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Our House

Friends Forever There is no better friend than a sister. Meet Jasmine and Zara...

A CLAIRE AUTUMN HOUSE 2017 MAGAZINE


Our House

Welcome to Our House

Contents 4

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Catch up with the latest news from your local children’s hospice.

Karen and Paul Ledsham, who told their story for Children In Need in 2016, reveal their special dedications to their children.

Our House news

6 Hi everyone!

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My name’s Jasmine, I’m 15 and come from St Helens. I’d like to welcome you to the Autumn 2017

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edition of Our House Magazine, from Claire House Children’s Hospice. This issue, it’s me on the front cover,

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along with my little sister Zara. We’ve

Sister Love Read all about Jasmine and Zara’s special friendship and how Claire House helps them make memories together.

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Olivia becomes a barista

got a really special relationship; she’s my best friend. I love spending time at Claire House with her, we have so much fun. And sometimes,

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Mum comes too and we have girlie

Claire House sibling Olivia becomes a barista for the day to raise money for Claire House.

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sleepovers so Dad can have some peace and quiet at home! You can

Myles of Smiles

read all about my story in this issue. 18 There’s lots been going on at Claire House over the past few months and that’s all thanks to donations

Renewed Hope

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Splish splash I was taking a bath Take a peek inside our newly refurbished bathroom with everything children need for splash time at bath time.

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Cookies and cream cheesecake Chef Matt Scard-Jones shares the recipe for his deliciously indulgent cheesecake.

We welcome customers and volunteers to the new and improved shop in the heart of Bromborough.

from people like you. Claire House couldn’t support families like mine without your help, so we’d like to say a big thank you. I hope you’ll enjoy reading this issue of Our House and hearing all about what’s been happening at Claire House. Love, Jasmine x

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20 Editor: Lauren Luxton lauren.luxton@clairehouse.org.uk Deputy Editor: Jess Arnell jessica.arnell@clairehouse.org.uk

Contributors: Cat Jones, Andrew Wedge Photography: Jump-Imaging C.I.C, Jess Doig, Fotopia Images Design: coppermedia.co.uk

Thank you to everyone who has contributed to this edition of Our House, in particular the families featured and our volunteer contributors and photographers.

Claire House Children’s Hospice, Clatterbridge Road, Bebington, CH63 4JD 0151 343 0883 www.clairehouse.org.uk @ClaireHouse Registered Charity Number 1004058


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News Little hero Henry

News Moving mountains for Olivia

CBBC’s Dengineers’ biggest ever den

Leg it to London!

Over 100 supporters took on

how many of my friends

to spend time with their

In May, Claire House supporter

the challenge of climbing

and family wanted to get

brothers and sisters, without

Kerry Jenkins ran from Liverpool

Snowdon at Night in July,

involved and do it with me,”

the barriers of disability.

to London in just seven days.

ascending the highest

explains Jude. “This is a playground like no

Beginning at St George's

midnight, using torches to

The group reached the summit

other. As it’s fully accessible,

Hall, she ran 30 miles a day,

light the way.

in time to watch the sunrise

all the children who come to

finishing her 200 mile run in

and left a white rose at the

the hospice will be able to

Trafalgar Square, cheered by

summit in memory of Olivia.

use it. With a den for parties

family and friends.

mountain in Wales after

Henry Barber

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Jude Bickley, whose daughter Olivia passed away in August

and another where you

Four-year-old Henry Barber

last year at the age of nine,

can chill out in a hammock,

Kerry raised over £11,000 to

is one of Claire House’s

took on the challenge with a

there’s something for

support the seriously and

youngest supporters and

group of 11 friends.

everyone” said Laura Currie,

terminally ill children Claire

Senior Nurse at Claire House.

House care for.

Claire House Liverpool

has in total raised £233 by

Claire House Liverpool has

taking part in different events

Olivia loved coming to Claire

been given CBBC’s The

including the Splash Dash.

