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Your CLIC Sargent

Spring 2010

CLIC Sargent is Tesco Charity of the Year 2010!

Bridging the gap How CLIC Sargent Nurses help children spend more time at home and less time in hospital  Page 6

New home to open in London The importance of an up-to-date Will


2 Your CLIC Sargent | Spring 10

Welcome to Your CLIC Sargent What an exciting start it’s been to 2010. We are pleased to announce that CLIC Sargent is Tesco Charity of the Year 2010. So you will see CLIC Sargent featured in stores across the UK – read more later in this newsletter. Watch out for over 600 people running for CLIC Sargent at the Virgin London Marathon on 25th April, where we are the official charity partner. You’ll read about how important your everyday support is too – from raising money in your own community to taking part in an

event. Every penny does count… and there are new events listed on the back cover, which we hope you’ll be able to join this year. Or maybe you’ve got some great fundraising ideas of your own! Your ongoing support will underpin our work for children and young people with cancer and their families in 2010. And you can see just how much it means in this newsletter. Thank you so much for helping our vital work continue.

Fundraising group news Leven Boxing Day Dip The second Leven Boxing Day Dip took place on the Promenade Beach on 26 December 2009, raising a remarkable £8,000. As usual, the swimmers sported a colourful array of outfits; Santas were particularly popular this year. Many thanks to everybody, including the safety support staff: Bill, Liam and Kirsty Mason, and Murray Selton.

Colourful Boxing Day Dippers

Euan Macrae Memorial Bike Challenge A crocodile, a giant hedgehog and bears lurking in the trees, as well as wigwams, bows and arrows, were the unusual backdrop to the second Euan Macrae Memorial Bike Challenge, on 12 September 2009 in Tain Woods, Ross-shire. Around 150 adults and children, more than twice the number that took part in 2008, had an energetic and fascinating time and were treated to a tasty Forestry Commission barbeque. The event was a huge success and raised over £3,000.

Bikers at the ready in Tain Woods


Spring 10 | Your CLIC Sargent 3

CLIC Sargent is Tesco Charity of the Year 2010! We are delighted to announce that CLIC Sargent is Tesco Charity of the Year 2010. This partnership aims to raise £5 million to help fund children’s specialist cancer nurses across the UK, so that children with cancer can spend more time at home. Throughout the year, you’ll see our posters around Tesco stores – and keep a look out for special product promotions donating a proportion of sales to CLIC Sargent – it’s a great way to support us while shopping for special Tesco greetings cards, Tesco in-car air fresheners, Orla Kiely bags for life and Canterbury Jack beer. Tesco Bank will also make a donation every time someone uses a cash machine at Tesco. And on 10 and 11 December there will be a collection for CLIC Sargent outside every Tesco store. We need you to help us raise £200,000 by taking part in these national bucket collection days at your local store. To get involved or find out more visit www.clicsargent-tesco.org.uk or call CLIC Sargent’s Tesco hotline on 08701 221 221.

Updated look for CLIC Sargent You may have noticed that this is one of the first items printed with our updated brand. Why the change? It’s to make it easier for our service users and supporters to see who we are, and what we do. This work was done in-house at CLIC Sargent, involving children and young people.

Virgin London Marathon Watch out for CLIC Sargent at the Virgin London Marathon on 25th April. We’ve over 600 runners, including some famous celebrity faces! Running for CLIC Sargent will be TV’s Lorraine Kelly and Jessie Wallace and Formula 1’s Eddie Jordan.


4 Your CLIC Sargent | Spring 10

New home to open in London Our ninth Home from Home – Paul’s House – will open later this year. With 15 family rooms, four lounges and three kitchens, it’s our biggest home yet. It’s welcome news for families who have a child being treated at the nearby University College Hospital. Over 65% live more than one hour away, so parents and siblings are making long journeys or staying in B&Bs simply to be together at this difficult time. Having Paul’s House, somewhere to stay close by for free, will make a huge

difference. Keep up to date at www.clicsargent.org.uk/paulshouse

“I can’t imagine how we’d have coped without Billy’s House” Since opening to families in July, Billy’s House in Nottingham has accommodated 35 families who have a child being treated at the nearby Queen’s Medical Centre.

