Care contact Becky Rust on 01726 65711 Becky.Rust@Hospice.Cornwall.NHS.UK


4 Make a Will and help raise vital funds Thank you to the solicitors of Cornwall for supporting Make A Will Week and helping raise funds for hospice care.

A lasting donation in memory of Margaret Brewer Mount Edgcumbe Hospice was delighted to receive two new riser recliner chairs last year. The chairs were kindly donated in memory of Margaret Brewer who was cared for by the hospice in August 2011. Margaret’s family wanted to put monies raised in her memory to good use and also say thank you to everyone at Cornwall Hospice Care. The chairs were immediately put into use to benefit the patients. The Brewer family originally planned to cover the cost of one chair, but through Knitting Corner

If you are reading this, it may well be that you have yet to make a Will or you wish to make some changes to your existing Will. The Cornwall Hospice Care Make A Will Week, which runs from 20th – 24th May this year, could provide the perfect opportunity to make sure that everything is in order. Solicitors from all over Cornwall are offering their time to our charity, free of charge, to write standard

Pictured above Margaret Brewer and one of the donated chairs

the generosity of Ryan Long, Managing Director of Furniture World, and Celebrity Chairs of Derbyshire (who sourced and supplied the chairs) the donation was able to cover the cost of two chairs.

donations of wool are also appreciated. We are indebted to our grand band of knitters and Please feel free to come and browse the knitting crocheters who keep us permanently supplied with bar in the foyer of Mount colourful well-made goods Edgcumbe Hospice. for our walk-in knitting bar. Did you know we sell matinee jackets and first year baby garments, blankets, scarves and mitts (in season), tea cosies and some knitted toys? Do you have any good wool patterns or even spare time? All new knitters very welcome and

Farewell to Hazel Longstanding staff member and volunteer Hazel Rowe retired in February 2013 from her role as Lottery Admin Assistant. Before joining the Lottery team Hazel worked as an Auxillary Nurse at Mount Edgcumbe Hospice and also volunteered for the fundraising department. She will be missed in the office, but Hazel has vowed to continue volunteering for us.

Wills - or update existing Wills. Instead of being paid the usual fee, the participating solicitors are asking for a donation for Cornwall Hospice Care. For Wills made during Make a Will Week, suggested donations are £75 for a single Will, £110 for a pair of husband and wife ‘Mirror’ Wills and £40 for a Codicil to update an existing Will. Your donation can be whatever you can afford or wish to give.

Contact us for a list of participating solicitors, or for more information on leaving a gift in your Will 01726 66868 A legacy gift for St Julia’s Hospice Rhona Ewing, Director of Clinical Services, accepting a cheque for £71,122.50; a gift left to St Julia’s Hospice in the Will of the late Mrs Olga Robinson from Crowlas, near Penzance. The cheque was handed over by Mrs Tompkins, who had known Mrs Robinson for more than 25 years and knew of her support for the hospice. Mrs Tompkins said “My dear friend had said how much she wished to support St Julia’s as a much-needed local charity and I always

knew that she planned to do this with a gift left in her Will. She knew how important the work of the hospice is to our local community and how the majority of funds needed to

run the hospices have to be raised by the charity. She would be so pleased to know what a difference her gift is going to make to the people of this part of Cornwall.”


Our resident Lymphoedema specialist Barbara Langford retired at the end of March after working for Cornwall Hospice Care for 19 years. Barbara started at Mount Edgcumbe Hospice in 1994 as a Staff Nurse in the inpatient unit. When the then CEO, Alastair Adams, joined the charity in 1996 from Bristol Hospice, he wanted a Lymphoedema clinic opened. As Barbara had completed Lymphoedema training in 1995 at the Royal Marsden Hospital she was tasked with setting up the service.

What is Lymphoedema? The medical term for a swelling is ‘oedema’ and lymph indicates that it is the lymphatic system that is working more slowly. This causes fluid build up and lymphoedema occurs. Although it is impossible to cure lymphoedema, treatment aims to prevent future oedema forming and speed up the drainage of fluid from the tissues.