House and Jude wanted to

Dengineers treatment as

The den is on the new site of

“I took on this challenge

do something to support the

the grounds have been

Claire House Liverpool which,

because I know Claire House

Henry likes getting messy and

charity that helped her family

transformed into a series of

from September, will start

provide the most wonderful care

being covered in powdered

create so many memories.

themed dens, complete with a

offering more desperately

to children who are terminally

wheelchair-accessible zip wire.

needed services to families

ill and to their families who are

of seriously and terminally ill

in real need of help and some

children in Merseyside.

kind of normality at the most

paint, he said: “Last time I was all yellow like a Minion

“I saw the event and knew

and I had lots of fun.”

immediately that I wanted

The new play village will

to do it in memory of Olivia

allow seriously ill children

Keep an eye out for Henry at

and to raise money for Claire

the next Splash Dash.

House. I couldn’t believe

Jude (right) and friend

The importance of respite

vulnerable time,” said Kerry.

Start your engines! ten Scooter riders revved

750 miles for Claire House

“We decided that whilst

their engines before heading

Children’s Hospice.

taking on such a big ride,

Imagine your much-

Caring for a terminally

With your support, Claire

anticipated holiday was

ill child is a 24-hour job,

House will be able to

Glenn Stewart and nine

charity. My Granddaughter

cancelled at last minute?

leaving parents with

provide the best care to

friends rallied together to

Isabella goes to Claire House

Last year, Claire House had

precious little time or energy

families whenever and

ride across five nations,

so we wanted raise money

to cancel 30 planned respite

for anything else. This is

wherever they need it.

England, Scotland, Northern

to help support them,”

stays for families due to staff

especially draining when

Ireland, the Republic of

explains Glenn.

shortages and prioritising

their planned break at

Ireland and North Wales,

emergency respite and end

Claire House is forced to

of life care.

be cancelled.

out on the road to ride over

Glenn with Isabella

we should raise money for

during a six-day scooter ride. The bikers raised £3,000.


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Sister Love Sisters Jasmine and Zara have had a tough time but are closer than ever, thanks to Claire House. Mum Sam explains‌

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“Seeing my girls together at Claire House means the world to me.”

“The hospice has kept our whole family going, and encouraged an unbreakable bond between Zara and Jasmine.”

Most siblings fight like cat and

Jasmine was five days old

dog but not my girls. Jasmine,

when she was diagnosed

15, and Zara, five, are the best

with DiGeorge Syndrome,

of friends because they know

a genetic condition which

they have to make the most

meant her heart was back

of each minute together.

to front and her lungs were

allocated 21 nights of respite

never complained and held

with her classmates. On one

You see, Jasmine has a rare

so diseased she’d need

Jasmine was fed by a tube

and, though hesitant at first, it

Jasmine’s hand when she

occasion when we had to

condition which means every

to be on a ventilator, a

in her stomach, needed to

was clear that Jasmine loved

was ill. But when Jasmine

take Jasmine to hospital, we

day could be her last.

breathing machine for the

have her oxygen checked,

going. While we had a much-

was at Claire House, we

came back and found the

rest of her life. She was

her lungs cleared of mucous,

needed break, reassured

made time for Zara, taking

staff had baked the girls a

constantly in hospital and

and regular medication. She

that a nurse was on hand

her trampolining or to the

cake each and made them

together at Claire House –

there were countless times

also needed a wheelchair as

if Jasmine fell ill, she made

beach. And every now and

goody bags!

doing treasure hunts, baking

when she nearly didn’t

her legs were too weak.

friends with the other children,

again, we’d all stay at Claire

and painting, or splashing

make it.

went on trips to Chester Zoo

House as a family.

So when I see my girls

However, as time wore on,

around in the swimming

We started going to Claire

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House as a family when Jasmine was two after we were referred through our local hospital. We were

Jasmine and our family have been going to Claire

or did arts and crafts. We were amazed at how

House for 12 years now.