New storybooks – out now Many children with cancer feel less afraid if they understand their illness and treatment. And the same is true for their sisters, brothers and friends. As Lymphoma is the third main type of cancer in children, we have expanded our series of popular storybooks with Tom has Lymphoma. We’ve also recorded audio-books of Lucy has a Tumour and Mary has a Brain Tumour, read by CLIC Sargent patron and actor Duncan

Pow. Duncan says “I’m delighted to be involved in such a worthwhile project – these will enable more children to understand these types of cancer; teachers can play them in a school assembly for example.” See more at www.clicsargent.org.uk/ publicationsandresources

Olivia update Remember Olivia, the little girl we featured in last year’s newsletter? At the time we went to print Olivia’s family had been told that she wouldn’t recover. A year later Olivia is doing remarkably well. She is back at school and enjoys riding the bike she got for Christmas. Mum Karen says, “It’s a joy to see her riding about on it – things were very different this time last year.”


Spring 10 | Your CLIC Sargent 5

Gift Aid in shops – £100,000 boost In 2009 we introduced EPOS (Electronic Point of Sale) tills in all CLIC Sargent shops so we could process Gift Aid and reclaim tax when we sold goods that had been donated. Gift Aid is a government scheme which helps charities boost the value of donations by 28%. Now that we can earn this on donations of clothes and bric-a-brac that you bring into our charity shops, we could raise as much as an extra £100,000 every year for our work for children with cancer. To help us, you simply sign up as a Gift Aid donor when you bring donations to any of our shops. That’s it! A good-quality large bag of donated items can raise £30. However, if this income was Gift Aided we could benefit from an extra £8.46 in reclaimed tax. For more information please visit www.clicsargent.org.uk/ Getinvolved/Shopwithus/GiftAid or call 0117 311 2610.

Shop online – it’s easy

Visit our eBay shop

The CLIC Sargent online shop has something for everyone. It’s home to a wonderful range of products, including cards, stationery, jewellery, toys, and home and garden items. 100% of the profit helps children with cancer and their families. For more information visit www.clicsargent.org.uk/onlineshop

Check out CLIC Sargent’s awardwinning eBay shop. There are always great items at bargain prices, plenty of ‘buy it now’ prices and auctions to bid on. For more information visit: http://stores.shop.ebay.co.uk/ CLIC-Sargent-Shop


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Helping children spend more time at home and less time in hospital Thanks to our new partner Tesco We know that children with cancer want to be at home as much as possible, doing normal things like going to school and spending time with their family and friends. In March, CLIC Sargent launched a fantastic new partnership with Tesco that aims to raise £5 million and help make this happen. The money raised will help fund CLIC Sargent children’s specialist cancer nurses across the UK. Cancer treatment can last for years – these nurses will help children spend more time at home by co-ordinating all the care they need when they get there.

Liz Leigh is a CLIC Sargent Nurse in Oxford. She says, “My role is to bridge the gap between hospital and home. “When families leave the safety net of the hospital it can be a struggle. They need to remember a huge amount of information about their child’s care and it can be emotionally hard.” “But getting home is so positive and I am there to provide emotional support as well as co-ordinating all the specialist care children need when they get there.” Liz supports 13-year-old Sophia and her family, who is having treatment for bone cancer. Sophia sees Liz as one of the family – someone to talk to about chemotherapy, school or anything that is on her mind. She says, “The best bit about being at home is being able to go to school again and catch up with all my friends.” But not every family has the benefit of someone like Liz to help them cope and make sure they get the right support. The money raised by the Tesco partnership will make going home possible for more children with the support of CLIC Sargent children’s specialist cancer nurses. You can get involved through a range of product promotions in Tesco stores which will be donating a proportion of their sales to the charity. You can also take part in bucket

Sophia, age 13


Spring 10 | Your CLIC Sargent 7

collection days and fundraising weeks across the UK (see page 3).

For more information about promotions and events visit www.clicsargent-tesco.org.uk or call the Tesco hotline on 08701 221 221.

Liz, Sophia’s nurse

“It would be wonderful if everybody could have a CLIC Sargent Nurse like Liz.” Sophia’s dad Graham

£5

Means a specialist nurse could spend time with the family of a child with cancer, and explain a simple medical procedure to them.

£50

Means a specialist nurse could coordinate home help for a family whose child is having treatment, arranging for someone to do the shopping or take their other children to school.

£100

We could arrange a visit by a specialist nurse to a child’s school, or their brownies or sports club, to talk to their teachers and friends about what’s happening and how they could help.