‘Over 2,500 patients have benefited from the Cornwall Hospice Care Lymphoedema service’ In 1998 Barbara set up the service at St Michael’s Hospital in Hayle, before it transferred to St Julia’s Hospice after it opened in 1999. Patient numbers continued to expand to approx 300 over the two sites, with Barbara running clinics on both sites weekly. ‘During my time over 2,500 patients have benefited from the Cornwall Hospice Care Lymphoedema service.’ In 2012 this workload generated over 2,000 clinical appointments.

Karen Shaw, Barbara Langford & Helen Treleaven

Our Lymphoedema team will shortly be receiving a new Lymph Assist Machine thanks to the fundraising efforts of Karen Shaw. Karen, who is currentl y receiving Lymphoedema treatment at Mount Edgcumbe Hospice, set out to raise the £3000 needed for the new machine as a way of saying thank you for the treatment she has received and to enable more patients to benefit from the treatment. In the space of a couple of months she not only reached her target but exceeded it by over £1000. The extra money will be spent on the continued training of two Lymphoedema nurses, Helen Treleaven & Terri Lightfoo t, who have succeeded Barbara Langford who retired in March.

‘We enjoy a close working relationship with Royal Cornwall Hospital’s Consultant Surgeons and Oncologists’ Barbara said. In 2000 Barbara was invited to Taiwan to introduce lymphoedema therapy to their five hospices. In 2001 she presented a lymphoedema paper at Japan’s first International Cancer Nursing Conference in Tokyo. Barbara has served as South West regional representative for the British Lymphology Society (BLS), presented at BLS national conferences and played an active role in the South West region. In September 2010 when Barabra announced she would be retiring this year succession planning commenced. Helen Treleaven at Mount Edgcumbe Hospice and Terri Lightfoot at St Julia’s Hospice, who were both Staff Nurses on the in-patient units, joined the team as Lymphoedema Development Nurses. They embarked on Glasgow University’s Graduate Diploma in Specialist Lymphoedema Management, which they will complete in April 2013. ‘It has been very satisfying mentoring Helen and Terri and watching them progress to Clinical Nurse Specialist level. They are now looking forward to continuing to provide Gold Standard care, and embrace

The Trustees, management, staff and volunteers wish Barbara a wonderful retirement and praised her professionalism, selflessness in her pursuit of best practice leading in Lymphoedema service development and leaving a legacy for the future of an excellent service which will be continued by Helen and Terri. Patients have sent in many letters of thanks and Barbara will continue to mentor the new Clinical Nurse Specialists during their first year of running the clinics within Mount Edgcumbe Hospice & St. Julia's Hospice.


When asked about her time with us, Barbara said: ‘Managing the Lymphoedema Service has been enormously satisfying as we are rehabilitating people to live as independently as possible with their lymphoedema on a daily basis. I have always regarded the role as one of the best in the nursing profession. I remember saying that to Dr Deborah Stevens once, who promptly told me "You must be in the right job then!" Over the past two and a half years it has been very rewarding to mentor Helen and Terri through their Graduate Diploma to achieve their Clinical Nurse Specialist status’ developments as they occur.’ ‘We are indebted to the James Tudor Foundation and Mrs Karen Shaw for their generous contributions towards Helen and Terri’s training costs, which has involved numerous trips to Glasgow for the taught element of the programme. You may ask why Glasgow? It is the only university running a degree level course at this time!’ said Barbara.

Barbara Langford & Terri Lightfoot



Getting Married? Stuck for Favour ideas? Why not give a gift that cares, with our beautiful Lottery Wedding Favours!

Why not join today or spread the word and sign up a friend to take part in our weekly draw. Membership Application Form Please complete your application in BLOCK CAPITALS where applicable. Please select your preferred method of payment. you must be a resident of great britain Please tick box Payment by Credit/Debit Card: and be 16 years of age or over to play. Please phone the office on 01726 66868 1. New Member’s Details: Delete as appropriate

Name (Mr/Mrs/Miss/Ms): __________________________________ Surname: _________________________________________________ Address: __________________________________________________ __________________________________________________________

Please tick box

Payment by Cheque: Please make cheques payable to: Cornwall Hospice Care Lottery Ltd

For just £1 each you can give your guests an opportunity to win our £1,000 weekly jackpot, plus a rollover prize which could be as much as £10,000* & be supporting Cornwall Hospice Care in the process. *Rollover Prize £200 - £10,000

Mrs Irene Edgar our £3,200 Rollover winner from our weekly draw of Friday 14th December 2012.