When Zara came along, my

the staff always went the

We’re so grateful to all the

husband Ben and I were

extra mile, everything from

generous donors who make

her the best life we could.

through as she acquired a

conscious of how hard it

getting in the girls’ favourite

this possible. You’re not just

unbreakable bond between

That didn’t stop it being hard

love of Disney princesses,

was for her too, coping

Monster Munch to helping

helping our brave daughters

Zara and Jasmine.

though. Every few hours,

pasta and pigs!

with a poorly big sister. She

Zara write a diary to share

- but the whole family.

pool together, it means the

But our Jasmine defied the

Jasmine started eating,

world to me. The hospice

odds and when we brought

speaking, reading and

has kept our whole family

her home we vowed to give

writing. Her personality shone

going, and encouraged an


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Olivia becomes a barista A Liverpool schoolgirl got the chance to become a coffee barista for the afternoon to raise money for Claire House after they supported her family when her baby sister passed away last year. Nine-year-old Olivia Boswell,

the region for a weekend in

House, before she passed

from Belle Vale, spent time

May, raising over £1,300.

away at just four months old

with a team of Starbucks

in September 2016.

baristas, creating her own

Claire House Children’s

special brews which were

Hospice supported Olivia and

The money raised through

sold to raise money to support

her family following the birth

the sale of the drinks will help

the families of seriously and

of her sister Lilly in June 2016.

Claire House reach out to more families with seriously

terminally ill children. Lilly was born six weeks

“I was so excited to design my very own Starbucks drinks for Claire House; I couldn’t sleep the night before!

and terminally ill children.

premature, weighing just 2lb 6oz and suffering

“I was so excited to design

from serious heart defects

my very own Starbucks drinks

and a rare chromosomal

for Claire House; I couldn’t

abnormality, Mosaic

sleep the night before!”

Edwards Syndrome. “I loved putting the cream Olivia, along with her dad

on the top and loads of

John, 33 and mum, Jane,

sauce, but my favourite part

Olivia’s Red Velvet

32, spent precious time with

was getting to try them all,”

Cappuccino and Humbug

Lilly making memories and

said Olivia.

Hot Chocolate were sold in

enjoying celebrations with the

13 Starbucks stores across

support of the team at Claire


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Myles of Smiles Four-year-old Myles Davies, from Bebington, cut the ribbon at the official reopening of the Claire House shop in Bromborough, along with his proud mum Carrie and nanny Julie. Myles, who has a mito-

to donate over 3,000 bags

chondrial disorder and

of stock to help get the

benefits from the care of

shop back up and running.

Claire House Children’s Hospice, was guest of honour when the shop reopened in July. The shop was refurbished after being

“It’s so nice to see all our volunteers back in the shop.”

forced to close at the beginning of the year when

Karen Carr, who manages

a fire destroyed the back of

the shop, said: “We are

the shop and all of the stock.

delighted to have the shop back open again.

Myles’ mum Carrie said: “We were chuffed to be asked to

“The support we’ve had

come and reopen our local

since the fire happened

Claire House charity shop

back in December has

and for Myles to be the star

been amazing and we

of the show.

can’t thank everyone enough.

“It’s a chance for our family to have the opportunity

“It’s so nice to see all our

to meet the charity’s

volunteers back in the shop

supporters.”

and we are looking forward to welcoming all our lovely

After the fire, the local community came together

customers.”

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Our House

Renewed Hope Claire House family Karen and Paul Ledsham renewed their vows in Jamaica, with special tributes to their children, including fulfilling one of Harrison’s very special wishes. When Karen and Paul Ledsham agreed to tell their story to promote Claire House Children’s Hospice on BBC’s Children In Need back in 2016, the couple, both 43 from Haydock, had no idea it would lead to the holiday of a lifetime. The couple’s story about the loss of both their children;

The Ledsham Family

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Our House

Abigail, who died shortly

“It had been on Harrison’s

Karen and Paul also chose

before her second birthday

bucket list to go to Jamaica

the trip to mark a very

in 2008 and Harrison, who

because he loved reggae

special moment in their

passed away in 2015 following

and Bob Marley. Before he

marriage, a tribute to the

a battle with bone cancer,

died he made us promise

journey they’ve been on.

and the support they received

we could go and do some

from Claire House, touched

of the things on his bucket

the hearts of the nation.

list he never got to do”, explains Karen.

“It had been on Harrison’s bucket list to go to Jamaica.”

