Lifelines for Health (vol 9): Clinical Trials 101: Understanding the Process and the Terminology

Page 27

UNCERTAINTY

Isn’t Easy

“I’m having one of those days when the world feels like it’s crumbling around me. I know you’re supposed to be able to live with a certain amount of uncertainty when you have a child with a chronic condition. But we’ve got some decisions to make about her care, and the outcomes aren’t guaranteed. This kind of uncertainty really takes a toll on parents. What do I do?”

Here’s Help

My client described how a lot of patients and their loved ones feel when they are placed in the position of having to make a health-related decision. Living with a medical diagnosis – yours or a member of family – means being aware of the importance of making informed and thoughtful decisions. But what do you do when everywhere you look uncertainty seems to be staring back at you?

• “I’m so afraid that…” • “If I could just get some kind of a guarantee…” • “What if…” Ever catch yourself using one of these phrases? If you do, I suspect it’s during one of those times when you’ve got a hard decision to make, you want a clear direction forward, and all you see around you is shades of gray. Yet again that unwanted house guest in your home – the chronic condition – leaves you at a crossroads and then demands answers!

FAMILY MATTERS


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