Postcode: __________________________________________________ Tel No: ____________________________________________________ Email: ____________________________________________________ I can confirm that I am over 16 years of age and a British resident. Signature: _______________________ Date: ___________________ 2. YES I want to play: Please complete and tick the appropriate boxes. 1 entry per wk

2 entries per wk





£13 (13 wks)

£26 (13 wks)

Half Yearly

£26 (26 wks)

£52 (26 wks)




Please tick box

Payment by Direct Debit: Please complete the Direct Debit form below. Direct Debit is our preferred method of payment as it keeps our administration costs to a minimum.

Irene joined in 2006 and said “I thought I was lucky to win £5 in 2010. It was a good job I was sitting down when I got the telephone call with the news of this win – it’s absolutely wonderful.”

Please tick box

Total £

Payment by Cash: A £5 every 5 weeks collection service is available in certain areas. Call the office to enquire if we visit your area.

Contact the Lottery Office on 01726 66868 for further details about our Lottery products, or visit our website

3. Send us your application: Please complete this application and return to us in the freepost envelope provided.

Instruction to your bank or Building Society to pay by Direct Debit Please fill in the whole form using a ball point pen and send to: Cornwall Hospice Care Lottery Ltd, Porthpean Road, St Austell, PL26 6AB Name and full postal address of your bank or building society To: The Manager

Bank/building society

Service user number







Reference Address

Postcode Name(s) of account holder(s)

Instruction to your bank or building society Please pay Cornwall Hospice Care Lottery Ltd Direct Debits from the account detailed in this Instruction subject to the safeguards assured by the Direct Debit Guarantee. I understand that this Instruction may remain with Cornwall Hospice Care Lottery Ltd and, if so, details will be passed electronically to my bank/building society.

Bank/building society account number Signature(s) Branch sort code

Last year over £56,000 was raised in our Christmas and Summer Bumper Draws. As a supporter of Cornwall Hospice Care, we would like to thank you sincerely for your continued support. Your participation helps us to provide care and support each year for almost 1,000 patients, their carers and families at a time when they need us most. We really appreciate your generosity and have enclosed a book of 12 tickets for our



Good Luck - we hope win asocieties prize may butnotifaccept youDirect don’t knowforyour Banksyou and building Debityou Instructions some local types ofhospice account. wins every time.....

Super Summer Draw 2013 giving you not only 12 chances of the £2,000 jackpot but you will also be helping Cornwall Hospice Care. This year the draw will take place on Wednesday 17th July. If you do not wish to participate simply return the tickets in the freepost envelope provided. Please let us know if you would like extra tickets.

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New Goods We have a wide range of new spring and summer gifts and homewares available in most of our charity shops and hospice concourses. We are always getting new stock in so be sure to keep an eye out for some fresh gift ideas. COMING SOON - You will soon be able to buy selected new goods and products online via our website.

Up-Cycling In the future we hope to be able to run courses giving people the chance to try their hand at renovating, adding value to items that would otherwise be disposed of. Watch this space for more information! Our Falmouth shop recently received a donated book which was sent to a friend from none other than Daphne Du Maurier, with a private letter signed by the author. It was taken to the Antiques Roadshow at the Maritime museum and was valued at £150!

volunteer at the shop, has taken over as manager in After 12 years of support Jan’s place. Bev previously for Cornwall Hospice Care, worked for Harbour Lights Jan Denmead has Fish and chip shop as an retired from our Boslowick administrator and Barnados shop. We are sad to have Charity shop as a Manager. lost Jan and wish her a Another change in our happy retirement. Retail team sees Russell Beverly Curgenven, Stewart taking the role Shop Face Lifts a member of the local of manager at our Some of our shops have community and a former Falmouth shop. undergone ‘face lifts’ over the past few months to keep them up to date and Once again Dick Twinney has customer friendly. kindly donated an image for our Shop Changes

2013 Christmas card range entitled Winter Song – Cornish Robin & Celtic Cross, which is the eighth robin image Dick has donated as a fundraising Christmas card. Our thanks go to Dick for his continued support. More of Dick’s work can be seen at:

So far St Blazey & Holmbush have been re-vamped, with Newquay next in line.