Thanks to generous donations from the public, the couple enjoyed a five-

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“We always wanted to renew our vows when we reached our 25 wedding anniversary” th

star all-inclusive trip to the

“We always wanted to renew

Caribbean island, swimming

our vows when we reached

Over £8,000 was raised for

with dolphins and taking a

our 25th wedding anniversary”

the couple through a Just

trip on a catamaran named

Karen continues. “But after

Giving page to send them

Cool Runnings, Harrison’s

all we’ve been through, we

on a dream holiday.

favourite film.

thought we’d do it this year,

Paul and Karen in Jamaica with just the two of us. Well, we like to think the four of us.” Karen walked down the aisle carrying a bouquet

“Fostering is something we’d always wanted to do.”

of yellow flowers, Harrison’s favourite coloured blooms.

thoughtful. We know we would have his blessing.” The couple have since welcomed a little girl into their family in their new role

“Fostering is something we’d

as foster parents.

always wanted to do, and

Paul and Karen in Jamaica

“What made our vow

was something Harrison had

“It’s early days but

renewal even more special

asked us to do. After Abigail

everything is going well”

is that we’d just been

died, he said we have lots

continues Karen.

accepted to be foster

of toys and things and it

parents, and we wanted to

would be nice to help others

celebrate that.

who need it. He was very

To read more about the Ledsham family and watch their film from BBC Children In Need, visit www.clairehouse.org.uk/ledshamfamily.


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Our House

Splish splash I was taking a bath! The children at Claire House love having a splash around in the newly refurbished bathroom. Lots of the children and young people at Claire House Children’s Hospice love bath time. It’s a chance for them to relax, have a splash and play. And with many children not having access to a proper bath at home, it’s a rare treat. The newly refurbished Claire House bathroom means that children get the opportunity to relax and have bath-time fun in a safe and comfortable environment. Young people like Chris can stretch and move around in the warm water which stimulates his circulation and relaxes his muscles, which can become sore and stiff. The new bathroom refurbishment, which has been paid for with a kind donation by the Cheshire Freemasons, has an extra special bath which is complete with mood lighting and music all combined to make bath time an enjoyable and calming experience.

Our House

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Our House

Our House

Ingredients 1 vanilla pod

50g caster sugar

500g full fat cream cheese 200g choc chip cookies 100ml double cream

4 Oreos (garnish)

100g dark chocolate

4 small mousse rings

25g unsalted butter

Your favourite ice cream

Method Crush the choc chip cookies in a bowl, leaving 50g aside. Place 50g of dark chocolate and the butter into a bowl and microwave for 30 seconds until melted, mix until smooth and add the crushed cookies. Place the mousse rings onto a tray and split the mixture between them, pressing the mixture down to form the base, then place in the fridge. Mix the cream cheese, double cream, vanilla seeds

Cookies and Cream Cheesecake The Coach House Inn in Chester shares with us their indulgent new cheesecake recipe. The cheesecake is available on their menu and for each one sold ÂŁ1 is donated to Claire House. Here, we share the simple steps to making this delicious dessert with Head Chef Matt Scard-Jones.

and caster sugar until combined. Fold in the remaining 50g of crushed cookies from earlier and mix again. Melt the remaining chocolate and then slowly stir into the cheesecake mixture. Remove the mousse rings from the fridge and fill with the cheesecake mix, then place them back in the fridge for a minimum of four hours. When the cheesecake is set, remove from the fridge and serve with a scoop of your favourite ice cream and top with crumbled Oreos.

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Our House

Thank you for your support Claire House Children’s Hospice provides a lifeline for families going through the toughest of times, allowing them to make memories that will last a lifetime. If you wish to support our work with a donation, please fill in this form or visit www.clairehouse.org.uk/donate

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No, I cannot Gift Aid my donation. Please notify Claire House if you want to cancel this declaration, change your name or contact details or no longer pay sufficient tax on your incomes and/or Capital Gains Tax. Date

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Please return your donation to: FREEPOST RSGZ-BUCZ-SJUR, Claire House Children’s Hospice, Clatterbridge Road, Wirral, CH63 4JD

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Our House Autumn 2017  

There's no better friend than a sister...meet Jasmine and Zara. Plus, here all about the latest goings on in your local children's hospice,...

Our House Autumn 2017  

There's no better friend than a sister...meet Jasmine and Zara. Plus, here all about the latest goings on in your local children's hospice,...

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