£10,000 Means we could help 200 parents to liaise with their employers to ensure their employers understand what is happening and are aware of the parents’ rights to time off work and flexible working hours.

£100,000 1,000 children with cancer could be visited at home by a specialist nurse. This would help their family to feel less isolated and make sure they have everything they need.


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More Than My Illness CLIC Sargent will shortly publish a follow-up to last year’s More Than My Illness report. It focuses on the challenges of ensuring effective community-based services and support for young people aged 16-24 with cancer. Once the report is published, CLIC Sargent will use the key recommendations in ongoing campaigning work. In the words of cancer survivor Adam Matthews:

“My CLIC Sargent youth development worker was there for me from diagnosis and helped me get moving and stay positive. It’s really important to receive this kind of support so you can get back to your normal life once treatment finishes. Hopefully this report will help more people receive the kind of support I did.”

Working for cancer survivors The National Cancer Survivorship Initiative (NCSI) was set up to consider a range of approaches to survivor care. CLIC Sargent is playing a leading role in the Children and Young People’s Workstream and is:

carrying out a study on The Impact of Cancer on a Child’s World

one of ten ‘test communities’ funded by the Department of Health to explore new approaches to care for children and young people living with and beyond cancer

leading a review into how current policy meets the needs of young cancer survivors and where the gaps are.

Survivorship is a significant issue for young people living with and beyond cancer. CLIC Sargent is committed to understanding the long-term adverse effects of cancer. And we want to campaign for changes that will reduce, and where possible eliminate, the physical, emotional and social impact of cancer on children’s lives.


Spring 10 | Your CLIC Sargent 9

A huge thank you to our Especially For You Funds supporters who together have raised over £500,000!

Bea’s Story Hi, I’m Bea, aged 12. Me and my family have raised money for CLIC Sargent since January 2009 when I was diagnosed with leukaemia. We’ve done a head shave, my neighbour organised a cake sale, and my grannie sells homemade chutneys. We’ve also had donations; we recently got £250 from my step dad’s friend.

For more information about Especially For You Funds, call Bridget on 0845 121 2491, email bridget.matthews@clicsargent.org.uk or visit www.clicsargent.org.uk/ especiallyforyou

All the money, over £8,500 now, goes to my Especially For You fund. My website is named Bea’s Fund. It feels really nice to watch the money grow because CLIC Sargent have done so much for me and my family. On 2nd July, my Mum and Step Dad are organising a Charity Golf Day at Okehampton Golf Club, where all profits will go to my fund at CLIC Sargent too.

The importance of an up-to-date Will In January 2010 we ran our first ever Will Awareness Month, promoting the importance of an up-to-date Will. A large number of people supported us, including TV presenter Gaby Roslin, who made a short video for our website. An up-to-date Will is important because it’s the only way to make your wishes crystal clear. We understand that your family, friends and loved ones will come first but we hope you can remember CLIC Sargent in some way too. One in six of the children we support is funded by gifts in Wills. Such a gift costs you nothing now, but could make a huge difference to children’s lives in the future. You can find out more by calling Kate Johnston on 0845 125 2625, emailing legacies@clicsargent.org.uk or visiting www.clicsargent.org.uk/legacies


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Get involved Take part in a run or challenge! This is the year to do something amazing: to push boundaries, achieve goals and make a difference by taking part in a CLIC Sargent challenge. Choose from treks, runs, cycles, motorbike rides and more! “I took part in my first CLIC Sargent challenge in 2003 and have been signing up each year since! You just can’t

describe how amazing and unforgettable an experience it is and the pride you feel at what you’ve achieved. Everyone should take part in a CLIC Sargent challenge at least once in their lives.” “There’s great camaraderie within the CLIC Sargent Team. Once you sign up you get fundraising help and support as well as training tips.” For more information please visit www.clicsargent.org.uk/getinvolved or call 0845 124 1188 for challenges or 0845 602 4770 for running events

Kick

uly May - J 2010

r with Cance for Children

Let’s

activget heal e

and

A national football event where children of all ages and abilities raise money for CLIC Sargent. Calling all Schools, football clubs and groups! Free footballs* and fundraising materials Your school or club can choose to keep 25% of the money you raise (75% to children with cancer) Help us reach our goal – to raise £150,000 for children with cancer * while stocks last

Register now at www.clicsargent.org.uk/football or call 08451 20 22 32

thy!


