CANCER /
International Brain Tumour Alliance (IBTA) http://www.theibta.org Co-Director: Kathy Oliver
Builds awareness about the challenges of brain tumours, and advocates for equal access to therapies. Supports moves towards greater international collaboration between brain tumour patient and caregiver groups, clinicians, commercial organisations, researchers and allied healthcare professionals with an interest in this disease area. Project-manages an annual Awareness Week and a ‘Walk Around the World for Brain Tumours’, in which people are encouraged to undertake sponsored or unsponsored walks to raise awareness about brain tumours (the IBTA does not receive any funds raised by these activities).
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T: 0044-(0)-1737-813-872 F: 0044-(0)-1737-812-712 Email: kathy@theibta.org
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PO Box 244 Tadworth Surrey KT20 5WQ UK
European activities centred on rare cancers are gaining momentum, and the IBTA has been involved at an organisational level in a number of these.
Geographic remit: Europe (and international). Annual funding / income (most recent): Pharmaceutical funding: In 2009: Antisense Pharma; Archimedes Pharma; Ark Therapeutics; Astra Zeneca; Eli Lilly; Merck Serono; NovoCure; Schering-Plough. Non-pharma funding: Charitable organisations and individuals with an interest in improving the situation for brain tumour patients. Number of members: No formal membership structure. Main projects supported by relevant patient/caregiver support groups, professional societies, commercial and other organisations from many countries. Countries of members: Number of full-time employees: None. Number of volunteers: The IBTA’s day-to-day work and projects are carried out by volunteers and a steering committee. The number of volunteers vary at any given time. Affiliations: European Federation of Neurological Associations (EFNA).
EUROPEAN PATIENT GROUP DIRECTORY, 2009-2010 © BURSON-MARSTELLER / PATIENTVIEW
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