Shopping on Facebook We have recently started a Facebook page dedicated to our retail department featuring new goods, latest ranges, shop window & instore displays along with product promotions. St Ives shop sold out (twice) of the “Mothers Day” cake stands as a result. We also feature and link the occasional item on eBay or

Abebooks that might catch somebody’s interest. Hopefully as the site grows more shops will be featured showing not just what a great range of products we sell, but also how much fun it is to volunteer for Cornwall Hospice Care.

Check out our Facebook shopping page

The Banger Rally Challenge: Organised by St Austell and District Round Table, this Paddle For Life: The annual sponsored challenge has taken Paddle For Life, organised by participants all over Europe the Joe Way Appeal, will be since 2011. This September held at Newquay Harbour th Contact Tamsyn for more details the rally is going from Cornwall on 6 June 2013. It costs just on either of these events to Rome so put your pedal to £10 per person and you can 01726 66868 the metal and take part in this enter individually or as a team. wacky races style challenge. Get Involved!


12 For more information on our Family Fun Days contact the fundraising office. 01726 66868

Some of our existing groups are looking for new members and we have areas where we would like to form new support groups. It’s a great way to meet new people as well as helping raise much needed funds.

Fundraising Groups help in various ways; everything from supermarket collections to arranging events in their local Community.

Contact Angela for more information about our Fundraising Groups 01736 755770

Sunday 30th June, 10am - 10.30pm

Cornwall Hospice Care presents ‘The Grand Day Out’, at the Royal Cornwall Showground, Wadebridge. Come and join our great family fundraising fun day which will include a Cornish craft & local produce fair, live entertainment from local groups, car boot, fun dog show and agility displays, car show, children’s activity area including funfair rides, licensed bar and the Back to School Sports day team challenge.

In the evening join us for the Big Barn Dance, complete with Hog Roast, music and dancing all night long. With something for all the family to enjoy and fantastic value group entry tickets available, it's going to be a Grand Day Out!

Sunday 26th May, 10am - 5.30pm

Come and join us at our fun-packed family fun day at the Cornish Mining World Heritage Site Poldark Mine. There will be lots of activities for children and adults alike, including circus bungee trampolines, traditional rides, bouncy castle, magic show with Harry Kazam, balloon modelling,

face painting, circus skills workshops, children’s trail, craft activities and much more. There will also be a BBQ, licensed bar, live music and entertainment throughout the day plus the regular Poldark Mine activities of gold panning, searching for gemstones and guided mine tours. Something for all the family to enjoy! Adults - £3, Children £1 (includes kids quiz trail)

Sunday 4th August, 11am - 5pm

A family day out in the beautiful Mount Edgcumbe Country Park, near Torpoint. American and Classic cars to see, a chance to view the stunning house and gardens, more than 150 stalls, a car boot fair, refreshments, a licensed bar and live music, there really is something for everyone! Entrance is free and visitors can arrive by Cremyll foot ferry from Plymouth. Car parking is £5.

Trek Sahara

Trek Kilimanjaro

Trek China

Marvel at the wonders of the Sahara, help in a local project and create memories that will last a lifetime.

Trek to the top of Africa’s tallest peak Mount Kilimanjaro. Taking the Rongai Route to the summit at 5,895m where you will enjoy incredible views across the plains of Africa.

Join us for this truly unforgettable experience as you trek for charity along the Great Wall of China, one of the world’s true wonders.

19th - 26th October 2013

18th - 28th September 2014

4th - 12th October 2014

Contact Amy to find out more about any of our challenges 01726 66868

Take the plunge 14th September 2013

Jump from 10,000ft on your tandem skydive and feel the incredible adrenalin rush whilst enjoying unique views across Cornwall. Jumps take place at Perranporth Airfield. Contact Amy for details.