Spring 10 | Your CLIC Sargent 11

More stories from your region Glasgow Hospitals Carol Concert The Glasgow Hospitals Carol Concert, headlined by Welsh clarinettist Emma Johnson, supported by Glasgow Academy Junior Choir, had a record-breaking 2009, selling 2,300 tickets and raising £38,000 on the night. Over the last 30 years, the concert has raised well over £1million for CLIC Sargent in Scotland. Sponsorship opportunities are available now for this year’s concert on 3 December and tickets will be on sale in the autumn at the Royal Concert Hall.

Ladies’ Night at Ayr Racecourse 400 ladies enjoyed another successful glitzy Ladies’ Night at the Princess Royal Suite, Ayr Racecourse, raising over £25,000.

Bonfire Night Firewalk Brave fundraisers from Aberdeen put their best feet forward and walked across hot coals to raise funds for CLIC Sargent on Bonfire Night. The event was organised as part of Aberdeen City Council’s annual fireworks display.

Kick for Children with Cancer PE pupils at Beath High School in Cowdenbeath organised a girls’ football tournament, supported by SFA coaches, as part of KICK for Children with Cancer. The girls dressed up as Smurfs, and six football teams from across Fife took part.

Meet Stacey Mullen Stacey Mullen, 45, is an expert on running marathons for CLIC Sargent. In 2009 she set

herself the staggering challenge of running ten marathons in Scotland. Stacey told us: “The work CLIC Sargent does supporting children and young people with cancer really inspired me. I only began running two years ago. It just shows that anyone can take up this sport. My aim is to reach my fundraising target and encourage others to don a vest and do their best!”


Regional Events May – October 2010 MG

2 May Stair to Ayr Walk

MG

August Balgarth Bash, Ayr

9 May Ignis Asset Management Women’s 10K

SM

5 September Great Scottish Run

PL

PL

22 May Glencalvie Challenge

11 September Euan Macrae Memorial Bike Challenge, Tain Woods, Ross-shire

SM

23 May Edinburgh Marathon & Scottish Half Marathon

RD

19 September Splash Water, Perthshire

SM

3 October Baxters Loch Ness Marathon & Festival of Running

SM

AF

5-6 June 70 Wild Miles, Glencoe

MG

26 June Prestwick Promenade Zipslide

PL

24 July Zipslide across the River Wick

RD

15 August Glide the Clyde Zipslide

PL

21 August Great Wilderness Challenge, Poolewe and Aultbea

National Events, Runs and Challenges May 2010 – August 2011 May – July Kick for Children with Cancer 0117 314 8624 or emily.felix-davies@clicsargent.org.uk August – September Practice-a-thon Music 0117 311 2624 or rachael.groom@clicsargent.org.uk

October Great South Run 0845 602 4770 or run@clicsargent.org.uk November Hellrunner 0845 602 4770 or run@clicsargent.org.uk April 2011 Virgin London Marathon 0845 602 4770 or run@clicsargent.org.uk

August – September Practice-a-thon Dance 0117 311 2624 or rachael.groom@clicsargent.org.uk

August 2011 Barry Sheene Memorial Motorcycle Challenge 0845 124 1188 or challenges@clicsargent.org.uk

September Edinburgh to Dublin Cycle 0845 124 1188 or challenges@clicsargent.org.uk

Various dates Skydiving, nationwide 0845 124 1188 or challenges@clicsargent.org.uk

September London to Paris Cycle 0845 124 1188 or challenges@clicsargent.org.uk

Various dates Helly Hansen Adventure Challenge Series, nationwide 0845 124 1188 or challenges@clicsargent.org.uk

September Bristol Half Marathon 0845 602 4770 or run@clicsargent.org.uk September Great North Run 0845 602 4770 or run@clicsargent.org.uk

Contact details See the symbol next to each event for the contact details below: RD richard.donald@clicsargent.org.uk or 0141 572 5700

PL peter.logie@clicsargent.org.uk or 0146 371 3080

AF amy.fisher@clicsargent.org.uk or 0141 572 5700

SM samantha.martindale@clicsargent.org.uk

MG may.gilchrist@clicsargent.org.uk or 0129 269 2113

or 0141 572 5700

Registered charity number 1107328 and registered in Scotland (SC039857)

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CLIC Sargent Scotland - Spring 2010 Newsletter