The Hayle Walk


Sunday 15th September

Here’s just some of what we have coming up in 2013. 20th - 24th May - Make a Will Week 26th May - Poldark Family Fun Day 7th - 10th June - London to Paris Cycle 9th June - Reflections 16th June - Caerhays Summer Fete 30th June - The Grand Day Out

Contact the fundraising team to find out more about our upcoming events 01726 66868

4th August - Mount Edgcumbe Country Park Classic Car Show & Fayre 14th September - Charity Parachute Day 15th September - Hayle Walk 19th - 26th October - Trek Sahara 2nd November - Fly by Night Zip Wire Nov & December - Light Up a Life December, Various Dates - Santa Fun Runs 18th - 28th September 2014 - Trek Kilimanjaro 4th - 12th October 2014 - Trek China

Has your boss committed crimes against the office? Have you ever wished you could lock them up and throw away the key ? Well now's your chance with our exciting new corporate fundraiser 'Lock up Your Boss'. In Autumn 2013 we will be travelling the county, arresting bosses for all their wrong doings, and not releasing them until their bail is raised, all in aid of Cornwall Hospice Care!

Organised by Cornwall Hospice Care and supported by the Mayor and Hayle Town Council, the Hayle Walk takes place on Sunday 15th September and is open to everyone, including their dogs. Walkers can choose between a five mile walk, which includes some coastal footpath and inclines, or a two mile walk which includes the King George V Memorial Walk and is suitable for all ages and abilities – including mobility scooters.

Contact the fundraising team to find out more 01726 66868

Without your support we could not provide our services - Thank You, we are truly grateful for you continued support, below are just a few stories.

Taking place throughout the spring, summer and autumn of 2013, this year Open Gardens has around 30 uniquely different gardens across Cornwall, varying in size and design, opening their gates to the public. Details on gardens are listed in our Open Gardens brochure, available free of charge at most garden centres and tourist information centres, as well as at all Cornwall Hospice Care shops. A list of Open Garden dates can also be viewed on our ‘What’s On’ page of our website. We really hope that you will enjoy visiting the gardens and will be inspired to visit as many as possible. Each visit will be helping to keep the work of Cornwall Hospice Care going.

Celebrate great baking and do some selfraising this summer by hosting a Great Cornish Cake Bake. You could serve traditional Cornish Cream Tea, have a bake sale or a tea party to raise some dough. If you decide to host a Cake Bake we’ll send you a fundraising pack, full of all the information you need to make your event a success and some inspiring recipes that will leave everyone wanting an extra helping! So, get out your apron, start buttering up your friends to make some tasty treats and plan your cake bake now!

Contact the fundraising team to find out more 01726 66868

raised ilyn Bosisto Bob & Mar 2012 through in 0 0 ,0 £20 ntinue ctions and co household au ise for us! to fundra

St Austell K9 Walking Group have raised over £1,000 with help from their four-legged friends!

es is Jenny Osborne from St Agn doing the double in 2013 and athon taking part in the London Mar llenge & London to Paris Cycle Cha

A group of 12 successfully made it to Everest Base Camp and have so far raised more than £59,000!

David & Jan Penprase raised £24,857 in just 3 weeks throu gh the sale of their book Harbour 2 Harbour

with Bodmin Lions raised £2,000 ction their annual Santa Sleigh colle



When someone you love becomes a memory, the memory becomes a treasure...

This event gives people the chance to spend an hour on a peaceful cruise along the River Fal to remember a loved one by scattering petals from the boat as a symbol of remembrance, and to relive and cherish the many happy memories of their lives.

Reflection Petals The name of each person being remembered will be attached to a bag containing petals to scatter. If you are joining us on the Reflections Trip, you will receive your petals when you board the ferry. Alternatively the petals will be sent to you in the post.

Reflections Trip The Reflections Trip will take place on the evening of Sunday 9th June on board a ferry supplied by Cornwall Ferries Ltd and will depart from the Prince of Wales Pier in Falmouth. The trip will last for approximately 45 minutes, along the River Fal, where there will be an opportunity to scatter petals into the water. There are limited spaces available on the trip. If there is a high demand there will be three trips on the evening with the first starting at 5pm. Once we have received completed forms we will send confirmation to you with the departure time of your Reflections Trip and the details that will be on the bag of petals.

2013 summer newsletter